Thank you, will show you something I made if I can find it & if I’ve not showed you before, we did the after school club in around year 7 or year 8 ☺️ xxx
To be thankful for every days moments isn't easy. But SO important. I was bedbound with ME/CFS and it was horrible. Now I'm much better (moderate) but I'm still often so frustrated and hopeless. I have to remind myself to be thankful, because I know how it feels to be in worse condition. Yesterday I got my first cusomized wheelchair with Alber Emotion M25 and I really have fun learning to use it (not easy, btw). And I noticed it's so much less exhausting to go out (I have POTS, too). Thank you for sharing your story and thoughts!
I think it’s quite a narrow distinction about what we’re grateful for, cos no one can expect us to be grateful for our life as a whole now as we are still very limited & so it’s only natural to want more for ourselves, but, that definitely doesn’t mean we can’t still find joy where we can & pay attention to the good things, even if someone else might take those good things for granted, it doesn’t mean we have to ☺️
@@GeorginasJourney Yes, you expained it perfectly 🥰. It's a very complex discussion. At some days it's important to grieve about all my losses, at some days it's important to appreciate the things I can now do, at some days it's important to focus on future goals. (English is not my native language, therefore it's difficult for me to explain emotional stuff 🙈)
I think you are being so thoughtful. When I hit my downwards spirals with my illness I try to focus on the positive things in my life. I know that it can be difficult because all the negative things can be overwhelming but it can be effective for my situation. Life needs to go on. Because if I would not have this mindset I would be sitting at home all the time.
I’m so Happy you found a Best Friend, it’s terrible Your family won’t help YOU, it’s good to hear you just talk, I’m getting ready to go to sleep, have You gotten a better place to live, when I wake up I’ll check back in to see how you’re feeling, hugs 🤗 Love ❤️ & Prayers 🙏🏻
Hi, thanks so much! my best friend started med school (university) this week so we probably won’t be talking as much anymore, but I’m so grateful for the time I had with her at the end of the phone 😊 I don’t have a better place to live & I never will as there’s nowhere else for me to go here, I have exhausted all options now sadly. it took me 2 years of fighting to move from the last place into this one & they would never allow it again. Sorry it’s not better news, but I hope you sleep well 💕💕
I had a bad abuser in my family as a child. But I still had good times as well. I think of Dickens, " It was the best of times and the worst of times..."
Darling you are truly amazing!! I have been praying hard for you and have had a down spiral in my health, now dealing with all the symptoms of POTS on top of the rest, which I hoped would not happen, but it did. You are my inspiration and I am still praying for a way to help you! It was so wonderful to hear and see this video because I was so hoping you would feel better. Your ability to stay so positive and bubbly leaves me in awe and feeling a little guilty for my depression and hopelessness that I feel at times. I am in my mind your grandmama and want so much to protect and care for you. You will get better and life will get better for you because you will not settle for anything less! You deserve it! I lost most of my hair a long time ago and when I was still young enough, still lots older than you, I tried wigs, beautiful wigs and I ended up loving them! They were much prettier than my own hair when I was a teen and I had fun wearing different styles and colors. I dont know if my children were happy to be seen with me, but it was fun and made me feel better. I also used hair fiber powder to fill in the spots of scalp that showed until my hair turned white, then it didn’t work so much, but they were really good. I am so glad to see you enjoying those things again. I will be happy when I can get my hands on your book, too! I love your new glasses! I did fall flat on my face and broke my nose and my old glasses a few years back and just got new glasses last month. They are larger and rounder than my old style but are working out fine. That is if I dont faceplant again! LOL!! I love you my Darling!
Susan, your prayers must be working as I feel uplifted every time I read one of your lovely comments! I bet you looked so fabulous in your wigs, they sound great! I hope you’re recovering okay from the broken nose, that sounds so painful! And I hope you’re liking your new glasses, I bet you look wonderful! 💕
@@GeorginasJourney I broke my nose about 3 years ago and it healed fine. I laughed about it, my husband was panicking (he is disabled also) and couldn’t really do anything to help so he was telling me I was bleeding profusely from my nose. I told him to toss me a towel and laughed. I know he thinks I am insane, but I often laugh at my falls! I am happy that I can uplift you a little. My prayers for you always!
I’ve watched this video in parts because this week I’ve been busy going to an institute to help diagnose some of my problems and see if they can help me some. The occupational therapist talked to me about trying to do something I enjoy more often to help increase my quality of life, which is difficult to do when you just are surviving all the time, but this video helped encourage me a little bit to try to find some easy hobbies. Sometimes hearing encouragement and advice is easier to take from someone who is sick and understands so thank you for that! I’ve had hair issues and I’ve found that rice shampoo and conditioner really helps, it might be worth a look as many people dealing with hair loss have found it helpful, of course everyone is different and has different situations but I thought I’d mention it.😉
So pleased to hear this Ruby, I hope you find some things you enjoy! 🤞🏽☺️ I’ve always (since I got ill) felt like I didn’t really have any hobbies, but also that I didn’t have any spare time for them anyway, which I put down to being unwell & only having maybe two usable, slightly better hours a day. Although last week I started to realise that I actually do have hobbies & things I enjoy that are valuable to me, they just wouldn’t typically be seen as a hobby for someone else- for example, I’m part of a lot of animal welfare groups where I give people advice about looking after small pets. I absolutely love this & do it a few days a week, even if it’s just for three minutes some days! I’ve been doing this for a couple of years now & that whole time, I’ve been sad I’ve not been well enough to do a ‘real’ hobby like crochet or hiking or something more conventional like a lot of my friends do, but I’ve finally realised that even though I wish I could do more, I’m happy I found this hobby for myself and it was only last week that I finally let myself called it a hobby and share it with other people, but this is what I love to do ☺️ & that’s one of my hobbies ☺️ (voice dictated this & then did my best to correct it, so hope it’s readable!)
I'm glad you're having fun with makeup. I bought some Amla hair oil to try, apparently Tik Tok swears by it for hair growth. I've only been using it for a couple of weeks though. I love the pictures of your younger self and the description of you and friends in maths class - it does sound cozy!
I hadn’t heard of that, will have to have a look, thank you! ☺️ ah thank you, it was great fun doing math with those two, I loved the teacher I had in that class too ☺️
I can't express how much I admire your attitude and ways of thinking. I've been following your channel for a long time, I'm also diagnosed with EDS, POTS and the likes and I have been homeless (about to move and also dread the neighbours, fingers crossed). I don't comment much but you're giving me hope. Thank you for that. On another note,do you find that a bed headboard helps you staying upright? I don't have one, but also have CCI. Much love from this internet stranger who wishes you well.
Thank you so much! I really, really hope it’s nice where you move to & that the neighbours are nice, I’m so sorry you’ve been homeless too, it’s really tough, so im so glad you’re getting out of that situation now! Yes! My headboard helps me massively! ☺️☺️
I think you could achieve a similar effect with pillows instead of a headboard, but I know a headboard is probably a bit easier if it’s possible to get one
Great video! I was thinking the other day of all the things I missed from when my ME was moderate to severe. Especially seeing friends and family. But whilst I was moderate to severe I was mostly frustrated with the things I couldn’t do at the time! So yes you are right. I do try to be grateful for what I have and I do romanticise my life at times, and at other times I am ungrateful and frustrated and unhappy. This video reminded me to look at what I have and keep my attention on that more.
Thanks for sharing 💕 this mindset is just about being grateful & happy about what we do have & the good parts 😊 it’s definitely not saying to be grateful or happy about the bad things- the bad & frustrating things are definitely valid, they’re just not what I was talking about here 😊 I hope you’ll be able to text or call your friends sometime soon if you’re not able to see them, I only manage to see some of mine for an hour or two (this year I’ve managed to see around 5 friends, so roughly once every 2 months) but I also love texting or calling them when I’m well enough 😊
I’m sorry, that truly sucks. I’ve been badly abused since I was 2, became physically disabled & severely ill as a teen, been homeless twice, lived in dire poverty, gone without food, clothes & belongings etc, had many friends die before they turned 25, most of them died from one of the conditions I have, etc, so in some ways it’s felt like my life has all sucked. But I did MAKE my own joy in many of the stages & I wouldn’t have it any other way.
I just wanted to ask, when do you think your book can be published? I watched your writing vlog when you first finished and I've been waiting since then because I really wanna read it. Obviously it's completely understandable that you haven't been able to publish it yet and I'm not asking in a pressurising way. Just wanted to know. Sending you virtual hugs and spoons and I pray your able to get some relief. 😊❤💖💞
I’ve not been well enough to work on it properly for a long time, so it’s going to take a while, even healthy people with a team of editors take around a year to write & publish a book, so with just me doing all the writing & editing myself, while severely ill, it’s definitely going to be a challenge! But I’m up for the challenge & working towards it still ☺️ I haven’t shared much about it, but I’ve been bedbound in a dark room for most of the past 18 months & in hospital a lot too, but I am still working away on my book every chance I can ☺️ I adore my characters & their world & it’s even comforting for me as a chronically ill person when I read it back, so I think & hope a lot of people will find it to be worth the wait ☺️
I think of you every time I make progress Ally, and I made quite a bit of progress on my book a few weeks ago, thanks for asking this question & sticking with me until I had a better answer 😊 I’m much closer now than I was 3 months ago!
Aw that's so sweet that you thought of me while editing your book! Thank you so much Georgina, your words mean a lot. So happy that your closer to finishing it now ❣️ I pray for you often ❤️💕
I didn't know a person can talk while asleep! :D The closest I've got is being super drunk in my late teens and early twenties) Georgie, did your hairloss start after you moved into this place? It's lovely to see you, take care!
@@GeorginasJourney can be stress with the illness ime going to try a jaw splint soon hopefully as apparently tmj connected to fybromyalgia CFS even though.i don't have tmj nowadays
@@Truerealism747 it’s caused by one of the things that were flagged up in my blood tests for me! A jaw splint can only really help tmj & possibly headaches, not much else, it definitely wouldn’t help any fibro pain below the neck. But I hope it has the outcome you’re hoping for 😊
@@GeorginasJourney it's in RUclips tmj fybromyalgia connection have a look the upper cervical Newport says it will so I live in hope I had allopecia when my fybromyalgia started but I assumed it was stress drs didn't seem to care
I sped up some parts for you, but if you want to listen to this quicker, you can pop it on 1.25 speed if you fancy that ☺️
I totally know what you mean about loving when certain RUclips channels upload! It's definitely like the "good old days" of RUclips in some ways.
So true!
I loved hearing about your wood working classes in particular. This made me smile you had this joyful escapism ❤️ xxx
Thank you, will show you something I made if I can find it & if I’ve not showed you before, we did the after school club in around year 7 or year 8 ☺️ xxx
I’m there right now in a massive flare . It’s been rough ❤❤❤ thank you
Hope it eases up soon 💕❤️🩹
To be thankful for every days moments isn't easy. But SO important. I was bedbound with ME/CFS and it was horrible. Now I'm much better (moderate) but I'm still often so frustrated and hopeless. I have to remind myself to be thankful, because I know how it feels to be in worse condition.
Yesterday I got my first cusomized wheelchair with Alber Emotion M25 and I really have fun learning to use it (not easy, btw). And I noticed it's so much less exhausting to go out (I have POTS, too).
Thank you for sharing your story and thoughts!
I think it’s quite a narrow distinction about what we’re grateful for, cos no one can expect us to be grateful for our life as a whole now as we are still very limited & so it’s only natural to want more for ourselves, but, that definitely doesn’t mean we can’t still find joy where we can & pay attention to the good things, even if someone else might take those good things for granted, it doesn’t mean we have to ☺️
@@GeorginasJourney Yes, you expained it perfectly 🥰. It's a very complex discussion. At some days it's important to grieve about all my losses, at some days it's important to appreciate the things I can now do, at some days it's important to focus on future goals.
(English is not my native language, therefore it's difficult for me to explain emotional stuff 🙈)
Yes definitely! I think your English is very good! You are great at English!
I think you are being so thoughtful. When I hit my downwards spirals with my illness I try to focus on the positive things in my life. I know that it can be difficult because all the negative things can be overwhelming but it can be effective for my situation. Life needs to go on. Because if I would not have this mindset I would be sitting at home all the time.
Thank you! Glad you’re able to see things in that way as well, you’re doing great! ☺️
I’m so Happy you found a Best Friend, it’s terrible Your family won’t help YOU, it’s good to hear you just talk, I’m getting ready to go to sleep, have You gotten a better place to live, when I wake up I’ll check back in to see how you’re feeling, hugs 🤗 Love ❤️ & Prayers 🙏🏻
Hi, thanks so much! my best friend started med school (university) this week so we probably won’t be talking as much anymore, but I’m so grateful for the time I had with her at the end of the phone 😊 I don’t have a better place to live & I never will as there’s nowhere else for me to go here, I have exhausted all options now sadly. it took me 2 years of fighting to move from the last place into this one & they would never allow it again. Sorry it’s not better news, but I hope you sleep well 💕💕
I had a bad abuser in my family as a child. But I still had good times as well. I think of Dickens, " It was the best of times and the worst of times..."
I loved learning at school as well. I didn't enjoy the kids as much. I did have a couple of friends. I loved playing outside by the creek.
Ooh that is a good quote for it, very true words! I played outside quite a lot too ☺️
Darling you are truly amazing!! I have been praying hard for you and have had a down spiral in my health, now dealing with all the symptoms of POTS on top of the rest, which I hoped would not happen, but it did. You are my inspiration and I am still praying for a way to help you! It was so wonderful to hear and see this video because I was so hoping you would feel better. Your ability to stay so positive and bubbly leaves me in awe and feeling a little guilty for my depression and hopelessness that I feel at times. I am in my mind your grandmama and want so much to protect and care for you. You will get better and life will get better for you because you will not settle for anything less! You deserve it! I lost most of my hair a long time ago and when I was still young enough, still lots older than you, I tried wigs, beautiful wigs and I ended up loving them! They were much prettier than my own hair when I was a teen and I had fun wearing different styles and colors. I dont know if my children were happy to be seen with me, but it was fun and made me feel better. I also used hair fiber powder to fill in the spots of scalp that showed until my hair turned white, then it didn’t work so much, but they were really good. I am so glad to see you enjoying those things again. I will be happy when I can get my hands on your book, too! I love your new glasses! I did fall flat on my face and broke my nose and my old glasses a few years back and just got new glasses last month. They are larger and rounder than my old style but are working out fine. That is if I dont faceplant again! LOL!! I love you my Darling!
Susan, your prayers must be working as I feel uplifted every time I read one of your lovely comments! I bet you looked so fabulous in your wigs, they sound great! I hope you’re recovering okay from the broken nose, that sounds so painful! And I hope you’re liking your new glasses, I bet you look wonderful! 💕
@@GeorginasJourney I broke my nose about 3 years ago and it healed fine. I laughed about it, my husband was panicking (he is disabled also) and couldn’t really do anything to help so he was telling me I was bleeding profusely from my nose. I told him to toss me a towel and laughed. I know he thinks I am insane, but I often laugh at my falls! I am happy that I can uplift you a little. My prayers for you always!
Glad the neighbours could make a cameo in one of your videos.
Haha, happy to link others if you’d like to hear more from them, them & my past ones feature a lot 🤣
I’ve watched this video in parts because this week I’ve been busy going to an institute to help diagnose some of my problems and see if they can help me some. The occupational therapist talked to me about trying to do something I enjoy more often to help increase my quality of life, which is difficult to do when you just are surviving all the time, but this video helped encourage me a little bit to try to find some easy hobbies. Sometimes hearing encouragement and advice is easier to take from someone who is sick and understands so thank you for that!
I’ve had hair issues and I’ve found that rice shampoo and conditioner really helps, it might be worth a look as many people dealing with hair loss have found it helpful, of course everyone is different and has different situations but I thought I’d mention it.😉
So pleased to hear this Ruby, I hope you find some things you enjoy! 🤞🏽☺️ I’ve always (since I got ill) felt like I didn’t really have any hobbies, but also that I didn’t have any spare time for them anyway, which I put down to being unwell & only having maybe two usable, slightly better hours a day. Although last week I started to realise that I actually do have hobbies & things I enjoy that are valuable to me, they just wouldn’t typically be seen as a hobby for someone else- for example, I’m part of a lot of animal welfare groups where I give people advice about looking after small pets. I absolutely love this & do it a few days a week, even if it’s just for three minutes some days! I’ve been doing this for a couple of years now & that whole time, I’ve been sad I’ve not been well enough to do a ‘real’ hobby like crochet or hiking or something more conventional like a lot of my friends do, but I’ve finally realised that even though I wish I could do more, I’m happy I found this hobby for myself and it was only last week that I finally let myself called it a hobby and share it with other people, but this is what I love to do ☺️ & that’s one of my hobbies ☺️ (voice dictated this & then did my best to correct it, so hope it’s readable!)
Ps, thanks for the hair recommendations, I’ll check them out! ☺️
I'm glad you're having fun with makeup. I bought some Amla hair oil to try, apparently Tik Tok swears by it for hair growth. I've only been using it for a couple of weeks though. I love the pictures of your younger self and the description of you and friends in maths class - it does sound cozy!
I hadn’t heard of that, will have to have a look, thank you! ☺️ ah thank you, it was great fun doing math with those two, I loved the teacher I had in that class too ☺️
I am grateful for the people in my life and my cat! 🐈
Awh what’s your cat called? I love cats! ☺️
@@GeorginasJourney I had Luna but she passed away. Now I have Shadow.
I can't express how much I admire your attitude and ways of thinking. I've been following your channel for a long time, I'm also diagnosed with EDS, POTS and the likes and I have been homeless (about to move and also dread the neighbours, fingers crossed). I don't comment much but you're giving me hope. Thank you for that.
On another note,do you find that a bed headboard helps you staying upright? I don't have one, but also have CCI. Much love from this internet stranger who wishes you well.
Thank you so much! I really, really hope it’s nice where you move to & that the neighbours are nice, I’m so sorry you’ve been homeless too, it’s really tough, so im so glad you’re getting out of that situation now!
Yes! My headboard helps me massively! ☺️☺️
I think you could achieve a similar effect with pillows instead of a headboard, but I know a headboard is probably a bit easier if it’s possible to get one
What symptoms does your CCI cause Ime in the middle getting it looked at for heds fybromyalgia pain
Great video! I was thinking the other day of all the things I missed from when my ME was moderate to severe. Especially seeing friends and family. But whilst I was moderate to severe I was mostly frustrated with the things I couldn’t do at the time!
So yes you are right. I do try to be grateful for what I have and I do romanticise my life at times, and at other times I am ungrateful and frustrated and unhappy. This video reminded me to look at what I have and keep my attention on that more.
Thanks for sharing 💕 this mindset is just about being grateful & happy about what we do have & the good parts 😊 it’s definitely not saying to be grateful or happy about the bad things- the bad & frustrating things are definitely valid, they’re just not what I was talking about here 😊 I hope you’ll be able to text or call your friends sometime soon if you’re not able to see them, I only manage to see some of mine for an hour or two (this year I’ve managed to see around 5 friends, so roughly once every 2 months) but I also love texting or calling them when I’m well enough 😊
I am 50+... I don't agree that every stage of life is the good old days. It's all been bad for me.
I’m sorry, that truly sucks. I’ve been badly abused since I was 2, became physically disabled & severely ill as a teen, been homeless twice, lived in dire poverty, gone without food, clothes & belongings etc, had many friends die before they turned 25, most of them died from one of the conditions I have, etc, so in some ways it’s felt like my life has all sucked. But I did MAKE my own joy in many of the stages & I wouldn’t have it any other way.
I just wanted to ask, when do you think your book can be published? I watched your writing vlog when you first finished and I've been waiting since then because I really wanna read it. Obviously it's completely understandable that you haven't been able to publish it yet and I'm not asking in a pressurising way. Just wanted to know. Sending you virtual hugs and spoons and I pray your able to get some relief. 😊❤💖💞
I’ve not been well enough to work on it properly for a long time, so it’s going to take a while, even healthy people with a team of editors take around a year to write & publish a book, so with just me doing all the writing & editing myself, while severely ill, it’s definitely going to be a challenge! But I’m up for the challenge & working towards it still ☺️ I haven’t shared much about it, but I’ve been bedbound in a dark room for most of the past 18 months & in hospital a lot too, but I am still working away on my book every chance I can ☺️ I adore my characters & their world & it’s even comforting for me as a chronically ill person when I read it back, so I think & hope a lot of people will find it to be worth the wait ☺️
I think of you every time I make progress Ally, and I made quite a bit of progress on my book a few weeks ago, thanks for asking this question & sticking with me until I had a better answer 😊 I’m much closer now than I was 3 months ago!
Aw that's so sweet that you thought of me while editing your book! Thank you so much Georgina, your words mean a lot. So happy that your closer to finishing it now ❣️ I pray for you often ❤️💕
I’ve started losing some hair recently but I’m not sure if it’s worth mentioning to the doctor or not.
It’s normal for men to lose their hair much earlier than women.
I know 😢 I'm there wish 🤞 I have some good days
What do you mean? You know what?
I didn't know a person can talk while asleep! :D The closest I've got is being super drunk in my late teens and early twenties)
Georgie, did your hairloss start after you moved into this place?
It's lovely to see you, take care!
Sleep talking is actually pretty common 😊 & no, that’s not when it started
I talk and sometimes scream in my sleep. It doesn't sound like a regular scream though!
Do they know why your losing your hair
There’s a few theories & things it could be based on my blood test results & thyroid, but we don’t know for certain
@@GeorginasJourney can be stress with the illness ime going to try a jaw splint soon hopefully as apparently tmj connected to fybromyalgia CFS even though.i don't have tmj nowadays
@@Truerealism747 it’s caused by one of the things that were flagged up in my blood tests for me! A jaw splint can only really help tmj & possibly headaches, not much else, it definitely wouldn’t help any fibro pain below the neck. But I hope it has the outcome you’re hoping for 😊
@@GeorginasJourney it's in RUclips tmj fybromyalgia connection have a look the upper cervical Newport says it will so I live in hope I had allopecia when my fybromyalgia started but I assumed it was stress drs didn't seem to care
@@Truerealism747 keep me updated how it goes!