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As Dementia Takes Hold - Nardo's Story
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- Опубликовано: 30 сен 2017
- Ned "Nardo" Cabrera of Billings was diagnosed with frontal temporal dementia in August 2016 at the age of 53. The disease will eventually take his ability to walk, communicate and remember.
He's one of 20,000 people living with Alzheimer's or dementia in the state of Montana alone.
My husband was diagnosed st 53 6 years ago. But right from the start he was never aware he had anything wrong with him. I wish he could have talked about it but then again I guess it's better for him never realising he had anything wrong with him.. He is in a nursing home for the last 3 years no longer able to talk at all. I miss him every day.
I feel for you, my wife is in a similar condition but is at home. You are lucky you have the option of a nursing home. They cost upwards of $80K a year and for a married person both spouses must use retirement savings to pay for it. Only when assets are all gone will Medicaid step in. I will do anything to care for my wife but I will not become broke.
Pppppppppppppppppppppppppppppppppppppppppppppp
May God grant you peace and happiness ❤
I’m dying of Lung Cancer. Watching this… I’m lucky to have lived 65 yrs
God bless you.
Lester Combs I am so sorry...❤
My wife is in her 7th yr of Alz. and is regressing steadily but slowly. She is inconinent can,t dress or bathe herself. July wil mark our 65th wedding anniversary so i have so much to be thankful for.It hurts so much to see what this disease does to your loved one,I consider it an honor to be able to care for her and I know in a heartbeat that she would be there for me in spades. My heart goes out to Nardo,s family. My best advvice is, not to despair, pray for help and guidance.You will seee that your love will grow as time passes. May God bless your family.
Prayers for you and your wife.
Nardo is a lovely man with a fine family. I wish him the best.
No one knows how long a person has to live on this earth. This is the time where you make family and friends important and be around people. Enjoy what you have now and every day you have. Live to the fullest. 1 day at a time..a hour at a time..a minute at a time..a second at a time...just live
Your comment is distilled to perfection.
My daddy had Frontal Temporal Dementia (with Primary Progressive Aphasia), and we went through this journey with him. Even after he was diagnosed, he and my mom traveled and did lots of living, although his communication became difficult. Wrong words, "word salad", and then he just became less talkative until he finally stopped talking altogether. But as he became quieter, he also became serene. We might have been sad, but Daddy wasn't... he was always himself. Kind, helpful, funny, and even though silent, he was a man who loved life. I miss him every day. I wish Nardo and his lovely family the very best, and that they still have time to make those memories.
I’ve just been given the same diagnosis. I have nobody to share the time I have left. Be grateful for you’re family as I can see you are. God bless you, I hope you have lots of time to spend with you’re kids. Peace to you.
✌🏻❤️🌹🇺🇸
I'm sure someone will be there.thats my prayer for you.
I hope you have made a plan as your illness progresses.
It's difficult enough as it is much less going through everything alone.
@Shell m I wish I could.but im married with a husband with dementia.
@Shell m does the word praying bother you? I can feel it thru the words.sad
I know you think you have no one to share this with but I pray you reach out to support groups who can direct you to those who can help you. God bless you and watch over you. ❤
Such a beautiful family. I hope he lives well no matter how long he has.
What an amazing man, and his wife also. So inspiring.❤️
I know if it's hard but you do have loved ones. My husband had this. He stopped walking and could barely talk toward the end. Our son helped me take care of him. Then he collapsed and 911 had him taken off our mountains by helicopter to a huge hospital then second hospital then hospice. All within 3 months when he died. We were planning on bringing him home with home care. I miss him every day. He was a cop for 33 years and saved others .. You will be taken care of. God bless you and your family. My son and I stayed at hotels by each hospital to be by his side so he would not be alone. I told him over and over that I loved him. He knew myself and son before he died. Three days before he died he was clear as a bell and was worrying about costs of hospitals. I told him we had high end Medicare covering 80 percent and a second that picks up the other 20 and when it was done he was coming . He is home now in beautiful Tree of Life emerald vase. You will live for years. Enjoy every day. Thank you for sharing ❤️
Thank you for sharing
What an amazing family man. He was still concern and worried of his family financial burden during hospice. God Bless your family. Glad to hear preparedness on medical insurance.
Life is short. There r no guarantees for anyone. When we r in our 20s, we socialize with friends alot. When we r in our 30s, and 40s, we usually work nonstop. By the time we r in our golden yrs, we find ourselves alone more. Enjoy the time u have, because time is a thief.
So so true well said 👊
It's not what you die from we all die... Just don't die without Jesus as your Lord and Savior for this life is temporary for us all but eternity is forever
Cry out to Jesus Christ confess him as Lord and Savior the son of God.. God bless you always 🙏
Lol Americans love Jesus as their personal savior only. Jesus’ socialist teachings are always ignored in the US
Amen
Some of us have other religions or no religion. My major motivation is being kind to others. A shame that you think there is only one path to a good life. So many lives lost in religious wars and religious hate crimes. Let's try to be tolerant.
Why is America the only country that loves God, and is so very grateful for Jesus dying for our sins?
@@dianewolfthal704 I never read the bible, but one thing for sure there are wars globally about religion, and that the next and last war over religion.
But, I have always believe in God, and I have heard from the people that experienced NDE.....
So the handful that I listened to tells me yes indeed, there is a God and Jesus is our savior, and the Holy Ghost/Spirit.
I never agreed with born again Christians, and still am apprehensive .
But, I guess if your a spiritual person you too must know any lie is a lie, any desire of another's property, Killing and all that, you know you have and still do commit sins, so I would wonder if you think that sinning everyday without repenting we won't be going straight to heaven
But, I to find it hard to believe that one and commit a gross felony consciously aware of it plans it, and repeats it.
So does he kill, repent than kill.again and repents without any remorse, but if he states his LOVE TK GOD AND ASKES HIS FORGIVENESS IN THE NAME OF JESUS.
THE REPEAT OFFENDERS GET A FREE PASS.
BUT, ACCORDING TO MOST NDE RECIPIENTS THEY SAY WE ALL GO THROUGH OUR WORST HUMAN BEHAVIORS WHEN WE GET TO THAT PLACE.
Im more scared now of God and dieing cz, I feel like he is so disgusted with me....
Lol
I also don't like the idea that we are all reincarnated, and some of us had reversed role playing with our sibling parents 🤮
Well good luck to us all, and may God forgive us all.
When you find it difficult in the afternoon from 4pm onwards, it is because you 'sundowning'. That's how it's called and it is normal in Dementia. So sorry to see the generation getting younger and younger and descovering they have a form of Dementia and it's about to get worse over the coming years. I ve worked with Dementia patients for over 8 years now and it's so sad, we can't fully comprehend how those people feel. The first thing they lose it is the present and go back in time. Remember when say something that it isn't real to you, it is real to them and that's why it is important that we understand and live in their reality instead to bringing them into ours . Trying to bring them into reality and contradict what they really believe, it is a trigger to theyr behaviour of concern and what that means, is they can get frustrated, upset, crying or even violent both verbal and physical. I do have a passion working in Dementia sector and helping people to live well with Dementia, because it is possible!
Yes! My Grampy struggled every single evening/night. It absolutely broke my heart.
Oh yes my mother had that big time
My mom had sundowning the last 6 ish months of her life (almost 94). She went from this sweet kind never cursed lady to cussing like a sailer, name calling and keeping her care facility up all night. I was called in many times to try to calm her, it was gut wrenching to see her go through it. Even when decided that she didn't want to wear clothing. Sigh..
But at least she had no idea that she was suffering with it, she would have been mortified.
I miss her so....
Your doing the right thing keeping you and your mind active as you can.
Hello, I would like to ask you to try something. Nardo, you mentioned when late afternoon and evening arrives your condition deteriorates. Choose a meditation tune. Something soothing to you. Flutes, harp, instrumental music, no lyrics. Have your wife and children make audio biographies of the memories with you. Start listening to your recordings before the onset arrvives. This will exercise your mind and help retain precious memories. Steer away from negitive anticipation of your approaching onset time.
Since we are creatures of habbit
Our minds strart to store the times and negitivity of how we think and feel each day. Soon the body follows and every evening time becomes a Panic attack, and drains your energy. Create a variety of memory jarring projects. Becoming a clock watcher is your nemesis. Your in my prayers Nardo, and I hope this helps calm you when needed. Peace to you and your family my brother......
I wish you all the best , my Heart goes out to you. I lost my Mom-in-law to this and it was heartbreaking but, we Loved her thru it, literally.
Ned, we hope you are well, buddy! Keep fighting!! From Pedro, Tim, and Ron and the rest of the crew from Big O Tires, Yorba Linda, California.
So young to have dementia. Didn't know you could have this in your 40's and 50's!
It's a terrible curse. Kids can have variants of dementia as well.
My heart goes out to you. God bless you and your lovely wife. Prayers for both .
What is wrong with you morons ? in YOUR delusion GOD caused this which makes your god a sick vile bastard
My prayers to you both and family 🙏🙏🙏❤❤❤
Sending my love and prayers to you and your family.
I am all to familiar with what you are going through. I was diagnosed about 2 years ago. I was shocked/devastated. I asked GOD, WHY??? I have a truly amazing wife and 3 amazing children that keep me fighting. They have all been so supportive and understanding, it’s what keep me going.
I told my family that in a way it’s OK knowing how I am going to die. There are so many people who go to work in the morning and never make it home alive.I truly have an AMAZING FAMILY
GID BLESS
My husband has dementia now at 79. Such a sad disease
My heart goes out to you and your family and what a smile! Know that someone in CA is sending positive healing vibes....sounds very California, right (?)....but I truly mean it and send it with love.
No healing vibes sound insane and uneducated
You have done this clip beautifull. You are just a lovely couple. Im so sorry to here about your illness. Your a inspiration ans i pray you have many more years with your family. God bless.
He is so young. God bless him and his family
God Be with you and your Family Always!❤️
We lost my mother and father in law to this! Would not wish it on anyone!
Too, too young. Lovely positive video. Thank you.
Sundowners kicks in at nite. My poor mother and law had a bad stroke and now suffers from that, it’s heartbreaking
Yep i knew all about that with my mum too
I’m 59 and just switched careers from software engineer to machinist and I thought it was too difficult for me. Now I know how lucky I am
in fact none of us knows how long we have so we should live wiser, people
God Bless you Nardo & your family! I hope you’re doing well. ❤️
God in your delusion CAUSED THIS try thinking for a change
This disease is so heartbreakingly cruel,and this man is so young prayers to you all
Prayers the self congratulatory act of doing fuck all useful
@@gowdsake7103 I wonder why kind words trigger you so. What a sad way to live.
@@reginafromtexas2314 Because prayers are a patronising way to force iron age ignorance on those who do not need them. My mother had altzimers and ANYONE who is ignorant to suggest that any god would allow this terrible decline is sick in the head
What a great honor and pleasure knowing that there are STILL some wonderful, decent, community conscious people! God watch and bless you.
What is wrong with you morons ? in YOUR delusion GOD caused this which makes your god a sick vile bastard
I’m 54 and I noticed that I’m having a hard time communicating and finding words, I get lost for seconds on the street, finding hard left and right.
My doctor diagnosed me con early unset of dementia 5 years ago and, I didn’t believe him. Now, I’m so scared and afraid!!! My kids get on me because I’m always late but, they don’t understand that I get lost! Even with me GPS.
Your family needs to read about dementia and how it affects you. It will be easier for you so that you dont feel frustrated, uncomfortable and embarrassed. You need their love, understanding and support. I know its scary and you might be afraid, thats normal but know to live in the moment and enjoy life! You have time to put things in order, talk to your family about your health care. You are not a burden. Stress also isnt good for your health.My grandmother had dementia and I see signs for the past two years for myself but I have not got tested yet. But If i do, at 48, i will accept it, acknowledge it. I am not afraid to express if I cant remember something or a word. I have a spouse that doesnt mind repeating! I wish you well 🌹
@@HarleyQuinnJokr I want to die soon enough to leave my estate to my sister since I think it's better to be alone and have money to take care of oneself than to have a demented relative who sucks every penny out of one's future.
@diane Greene no way anyone would be better off without you. It breaks my heart to read your comment and I’m sure if your loved ones read this they would also be heart broken. You are loved. Even with any sickness or illness you are worthy of a meaningful life and you are so loved. ❤️
@@tybaby4062 Thank you for your kind words. I'm trying to think about the future while I still can is all.
I send you my thoughts and best wishes, I'm so sad this has happened to you - and happens to so many others = thank you for raising awareness. I got a brain injury 13 years ago and it's tough - I'm so sick of trying to explain and being made to argue year after year that I am telling the truth: but they don't believe me: I have to get doctors to write it all as proof but the docs don't see/know really what I'm struggling with and are ignoring my serious physical injuries. And I read that due to my brain injury I've got a much higher chance of suffering from dementia as I get older, I'm alone & terrified because already I'm not getting the help I need and daily life is a constant struggle, ALREADY...
Jenny Hughes i understand u. Please start eating blueberries, walnuts, avocados omega 3, b12 complex and turmeric with black pepper. I'm praying for u. I have a great chance as well trying not to think about it. Keep the faith
Jenny, my oldest son had a brain injury 20 years ago. There are exercises which will help your brain to make new pathways (in the right places). It's like a river that gets blocked and finds a new way, but you want it to go the best way, not just in some random direction. I hope you are able to get some help. Docs really have so little knowledge about brain things, there are so many unknowns.
Ned, I miss our talks about the kids playing Soccer and Baseball. Miss you man. Searching for an update and sending prayers to you and the family.
Don't have a lot of details but I know he's doing pretty good. I'll pass along your message to him.
What a BEAUTIFUL Family!
God Bless you all🙏🏻❤️
Why are people getting it so young now? Used to be 70’s, now I’ve seen so many videos at ages 50.
This Terrible disease runs in my family.My Grandmother Father and Aunt all died from This TERRIBLE DISEASE!! I just THANK GOD! my DAD passed away in 2014 BEFORE he Forget who I was that would KILL ME! I wonder where he is NOW 3 years later..And how progressed the disease has progressed!! GOD BLESS THIS FAMILY!!🙏🙏🙌🙌😪😪
Beautiful family God bless them
God Bless you and your family.
Wait until he walks into the kitchen and asks; Who are you? Step back and watch your heart fall to the floor.
My mother had early onset dementia for 15 years before any abnormal signs were seen.
First of all I'm praying for you and your family. Second u doing the right thing living your life so your family will have even more great memories. No one know when they are leaving but u have people who love u. Try these blueberries, walnuts, avocado, omega 3, turmeric with black pepper and Apple cider vinegar. Not mixed together but everyday I hope they help. Again Jesus Christ has the last say.🙏🙏🙏🙏🙏🙏🙏
All good and great for protein and overall health!!! For dementia/ autism/ Alzheimers which are based on aluminum in brain and weakened immune from all other poison ( air-- nonstop nanoparticles of aluminum, barium, strontium, biologicals, fungals etc. Water-- fluoride chemicals ,chlorine, pharmakia witchcraft residues. And of course all foods with GMO, pesticides/ Roundup which actually was evilly produced to be one molecule off of glutamine which is trio protein the brain needs and will grab onto the Roundup poison instead and bind effective to the aluminum!! And all other food chemicals/ additives and of course baby parts put in for taste-- also put into the vaccines with more aluminum and Mercury etc for good measure!!! It is an all out agenda of evil!!) So lauricidin, chlorella, spirulina, silica ( organic food grade diatamaceous earth is best for detox) , bentonite clay, magnesium, sulfer, cilantro.
When I tell folks until they can get all clean, China free items( healthranger only one I can find meets criteria for almost all above, global healing center for nascent iodine and selenium!!) A person should use pink Himalayan salts 1/4 tsp with 1/4 tsp baking soda in one cup distilled water 1-3 times daily!! Amazing what just that will do and help.
Next get the silica, nascent iodine, lauricidin, chlorella/ spirulina, magnesium and sulfur and go cat go!!! I was brought out of 3 month pharmekia dementia induced stupor with just the salt and baking soda-- still couldn't drive or talk much / had lost 50 pounds( of which 30 was pure muscle from climbing trees for living) and the other items got me back to life ( oh and trace minerals a must --- none of our organic or even home grown food has all 90 minerals anymore since all soil/ plants are stripped from external poisoning. I went from healthranger to guardian of Eden jutrian gold!!!
Do not worship the creation but only the Creator-- ABBA says HIS people perish from lack of knowledge and mostly the churches are corruptly married to the enemy thru witchcraft of science/ rebellion/ pride/ and lack of repentance!!!
Hope this helps in your journey for yourself and heartfelt courage to assist others!! Cowards are first on list of no entrance to new Jerusalem, so be encouraged to speak HIS TRUTH AND TEACH ALL HIS COMMANDMENTS/ WAYS!!!
ARMOR UP EACH MORNING SINCERELY
PRAY WITHOUT CEASING
LET NO MAN DECEIVE YOU
What is wrong with you morons ? in YOUR delusion GOD caused this which makes your god a sick vile bastard
I know this is from 5 yrs ago but does any know how he is today? Are there any other videos? Please tell me yes. 😊
We hear most times people would say live n enjoy life after diagnose of a terminal disease. Its nice to hear it but living n enjoying life and caring for others while healthy is best.
Happiness is a journey...well and unwell. God Bless Nardo n Family.
What is going on with that man right now? It’s been 4 years after the video is uploaded…
I wish You all the Best. God Bless you and Your Family.
What is wrong with you morons ? in YOUR delusion GOD caused this which makes your god a sick vile bastard
I get up all night, maybe 3 hours of sleep on average. I know its happening, memory, confusion, no understanding from anyone, anger issues, some days go well. I could not write for a while.
My heart breaks for this family
Best to you and yours.
I'm 52. I want to die with the same dignity I would give a family pet.
I have instructed my wife what to do if I ever become unable to take care of myself.
Me too. I refuse to die like that.
I work with dementia patients in their homes. I have had this conversation with my son. I recently had to put down my cat as she wouldn't eat and was failing fast. I (and my children) deserve no less.
Pray you can enjoy as much time with your wife and family that you can. God bless and keep you all.
I know how you feel I have and had family members with dementia it's so sad
God Bless you🙌🏿🙏🏻
Thinking of you and your family 💙❤💙💜
I'm only 32 and I think I have FTD dementia......can anyone help?
And I think it might have been undiagnosed for a long time....
I might have approached a serious stage of the disease....things might have progressed rapidly last two years and I became worried when alarming signs appeared this year.....I'm starting to have serious problems with my memory,it's like I can hardly remember memories from my past.....my short term memory feels much weaker and significantly declined too,a lot of my vocabulary seems to be gone and I have trouble constructing sentences in my mind.....
I always felt like I was a pretty creative writer/person not professional though but now it seems like I can't think of anything anymore like my mind has lost all its depth and creativity and nuance and abstraction....it's like my mind is just a tight ball of emptiness,like it doesn't even know itself anymore,like it doesn't even know what it doesn't even know.
And there are all these weird stuff.....like a serious loss in sex drive in the last 2 years......like I had no attraction to the opposite sex.....and people just seem like people to me.....it's like I have no thoughts about anyone,no biases no prejudice no preferences no racism or anything that people might think of when they see all kinds of people on the street.......I have no preferences and no idea what I want when I am looking at food and drinks in a shop......and I lost alot of my higher cognitive function......I love reading I used to read novels like I know this much is true by Wally lamb.....tomcat in love by tim o Brien....a beautiful mind.....wicked the life and times.....etc etc.....but something is seriously wrong.....my mind struggles to hold 2 or 3 sentences now and grasp the meaning.....And top it off...I suffered from severe depression for more than 10 years in my life and binge ate alot what they said were symptoms of FTD......
Sigh....can anyone help me?
I literally might be dieing from dementia and here I am desperately trying to convince the doctors......they say a ftd diagnosis usually take years.....I might be dead then.....I don't even know
Lovely family. So sad. Are there so many younger people getting it now because there is something in the atmosphere, something in our food or in our homes or lifestyles, as in modern living as such, that we aren’t aware of that is causing the amount of younger onset cases or is it that we are just now much more aware of what it is, medicine has advanced, diagnosing is easier, whereas maybe 60 or70 years ago we would maybe just think people had a mental health issue or something similar and not have a true diagnosis. I have seen cases in their 30s and 40s too, and it is just so incredibly cruel.
Two years on since this video, may l ask how Nardo is? Thank you.
I was suppose to go to dinner with he and his wife about a month ago but unfortunately it didn't work out. Nardo is doing pretty good, though. Playing golf, traveling and doing a little hunting.
@@BrandonPrescottSullivan thank you.
Thank you for sharing. God bless you.
Praying. Can we get a. An update please
This is,heartbreaking. Completely.
God bless you
Intermittent fasting. Let the body repair itself. Go 48 to 72 hours without any food or calories to let Autophagy kick on so the brain can do repairs. Nobody ever suggests this and hence, all of these illnesses continue. Autophagy does many wonderful things. Give it a try for a few months and see what difference it makes. Install the "LIFE" app on your phone and use that to track when Autophagy kicks on and try to stay in that mode for as long as possible up to 72 hours.
I'll pray for you Nardo and your wife and kids
Of course you will because it means you dont have to do anything useful
❤️❣️♥️❣️❤️beautiful family❣️sweet ♥️
Hard on anyone, harder I’d imagine when they were higher up in society. That’s not to say they are better off than any other sufferers, but financially class is better off for the rest of the family.
He has the sweetest face!!
I work with these kind of patients and I was wondering why do they change n be aggressive n why are they suffering now I know thank u I overly love my clients now ❤️❤️❤️❤️❤️❤️❤️
God Bless 💖
Such a beautiful man with a loving family. This disease is horrific. More money should be put into research to help or delay onset or find out why ? It effects so many. Whatever age.
Wish there was an update on this or a way to offer suggestions
Just googled and nardo has instagram very current.
The communication and getting out and about are the hard parts.
How is Nardo now?
is there an update?
Wish they would do follow on storys
How sad!
My Husband has Vascular Dementia,will the developed the same way?
Where all just doing time. LORD GOD Almighty is keeping score.
Update
February 2021. How is he doing? They sound like a very down to earth family.
Tell him to try a ketogenic diet. A female doctor I listened to recently. ...he husband got dementia. She said dementia is diabetes of the brain. Change to a a ketogenic diet. What do you have to lose? It will take time to heal.
Is there any updates ?
I believe I may have dementia. How do you find out? I’m 54 years old.
why do think that? Are you pissing about, not a joking matter. otherwise, go to Doctor, i m sure you really did n't need that advice. if you did, you definitely need to go.
lackadaisical not laxadaisical
Gotta be tough but all things are Possible Thru GOD.
Has anyone mentioned sundowning to you? That's what's happening as the day goes on! What a terrible disease it's stealing my husband away from me!!!!
1 John 3:8
For this purpose the Son of God was manifested, that he might destroy the works of the
Acts 10:38
How God anointed Jesus of Nazareth with the Holy Ghost and with power: who went about doing good, and healing all that were oppressed of the devil; for God was with him.
As Christians and holy spirit filled when we hear bad diagnosis from doctors we reject it emediatly we go into our private closet and begin to warfare against the plan of satan and we have strong faith and hope in CHRIST JESUS he will hear us and heal us. There's power and healing in the blood and in the name of JESUS CHRIST
How is he now
Very sad!
❤️❤️❤️
FTD is terrible, really sad.
Read Dr. Dale E. Bredesen, or watch youtube about how to reversing Alzheimer's by Dr Bredesen, he has a lot of interview and conferences on internet, my mother has Alzheimer, i decided to change the neurologist medicine and fallow a better option..
How did he Surf in Montana?
Of all the things to take away from this story and thats what you take the time to comment about??No one ever said he surfed in Montana...but it is a thing, just so ya know.
I thought as well that it was a random part of the story and wondered. It said he was Montana born and bred and I see there are comments from California. Part of a life well lived I am sure.
♥️
💞💕💖
Being confronted with the prospect of FTD, could you maybe get rid of that funeral soundtrack.
Did you mentioned he's a Filipino
🙏🙏🙏.