Living with Rett Syndrome
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- Опубликовано: 16 май 2017
- Brynn is diagnosed with Rett syndrome and considered nonverbal. I talked to Brynn as if she was a typical five year old that understood every word I spoke.
She responded by using every ounce of her energy to give me a hug.
OMG! When Brynn was looking at Chris deep into his eyes for a little while, and then gave him a hug just melted my heart. 😊😌
What a sweet and cute little girl she is, and I absolutely love her giggles. 🥰
Damn, you are most certainly not wrong..!!
She's so beautiful. Her big blue eyes, bold eyebrows, cutie pout lips, red cheeks, and her pretty curly hair. Chris is right, she IS superstar 😍🤩
She is such a little ray of sunshine ☀ 🌈😍
She is so adorable ❤️
God bless you all abundantly 🙏
Such a sweet girl!!!
Brynn is so sweet!! ☺️
What a princess she’s gorgeous
Hi everyone: It's so nice to see you all again on RUclips. I want to meet you all one day. Take care and stay safe.
Thank you! 😊
You too! 😉
You too and God bless ❤❤
@@amaiak1038 God bless you too.
I hope Brynn makes lots of friends because she is a sweetheart!!!
Special books for special kids brings awareness to people who don't realize what caring for a special needs can mean. She is awesome.
I appreciate this channel and "Born Different" for helping me to better understand that" special needs people" are indeed people with feelings, hopes,dreams and bad days just like the rest of us but their challenges are different. The best warriors get the toughest challenges. Stay blessed.
What a joy just to see.💙
Beautiful!!!!!
Oh my God Brynn is just so freaking adorable and that hug she gave to Chris was the icing on the cake.
She's so precious
May god be with Brynn and god bless her mother and god bless you Chris.
Brynn is such a sweetie! She definitely responds and understands what is being said. I was a night nurse for a 17 year old girl with RETT. She had her moments of laughing, However I think she has a much harder time processing information than Brynn. She didn't really respond to anyone in a way that I could discern. And she really only liked one tv show. But I believe that's just because she has a hard time accessing/processing information. Apparently there is absolutely hope for a drug that will reverse RETT completely. My former patient is so healthy and strong. She gets excellent physical therapy and will be able to do anything she wants pretty quickly when the drug has been tested and on the market. Which apparently will be in the next few years. And that's so awesome.
Do you know where I could find more information about the possible cure?
@@Anna-ez9ou I don’t know. I would contact a doctor who specializes in caring for girls with RETT and ask about drug trials.
Sweet girl
Brynn is a absolutely gorgeous and beautiful Princess 😍
guys this is truly amazing i have a sis with rett and it is so underlooked and we are good friends with Cammy Can
Aww who wouldn’t love to hug Chris, he’s incredibly good looking
aw
She’s so cuteeeeee ❤️❤️🥰🥰🥰🥰
Mom she's so happy
Aw its so sweet to see her gazing deep into his eyes :)
she’s so cute
RETT SYNDROME
• Autosomal Dominant inheritance
• MECP2 gene defect
• Only affects females
• History of normal development till about 5-6 months : followed by decrease in head size and regression of milestones
• characteristic midline hand wringing movements
• prognosis is poor
• in DSM - 5 , Rett syndrome was removed from the cluster of autism spectrum disorders because it clearly has an underlying genetic basis.
Unconditional love always great hugs expressive face, what a beautiful soul. SJ sending my love and prayers always for you and family and friends. SJ
She has very nice and funny famliy
She is very nice and funny
❤️❤️❤️🌺❤️🌄❤️🌄❤️🌺❤️
❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️
Hi
she looks like shirley temple
Vicino povera nn mi pronuncio mi dispiace nn conosco la patologia quindi nn mi pronuncio ciao a famiglia ❤
she is so cute and pretty,