A Miracle Tech Could Reverse Blindness
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- Опубликовано: 27 май 2024
- 7-year-old Maverick has a rare genetic disorder that severely limits his vision. Now, a medication called Luxturna - the first gene therapy approved by the FDA - has the potential to substantially improve his sight, via an injection of a gene-carrying virus underneath his retina.
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Honestly. I love the new direction Bloomberg has been taking. A straight forward positive approach to the Future. Whoever is in charge actually deserves a Raise.
Thanks! We appreciate the feedback. We've taken that approach since the beginning with series like Hello World, The Spark, Next Jobs, Then This Happened and many more, but we're glad to see more people taking notice.
@@business Its Inspiring, and gives hope to many Small Startups and Entrepreneurs that try to bring their Visions, Products and Services to the Market. Having brilliantly produced accessible content that exactly describes those is worth more then Gold. Anyway, keep up the good work.
I agree. So uplifting.. The internet needs more of this.
2020 is a shitty year this literally made my day
All the medtech videos are honestly amazing. Videos like this and the one about the MIT biomechatronics lab really inspire people to study in the field of medtech and biomechatronics. Keep it up!
Thanks to scientist for their undeniable contribution for better and convenient life of mankind!
Thanks to Christians for your contribution to knowledge by burning the library of Alexandra.
Edit: Caesar only burnt the scrolls waiting on the shore (near the ships he actually wanted to burn) that we going to be transported to the great library.
@@LilithHeartstone Some religios nutcases beleave sccience is satanic
all these scientific discoveries and people think the earth is flat and vaccines cause autism
And engineering too though
Lilith1234 Heartstone Cesar burned down it
Less weapons and more tech like this, I would say.
All nations: how do we weaponize this 🤔
peace doesnt make money
@@chasin699 neither does killing
Hippies
@@greg8510 sadly it does
Going blind is my biggest fear
i'd rather loose a doggone arm. for real.
Not ALS?
Going blind will be great you wont have to look at the dying world
bay13 real who wouldn’t want to see a dying world though? I’m sure I’d be a spectacle
@@keepithundo9239 took the words out of my mouth
i was expecting for that eye to be implanted , guess i was dissapointed
Lol. Same
same.
Very disappointed
@S A i was paying more attention trying to make the eye to be implanted,i forgot what the video was about, lol🤣
Same, I hoped for a fully working artificial eye that can send signals to the brain making a totally blind person or a person with a missing eye see.
Meanwhile in good, OLD germany: "We now have officially banned any research on stemcells/gen-therapies."
modern liberals are truly anti-science.
@@brandonsballing826 except the german government is a conservative one
Brandon Moses I don’t think you know what liberal means.
@@TheBadgamer1000 Sure and North Korea is Democratic.
The research on germline cells are restricted and not on somatic cells. I am pretty sure the technology shown is based on latter.
Props to the mother’s care towards her children looking from how she is nervous, I am really happy the child is getting better.
The treatment itself aside, I cant help but notice Maveric's constant happiness and resilience despite everything that's happened to him. He is living proof that kids are way tougher than some adults think and they won't be taken down by something as detrimental and life changing as blindness.
We were definitely superior individuals as kids. No worries at all
This is quite remarkable, i have suffered a retinal condition my whole life. I am almost 50 and still have hope that one day i would be able to experience 20/20 vision.
We were learning about these new treatments for retinitis pigmentosa in a lecture literally a couple of months ago, truly amazing to see it in action
Fe King me and my brother have rp too
Can u share any interesting ideas
@@vanshchhabra4801 unfortunately rp has a wide range of causes so I don't think there will be one treatment for everybody, however there has recently been interesting developments in artificial retinas incorporating halorhodopsin which could provide a solution
@@LordFe1 well we have genetic rp that's we have it from birth
Any future prospects for that
@@LordFe1 well then, let's just simply incorporate sdkdkejfjksirjx to jfrrjkuxsghus
This “miracle” is cutting edge medical science born of hard work. What a great medical outcome for the lad in this story.
Advanced enoguh science is the same as magic. Some one said that probably not like this but I don't remember who was it, the tech is the future
@@kendarr Arthur C. Clarke's third law: "Any sufficiently advanced technology is indistinguishable from magic". Advanced science is not the same as magic. It is indistinguishable from magic.
I am sure the wealthy-elite are very happy with this new technolgy that will so benefit them, and nobody else.
wow this guy hates the word miracle, i guess a miracle you can consider is the fact that their insurance covered the high payment costs of $400k for each eye
I want to invest in the companies working on this now. It’s so cool
Spark Therapeutics, Inc
Nicholas Nelson My first thought watching this.
So heartening to see scientists, clinicians, and physicians doing their jobs so well. Thanks Bloomberg.
I couldn't help but tear up when they were playing tag outside and he said he could see his parents, I can't imagine the way his parents felt.
I didn't tear up, but there were definitely some drops of liquid manliness leaking from my eyes, for sure :P
Seriously though, that was just so perfectly beautiful.
"I see you guys!"
Such a mundane statement for so many of us, but, for that little boy, in that moment, it was a declaration of amazement and awe. Absolutely heartwarming :D
my older brother is living and suffering from the same exact situation and difficulties I am happy for this boy. I guess one day this treatment would be available for the masses and would be affordable too. It is so heartbreaking seeing the love ones dealing with the situation .
Me and my brother have this too
I’m so happy for maverick
He truly lives up to his name
The childlike glee of his entire family as they play tag in the dark has me in tears, its so beautiful.
Me :- oh I can get a eye replacement like this if I ever go blind
8:54 :- it cost $425,000 per eye
Now I better take care of my eyes 😂
This is a genetic disease
He is the same boy
As seen in
Netflix series
Un natural selection
Very funny
karmarlo Reid what?
@@kuerpotino8401 it's not a joke, it's a Netflix documentary
The title sounds so much like clickbait that people are sleeping on this awesome video
This is just awesome...👍👍
Maverick is so strong
Doctors: *Have created way to cureblindness*
Also doctors: ”That will be 100 thousand dollar”
Doctors only deliver the therapies
It's new technology,ofcourse it's gonna be expensive
It is actually one million
Me, a UK citizen: *LAUGHS IN UNIVERSAL HEALTH CARE*
that's where medical research comes in, i hope they could develop a more cheaper and safer way of treating this kind of ailments
Treatment prices are exorbitant, its crazy wow.
@@spaghetti358 I wonder what kind of insurance one needs to make this affordable tho. I live in Canada and my insurance would never cover that.
My teen has stargardt. Great hope
Wow my dad has stargardt and have never heard of any one else with it
Andrew Fitzgerald my doc told us that in 20 years of practice he has only diagnosed 3 kids. It usually kicks in around 8-11 yrs of age and stops progressing 4-5 yrs later. She got a full scholarship to a popular Texas state college. Amazing kid, she deals with it like a happy trooper. I keep my fingers crossed for a treatment that will improve her vision even for 20-30%. About 1:10k kids get this.
Amazing artist. @ibonniegumball
It’s NOT a miracle it’s SCIENCE
Science is a miracle. The ability of human ingenuity is one of the most beautiful things in existsnce.
I mean it depends
It gave us a scientific miracle
It’s a miracle
But it’s science
Science brings miracles that religions only talk about. Only science can prove miracles.
Beyond mind blowing and almost brought me to tears wow! Glad Maverick can see the world now and get to enjoy it in a different light.
"Doc, why is the sky green now?"
i didn't get the joke? pls explain
@@albinjt1 It's a joke about how your brain projects color differently. Blue to you can be seen as Red or Green or Purple or really any color to someone else. They'll agree that is It's Blue; but with new eyes the color projected to their mind could change and now Blue to them might be Green.
@@CockSmasher-xw4px haha! thanks for the explanation. That's a smart joke !
Him: It’s so dark
After surgery
Him: Geez have the light always been this bright?
I had really bad cataracts and thought I was going to go blind. Scary stuff. Hope they can treat all kids
How is your vision now?
$425,000 per eye and their insurance covered it...unbelievable...but it's amazing that science can even do that
Anything like this with kids and I can’t control my emotions. Really happy for the kid, and hoping it lasts.
happy for them! such a nice story, well, done!
*_Thanks for having English subtitles or captions_*
5:17 She shouldn't feel bad if it doesn't go well. This is the best decission. If she wouldn't accept to try it, her boy would go fully blind overtime.
So no matter what happen, if it goes bad then he may just going fully blind earlier or, the result she want and hope for.
She seems like a wonderful mom. 😊 Happy for this kid and his family.
At 8:15 someone yells STFU lol
Lol
I am blown away at the content quality of this video. The editing, camera shots, and the music truly feels next-gen. It feels very 2020 and you guys are setting an incredibly high standard of quality.
Could someone give me the info on the stock audio/music being used in the background at the end? Thanks.
That's why I watch Bloomberg! Positive news makes my day.
Such a brave, incredible kid.
Nobody should have to go through life without sight. Please like this video to help it trend and get Luxturna the attention it deserves
Who even dislikes this kind of thing?
that boy is a true delight. its a sight for sore eyes to see him able to see in low light. that just opened his future of opportunities up like non of us could ever know.
I am so happy for maverick. I just went for a consult for the same treatment. And the doctor said it would not work for me because I'm over the age of 55 and my retina is too thin. I hope and pray that they could come up with a treatment for those older individuals again congratulations for Maverick
Meaningful coverage, excellent content.
Amazing technology! But more amazing is the love and courage this family has. Your son is a beautiful and wonderful kid! God bless him.
This is why I want to go into gene editing. This is amazing stuff.
8:53: Luxturna costs 425.000 dollars per eye...
welcome to america lol
I have this too, super hard to live with.. I get the chills from this video
Great job to the developers of the therapy and I definitely hope we can solve blindness all together one day.
Really hope the scientists that were working on this treatment get to see this video and see the impact for their work.
7:23 that is some nice editing and camera work
Half a million dollars?! That should be the price for breast augmentation, not for the gift of vision to children.
That's because it's a new technology
A true Maverick indeed! I am glad things are looking up for him 🙂
Thank you to all the wonderful people doing there best to make this World a better place.
added some shares of CRISPR therapeutics to my portfolio
CRISPR is an error prone method for DNA transfers and modifications
their method with the virus is safer and more effective with less chance of errors (and a lesser risk of cancer)
eventually we may have things like CRISPR but better but thats not for another couple decades or so
@@Ponlets While what you are saying might be correct, we might still need CRISPR to create/modify a virus in the first place to introduce its RNA in a cell. I will hold it till the end of time.
@@theSilentPsycho CRISPR was not used in the creation of those viruses as it is error prone
they just needed to find a healthy copy of the sequence and inject it into a manufactured virus which was manufactured with a different method to CRISPR
@@Ponlets Oh. Please name a few listed companies that use new tech other than CRISPR. Also, what is the tech called
This is what most news channels on youtube should be about rather than the 50 millionth video about how X is doing worse than Y and why Y is bad
I am very happy for your son and beautiful family.
I have the same dizise as him but a different mutation, losing the vision I have left is terrifying, and I can't imagine how horrible it would for a person who can see normal to lose their sight.
Beautiful!
It's not a miracle - it's SCIENCE. When it comes time to vote - VOTE FOR SCIENCE. Vote for the candidate that embraces science and doesn't deny or reject it.
hear and read here.
@Mustache Merlin science has already become political
@@bonebard6178 Everything is political as soon as it becomes a topic that the vast majority of people argue over, and with the nature of being humans that simply means being anything popular.
that's pretty cool! Happy to see some insane evolution of medical treatment in my lifetime
This story really touched my heart and made me cry this is beutifull.
Great job
This treatment is priceless.
How great full he and his parents will be 😍
I love how the dog quickly follows up to him
Maverick is a lucky little boy. I too was born with LCA. I’m 32 now and I have severe vision loss. it’s cool that the next generation gets that kind of opportunity that I never had…
keep on stayin strong :)
@@manma6170 thanks
thanks to bloomberg for this awesome video
I wouldn't let a needle in my arm and I'd typically retaliate or flee now imagine how much my fear takes over when i realize that a needle is gonna stab my eye.
Don't worry, you'll be anaesthetised 1st.
Mmkay...now imagine you were legally blind, and that, by getting that needle in each eye, you were going to be able to see properly for the first time in your entire life. I honestly suspect you'd eventually get past your phobia for that opportunity.
@@yerghaizverot6441 no. just because i can get a vaccine doesn't mean i'm not afraid of needles, i do alot of mental preperation and physical movements just to distract myself from the thing stabbing me.
When that thing is pointed at your eye? How are you gonna distract yourself?
@@bear.6804 um... you cant see the needle so you're already distracted?
@@pratyushchauhan4107 ah yes. A needle and hand right infront of my view, close enough that it can't be ignored.
And probably another hand holding my eye open as my eyelids instinctually try to close.
Tell me what will i be distracted by?
bless you Maverick and all the parents, doctors, scientists responsible for this, I do hope the insurance and big pharma don't get greedy !
Next step: Add the laser update after all orders have been installed
Imagine if he goes on to be the first to bring advanced prosthetics to humanity, saving those with blindness, replacing eyes, deafness, limb loss, etc... and maybe even cybernetic organs
Cybernetics any time soon is super unlikely. I suspect clone body parts are far more likely in the short term because then it would be easier to integrate cybernetics into flesh once we understand more of the cells and dna. Now mechanical prosthetics are a thing but since they are not permanently mounted into flesh afaik it's not the same.
it's like bacteriophage therapy, i guess, instead battling bacteria it use to modified missing dna
I had a CRAO 2 years ago, went totally blind in one eye, permanent..currently no cure and no hope..
The future holds hope. We've replaced nearly every organ in the body even the brain. New eyes can be something and the way development is going.
How did that happen? Through complications of surgery?
What a kid. A true Maverick
Great use of technology!
Thanks for sharing this great news online. Blessings
This would help so many people!
The kid has eyes worth a million bucks
These families are heros!
May Allah bless n help all Docs to research more n more n make everything possible to resolve the disease, disabilities etc....Ameen
Aameen
Wonderful !
We’re beginning to step out of evolution’s niche “Dr Ford”
I hope that Bloomberg the man himself financially supports this kind of research
Beautiful. People are actually making positive changes
This is amazing. Science at its best.
i was feeling relly fuzzy and warm throughout and then saw that its 1/2 a Mil for treatment on one eye..
imagine those family that had that hope but no money..
health care should be human right.
cha ching,wow that's some serious coin.Their kitchen did look particularly gorgeous.
It’s a trial, I doubt this kid paid for it.
The first few trials are costly, afterwards it should be relatively cheap. Virus replication tends to be fairly easy to do.
it costs well over a billion dollars just in RnD just to get a new kind of asprin through, not to mention the time cost and "compliance" cost and just imagine what it takes especially for obscure illnesses and defects that affect so very few, if you want to crash medical development and leave them out to dry do something as daft as what you suggest.......
Great story
I am really happy for him
The best part is that it has been ten months since the video already; perhaps another such advancement or two have been made as of right now?
Right on time... Humanity may bypass the first major existential barrier after all.
Don't give up humanity- some of us are counting on you!
This is awesome
the new update looks awesome
Truely miraculous
The greed of American drug companies is sickeningly bottomless. I bet once this treatment is available outside the US, it will be provided at 1/10 of the extortionate price it is sold here in the US.
Need to find information about this stuff in Australia.
i want to know how much that injected virus is area of coverage and could be inserted for example by injecting it in arm? is it matter of time to reach to eye or remains locally and therefore should be injected to eye itself?
Nice video !!
Congratulations
25 year ago my bio prof in college said this would be the way of future medicine.
Great story, did you catch the end with how much it costs. Very depressing and a bit disturbing how much that actually costs, I think they call that greed.