Hi there 😊 - Thank you for your videos. I don't have any words of encouragement because I am in the same "rocking boat" as you. I just hit the 2-year mark and nobody seems to know what it is. My regular appointments are with the neurologist, the ENT and the psychiatrist. Neuro has mentioned PPPD but no official diagnosis. The gravitational push and pull never stops. Always feeling like I'm in a rocking boat but my body isn't actually moving. Cant imagine living the rest of my life like this but doing my best to stay positive. Please keep updating with your videos. So sorry you have to go through this. I'm certain one day this will get figured out. Stay strong.
Thank you for your kind encouragements... no need to be sorry, we are on the same exact boat. Your comments are nice to hear that we're not alone on this lousy boat... even 2 years+ is roughly similar to me. How did yours begin? On a boat or spontaneous/panic attack? the "gravitational push/pull that never stops" description is when I know they know what I feel.... I hope so....
@@kyodizzyMine came on suddenly. I was sitting in a training class and thought the leg to my chair broke. I thought I was going to fall out of the chair. My whole world went crooked and tilted but not spinning. Some days the ground beneath my feet feels like its moving side to side and some days up and down. It gets really bad when stressed. Next week I go to an integrative neurologist. Im not sure what to expect. Feeling hopeful.
I have this condition i use holistic medicine and they help me to control my anxiety also I went to see a cervical chiropractor and he is doing adjustments he said he has seen so many like me with dizziness and pressure in my head and he cures them and I’m hopeful he will do the same for me I have mg first adjustment next week, but it has to be a cervical chiropractic not a regular chiropractor
I understand Kyo, it is very common for ENTs and Neurologysts to misdiagnose neuro-vestibular issues. They seem to have an aversion to the informed patient as well and that causes us to get from one specialist to another with no proper diagnose nor treatment. It is like they don't really understand what is like to live with it and surely they don't care if we get better or not. As annoying as it is, we have to endure and keep looking for relief. We are the only ones who really know how bad it can be and thus we are the only ones interested in getting better. Keep strong, I am rooting for your recovery.
That's true... we all have to be mentally strong to live with something like this... positive vibes and support really helps around here... it's true most wouldn't care/really understand unless they have this... thank you.
don't give up i was cursed with a mystery symptoms 3 years ago and i had to figure it out myself and i think i'm getting better now there is always a solution to your test be brave and strong enough to pass it
Thank you. How did you get better? Is it more like your body adapted to this discomfort? I know I couldn't handle this early on... I wasn't living at all then... but I can "function" now as long as if I'm able to really distract myself... but the really heavy gravitational push/pull discomfort is always there... that feeling never gets easier. I wish that feeling would be lighter/go away...
@@kyodizzy yes i felt like i'm adapting it's rapid breathing 24/7 for no reason i found some medicines to be a little useful and summer makes it worse but i have no other solution but to adapt
I Googled my systems recently and it’s led me down the rabbit hole of Vestibular issues. I’ve been watching videos from The Steady Coach, who sounds like she knows what she’s talking about, along with a lot of great feedback from viewers, many of whom claim to be healed. Hope you find your way there too.
She might be able to help with peripheral nervous system vestibular stuff (inner ear) but it's not going to work on the central nervous system (cerebellum) MDDS is a disorder stemming from a problem with the CNS (cerebellum) Of course you can have both of them at the same time (I do) and vestibular rehabilitation can be helpful.
I feel for you, no one can understand,you eyes compensate and you balance and look fine,but in your head its moving around (for me the feeling is most with eyes closed) walking I just feel drunk....vestibular excercises have helped me....I had covid twice and that really knocked me with the balance thing...there is a lady on utube "treat dizzyness at home" who has great excercises that helped me.
Oh man. I agree with you, never thought I would end up this way..and I used to be a ballerina. I'm so sorry you were misdiagnosed. Awful. So unfair. Want you to know my church is praying for you (and me!). We are in Huntington Beach if you could visit and be prayed over & anointed with oil. This is what the Bible says to do, even tho I still wait for healing. God bless you Kyo.
@kyodizzy almost 2 years on this dizzy boat. Yes I believe it will take a miracle, and sometimes it happens from others' faith. Calvary Chapel of the Harbour is just west of Pacific Coast Highway on Warner. 1230 Sundays. I'll tell Pastor Joe you're coming (when you tell me). He and the elders will be happy to anoint you and pray over you. They know how long you've (and I've) been miserable; throughout the Bible shows ppl suffering for unexplained reasons, but their faith is much stronger than mine.
Hope you’re doing better, I’ve had this dizziness, Dp/Dr head pressure, dissociation going on 9 months, what caused this was a neurotoxicity from bactrim and doxycycline antibiotic. A lot of medication has side effects. Stay strong. 💪
@@111585sandman Still going through hell with this thing dude. It started from vestibular issues and balance and then I became dissociation out of the blue. My balance has gotten better but my perception of the ground is tilted and I feel like I'm not on flatland or nothing is flat if that makes sense ,
brrr i had same thing as you and i think could be spiritual issues as well i was in same rocking boat sensation for over 2 months i had to seek spiritual attention and ever since then it all reduced and God is great i feel better
though I am not healed physically when I turned to Christ , it still lead me to reality check that God cares more about my eternity than this temporal world
Hey, I have probably commented few times here. I can understand you, how frustrating it is. Its been 5 years for me with chronic mysterious illness that have caused systemic issues for me. Doctors seem to not find anything and dismiss it as anxiety disorder Are you hypermobile by any chance?
Does your balance get worse when both the eyes are closed? It all started after a traumatic event in my case. You are not alone in this 🙏 I was already going through too much anxiety and anger during covid before this traumatic event that occurred in 2022.
Facing same issue since 2018, home bound initially bed bound,,,,dizziness varies sometimes its different,,,,can u tell me if there is a small hump below ur neck at the back?
Is that what helped you or someone else? My blood pressure is on the higher side as well as for my family. I was given medication for it... I guess I'll give that a try, but I doubt that will eliminate the rocking.
Hey dude. Trust me just go to a vertigo specialist. He will put you on vestibular rehab and cognitive behavioral therapy and some medication. Within months you will definitely be at a 99% recovery stage. That last 1% depends on the medication in some people or most people just get over it 100%.
i wish there’s any way i could help but if you could seek your spiritual root as well to know …because your spiritual growth might have complications ….mines was due to some spiritual stuffs and i got all this traumatic symptoms
I cannot believe these doctors. Six years with mdds in July. They do not know what to do. Dr. Wolfe in Boulder only treats MdDS now. She had it herself. I just had an MRI after five years. All clear. There is no stopping my mdds. This shit is horrible.
I replied to your other ones asking the same thing... it doesn't matter what position/doing - it's not triggered or on/off type of thing - it's the same heavy rocking/gravity pushing/pulling feeling 24/7 non-stop; distraction/movement that is greater force, like driving or running, can slightly "mask" it, but it is always there.
I felt I had tinnitus if it's really quiet, like a low helicopter/dryer sound, but nothing like ringing... I might have had that head pressure feeling when I had higher anxiety/panic attacks; but not currently.
kyo i had always followed you and i pray things get better for you soon please stay strong
Hi there 😊 - Thank you for your videos. I don't have any words of encouragement because I am in the same "rocking boat" as you. I just hit the 2-year mark and nobody seems to know what it is. My regular appointments are with the neurologist, the ENT and the psychiatrist. Neuro has mentioned PPPD but no official diagnosis. The gravitational push and pull never stops. Always feeling like I'm in a rocking boat but my body isn't actually moving. Cant imagine living the rest of my life like this but doing my best to stay positive. Please keep updating with your videos. So sorry you have to go through this. I'm certain one day this will get figured out. Stay strong.
Thank you for your kind encouragements... no need to be sorry, we are on the same exact boat. Your comments are nice to hear that we're not alone on this lousy boat... even 2 years+ is roughly similar to me. How did yours begin? On a boat or spontaneous/panic attack? the "gravitational push/pull that never stops" description is when I know they know what I feel.... I hope so....
@@kyodizzydid any psychiatrist prescribe for rtms sessions? Mine did, he asked for a minimum of 18 sessions that’s why asking
@@kyodizzyMine came on suddenly. I was sitting in a training class and thought the leg to my chair broke. I thought I was going to fall out of the chair. My whole world went crooked and tilted but not spinning. Some days the ground beneath my feet feels like its moving side to side and some days up and down. It gets really bad when stressed. Next week I go to an integrative neurologist. Im not sure what to expect. Feeling hopeful.
I have this condition i use holistic medicine and they help me to control my anxiety also I went to see a cervical chiropractor and he is doing adjustments he said he has seen so many like me with dizziness and pressure in my head and he cures them and I’m hopeful he will do the same for me I have mg first adjustment next week, but it has to be a cervical chiropractic not a regular chiropractor
@@shivshankar2869 do u also have rocking sensation all the time ??
I understand Kyo, it is very common for ENTs and Neurologysts to misdiagnose neuro-vestibular issues. They seem to have an aversion to the informed patient as well and that causes us to get from one specialist to another with no proper diagnose nor treatment. It is like they don't really understand what is like to live with it and surely they don't care if we get better or not.
As annoying as it is, we have to endure and keep looking for relief. We are the only ones who really know how bad it can be and thus we are the only ones interested in getting better.
Keep strong, I am rooting for your recovery.
That's true... we all have to be mentally strong to live with something like this... positive vibes and support really helps around here... it's true most wouldn't care/really understand unless they have this... thank you.
don't give up i was cursed with a mystery symptoms 3 years ago and i had to figure it out myself and i think i'm getting better now there is always a solution to your test be brave and strong enough to pass it
Thank you. How did you get better? Is it more like your body adapted to this discomfort? I know I couldn't handle this early on... I wasn't living at all then... but I can "function" now as long as if I'm able to really distract myself... but the really heavy gravitational push/pull discomfort is always there... that feeling never gets easier. I wish that feeling would be lighter/go away...
@@kyodizzy yes i felt like i'm adapting
it's rapid breathing 24/7 for no reason
i found some medicines to be a little useful and summer makes it worse
but i have no other solution but to adapt
I Googled my systems recently and it’s led me down the rabbit hole of Vestibular issues.
I’ve been watching videos from The Steady Coach, who sounds like she knows what she’s talking about, along with a lot of great feedback from viewers, many of whom claim to be healed.
Hope you find your way there too.
have u tried her exercises ??
She might be able to help with peripheral nervous system vestibular stuff (inner ear) but it's not going to work on the central nervous system (cerebellum) MDDS is a disorder stemming from a problem with the CNS (cerebellum) Of course you can have both of them at the same time (I do) and vestibular rehabilitation can be helpful.
I feel for you, no one can understand,you eyes compensate and you balance and look fine,but in your head its moving around (for me the feeling is most with eyes closed) walking I just feel drunk....vestibular excercises have helped me....I had covid twice and that really knocked me with the balance thing...there is a lady on utube "treat dizzyness at home" who has great excercises that helped me.
you will get better God will heal you
what’s wrong with you was exactly what was wrong with me and i felt like leaving the world for it was too heavy to carry the symptoms alone
Oh man. I agree with you, never thought I would end up this way..and I used to be a ballerina. I'm so sorry you were misdiagnosed. Awful. So unfair. Want you to know my church is praying for you (and me!). We are in Huntington Beach if you could visit and be prayed over & anointed with oil. This is what the Bible says to do, even tho I still wait for healing. God bless you Kyo.
Thank you. How long have you been on this lousy boat? It seems it really will take a miracle to get off this thing... I am familiar with that area.
@kyodizzy almost 2 years on this dizzy boat. Yes I believe it will take a miracle, and sometimes it happens from others' faith. Calvary Chapel of the Harbour is just west of Pacific Coast Highway on Warner. 1230 Sundays. I'll tell Pastor Joe you're coming (when you tell me). He and the elders will be happy to anoint you and pray over you. They know how long you've (and I've) been miserable; throughout the Bible shows ppl suffering for unexplained reasons, but their faith is much stronger than mine.
Hope you’re doing better, I’ve had this dizziness, Dp/Dr head pressure, dissociation going on 9 months, what caused this was a neurotoxicity from bactrim and doxycycline antibiotic. A lot of medication has side effects. Stay strong. 💪
I have depersonalization from my vestibular disorder it's been 4 years bro
@@julianwright204 how’re you doing now?
@@111585sandman Still going through hell with this thing dude. It started from vestibular issues and balance and then I became dissociation out of the blue. My balance has gotten better but my perception of the ground is tilted and I feel like I'm not on flatland or nothing is flat if that makes sense ,
If you haven't already, get a sleep study done. It's possible you have sleep apnea and haven't been sleeping when you think you have been.
brrr i had same thing as you and i think could be spiritual issues as well i was in same rocking boat sensation for over 2 months i had to seek spiritual attention and ever since then it all reduced and God is great i feel better
I had to agree with this brother
though I am not healed physically when I turned to Christ , it still lead me to reality check that God cares more about my eternity than this temporal world
Hey, I have probably commented few times here.
I can understand you, how frustrating it is. Its been 5 years for me with chronic mysterious illness that have caused systemic issues for me. Doctors seem to not find anything and dismiss it as anxiety disorder
Are you hypermobile by any chance?
Does your balance get worse when both the eyes are closed? It all started after a traumatic event in my case. You are not alone in this 🙏 I was already going through too much anxiety and anger during covid before this traumatic event that occurred in 2022.
Do you have any stomach problems? That’s the route I am currently down with my vertigo type symptoms that are similar to yours..
Facing same issue since 2018, home bound initially bed bound,,,,dizziness varies sometimes its different,,,,can u tell me if there is a small hump below ur neck at the back?
It could be high blood preasure that also effects your vestibular system.
Is that what helped you or someone else? My blood pressure is on the higher side as well as for my family. I was given medication for it... I guess I'll give that a try, but I doubt that will eliminate the rocking.
How are you feeling?
does this happen in all positions? even in head/handstands or wheel ? or does this mostly occur only in sitting, standing, walking, and side-lying?
Hey dude. Trust me just go to a vertigo specialist. He will put you on vestibular rehab and cognitive behavioral therapy and some medication. Within months you will definitely be at a 99% recovery stage. That last 1% depends on the medication in some people or most people just get over it 100%.
i wish there’s any way i could help but if you could seek your spiritual root as well to know …because your spiritual growth might have complications ….mines was due to some spiritual stuffs and i got all this traumatic symptoms
Does this also happens when u r sitting in chair. Or sleeping in bed
Yes it does with me everywhere I am
Yes. 24/7. Sitting, lying down, being completely still too.
I cannot believe these doctors. Six years with mdds in July. They do not know what to do. Dr. Wolfe in Boulder only treats MdDS now. She had it herself. I just had an MRI after five years. All clear. There is no stopping my mdds. This shit is horrible.
vitamin b12 and pholic acid. fruits and vegtables
I replied to your other ones asking the same thing... it doesn't matter what position/doing - it's not triggered or on/off type of thing - it's the same heavy rocking/gravity pushing/pulling feeling 24/7 non-stop; distraction/movement that is greater force, like driving or running, can slightly "mask" it, but it is always there.
Do u have head pressure and tinnitus
I felt I had tinnitus if it's really quiet, like a low helicopter/dryer sound, but nothing like ringing... I might have had that head pressure feeling when I had higher anxiety/panic attacks; but not currently.
I had rocking sensation also. I had to have one leg foward and one back in order for me to feel stable. It ended up being Vertigo