♡ Iron Infusion + Pre-Op for my Surgery!! | Amy's Life ♡
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- Опубликовано: 7 сен 2024
- ♡ Iron Infusion + Pre-Op for my Surgery!! ♡
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♡ MORE INFO ABOUT MY HEALTH ♡
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• MCAD: www.ukmasto.org...
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So sorry about the audio messing up when I posted this video the other day! It should all be fine now, love you guys thanks for being patient with me!! ❤️❤️❤️
🦘🦓🦁🐨 - JUMP like a kangaroo Amy ~ SPEAK OUT like a zebra ~ COURAGE like a lion ~ STAY CUTE like a koala❗
Love you so much. 💜
Had seen it my list as I watched another vid, then couldn’t find it! Though i was going mad!!
Excellent you are back Amy!! Keep doing your best and having a great day! :D
So glad to see you're okay. I was worried
I'm a medical student I've recommended your channel to so many people Amy (both other students and also some of the lovely patients I've met who are grappling with similar conditions to you. It's so generous of you to share your experience so openly. Learning about your experience as someone with chronic illness navigating the healthcare system has been so invaluable to me. Thank you so much. Sending you so much love for your recovery xxx
Lana C aww thank you so much too, I really appreciate it 😊❤️
Rip amy 😭❤️
As someone who has struggled with keeping their weight up and down at different periods... I remember hitting the healthy range after being underweight for so long. It's a proud -and weird- feeling ♡ good to see you back btw!
She was just so brave. I miss her very much. She just got the fuck on with it. Sia unstoppable reminds me of her
I'm so glad you have uploaded another video!! Amy, I can't even tell you how much I look up to you. I've suffered with Gastroparesis for years and years and been following your videos for a long time too. From seeing your social media, you have actually made me finally accept myself for the way I am, as I know there are other people out there too. I struggled to accept myself because I wasn't like 'normal' girls my age. So honestly, this is just a thank you message because you've been a massive inspiration for me. Sending you lots of love and hope you are feeling better soon!! xxxx
Hi Amy!!! So glad to see you back!
I've spent most of my life thinking I just needed to bear through all pain and not ask for things I needed... But I've actually learned recently that it's okay to ask the phlebotomist to talk to you while they inject or draw blood, etc. And it actually really helps me. They can just talk nonsense, sometimes, and it still is such a relief to focus on something else. That's just me, though!
Anyways, more importantly, I am so happy to see you back again. ❤️❤️❤️ I was watching some of your older vlogs and you look so much healthier compared to years ago before you started the TPN. We love you and are so proud of you!!
as an american seeing everyone not wearing a mask is ... !!! hope you're doing okay
Jess Rose right!?! I was so confused like you don’t have to wear masks anymore!?
She said this was filmed in July. Masks weren't made mandatory in Australia until later on! 😊
Caitey B masks are not mandatory every where in Australia. On in Victoria.
Western Australia is living it's best normal life it's crazy! They are living like the virus doesn't exist because it doesn't in that state, no restrictions no nothing! I'm living in the eastern states of Australia and it's a very different story... Melbourne is recovering from a second wave of covid and has been in heavy lockdown since July!
So good to see you again Amy! 😊 Hope you’re recovering from surgery okay 💕
Also, do the injections always take that long? I was quite surprised by how long the needle was in your arm for, but you handled it like a pro 💕
Glad to see you Amy. Those Xolair shots sure take ages to go in but I am so thankful for my three every month to help with my mast cell issues and hives 😀
I'm so glad you are vlogging again when you are feeling up to it. Since I started watching your videos, I have actually received my EDS Type III diagnosis. I'm much older and not nearly in as bad a shape as many of you are, but I have three daughters aged 14, 17 and 21 who are all experiencing the beginning symptoms in their high school and college years. Couple of more months and I can hopefully get them started seeing some initial doctors for diagnosis and treatment. Love you guys.
Omg we also take Xolair every second week! It has also helped us so much, since with out it, we experience really severe allergy symptoms. Now we are able to sleep at night without having to take multiple histamine tablets and creams and don’t get demerits and bloody spots on our body. It still doesn’t help much with our food allergies, but this is like due to the fact, that these allergies are triggered by t-cells and not Antibodies.❤️
I was on the UK Drug trial for omalizumab (xolair) back in 2009 . Then when it was approved after the trial I was on 3 injections every 2 weeks. It really helped me a lot with my anaphylaxis & MCAS the bone pain for me was tough. others that I’ve spoke to who were/are on it said that too. However after 6 years on it one day I happened to have a huge anaphylactic reaction to it and arrested. Luckily mine were done in my respiratory clinic so I was in the right place thank god I ended up spending 2 weeks in ITU ventilated. I was told by my Respiratory team & ITU team when they woke me up I narrowly missed them putting a tracheostomy in as my airway was so swollen in the end they used a peads ET tube till they had loaded me with IV adrenaline, hydrocortisone, aminophyline and salbutamol drips. I had two IO needles in, one in each shin. I’m so glad I wasn’t conscious when that happened!
Hope you do as well on it as I did, it for sure served me great for 5/6 years.
Sending love to your little furbaby’s too. 💜
Watching you honestly makes me stronger... Ive missed seeing your videos... I truly admire you... Thank you
Ohhhh yayyyyyyyyy!!! My favourite girl is back. This brought me Soo much Joy. I needed this joy today. My chemist stuffed up my injections 8 months ago and I'm still suffering for it, so seeing your you, is bringing me endless joy.
My nurse does my Xolair like it's a freaking epipen 😂 I'm glad its working for you, its been a miracle for me too!
Omg!!! I have not clicked so fast!!! I am so happy to see a vlog from you. I have been following you IG but still loving to see you vlog. I hope to see you back to vlogging but definitely take your time and make sure you don't over do it, your health is always what is most important to all of us!!! Cant wait to see a new house tour now that you guys have been living there for awhile now... Sending you lots of love!!!
So good to see you back! 😊 I hope the Xolair works a bit better for you now. Had to change mine to every 3 weeks to help with symptoms x I was just doing my own at home while watching the vid 😂 Sending all the air hugs and best wishes to you guys, hope you're all keeping safe and well 💜
I was wondering how you were doing! Glad to see you are okay. Good luck on surgery! I'm getting total knee replacements soon because my OA is so bad at the ripe age of 19. I feel for you!
God bless you Amy for encouraging others and being such a beautiful and strong person!
Una ragazza davvero speciale, mi piange il cuore r. I. P. Amy.
Good luck with your surgery get better soon enjoy watching your lovely face and God bless
Dear Amy
I just wanted to tell you that you are my HERO 🧡🧡..
I also suffer from some serious health problems...and for a very long time I've done nothing but to cry over themm...but when I found you, you made me realize that life holds much more..I need to be strong and not let such things come in my way of fulfilling my dreams...
Lots of love and wishes from India🤗🤩🤩😊😊
Sheetal Rathi yes hun, you are so strong you got this. Sometimes we may have to work harder than normal people to reach our goals, but when we do it’s the most satisfying and incredible feeling. You got this, I know you can reach your dreams/goals sending my love! 💕💕💕💕
Wow u really know your treatments. Thats great. U just keep rocking through all the hurdles thrown at you. Your so cute even on your bad days. Such a inspiration🥰🙏💜
Amy you are a nice person . HANG IN THERE, don't let thing people say hurt you .
Amy its good to have your shining personality back! ❤🐾🐾
So glad you posted, I was worried about you. Watched all your videos after finding your channel and love watching. Thanks for sharing your life with us!
i am so exited to have you back! you are literally my biggest role model and hero, i love you so much an di hope you have a speedy recovery!!! 🥺💖
Oh, yuck, I had IV iron treatments for severe anemia. I don't tolerate oral iron, but the IV version hurt like h**l! Bless you! 😷🇺🇸
So so so happy that you are coping with all the stuff you are going through and doing what you can to get well and put out content but I really wish your life was easier and you could be at least pain free, you are such a wonderful person and I really wish you all the best ❤️
So glad to see you back, Amy. Love you
I was looking all over for your channel I’m glad to see you’re uploading again 😊
Miss you Amy! ❤️. RIP
So glad that you are back!! I hope everything went well with your surgery.
Yay! I miss seeing your face all the time to the point I just watch old videos from the start again before bed because your voice and demeanor relaxes me! Sending you all the best love and vibes!
missed you xxx
Amy, you are so beautiful! PLEASE don't worry about your skin. Everyone has break outs every now and again! I certainly don't look or notice them in your videos until you point it out lol. Much love from Texas, USA!
You are such a beautiful 😍 soul that the world is a better place for your sharing with us. 🙏
So so excited to see that you’re back and doing well! :) Sending you lots of love and hugs Amy! 🖤🤍🖤🤍🖤🤍
Oh I’m so happy to see you back xx
I’m so thrilled, welcome back Amy!!
I was so excited when I saw you had posted a new video. I missed you. I hope things are going ok and your surgery went well
I really needed this video, You are perfection, thanks for all the content you have provided over the years ❤️💜🧡🖤💛🤍💚🤎💙
How's everything over there with covid just curious cuz i see no one with mask cuz here is not so good. Glad to see you again
She said there is pretty much no cases where she is. There is in other states but not hers and all the borders are closed where no one can come in or go out
Other than Melbourne, Australia is pretty much covid free
So lucky💜
So nice to hear from you Amy! Love you!
I love this sweet angel 💜💜💜
Thanks, Amy!!
Happy to see your face. How your recovery is going well. Love from the US
Happy to hear from you again 🥰 I was beginning to worry 😅
Miss you Amy
I hope everything went well for you!! Welcome back!! Hope you're healing well after surgery.
It worked perfect, I hope everything is going alright for you, Ill be praying for you.
Welcome back missed your videos
I've just had my 3rd lot of injections of Xolair, it has been amazing!. Before Xolair I was covered from the bottom of my feet to my scalp in severe hives, and now I just have a few hive heat and there.
Stupidly I thought I could stop having the injections 🤦♀️ WOW what a massive massive mistake.q
babybluex i’m literally the same, this drug has been absolutely life changing for me, I couldn’t live without it… Literally😂😅😭
@@amyslife4457 i didn't know how I could live day to day before this, I took 1 month off and my gosh it hit me like a train! I was off the meds for 1 month and my god it came back twice as hard! I regret ever coming off, I just thought that maybe I could but oh no! I have reactions ever day but 3 days ago my entire body was destroyed in hives,.
@@amyslife4457 I am never going to give xolair up it is just not worth it.
I'm so happy to see you back on YT Amy xx we've missed you xx.
I love seeing you post! So glad to hear from you.
We don't mind the long videos but okay love, so glad to see you back.😁
Lovely to see you back Amy 😘❤️we love you too 😘
Glad your ok
Yay we can hear your pretty voice on this one! Miss ya Amy❣
Hi Amy, I'm so happy to see you. Thank you for the update.😊
Glad your back missed your videos hope you and Tom are well and stay safe ❤️
Te extrañé hermosa!!! I have been dealing with two months straight with my period, I’m so scared to have iron infusions cause I don’t do good with those, it makes me so sick. Last year I had to take them for the same reason and all of this thanks to my kidney's medication 😔 I’m so scared
So glad to see you back!
Great to see you again Amy!
Hi Amy! Glad to see you back and a video. 😀 Hope you and your family are doing well 😊
I hope all goes well ♥️
I was so happy to see you uploaded a video! And I can’t wait until Christmas season, I enjoyed you two opening your Harry Potter Christmas countdown!!!!!! Missed you so much! Glad to see that face of yours 🤩
so glad to see you back 💛
Hey girl hey, glad to see you are back. Love that you stay in such good spirits. Love you ❤❤
Glad you will be back up and “running” soon. ❤️❤️❤️
... or HOPPING like a kangaroo! 🦘
Susan Margaret Wills ahahaha 😂😂😂
🏃🏻♀️🏃🏻♀️🏃🏻♀️🏃🏻♀️😂
Hey Amy glad to see you back again can't wait to see more and updates xx
Really good to see you and that you have put weight on. Hope your surgery went well, Stay safe xxxxx
Omggg hi Amy yay ur back
Good to see you back! We're all good with shorter vlogs so don't even worry about that. We've all just missed hearing from you. Do what you need to do, eh? 💕💕💕
I loved this vlog! You looked so happy ❤️ all the best and can't wait to see more
Glad to see you going strong still 🙂🙂🙂🙂
Hey welcome back glad to see you are doing well
I’m confused....did you post one before this one. I have been scared to death and checking on here all the time to see if your ok and there was never any video. I am so glad to see you, I was so worried I was crying. My Vascular EDS has gotten a lot worse. So I have been on here trying to see if you were ok. I’m so happy to finally see you. I don’t use IG because I’m losing my vision, I don’t know how it works but if it’s anything like a chat room, I couldn’t do it.
I’m registered blind (like the UK version of legally blind in America) because of my EDS and use an iPhone with a screen reader, message me if you want any tips.
billieblue Sheepie Good morning , here anyway...😊, l have had an almost complete detached Retna, that 2 Chief’s of Ophthalmology missed. I finally went to a big Hospital and that Doctor missed it but his Fellow said “ I think up you should look at this, and of course the doctor got mad at him but looked anyway and then left the room. Next thing I know a Retnal Specialist came rushing in, she tried to get me into surgery immediately but all the operating rooms were full so they sent me home, sent me home...I couldn’t believe it. I was about ready to go blind. They did the surgery the next day, using that brown liquid ( Butadiene ), that she knew I was Anaphylactic to, on my eye during surgery. I could here the Anesthesiologist telling her “ No Way, I’m not a part of this, give me the chart I’m writing this down, she is Anaphylactic to this, it’s got Iodine in it”. She used it and I was in excruciating pain after they sent me home the same day, had to call and go all the way down there, screaming in pain. I wound 'up in ICU, where they had to keep me knocked out because of the pain. So I also wound up with Macular problems, if I look at your face or the TV I don’t see parts of it, straight lines are all wavy, I can’t drive anymore. I can’t do the things I love like my Art work, crafting or Photography. '' wow, I have really gone on and on here haven’t I ? I’m so sorry. I just felt I kind of had to explain because I don’t think what you have will work for me. If you would still like to explain it to me that would be great. Thank You so much. It took me forever to write this, hahaha !!{{
You're awesome Amy💟 Nice to see you back
Happy you're back, can't wait to see you more often
Nice to see you back.
So good to see you again, stay well❤
Awesome to see you again
Glad you are ok! And pretty as always
I'm watching this video on my work computer cause I can't wait until I get home to watch you! Missed you!!
So glad to see you again!💗
HI AMY! SO good to see you! Glad your doing well!
Welcome back Amy!!!!
so sweet young lady God bless take care from Texas
So happy you're back
So happy to see your face Amy!
Happy to see you again! 💕
Omg girlll!! I'm so happy your ok! 💜✌️💪
Lovely to see you again ❤️
yay you're back :) Happy to see you!
Omg I’m so happy to see you back ! ❤️
So happy you are back!!!!
Also, I am going to be evaluated for gastroparesis soon. I had 2 liver transplants 3 years ago and now I am throwing up every morning, so bloated all the time, pressure... it’s no fun. I’m so happy I started following you ♥️
Glad to see you back , I have missed you so much , love you cutey
hope you're doing well, lovely xxx