you are an inspiration for me. I am relatively newly diagnosed and ive been struggling. Your life hack videos have helped me so much to make my daily life more manageable. You are so down to earth and so relateable. Thankyou so much hunny xxxxx
@@LordandLordettes I'm coming to the end of a really bad flare up, the worst I've had and it terrified me. I'm a mother of 2 children and this has really helped me. X
Hi, I don't have fibromyalgia however I have dyslexia, Dyspraxia and Autism, so this video is helpful as I get sensory issues so some of these things you use are helpful, thankyou 😊
I didn't know that the itchy skin and scalp was because of my fibromyalgia and none of my doctors or specialists ever told me. I use the nutrogena t gel stuff but ill try the teatree shampoo bar aswell. For my skin in the shower i have dermaveen bath oil (i think thats what its called) to sooth it befor i get out and it does help. Normally when i have a shower it causes my skin to itch and burn like mad when i get out so thats helped. Plus my meds for neuropathy. But I didn't know that normal itchiness and the scalp itchiness was part of it! Thanks for teaching me something new.
Thanks for all the great ideas Nicola. I have ordered the pill organiser as its much better than what I use at the moment. I would be interested in a Wednesday live and afternoon would be great as I am more awake by then :) x
Hi I’ve just seen your channel whilst searching for fibromyalgia sufferers like myself. Thank you for sharing. I have grab rails..plastic and easy to move. I use a travel mug for my hot drinks on bad days. I use dossier for my pills too as I have many other medications. Ooh luv the food chopper xx
Thank you again. I really enjoy your videos. I have similar items in my home to help me cope with my fibro. I am always spilling things as well lol. I use allot of those sports drink tumblers with the pop tops. They work great and are a good size. I also prefer my "pretty" cane as well lol. Mine is the same shape as yours but it is collapsible, so I can store it in my purse. I live in Norway so I am only an hour ahead of you. Stream when it is best for you. I will try to catch it. :)
Hi from Florida. This is Vivian. Please where did you get the yellow strap message placards.,I haven’t seen it in USA. I know exactly what you mean about parking. You are the sunshine of my day. I have a couple hacks but I’ll send later. Got big shot in shoulder yesterday. Can’t write much now. I have Fibro, severe O A and Crohns. Godbless you and feel better. Need more info about that spray.
I have linked the yellow lanyard in the description it's from Ebay! What else do you want to know about the spray? That is linked too in the description.
Hi Nicola, Thanks for all the great hacks. I am definitely getting a cup like yours. Lifting a cup of tea in one hand is getting too hard. Thanks too for reminding me about the tea tree shampoo and it's properties. Take care. xx
I have recently developed itchy scalp ,,, never associated it with fibro,, also cannot tolerate hairdresser's, apart from dry hair cut, am now 80, had fibro for over55yrs.
Great information Nicola ....I have the fans that go around the neck I like it as I do not need to hold the fan. I do have or do most the hacks you mentioned but I think I will upgrade my pill box ....I like the look of yours and the fact a medicine list can be put in. I would love to see a live I'm happy with what ever is suitable for you . Thank you x
If you can use a imass to sleep at night it helps me to put just light pressure on your eyes to make it comfortable and you can sleep because there's no light coming through. And I try sometimes to use I'm white noise to help me go to sleep because then it drowns out all the other sounds
I’ve just bought a neowalk stick and it’s way too heavy for me too! You’re the only other person I’ve heard say this! Anyway, thanks for this video, I’m off to buy the book light now ☺️
Hi 🙂. My tens machine helps so much with the pain I get from fibromyalgia. When the pain gets really bad or unbearable I pop that on for an hour & it makes a huge difference. Don't get me wrong, it doesn't completely remove the pain, but then nothing ever does. However, it still makes a huge difference & gives me such relief. Sometimes I can't sleep because the pain is so severe, but once I put my tens machine on I have passed out within 5-10 mins because my pain eased significantly. I would definitely recommend it 🙂! Btw, my tens machine (& I think most others) has many different settings for the level of intensity, but also the type of pattern/style (for lack of a better word). I don't find all of the patterns helpful, which is fine because there is still so many that are really helpful. So if you get one & you're not loving it at first, I would encourage you to play around with the style/pattern settings & intensity to find one that suits you best. With certain areas (my wrists & forearms) it doesn't take a lot of intensity to feel it working. Other areas e.g. thighs & calves are a bit thicker & require the intensity to be increased. Hopefully you'll be able to find the settings that work the best for you. Good luck, I don't think you'll ever regret buying one ☺️.
I have 3 canes and a hiking stick. One of my canes has a spike attachment that I can put down on icy days, or put up when not in use. I also can't live without my heavy blanket. I watch movies when I need to get out of my head (from the pain). Arthritis gloves help with hand pain, they just give a little squeeze and make it not so bad. I thought I read that Alka Seltzer gold helps with IBS, but I haven't tried it. My friend has one of those body shaker platform things and swears it helps her pain. I've noticed lately that loud noise is really bothersome. It never was before and I wonder if it's fibro related? Anyway, thanks for the video and take care. I can watch a live whatever day you do, since I am retired now. 😜
Good idea about the ice spike on the canes! I don't have a weighted blanket as I tried Pops one but didn't like it! I definitely will look at the gloves!
Hey Nicola, That was a really useful fibro section but I feel almost like you have made us all complicit in cheating on the trusted notepad! 😂📒💔 All your hacks this week were very good; I really need to invest in a pretty wrist strap for my sticks as i am so clumsy! (Although I have almost perfected the art of gently stepping on the rubber stopper enough to flick the handle back up. 🙈🙈) I am definitely going to order the pill box too. My older ones are too small (15 pills at breakfast time alone!) and the one i currently use can't split and be taken out for the day so i have to use several tiny ones... its a nuisance! As for the fan...i bought one the first time i saw you with yours in a video during lockdown #1 and i couldn't be without it now! I take it literally everywhere with me! It has become a handbag necessity and i dont know how i managed without it for so many years. 🤷🏻♀️ One thing i have considered buying is a kettle tipper. It makes it super simple to pour water to make a cup of tea on the days i'm too shaky or my hands/wrists just wont behave. I'm a definite tea-junkie so to not have tea would be truly devastating. 😭 Also, my lanyard is a sunflower one and one side says i have hidden disabilities, the other side has my photo, a list of my disabilities, my name and contact details for my husband. That way if anything ever happens they have his number. After having a car accident in 2020, i also realised there needs to be an up-to-date list of my illnesses, medications and any difficulties i have communicating clearly on my worst days, in the glove box! A live with you would be amazing, i already feel like we are friends, so to have a live would be really good! Have a great rest of the week and i'll catch up again Saturday for the weekly! Xx P.S when you were thinking kindle/audible it was like listening to my own fibro fog!😂😂
Hi Claire! I have a Breville instant kettle where you press a button and the hot water comes out into the mug, even easier than a tip kettle! Will show you on the weekly. Just so you know, the tablet pots I listed will not be exactly the same as mine as mine are years old but as near to as I could find. See you Saturday! 😘
Hi i use a thermal mug when i struggle to grip and havea reusable plastic bottle with straw and different water bottles from asda, I have a strap for my stick and the handle looks like a ducks beak but you its good support for the hand. I also have a lanyard the sunfloower one with a M.e card and fibro one in. Hope you are ok in this heat x
you are an inspiration for me. I am relatively newly diagnosed and ive been struggling. Your life hack videos have helped me so much to make my daily life more manageable. You are so down to earth and so relateable. Thankyou so much hunny xxxxx
You have no idea how lovely that is to hear right now! Xx
@@LordandLordettes I'm coming to the end of a really bad flare up, the worst I've had and it terrified me. I'm a mother of 2 children and this has really helped me. X
@@vickyjohnson8465 I'm glad it has and your flare is coming to an end. Sending lots of love x
Hi, I don't have fibromyalgia however I have dyslexia, Dyspraxia and Autism, so this video is helpful as I get sensory issues so some of these things you use are helpful, thankyou 😊
Glad some was helpful to you! 😊
AuDHD-er here 😊
Yes more fibromyalgia hacks
This was fantastic Nic, I’ve really missed the fibro sections. And that last tip was the best of all of them, thank you.
I didn't know that the itchy skin and scalp was because of my fibromyalgia and none of my doctors or specialists ever told me. I use the nutrogena t gel stuff but ill try the teatree shampoo bar aswell. For my skin in the shower i have dermaveen bath oil (i think thats what its called) to sooth it befor i get out and it does help. Normally when i have a shower it causes my skin to itch and burn like mad when i get out so thats helped. Plus my meds for neuropathy. But I didn't know that normal itchiness and the scalp itchiness was part of it! Thanks for teaching me something new.
Yes to more fibro hacks 😊
Thanks for all the great ideas Nicola. I have ordered the pill organiser as its much better than what I use at the moment. I would be interested in a Wednesday live and afternoon would be great as I am more awake by then :) x
It might not be exactly the same as mine as mine is quite old but very close to it! 😉
Hi I’ve just seen your channel whilst searching for fibromyalgia sufferers like myself. Thank you for sharing. I have grab rails..plastic and easy to move. I use a travel mug for my hot drinks on bad days. I use dossier for my pills too as I have many other medications. Ooh luv the food chopper xx
Never thought of switching up my shampoos and using specific shampoos. I get a really itchy scalp! Iv seen the shampoo soap bars. Thank you x
The one I have with tea tree is very good for an itchy scalp.
Thank you again. I really enjoy your videos. I have similar items in my home to help me cope with my fibro. I am always spilling things as well lol. I use allot of those sports drink tumblers with the pop tops. They work great and are a good size. I also prefer my "pretty" cane as well lol. Mine is the same shape as yours but it is collapsible, so I can store it in my purse. I live in Norway so I am only an hour ahead of you. Stream when it is best for you. I will try to catch it. :)
Ok, will make sure everyone knows when I am going live! 😘
Hi from Florida. This is Vivian. Please where did you get the yellow strap message placards.,I haven’t seen it in USA. I know exactly what you mean about parking. You are the sunshine of my day. I have a couple hacks but I’ll send later. Got big shot in shoulder yesterday. Can’t write much now. I have Fibro, severe O A and Crohns. Godbless you and feel better. Need more info about that spray.
I have linked the yellow lanyard in the description it's from Ebay! What else do you want to know about the spray? That is linked too in the description.
Hi Nicola, Thanks for all the great hacks. I am definitely getting a cup like yours. Lifting a cup of tea in one hand is getting too hard. Thanks too for reminding me about the tea tree shampoo and it's properties. Take care. xx
The cup is great and cheap too!
I have recently developed itchy scalp ,,, never associated it with fibro,, also cannot tolerate hairdresser's, apart from dry hair cut, am now 80, had fibro for over55yrs.
Wow! That's a long time with Fibro. Try the shampoo bar. Or t gel both are great.
Hey Nicola, really enjoyed watching. Would love a live anytime about meds. Take care x
No problem, I will let everyone know of course! 😉
thank you for this video!
Great information Nicola ....I have the fans that go around the neck I like it as I do not need to hold the fan. I do have or do most the hacks you mentioned but I think I will upgrade my pill box ....I like the look of yours and the fact a medicine list can be put in. I would love to see a live I'm happy with what ever is suitable for you . Thank you x
Ok, will arrange a live on a Wednesday soon! 😘
If you can use a imass to sleep at night it helps me to put just light pressure on your eyes to make it comfortable and you can sleep because there's no light coming through. And I try sometimes to use I'm white noise to help me go to sleep because then it drowns out all the other sounds
Hi, would love to see a live,regarding your medications x
Will do at some point! 😘
I’ve just bought a neowalk stick and it’s way too heavy for me too! You’re the only other person I’ve heard say this! Anyway, thanks for this video, I’m off to buy the book light now ☺️
Yes they are too heavy aren't they! Shame as they look amazing!
I've got a few stickers from amazon I put in the back window of my car saying I have a hidden disability
Yes, I used to have one in my old car, will need to get another one!
@@LordandLordettes Are you on Facebook so I can add you?
Oxybuton helps with hyperthyroidism as our GPS
You are so awesome! I truly appreciate all your hard work in making these videos. I've tried several of your suggestions and they were SO helpful.
Ah, thank you Miranda! I'm glad they help! 😘
Has anyone tried a tenns machine to help with fibro pain?
Hi 🙂. My tens machine helps so much with the pain I get from fibromyalgia. When the pain gets really bad or unbearable I pop that on for an hour & it makes a huge difference. Don't get me wrong, it doesn't completely remove the pain, but then nothing ever does. However, it still makes a huge difference & gives me such relief. Sometimes I can't sleep because the pain is so severe, but once I put my tens machine on I have passed out within 5-10 mins because my pain eased significantly. I would definitely recommend it 🙂!
Btw, my tens machine (& I think most others) has many different settings for the level of intensity, but also the type of pattern/style (for lack of a better word). I don't find all of the patterns helpful, which is fine because there is still so many that are really helpful. So if you get one & you're not loving it at first, I would encourage you to play around with the style/pattern settings & intensity to find one that suits you best. With certain areas (my wrists & forearms) it doesn't take a lot of intensity to feel it working. Other areas e.g. thighs & calves are a bit thicker & require the intensity to be increased.
Hopefully you'll be able to find the settings that work the best for you. Good luck, I don't think you'll ever regret buying one ☺️.
@@shay8364 Thank you so much for this information, I will definitely try it. Your feedback and experience is much appreciated.
I have 3 canes and a hiking stick. One of my canes has a spike attachment that I can put down on icy days, or put up when not in use. I also can't live without my heavy blanket. I watch movies when I need to get out of my head (from the pain). Arthritis gloves help with hand pain, they just give a little squeeze and make it not so bad. I thought I read that Alka Seltzer gold helps with IBS, but I haven't tried it. My friend has one of those body shaker platform things and swears it helps her pain. I've noticed lately that loud noise is really bothersome. It never was before and I wonder if it's fibro related? Anyway, thanks for the video and take care. I can watch a live whatever day you do, since I am retired now. 😜
Good idea about the ice spike on the canes! I don't have a weighted blanket as I tried Pops one but didn't like it! I definitely will look at the gloves!
A lovely blog good information and lots of hacks and good ideas
Thank you Julie! 😘
Hey Nicola,
That was a really useful fibro section but I feel almost like you have made us all complicit in cheating on the trusted notepad!
😂📒💔
All your hacks this week were very good; I really need to invest in a pretty wrist strap for my sticks as i am so clumsy! (Although I have almost perfected the art of gently stepping on the rubber stopper enough to flick the handle back up. 🙈🙈)
I am definitely going to order the pill box too. My older ones are too small (15 pills at breakfast time alone!) and the one i currently use can't split and be taken out for the day so i have to use several tiny ones... its a nuisance!
As for the fan...i bought one the first time i saw you with yours in a video during lockdown #1 and i couldn't be without it now! I take it literally everywhere with me! It has become a handbag necessity and i dont know how i managed without it for so many years. 🤷🏻♀️
One thing i have considered buying is a kettle tipper. It makes it super simple to pour water to make a cup of tea on the days i'm too shaky or my hands/wrists just wont behave. I'm a definite tea-junkie so to not have tea would be truly devastating. 😭
Also, my lanyard is a sunflower one and one side says i have hidden disabilities, the other side has my photo, a list of my disabilities, my name and contact details for my husband. That way if anything ever happens they have his number.
After having a car accident in 2020, i also realised there needs to be an up-to-date list of my illnesses, medications and any difficulties i have communicating clearly on my worst days, in the glove box!
A live with you would be amazing, i already feel like we are friends, so to have a live would be really good!
Have a great rest of the week and i'll catch up again Saturday for the weekly! Xx
P.S when you were thinking kindle/audible it was like listening to my own fibro fog!😂😂
Hi Claire! I have a Breville instant kettle where you press a button and the hot water comes out into the mug, even easier than a tip kettle! Will show you on the weekly. Just so you know, the tablet pots I listed will not be exactly the same as mine as mine are years old but as near to as I could find. See you Saturday! 😘
Hi i use a thermal mug when i struggle to grip and havea reusable plastic bottle with straw and different water bottles from asda, I have a strap for my stick and the handle looks like a ducks beak but you its good support for the hand. I also have a lanyard the sunfloower one with a M.e card and fibro one in. Hope you are ok in this heat x
Good tips! Tbh I'm struggling with my Fibro in this heat like many are I guess! 🤨
Yes tablet
On what gadget do use to listen to a a podcast whilst you are moving around?
to listen
My mobile phone!
F ibro fog
Live chat at your convenience, thumbs up and I will do my best to be there. I figured out you are 7 hours ahead of me. :)