More than a Tremor Part 3 Living with Parkinson’s
HTML-код
- Опубликовано: 21 апр 2022
- In the third and final part of my Parkinson's story 'more than a tremor', you'll see what daily life can be like ...the symptoms, the medication (and their side effects), the on/off periods, what health care looks like and my hopes for the future
I'm currently on holiday in Clearwater, Florida, it's unusally cold with very blustering winds, so my husband and I are in our hotel room, he's watching TV whilst having an 'off' moment with his right arm tremor so I decided to explore yet again Parkinson's tremor and came across your three videos which I have just watched back to back. What an amazing watch! They are so candid and relatable and have helped me understand a little more about what my husband goes through on a day to day basic. He is 71 years young, we've been together for 10 years, married for just over 2 years and he was diagnosed 6 weeks before our wedding after ignoring the signs of a tremor for about 3 years. I've shared your videos with him, hoping that he'll watch them to learn that he is not alone! Thank you & hope that you're having the best day ever!...Janet, a wife & the best friend to Mike who has Parkinsons. 😊 🙏🏾
Thank you so much for these three videos on your Parkinson’s story. I found them so very helpful, and I hope I can get my Dad to stop
looking so negatively at this Parkinson’s too.
Thank you so much for sharing your thoughts. I have been only recently diagnosed. I am almost eighty and its been a long road to a diagnosis. Thank you again.
Love all of your videos. Thank you.
You have done a great job with these videos. Your story and symptoms are very very similar to mine. Probably the closest ive seen as most pd people i have met are much older and more advanced then me. Im 55 and its been 5 years since diagnosis. My Left side tremor/dystonia/slow thoughts/none motor, fatique & mood issues etc are very very similar to yours. When im on no one would know but when im.off...well in my mind its obvious. I can also 100% relate to every thought/word you say. I try to keep positive and upbeat but the dopamine on/off thing can make the day a rollercoaster ride. As you know we all have our bad hours/days but watching your videos and seeing your great attitude is very inspiring. Please keep this video series going if you can. ...very much appreciated. ...Paul from Australia 😊
Thank you so much for your videos. I was diagnosed at age 50 and started sewing and creating at that point. It’s so helpful to know why. Although I enjoy it so much, it can be quite compulsive! I have quite the fabric stash!
thank you, kind soul. Funnily enough I wrote a poem about hope Many years ago which echoed what you are saying. Now that we know what causes Parkinson's or Mr P as I call it, I see it becoming the new normal. Mr P has enriched my life in so many ways.
Very insightful video, thank you for sharing your experience with Parkinson's. I admire your insightful and optimistic approach to living with this condition :)
Thank you Thank you bless you and the words you share so very truthful and right on. My hope for you is keep expressing
yourself. More need to hear your words. I will keep listening. Thanks again I totally hear you.
Thank you.❤❤❤
I am new to PD - diagnosed a month ago - and trying to get a few answers from the neurologist, through the nurse, is like pulling teeth!!! I understand that there are not absolutes, but the CYA approach is frustrating. I think he nailed it on the 'twice a year for 15 minutes' approach - how the hell can anything be talked about/questioned/understood like that?? I have more time and feedback from my car mechanic!!! And the neurologist I use is 'highly regarded'!!!! I feel ike I would be better served by searching out the local SHAMAN!! Anyway, thanks for the video!!!
aww
I hear you! The saving grace is that there is a wealth of information about PD!! I recently discovered the Davis Phinney Foundation. Along with the high(er) profile Michael J Fox Foundation, there's quite alot of research being done. I'm newly diagnosed also...about a month ago. The sheer volume of resources is overwhelming. The state of medical care in my region is not good, from what I've experienced. We must do the work ourselves...as daunting as that is. Personal attention is scarce, but support is there if we seek it out. Best you you.
You are so interesting my husband has these symptoms he’s to see a Neurologist in 2 weeks so we can know thank you for your sincerity
YOU ARE SO INSPIRING 🤟👍🥰🩵
Thanks. Loved the summary! Also, what is the beautiful music?
you are very brave. Bless you!
You cover so many important topics. You should definitely share these videos beyond You tube. Struggling with words is quite frustrating for me as well. Thank God for video editing! It does wonders to make me sound more coherent when I’m making videos. Keep up the great work!
My husband had Parkinson's for 22 years. He passed away in 2018. Some of the side effects he experienced were hallucinations and delusions. I would not wish this disease for anyone.
Thank you for this video,sometimes i feel like I’m drowning in information. Thank you again
Thank you...
Thanks so much. That was so encouraging. I also thought that if a vaccine for Covid19 took so little time to discover, surely some treatment for Parkinson's could be discovered, especially considering all the time and effort undergone towards that goal by the Michael Fox foundation.
Thank you!
I have never been diagnosed with Parkinson's but I shook all the time and I had hallucinations. I learned energy healing including muscle testing. I found out I had cortisol in my nervous system in the brain area that caused over stimulation. I had adrenalin in my nervous system that caused my body to never rest. I had adrenalin in my muscles that caused them to tremor all the time. There are many options available to heal in energy medicine but if you can afford it a rife machine, or a healy or a Qi have great success. Also, many forms of breathwork clear hormones from the body. Rife is free online and I loop them often. Also there are many frequencies online from Ninad music for cortisol and other things. Free Reiki goes all night. I use Shaman Oaks mostly and he explains how to use his videos. I was a nurse for many years and Conventional Medicine can't even heal the common cold. You don't have to live with Parkinson's. Be prepared to work at it for about a year. Energy Medicine is the future. I wish you well in your healing journey. I feel like a new woman because of it. Muscle testing will tell you why you shake. You get yes and no answers only. You ask questions like "are my tremors caused by a stress hormone. Would that hormone be cortisol? "
My father has been diagnosed with Parkinson. Im trying to find subliminals to help him reverse parkinson.
Is very difficult.
The ones which are , the people who has tried it dont give updates….
Can you help me with that
Good luck. toronto canada.