Well, to be fair, you get experts of all kinds on RUclips, and they are focusing on one illness, in this case FMS. The doctors you see are not always experts on _this_ illness and have to try to keep up to date with a lot of conditions. RUclips undoubtedly has misinformation on fibro, too, but I think those of us who suffer from it can smell out those videos. For example, my response to this video was an instant YES. It's the first one I've seen that mentions "floating" pain, which is how mine started. Eight years in the neck, then 9 years in the arms, then ? years in the upper and mid back...
Does anyone else feel like you got hit by a train but also at the same time have the worst sunburn of your life where it hurts to the touch in certain spots?
If you really look at a person with fibro, you can see the pain and suffering and the last thing we need is anyone’s negative judgement ! So many of you who judge us would not survive a week in our shoes and if the pain doesn’t get to you the criticisms would. My advice is eliminate people judgement and focus on yourselves to find peace and continue to pray that we will find relief. Nobody can take your faith from you 🤔♥️😇
Thankyou, yes, very well said. Definately have been criticized & judged as it's "all in your head", especially as so many of us "look" healthy. Yet SO true my eyes cant hide the pain. But at 58 I'm told by many its just "part of aging" and suck it up. Fyi- I'm very anti docs as pills didnt do crap & made all worse. I swear by CBD!! Instant relief in 10mins.(anxiety too), even good for dental care! Research & avoid pills pushing docs! Clean plant based diet & Keifer truly helps too. Bam sugar & processed foods! 85% of "food" at store not good for us...and I suspect the chemicals may be a big cause for many chronic illnesses in society today. Gut health key to SO much! Docs ONLY there for PROFIT, NOT to CURE anyone!!
And after a month on CBD I can tell you NO side affects! Take as often as you need and cant OD! Versus BS fentanyl docs hooked friend on!,She went off all meds & taking control of her own health now too. Doing MUCH better off the poisons docs had her on!
My pain is from the shoulders down to my feet and it never stops, not ever. Im also suffering from mental illnesses. Sometimes i pray to die. God help us
Thank you. I thought you did a great job with the types of pain. I've been diagnosed with fibromyalgia officially since 2010. I'm pretty sure I've had it since I was a teenager. I'm 48 now. To all the other fibro warriors out the gentle hugs.
I’m 1 through to 8. The pain really wears you down and very hard to deal with. But many people don’t realise that it’s not just the pain, there are so many more symptoms that we have to live with day after, day after day, I can honestly say that in the past 5 years I have had 2 days that I felt normal.
Yes, Aussie , I absolutely agree with you 💯 % . I HAVE HAD THIS HEATH PROBLEM FOR YEARS AN , PEOPLE WHO DONOT HAVE THIS DOESNOT UNDERSTAND WHAT IT IS LIKE AN WHAT WE GO THROUGH WITH ALL THIS PAIN . 😢
@Aussie Flag Have you tried cbd oil ? I'm on quite a high dose now though you start on a low dose and build up . I couldn't be without it now . I don't know where you'd get it in Australia. I'm not sure that Amazon sell the proper stuff . Hope this will help you . Kay
@@katharinedavis4947 Thank you for your comment. It is still not legal in Australia but I have got onto some. It has made a difference. Sadly the way Australia is at the moment I haven't been able to pay the high price of the oil, sadly CBD had to go, so that bills can be paid. I can't see us improving in this country so that I can once again have a little relief .Thats life I guess. 🤷♀️😔
I just can’t stop crying. It’s like everything you said I feel. When I tell my family and friends how I feel they give me the face as here she goes again complaining. No one believes me. It’s hard to make plans because I sometimes have to break it because I’m in so much pain. I can’t go out anywhere without being in pain. Thank you for this video. I sometimes feel like I’m going crazy.
We’re thinking I might have fibro. But i fear even if that’s the case, people won’t treat me any different. They’ll still think I’m just trying to get outside of school
Fibro for 20 years. On disability. In constant pain. Some days, i feel like i have done so well to do 1 load of laundry and take a shower. After that, i am done.
I have Fibromyalgia and everything you mentioned I struggle and suffer with. I also have Sjogrens Syndrome and Interstitial cystitis. I have been badly blamed and shamed especially because I get a lot of cavities and I brush my teeth 6-8 times per day, floss a lot as well use sugar free biotene mouth rinse, spray and sugar free mints because my throat and mouth are so dry. The pain I have is extremely bad I feel like I have a horrible flu daily. Most people as well as Doctors do not understand or treat me in a respectful manor which truly makes it worse. In fact I get questioned more like interrogated like the Doctors do not believe what I am going through. It has been challenging to find a decent team of Doctors that will actually listen and care enough to do so. Thank you for this video.
You are not alone!♥️ I have those problems as well. The battle mostly is trying to explain to those around me. That effort alone seems almost worse than the condition. Stay strong. I pray for a miracle daily, and have learnt to endure and thank the very few people who do understand.🌹🙏
Your family sucks. I was diagnosed with an autoimmune diseases when I was 29. I'm 57, and they're still in denial. I've concluded they don't want to know. They don't care, which means they aren't loving people.
Insomnia, Bruxism, restless leg syndrome, getting up to pee at night, waking up from pain every time I try to shift in bed. Mornings can bring tears to my eyes.Gone are the nights when I’d be tired, crawl into bed and go, “Ahhhh,” with pleasure. I HATE going to bed at night! Thank you for your advice.
There are two things that changed my fibromyalgia. D-Ribose gets your heart pumping at it’s proper rhythm. Our hearts are failing us. They beat slower making it impossible for our bodies to be fed by all that is carried throughout each system. I also use the enzeygmatic therapy. It’s basically all the vitamins and nutrients we don’t have because of fibromyalgia. These two things have made it so I’m no longer bedridden. I was bedridden for a decade. It took time to build up my strength. I have a life now. I’ve read several books by doctors who have fibromyalgia, which has helped tremendously. This is a good video but it’s missing some of the other types of pain that we go through. Fibromyalgia is definitely a disease doctors don’t like because they can’t measure it with a specific test. For me, that says you have been educated beyond your intelligence if you can ignore such a huge amount of people with the same symptoms and are suffering. My dr won’t even say the word fibromyalgia. I have to make him take tests to show him that I truly need the meds I take. I do believe strongly thyroid problems cause fibromyalgia. I was told my thyroid tests were fine, great no thyroid problems. I forced my dr to do an ultrasound. It showed thyroid cancer. If you suspect you have fibromyalgia. Make your dr do all the thyroid tests that are available. Not just a few. Follow that up with a yearly ultrasound. Drs don’t understand this disease. We have to be our own champions.
I had my thyroid burnt out when I was 16 with radioactive iodine because of a goiter that was closing my throat. If I knew what I know now I would have never had that done but I was a minor and not very medically knowledgeable. I have had many problems with my thyroid over the years. I have had fibromyalgia for many many years now. Am totally frustrated with doctors my doctor said if I went to this specialist don’t tell them you have fibromyalgia because they don’t recognize it! I am in pain 24/7 and can’t be touched all over.
Thank you I have had this now for 17 years and it is my birthday tommorow and I will be 37. My pain would be so bad I couldn't stand myself and I tried the unthinkable but fortunately I had a friend who had been through it too and saw the signs and saved my life by calling 911. You are right there is more than 8 kinds. Not only that but to tell us this and say "work your way down" but that is easier said than done, especially when you don't say how, I just kept screaming "HOW". When Covid hit I was scared we have no immune system and I just happened to see this Dr. who was a specialist in disease control one of their top doctors and he said the best way to keep yourself safe to take these vitamins and within a month my pain had suddenly no longer had a grip of me and I am happier. I have reduced alot of my meds and I want to get off of them. For the first time my birthday won't hurt me. I hope that you can share some advice because now it's just the heat and no motivation or energy. Edit: Um OK soooo um I will be 47 lmfao every year I forget how old I am.
@@PrincesslilBB Thank you for sharing and I'm sorry we all have to deal with this horrendous disease. Would you be able to share what types of vitamins these are? Because I've tried everything and the only things that kind of work are boswellia turmeric combo. I'd love to have any of ur tips. Thanks and feel as good as you could.😊 ❤
@@jeannelange4820 I am so very sorry. I have been going to a pain clinic for a long time now and I actually have to take opiates because the pain is so bad and I have a very compassionate doctor thank God. Cannabis also helps me with my appetite and with my sleep. I wish you only the best and I hope you find some relief, somehow... Take care of yourself and God bless you.💝
The Happy WaLa Life with exercise, I believe, but for me exercise just makes the pain more unbearable, I just wanna lay in bed all the time and do nothing (even tho, by long sleeping in bed pain also appears)
Just wanted to say, I've known these types of pains, but never knew exactly how to describe them - and you've just eloquently labelled and spelt it out and given me the tools i need for my recovery. Thank you, sincerely, thank you.
omg I have struggled with fibro for years since age 18 I'm 34 and worse no one knows the Struggle unless you have it its an invisible disease and because you typically don't look sick or cripple and people judge it's like your not believed or you are labeled a complainer even doctors doubt you they think you have drug seeking behavior pain meds don't even work sometimes it's so hard it's a isolating disease you feel alienated and left out the struggle is too REAL!!!!
chloe hawkins it is so real. but you're not alone hon. we feel alone when the people around us who are supposed to love us don't understand and make us feel worse. my relationships suffered greatly and my bf rarely ever makes me smile. things are going really great in his life and I'm just a mess and I know he's tired of hearing it. im in so much pain all the time and on meds and cry all the time. i wish docs could find a cure already. too much suffering in this world.
chloe hawkins yeah I can totally relate. I had a bright future now with being diagnosed with fibromyalgia and a host of other health issues, I try and just suffer in silence. Nobody understands. Not even the doctors. This stuff has ruined my life and it's sad cause I had so much potential.
+chloe hawkins I have found that sweeteners, refined sugars, and milk make everything so much worse. Refined sugar is super bad for the brain I have found. Mild excersise helps a bit when I feel well but not too much then it will make it worse.
Chloe......I also have both kinds of arthritis to make things happier. ::sigh:: I had a horse for years, and the wear and tear on my joints has just made things much more difficult. My knees are shot, my shoulders are shot, and I got thrown in 79, and the damned orthopedist stupidly put me to bed for 4 weeks. Which made my sprained back heal all wrong. So I've had to deal with that for 39 years. But we think the Fibro started when I was 12 when I had a severe ear infection that nearly killed me. It screwed up my pain thresholds. I was in as much pain as someone who had had every single bone in their body broken would feel. I was under a morphine drip for 4 days after I was admitted. Since then every little pain is amplified.
This disease i have had for 3 years its ruined my life but i keep going i'm a single dad and every day is an intense workout for me my legs feel like lead and i'm walking through cement, ppl have accused me of faking my illness its just not physical its a mental condition as well it brings you down to your lowest in life you cant get motivated the pain can be tolerated but there are days even your prescribed drugs don't even touch the pain we just have to endure and i pray and hope one day there will be a cure, this disease is not prejudice it will attack all ages and there's nothing the doctors can do to help but hand out leaflets for the one who suffer, so to the ppl who don't have this invisible disease think before you judge because you could be next and then you will know whats it like to live with a constant dagger living inside you and stabbing you from the inside so non believers think again please this disease is complete bastard.
It's like being attacked by an evil, invisible monster !!! I bet your family members don't get it either, do they ?! I have a cousin, that lives out of state, who has it as well, and her surrounding family members don't get it either!! It's so far beyond frustrating that sometimes I just scream out loud !!! Hang in there sweetie : )
The rheumatologists here in my town do not take fibromyalgia patients, so my doctor tried to send me to a pain clinic. Unfortunately, I cannot go to another town due to inability to travel. So I'm finding what I can on youtube and google to find a solution for myself. Thank you so much for posting this. I'm learning more and more to get a better understanding.
I pretty much go through all of these types of Fibromyalgia pain 24/7. So glad you said these and make everything so clear. I have Postural Orthostatic Tachycardia Syndrome and BPD with it all. Thank you for uploading ❤️
I have fybromyalgia Iv3 been called a crazy woman . I’ve lost lost of friends Which I’m happy about as people that are selfish when your illl are not true friend Now I have friends that try and understand my day to day life so painful So much swelling My gut is just completely gone I’m not depressed I’m sad as I can’t walk more that a few minutes I can’t sleep . .... My head hurts my eyes and eyes are so painful My feet hurt ... 😢😢😢😢😢😢😢😢😢😢😢😢
,THROBBING ,STABBING AND SHOOTING PAIN IN LEGS ..PAIN SWITCHES ON AND OFF ,ALL OVER LIKE BLINKING LIGHTS ON A CHRISTMAS TREE.YES ON FLOATING PAIN,,AND ALSO CHRONIC LINGERING PAIN,AROUND OLD INJURIES(BROKEN BACK)BUT STARTED WITH A HEAD/ NECK INJURY.WHEN I WAS 39(IDIOT THRU A 40 POUND ROLL OF ROOFING FELT OFF OF ROOF AND KNOCKED ME OUT,,AINT BEEN RIGHT SINCE..I HAVE ALL 8 ,AT DIFFERENT TIMES AND SOMETIMES OVERLAPPING.SYMPTOMS..OTHER TIMES VERY SELECTIVE,,,,BUT YOURS IS THE BEST EXPLENATION ,SO FAR,OF WHAT I'M GOING THRU ...DEALING WITH IT ALMOST 13 YEARS NOW......JDA
I have just recently been given a possible diagnosis of fibromyalgia by my primary physician and physical therapist. I'm a type 1 diabetic, so I thought for most of the past 10 - 15 years that my pain and insomnia were caused by that. I was under the impression that fibromyalgia was not a real disease until I started researching it, and my symptoms exactly mirror those of fibromyalgia. You have hit the nail on the head with these different types of pain, and these types are exactly what I'm experiencing. Thanks so much for making this video, it helps me understand fibromyalgia so much more!
@ C Sheets . There are a number of tender points which have been used to diagnose fibromyalgia in the past. These can be easily found by Google, or maybe you tube. You can check yourself, you only need a few of them . Thus you will know , for yourself. K
@@csheets40 I have had it for I don't know how long, I'm 78 now and remember being ill when I had young children . It was finally diagnosed 10, 15 years ago ( the specialist used thd points system )and it's gradually got worse . I've developed coping strategies, the main way is using cbd oil for the pain, I've explained that on other replies here . I've just started on pregabalin for my sleep ( restless legs which often goes with fibromyalgia). It's made a huge difference to my sleep and my overall energy . Now I have to adjust I did far too much and crashed, so I'll have monitor my activities. Kay
Great video, my Fibro brain is rubbish... Can't remember date, times, people! It's like cloud of crapiness. I get swallowing issues too.. And dry eyes and mouth. So annoying blinking every two seconds. This is truly an awful illness. My heart goes out to those who drafted and dreamed a better life, than this crud. I want some of my life back. Pain robs you of plans, any plans and future dreams. Blessings to all xox
I agree with everything you said, it’s horrible! You’re the first one that said you have trouble swallowing. I do to, when I take pills it feels like they get stuck in my upper throat. They did an ultrasound and said...... it’s not your thyroid, well that’s nice since my thyroid was burnt out when I was 16! I have dry eyes too the medical drops sting my eyes so I just use Visine if it gets bad. I’m sorry you are going through the same crap I am. Hang in there maybe someone will find a cure soon
@@southsidecarly7427 hi Carly.. my fellow Spoonie. Have you heard of that? The Spoon Theory. I have no spoons to give out today as damp and raining and thunder makes me a barometric head pain boom! That's interesting you suffer swallowing issues too.. I choke on rice cakes, but I love them! Ryvita crispbread always gets stuck! Oh lady, I hope your eyelashes aren't hurting.. I swear my long nails hurt too, and clavicle, jaw pain. It literally drags me disc, but .....oooh, I look fine? How about hair shedding from hair line. Who knows what crap other issues Fibro brings. I do think it's a loooong list. But I look so well! Haven't slept in decade, but you look pretty. Urgh. I feel like I've died, dunno if you feel same. Covid ppl are now saying, gee, must be boring feeling trapped. Yep. You plan, your body just laughs, and laughs at your plans you Wanted to do! Are you same Carly? Blessings for pain free night, day x 🇬🇧🥵🇬🇧
@@peacefuldoves yes it is a long list! When I do go to meet with people I always try to look like I’m ok, if they only knew what I looked like most days and how I feel. Yes, I am losing my hair always finding it everywhere. My jaw hurts from constantly clenching it, I guess it’s now a habit.I haven’t slept well in years, I think it would be kind of scary how much sleep I actually get in a week! I know what you mean about planning things, I have canceled out on so many things.I actually feel like I am just hanging on by a thread( sorry about sounding so depressing) but I can’t really do hardly anything I used to do.I guess we just do the best we can and rejoice on the good days and hideout on the bad. My wish for you is that you have more good days than bad. Take care
60 medical doctors/specialists! Having had Chronic Fatigue for 30 years and been to over 60 doctors and specialists with no results I had basically learned to live with it, even alternative practitioners couldn’t help. After watching nearly all of Philip Rafferty’s videos I knew I had to do his BNT course. Philip did a BNT balance and within 5 minutes my pain went from severe pain and exhaustion to no symptoms, with energy levels up to 8 out of 10. My brain fog is gone, which had caused enormous frustration. I will be forever grateful to Philip because now I can live my life pain free. LR April 2019 I have seen similar results in over 90% of students and clients with CFS, fibromyalgia and arthritis. Philip.
All of the above and plus..... :-(. I've been battling this since I was young and still can't get anyone in my life to understand. Thanks Doc but I believe it is even more complicated then this and it has taken me a lifetime to figure it out for myself and just when I did, it changed on me :-\. I am a work in progress and it is one day at a time right now. To anyone else suffering, I say don't give up. Listen to you body and ur own innate wisdom and do whatever it takes for you to feel better and don't feel guilty. Be patient and accepting and don't be too hard on yourself. I know, I understand and I can relate. It's not easy but we are all doing the best we can with what we've got and you will be ok if you just take it easy when you have to and screw what everyone else says. I would never wish this on my worst enemy. Sending love and prayers to all who suffer. Someday we will have a cure.
Excellent video, Nic! You forgot Allodynia and Neuropathy, though. I suffer immensely from all 8 types you mentioned and the 2 types I mentioned. (However, I'm aware that I'm an incredibly severe case, unfortunately.) Thank you so much for making this video and promoting Fibro awareness. I am going to watch all your videos. Keep fighting the good fight! God Bless!
In another addition: you feel real Paint in joinst..fingers, knees, the inside hips..that excrutiating "twisting" pain that appears just suddenly and feels so hard like a punch in your guts and the pain then keeps wandering from joints to joints..fingers to hands to shoulders.. and knees so hard the legs wont keep you standing up.. and another thing..you eske up feeling 10 times MORE tired thank when u went to bed... like u never gonna catch up on sleep.. always feeling frozen and cold...
Thank you so much, sometimes people don’t believe you when you say you really can’t go somewhere. And they get angry. If you would only tell yourself you can go, you can! And that hurts us. I’m really happy to share this. I have had it for the last 32 years, and yes, it hurts!
Wow I have all 8. This was one of the best explanations of Fibromyalgia pain I have heard. Think the only one not really explained was burning pain. But overall very clear and concise. Finally someone who gets it. Loved his freeway analogy. Spot on. Nic Im going to show this video to my Dr so I can better explain my pain to him. THANK YOU!
Coming out of a flare up & I just can't stand having clothing on. My skin feels like it's on fire. The sweating gets so bad that I don't like to go anywhere. It's so embarrassing! Today my hands are swollen & sore as well.
My heart goess out to you. Look at the strength you have to continuing to look after your child. I can't even look after myself & my cat let alone another little human. My daughter told me recently to stop f..ING wingeing & stop dragging her down & won't talk to me. I'm told she loves me but that's not love. So keep fighting, your doing an amazing job by not giving in. Cheers Fromm Australia 🇦🇺🐨👍🏼😊😊😊😊😊
The floating pain accompanied with pain at back of skull is something I’ve had a lot especially if maybe I haven’t rested enough or not eaten well. I didn’t realise it was associated with the immune system! This is great thank you!!!
You forgot the one where if someone touches you it feels like getting punched in the worst bruise you’ve ever had and it kills to even clean your ears or rub your your neck 😢😭😤
My fiance is still learning about this, any cute little like hits I go "ow" (of course it doesn't take much) and he gets confused and does it to himself. LMAO I'm like, hello FIBRO skin!
this was the most informative and helpful bit on Fibromyalgia that i have ever heard. I had an amazing pain specialist who was the person who diagnosed me, unfortunately he is gone now. i have 7 of those 8 . Last year it wasn't as bad - but an additional injury can 'kick off' the whole 9 yards and it's really frustrating. to all that have commented here - hang in there - make sure you put yourself first, warm showers have helped me the most - so if i have no energy for anything - i have a shower and a bowl of soup. Plans ? - nope - stopped making them 25 years ago. people have to accept you or not. be good to yourself.
I have been diagnosed since 2000. I am so blessed to have the greatest doctor. If your doctor doesn't help you then go somewhere else. Fibro is very real.
Hi Nick, I am just starting on my journey of fibromyalgia, have not has a diagnosis yet, but everything you say in your video is like somebody understands what I'm feeling. I don't have all those symptoms but I have at least 4. Came across you by chance. I'm not crazy after all! Thanks Nick.
Also on the start of my journey. Mainly back pain knee pain shoulder and neck pain all at the same time. Constant tiredness and low mood. Had all this since at least 2018.
Very thorough description of this nightmare chronic illness. You hit all of them on the NOSE! Thank you for bringing this awareness in the forefront of suffering. I couldn't wish it on my worst enemy.
I have all 8, and it's impacted on every part of my life. I struggle every day to do the most basic things, and even showering is so exhausting, and painful, that some days it's just impossible. It's a struggle to keep going, and for people who don't have it, it's impossible for them to understand 😢
Goodness! Yes, I am recognizing all 8 of these symptoms, but have had fibromyalgia for many years. After being diagnosed over 20 years ago I know I’d been battling it for years prior to the diagnosis. Having gone through 2 rollover auto accidents I miraculously survived with mostly minor damage , that is except for sending me into major fibromyalgia flare-ups, relentless muscle spasms, and one broken and split collar bone. I have been extremely blessed with a family who is so supportive and understanding. I know some are not so fortunate and I think it’s a lot because the way fibromyalgia pain ravages your body isn’t visible. Also, I have a precious prayer group of ladies who all deal with pain that always understand when you ask for prayer or just need to “talk”.
@Kay Butcher Have you tried cbd oil ? I feel sure God put it on this earth to help us with pain. He doesn't always heal but He is with us in our pains and has put many plants on the earth for our healing . If you are in GB Holland and Barrett sell it and advise about dosage . God bless you and your prayer group. Kay
@@kaybutcher5719 I'm so sorry. How long did you try , you can take up to at least 1800mgs I believe. Also what make ? I've bought stuff on amazon which didn't work at all . I'll continue to pray you get help, one way or another. Have you ever had supernatural healing from the Holy Spirit ? God bless you , lovd Kay
I have almost all of these. I am on high dose meds to sleep and starting to wake up in the middle of the night anyway. Thank you for breaking it down. Its often hard to explain to people how I am with Fybromyalgia and why certain things are hard.
I have all 8 plus much much more. Thanks for recognising all our problems. For me the realisation was that it's a viscous circle of feeling better then the shock of feeling bad again, it took me a long long time to realise this. I was diagnosed in 2011 and have just battled on as much as I can.
Thanks. I experience the full moon. It’s awful. Along with storms coming. I’m now end stage COPD. I live everyday the best I can and the rest is up to God.
This affirmation has helped me so much. After my father calling me a hypochondriac for most of my life, videos such as these give me peace that I’ve been seeking for decades
Thank you so very much! I've got all 8, and this just confirms what I've known for years, despite having been blown off by 85% of the docs I've been to. Now I know I'm not crazy, and that is priceless!
Your explanation of FM is so spot on. I was diagnosed with FM, chronic pain syndrome and Rheumatoid Arthritis over 30 years ago. I have explained it as like flu symptoms all over your body. I see a rheumatologist and pain doctor for years. The pressure points in your body are a constant problem. Many times my skin is sensitive to any touching. Hard to take a shower as it hurts so much. I have pain pills. Recently started taking Gabapentin for shingles. It seems to help the fibro pain. I do stretching exercises in the morning. I suggest you find a good rheumatologist and pain clinic. There are different methods used to distractic you from obsessing about the pain. A therapist can help. There are homeopathic treatments. My role at this time is to reduce the amount of Norco I am taking. Currently I am prescribed 3 which is down from 6. Sorry for the long comments. God bless everyone.
Thank you! This is illuminating. Now, almost 50 years since I suspect my fibro began, and 40 years since it got crazy, and 32 years after diagnosis, I have been wondering if I'm in a flare - but I'm 69 and so many other things could be causing my symptoms that I'll probably never know. One thing I did _not_ know is that fibro could cause brittle nails - I'm having a terrible problem there (splitting, peeling at edges, breaking below the quick). In spite of taking two meds for anxiety and two meds for sleep, I'm having trouble getting to and staying asleep. I ache with the weather (there is some arthritis, but not in ALL the places that hurt). But... big but... I'm already taking duloxetine (as an antidepressant), and just had the dose raised because of worsening depression, so there's nothing more to be done via medication. Anyway... your "knots" analogy is helpful to look over the past 50 years and see how those knots have changed with time. It's more difficult to look at today because, again, I'm 69, diabetic, have a balance disorder, lactose intolerant, a knee replacement, etc., etc. ... very hard to judge, and I am SO SICK OF DOCTORS! I will watch this video again to see what flew by me. Thanks again.
I wish that EVERYONE would watch this so that it could be better understood. I pretty much also suffer with all of these things. It would be nice for everyone around us to be able to understand what all we go through. It affects us in SO many ways. Thank you for sharing this with us. Very well done for sure!
Your descriptions of fibromyalgia pain is spot on. Thanks for doing the video. As for everyone here battling with fibromyalgia, you’re not alone! Tip: I recently changed to a Ketogenic Diet which has helped me loose weight and dramatically decreased my pain while improving my energy level allowing me to be more active. It’s definitely something worth looking into.
Wow, I got all of them, jumping from one to the other. Visiting the doctor, explaining new symptoms, and now I finally watch a video that explains all these symptoms. Thanks :). I made a few videos about fibromyalgia as well - as an experience expert unfortunately. Cycling and swimming helps me a lot, and a gluten-free diet.
I've had fibromyalgia for eight years after a life changing car accident. I struggled so much and didn't want to accept this. I was so healthy and happy before .After trying so many different medications (not wanting too) knowing my body is sensitive to everything I tried as my doctor said why not it might help. Unfortunately after 7 years of trying different meds. The triptaline meds.ended up killing my heart. So now I have heart failure. But I find I have found some strength within me to go on a journey of healthy eating no medication.(,only heart meds to live) And meditation and getting rid of toxic people in my life. Which after 1 year of that has changed my life tremendously. I pray for all the fibro warriors ❤ never give up. And the way I see it. I have my life and I'm grateful for that. I pace myself and luckily I have great doctor and family and son. That love me. I'm just glad I never gave up. Pain haunts me every day but I see now that I won't die from the pain. I have to do the best I can to live with it. And if that's not doing things or going places so be it. It sucks. But I'm grateful for life. 😊
I am almost 75 yrs. old & have all 8 symptoms, but had no idea they were due to fibromyalgia. I thought I was “falling apart” due to mysterious ailments/problems. Thank you so much for explaining all this. However, I felt a bit like I was left hanging because you advised working on one symptom at a time, but you didn’t say how to do that or specifically what you meant by that.
THANK YOU BEAUTIFUL PERSON! You have given me the words to easily explain to my husband just what exactly I am juggling ... very hard to describe some of this. Much appreciation.. wish you were my Doctor!!💜
Thank you so much for posting this video. I unfortunately suffer from all 8 types, no one has ever explained fibromyalgia pain like this before and it really helped me! Thank you. I look forward to seeing more of your videos! 😊👍
sometimes it's comes from the shock to your body system. I was working too much. 10-12 hour days standing all day with continues repetitive factory like work for months to years. My feet hurt, my legs and thighs were burning and going numb from the pressure of standing for long hours. I ended up getting a bulging disc in my back. Neck issues. I was so depressed, stressed, and so unhappy. I worked in such a toxic work environment. I had joint pain all over. Bursitis and tendinitis in my shoulders. Arthritis , Trigger fingers, and plantar fascitis on my feet. My doctor told me to get out cause this is what messed me up. This job choice was the biggest mistake of my life!
Yes! My husband and I had 3 children and then became foster parents. We ended up adopting 7 children from the system. They had special needs like cerebral palsy, PTSD, RAD, FAS, and LD. The stress wore me down and I was diagnosed 3 years ago at age 50.
Just got diagnosed at the age of 23 and I'm currently working a factory job on the floor of a meat packing plant. I couldn't agree more about the leg pain, I go home and just cry because my legs and my back hurt so badly. I need to get out as soon as I can.
I have been getting type 6&7 in my torso and 8 in my extremities. I never understood how I could be sweating and my legs feel like blocks of ice. I’ve had all of these but I worked on my IBS a lot but now I have PCOS and can’t digest my food again. Even though I eat a lot of fibre! But I’m glad that my pain levels are not keeping me in bed anymore. The tension in the back of the neck/head was really interesting to me as mine tends to go numb. Thanks for this video, it was really helpful!
you are 100% correct. i have all those symptoms. When I dont move for a long period of time. all my muscles hurts. and the bowel movements are horrible. those bloating are awful.
Have all of these at different times. I’ve had it for almost 30 years so I’ve experienced all of these. The other commenters are right, more information from RUclips than I ever been told by healthcare provider. I know this is an old video but thank you so much.
Nic, thank you so much for this. Aged 33 (currently) I can tell you that I have all of the symptoms that you mention (and more) and life has become a genuine nightmare for me (used to be known as "duracell Monika"...) I can hardly move, no sleep whatsoever, one hospitalisation after another, thousands of pounds spent on all doctors and treatments possible and only worse pain (having gone through hell and humiliation in Polish public hospitals). Thank you for spreading the awareness about this painful condition. I myself literally found out about it merely a week ago.... you have no idea how it feels to watch your video and feel like someone basically wrote up a summary of one's (MINE) life and pain... it's surreal and comforting at the same time. Thanks again.
I have fibromyalgia I really appreciate you and others making these videos you've describe me exactly it's really difficult trying to explain my condition to people I have 1-8 thank you for explaining this the back of my neck and shoulders feels like I'm being stabbed with needles or knives that's the worst of my pain I have pain all over I'm always uncomfortable because I physically don't look like anything is wrong people don't take me serious it's really frustrating
Omg!! I had to start doing that over the summer and I found it's the only thing that works to help me get to sleep and stay asleep! I didn't know what was happening to me! Thank God I found this channel. I sat all day crying today. I got two weeks sick leave from work bc of the pain. I can barely get out of bed in the mornings sometimes and it's making me so depressed, I'm feeling like my life is over
Shelley Gibson You tube meditations help me sleep, try different ones until you find one that suits you. I don’t have Fibro fog the morning after but I use headphones, not comfortable to sleep in, causes neck pain to flair up but at least my brain works and I have more energy for the day. I’m in UK, took 2 years to see a Rheumatologist, another 6 months to be told ‘good news, you don’t have Fibro.’ I said ‘but I still have all the symptoms, now what do I do?!’ I use health supplements, very careful about what I put in my body and how I use it (not abuse it).
I am so very Grateful your video showed up in my feed. Three plus decades of fibro and did not know some of the correlations! I can't tell you how many times I've done simple exercises only to be left in extreme pain days following. Before fibro I lifted weights regularly, it really saddens me. It seems nothing I try helps the ibs and weight gain, but you have given me hope with this video. Again, Thank You! ❤️
Wendy Kennison Oh Wendy i know how you feel. I was diagnosed. about 10 years ago with fibro. Im no closer today trying to find relief to pain as i was 10 yrs ago. To me, its worse than the physical pain is knowing that everyone around you does not understand. Then you get those little patronizing smiles or words and then quickly the subject is changed, you know what i mean. Bless you Wendy, i hope you can find relief if you do, throw a little my way😊
Aqafit is essential. I have clawed my way back from excruciating pain in my lower back, chest, knees, feet, neck and so on. These trigger point flares need to be stretched and gently exercised. It hurts to walk or sit. I get it. Fatigue and nausea are there every morning until late afternoon. I bought a new mattress that helped, too but I had to get my pain under control. I don't sit directly on my butt. I have a lazy girl rocker chair that I tilt back and put my feet up. It takes pressure off the back trigger points. I find drugs are useless except for a couple of pain killers per day. Get an overnight sleep study done. You can't have FM without a sleep disorder. All stess and deadlines must go including toxic relationships. It took me over 10 years to get pain and confusion under control. I work hard but most days, I don't care if I get dressed. I push myself around noon, never sooner. Being overweight is about the biggest blow as it adds pressure to the trigger points. I am nauseated every day until after 4 pm. Fibro fog was a big fight. I write better than I talk and I don't answer questions without feeling stressed out. I stay in a noise free, easy lights, no bad smell environment as much as I can. Good luck.
I'm 73 and had the first "Knot" at 20. I was 50 when I saw a news show (Prime Time?) about Fibromyalgia - first I'd ever heard of it, and I realized that the numerous physical symptoms I'd already experienced for 30 years were one thing, which had a name!! I've never consulted a doctor about it, but have developed my own methods of relief, which make it bearable most days. Still have issues, all but types 6 and 7 on the Nic Baker scale. On the mental health side, I wrestled and grappled with, begged, pleaded and prayed for relief from depression for many years, a single mom with four kids, meaning I got up and went to work every day no matter what. I am so grateful to have eventually gotten out of that darkness, and have been a happier soul since the mid-90s. Thank you so much for this excellent descriptive video, I loved the analogies, and I will be sending the link to my close friends and family. They know, but do not truly understand. This will help. 💜
I am in my forties and have suffered with Fibromyalgia and CFS since my early early twenties. I have suffered every day. What is working for me right now is Tramadol and Provigil. The tram keeps the pain at bay (doesn’t get rid of it completely but I will take what I can get) and the provigil has been a game changer for keeping me awake, alert, and active during the day. It has been life changing to battle the constant brain fog. Gut health is important. I take Glucomannan NOW Supplements everyday an hour before a meal and every night I take a half dose of Magnesi-Om from Moon Juice. They work together to keep my gut regular. These four things together have given me back my life. I thank God for them everyday. I am sorry for all of us that suffer everyday, but I hope this can help someone. Finding a good doctor is essential.
You're stronger than you think. You don't need to rely on anyone or anything. Find strength within yourself because that's the only reliable source, especially for us fibro patients who have no answers.
I have so much pain and the doctors will not prescribe pain meds. I wouldn't need them all the time but when I need some, I really need it. I do mostly healthy things ,rarely stray. What is wrong with Healthcare? Because they can't see the pain, it's not there??? This guy really describes Fibro and understands the symptoms.
I have ALL OF THEM. Of course, I'm 51 so been "waiting" for menopause. Then, I've also been diagnosed with over 80 different things in my adulthood. Let alone, at age 12, I was in the ER with "growing pains" and the docs said I would most likely develop problems as an adult. This was 1978 though so we hadn't even heard of Fibromyalgia. Then, been to almost every type of specialist available to the average public like myself. Just wanted to put my deal out here to see how many others are like me. Pain free hugs to you all💜
Snap, I was 3 when I was in bed due to severe leg pains , told it was growing pains!!! I then spent between 11-21 in and out of casualty with 26 fractures, called clumsy! All was fine till age 34 when I had a near fatal car accident. So many injuries. 10 years after diagnosed with fibromyalagia. Hit all 8 . thanks for video which I'm sending to family for them to understand .
lmao the growing pain thing got to me... Im laughing at myself and my youth as for YEARS even into my late 20`s I STILL believed I had growing pains as that was what I was told... pfft Im now 50 and its a standing joke with my kids when they see Im having a very bad day they say Mums got gowing pains today lol so true. I was diagnosed at 29 following a hospital stay for chickenpox pneumonia which almost got me BUT I survived it but couldnt get myself back afterward. Was told I had copd, fibromyalgia and RA as a result of the pox, it had destroyed my whole body internally, nearly lost my sight too . The doc said, it was like being in a high speed collision thats the kind of impact that can bring fibro on. Ive never been the same since. Every day is a struggle and an ongoing fight to get through it with some dignity. Doc told me look stop beating yourself up just try to do at least one thing a day and go from there even if that one thing is just getting up and dressed or having a shower. That way of thinking has really helped me to deal. Sending huge gentle healing hugs to you all. xo🌹
I was diagnosed with fibro 40 years ago and have worked my way thru most of the drugs, supplements, and non medical therapies (chiropractor, massage, acupuncture). I have most of the symptoms listed here but finally settled on tramadol, Flexiril and gabapentin to lower pain and water aerobics to keep me moving. I’m convinced giving in to the pain and laying on the couch all day is the worst thing you can do. I never found any supplements that made a difference, special diets didn’t help, and anyone that not a rheumatologist or neurologist that says their plan can cure you is just out to take your money.
Wow it’s like I always feel like I can’t explain how I feel and he is naming all of them but left a few out 😢 I get so sick of not feeling good and being in pain every day 🤦♀️😢 i want to be fixed so bad
Okay, please hear me out. I need someone to talk too. When I wake up my enitre body hurts. Through out the day the pain is durable. I just learned to just deal with it but, it's getting harder everyday. My joints my feet my jaw my neck you name it. No swelling so I just don't want to go to the doctor. They might think im crazy. I have a constant headache. Im always irritated. My jaw clenches even when I loosen it. Regardless if Im awake or asleep. I can't sleep. When I try to sleep My body aches. I have so much anxiety confusion. I'm always tired like all kinds of tired. I'm tired in ways i never thought tired existed. My mind blanks on me randomly. At work I'm just jumbling up stuff. I take regular tylenol it's like it doesn't do anything. It's like chewing a mint. I walk every day for atleast 2 hours because I heard being sendentary makes things a lot worse. I am truly depressed. My periods are awful. My bowels are either constipated or I have diarrhea. Gassy. I'm ruining my relationship with my boyfriend. I'm not the person he met 4 years ago. Idk what's happening to me. Is it worth going to the doctor?
@@boringnames6920 u r the first person who has repeated the words I say about myself and NOT ONE PERSON understands &/or believes me. Wow, I understand what ur saying but I have not been successful in finding a doctor or action plan to give me any relief. I gave up as it's more stressful when another doctor fails me. My family all puts me down and they will actually tell me I'm a disgrace to my dad who has passed away... All because slowly I lost the ability to function as I did b4. My pain has been a source of my depression but I think my family, and the fact that I have had to distance myself from them all, has caused my depression to increase beyond belief. I hope the best for u 😘
@@boringnames6920 Unfortunately there is no study to diagnose Fibromyalgia, that's why many doctors don't know how to diagnose it and they think that we are crazy, but don't give up. Go to a rheumatologist and ask him to do pain tests for fibromyalgia. Tylenol is not enough to relieve pain, you need medications to suppress the nervous system, such as Gabapentin or some antidepressant. With that and doing yoga you will feel better in a couple of months 😀👍
@@boringnames6920 have you had boos work done, not saying this is the only thing that may be wrong. You may be deficient in Vitamin B12. Or D. Start taking megadoses of it and see how you feel and get your blood work done. I was so lose in B12 I had to take shots for 6 months. I feel the difference now.
I was diagnosed in 1991 with a 'classic case' of Fibromyalgia where the doctor tested all 18 pressure points to give me this true diagnoses. Everything you talk about is related to Fibromyalgia at one time or another. I ended up in bed and in a wheel chair in 1995 but after two years I was able to walk. Many times was taken to hospital by ambulance and at that time doctors thought it was in my head. There are many doctors who claim they can diagnose this disease (it is a disease - Copenhagen declaration), but only a qualified doctor of Rheumatology and Internal Medicine can give a patient an honest diagnosis. Keeping a positive attitude, not overreacting and not over medicating oneself is key to having a better quality of life. Thanks for your video.
lulu M B4 U we're diagnosed with fibro, Did you take Antibiotics for anything..think back, dental work, uti, surgery or at a hospital stay in an IV within 5 months of the onset of pain? Do U have acid reflux or a swelling of what people describe as their 'stomach' crave sweets? I'm not a Doctor & don't sell anything. You may ask your doc for a couple of tests that might be a clue to treating the cause, not the symptoms. Just trying to pay it forward.
Chris Penn I did take antibiotics due to a surgery , I usually have reflux but I usually feel the heart beats in my throt sorryy for my English! The pain increase when I get scared or nerves or Cold
lulu M Look up Antibiotic Syndrome and Fibromyalgia! Also search "Upper Intestinal Bacteria Overgrowth" Stay on the MD sites or A Licensed Nutritionist in Digestive Disorders. The Upper Intestines should not have "Bad Bacteria" but when it does, (caused by Antibiotics killing the good flora) it develops into microscopic breakdowns in your intestines, this goes into your bloodstream, Leaky Gut, is now recognized by Doctors & Dangerous. It literally causes autoimmune disorders, #1 being Fibromyalgia. Also & often with Chronic Fatigue & Hypothyroidism. Irritable Bowl Syndrome, etc. RUclips or google -Gut Health or 60% Of Your Immune System Is In Your Intestines, Your Intestines have their own brain-Google It, its true. You could be at a Toxic level. Don't take any antacids. They make it worse. If you drink 2 teaspoons of Braggs: Organic Apple Cider Vinegar, (every store has it) it's with the "Mother", cloudy at the bottom. Shake it really well & put a couple of teaspoons with distilled water about 5 oz.---the indigestion/acid reflux will go away immediately! You probably have allot of sinus/allergies, this will clear that up too..I mean FAST. I mix 2-3 tablespoons to 5oz. Of water. Braggs is live good bacteria(Flora). It is also anti fungus. In other words, Probiotics are useless & Expensive & Dead by the time they hit the shelf- Remember this- Braggs is a Probiotic! That's a small part. If you are written a prescription by your doctor for a Nutritionist-SPECIALIST IN DIGESTIVE DISORDERS, Insurance will pay. I know what I'm talking about. You have to do your due diligence & stay off the RUclips & google sites for homeopathy! This is a Toxin, by the time it hits your immune system to cause Fibromyalgia that is in your blood! Your good bacteria should be 80% to 20% bad bacteria. Let me know if you need steering. Stay on medical sites! The pain you are in is not necessary! You are not absorbing vitamins. 🙏🏻 I'm here & I'm right.
lulu M don't know why my second reply has some lines crossed thru. See if you can still read. It's all important. Take a screen shot so you can refer back to the recommended searches!
Excellent informative video. I have had fibromyalgia 34 years and all the other really horrendous health issues. Thank you so much from Armagh in Northern Ireland.🇮🇪💚🇮🇪
Why am I learning more about my illness from a RUclips video than any healthcare provider I've seen combined.
Ditto
You are right about that my doctor is awful!
DanaHeibai because in America we value fast food more than high quality affordable healthcare
DanaHeibai me too 🥴☹️
Well, to be fair, you get experts of all kinds on RUclips, and they are focusing on one illness, in this case FMS. The doctors you see are not always experts on _this_ illness and have to try to keep up to date with a lot of conditions. RUclips undoubtedly has misinformation on fibro, too, but I think those of us who suffer from it can smell out those videos. For example, my response to this video was an instant YES. It's the first one I've seen that mentions "floating" pain, which is how mine started. Eight years in the neck, then 9 years in the arms, then ? years in the upper and mid back...
I am 1 through 8 sometimes in 1 day. So frustrating. I was diagnosed in 1996. I am now 54. Gentle hugs to my fellow warriors.💜
I'm newly diagnosed but it's not new - I was on the waiting list to see the specialist who diagnosed me for three years 💜
Does anyone else feel like you got hit by a train but also at the same time have the worst sunburn of your life where it hurts to the touch in certain spots?
Yes. I use the "sunburn" description a lot.
Yes, the description I use is that I feel like a truck hit me xD
I describe it like hit by a bus while having the flu.
@@eastonfmly good description
Late reply, but yes - especially to the being hit by a train part.
If you really look at a person with fibro, you can see the pain and suffering and the last thing we need is anyone’s negative judgement ! So many of you who judge us would not survive a week in our shoes and if the pain doesn’t get to you the criticisms would. My advice is eliminate people judgement and focus on yourselves to find peace and continue to pray that we will find relief. Nobody can take your faith from you 🤔♥️😇
Very well said!
Thankyou, yes, very well said. Definately have been criticized & judged as it's "all in your head", especially as so many of us "look" healthy. Yet SO true my eyes cant hide the pain. But at 58 I'm told by many its just "part of aging" and suck it up.
Fyi- I'm very anti docs as pills didnt do crap & made all worse. I swear by CBD!! Instant relief in 10mins.(anxiety too), even good for dental care! Research & avoid pills pushing docs! Clean plant based diet & Keifer truly helps too. Bam sugar & processed foods! 85% of "food" at store not good for us...and I suspect the chemicals may be a big cause for many chronic illnesses in society today. Gut health key to SO much! Docs ONLY there for PROFIT, NOT to CURE anyone!!
And after a month on CBD I can tell you NO side affects! Take as often as you need and cant OD! Versus BS fentanyl docs hooked friend on!,She went off all meds & taking control of her own health now too. Doing MUCH better off the poisons docs had her on!
My pain is from the shoulders down to my feet and it never stops, not ever. Im also suffering from mental illnesses. Sometimes i pray to die. God help us
If you are interested of getting remedy to your problem Fibromyalgia contact Dr sebi on whatsapp +19162296471
Thank you. I thought you did a great job with the types of pain. I've been diagnosed with fibromyalgia officially since 2010. I'm pretty sure I've had it since I was a teenager. I'm 48 now. To all the other fibro warriors out the gentle hugs.
THANKS
💜
💜
💜💜💜
Sending gentle hugs your way. I have had Fibromyalgia since 1992 and I'm going to be 66 next month. I'm telling you this video helped me to.
You've taught me more about fibromyalgia pain than any of my doctors have in the last 7 years.
I’m 1 through to 8.
The pain really wears you down and very hard to deal with.
But many people don’t realise that it’s not just the pain, there are so many more symptoms that we have to live with day after, day after day, I can honestly say that in the past 5 years I have had 2 days that I felt normal.
Me too!
Yes, Aussie , I absolutely agree with you 💯 % . I HAVE HAD THIS HEATH PROBLEM FOR YEARS AN , PEOPLE WHO DONOT HAVE THIS DOESNOT UNDERSTAND WHAT IT IS LIKE AN WHAT WE GO THROUGH WITH ALL THIS PAIN . 😢
@@janicenichols3707
True, my children don't even get it, let alone friends. 🤦♀️
All the best 🙏
@Aussie Flag Have you tried cbd oil ? I'm on quite a high dose now though you start on a low dose and build up . I couldn't be without it now . I don't know where you'd get it in Australia. I'm not sure that Amazon sell the proper stuff .
Hope this will help you . Kay
@@katharinedavis4947
Thank you for your comment.
It is still not legal in Australia but I have got onto some. It has made a difference. Sadly the way Australia is at the moment I haven't been able to pay the high price of the oil, sadly CBD had to go, so that bills can be paid.
I can't see us improving in this country so that I can once again have a little relief .Thats life I guess. 🤷♀️😔
I just can’t stop crying. It’s like everything you said I feel. When I tell my family and friends how I feel they give me the face as here she goes again complaining. No one believes me. It’s hard to make plans because I sometimes have to break it because I’m in so much pain. I can’t go out anywhere without being in pain. Thank you for this video. I sometimes feel like I’m going crazy.
❤️.
Same it worst when your loves one don’t believe you
We’re thinking I might have fibro. But i fear even if that’s the case, people won’t treat me any different. They’ll still think I’m just trying to get outside of school
Hows ur neck pain?
I did that all through t
My kids younger years. I slept and cried. I’m so fed up with the lack of care ie. meds for pain.
Fibro for 20 years. On disability. In constant pain. Some days, i feel like i have done so well to do 1 load of laundry and take a shower. After that, i am done.
Me for 32 years, but still working. Only three days thankfully.
Me too. ☹️
Same!
Ditto ditto!!!
Me also.
I’m very lucky to have a husband who understands and helps me in so many ways
Me too.
Me too
You guys are lucky .best wishes .
I do nt have any body.
Yes you are. My husband doesn’t understand at all. He gets mad because I moan in my sleep.
You are seriously blessed. Mine says it's all in my head...should shake it off and just go on
I have Fibromyalgia and everything you mentioned I struggle and suffer with. I also have Sjogrens Syndrome and Interstitial cystitis. I have been badly blamed and shamed especially because I get a lot of cavities and I brush my teeth 6-8 times per day, floss a lot as well use sugar free biotene mouth rinse, spray and sugar free mints because my throat and mouth are so dry. The pain I have is extremely bad I feel like I have a horrible flu daily. Most people as well as Doctors do not understand or treat me in a respectful manor which truly makes it worse. In fact I get questioned more like interrogated like the Doctors do not believe what I am going through. It has been challenging to find a decent team of Doctors that will actually listen and care enough to do so. Thank you for this video.
You are not alone!♥️ I have those problems as well. The battle mostly is trying to explain to those around me. That effort alone seems almost worse than the condition. Stay strong. I pray for a miracle daily, and have learnt to endure and thank the very few people who do understand.🌹🙏
What's sad is that my family doesn't understand what i'm going through, they think it's all in my mind.. . I wish it was just in my mind.
Me too😥
I am sorry your family is so un-understanding. Don’t we just wish it was all in our minds? Praying you well. Stay safe.
Your family sucks. I was diagnosed with an autoimmune diseases when I was 29. I'm 57, and they're still in denial. I've concluded they don't want to know. They don't care, which means they aren't loving people.
Sorry your family doesn’t understand what your going thru. God bless you
It’s my husband’s family that doesn’t believe the pain I’m in
Insomnia, Bruxism, restless leg syndrome, getting up to pee at night, waking up from pain every time I try to shift in bed. Mornings can bring tears to my eyes.Gone are the nights when I’d be tired, crawl into bed and go, “Ahhhh,” with pleasure. I HATE going to bed at night! Thank you for your advice.
Oh my goodness!! How are you? This is 3 yrs old, but I just read your comment on fibro! I think we are the same person!
I have really bad
Same
Me too! Exactly that. 😪
@@ursamagickmt672 me too! And nobody, but nobody understands!!!
There are two things that changed my fibromyalgia. D-Ribose gets your heart pumping at it’s proper rhythm. Our hearts are failing us. They beat slower making it impossible for our bodies to be fed by all that is carried throughout each system. I also use the enzeygmatic therapy. It’s basically all the vitamins and nutrients we don’t have because of fibromyalgia. These two things have made it so I’m no longer bedridden. I was bedridden for a decade. It took time to build up my strength. I have a life now. I’ve read several books by doctors who have fibromyalgia, which has helped tremendously. This is a good video but it’s missing some of the other types of pain that we go through. Fibromyalgia is definitely a disease doctors don’t like because they can’t measure it with a specific test. For me, that says you have been educated beyond your intelligence if you can ignore such a huge amount of people with the same symptoms and are suffering. My dr won’t even say the word fibromyalgia. I have to make him take tests to show him that I truly need the meds I take. I do believe strongly thyroid problems cause fibromyalgia. I was told my thyroid tests were fine, great no thyroid problems. I forced my dr to do an ultrasound. It showed thyroid cancer. If you suspect you have fibromyalgia. Make your dr do all the thyroid tests that are available. Not just a few. Follow that up with a yearly ultrasound. Drs don’t understand this disease. We have to be our own champions.
I had my thyroid burnt out when I was 16 with radioactive iodine because of a goiter that was closing my throat. If I knew what I know now I would have never had that done but I was a minor and not very medically knowledgeable. I have had many problems with my thyroid over the years. I have had fibromyalgia for many many years now. Am totally frustrated with doctors my doctor said if I went to this specialist don’t tell them you have fibromyalgia because they don’t recognize it! I am in pain 24/7 and can’t be touched all over.
Thank you I have had this now for 17 years and it is my birthday tommorow and I will be 37. My pain would be so bad I couldn't stand myself and I tried the unthinkable but fortunately I had a friend who had been through it too and saw the signs and saved my life by calling 911. You are right there is more than 8 kinds. Not only that but to tell us this and say "work your way down" but that is easier said than done, especially when you don't say how, I just kept screaming "HOW". When Covid hit I was scared we have no immune system and I just happened to see this Dr. who was a specialist in disease control one of their top doctors and he said the best way to keep yourself safe to take these vitamins and within a month my pain had suddenly no longer had a grip of me and I am happier. I have reduced alot of my meds and I want to get off of them. For the first time my birthday won't hurt me. I hope that you can share some advice because now it's just the heat and no motivation or energy.
Edit: Um OK soooo um I will be 47 lmfao every year I forget how old I am.
@@PrincesslilBB Thank you for sharing and I'm sorry we all have to deal with this horrendous disease. Would you be able to share what types of vitamins these are? Because I've tried everything and the only things that kind of work are boswellia turmeric combo. I'd love to have any of ur tips. Thanks and feel as good as you could.😊 ❤
@@PrincesslilBB what are these vitamins you are talking about please share the name
@@frankcoleman8421 It was a list that I got from the CDC when the Covid hit.
Vit B12
Vit C
Zinc
Omega 3
Selenium
Calcium and Magnesium
D3
I have chronic fatigue too. Sometimes it's so intense that I experience it as pain.
B1
"I Feel Like I'm Going to Die" pain.
cannabis, helps
@@joyg37 i tried that and gave me panic attacks, it affects people different though, im in agony and totally bed ridden
How about "I feel like I wanna die" syndrome!!!!
Mine is more like I want to die pain.....sometimes.
@@jeannelange4820 I am so very sorry. I have been going to a pain clinic for a long time now and I actually have to take opiates because the pain is so bad and I have a very compassionate doctor thank God. Cannabis also helps me with my appetite and with my sleep. I wish you only the best and I hope you find some relief, somehow... Take care of yourself and God bless you.💝
Dude you just made my day!!! I had this for 30 years n NOONE has described Fibro like this!!!! I have all 8!!!!
How ill you are! Well done.
30 yeary no treatment ?
People there is no cure. Only treatments that you can try but may not work!!!!
how u cure fibromylagia???
The Happy WaLa Life with exercise, I believe, but for me exercise just makes the pain more unbearable, I just wanna lay in bed all the time and do nothing (even tho, by long sleeping in bed pain also appears)
Holy crap the floating pain is literally what I’ve been feeling, especially with the stiff neck and shoulders and the headache bit. This is a godsend.
This made me cry. Im on my journey of finding out whats wrong with me and 6/8 of these are consistent with whats going on. thank you for this video
Just wanted to say, I've known these types of pains, but never knew exactly how to describe them - and you've just eloquently labelled and spelt it out and given me the tools i need for my recovery. Thank you, sincerely, thank you.
omg I have struggled with fibro for years since age 18 I'm 34 and worse no one knows the Struggle unless you have it its an invisible disease and because you typically don't look sick or cripple and people judge it's like your not believed or you are labeled a complainer even doctors doubt you they think you have drug seeking behavior pain meds don't even work sometimes it's so hard it's a isolating disease you feel alienated and left out the struggle is too REAL!!!!
chloe hawkins it is so real. but you're not alone hon. we feel alone when the people around us who are supposed to love us don't understand and make us feel worse. my relationships suffered greatly and my bf rarely ever makes me smile. things are going really great in his life and I'm just a mess and I know he's tired of hearing it. im in so much pain all the time and on meds and cry all the time. i wish docs could find a cure already. too much suffering in this world.
chloe hawkins yeah I can totally relate. I had a bright future now with being diagnosed with fibromyalgia and a host of other health issues, I try and just suffer in silence. Nobody understands. Not even the doctors. This stuff has ruined my life and it's sad cause I had so much potential.
+chloe hawkins I have found that sweeteners, refined sugars, and milk make everything so much worse. Refined sugar is super bad for the brain I have found. Mild excersise helps a bit when I feel well but not too much then it will make it worse.
chloe hawkin
Chloe......I also have both kinds of arthritis to make things happier. ::sigh:: I had a horse for years, and the wear and tear on my joints has just made things much more difficult. My knees are shot, my shoulders are shot, and I got thrown in 79, and the damned orthopedist stupidly put me to bed for 4 weeks. Which made my sprained back heal all wrong. So I've had to deal with that for 39 years. But we think the Fibro started when I was 12 when I had a severe ear infection that nearly killed me. It screwed up my pain thresholds. I was in as much pain as someone who had had every single bone in their body broken would feel. I was under a morphine drip for 4 days after I was admitted. Since then every little pain is amplified.
This disease i have had for 3 years its ruined my life but i keep going i'm a single dad and every day is an intense workout for me my legs feel like lead and i'm walking through cement, ppl have accused me of faking my illness its just not physical its a mental condition as well it brings you down to your lowest in life you cant get motivated the pain can be tolerated but there are days even your prescribed drugs don't even touch the pain we just have to endure and i pray and hope one day there will be a cure, this disease is not prejudice it will attack all ages and there's nothing the doctors can do to help but hand out leaflets for the one who suffer, so to the ppl who don't have this invisible disease think before you judge because you could be next and then you will know whats it like to live with a constant dagger living inside you and stabbing you from the inside so non believers think again please this disease is complete bastard.
Hey I've been drinking cinnamon, cloves and star anise together and I've seen a big improvement I try and drink two cups a day.
It's like being attacked by an evil, invisible monster !!! I bet your family members don't get it either, do they ?! I have a cousin, that lives out of state, who has it as well, and her surrounding family members don't get it either!! It's so far beyond frustrating that sometimes I just scream out loud !!! Hang in there sweetie : )
Faron Ada
ms
Faron Adams no problem with the family and
Faron Adams give me idea about cure this deasese
The rheumatologists here in my town do not take fibromyalgia patients, so my doctor tried to send me to a pain clinic. Unfortunately, I cannot go to another town due to inability to travel. So I'm finding what I can on youtube and google to find a solution for myself. Thank you so much for posting this. I'm learning more and more to get a better understanding.
Lose your Dr & go to a medical medium or naturopath! Your Dr knows nothing because that's the BS he was taught at University!
My rheumatologist, 30+ years ago, cut all his FM/CFS patients loose - we took up too much of his valuable time. (His words to me...!!!!)
I pretty much go through all of these types of Fibromyalgia pain 24/7. So glad you said these and make everything so clear. I have Postural Orthostatic Tachycardia Syndrome and BPD with it all. Thank you for uploading ❤️
Finally - someone who gets it and can explain all that I am going through and have been through for all these years! Thank you 😀
You hit the nail on the head, sir! Spot on! I need to show this to people that don't understand!
I have fybromyalgia
Iv3 been called a crazy woman .
I’ve lost lost of friends
Which I’m happy about as people that are selfish when your illl are not true friend
Now I have friends that try and understand my day to day life so painful
So much swelling
My gut is just completely gone
I’m not depressed I’m sad as I can’t walk more that a few minutes
I can’t sleep . ....
My head hurts my eyes and eyes are so painful
My feet hurt ...
😢😢😢😢😢😢😢😢😢😢😢😢
I can relate 😪
Sometimes it's just unexplainable
Exactly!!! I’m so tired of trying of feeling like crap!! Too many symptoms huh.. wish I was able to sleep
😓
🙏🌼🕊️💛🕊️🌼🙏
I have it
As a person with FM, I have to say that this is the most ambiguous description of FM I have ever been privy to.
Thanks for recognizing the 8 types of Fibromyalgia, Really named All of the ones that are tormenting me!
,THROBBING ,STABBING AND SHOOTING PAIN IN LEGS ..PAIN SWITCHES ON AND OFF ,ALL OVER LIKE BLINKING LIGHTS ON A CHRISTMAS TREE.YES ON FLOATING PAIN,,AND ALSO CHRONIC LINGERING PAIN,AROUND OLD INJURIES(BROKEN BACK)BUT STARTED WITH A HEAD/ NECK INJURY.WHEN I WAS 39(IDIOT THRU A 40 POUND ROLL OF ROOFING FELT OFF OF ROOF AND KNOCKED ME OUT,,AINT BEEN RIGHT SINCE..I HAVE ALL 8 ,AT DIFFERENT TIMES AND SOMETIMES OVERLAPPING.SYMPTOMS..OTHER TIMES VERY SELECTIVE,,,,BUT YOURS IS THE BEST EXPLENATION ,SO FAR,OF WHAT I'M GOING THRU ...DEALING WITH IT ALMOST 13 YEARS NOW......JDA
I have just recently been given a possible diagnosis of fibromyalgia by my primary physician and physical therapist. I'm a type 1 diabetic, so I thought for most of the past 10 - 15 years that my pain and insomnia were caused by that. I was under the impression that fibromyalgia was not a real disease until I started researching it, and my symptoms exactly mirror those of fibromyalgia. You have hit the nail on the head with these different types of pain, and these types are exactly what I'm experiencing. Thanks so much for making this video, it helps me understand fibromyalgia so much more!
@ C Sheets . There are a number of tender points which have been used to diagnose fibromyalgia in the past. These can be easily found by Google, or maybe you tube. You can check yourself, you only need a few of them . Thus you will know , for yourself. K
@katharinedavis4947 Thank you for responding! And yes, five years later, I still live with fibromyalgia. Do you have it as well?
@@csheets40 I have had it for I don't know how long, I'm 78 now and remember being ill when I had young children . It was finally diagnosed 10, 15 years ago ( the specialist used thd points system )and it's gradually got worse . I've developed coping strategies, the main way is using cbd oil for the pain, I've explained that on other replies here . I've just started on pregabalin for my sleep ( restless legs which often goes with fibromyalgia). It's made a huge difference to my sleep and my overall energy . Now I have to adjust I did far too much and crashed, so I'll have monitor my activities. Kay
I’m taking this video to my Doctor. He nailed it ! Wow, like I have all 8 at different times. Thanks for your video !
Great video, my Fibro brain is rubbish... Can't remember date, times, people! It's like cloud of crapiness. I get swallowing issues too..
And dry eyes and mouth. So annoying blinking every two seconds. This is truly an awful illness. My heart goes out to those who drafted and dreamed a better life, than this crud. I want some of my life back. Pain robs you of plans, any plans and future dreams. Blessings to all xox
Stinging nettle tea helps fog. So does keto
I agree with everything you said, it’s horrible! You’re the first one that said you have trouble swallowing. I do to, when I take pills it feels like they get stuck in my upper throat. They did an ultrasound and said...... it’s not your thyroid, well that’s nice since my thyroid was burnt out when I was 16! I have dry eyes too the medical drops sting my eyes so I just use Visine if it gets bad. I’m sorry you are going through the same crap I am. Hang in there maybe someone will find a cure soon
@@southsidecarly7427 hi Carly.. my fellow Spoonie. Have you heard of that? The Spoon Theory. I have no spoons to give out today as damp and raining and thunder makes me a barometric head pain boom! That's interesting you suffer swallowing issues too.. I choke on rice cakes, but I love them! Ryvita crispbread always gets stuck! Oh lady, I hope your eyelashes aren't hurting.. I swear my long nails hurt too, and clavicle, jaw pain. It literally drags me disc, but .....oooh, I look fine? How about hair shedding from hair line. Who knows what crap other issues Fibro brings. I do think it's a loooong list. But I look so well! Haven't slept in decade, but you look pretty. Urgh. I feel like I've died, dunno if you feel same. Covid ppl are now saying, gee, must be boring feeling trapped.
Yep.
You plan, your body just laughs, and laughs at your plans you Wanted to do! Are you same Carly? Blessings for pain free night, day x 🇬🇧🥵🇬🇧
@@peacefuldoves yes it is a long list! When I do go to meet with people I always try to look like I’m ok, if they only knew what I looked like most days and how I feel. Yes, I am losing my hair always finding it everywhere. My jaw hurts from constantly clenching it, I guess it’s now a habit.I haven’t slept well in years, I think it would be kind of scary how much sleep I actually get in a week! I know what you mean about planning things, I have canceled out on so many things.I actually feel like I am just hanging on by a thread( sorry about sounding so depressing) but I can’t really do hardly anything I used to do.I guess we just do the best we can and rejoice on the good days and hideout on the bad. My wish for you is that you have more good days than bad. Take care
UK girl. You need to see a good rheumatologist. I have identical symptoms and was diagnosed with Sjogrens Syndrome.
OMG you actually understand what Fibromites go through!
Darla Dixon fibromites? Haha. I love it. Now I know what to call us..makes me feel a part of a grpup that is like me :):):)
Fibromites! Hahahhaa! That's hilarious! Not laughing at YOU, but at your witty, well deserved comeback at the doctor! ❤😀
Fibromites, lol!!😊
@@barbibutton9619 I know :)
Lol
60 medical doctors/specialists!
Having
had Chronic Fatigue for 30 years and been to over 60 doctors and specialists
with no results I had basically learned to live with it, even alternative
practitioners couldn’t help.
After watching nearly all of Philip Rafferty’s videos I knew I had to do his BNT
course.
Philip did a BNT balance and within 5 minutes my pain went from severe pain and
exhaustion to no symptoms, with energy levels up to 8 out of 10.
My brain fog is gone, which had caused enormous frustration.
I will be forever grateful to Philip because now I can live my life pain free. LR April 2019
I have seen similar results in over
90% of students and clients with CFS, fibromyalgia and arthritis. Philip.
Thank you 🙏🏻 !!! I will look him up !!!
All of the above and plus..... :-(. I've been battling this since I was young and still can't get anyone in my life to understand. Thanks Doc but I believe it is even more complicated then this and it has taken me a lifetime to figure it out for myself and just when I did, it changed on me :-\. I am a work in progress and it is one day at a time right now. To anyone else suffering, I say don't give up. Listen to you body and ur own innate wisdom and do whatever it takes for you to feel better and don't feel guilty. Be patient and accepting and don't be too hard on yourself. I know, I understand and I can relate. It's not easy but we are all doing the best we can with what we've got and you will be ok if you just take it easy when you have to and screw what everyone else says. I would never wish this on my worst enemy. Sending love and prayers to all who suffer. Someday we will have a cure.
Excellent video, Nic! You forgot Allodynia and Neuropathy, though. I suffer immensely from all 8 types you mentioned and the 2 types I mentioned. (However, I'm aware that I'm an incredibly severe case, unfortunately.) Thank you so much for making this video and promoting Fibro awareness. I am going to watch all your videos. Keep fighting the good fight! God Bless!
First video which describes EXACTLY how I feel and what I experience.
In another addition: you feel real Paint in joinst..fingers, knees, the inside hips..that excrutiating "twisting" pain that appears just suddenly and feels so hard like a punch in your guts and the pain then keeps wandering from joints to joints..fingers to hands to shoulders.. and knees so hard the legs wont keep you standing up.. and another thing..you eske up feeling 10 times MORE tired thank when u went to bed... like u never gonna catch up on sleep.. always feeling frozen and cold...
Sometimes too sweaty too
I dont have any diagnoses for my problem yet, but why is this me.
Thank you so much, sometimes people don’t believe you when you say you really can’t go somewhere. And they get angry. If you would only tell yourself you can go, you can! And that hurts us. I’m really happy to share this. I have had it for the last 32 years, and yes, it hurts!
Wow I have all 8. This was one of the best explanations of Fibromyalgia pain I have heard. Think the only one not really explained was burning pain. But overall very clear and concise. Finally someone who gets it. Loved his freeway analogy. Spot on. Nic Im going to show this video to my Dr so I can better explain my pain to him. THANK YOU!
You can have neurothopy. Burning or stinging sometimes numbish wide variety of sensations
Yes - neuropathy. for sure
No " BRAIN FOG."
I’m in bed currently with a flare up I’m sweating like a pig and my hands are absolutely killing me my body is just hurting so bad it’s depressing
Coming out of a flare up & I just can't stand having clothing on. My skin feels like it's on fire. The sweating gets so bad that I don't like to go anywhere. It's so embarrassing! Today my hands are swollen & sore as well.
My heart goess out to you. Look at the strength you have to continuing to look after your child. I can't even look after myself & my cat let alone another little human. My daughter told me recently to stop f..ING wingeing & stop dragging her down & won't talk to me. I'm told she loves me but that's not love. So keep fighting, your doing an amazing job by not giving in. Cheers Fromm Australia 🇦🇺🐨👍🏼😊😊😊😊😊
The floating pain accompanied with pain at back of skull is something I’ve had a lot especially if maybe I haven’t rested enough or not eaten well. I didn’t realise it was associated with the immune system! This is great thank you!!!
What.kind pf pain because i get it too but it feels deep like a knife stabbing but only when i move my neck
You forgot the one where if someone touches you it feels like getting punched in the worst bruise you’ve ever had and it kills to even clean your ears or rub your your neck 😢😭😤
My fiance is still learning about this, any cute little like hits I go "ow" (of course it doesn't take much) and he gets confused and does it to himself. LMAO I'm like, hello FIBRO skin!
@@glitterfartsss Girl, YEESSS! It's the worst 😫
thankful i don't have that one!
YES omg the touch and sound sensitivities kill me
Yesssssss
FINALLY so very well expressed.The gravity of these multiple symptoms made diagnosing this a very long and difficult process. 👍👍👍👍
I'm so done with fibro! I have all! I've had it now 14 yrs . Tried everything! I'm so exhausted!
2115virgo13 try CBD oil. It has helped me
You are right, sometimes you try all what you are told BUT IT TURNS INTO MORE DISASTER
If you are interested of getting remedy to your problem Fibromyalgia contact Dr sebi on whatsapp +19162296471
I use thc edibles to treat my fibro. High quality, high mg thc. It’s the only thing that has worked for me.
this was the most informative and helpful bit on Fibromyalgia that i have ever heard. I had an amazing pain specialist who was the person who diagnosed me, unfortunately he is gone now. i have 7 of those 8 . Last year it wasn't as bad - but an additional injury can 'kick off' the whole 9 yards and it's really frustrating. to all that have commented here - hang in there - make sure you put yourself first, warm showers have helped me the most - so if i have no energy for anything - i have a shower and a bowl of soup. Plans ? - nope - stopped making them 25 years ago. people have to accept you or not. be good to yourself.
I have been diagnosed since 2000. I am so blessed to have the greatest doctor. If your doctor doesn't help you then go somewhere else. Fibro is very real.
Hi Nick, I am just starting on my journey of fibromyalgia, have not has a diagnosis yet, but everything you say in your video is like somebody understands what I'm feeling. I don't have all those symptoms but I have at least 4. Came across you by chance. I'm not crazy after all! Thanks Nick.
Also on the start of my journey. Mainly back pain knee pain shoulder and neck pain all at the same time. Constant tiredness and low mood. Had all this since at least 2018.
Very thorough description of this nightmare chronic illness. You hit all of them on the NOSE! Thank you for bringing this awareness in the forefront of suffering. I couldn't wish it on my worst enemy.
I have all 8, and it's impacted on every part of my life. I struggle every day to do the most basic things, and even showering is so exhausting, and painful, that some days it's just impossible. It's a struggle to keep going, and for people who don't have it, it's impossible for them to understand 😢
@James hama, hello 👋 I'm doing not so badly today, thanks for asking 😊
Goodness! Yes, I am recognizing all 8 of these symptoms, but have had fibromyalgia for many years. After being diagnosed over 20 years ago I know I’d been battling it for years prior to the diagnosis. Having gone through 2 rollover auto accidents I miraculously survived with mostly minor damage , that is except for sending me into major fibromyalgia flare-ups, relentless muscle spasms, and one broken and split collar bone.
I have been extremely blessed with a family who is so supportive and understanding. I know some are not so fortunate and I think it’s a lot because the way fibromyalgia pain ravages your body isn’t visible. Also, I have a precious prayer group of ladies who all deal with pain that always understand when you ask for prayer or just need to “talk”.
@Kay Butcher Have you tried cbd oil ? I feel sure God put it on this earth to help us with pain. He doesn't always heal but He is with us in our pains and has put many plants on the earth for our healing . If you are in GB Holland and Barrett sell it and advise about dosage . God bless you and your prayer group. Kay
@@katharinedavis4947 Yes, I have tried CBD oil but unfortunately it didn’t help at all. 😕
@@kaybutcher5719 I'm so sorry. How long did you try , you can take up to at least 1800mgs I believe. Also what make ? I've bought stuff on amazon which didn't work at all . I'll continue to pray you get help, one way or another. Have you ever had supernatural healing from the Holy Spirit ? God bless you , lovd Kay
I have almost all of these. I am on high dose meds to sleep and starting to wake up in the middle of the night anyway. Thank you for breaking it down. Its often hard to explain to people how I am with Fybromyalgia and why certain things are hard.
I have all 8 plus much much more. Thanks for recognising all our problems. For me the realisation was that it's a viscous circle of feeling better then the shock of feeling bad again, it took me a long long time to realise this. I was diagnosed in 2011 and have just battled on as much as I can.
Thanks. I experience the full moon. It’s awful. Along with storms coming. I’m now end stage COPD. I live everyday the best I can and the rest is up to God.
@@ann-brittbjurhult4997 I'm so sorry to hear that. Sending u loads of soft gentle cuddles and hope 💕 x
This affirmation has helped me so much. After my father calling me a hypochondriac for most of my life, videos such as these give me peace that I’ve been seeking for decades
Thank you so very much! I've got all 8, and this just confirms what I've known for years, despite having been blown off by 85% of the docs I've been to. Now I know I'm not crazy, and that is priceless!
Your explanation of FM is so spot on. I was diagnosed with FM, chronic pain syndrome and Rheumatoid Arthritis over 30 years ago. I have explained it as like flu symptoms all over your body. I see a rheumatologist and pain doctor for years. The pressure points in your body are a constant problem. Many times my skin is sensitive to any touching. Hard to take a shower as it hurts so much. I have pain pills. Recently started taking Gabapentin for shingles. It seems to help the fibro pain. I do stretching exercises in the morning. I suggest you find a good rheumatologist and pain clinic. There are different methods used to distractic you from obsessing about the pain. A therapist can help. There are homeopathic treatments. My role at this time is to reduce the amount of Norco I am taking. Currently I am prescribed 3 which is down from 6. Sorry for the long comments. God bless everyone.
OMG!!..you described my pain exactly.😢..finally someone who understands!!..I have 1-7.. can you be my Dr!
Thank you! This is illuminating. Now, almost 50 years since I suspect my fibro began, and 40 years since it got crazy, and 32 years after diagnosis, I have been wondering if I'm in a flare - but I'm 69 and so many other things could be causing my symptoms that I'll probably never know. One thing I did _not_ know is that fibro could cause brittle nails - I'm having a terrible problem there (splitting, peeling at edges, breaking below the quick). In spite of taking two meds for anxiety and two meds for sleep, I'm having trouble getting to and staying asleep. I ache with the weather (there is some arthritis, but not in ALL the places that hurt). But... big but... I'm already taking duloxetine (as an antidepressant), and just had the dose raised because of worsening depression, so there's nothing more to be done via medication.
Anyway... your "knots" analogy is helpful to look over the past 50 years and see how those knots have changed with time. It's more difficult to look at today because, again, I'm 69, diabetic, have a balance disorder, lactose intolerant, a knee replacement, etc., etc. ... very hard to judge, and I am SO SICK OF DOCTORS!
I will watch this video again to see what flew by me. Thanks again.
I wish that EVERYONE would watch this so that it could be better understood. I pretty much also suffer with all of these things. It would be nice for everyone around us to be able to understand what all we go through. It affects us in SO many ways. Thank you for sharing this with us. Very well done for sure!
Your descriptions of fibromyalgia pain is spot on. Thanks for doing the video.
As for everyone here battling with fibromyalgia, you’re not alone!
Tip: I recently changed to a Ketogenic Diet which has helped me loose weight and dramatically decreased my pain while improving my energy level allowing me to be more active. It’s definitely something worth looking into.
Wow, I got all of them, jumping from one to the other. Visiting the doctor, explaining new symptoms, and now I finally watch a video that explains all these symptoms. Thanks :). I made a few videos about fibromyalgia as well - as an experience expert unfortunately. Cycling and swimming helps me a lot, and a gluten-free diet.
I've had fibromyalgia for eight years after a life changing car accident. I struggled so much and didn't want to accept this. I was so healthy and happy before .After trying so many different medications (not wanting too) knowing my body is sensitive to everything I tried as my doctor said why not it might help. Unfortunately after 7 years of trying different meds. The triptaline meds.ended up killing my heart. So now I have heart failure. But I find I have found some strength within me to go on a journey of healthy eating no medication.(,only heart meds to live) And meditation and getting rid of toxic people in my life. Which after 1 year of that has changed my life tremendously. I pray for all the fibro warriors ❤ never give up. And the way I see it. I have my life and I'm grateful for that. I pace myself and luckily I have great doctor and family and son. That love me. I'm just glad I never gave up. Pain haunts me every day but I see now that I won't die from the pain. I have to do the best I can to live with it. And if that's not doing things or going places so be it. It sucks. But I'm grateful for life. 😊
I am almost 75 yrs. old & have all 8 symptoms, but had no idea they were due to fibromyalgia. I thought I was “falling apart” due to mysterious ailments/problems. Thank you so much for explaining all this. However, I felt a bit like I was left hanging because you advised working on one symptom at a time, but you didn’t say how to do that or specifically what you meant by that.
THANK YOU BEAUTIFUL PERSON! You have given me the words to easily explain to my husband just what exactly I am juggling ... very hard to describe some of this. Much appreciation.. wish you were my Doctor!!💜
Thank you so much for posting this video. I unfortunately suffer from all 8 types, no one has ever explained fibromyalgia pain like this before and it really helped me! Thank you. I look forward to seeing more of your videos! 😊👍
Does anyone here have pain in buttocks??? This is insane who can have pain from sitting??? Getting up is another story
alma muniz yes. All the time.
Tammylynn Hill I feel exactly the same. Best overall explanation. Of course we have more symptoms but his summary is great.
Excellent presentation. So challenging to explain to people. Thank you.
sometimes it's comes from the shock to your body system. I was working too much. 10-12 hour days standing all day with continues repetitive factory like work for months to years. My feet hurt, my legs and thighs were burning and going numb from the pressure of standing for long hours. I ended up getting a bulging disc in my back. Neck issues. I was so depressed, stressed, and so unhappy. I worked in such a toxic work environment. I had joint pain all over. Bursitis and tendinitis in my shoulders. Arthritis , Trigger fingers, and plantar fascitis on my feet. My doctor told me to get out cause this is what messed me up. This job choice was the biggest mistake of my life!
Yes! My husband and I had 3 children and then became foster parents. We ended up adopting 7 children from the system. They had special needs like cerebral palsy, PTSD, RAD, FAS, and LD. The stress wore me down and I was diagnosed 3 years ago at age 50.
Just got diagnosed at the age of 23 and I'm currently working a factory job on the floor of a meat packing plant. I couldn't agree more about the leg pain, I go home and just cry because my legs and my back hurt so badly. I need to get out as soon as I can.
Same here
I have been getting type 6&7 in my torso and 8 in my extremities. I never understood how I could be sweating and my legs feel like blocks of ice. I’ve had all of these but I worked on my IBS a lot but now I have PCOS and can’t digest my food again. Even though I eat a lot of fibre! But I’m glad that my pain levels are not keeping me in bed anymore. The tension in the back of the neck/head was really interesting to me as mine tends to go numb. Thanks for this video, it was really helpful!
you are 100% correct. i have all those symptoms. When I dont move for a long period of time. all my muscles hurts. and the bowel movements are horrible. those bloating are awful.
Rafael Liriano Does bloating cause shooting pain down for you?
Rafael Liriano, are you injured, crippled or what accounts for the reason you don't move?
Have all of these at different times. I’ve had it for almost 30 years so I’ve experienced all of these. The other commenters are right, more information from RUclips than I ever been told by healthcare provider. I know this is an old video but thank you so much.
Nic, thank you so much for this. Aged 33 (currently) I can tell you that I have all of the symptoms that you mention (and more) and life has become a genuine nightmare for me (used to be known as "duracell Monika"...) I can hardly move, no sleep whatsoever, one hospitalisation after another, thousands of pounds spent on all doctors and treatments possible and only worse pain (having gone through hell and humiliation in Polish public hospitals). Thank you for spreading the awareness about this painful condition. I myself literally found out about it merely a week ago.... you have no idea how it feels to watch your video and feel like someone basically wrote up a summary of one's (MINE) life and pain... it's surreal and comforting at the same time. Thanks again.
how are you now, Monika?
I have fibromyalgia I really appreciate you and others making these videos you've describe me exactly it's really difficult trying to explain my condition to people I have 1-8 thank you for explaining this the back of my neck and shoulders feels like I'm being stabbed with needles or knives that's the worst of my pain I have pain all over I'm always uncomfortable because I physically don't look like anything is wrong people don't take me serious it's really frustrating
I have been using self hypnosis every night to get to sleep.. that's been helping me have a good nights sleep.. hope this idea helps others
Omg!! I had to start doing that over the summer and I found it's the only thing that works to help me get to sleep and stay asleep!
I didn't know what was happening to me!
Thank God I found this channel. I sat all day crying today. I got two weeks sick leave from work bc of the pain. I can barely get out of bed in the mornings sometimes and it's making me so depressed, I'm feeling like my life is over
Shelley Gibson You tube meditations help me sleep, try different ones until you find one that suits you. I don’t have Fibro fog the morning after but I use headphones, not comfortable to sleep in, causes neck pain to flair up but at least my brain works and I have more energy for the day. I’m in UK, took 2 years to see a Rheumatologist, another 6 months to be told ‘good news, you don’t have Fibro.’ I said ‘but I still have all the symptoms, now what do I do?!’ I use health supplements, very careful about what I put in my body and how I use it (not abuse it).
I just heard more valuable and concise information from you put more simply than the other videos I’ve seen - even good ones.
I am so very Grateful your video showed up in my feed. Three plus decades of fibro and did not know some of the correlations! I can't tell you how many times I've done simple exercises only to be left in extreme pain days following. Before fibro I lifted weights regularly, it really saddens me.
It seems nothing I try helps the ibs and weight gain, but you have given me hope with this video. Again, Thank You! ❤️
8 is definitely making sense to me. right now my low back is killing me and I feel nausea. hard to eat. sleep escapes me.
dude, me too. nausea makes me so angry. i havent been able to eat in 3 days thanks to nausea due to the worst flare up ive ever had
Wendy Kennison Oh Wendy i know how you feel. I was diagnosed. about 10 years ago with fibro. Im no closer today trying to find relief to pain as i was 10 yrs ago. To me, its worse than the physical pain is knowing that everyone around you does not understand. Then you get those little patronizing smiles or words and then quickly the subject is changed, you know what i mean. Bless you Wendy, i hope you can find relief if you do, throw a little my way😊
Laina Lover with you there.. happens to me a lot. Sucks. We need to stick together no one else can get it all💜✌🏽
Aqafit is essential. I have clawed my way back from excruciating pain in my lower back, chest, knees, feet, neck and so on. These trigger point flares need to be stretched and gently exercised. It hurts to walk or sit. I get it. Fatigue and nausea are there every morning until late afternoon. I bought a new mattress that helped, too but I had to get my pain under control. I don't sit directly on my butt. I have a lazy girl rocker chair that I tilt back and put my feet up. It takes pressure off the back trigger points. I find drugs are useless except for a couple of pain killers per day. Get an overnight sleep study done. You can't have FM without a sleep disorder. All stess and deadlines must go including toxic relationships.
It took me over 10 years to get pain and confusion under control. I work hard but most days, I don't care if I get dressed. I push myself around noon, never sooner. Being overweight is about the biggest blow as it adds pressure to the trigger points. I am nauseated every day until after 4 pm. Fibro fog was a big fight. I write better than I talk and I don't answer questions without feeling stressed out. I stay in a noise free, easy lights, no bad smell environment as much as I can.
Good luck.
If you are interested of getting remedy to your problem Fibromyalgia contact Dr sebi on whatsapp +19162296471
Thank you so much for providing fibromyalgia information
I'm 73 and had the first "Knot" at 20. I was 50 when I saw a news show (Prime Time?) about Fibromyalgia - first I'd ever heard of it, and I realized that the numerous physical symptoms I'd already experienced for 30 years were one thing, which had a name!! I've never consulted a doctor about it, but have developed my own methods of relief, which make it bearable most days. Still have issues, all but types 6 and 7 on the Nic Baker scale.
On the mental health side, I wrestled and grappled with, begged, pleaded and prayed for relief from depression for many years, a single mom with four kids, meaning I got up and went to work every day no matter what. I am so grateful to have eventually gotten out of that darkness, and have been a happier soul since the mid-90s.
Thank you so much for this excellent descriptive video, I loved the analogies, and I will be sending the link to my close friends and family. They know, but do not truly understand. This will help. 💜
I am in my forties and have suffered with Fibromyalgia and CFS since my early early twenties. I have suffered every day. What is working for me right now is Tramadol and Provigil. The tram keeps the pain at bay (doesn’t get rid of it completely but I will take what I can get) and the provigil has been a game changer for keeping me awake, alert, and active during the day. It has been life changing to battle the constant brain fog. Gut health is important. I take Glucomannan NOW Supplements everyday an hour before a meal and every night I take a half dose of Magnesi-Om from Moon Juice. They work together to keep my gut regular. These four things together have given me back my life. I thank God for them everyday. I am sorry for all of us that suffer everyday, but I hope this can help someone. Finding a good doctor is essential.
Thank you... you've described my health challenges perfectly.. God Bless you.
I rely on God to heal me bcoz I don't have a husband who would understand my pain.
You're stronger than you think. You don't need to rely on anyone or anything. Find strength within yourself because that's the only reliable source, especially for us fibro patients who have no answers.
God gave you this in the first place if you believe in him
May the Lord give you strength and a special measure of grace.
Mine was a narc. Pure evil. Be littled me as lazy woman.
It’s better to have just Jesus than a husband who doesn’t have empathy.
The way you described fibromyalgia was easy to understand and informative. Thank you
I highly recommend you to Dr.uwenboherbalhome on RUclips for help..
I just found this video. This is the first dr who has actually understood to the T my discomfort and pain!
Oh Nick,feel so good that someone understand how i feel,God Bless you ,i have fibromyalgiai das diagnosed in 2008
Best Fibro advice I've ever found -- thank you so much!🙏
I have so much pain and the doctors will not prescribe pain meds. I wouldn't need them all the time but when I need some, I really need it. I do mostly healthy things ,rarely stray. What is wrong with Healthcare? Because they can't see the pain, it's not there??? This guy really describes Fibro and understands the symptoms.
One of the best explanations I've heard x
Well said sir, well said.
What you described is all so real on all areas.
Thank you for believing in this terrible silent condition of fibromyalgia.
"You don't look sick though"....
So tired of hearing it..
I have ALL OF THEM. Of course, I'm 51 so been "waiting" for menopause. Then, I've also been diagnosed with over 80 different things in my adulthood. Let alone, at age 12, I was in the ER with "growing pains" and the docs said I would most likely develop problems as an adult. This was 1978 though so we hadn't even heard of Fibromyalgia. Then, been to almost every type of specialist available to the average public like myself. Just wanted to put my deal out here to see how many others are like me. Pain free hugs to you all💜
Ditto, esp the growing pain. I had excruciating leg pain when I was younger
Snap, I was 3 when I was in bed due to severe leg pains , told it was growing pains!!! I then spent between 11-21 in and out of casualty with 26 fractures, called clumsy! All was fine till age 34 when I had a near fatal car accident. So many injuries. 10 years after diagnosed with fibromyalagia. Hit all 8 . thanks for video which I'm sending to family for them to understand .
lmao the growing pain thing got to me... Im laughing at myself and my youth as for YEARS even into my late 20`s I STILL believed I had growing pains as that was what I was told... pfft Im now 50 and its a standing joke with my kids when they see Im having a very bad day they say Mums got gowing pains today lol so true. I was diagnosed at 29 following a hospital stay for chickenpox pneumonia which almost got me BUT I survived it but couldnt get myself back afterward. Was told I had copd, fibromyalgia and RA as a result of the pox, it had destroyed my whole body internally, nearly lost my sight too . The doc said, it was like being in a high speed collision thats the kind of impact that can bring fibro on. Ive never been the same since. Every day is a struggle and an ongoing fight to get through it with some dignity. Doc told me look stop beating yourself up just try to do at least one thing a day and go from there even if that one thing is just getting up and dressed or having a shower. That way of thinking has really helped me to deal. Sending huge gentle healing hugs to you all. xo🌹
I was diagnosed with fibro 40 years ago and have worked my way thru most of the drugs, supplements, and non medical therapies (chiropractor, massage, acupuncture). I have most of the symptoms listed here but finally settled on tramadol, Flexiril and gabapentin to lower pain and water aerobics to keep me moving. I’m convinced giving in to the pain and laying on the couch all day is the worst thing you can do. I never found any supplements that made a difference, special diets didn’t help, and anyone that not a rheumatologist or neurologist that says their plan can cure you is just out to take your money.
I totally agree with you! Nobody understands what is like unless they have it. I’m learning more from this man then my own doctors.
Wow it’s like I always feel like I can’t explain how I feel and he is naming all of them but left a few out 😢 I get so sick of not feeling good and being in pain every day 🤦♀️😢 i want to be fixed so bad
"Winter is coming" amen
GREAT PRESENTATION!!!!!! THIS IS SO VERY TRUE INFO.
I start dreading the fact “winter is coming” in August, every year!!
I know that's right not diagnosed yet but was told by my position that fibro was only diagnosed when everything else was ruled out
Okay, please hear me out. I need someone to talk too. When I wake up my enitre body hurts. Through out the day the pain is durable. I just learned to just deal with it but, it's getting harder everyday. My joints my feet my jaw my neck you name it. No swelling so I just don't want to go to the doctor. They might think im crazy. I have a constant headache. Im always irritated. My jaw clenches even when I loosen it. Regardless if Im awake or asleep. I can't sleep. When I try to sleep My body aches. I have so much anxiety confusion. I'm always tired like all kinds of tired. I'm tired in ways i never thought tired existed. My mind blanks on me randomly. At work I'm just jumbling up stuff. I take regular tylenol it's like it doesn't do anything. It's like chewing a mint. I walk every day for atleast 2 hours because I heard being sendentary makes things a lot worse. I am truly depressed. My periods are awful. My bowels are either constipated or I have diarrhea. Gassy. I'm ruining my relationship with my boyfriend. I'm not the person he met 4 years ago. Idk what's happening to me. Is it worth going to the doctor?
@@boringnames6920 u r the first person who has repeated the words I say about myself and NOT ONE PERSON understands &/or believes me. Wow, I understand what ur saying but I have not been successful in finding a doctor or action plan to give me any relief. I gave up as it's more stressful when another doctor fails me. My family all puts me down and they will actually tell me I'm a disgrace to my dad who has passed away... All because slowly I lost the ability to function as I did b4. My pain has been a source of my depression but I think my family, and the fact that I have had to distance myself from them all, has caused my depression to increase beyond belief. I hope the best for u 😘
@@boringnames6920 Unfortunately there is no study to diagnose Fibromyalgia, that's why many doctors don't know how to diagnose it and they think that we are crazy, but don't give up. Go to a rheumatologist and ask him to do pain tests for fibromyalgia. Tylenol is not enough to relieve pain, you need medications to suppress the nervous system, such as Gabapentin or some antidepressant. With that and doing yoga you will feel better in a couple of months 😀👍
@@boringnames6920 have you had boos work done, not saying this is the only thing that may be wrong. You may be deficient in Vitamin B12. Or D. Start taking megadoses of it and see how you feel and get your blood work done. I was so lose in B12 I had to take shots for 6 months. I feel the difference now.
I was diagnosed in 1991 with a 'classic case' of Fibromyalgia where the doctor tested all 18 pressure points to give me this true diagnoses. Everything you talk about is related to Fibromyalgia at one time or another. I ended up in bed and in a wheel chair in 1995 but after two years I was able to walk. Many times was taken to hospital by ambulance and at that time doctors thought it was in my head. There are many doctors who claim they can diagnose this disease (it is a disease - Copenhagen declaration), but only a qualified doctor of Rheumatology and Internal Medicine can give a patient an honest diagnosis. Keeping a positive attitude, not overreacting and not over medicating oneself is key to having a better quality of life. Thanks for your video.
the pressure points? please..I hurt all over.
I was diagnosed with fibromyalgia but I thought I had heart issues !! The pain is too much to handle
lulu M B4 U we're diagnosed with fibro, Did you take Antibiotics for anything..think back, dental work, uti, surgery or at a hospital stay in an IV within 5 months of the onset of pain? Do U have acid reflux or a swelling of what people describe as their 'stomach' crave sweets? I'm not a Doctor & don't sell anything. You may ask your doc for a couple of tests that might be a clue to treating the cause, not the symptoms. Just trying to pay it forward.
Chris Penn I did take antibiotics due to a surgery , I usually have reflux but I usually feel the heart beats in my throt sorryy for my English! The pain increase when I get scared or nerves or Cold
lulu M Look up Antibiotic Syndrome and Fibromyalgia! Also search "Upper Intestinal Bacteria Overgrowth" Stay on the MD sites or A Licensed Nutritionist in Digestive Disorders. The Upper Intestines should not have "Bad Bacteria" but when it does, (caused by Antibiotics killing the good flora) it develops into microscopic breakdowns in your intestines, this goes into your bloodstream, Leaky Gut, is now recognized by Doctors & Dangerous. It literally causes autoimmune disorders, #1 being Fibromyalgia. Also & often with Chronic Fatigue & Hypothyroidism. Irritable Bowl Syndrome, etc. RUclips or google -Gut Health or 60% Of Your Immune System Is In Your Intestines, Your Intestines have their own brain-Google It, its true. You could be at a Toxic level. Don't take any antacids. They make it worse. If you drink 2 teaspoons of Braggs: Organic Apple Cider Vinegar, (every store has it) it's with the "Mother", cloudy at the bottom. Shake it really well & put a couple of teaspoons with distilled water about 5 oz.---the indigestion/acid reflux will go away immediately! You probably have allot of sinus/allergies, this will clear that up too..I mean FAST. I mix 2-3 tablespoons to 5oz. Of water. Braggs is live good bacteria(Flora). It is also anti fungus. In other words, Probiotics are useless & Expensive & Dead by the time they hit the shelf- Remember this- Braggs is a Probiotic! That's a small part. If you are written a prescription by your doctor for a Nutritionist-SPECIALIST IN DIGESTIVE DISORDERS, Insurance will pay. I know what I'm talking about. You have to do your due diligence & stay off the RUclips & google sites for homeopathy! This is a Toxin, by the time it hits your immune system to cause Fibromyalgia that is in your blood! Your good bacteria should be 80% to 20% bad bacteria. Let me know if you need steering. Stay on medical sites! The pain you are in is not necessary! You are not absorbing vitamins. 🙏🏻 I'm here & I'm right.
lulu M don't know why my second reply has some lines crossed thru. See if you can still read. It's all important. Take a screen shot so you can refer back to the recommended searches!
lulu M me too lulu.... it sux never knowing if our pain is a new life threatening problem or a new Fibro manifestation.
Excellent informative video. I have had fibromyalgia 34 years and all the other really horrendous health issues. Thank you so much from Armagh in Northern Ireland.🇮🇪💚🇮🇪
Finally someone that knows how to describe how fibromyalgia feels