ICE Syndrome (unilateral) - I worry about vision loss in my good eye and viewing your videos helps me realize that if the worst happens, there is still a life out there for me. ❤
Hi, I just found your channel. Love it!❤ I was diagnosed with Statgardt's disease when i was 21. I am legally blind and have been teaching elementary now for over 20 years. I have traveled the world doing something I love. It is possible to live a full beautiful life with low vision. Stay encouraged, everyone! ❤❤❤
This is dope! You’re my first BLACK blind youtuber I’ve seen. I am so happy to see someone that’s the same complexation dealing with a similar situation as me😊. And she’s really beautiful lol.
I am losing my vision slowly these few years and i am very depressed and lost hope for life, i am only 23 and i am super scared of my future now as i wont be able to see soon and i dont know how should i live without vision. But your video gave me comfort somehow, thank you very much.
New subbie here 👋🏾 I am so glad I came upon your channel. I’m 30 years old & lost my vision in 2016 due to a rare disease called Steven-Johnson syndrome. I am a Registeted Nurse & currently trying to find my way back into nursing after feeling all hope was gone. After watching a couple of your videos so far, you have given me hope & motivation to keep pushing forward. Thank you !
Hey love don't know why YT didn't notify me when you wrote this comment so long ago so sorry just seeing it now. I'm so glad you are nursing and doing what you love keep at it in spite of your vision loss, stay strong xx
BTW I also have a degenerative eye disease. But I'm a fighter not a quitter! Thank you again your words bring hope to me and I'm sure multitude of others❤
Girl I’ve been legally blind since i was 12 years old (due to PXE)and my whole life I thought I couldn’t do anything😢. But after my Divorce I got my first actual job after being a stay at home mom for 15 years. I started as at the stock room because I thought it was the only thing I could do. Later I became a cashier which I thought I couldn’t because it was hard to see but I figured out a way to do it and now I’m the stock lead/management. My self esteem went way up and now I want more but i have no idea where to start. Thank god I ran into your video. I’ve always thought no one would understand my needs. But girl I had never hit subscribe that quick lol
Hey love ❣️ wow that’s incredible. Isn’tamazing what you can do and gain from pushing yourself? That’s inspiring for me I appreciate you sharing. I’m so glad you found my channel and you’ll see in the comments that is there are more of us out there on our grind trying to make the most of our time. Stay blessed
I have Stargardt’s Disease. I am a sixth grade teacher, and I have to be honest and say it is difficult. The middle school age can be mean because they are immature. Still, much of it has been rewarding. This year I am able to teach online, and I’m loving it! I also have always loved writing so I hope to get info that one day.
Yes it is very difficult. I’ve worked at a middle school and my vision was much better then than it is now. Even then, they would make comments. Didn’t bother me because as a nutritionist (after school program) I was more concerned about them not cutting themselves lol but I can relate to how you feel especially since you’re an educator and how you feel impacts the class environment. Have you spoken to them about it before? They can be cruel but they can also be compassionate once you explain what’s happening to your retina. It’s good you’re working from home. Gives you a break from being exposed to their attitude
I want to start by saying GOD is good !! I also have Stargardts Disease.diagnosed at 16 years old and I am now 38. I always looked at my disability as a blessing because it allows me to see things differently. I am currently a custodian at a high school. I want to thank you for your inspiration. Keep being beautiful and continue to inspire. Your truly a blessing. God bless!!
Look at that, you've lived more than 1/2 your life with macular degeneration. No small feat. Hope life has been good to you despite the diagnosis. I'm glad you like the content
You are awesome! I always had great eyesight but then I disease has left me very poorly sighted I need to making income that doesn't involve driving, please keep sharing great ideas. I was so stuck in why I'm no longer employable and taking online courses then today a light bulb came on in my head and said go see if there are videos on RUclips describing how the blind and poorly sighted can have or do jobs and I am now listening to your video! Thank you so much 🥰 I have subscribed to your RUclips channel and I will watch for more of your videos to pop up. And I will watch them!
What do other people do for transportation? I’ve been disabled my whole life, never lived near a bus and don’t qualify for paratransit. I would have to transfer to another paratransit to get anywhere anyway.
I’m a recently legally blind applicant and you are a motivation to me I can still see things to be able to create Contant and I rap also you just gave me to get ideas I am going to work towards an S I am lucky to make some coins, I will give you a percentage for the ideas
I'm going blind. I am currently a teacher, and I LOVE my job. Sadly, I know that I will have to look for another line of work in the future. Not looking forward to it.
What is your prognosis? Ive heard of blind teachers in the community hopefully your school and employers can find away to keep you doing what you love for as long as possible!
You don't have to unless you want to. I'm legally blind. I have taught early childhood through kindergarten. Many of my friends in the blind community are educatiaters from pre-school to college.
I was just recently diagnosed with SD but I have been losing my vision slowly for years now. I am about to graduate from medical school in May and will begin residency in July. It. Is. HARD. But it helps me to relate to my patients’ struggles in ways that I wouldn’t be able to otherwise.
@@MizTamara Are you also a doc/in healthcare??? I have been looking for others who have experienced vision loss while working in patient care and I would love some advice if you could provide it!
@@ShyDeni19Yes I work in health care, I'm a physical Therapist Assistant. It can be challenging at times, we are "lucky" because there is so much technology at our disposal. I use my phone for magnification if i need to read a non electronic document, I have amazing co workers, who will also read things for me, also when it comes to modalities, once again I use my domed magnifier or phone, and all of my documentation is done by computer or Ipad. I find that when a patinet has an issue, i'm sort of at an advantage because i'll use my own struggles, experience to encourage them to get better. I find that sometimes i gain more respect from my patients that way.
@ShyDeni19 - Congrats on your residency. What area will you be training in? How are they accommodating you as a healthcare provider having a visual impairment? Is there a way to contact you?
I think the hardest thing about serving food or drinks in a restaurant would be trying not to knock into anyone and making sure stuff makes it to the tables. I haven't seen many blind people doing regular mundane jobs though ... Where are the blind casheers or cleaners etc? I know those are not interesting, but a lot of sighted people do these jobs either when they're starting out or in between better jobs.
They might be working these positions but not "look blind" so many times people would be shocked that I was partially sighted and asked me why I did't have a dog or a cane
I never could be a cashier cuz of my vision and if i tried i would have an anxiety attack cuz i would have to look so close to the screen and be too slow so i pushed carts for a while but i quit that cuz i hate retail now im struggling to find anything because im not in a big city i have limited access. I hate doing things online cuz i cant type fast at all
I have Stargardt, I’m a visual artist and I have an online business on Etsy. I found it better to not disclose disability until I get the job. I think employers would rather not deal with the added “liability”. But that is interesting to hear that these 3 sectors are interested in hiring people with low vision.. Anyways, this is the first time coming across your channel and its nice to hear from someone with the same condition. You mentioned that you had a hard time accepting the diagnosis at first. I have an article on Huffington Post that spoke of my experience with this.
that's amazing I hope you are enjoying your artistry through etsy! yes, it's unfortunate that we may be better off not disclosing interlay Link your post and etsy page!!! Others in the comment can check it out!
Hello, many situations you've pointed out in this video, are things I currently struggle with, and before watching your video today, I was on the verge of giving up on living a life that would meet my standards. The thing I was contemplating, was settling for something less than I'm satisfied with, since I had convinced myself that accomplishing more wasn't going to be feesible. Not only has it been hard being legally blind, but getting other people to understand my limitations and stop holding me to the standards of someone fully sighted, have been equally as frustrating. I can't say "wow" enough. Thank you so much for creating this video and for your insight.
Ps: when i was. Studying law we had an instructor who was a completely blind barrister and he was amazing! When i was a civil servant i met a visiting computer programmer who was completely blind .. i have no idea how he did it. Programming is hard even for the sited. You get one syntax wrong and the whole programme fails And then in the UK we had a Home Secretary who was completely blind …. So for all who are in a dilemma knowing what to do, know everything is possible. But at the same time do not give yourself a hard time for not being awesome! We are all awesome in our own way and do not measure yourself against someone elses standards.
Hey every now and then you come across a channel and you wonder why the heck i never new of this before. Your channel gave me that very same feeling. You’re an awesome content creator. You’re a poet, do you know it? How you put in phrases like ‘if you like it i love it’. Or … see eye to eye etc. I’m so jealous. I wish i had that gift of the gab! :) Anyway, i loved your video but was amazed how the. things you list are the thigns i would never think of and the things you. Warned against are the things i am into. I am 51 years old and live in the UK. I have a degenerative eye disorder and am blind. They first thought i had RP, but apparently i have a form of battens disease. Very rare. So i was a civil servant when i started losing my sight. I was a ‘transcription manager’ and continued to do that as i lost my site. So i had to manage a team of 20 individuals who were to do quality checks on text transcribed from handwritten very old manuscript. I now wonder how the hell i did that. But i was good enough to get promoted. But i was tired of working for the government and wanted to learn a skill …. So i decided to become a lawyer. I did a ‘GDL’ or graduate diploma for law. But then i thought, if i continue studying law, i will not be able to have a job as this will be really demanding, so i need to have a means of income so that i can still support my family. I started my own eCommerce business but then loved it so much that i decided to do this instead of law and i gave my up government job for it. Then i went on to have a marketing agency for my own and we help other brands online. So everything i do is on the computer :) Now i have my own RUclips channel. Actually i have two. There are some awesome individuals leaving comments here. Guys if there is anything i can do to help or provide mentoring, visit my channel where you can get my email address. Get in touch. Now excuse me as i go binge watch Alisha’s videos.
I have stargadts and I’ve had SUCH a hard time finding a job where I feel I fit in. And also finding job that’s willing to accommodate for me and let me take time to do things. I feel lots of jobs are very fast paced and it’s very hard for me who needs more time to do things. This video helped me so much and find new ideas!
Teaching 2 students this year with vision loss. Both sets of parents are very proactive which is awesome! This video was encouraging to hear. The possibilities are endless!
@@alishainc coping really well! They have a teacher's assistant for whatever support they need, but they have also learned to adapt and self-regulate. When we are outside we try to stay in the shade or not have them out for too long. It is definitely something that makes me think deeper about my lessons. For instance, doing colour activities is not a good choice.
Hi Alisha! I am sighted however I have macular degeneration in my family (my mom & aunt) so I am tested each time I go for an eye exam. This was very interesting and I love how you raised so many options. As you mentioned them I thought "yes, why not...colour outside the lines and go for it!" Great video and you always inspire me!
awww TYSM I'm sure you understand more than most sighted ppl because you know people and have family experiencing what the blind fam does. Appreciate your comment and kind words 💜
being blind sucks i hate when people think im stupid because im disabled. i miss seeing all the beautiful things like color i miss 3d movies i hate stairs and i hate sidewalks with cracks in them because they look like stairs to me. my depth perception is way off and its funny sometimes but i get embarrassed when i miss a step and yes its quite often. i lost part of my vision 9 years ago and ive been completely blind 3 times for about a year each. diabetes caused my blindness. Thank God i have my wife to help me walk around and find my way when it gets hard to see. i subbed btw
Love your video! I also have Stargardt's Disease and work as a therapist and yoga/meditation teacher. Thank you for this, it has also given me some new inspiration for podcasts! ❤️
that's amazing TFS and also I hope you're proud of yourself for pushing limitations and working in a industry where your 'weaknesses' can impact so many to feel empowered in themselves xx
Love this video! I am a physical therapist assistant (I do everything besides evaluation, and discharges) yes with adaptations and thankfully technology since all of my documentation is on an IPad it’s possible, Also it helps that I have a director who is accommodating.
@@alishainc you're so welcome love and no worry you're not missing out on anything we were created to feel on this earth to experience the true nature of life, you've been gifted 🦋
You are an amazing young woman. Thank you for sharing. I myself am sighted but have a friend who has been visually impaired since childhood. I want to learn about opportunities that she might want to avail herself to. Her circle is pretty small and she relies on others I believe more as a way of community. She has a limited income but has a gift of knitting there fabulous blankets, booties for adults and I believe hats. I would like to show her others that have been able to succeed with their gifts and talents.
Hi Alecia B, my name is Emily and I am totally blind. All my life, I’ve wondered what jobs I can do. My dream really, is to be a DJ because I have a huge collection of Funk and Soul music that I’ve created for 30pluss years. It started with the love of radio and my brother’s cassette tapes. When I turnt 12 I flipped through the radio dial in the 80s and found my 92.5 and I never left. It played Funk and Soul and the station may have been sold, but I never left that station in my heart. I went from record store to record store after rent was payed and buggabooed buggabooed buggabooed the store people about do you have this or that. It’s still on with the collecting. When the internet came out, I couldn’t download right away because I didn’t know how to do it on Napster. 4shared I could do all day long and now, RUclips and ITunes. ITunes though, is about to lose a customer since I can’t transfer files onto my terrobiter hard drive anymore. My mobility skills have never been good so I take the MTS buss, or friends help when I wanna go out. Even with that MTS though, I know how to get some place on time. Although my mobility sucks, I have computer skills, on my own computer and my friend taught me how to use my IPhone so I’m good with Social Media. Somebody said I’d be a good blogger but I never knew how to start a blog and when I go to RUclips, sighted people directions and blind people directions are totally different. Also, that Jaws, when it comes to doing business, can be a pain in the ass. Another thing I don’t know how to do yet and I wanna learn, podcasting music like a DJ, not for the money, but for the opportunity to do it because I’ve loved Funk and Soul music since I was little and I’m 48 now. How many people go through their lives not having a job by this age? I feel like an alien from Mars when it comes to this. Anyway, if you have any suggestions, please let me know. Oh, I’ve went through stupid Voc Rehab and they gave me the run around. I became a Braille Tutor at one point in LA, but I had to go back to where I live because I couldn’t find any permanent living place in LA. I’m thinking now, we’ve come along way in 20something years, now with the internet, there must be something for us as blind people.
@@alishainc Thanks so much Alecia. I’ll be putting my shows I’ve done so far on Soundcloud with my friend’s help really soon, like sometime this month. My other friend was giving me all kinds of advice but I’m not worried about a lot of stuff right now, I just wanna get those shows on Soundcloud and make some more. I’m basically, running my mouth and playing music. I’ve been collecting Funk and Soul music since I was 13 and I’m 49 now and still collecting. So, musically the show is gonna be off the hook. As far as my talk on the show, I think I need more practice.
Hii Di.1st of all thank you so much for this video.Being legally blind job is always a big problem in my mind...Thankfully I am doing my post graduation in Hindi.Hoping to be a teacher in future..wish me luck..Love you
U are so pretty & make me feel more hopeful about losing my eyesight. Like a death sentence to an artist 😕 Hope I am able to create more art before my eyes fail due to macular Degeneration.
aww thanks love! 🤍 Yes sometimes it does, it really does but we have to be strong and set your minds to make the most of the situation . That's how we thrive. Stay strong
Hey Becky it is hard. I'm glad you're honest about your current state and emotions, it is what you're currently going though not what you're going through forever. I hope that you can land something and it becomes the building block for a fulfilling career
Hey I love love this video. It give me hope. Im totally in awe of what you do. I’m really struggling at this point. I’m legally blind and I am smart but I feel so trapped I have a mundane office job and I’m so bored. I want to do something more but I can’t figure out what or how to make it happen. I’m not good at anything in particular. I have always been busy having eye surgeries. I’m 34 year old women diagnosed which uveitis at age 4 and Glacoma at age 6
I'm glad you could find hope in this video looking for a job is hard looking for a job while blind... out of this world but stay positive and committed to finding something you like to do that you can flourish in too
@@leeleeb7413 I don't work at tje bedside anymore. I do case management so I mostly work on the computer and phone. I probably could get by with a magnifier though if I did still have to work at bedside. I had to do injectable meds on myself over the summer and I used a magnifier to mix and draw the meds. It was fine.Don't know about doing things like IVs and blood draws but most hospitals have specialized nurses and phlebotomists that do that stuff.
I have keratoconus and trying to explain how low vision is to people that can see is exhausting to the point i dont do it anymore. I spend majority of my time in my room sleeping feeling defeated. If it wasnt for my niece i would of tapped out a long time ago but i want to be there when she grows up. Thank you for your content im currently searching for a way to earn money without using my sight because the aids they give me have my eyesight degrading by the day.
I'm trying to figure out what I can do. Since my 3 retina detachments, I'm not able to go back to my previous career because it's too physically demanding with lifting, bending, and strenuous. My center vision is distorted, sore, also see flashes and bubbles floating all day. Trying to get any disability is so difficult. Doesn't seem successful. So, I need some kind of job.
Hey new sub. I know the video is old, hope this reaches you. I have retinas pigmentosa(RP) It cause my retinas to detach from my eyes so eventually I'll be blind. Night blindness, light sensitivity, nsar-far sightseers and flashes are some of my symptoms as well. I want to start making video content and would love some advice (software, presence, stcl. Thank you for what you do hun. God bless.
Hi love thank for the support. i know a couple wiht RP it's a hard life hope you're taking it in stride. How have you been managing lately? I have a few vieos on what I use to make my videos that I hope will help you let me know whne you start your channel and I'll watch 💗
@@alishainc om such a homebody these days 😆 I have my insecurities about it somedays. But those days are becoming fewer. Definite hard proces with RP but I'm a believer in Yah(god) so that helps me stay less afraid of it. And thank you for the future support love! Continue to be a light out here.
Yesss!!! One of my friend is blind but he is runs on NGOFor blind people and also do stage show his band name is udan entertainment group now his work on blind developer skills in pandemic time for binld people how to earning and sell their products so he organize one show on 27 Jan 2021 ebbing 8 to 11 Indian time plzz join & help his group plzz 🙏🙏🙏🙏🙏🙏🌺
Would love to hear about the editing equipment. I am leaving a message from my from my daughter's account. She has recently become legally blind.. We started college as the diagnosis began. As her mom I need assistance. She is taking a class that will require her to learn Adobe Premiere. So it will help would to know how you access it. I love how you talking about purpose. This is something I mentioned just last week at her college. And YES reading now difficult and we have been using Kurzweil. Unfortunately, it isn't always able to read assignments and has glitches. Do you know of a better reader. Writing this morning because I have been up most of the night seeking help to ensure that she is educated. She has always been low vision but being legally is different. I am my daughter's biggest advocate. Help regarding accomodations, resources and just how to go about life
Sorry for the typos. I accidentally hit the send button! Lol and I am sighted. However, the gist of my message is that any help you could provide would be great. We need help with supporting the Accessibility's Department at her university. Thanks Ms. Thomas
thanks for sharing. Sorry to hear she's recently become legally blind. I have not used tahat device you've mentioned. I've done some reviews and videos on assistive devices out here if you check out the Stargardt's playlist
I also have star guards my last job I was a kitchen manager. Looking for a job now without an education, being blind with a high school diploma is tough for a job any suggestions?
TFS Kevin that's hard. I've worked in the restaurant for years for you to be a kitchen manager with any amount of vision loss kuddos to you I hope you took a moment to appreciate yourself
I have a RUclips page about my cats and anotherr showing my life as a blind person. The cats Truly and Munchkins. and the other page I am Lind but see with ny hear[.
I feel like it's not equality when they want to "fill their quota" on blind people or diverse people. I am still planning on getting my Master's of Education in Family and Cobsuner Sciences. Stargardts was just discovered in me last year and my vision had gotten worse this year but I don't want to give up my dream. I just don't know how to do anything as a blind person and how to promote myself in a job, despite my vision problems. You'd think it would be against the ADA to not hire someone because we need more equipment but not sure how that works. Thanks for the video!
True quality which is why I was questioning if affirmative action is the right freezing… And the alternative would be discrimination which honestly is happening right now and I’ve experienced it myself I know many people who have not been hired from the job because originally impaired. It is illegal, the company still do it so that’s why I wanted to mention the places that do want to feel sluts with people that have vision loss. I wrote ahead is not going to be easy I can’t lie but we have to find ways to make it easier for her selves and accommodate ourselves or companies will not work for companies are going to I hope that this journey strengthens and you find satisfaction in what you do. Just remember the hard times you experience and what you overcome will help the next blind person wanting to do the same thing 💙
I think of quotas and affirmative action as a conscious counter to unconscious bias. If you look at the industry you work in, the schools your employees are coming out of, your own company... and you see a gap... and you know no one around you is an overt bigot... there is still something lacking, still something leaving people behind... Companies fill quotas, but they don't fill quotas with unqualified people. So fuck it, take the job and run.
If you had to choose between making RUclips videos or being a Nutritionist, which would you choose? Interesting list of jobs for somebody that is blind. You also have a beautiful smile 😊!!!🇧🇷🇧🇷🇧🇷
Breezie bre Bradenton Fl Man of many talents and work ethnics I rap sang produce …etc most if all in the name of Jesus I minister the gospel Thank you for allowing me to comment
if your name is actually Tuesday, that's sick! Wow that's so good you're self employed congrats amigo keeping pushing the envelope and being successful in spite of sight
Good suggestions for persons like Us.? with disability. I believe that if we come together and support each other, we could even have a better stage to show our Talent... For example, what if we create a group or a website in where blind people can come to show their talent and what they are capable of doing so that others can See.!.
![Jack Harlow - Hello Miss Johnson [Official Music Video]](http://i.ytimg.com/vi/Q86_nlRoIGw/mqdefault.jpg)
Omg guys I’m HORRIFIED with the audio quality! I don’t know why it sounds like this...so sorry next video will be better promise 🤎
You are sooooo beautiful.
The quality is fine. Thanks for making this. I’m an RN with severe glaucoma Trying to figure out where to start
I think it's fine. You must notice more because you are so attuned to sound. Great video.
Hi... I am blind due to rp and I always wanted to work but I do not have idea how.. Am also a church drummer but not paid musician. I am from NM
ICE Syndrome (unilateral) - I worry about vision loss in my good eye and viewing your videos helps me realize that if the worst happens, there is still a life out there for me. ❤
Hi, I just found your channel. Love it!❤ I was diagnosed with Statgardt's disease when i was 21. I am legally blind and have been teaching elementary now for over 20 years. I have traveled the world doing something I love. It is possible to live a full beautiful life with low vision. Stay encouraged, everyone! ❤❤❤
This is dope! You’re my first BLACK blind youtuber I’ve seen. I am so happy to see someone that’s the same complexation dealing with a similar situation as me😊. And she’s really beautiful lol.
aww thanks love representation is everything
welcome to the blind fam hope you're keeping well
She's legally blind not totally blind, I think it's different
@@aalwayslucky428 Yes, I am aware of that lol. I am as well.
This video made me cry. I am vision impaired now and lost hope in living a normal life. Your encouraging words gave me second wind. Stay strong.
I'm sorry the message made you emotional. I hope you're taking it one moment at a time, it's so hard but it's not impossible.
I am losing my vision slowly these few years and i am very depressed and lost hope for life, i am only 23 and i am super scared of my future now as i wont be able to see soon and i dont know how should i live without vision. But your video gave me comfort somehow, thank you very much.
I am blind and i am a Naildesigner, a medical Footcare Specialist and a RUclipsr ...its possible❤
New subbie here 👋🏾 I am so glad I came upon your channel. I’m 30 years old & lost my vision in 2016 due to a rare disease called Steven-Johnson syndrome. I am a Registeted Nurse & currently trying to find my way back into nursing after feeling all hope was gone. After watching a couple of your videos so far, you have given me hope & motivation to keep pushing forward. Thank you !
Hey love don't know why YT didn't notify me when you wrote this comment so long ago so sorry just seeing it now. I'm so glad you are nursing and doing what you love keep at it in spite of your vision loss, stay strong xx
BTW I also have a degenerative eye disease. But I'm a fighter not a quitter! Thank you again your words bring hope to me and I'm sure multitude of others❤
YESSSSSSSS stay strong!!!! it's an ongoing process. Also give yourself grace on hard days it's a challenge but you'll persevere!
Girl I’ve been legally blind since i was 12 years old (due to PXE)and my whole life I thought I couldn’t do anything😢. But after my Divorce I got my first actual job after being a stay at home mom for 15 years. I started as at the stock room because I thought it was the only thing I could do. Later I became a cashier which I thought I couldn’t because it was hard to see but I figured out a way to do it and now I’m the stock lead/management. My self esteem went way up and now I want more but i have no idea where to start. Thank god I ran into your video. I’ve always thought no one would understand my needs. But girl I had never hit subscribe that quick lol
Hey love ❣️ wow that’s incredible. Isn’tamazing what you can do and gain from pushing yourself? That’s inspiring for me I appreciate you sharing. I’m so glad you found my channel and you’ll see in the comments that is there are more of us out there on our grind trying to make the most of our time. Stay blessed
I work as a dishwasher at Denny’s my vision lose is since birth and it’s call ROP retinopathy of prematurity
glad you'[re still working. Hope you're managing as best as possible
Blind Fury is very well known blind rapper, he's been on MTV and BET
I worry about trying to be self-employed and ending up without health insurance (have been on Medicare for years now).
I have Stargardt’s Disease. I am a sixth grade teacher, and I have to be honest and say it is difficult. The middle school age can be mean because they are immature. Still, much of it has been rewarding. This year I am able to teach online, and I’m loving it! I also have always loved writing so I hope to get info that one day.
Yes it is very difficult. I’ve worked at a middle school and my vision was much better then than it is now. Even then, they would make comments. Didn’t bother me because as a nutritionist (after school program) I was more concerned about them not cutting themselves lol but I can relate to how you feel especially since you’re an educator and how you feel impacts the class environment.
Have you spoken to them about it before? They can be cruel but they can also be compassionate once you explain what’s happening to your retina. It’s good you’re working from home. Gives you a break from being exposed to their attitude
I want to start by saying GOD is good !! I also have Stargardts Disease.diagnosed at 16 years old and I am now 38. I always looked at my disability as a blessing because it allows me to see things differently. I am currently a custodian at a high school. I want to thank you for your inspiration. Keep being beautiful and continue to inspire. Your truly a blessing. God bless!!
Look at that, you've lived more than 1/2 your life with macular degeneration. No small feat. Hope life has been good to you despite the diagnosis. I'm glad you like the content
You are awesome! I always had great eyesight but then I disease has left me very poorly sighted I need to making income that doesn't involve driving, please keep sharing great ideas. I was so stuck in why I'm no longer employable and taking online courses then today a light bulb came on in my head and said go see if there are videos on RUclips describing how the blind and poorly sighted can have or do jobs and I am now listening to your video! Thank you so much 🥰 I have subscribed to your RUclips channel and I will watch for more of your videos to pop up. And I will watch them!
ah! I'm so happy that light bulb went off and you got ht encouragement you needed. Stay strong my friend!
What do other people do for transportation? I’ve been disabled my whole life, never lived near a bus and don’t qualify for paratransit. I would have to transfer to another paratransit to get anywhere anyway.
I’m a recently legally blind applicant and you are a motivation to me I can still see things to be able to create Contant and I rap also you just gave me to get ideas I am going to work towards an S I am lucky to make some coins, I will give you a percentage for the ideas
I'm going blind. I am currently a teacher, and I LOVE my job. Sadly, I know that I will have to look for another line of work in the future. Not looking forward to it.
What is your prognosis? Ive heard of blind teachers in the community hopefully your school and employers can find away to keep you doing what you love for as long as possible!
You don't have to unless you want to. I'm legally blind. I have taught early childhood through kindergarten. Many of my friends in the blind community are educatiaters from pre-school to college.
Work in a school with blind kids
In my school for visual impaired and blind children
There's a blind teacher working there
This is new to me. I lost my vusion which made me depressed. Going to try my best bc i miss my life and i want my life back.
Depressed is not the word I lost all my vision in my right eye in matter of days due to retinal detachment 😢
I was just recently diagnosed with SD but I have been losing my vision slowly for years now. I am about to graduate from medical school in May and will begin residency in July. It. Is. HARD. But it helps me to relate to my patients’ struggles in ways that I wouldn’t be able to otherwise.
Congratulations!, and yes it does help to go relate to your patients, I find that it helps me to better connect with them at times as well
@@MizTamara Are you also a doc/in healthcare??? I have been looking for others who have experienced vision loss while working in patient care and I would love some advice if you could provide it!
@@ShyDeni19Yes I work in health care, I'm a physical Therapist Assistant. It can be challenging at times, we are "lucky" because there is so much technology at our disposal. I use my phone for magnification if i need to read a non electronic document, I have amazing co workers, who will also read things for me, also when it comes to modalities, once again I use my domed magnifier or phone, and all of my documentation is done by computer or Ipad. I find that when a patinet has an issue, i'm sort of at an advantage because i'll use my own struggles, experience to encourage them to get better. I find that sometimes i gain more respect from my patients that way.
CONGRATS 💜 Good luck on your Residency. July will be here in no time!!! stay strong love
@ShyDeni19 - Congrats on your residency. What area will you be training in? How are they accommodating you as a healthcare provider having a visual impairment? Is there a way to contact you?
I think the hardest thing about serving food or drinks in a restaurant would be trying not to knock into anyone and making sure stuff makes it to the tables. I haven't seen many blind people doing regular mundane jobs though ... Where are the blind casheers or cleaners etc? I know those are not interesting, but a lot of sighted people do these jobs either when they're starting out or in between better jobs.
They might be working these positions but not "look blind" so many times people would be shocked that I was partially sighted and asked me why I did't have a dog or a cane
I never could be a cashier cuz of my vision and if i tried i would have an anxiety attack cuz i would have to look so close to the screen and be too slow so i pushed carts for a while but i quit that cuz i hate retail now im struggling to find anything because im not in a big city i have limited access. I hate doing things online cuz i cant type fast at all
I have Stargardt, I’m a visual artist and I have an online business on Etsy. I found it better to not disclose disability until I get the job. I think employers would rather not deal with the added “liability”. But that is interesting to hear that these 3 sectors are interested in hiring people with low vision.. Anyways, this is the first time coming across your channel and its nice to hear from someone with the same condition. You mentioned that you had a hard time accepting the diagnosis at first. I have an article on Huffington Post that spoke of my experience with this.
that's amazing I hope you are enjoying your artistry through etsy!
yes, it's unfortunate that we may be better off not disclosing interlay
Link your post and etsy page!!! Others in the comment can check it out!
Hello, many situations you've pointed out in this video, are things I currently struggle with, and before watching your video today, I was on the verge of giving up on living a life that would meet my standards. The thing I was contemplating, was settling for something less than I'm satisfied with, since I had convinced myself that accomplishing more wasn't going to be feesible. Not only has it been hard being legally blind, but getting other people to understand my limitations and stop holding me to the standards of someone fully sighted, have been equally as frustrating. I can't say "wow" enough. Thank you so much for creating this video and for your insight.
glad you found my content. Keep on hoping. It's essential on this road we're on
Ps: when i was. Studying law we had an instructor who was a completely blind barrister and he was amazing!
When i was a civil servant i met a visiting computer programmer who was completely blind .. i have no idea how he did it. Programming is hard even for the sited. You get one syntax wrong and the whole programme fails
And then in the UK we had a Home Secretary who was completely blind …. So for all who are in a dilemma knowing what to do, know everything is possible. But at the same time do not give yourself a hard time for not being awesome! We are all awesome in our own way and do not measure yourself against someone elses standards.
Hey every now and then you come across a channel and you wonder why the heck i never new of this before. Your channel gave me that very same feeling.
You’re an awesome content creator. You’re a poet, do you know it? How you put in phrases like ‘if you like it i love it’. Or … see eye to eye etc. I’m so jealous. I wish i had that gift of the gab! :)
Anyway, i loved your video but was amazed how the. things you list are the thigns i would never think of and the things you. Warned against are the things i am into.
I am 51 years old and live in the UK. I have a degenerative eye disorder and am blind. They first thought i had RP, but apparently i have a form of battens disease. Very rare.
So i was a civil servant when i started losing my sight. I was a ‘transcription manager’ and continued to do that as i lost my site. So i had to manage a team of 20 individuals who were to do quality checks on text transcribed from handwritten very old manuscript. I now wonder how the hell i did that. But i was good enough to get promoted.
But i was tired of working for the government and wanted to learn a skill …. So i decided to become a lawyer. I did a ‘GDL’ or graduate diploma for law. But then i thought, if i continue studying law, i will not be able to have a job as this will be really demanding, so i need to have a means of income so that i can still support my family.
I started my own eCommerce business but then loved it so much that i decided to do this instead of law and i gave my up government job for it.
Then i went on to have a marketing agency for my own and we help other brands online. So everything i do is on the computer :)
Now i have my own RUclips channel. Actually i have two.
There are some awesome individuals leaving comments here. Guys if there is anything i can do to help or provide mentoring, visit my channel where you can get my email address. Get in touch.
Now excuse me as i go binge watch Alisha’s videos.
I have stargadts and I’ve had SUCH a hard time finding a job where I feel I fit in. And also finding job that’s willing to accommodate for me and let me take time to do things. I feel lots of jobs are very fast paced and it’s very hard for me who needs more time to do things. This video helped me so much and find new ideas!
Teaching 2 students this year with vision loss. Both sets of parents are very proactive which is awesome! This video was encouraging to hear. The possibilities are endless!
Thanks cousin!!! 💕 How are they doing? It's good they have support, makes a world of a difference
@@alishainc coping really well! They have a teacher's assistant for whatever support they need, but they have also learned to adapt and self-regulate. When we are outside we try to stay in the shade or not have them out for too long. It is definitely something that makes me think deeper about my lessons. For instance, doing colour activities is not a good choice.
Hi Alisha! I am sighted however I have macular degeneration in my family (my mom & aunt) so I am tested each time I go for an eye exam. This was very interesting and I love how you raised so many options. As you mentioned them I thought "yes, why not...colour outside the lines and go for it!" Great video and you always inspire me!
awww TYSM I'm sure you understand more than most sighted ppl because you know people and have family experiencing what the blind fam does. Appreciate your comment and kind words 💜
Subscribed immediately. I’m also blind. And looking to only work for myself.
thanks for the support! Also, hope you achieve your goal. It's always been my goal too. No one to misjudge you based on your diagnosis
being blind sucks i hate when people think im stupid because im disabled. i miss seeing all the beautiful things like color i miss 3d movies i hate stairs and i hate sidewalks with cracks in them because they look like stairs to me. my depth perception is way off and its funny sometimes but i get embarrassed when i miss a step and yes its quite often. i lost part of my vision 9 years ago and ive been completely blind 3 times for about a year each. diabetes caused my blindness. Thank God i have my wife to help me walk around and find my way when it gets hard to see. i subbed btw
Yup it's a struggle for sure. THanks for the support and I'm glad your wife is there for you
Love your video! I also have Stargardt's Disease and work as a therapist and yoga/meditation teacher. Thank you for this, it has also given me some new inspiration for podcasts! ❤️
that's amazing TFS and also I hope you're proud of yourself for pushing limitations and working in a industry where your 'weaknesses' can impact so many to feel empowered in themselves xx
I want to help you with sunglasses!!!
Love this video! I am a physical therapist assistant (I do everything besides evaluation, and discharges) yes with adaptations and thankfully technology since all of my documentation is on an IPad it’s possible, Also it helps that I have a director who is accommodating.
that's so coo thanks for sharing what yo do
Definitely please give me some advice I wanna work. I wanna have a career but I have a disability.
You have the purest eyes you truly see the beauty of life and yet it's only your reflection 🌈
oh wow thank you so much that's so sweet
@@alishainc you're so welcome love and no worry you're not missing out on anything we were created to feel on this earth to experience the true nature of life, you've been gifted 🦋
Thanks we can do anything n everything I am visually impair n I do hair just for fun
What a wealth of enthusiasm you are! Thank you!!
thanks David!! Hope life is treating you well
Thank you for this video! It gave me hope ❤️
You going blind or legally blind?
It's the size of the room love, the sound. I'm am definitely interested in how you make the videos.
You are an amazing young woman. Thank you for sharing. I myself am sighted but have a friend who has been visually impaired since childhood. I want to learn about opportunities that she might want to avail herself to. Her circle is pretty small and she relies on others I believe more as a way of community. She has a limited income but has a gift of knitting there fabulous blankets, booties for adults and I believe hats. I would like to show her others that have been able to succeed with their gifts and talents.
Yes! Thanks what I’m here for your friend is lucky to have someone as conscious and considerate as you. Wishing both of you luck and happiness
Hi Alecia B, my name is Emily and I am totally blind. All my life, I’ve wondered what jobs I can do. My dream really, is to be a DJ because I have a huge collection of Funk and Soul music that I’ve created for 30pluss years. It started with the love of radio and my brother’s cassette tapes. When I turnt 12 I flipped through the radio dial in the 80s and found my 92.5 and I never left. It played Funk and Soul and the station may have been sold, but I never left that station in my heart. I went from record store to record store after rent was payed and buggabooed buggabooed buggabooed the store people about do you have this or that. It’s still on with the collecting. When the internet came out, I couldn’t download right away because I didn’t know how to do it on Napster. 4shared I could do all day long and now, RUclips and ITunes. ITunes though, is about to lose a customer since I can’t transfer files onto my terrobiter hard drive anymore. My mobility skills have never been good so I take the MTS buss, or friends help when I wanna go out. Even with that MTS though, I know how to get some place on time. Although my mobility sucks, I have computer skills, on my own computer and my friend taught me how to use my IPhone so I’m good with Social Media. Somebody said I’d be a good blogger but I never knew how to start a blog and when I go to RUclips, sighted people directions and blind people directions are totally different. Also, that Jaws, when it comes to doing business, can be a pain in the ass. Another thing I don’t know how to do yet and I wanna learn, podcasting music like a DJ, not for the money, but for the opportunity to do it because I’ve loved Funk and Soul music since I was little and I’m 48 now. How many people go through their lives not having a job by this age? I feel like an alien from Mars when it comes to this. Anyway, if you have any suggestions, please let me know. Oh, I’ve went through stupid Voc Rehab and they gave me the run around. I became a Braille Tutor at one point in LA, but I had to go back to where I live because I couldn’t find any permanent living place in LA. I’m thinking now, we’ve come along way in 20something years, now with the internet, there must be something for us as blind people.
That is so cool you should do it! Blind DJ!!!
@@alishainc Thanks so much Alecia. I’ll be putting my shows I’ve done so far on Soundcloud with my friend’s help really soon, like sometime this month. My other friend was giving me all kinds of advice but I’m not worried about a lot of stuff right now, I just wanna get those shows on Soundcloud and make some more. I’m basically, running my mouth and playing music. I’ve been collecting Funk and Soul music since I was 13 and I’m 49 now and still collecting. So, musically the show is gonna be off the hook. As far as my talk on the show, I think I need more practice.
Hii Di.1st of all thank you so much for this video.Being legally blind job is always a big problem in my mind...Thankfully I am doing my post graduation in Hindi.Hoping to be a teacher in future..wish me luck..Love you
CONGRATULATIONS!!! 🎉🎉🎉🎉 Good Luck I'm sure your insight will bring new pwespective to your career
@@alishainc Tysm😘
I recommend National Industries for the Blind. I got started as a Contract Closeout Specialist as a professional career.
I find selling in person works better than etsy. I know a fair few counsellors and masseurs as well.
I love this... I'm a designer with diabetic retinopathy
Thanks for sharing love
U are so pretty & make me feel more hopeful about losing my eyesight. Like a death sentence to an artist 😕 Hope I am able to create more art before my eyes fail due to macular Degeneration.
aww thanks love! 🤍 Yes sometimes it does, it really does but we have to be strong and set your minds to make the most of the situation . That's how we thrive. Stay strong
B12 b250 MD lokicopt soo joya
Blind fury is one blind rapper
Thank you for this. I’m dealing with vision loss but it’s causing me a vast amount of pain and I’m unable to work. It’s so hard.
Hey Becky it is hard. I'm glad you're honest about your current state and emotions, it is what you're currently going though not what you're going through forever. I hope that you can land something and it becomes the building block for a fulfilling career
This is a really great list. I for one did not know that Stephen King had star guards.
Great advice and information. Hi newbie subscriber. I have ONH/SOD. optic nerve hypoplasia/ septo optic dysplasia.
hey love thanks for the support and for sharing your diagnosis. Hope life is treating you well
I AM DIABETIC TYPE 1 AND I HAVE PROLIFERATIVE ADVANCED RETINOTOPY FROM MY SUGARS DAMAGING MY EYES............ I AM SO SAD I DONT KNOW WHAT TO DO
oh no so sorry to hear. I hope my videos help bring you clarity on your journey
Hey I love love this video. It give me hope. Im totally in awe of what you do. I’m really struggling at this point. I’m legally blind and I am smart but I feel so trapped I have a mundane office job and I’m so bored. I want to do something more but I can’t figure out what or how to make it happen. I’m not good at anything in particular. I have always been busy having eye surgeries. I’m 34 year old women diagnosed which uveitis at age 4 and Glacoma at age 6
I'm glad you could find hope in this video looking for a job is hard looking for a job while blind... out of this world but stay positive and committed to finding something you like to do that you can flourish in too
I have Stargardt as well and I am a nurse!
Wait...how does that work?? Don’t you have to read vials and all of that really small stuff?
@@leeleeb7413 I don't work at tje bedside anymore. I do case management so I mostly work on the computer and phone. I probably could get by with a magnifier though if I did still have to work at bedside. I had to do injectable meds on myself over the summer and I used a magnifier to mix and draw the meds. It was fine.Don't know about doing things like IVs and blood draws but most hospitals have specialized nurses and phlebotomists that do that stuff.
Love this vid!
Iam going blind, iam suffering from rods and cones dystrophy. Hope I find something for living.
It will be a hard road but you ill feel so empowered when you find that something to be passionate for keep striving my friend
I have keratoconus and trying to explain how low vision is to people that can see is exhausting to the point i dont do it anymore. I spend majority of my time in my room sleeping feeling defeated. If it wasnt for my niece i would of tapped out a long time ago but i want to be there when she grows up. Thank you for your content im currently searching for a way to earn money without using my sight because the aids they give me have my eyesight degrading by the day.
I'm trying to figure out what I can do. Since my 3 retina detachments, I'm not able to go back to my previous career because it's too physically demanding with lifting, bending, and strenuous. My center vision is distorted, sore, also see flashes and bubbles floating all day. Trying to get any disability is so difficult. Doesn't seem successful. So, I need some kind of job.
I have deterioration of the cornea! Ty so much
Thanks for sharing, hope you're managing with it, the best you can
I’m registered as blind I want to be a nurse but I don’t know if it will work
Can you please help me out so I wanna have a career second? Have a better life for my kids
Nice sister love from kerala my sister is blind
thank you and thanks for sharing
@@alishainc 😀😀😀😀❤️🙏🙏🙏🙏
This video gave me hope
Hey new sub. I know the video is old, hope this reaches you. I have retinas pigmentosa(RP) It cause my retinas to detach from my eyes so eventually I'll be blind. Night blindness, light sensitivity, nsar-far sightseers and flashes are some of my symptoms as well. I want to start making video content and would love some advice (software, presence, stcl. Thank you for what you do hun. God bless.
Hi love thank for the support. i know a couple wiht RP it's a hard life hope you're taking it in stride. How have you been managing lately? I have a few vieos on what I use to make my videos that I hope will help you let me know whne you start your channel and I'll watch 💗
@@alishainc om such a homebody these days 😆 I have my insecurities about it somedays. But those days are becoming fewer. Definite hard proces with RP but I'm a believer in Yah(god) so that helps me stay less afraid of it. And thank you for the future support love! Continue to be a light out here.
And I'll be tuned in to your channel more. 😃 💪
Your beautiful and inspirational ❤️
thanks love!
Yesss!!!
One of my friend is blind but he is runs on NGOFor blind people and also do stage show his band name is udan entertainment group now his work on blind developer skills in pandemic time for binld people how to earning and sell their products so he organize one show on 27 Jan 2021 ebbing 8 to 11 Indian time plzz join & help his group plzz 🙏🙏🙏🙏🙏🙏🌺
Would love to hear about the editing equipment. I am leaving a message from my from my daughter's account. She has recently become legally blind.. We started college as the diagnosis began. As her mom I need assistance. She is taking a class that will require her to learn Adobe Premiere. So it will help would to know how you access it.
I love how you talking about purpose. This is something I mentioned just last week at her college. And YES reading now difficult and we have been using Kurzweil. Unfortunately, it isn't always able to read assignments and has glitches. Do you know of a better reader. Writing this morning because I have been up most of the night seeking help to ensure that she is educated.
She has always been low vision but being legally is different. I am my daughter's biggest advocate. Help regarding accomodations, resources and just how to go about life
Sorry for the typos. I accidentally hit the send button! Lol and I am sighted. However, the gist of my message is that any help you could provide would be great. We need help with supporting the Accessibility's Department at her university. Thanks Ms. Thomas
thanks for sharing. Sorry to hear she's recently become legally blind. I have not used tahat device you've mentioned. I've done some reviews and videos on assistive devices out here if you check out the Stargardt's playlist
I also have star guards my last job I was a kitchen manager. Looking for a job now without an education, being blind with a high school diploma is tough for a job any suggestions?
TFS Kevin that's hard. I've worked in the restaurant for years for you to be a kitchen manager with any amount of vision loss kuddos to you I hope you took a moment to appreciate yourself
When people can work any job. I’ve just learned that God’s will for me to become a commercial airline pilot.
Hi. I have a rare eye condition called choroideremia. What sight I have left is in my left eye. And, what I see is like looking through a straw.
Hi love, TFS sounds similar to retinitis pigmentosea with the straw analogy
Whoa that's a difficult diagnosis. Hope you're keeping yoru spirits up 💗
Lokek
I AM GOING THRU IT AS I LISTEN
stay strong love
Never give up and I’m legally blind i know everything gets harder but we adjust to new things.
Can blind people be a veterinary doctor? Please reply...
You are so cute❤️
♥️♥️♥️🍇♥️thankyou.
Yo, I got Starbucks too! Wanna cut my hair on camera? Lol.
Thx
I have a RUclips page about my cats and anotherr showing my life as a blind person. The cats Truly and Munchkins. and the other page I am Lind but see with ny hear[.
Rapper Blind Fury
Being visually impaired, how are you reading and responding to the comments.
super zoomed in on my computer, you'll see I'll show ya on the next vlog
😊
I’m visually impaired and I want to be a RUclips
I feel like it's not equality when they want to "fill their quota" on blind people or diverse people. I am still planning on getting my Master's of Education in Family and Cobsuner Sciences. Stargardts was just discovered in me last year and my vision had gotten worse this year but I don't want to give up my dream. I just don't know how to do anything as a blind person and how to promote myself in a job, despite my vision problems. You'd think it would be against the ADA to not hire someone because we need more equipment but not sure how that works. Thanks for the video!
True quality which is why I was questioning if affirmative action is the right freezing… And the alternative would be discrimination which honestly is happening right now and I’ve experienced it myself I know many people who have not been hired from the job because originally impaired. It is illegal, the company still do it so that’s why I wanted to mention the places that do want to feel sluts with people that have vision loss. I wrote ahead is not going to be easy I can’t lie but we have to find ways to make it easier for her selves and accommodate ourselves or companies will not work for companies are going to
I hope that this journey strengthens and you find satisfaction in what you do. Just remember the hard times you experience and what you overcome will help the next blind person wanting to do the same thing 💙
I think of quotas and affirmative action as a conscious counter to unconscious bias. If you look at the industry you work in, the schools your employees are coming out of, your own company... and you see a gap... and you know no one around you is an overt bigot... there is still something lacking, still something leaving people behind... Companies fill quotas, but they don't fill quotas with unqualified people. So fuck it, take the job and run.
Hallp i have retinis pigmentosa. Can you Alicia I would love to be a content creator
If you had to choose between making RUclips videos or being a Nutritionist, which would you choose? Interesting list of jobs for somebody that is blind. You also have a beautiful smile 😊!!!🇧🇷🇧🇷🇧🇷
I liked learning about Food Science/Nutrition in school but hated the jobs I held. so youtube lol
I am a blond man who can help me to find job i living in italy now
Blind fury is a blind rapper
Yes I heard of him
Breezie bre Bradenton Fl
Man of many talents and work ethnics
I rap sang produce …etc most if all in the name of Jesus I minister the gospel
Thank you for allowing me to comment
Conedysyrophy 😊
I cant get a job being blind at all, never have been able to. So I'm my own boss hoeing making over 250 an HR.
if your name is actually Tuesday, that's sick! Wow that's so good you're self employed congrats amigo keeping pushing the envelope and being successful in spite of sight
@@alishainc I wish hun haha it's Rosealee xx thankyou so much for responding to me I feel so honoured xxx
@@tuesdayg7030 Rosealee is a beautiful name
Really you are too cute
Good suggestions for persons like Us.? with disability. I believe that if we come together and support each other, we could even have a better stage to show our Talent... For example, what if we create a group or a website in where blind people can come to show their talent and what they are capable of doing so that others can See.!.
I am also a low vission blind person can i get your help how can i contact you
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