Would I Keep My illnesses Since They Made Me Who I Am? | Discussion

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  • Опубликовано: 5 май 2024
  • Would I Keep My illnesses Since They Made Me Who I Am? | Discussion
    Choosing to stay Chronically ill?! Would I keep this?

Комментарии • 42

  • @catherinebooth9810
    @catherinebooth9810 2 месяца назад +7

    I understand what you mean about these illnesses weeding out the people who don’t care how you need them to. I have CVS like you and that one particular illness really does push people to be nice or cruel, especially when attacks happen in public places.
    💜

    • @GeorginasJourney
      @GeorginasJourney  2 месяца назад +1

      Oh Cathrerine, I’m so sorry you deal with CVS, it’s so brutal, my heart goes out to you. The thought of people not being understanding to you in those moments is horrible to think about & I’m so sorry. With my phobia, I completely get that it’s hard on others too, but you deserve people who can support you through it 💕

    • @GeorginasJourney
      @GeorginasJourney  2 месяца назад +1

      (Sorry for the typo in your name there btw )

    • @catherinebooth9810
      @catherinebooth9810 2 месяца назад +1

      It’s ok 🙂
      And thanks. It is a truly brutal illness to have, I hate to think of others having it as it’s truly brutal. I’ve had it since I was a child. I have emetophobia too due to the severity of attacks and peoples comments.
      It makes v* (hope that’s ok to type) seem abnormal because of how sick it makes us. Horrible illness, with horrible consequences.
      ♥️

  • @torispalliativecareheartjourne
    @torispalliativecareheartjourne 2 месяца назад +7

    I had to battle through school with my illness CHD heart failure and brain damage. ❤❤

    • @GeorginasJourney
      @GeorginasJourney  2 месяца назад +2

      I’m so proud of you for getting through that, I can’t imagine how tough that must’ve been, but you did it ❤️‍🩹❤️‍🩹

  • @ElkeTS
    @ElkeTS Месяц назад +1

    Completely agree. There isn’t really much of payoff for keeping them. On the contrary.

  • @rythehorrorguy2851
    @rythehorrorguy2851 2 месяца назад +8

    Very well done video.

  • @ruby3200
    @ruby3200 2 месяца назад +2

    I think about this every once in a while. It’s kind of a big question and is hard to wrap my brain around. Instead I try to think of the good things that my illness has caused and often wonder(even though I may never fully understand why) the reason God made me so ill. I’ve found several things that could have been part of why God made me sick. I got sick at 16, and was planning on going to medical school to become a nurse or paramedic or something, I was homeschooled my whole life so that my parents could give me a Christian education. Colleges can be very anti-Christian and often teach opposite of what the Bible teaches, on top of being just 18 and being thrown out into the college world where there can be a lot of opportunities to make bad decisions or bad influences, and the cost of college and life in general, going to college might’ve been a bad choice for me. I can be influenced easily sometimes, and I was always someone who just wanted to go out on my own and be independent, partly because I felt like that was expected of me by society. I’ve always been someone who needs a little more time to grow compared to others in my family. I’ve always been someone who wanted to stay a kid forever, and I struggle with change.
    I think one of the reasons God put illness in my life was to slow me down so that my mental self could grow more. Kids today are pressured to make big life changing decisions when they are too young and need time to learn about the world and themselves. I think God kept me out of college to protect my faith from a place that can be very hostile when you have beliefs that are different from others.
    I also think He has used my illness to strengthen my relationship with Him. I’ve gone through a time of doubt and struggled with my faith when I first got sick, He has used the long quiet moments I spend in bed to help me understand and learn to trust Him, when if I had been in college and had that same struggle, my faith might have dwindled instead.
    Ive also always been a person that isn’t very emotional. I think recently Ive been learning to understand my emotions and relationships with others. If I hadn’t been sick I would not understand what it’s like to go through depression and severe life changing difficulty. Now I can be an understanding friend to those who go through similar struggles, and God can use that to bring comfort and His Word to others.
    I’m finding my purpose on how God wants to use me for His glory, and what my place is, even if that purpose is just temporary.
    I’ve learned a lot of lessons, like slowing down and appreciating small things like the clouds,singing birds, and the changing seasons. I have more of a fascination of people and the world because I’m so isolated. I’ve learned endurance and have found inspiration to keep going through others who have overcome unfathomable difficulty.
    I’ve learned life isn’t a race, and everyone accomplishes similar things at different stages in life when they are ready.
    Like you I’m basically bedridden, and have basically stopped living. It’s kind of given me an outside perspective on life, because I don’t feel a part of it, which is kind of a gift and also really sad. I don’t see my grandparents often and I missed my great grandmothers funeral in January because I couldn’t handle going physically or emotionally. I often struggle to watch my siblings get to go out and live while I stay the same. I worry about my future and worry that I may never get to experience things I always wanted like getting married and having children. I worry about my younger years slipping away. Recently I’ve really wished I was healthy enough to go on vacation and travel.
    I don’t think there is a clear answer to the question. In a way I want to say I wouldn’t take away my illness because God gave it to me for a reason, and His plan is perfect and ultimately for my good. My life is exactly how it’s supposed to be,so in a way, it’s perfect. Thats more of a long term, faith based way of looking at it. Of course that doesn’t make me love or want my illness, but it does bring me comfort,peace, and takes away the anxiety and guilt that I need to hurry and catch up with everyone else.
    Interesting video and topic that gave me an opportunity to reflect on lessons I’ve learned. Thank you for that.❤
    Sending hugs and prayers Georgina.😊❤🫶

    • @GeorginasJourney
      @GeorginasJourney  2 месяца назад +1

      I mainly think about the good things it caused too, but several people wanted me to discuss this & explicitly asked me to, so this video was for them & anyone else who was interested in it 😊 but I have thought a lot of the same things as you kindly shared with me there and been grateful for those things too. Where we differ, is that I think, if you did go to college, I believe in you enough to think that your faith would have stayed strong because I can tell how strong both you & your faith are. It seems to me you have full faith in Him but not as much in yourself, which is understandable, it’s human nature to question ourselves and what ifs, but I have faith in both who you are now, and who you would have been, had you not got unwell ❤️‍🩹 thinking and praying for you too ❤️‍🩹

    • @ruby3200
      @ruby3200 2 месяца назад

      @@GeorginasJourney Aww you’re too kind!🥹 I just feel like every time I have a chance to make big decisions or changes I always muck it up and do the wrong thing. I always make the worst choices and regret it later. At least I feel that way. I’ve lost a lot of confidence in myself and realized a lot of my faults. I guess that’s not a bad thing, since then I know where to improve myself. It can be very discouraging though. I think I really struggle with self esteem and self worth since getting sick. Your kind words mean a lot.🥲 It’s a nice thought to think that people would appreciate me if I hadn’t gotten sick and still think I’m a nice person even though I did. I hadn’t thought of that before. I guess I often feel unloveable and that I’m not an enjoyable person to know. Even though I know my family would love me no matter how my life went, I still hadn’t thought of that statement you made. It makes me cry.😭
      I guess often lose faith and hope in myself especially when it comes to making something of my future and my life. I guess that’s the depression talking. Thank you again for being so sweet and supportive.
      Please don’t think I didn’t like the video. If I wasn’t interested in the topic I wouldn’t have watched. I haven’t really seen people talk about the subject before. I found it interesting.🙂

  • @TopCat10
    @TopCat10 2 месяца назад +5

    My main thing would be choosing to be able to stop wearing nappies if at all possible. Thank you very good video.

    • @GeorginasJourney
      @GeorginasJourney  2 месяца назад +6

      If you have male anatomy, you can get external catheters (conveen catheters) for urinary incontinence that work well for a lot of people! Alternatively, mindset shifts can be helpful, with realising it can be uncomfortable, but you can still live a very good life with it & you have access to products that are actually a blessing & life would be much worse without them! A few of my friends who had their bladders removed after spending multiple years in hospital with urosepsis from urinary retention expressed to me how much they wished they had a simple solution that can be bought in a store & that put a lot of things into perspective for me

    • @TopCat10
      @TopCat10 2 месяца назад +1

      @@GeorginasJourney thank you so much. I really appreciate your reply. I just always think how things could be worse. You seem to get along good without nappies and using catheters. Thank you again best wishes.

    • @GeorginasJourney
      @GeorginasJourney  2 месяца назад +6

      I don’t share much online, but have some videos about what I use. Pls try not to make assumptions about ppl, you never know what they are going thru. & if you watched this whole video about my suffering & think I’m doing well, I don’t know what to tell you.

    • @GeorginasJourney
      @GeorginasJourney  2 месяца назад +3

      @@TopCat10 also just realised 1:09 - 1:11 shows a jug full of blood drained from catheterising, so I hope that gives a little insight of what catheterising can be like for some people & what it’s like for me, even though I don’t talk about it in great depth on RUclips (as I’m careful about what I share these days & what’s appropriate for RUclips), but just because you don’t see suffering, if someone tells you they are, like I did in this video, you should believe them 😞

  • @Dulcimerist
    @Dulcimerist 2 месяца назад +2

    This is an excellent topic! Thanks for making this video!
    My Ehlers Danlos has shaped me in good ways, I suppose. I can see where I've been steered to be in the right place at the right time to help other people, simply because I wasn't able to go down the "normal" path of college, career, starting a family of my own, and all of that. I do wish I could have a "vacation/holiday" from my chronic illnesses so I could have opportunities to enjoy life on the levels that "normal" people do. When I finally leave this earth, I hope that I meet the powers that be, and they tell me this was all a practical joke, and then they send me back to re-live my life all over again as a healthy individual.

    • @GeorginasJourney
      @GeorginasJourney  2 месяца назад

      Oh my gosh that would be the plot twist of a lifetime, literally, if you get sent back down to start over as a healthy, able bodied person. Do you think you’d take that opportunity if given the chance? Part of me feels like…I’m exhausted enough as it is, without doing life again, even in a healthy body the next time 😂 I think one of the best things about life is also the novelty of it, so I feel like I probably wouldn’t want to do it again, but this has definitely given me something to think about haha

    • @Dulcimerist
      @Dulcimerist 2 месяца назад

      @@GeorginasJourney I share your feelings of exhaustion from living life. Part of me would not want to come back to live in this place called Earth again, due to how unpleasant it has been.
      However, if I was given the chance to re-live my life over again as a healthy person, I might choose this out of determination to not miss out on all of the things I missed out on during my current lifetime. Aside from my health issues, my life has been good - I just haven't been able to enjoy it or take advantages of opportunities that presented themselves to me. My current life had a lot of potential to be much more, if my health issues hadn't interfered. I'm super curious to see what might have been.

    • @GeorginasJourney
      @GeorginasJourney  2 месяца назад

      @@Dulcimerist when you put it like that, I think you could say most people’s lives had the potential to be much more, even if it wasn’t good in the beginning. My childhood was unfortunate, but I still had the potential to have an incredible life & that was my plan, to work my way up & out, build a family, etc, until illness changed that. I still don’t say it’s put a stop to it, but it has definitely changed things. But yeah, I don’t think the potential for a better life comes from good circumstances necessarily, I think it comes from a drive (& the health) to achieve it. I know a few people who grew up poor, in bad homes, left school without qualifications but now have amazing lives as they started basic jobs & worked their way up from there. Bad night of painsomnia so sorry I haven’t worded this well

  • @ElkeTS
    @ElkeTS Месяц назад +1

    Completely agree. There isn’t really much of payoff for keeping them. On the contrary. And I also don’t think people need to suffer to become empathetic, good people. I think it’s human nature to be caring and empathetic. I sometimes feel suffering gets bit glorified in our society. Like that there is always a positive payoff. And I don’t mean that you shouldn’t look for the positive things in a bad situation, but it just doesn’t make the bad situation positive.

    • @GeorginasJourney
      @GeorginasJourney  Месяц назад +1

      Oh this is so well written, yes!! Agree completely!

    • @ElkeTS
      @ElkeTS Месяц назад

      @@GeorginasJourney oh, that is so nice to hear 😊 because I always feel a bit insecure when I express myself in English since it’s not my mother tongue. So thank you!

    • @ElkeTS
      @ElkeTS Месяц назад

      @@GeorginasJourney I was also thinking that it might be completely different for someone who has, for example, a very visible disability, but is still able to live a great, fulfilling life. Because people often assume their life must be horrible because of their disability, but it’s more the lack of accessibility that limits them and they might actually be very happy with their life. I’ve heard people in that kind of situation talk about how they constantly face this prejudice and that they wouldn’t want their illness or disability go away. Because they are perfectly happy and can do the things they want to do in life. And in that situation I can very well understand that.

  • @taylorwelch444
    @taylorwelch444 Месяц назад

    I completely understand last year it took me a while to figure out how to handle my Raynaud’s when the attacks happen at work especially since I am the main person who gets the ice for the ice drinks luckily I have an amazing co-workers and my Raynaud’s also always happens to show up during in-person book club at the beginning of class and at the beginning two weeks after I was diagnosed with it. My friend who was sitting next to me she saw me grab my Occopa(learned about these hand warmers thanks to one of your RUclips friends Izzy) she also saw that one of my fingers was blue and she asked me what I was holding I was still pretty new to the diagnosis so I was a little uncomfortable with my friends asking questions but I still answered them and of course my Raynaud’s had to happen right when we were doing a craft and my program instructor had to cut my paper for me cause I couldn’t do it at the moment.

  • @user-jl7cb1fg2r
    @user-jl7cb1fg2r 2 месяца назад +1

    3:48 yes!! Thank you for putting it in that light! I never thought it that way! It almost brought me to tears when you worded it that way. Thank you!

    • @GeorginasJourney
      @GeorginasJourney  2 месяца назад

      I’m glad that part resonated with you even though I wish you hadn’t experienced it too, being unwell is tough, but you are tougher! ❤️‍🩹

  • @TheFrasweet
    @TheFrasweet 2 месяца назад +2

    Well done you, Georgina, dealing with a difficult subject such as this. What I noticed about your presentation is that you showed us that the mental 😅steps along the way are tied to your own experience, and thinking, are not presumptions about other individuals or groups. As an ally, not a diagnosed person, I wish for you and many others that we as a society can take on the necessary work to provide the help that is needed to those who have the needs that they have, not a social safety net that we have now that is based on an antique idea of or on an ` model of delivery of services rather than a holistic and grounded global response to individual’s requirements they need met to flourish 2:34 . To paraphrase old Uncle Charlie Marx, “from each according to their capabilities, to each according to their needs and desires.”
    ❤❤

    • @GeorginasJourney
      @GeorginasJourney  2 месяца назад

      You have no idea how thrilled I am to hear from you, I have sent an email to you to explain what happened to our emails! I hope either this message or my email reaches you asap! Beautifully put, as always, btw :)

    • @Dulcimerist
      @Dulcimerist 2 месяца назад

      Thanks for being an ally! It means a lot that people actually care to learn more about those of us with chronic health conditions. I had several friends ditch me when I was diagnosed so it means a lot to hear that someone accepts people for who they are, and are thoughtful and mindful of the needs of others who might feel a bit alienated or isolated from society.

    • @GeorginasJourney
      @GeorginasJourney  2 месяца назад

      So sorry you went through that, but I agree, Frederick is incredibly understanding and the best ally :)

  • @Voldycat
    @Voldycat 3 дня назад

    Gi I would (un)happily sacrifice our friendship if it meant that you were well

  • @Catlily5
    @Catlily5 Месяц назад

    I am probably somewhat of a better person due to being ill. I was mean as a kid but nicer when I was a teenager. I think that I was nice enough before I got sick so I wouldn't want my physical or mental illnesses either. Now I am super nice but I don't need to be this nice. Autism I am unsure about because I would be a totally different person if I weren't autistic.

    • @GeorginasJourney
      @GeorginasJourney  Месяц назад

      I think you’re amazing exactly how you are & if I could choose any version of you to be friends with, I’d choose the you, you are now

    • @Catlily5
      @Catlily5 Месяц назад

      @@GeorginasJourney Thanks! I think that you are amazing as well!

  • @QualityToolsಕನ್ನಡ
    @QualityToolsಕನ್ನಡ Месяц назад

    What you have done for your surgery scar mark that didn't seen

    • @GeorginasJourney
      @GeorginasJourney  Месяц назад

      My scar is still there, it’s just healed very well as I’m mostly bedbound in a dark room, so it hasn’t had sun exposure & that’s what can slow healing. Sun cream, scarves (& you can also get scar healing creams), would all help, though!

  • @torispalliativecareheartjourne
    @torispalliativecareheartjourne 2 месяца назад +9

    I hope you’re doing okay, Hun. I’ve been in bed for four days. I’ve been so poorly with flu for 10 days now. I am very slowly starting to feel better.😷🦠

    • @GeorginasJourney
      @GeorginasJourney  2 месяца назад +3

      Oh no, so sorry you’ve been so unwell ❤️‍🩹that’s the last thing you needed on top of everything else! Sending healing vibes your way ❤️‍🩹 Is it the dreaded stomach bug? Thats the one I have a phobia of, so I always seem to hear about people having it 😂

    • @Dulcimerist
      @Dulcimerist 2 месяца назад

      Hoping you feel even better soon.