Michelle's NMOSD story
HTML-код
- Опубликовано: 5 июл 2024
- * subtitles can be found within CC & settings.
Michelle’s diagnosis with neuromyelitis optica spectrum disorder (NMOSD) initially left her shocked and devastated, but now she refuses to let it prevent her from living her life to the fullest and encourages others to do the same.
Subscribe to our RUclips channel now: ruclips.net/user/roche?su...
Get in touch with us:
www.roche.com/
/ rochecareers
/ roche
/ roche
Roche has been committed to improving lives since the company was founded in 1896 in Basel, Switzerland. Today, Roche creates innovative medicines and diagnostic tests that help millions of patients globally.
Roche is a leader in research-focused healthcare with combined strengths in pharmaceuticals and diagnostics. Roche is the world’s largest biotech company, with truly differentiated medicines in oncology, immunology, infectious diseases, ophthalmology and neuroscience.
For more information and insights visit: www.roche.com/ 
Наука
You're an inspiration and I hope things are going well. After a month of the rapid onset of what my co-workers believed was either transverse myelitis or GBS, I'll have a blood test this week to likely confirm this d/o. I'm going to the gym tomorrow for the first time in a month. F this d/o. You rock.
Thank you for this video.
Thank you for your message. I was just diagnosed NMOSD. I need to remember to not let this define me and not give up hope. What treatment plan do they have you on.
Thank you Michelle! You are so inspiring!
She sounds like she is also talking about transverse myelitis near myelitis optica. I have both, I was told that the NMO affects your eyes - Optica being your eyes. Transverse Myelitis affects the spinal cord it becomes inflamed this can then cause the limbs to go weak.
Transverse myelitis as a sign of multiple sclerosis usually causes symptoms on only one side of your body. Neuromyelitis optica (Devic's disease) is a condition that causes inflammation and myelin loss around the spinal cord and the nerve in your eye that transmits information to your brain.
In my case it did affect my body from waist down, I was not able to feel either of my legs. My symptoms began with pain in my bladder area. 24 plus hours with out being pee , legs began to not won't to hold me up, then bam, they didn't. I was traveling during the last 24 hours of what was happening to my body. Of course I had no idea, I thought oh no what's wrong with my bladder?. I was setting on the plane and each time I would get up my legs felt I guess tired best way to explain it. I knew something was wrong when no urine would pass, but what? My husband and I get home just in the nick of time. My legs just did not want to hold me up anymore. Called 911, let them take me to ER , in order to be seen really fast. Told the nurse to get a catheter in me asap, he thought I was crazy. I had over a litter of urine in the bladder. I was then admitted and the fun began. lol MRI's blood draws, this test that test and that was a Sunday night, by Thursday or Friday they were able to tell me what it was. I still wasn't walking yet and ALL I wanted to know was, will I walk again????!!!!!! I did and I have been ever since. I had some pt before leaving the hospital and then when I got home , I would make myself walk, but with a walker of course. I get better. I deal with chronic pain every day. I now live without a sex drive and I am 58. I have 0 activities in my life due to the pain. Go to the grocery store for about an hour to shop and come home in sever pain. I wake up - Chronic Pain, I go to bed at night - chronic pain and while trying to sleep, I wake up turning over from the chronic pain. I think trying to not feel depressed about it is the best help. Its frustrating when grandbaby ask me to go swimming with her and i have to say I can't. She looks up at me , Mee Maw the water isn't cold, 99* out humid as all get out, but the lower half of the body says , no. The temperature feels much cooler on lower half. Doc said that's due to spinal cord inflammation. I take lots of vitamins and try to not eat any food that will also cause inflammation. Try and stay positive , Great Doctors, and a family that understands and supports you!
Thank you for sharing your story. Did they diagnose you with a blood test?
Hello humble request to u please confirm how did you overcome from NMOSD my relatives suffering from this