Starting the 2nd of three life-saving treatments for ASMD!!!
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- Опубликовано: 13 сен 2024
- THIS HAS BEEN A LONG TIME COMING!!!
I am still in shock that we have finally started this treatment. I just hope we can make up for lost time - less than 24 hours after this video was filmed and the editing almost completed, we took Damian to the ER, and I'm actually uploading this from the hospital room where we've spent the last couple days. But Damian is on the mend, and I am so so so ready for this new treatment (Enzyme Replacement Therapy, or ERT) to start helping us keep Damian out of the ER for normal everyday viruses like the flu or a cold.
THANK YOU all so much for supporting us through the crazy drama that went down to finally get access to this treatment. I'll never go down without a fight and I am PUMPED that we finally won this one. Mama's got you, sweet Damian.
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💙ABOUT DAMIAN💙
Damian is fighting a terminal genetic disease called ASMD/Niemann-Pick Disease Type A (sometimes referred to as "Baby Alzheimer's") and we're determined to do WHATEVER IT TAKES to expedite the development of treatment and save his life. Please help us #SaveDamian by sharing his story!!! We are SO CLOSE to finally defeating ASMD, for Damian and every child given this death sentence. Thank you 💙
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💙 LINKS 💙
GoFundMe: gofund.me/24dc...
Blog and More: www.SaveDamian...
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💙 AS SEEN IN THIS VIDEO 💙
Singing Mickey Mouse Plush Toy: amzn.to/3I4zGl8
Nothing in this entire world like a Mama’s love for her baby. ❤❤❤
God’s specially picked you to be his mother for a reason.
Bless you, momma
I'm so glad he was finally able to start the treatment!!
Momma, do you have any idea how brave you are?
Bless his little heart..... praying he gets better! He's so cute and sooo so brave!
You're both amazing, and you handle this with so much grace. Sending love and prayers for his well being.
I have been praying so hard for him to respond to this treatment!!
HOORAY!!! We’re so happy for this milestone. What an amazing and brave little guy! I definitely got teary seeing Santa come visit him in the hospital.
Round one down let's hope he can keep going on ERT. Did he smile when he see Santa? We are all proud of him and you and Brock.
I am praying for little Damien may God take care of him and heal him for good that he does not feel sick ever again
Go Damian! How fun that he got to see Santa :)
Damian is always so brave!!
We are so happy!!! Let's keep this going!!!
WOOOHOOOO!!!!! 💙💙💙💙💙💙
Sweet baby!
How will this treatment help him? Beautiful child.
Bless you all❤
Damian is so very brave and such a strong fighter!! Keep it up Damian. keep fighting. We are so happy he finally was able to start ERT.
it was so nice to see Santa visit him. We are all praying for you.
so exciting!!
God bless you and your family. I will pray for Damian.
Thank you so much Janice, we are so grateful for your prayers!! 💙💙💙
Yay!!! I’m so happy for you guys!!! 💙💙💙
Very thankful he's able to receive the treatment. I'll keep my fingers crossed that he tolerates the dose well. I'm glad Santa Claus was able to make a visit!
Added to my prayer list
We are SO grateful for your prayers, thank you! 💙💙💙
Loved the video!! He's such a fighter and I'm so glad all went well!!!
God bless you all
Yes 🙏 stay safe
Thank you!! 💙💙💙
Starting the 2nd of three life-saving treatments for ASMD!!!
May God cure him.
Turn the music down so we can hear you better. He is so adorable and sweet for tolerating all these procedures.
Thank you so much for the feedback! I'll be sure to turn it down in the future :) Damian is incredibly strong to go through all he has gone through, especially when he doesn't understand why! His faith and trust in me has been so humbling and has taught me so much 💙
Merry Christmas 🎅 🎄 ❤
Thank you! And Happy New Year to you! 💙
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Love following your story, but the music drowns you out.
p͎r͎o͎m͎o͎s͎m͎
Cut the music out of the video-Please---I can't hardly hear you over the music
We are not supposed to question God but watching Damian I have to ask where is God? I recently lost my son. Where was God? Where is the so called Father of this universe?
Suffering is unfortunately something we can't avoid om this earth, no perfect earth was promised for us, sorry for you loss.
Aww I am so so sorry for your loss. I really am. You know a lot of times we don’t know why things happen. Things that literally break us as people. Make us feel broken beyond words. I hope and pray you find the peace that you need start healing from something so unthinkable. My heart goes out to you. Once again so sorry for your loss. ❤
Gods promise is to be there with you.
You can pray til the cows come home, it does not help.
What the hell is wrong with you? Are you normally a nasty person? I suspect so
Did you really take the time out of your busy day to come and say this??? Wow 😮
@@melindarivera9013 I do not believe in fairy tales.
Change your attitude when you pray - only then you will experience wonders and even miracles.
@@hetvandenbergh2503 Lol