QD158 Diagnosing Neuropsychiatric Lupus
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- Опубликовано: 25 авг 2024
- QD Clinic - Lessons from the clinic
My approach to diagnosing neuropsychiatric SLE (AKA lupus cerebritis)
QD Clinic is sponsored by RheumNow.Live (March 19 & 20, 2022 in Las Colinas Texas)
My daughter got ECTs and she stopped all of the psychosis. She got a pulse first. The ECTs were a miracle for us and they are noninvasive with no side effects.
When I first got sick I would often feel like a knot happening in my brain. Then my personality would change. I recently found out I have lupus cerebritis so I’m guessing that was the cause
This is very informative. I wish all rheums were this informed about npsle
Doing the diagnosis path now. NPSLE is the likely one imo. 😢
Why is it likely?
I have had psychosis on two separate occasions both during a lupus flare. I have anxiety, depression, headaches, fainting episodes. Recent MRI shows hyperintensities in the white matter and a microbleed. They discovered that my carotid arteries are blocked by 90%. They are not sure if it's vasculitis or atherosclerosis.
I'm having a hard time understanding everything. Should my doctor test spinal fluid? I'm on Plaquenil and aspirin. I'm also on antipsychotics. What can I expect?
Previous use of prednisone caused AVN in both hips and knees. Bilateral THR at age 32. I'm 45 now. What should I focus on or pay attention to?
Hey any update?
What exactly is psychosis, or how is manifested for you? Any treatments help?
This damn disease caused a misinterpreted scenario that altered my behavior and i lost the one person who was my savior that made me smile.