The Harder You Try The Slower You Recover | CHRONIC FATIGUE SYNDROME
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- Опубликовано: 16 окт 2024
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Have you ever felt like the more effort you put into your recovery, the slower your progress seems to be? In this thought-provoking video, we dive into the intriguing paradox of recovery: "The Harder You Try, the Slower You Recover."
We'll explore the reasons behind this phenomenon, from the potential pitfalls of pushing yourself too hard to the importance of balance and pacing in the recovery process. You'll gain valuable insights into how to strike the right balance between effort and rest to optimize your recovery journey.
Join us as we unravel the complexities of recovery and share practical strategies to help you achieve your goals without burning out. Don't forget to subscribe for more enlightening content on your path to recovery.
You Are Just One Mindshift Away From Living Life Without Chronic Pain and Fatigue
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Tags: Cns fatigue, cns burnout, nervous system burnout, nervous system fatigue, cns exhaustion, chronic fatigue, cfs, chronic fatigue syndrome, bedridden, housebound, adrenal fatigue, chronic fatigue syndrome treatment, cfs symptoms, cfs recovery, cfs health, chronic pain, chronic pain syndrome, chronic pain explained, chronic pain meditation, post-viral fatigue syndrome, long covid, covid long hauler
#cfs #cfsrecovery #cfsme #bedridden #anxiety #somaticsymptoms #somatic #panicdisorder #panicattacks #chronicpain #chronicsymptoms #longcovid #postviralfatigue
DISCLAIMER: I am not a medical doctor or therapist. I am sharing my own experience and research. My video content is for information and educational purposes only. Please consult with your medical professional.
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This urgency is very hard for me to tame. I keep trying though.
Another thing that kicks me into urgency is the questions/comments from family members “why aren’t you better yet? Are you sure you’re trying?…”
Hang in there! Progress may take time, but your efforts are commendable. Surround yourself with understanding and supportive people. 💖
Trying to recover fast or trying this and that is like poison if you have CFS. Many times I seemed to be close to fully recovered but then fall into a deep hole again for weeks. Then at one point I accepted my state and told myself I will Never recover and never be able to work again, I completely gave up. Short time after that my conditions get so much better and since 5 months now I'm ok. I'm working full-time again, but I'm trying to avoid all kind of stress, don't exercise, only go for a walk from time to time, don't go out and don't visit family or friends, because I have to rest enough.
This is perfect timing Miguel. I've been feeling like the end of the year is approaching and it's another year I'm not fully recovered & haven't achieved my goals & falling a bit into fear, loss and frustration ....... Thank you for another wonderful video.
You're not alone in these feelings. Reflecting on progress, no matter how small, is key. Here's to acknowledging your journey and embracing positive changes ahead! 💪
Great video and timely for me. I am the person you described - project managing my illness and working very hard at it by doing half a dozen things each day. I recently decided to take a 3 day vacation from healing and stop doing everytbing i was doing and i suddenly felt better!
"project-managing my illness" is a brilliant phrase, thank you. it's what I've been unconsciously doing.
@AaronCascadia2023 that's what we end up doing right? Taking the skills that used to help us succeed at work and applying it to our illness!
That's fantastic! Taking a break can sometimes be the reset your body needs. Cheers to finding what works for you! 💚
That‘s completely Right! After I took out the pressure and stopped doing more and more or as much as possible, I‘m doing more and more well :)
Thanks a lot for all the advices!
Great job! You got this 💪
Just got tested for lyme disease since I got bit by a tic in September of 2022. The reason I did so is becuase in late February of 2023, one night I got really unwell, started vomiting 8 times, and the next morning until this very day, I've been extremely tired every single day.
The good news is that I tested negative for lyme and I did multiple lyme related tests.
The bad news is that I still stayed the same. Now, I don't want to sound to over exaggarate, but today I feel roughly 50% better, but that's still far away for 90% that I aim to.
The first two weeks after I started experiencing CFS syndroms, I felt like a zombie. I was not bed ridden, but really close to it.
I was also diagnosed with Hypothyroidism about a couple of weeks after the onset of the symptoms. My THS levels were at 31, and the normal range is somewhere at 2.40-4.50, roughly.
The endocrynolgist told that the medication will fix my symptos by regulating the thyroid levels. After 3 months, my thyroid levels did get in the ideal range, but the chronic fatigue, tiredness, weaknes, brain fog, depression continued.
Meanwhile, in July I did a test for vitamin D myself, without the doctors recommendation, and I was tested low in vitamin D despite testing in the warmest month of the year where there's enough Sun providing vitamin D.
Shortly before testing for D, I went to a psychiatrist, and he told me that everything I've been experiencig is purely psychological and I was prescribed a SSRI medication, that did somewhat help me, but not what I expected.
I July, I started working at a grocery store which was an advice from the psychiatrist since he believed working a job will help me distract from negative thoughts and alleviate the symptoms. But honestly, it did not help me at all. I felt extremely tired at work and the brainfog was killing me. I quit about two months and decided to get a new job.
Not even mentioning that in June I finally graduated in college, which was fine, but I only focused on my current health state. Unfortunately, I lost my grandma in July which further had a great impact mentally on me, but I got over it because I knew she did not die in pain, suffering. She died in a dream, at the age of 95.
So, in September I got a remote job as a customer service agent, working from home. Been working for three months now, but luckily I did not feel as much pain and symptoms as when I worked at a grocery store, but it was still there, nonetheless.
I got diagnosed with CFS in mid October, almost 8 months after I started experiencing the symptoms. I knew I had it, the doctors (and I have visited plenty of them) did not say anything even remotely related to CFS.
So, I'm having a second appointment with the neurogist, that is also a sleep specialist. She told me that she would maybe consider prescribing me with an amphetamine based medication, which I completely don't like, since the serious side effects and high addiction probability.
I've read about Low Dose Naltrexone, which did help some people with CFS, but who knows. Maybe it will help me? Did anyone read about it?
Miguel, you are doing a great favour to all of us that are watching your videos. I know my parents think I am completely healthy and exaggarating my symptoms, but I know how devastating it feels to wake up every morning feeling like a cell phone battery at 9%.
I just wish to wake up one day full of energy and not being tired all the time, though I know the journey to that place will be long, painstaking, and full of ups and downs.
Wish y'all a full and fast recovery!❤
Rooting for ya!!!
I have a very similar experience to yours (medical profile as well).
These videos are so helpful.
Hope you feel better soon!
Please check this link. I hope it helps! ruclips.net/video/nWvsSpNqjjY/видео.htmlsi=3h1OvIBVdSSod2X-
Yes… this is me. I’m so focused on being recovered that I am absolutely depressed about where I currently am. These negative feelings drive to addictive tendencies to try and escape feelings of hopelessness. This is a reminder to accept where I currently am… thanks for this.
You're right! Glad it resonated with you 😊
Thank you so much for this video. Struggling so much with being in the present ever since I found out there’s such thing as recovery. I can tell it’s been hurting me to try so hard. I’m going to do my best to accept where I am now. ❤
I’m glad it resonated with you 😊
Bang on! Spent last 3 1/2 years trying too hard and being too desperate to get better as quick as poss and spent every waking minute “working” on my recovery. I joined your program two months ago and have completely taken my foot off the gas..I have slowed right down, reached a solid level of accceptance and for first time am not in a hurry to get better and consequently am making huge progress! It is exactly how you just described it. Your words are true and your methods work and am just so grateful I signed up!
How debilitated were you in those 3 years. That’s amazing news!
@@Waves353 I was housebound when i joined in october and am now going for 2x12 min walks a day plus hanging out with friends at a cafe for 45mins..which is a game changer. I could barely string a sentence together before..cheers!
@@babycakesromero
how did u improve the brain fog? thx
@@sekischro5093 everything is treated as symptoms generated by a disregulated/hypersensitive nervous system so with brain training you fix one problem you fix them all
Awesome 🙌
I am so thankful for this video. I have been battling all of these issues not knowing which way to go. If I give in and don’t chase my goals it feels easier but I feel like I’m quitting on trying to heal but when I push myself I get 2 steps forward and 1 step or 2 at times back. I really needed the info. You are truly gifted 😊
I appreciate your kind words! It's a delicate balance, and your determination to navigate through is admirable. Celebrate each step forward, and remember, healing is a journey, not a race. 🚀💙
If i had known this, and believed it, 10 years ago 😕 But, i know now! Joining this program was my best decision of 2023 hands-down🎉 This whole idea of urgency energy was one of the biggest mind shifts for me. So thankful for all you do Miguel
Always glad to help! 🙌😊
You are a life saver bro ❤
Lots of love from Pakistan
May God Bless u bro❤
Thank you so much ❤️
Thank you so much Miguel 🙏
You’re very welcome 😊
Sometimes your videos just come at the perfect time❤
That's good to know! ❤️
This channel helps to keep me going. Thank you so much.
For me, some of your principles of recovery, are similar to The Tao Te Ching.
The faster one attempts to succeed, the more slowly, one will arrive.
Great to hear! Keep it up 😊🙌
I really needed to hear this recently and I’d not heard it this way.
My family is known for being impatient, my dad is always doing things and I was very similar - always busy busy with hobbies and career - which has come to a halt. The frustration brings me to tears.
I will try and take on board this 🙏
Yes, so much frustration
I'm glad the message resonated with you. 🌟
This video format is great Miguel! The blue and white cards to the side with the main points/summary are great for helping me when I review a video, as well as focus when watching the whole video initially. Thanks for the great resources!
Glad it was helpful!
One of the best videos Miguel made 👍
Wow, thanks!
Brilliant, thanks Miguel.
My pleasure! ❤️
Really helpful video. I put so much pressure on myself to make progress and recover. I can see that it keeps the nervous system hyper vigilant.
Working on just allowing the symptoms & not being in ‘fixing’ mode all the time.
Any more videos on tips for how to relax and accept symptoms would be greatly appreciated. Thanks Miguel 🌞
Glad it helped. You’re very welcome 😊
You described it so well. That’s exactly why I feel so stuck! Thank you for putting into words what I was feeling and doing! We need to practice self compassion and grace.
You are so welcome!
Thank you! Giing through a breakup in febuary (peak SADS time) and I've hit a big crash and im putting the breaks on, being really honest with people where im at, and trying to just do a few nice things for myself
You’re welcome and good for you. 😊
My phone background says “SLOW DOWN”
Mine says "Dream Big". Not really similar, though it keeps me from not being down, depressed and pessimistic.
That's nice!
Thank you for this. I struggle with this so much. Very well explained.
You're very welcome! May I ask what symptoms you may be struggling with ATM?
@cfsrecovery I've had long covid for roughly over a year. My current symptoms are a hyper sensitive nervous system/anxiety. Every now and then palpitations. And bad insomnia/ with certain intolerance for certain foods. Thanks for the reply.
Love your channel, this is me. I am tired all the time. So working on doing way less
Glad it resonated with you 😊
Oh, Miguel, I needed to hear this in an AP I guess just had the flu 103 fever really set me back, and am so dizzy sad, and mad, I guess it's just like you said I just feel like I am one step forward one 2 steps back. The dizziness excitable when I close my eyes is my kryptonite. Yes, the world has Christmas parties my neighbor is 80 years old and she's having a good time and I just keep having to love on this brain of mine, It is just too long of a journey I am doing something wrong, it has been years! I was doing more when I was really sick in the beginning than now, it is like I had so many symptoms I didn't notice them directly now that I have sorted them out there seems to be more focus on them in isolation. Maybe at this point, I have been too protective I haven't left the house in months bored out of my mind! Sorry Miguel I am just down today... Ava
Ava, it's completely okay to feel down at times. Your journey has its challenges, but your resilience is evident. Be gentle with yourself, and remember, progress takes time. Sending positive vibes your way! 🤗✨
For me it's not being attached to the workout and thanks to doing nothing today and binge watching your videos, I'm giving up the anxiety about muscle loss.
I've eaten up, am in bed with RUclips and Netflix and am going to focus on just my part time job (4x4 hours) and keeping myself and my house clean.
After that goes well for a while (meaning HRV and sleep improve) I'll add in yoga and walking.
Every time I pick up running, i get my CFS from 10 years ago back. Maybe it's not for me to do zone 4-5 workouts.
I'm now a sloth and will do zone 1-2 workouts and with weight training ill take more rest between sets, do less sets, and keep heart rate low.
You got this! 💪
My boyfriend (who is wonderful and has been so patient) is getting frustrated with having to go places by himself. I join him whenever my health allows it, which isn’t very often. I now find myself in a place where I am trying to get better in order to please him, more than actually healing for my own sake. And guess what: it isn’t working.
😓😢
So hard when you're Type A ...
But it's absolutely correct !
I totally understand!
That’s exactly what I’m dealing with.
Thanks for sharing.
Interesting, i was patient 5 years ago and enjoy live little by little as i get better, i did not know it was cfs and i could shower and sitting a lot so no urgency for me to recover fast.
Now, things changed: bedbound since 6 months. If i could even shower again or sitting up, half of the day, all the urgent energy will be gone again, i know me, i never rushed if my body feels that way. But guess what i am in big stress because i cannot come to this basics. 100% stress against 15% if i could do what i wrote above. Crazy right? It is not the World, most people want to have everything back. I was so patient the last years enjoyed live, no rush, i only want that minimum basic back and it seems unreachable for me. Told my doctor, if i could only have that i will be fine.
Thank you for explanation🙏🏽
So glad you find it helpful!
Thank u i am struggling with this urgent energy i think i will take things much slower
You got this! 💪
Nice Video , I have to remind myself all the time to take it easy ,and to simply chill ,....and not thinking oh didn't meditate etc. and didn't do this etc.. best video😊❤
Well said!
Yes, same here.
I’m definitely a type A person…always doing too much, trying to be perfect in everything I do, my home, my appearance, my art and everything g in between….
I totally understand 👍
Miguel do you need more health coaches? I have. Nutrition degree and currently recovering myself. Also a mom with little children if you need someone with that background. Just also finished a health coaching course and looking for a way to now use my background and education to help those with chronic illness.
Please send your inquiry to info@cfsrecovery.co Thanks!
Great Miguel, TY
Thanks for listening ❤️
It’s true I have an urgency! But I would love to know why I’m sleeping 12-14 hours get up and still be tired?
Had this for 24 years. I made the sentence "what you see is not what you get!" 😂 In a good way. But it is indeed invisible.
Haha! That's clever 😂
I am performer is so diffivult ..
How to now are ready ?
Im not safe att home longer
What about people who are not patient with you and not understanding when you don’t do the things they want. How do you not let other people’s expectations affect you?
This is a difficult one, especially for the people pleasers (that would be me!). Having to cancel plans and disappoint loved ones gives me such anxiety, which doesn’t help with healing, relaxing and acceptance.
Please check this link. I hope it helps! ruclips.net/video/xNBGY9RLv7g/видео.htmlsi=pLUQOFDWO-to8cix
What happens when your urgency stems from real life pressures that if you do less you won't be able to survive?
My experience has also been whether I slow down and do nothing, live a chill at my pace life or do as much as I can my health hasn't improved
Please check this link. I hope it helps! ruclips.net/video/nsjsPVkVTHY/видео.htmlsi=m3DHqXG5ml8hKxAc
I Think its hard to rest but than my anixty been so big ..my depression and yes !
When i rest my feelings Come out
I was one week at Mallorca and feldt soo good and when i come home all my symptoms Come back
Is maybe the nervous system are relaxed?
I didnt feldt pain anixty brainfog ( yes i feldt it was a filter )
But if you are high sensitive person, and have much anixety etc how to deal with that ?
Please check this link. I hope it helps!
ruclips.net/video/LshcWupQhCE/видео.htmlsi=0Q5hBCT_DIOQCeOv
What about in cases where LC is due to inflammation in the brain and the virus has caused "wounds" in the brain, a physical and neurological issue. It would seem that you couldn't just calm your way down out of that. Some people have to get HBOT and such.
Yeah that’s a totally different story. I try to make it very clear in all of my videos videos by saying “as long as everything has been cleared in your tests and scans…etc…this approach will work”
@@cfsrecovery yeah unfortunately brain scans are harder to get than a full blood panel from what I understand 😔
A normal person is a person you don't know.
Enjoy if you have spare energy. Don't work with it.
Thanks for your insight! 😊
But we are all type A personalities that get this. No tortoises here, unfortunately.
😅😂