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Thank you I listen to your podcasts 2 parkies , I find it so helpful

Thank you so much for being so honest about your feelings and to share your experience so genuinely! It will definitely help many people with PD to know they are not alone in how they feel and how they tackle this diagnosis. Wishing you strength and courage to fight this battle as best as you can! You are amazingly inspiring! 👏🙏

Not getting anywhere with nhs, sounds very familiar!!!!

What a lovely sensitive man you are🙏

I'm currently on holiday in Clearwater, Florida, it's unusally cold with very blustering winds, so my husband and I are in our hotel room, he's watching TV whilst having an 'off' moment with his right arm tremor so I decided to explore yet again Parkinson's tremor and came across your three videos which I have just watched back to back. What an amazing watch! They are so candid and relatable and have helped me understand a little more about what my husband goes through on a day to day basic. He is 71 years young, we've been together for 10 years, married for just over 2 years and he was diagnosed 6 weeks before our wedding after ignoring the signs of a tremor for about 3 years. I've shared your videos with him, hoping that he'll watch them to learn that he is not alone! Thank you & hope that you're having the best day ever!...Janet, a wife & the best friend to Mike who has Parkinsons. 😊 🙏🏾

I have dbs on Dec.6th. I take 25 pills per day. Diagnosed in 2018 at the age of 40. #noquit

you are very brave. Bless you!

Thank you.❤

Thank you.❤❤❤

Love all of your videos. Thank you.

You are so inquisitive. Keep up the good work. Love your color coordination. Your voice is beautiful. Thank you.

You have done a great job with these videos. Your story and symptoms are very very similar to mine. Probably the closest ive seen as most pd people i have met are much older and more advanced then me. Im 55 and its been 5 years since diagnosis. My Left side tremor/dystonia/slow thoughts/none motor, fatique & mood issues etc are very very similar to yours. When im on no one would know but when im.off...well in my mind its obvious. I can also 100% relate to every thought/word you say. I try to keep positive and upbeat but the dopamine on/off thing can make the day a rollercoaster ride. As you know we all have our bad hours/days but watching your videos and seeing your great attitude is very inspiring. Please keep this video series going if you can. ...very much appreciated. ...Paul from Australia 😊

My husband had Parkinson's for 22 years. He passed away in 2018. Some of the side effects he experienced were hallucinations and delusions. I would not wish this disease for anyone.

thank you, kind soul. Funnily enough I wrote a poem about hope Many years ago which echoed what you are saying. Now that we know what causes Parkinson's or Mr P as I call it, I see it becoming the new normal. Mr P has enriched my life in so many ways.

what app did you use to track this?

Thank you...

Good luck. toronto canada.

Thank you so much for sharing your thoughts. I have been only recently diagnosed. I am almost eighty and its been a long road to a diagnosis. Thank you again.

Great work ! I feel the same need for people with parkinson's to begin to speak loud . I try (in french) with my youtube channel @parkinsonsfollies Thanks for you sensitive videos

Thank you for sharing

👂👂Please guys join me and appreciate dr Liam Ogbebor herbal centre RUclips channel for curing me of tinnitus with the aid of his herbal medicine, I and so grateful that I am cured , thanks👂(

I think people with young onser Parkinson's have a much better prognosis. That's probably why ten years on you haven't regressed too much. I'm 67 and the deterioration has been swift.

Thanks so much. That was so encouraging. I also thought that if a vaccine for Covid19 took so little time to discover, surely some treatment for Parkinson's could be discovered, especially considering all the time and effort undergone towards that goal by the Michael Fox foundation.

So sorry my brother.🙏🏼🙏🏼

You are so interesting my husband has these symptoms he’s to see a Neurologist in 2 weeks so we can know thank you for your sincerity

I have never been diagnosed with Parkinson's but I shook all the time and I had hallucinations. I learned energy healing including muscle testing. I found out I had cortisol in my nervous system in the brain area that caused over stimulation. I had adrenalin in my nervous system that caused my body to never rest. I had adrenalin in my muscles that caused them to tremor all the time. There are many options available to heal in energy medicine but if you can afford it a rife machine, or a healy or a Qi have great success. Also, many forms of breathwork clear hormones from the body. Rife is free online and I loop them often. Also there are many frequencies online from Ninad music for cortisol and other things. Free Reiki goes all night. I use Shaman Oaks mostly and he explains how to use his videos. I was a nurse for many years and Conventional Medicine can't even heal the common cold. You don't have to live with Parkinson's. Be prepared to work at it for about a year. Energy Medicine is the future. I wish you well in your healing journey. I feel like a new woman because of it. Muscle testing will tell you why you shake. You get yes and no answers only. You ask questions like "are my tremors caused by a stress hormone. Would that hormone be cortisol? "

Any updates?

“Little ‘ol’ Parkinson’s”. That made me smile. Thanks for this video, it is very helpful and encouraging to hear. Good luck.

Thanks so much for sharing your story. It’s very encouraging! ❤

Thank you for this video,sometimes i feel like I’m drowning in information. Thank you again

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YOU ARE SO INSPIRING 🤟👍🥰🩵

Thank you for sharing your story 🩵🥰

Thank you Thank you bless you and the words you share so very truthful and right on. My hope for you is keep expressing yourself. More need to hear your words. I will keep listening. Thanks again I totally hear you.

Thank you so much for your videos. I was diagnosed at age 50 and started sewing and creating at that point. It’s so helpful to know why. Although I enjoy it so much, it can be quite compulsive! I have quite the fabric stash!

One of my favorite advocates. There’s something undeniable when you listen to Kuhan. Yes the corner of Compassion and Intelligence

Kuhan, a great series of 3 videos, well done and thank you

Thanks. Loved the summary! Also, what is the beautiful music?

You cover so many important topics. You should definitely share these videos beyond You tube. Struggling with words is quite frustrating for me as well. Thank God for video editing! It does wonders to make me sound more coherent when I’m making videos. Keep up the great work!

Great job on the video. I'm glad to hear that you're still in a good place at the 10 year mark. It took me two years to figure it out. I figured it out when I decided to search Parkinson's online....read the diagnosis and knew I had it. It was frustrating to think of all the doctors that didn't take the time to really look at my symptoms (gait change, no arm swing, occasional tremor, slowness). So, I also understand how much of a relief it was to get the diagnosis.

I watched this video after seeing you on the Parkinson's all volunteer call and have found it very moving, my husband had Parkinson's and I know what it was like when he got his diagnosis and how right you were to say live every day as a new day I hope it is all right but I am going to share you information and you tube details with our local group so they can see it .Keep well and keep up the fight against Parkinson's I will also try to see how I can find your pod casts Two Parkies in a Pod.

Thank you for you encouraging video. I was diagnosed one year ago and still struggle with coming to terms with it. Your story brings comfort and hope.

I am new to PD - diagnosed a month ago - and trying to get a few answers from the neurologist, through the nurse, is like pulling teeth!!! I understand that there are not absolutes, but the CYA approach is frustrating. I think he nailed it on the 'twice a year for 15 minutes' approach - how the hell can anything be talked about/questioned/understood like that?? I have more time and feedback from my car mechanic!!! And the neurologist I use is 'highly regarded'!!!! I feel ike I would be better served by searching out the local SHAMAN!! Anyway, thanks for the video!!!

Thank you for your story. I am in the early days of trying to get diagnosed. I was initially seen by a neuro for severe daily headaches that they think is from a leak in my spine. However, I was/am having lots of other symptoms that they now think is PD or PD-plus. I am curious to see if you had or have any of these issues. Right arm doesn't swing, I scream and move in my sleep, sleep apnea, I don't blink very much anymore, extreme stiffness in my facial, neck and back muscles, I shuffle when I walk from stiffness, I have cogwheel rigidity in my right wrist, light sensitivity and migraines, sweat like crazy at weird times, bed wetting, trouble reading and a resting tremor in my right two fingers as well as an internal tremor, massive fatigue and sleepiness in the day, depression and anxiety. I am scheduled to see a MDS in June but just trying to get a perspective of how others journey started and their symptoms.

Kuhan - I am so moved, touched and inspired by this amazing video sharing your experience in such a generous and vulnerable way. Thank you my dear friend for making the difference to me throughout the time we have known each other. ❤️❤️❤️

Very insightful video, thank you for sharing your experience with Parkinson's. I admire your insightful and optimistic approach to living with this condition :)

Thank you so much for these three videos on your Parkinson’s story. I found them so very helpful, and I hope I can get my Dad to stop looking so negatively at this Parkinson’s too.

An amazing video! very touching.

Gawd, if only I had a fiver for every time I've been told how well I look. On the other hand my reaction to diagnosis was different. I had been misdiagnosed and had been through the grieving process, for that is what it had felt like, already. I have no reluctance to tell people. I find it helps as my symptoms are quite visible and telling the truth prevents speculation. My divorce initially devastated me but in the long run it has been for the best. I won't go into details but I'm not sure she quite understood. Now I have a wonderful support group of fellow patients and their carers. I am now feeling ready,, perhaps, to start a new relationship. Our local branch has a very active, sociable group for younger patients. The branch is very active generally and there aren't many days when there is no activity on some level. However I felt the same as you on my first branch meeting, as did others in what we now call the Movers and Shakers. Thank you for making this video I am sure many will find it a great help. I wish you nothing but the very best for the future.

Kuhan as always I so relate to your story a really heartfelt video and good to hear about the positive aspects of being part of the club you never really wanted to join. Every point hits home especially the 'how long' questions and the process of diagnosis. It's a pleasure to know you. Carpe diem.