So sorry about the audio messing up when I posted this video the other day! It should all be fine now, love you guys thanks for being patient with me!! ❤️❤️❤️
I'm a medical student I've recommended your channel to so many people Amy (both other students and also some of the lovely patients I've met who are grappling with similar conditions to you. It's so generous of you to share your experience so openly. Learning about your experience as someone with chronic illness navigating the healthcare system has been so invaluable to me. Thank you so much. Sending you so much love for your recovery xxx
As someone who has struggled with keeping their weight up and down at different periods... I remember hitting the healthy range after being underweight for so long. It's a proud -and weird- feeling ♡ good to see you back btw!
I'm so glad you have uploaded another video!! Amy, I can't even tell you how much I look up to you. I've suffered with Gastroparesis for years and years and been following your videos for a long time too. From seeing your social media, you have actually made me finally accept myself for the way I am, as I know there are other people out there too. I struggled to accept myself because I wasn't like 'normal' girls my age. So honestly, this is just a thank you message because you've been a massive inspiration for me. Sending you lots of love and hope you are feeling better soon!! xxxx
I've spent most of my life thinking I just needed to bear through all pain and not ask for things I needed... But I've actually learned recently that it's okay to ask the phlebotomist to talk to you while they inject or draw blood, etc. And it actually really helps me. They can just talk nonsense, sometimes, and it still is such a relief to focus on something else. That's just me, though! Anyways, more importantly, I am so happy to see you back again. ❤️❤️❤️ I was watching some of your older vlogs and you look so much healthier compared to years ago before you started the TPN. We love you and are so proud of you!!
Ohhhh yayyyyyyyyy!!! My favourite girl is back. This brought me Soo much Joy. I needed this joy today. My chemist stuffed up my injections 8 months ago and I'm still suffering for it, so seeing your you, is bringing me endless joy.
I'm so glad you are vlogging again when you are feeling up to it. Since I started watching your videos, I have actually received my EDS Type III diagnosis. I'm much older and not nearly in as bad a shape as many of you are, but I have three daughters aged 14, 17 and 21 who are all experiencing the beginning symptoms in their high school and college years. Couple of more months and I can hopefully get them started seeing some initial doctors for diagnosis and treatment. Love you guys.
Glad to see you Amy. Those Xolair shots sure take ages to go in but I am so thankful for my three every month to help with my mast cell issues and hives 😀
Omg we also take Xolair every second week! It has also helped us so much, since with out it, we experience really severe allergy symptoms. Now we are able to sleep at night without having to take multiple histamine tablets and creams and don’t get demerits and bloody spots on our body. It still doesn’t help much with our food allergies, but this is like due to the fact, that these allergies are triggered by t-cells and not Antibodies.❤️
Omg!!! I have not clicked so fast!!! I am so happy to see a vlog from you. I have been following you IG but still loving to see you vlog. I hope to see you back to vlogging but definitely take your time and make sure you don't over do it, your health is always what is most important to all of us!!! Cant wait to see a new house tour now that you guys have been living there for awhile now... Sending you lots of love!!!
So good to see you back! 😊 I hope the Xolair works a bit better for you now. Had to change mine to every 3 weeks to help with symptoms x I was just doing my own at home while watching the vid 😂 Sending all the air hugs and best wishes to you guys, hope you're all keeping safe and well 💜
I was on the UK Drug trial for omalizumab (xolair) back in 2009 . Then when it was approved after the trial I was on 3 injections every 2 weeks. It really helped me a lot with my anaphylaxis & MCAS the bone pain for me was tough. others that I’ve spoke to who were/are on it said that too. However after 6 years on it one day I happened to have a huge anaphylactic reaction to it and arrested. Luckily mine were done in my respiratory clinic so I was in the right place thank god I ended up spending 2 weeks in ITU ventilated. I was told by my Respiratory team & ITU team when they woke me up I narrowly missed them putting a tracheostomy in as my airway was so swollen in the end they used a peads ET tube till they had loaded me with IV adrenaline, hydrocortisone, aminophyline and salbutamol drips. I had two IO needles in, one in each shin. I’m so glad I wasn’t conscious when that happened! Hope you do as well on it as I did, it for sure served me great for 5/6 years. Sending love to your little furbaby’s too. 💜
I was wondering how you were doing! Glad to see you are okay. Good luck on surgery! I'm getting total knee replacements soon because my OA is so bad at the ripe age of 19. I feel for you!
So glad you posted, I was worried about you. Watched all your videos after finding your channel and love watching. Thanks for sharing your life with us!
Yay! I miss seeing your face all the time to the point I just watch old videos from the start again before bed because your voice and demeanor relaxes me! Sending you all the best love and vibes!
Wow u really know your treatments. Thats great. U just keep rocking through all the hurdles thrown at you. Your so cute even on your bad days. Such a inspiration🥰🙏💜
Just knowing rhat this was followed by a video of a horrible few months with the surgery your isolation and depression..then realising you're no longer here.. it hurts 😢 but i know you are in a better place ❤
So so so happy that you are coping with all the stuff you are going through and doing what you can to get well and put out content but I really wish your life was easier and you could be at least pain free, you are such a wonderful person and I really wish you all the best ❤️
Dear Amy I just wanted to tell you that you are my HERO 🧡🧡.. I also suffer from some serious health problems...and for a very long time I've done nothing but to cry over themm...but when I found you, you made me realize that life holds much more..I need to be strong and not let such things come in my way of fulfilling my dreams... Lots of love and wishes from India🤗🤩🤩😊😊
Sheetal Rathi yes hun, you are so strong you got this. Sometimes we may have to work harder than normal people to reach our goals, but when we do it’s the most satisfying and incredible feeling. You got this, I know you can reach your dreams/goals sending my love! 💕💕💕💕
Amy, you are so beautiful! PLEASE don't worry about your skin. Everyone has break outs every now and again! I certainly don't look or notice them in your videos until you point it out lol. Much love from Texas, USA!
Western Australia is living it's best normal life it's crazy! They are living like the virus doesn't exist because it doesn't in that state, no restrictions no nothing! I'm living in the eastern states of Australia and it's a very different story... Melbourne is recovering from a second wave of covid and has been in heavy lockdown since July!
She said there is pretty much no cases where she is. There is in other states but not hers and all the borders are closed where no one can come in or go out
I was so happy to see you uploaded a video! And I can’t wait until Christmas season, I enjoyed you two opening your Harry Potter Christmas countdown!!!!!! Missed you so much! Glad to see that face of yours 🤩
Also, I am going to be evaluated for gastroparesis soon. I had 2 liver transplants 3 years ago and now I am throwing up every morning, so bloated all the time, pressure... it’s no fun. I’m so happy I started following you ♥️
I've just had my 3rd lot of injections of Xolair, it has been amazing!. Before Xolair I was covered from the bottom of my feet to my scalp in severe hives, and now I just have a few hive heat and there. Stupidly I thought I could stop having the injections 🤦♀️ WOW what a massive massive mistake.q
@@amyslife4457 i didn't know how I could live day to day before this, I took 1 month off and my gosh it hit me like a train! I was off the meds for 1 month and my god it came back twice as hard! I regret ever coming off, I just thought that maybe I could but oh no! I have reactions ever day but 3 days ago my entire body was destroyed in hives,.
She goes over it in a more recent video, but her left hip is even more hyper mobile and the surgery took like double the time and was a lot harder to do.
![I.N "HALLUCINATION" | [Stray Kids : SKZ-PLAYER]](http://i.ytimg.com/vi/n5B5q1Hwt_U/mqdefault.jpg)
So sorry about the audio messing up when I posted this video the other day! It should all be fine now, love you guys thanks for being patient with me!! ❤️❤️❤️
🦘🦓🦁🐨 - JUMP like a kangaroo Amy ~ SPEAK OUT like a zebra ~ COURAGE like a lion ~ STAY CUTE like a koala❗
Love you so much. 💜
Had seen it my list as I watched another vid, then couldn’t find it! Though i was going mad!!
Excellent you are back Amy!! Keep doing your best and having a great day! :D
So glad to see you're okay. I was worried
I'm a medical student I've recommended your channel to so many people Amy (both other students and also some of the lovely patients I've met who are grappling with similar conditions to you. It's so generous of you to share your experience so openly. Learning about your experience as someone with chronic illness navigating the healthcare system has been so invaluable to me. Thank you so much. Sending you so much love for your recovery xxx
Lana C aww thank you so much too, I really appreciate it 😊❤️
Rip amy 😭❤️
She was just so brave. I miss her very much. She just got the fuck on with it. Sia unstoppable reminds me of her
As someone who has struggled with keeping their weight up and down at different periods... I remember hitting the healthy range after being underweight for so long. It's a proud -and weird- feeling ♡ good to see you back btw!
I'm so glad you have uploaded another video!! Amy, I can't even tell you how much I look up to you. I've suffered with Gastroparesis for years and years and been following your videos for a long time too. From seeing your social media, you have actually made me finally accept myself for the way I am, as I know there are other people out there too. I struggled to accept myself because I wasn't like 'normal' girls my age. So honestly, this is just a thank you message because you've been a massive inspiration for me. Sending you lots of love and hope you are feeling better soon!! xxxx
I've spent most of my life thinking I just needed to bear through all pain and not ask for things I needed... But I've actually learned recently that it's okay to ask the phlebotomist to talk to you while they inject or draw blood, etc. And it actually really helps me. They can just talk nonsense, sometimes, and it still is such a relief to focus on something else. That's just me, though!
Anyways, more importantly, I am so happy to see you back again. ❤️❤️❤️ I was watching some of your older vlogs and you look so much healthier compared to years ago before you started the TPN. We love you and are so proud of you!!
Hi Amy!!! So glad to see you back!
Watching you honestly makes me stronger... Ive missed seeing your videos... I truly admire you... Thank you
Ohhhh yayyyyyyyyy!!! My favourite girl is back. This brought me Soo much Joy. I needed this joy today. My chemist stuffed up my injections 8 months ago and I'm still suffering for it, so seeing your you, is bringing me endless joy.
I'm so glad you are vlogging again when you are feeling up to it. Since I started watching your videos, I have actually received my EDS Type III diagnosis. I'm much older and not nearly in as bad a shape as many of you are, but I have three daughters aged 14, 17 and 21 who are all experiencing the beginning symptoms in their high school and college years. Couple of more months and I can hopefully get them started seeing some initial doctors for diagnosis and treatment. Love you guys.
Glad to see you Amy. Those Xolair shots sure take ages to go in but I am so thankful for my three every month to help with my mast cell issues and hives 😀
Omg we also take Xolair every second week! It has also helped us so much, since with out it, we experience really severe allergy symptoms. Now we are able to sleep at night without having to take multiple histamine tablets and creams and don’t get demerits and bloody spots on our body. It still doesn’t help much with our food allergies, but this is like due to the fact, that these allergies are triggered by t-cells and not Antibodies.❤️
Omg!!! I have not clicked so fast!!! I am so happy to see a vlog from you. I have been following you IG but still loving to see you vlog. I hope to see you back to vlogging but definitely take your time and make sure you don't over do it, your health is always what is most important to all of us!!! Cant wait to see a new house tour now that you guys have been living there for awhile now... Sending you lots of love!!!
God bless you Amy for encouraging others and being such a beautiful and strong person!
So good to see you back! 😊 I hope the Xolair works a bit better for you now. Had to change mine to every 3 weeks to help with symptoms x I was just doing my own at home while watching the vid 😂 Sending all the air hugs and best wishes to you guys, hope you're all keeping safe and well 💜
I was on the UK Drug trial for omalizumab (xolair) back in 2009 . Then when it was approved after the trial I was on 3 injections every 2 weeks. It really helped me a lot with my anaphylaxis & MCAS the bone pain for me was tough. others that I’ve spoke to who were/are on it said that too. However after 6 years on it one day I happened to have a huge anaphylactic reaction to it and arrested. Luckily mine were done in my respiratory clinic so I was in the right place thank god I ended up spending 2 weeks in ITU ventilated. I was told by my Respiratory team & ITU team when they woke me up I narrowly missed them putting a tracheostomy in as my airway was so swollen in the end they used a peads ET tube till they had loaded me with IV adrenaline, hydrocortisone, aminophyline and salbutamol drips. I had two IO needles in, one in each shin. I’m so glad I wasn’t conscious when that happened!
Hope you do as well on it as I did, it for sure served me great for 5/6 years.
Sending love to your little furbaby’s too. 💜
Good luck with your surgery get better soon enjoy watching your lovely face and God bless
Una ragazza davvero speciale, mi piange il cuore r. I. P. Amy.
I was wondering how you were doing! Glad to see you are okay. Good luck on surgery! I'm getting total knee replacements soon because my OA is so bad at the ripe age of 19. I feel for you!
So good to see you again Amy! 😊 Hope you’re recovering from surgery okay 💕
Also, do the injections always take that long? I was quite surprised by how long the needle was in your arm for, but you handled it like a pro 💕
So glad to see you back, Amy. Love you
So glad you posted, I was worried about you. Watched all your videos after finding your channel and love watching. Thanks for sharing your life with us!
Glad your ok
Yay! I miss seeing your face all the time to the point I just watch old videos from the start again before bed because your voice and demeanor relaxes me! Sending you all the best love and vibes!
Wow u really know your treatments. Thats great. U just keep rocking through all the hurdles thrown at you. Your so cute even on your bad days. Such a inspiration🥰🙏💜
I was looking all over for your channel I’m glad to see you’re uploading again 😊
So nice to hear from you Amy! Love you!
So glad that you are back!! I hope everything went well with your surgery.
My nurse does my Xolair like it's a freaking epipen 😂 I'm glad its working for you, its been a miracle for me too!
i am so exited to have you back! you are literally my biggest role model and hero, i love you so much an di hope you have a speedy recovery!!! 🥺💖
Just knowing rhat this was followed by a video of a horrible few months with the surgery your isolation and depression..then realising you're no longer here.. it hurts 😢 but i know you are in a better place ❤
So so so happy that you are coping with all the stuff you are going through and doing what you can to get well and put out content but I really wish your life was easier and you could be at least pain free, you are such a wonderful person and I really wish you all the best ❤️
I’m so thrilled, welcome back Amy!!
Thanks, Amy!!
Lovely to see you back Amy 😘❤️we love you too 😘
I hope all goes well ♥️
Dear Amy
I just wanted to tell you that you are my HERO 🧡🧡..
I also suffer from some serious health problems...and for a very long time I've done nothing but to cry over themm...but when I found you, you made me realize that life holds much more..I need to be strong and not let such things come in my way of fulfilling my dreams...
Lots of love and wishes from India🤗🤩🤩😊😊
Sheetal Rathi yes hun, you are so strong you got this. Sometimes we may have to work harder than normal people to reach our goals, but when we do it’s the most satisfying and incredible feeling. You got this, I know you can reach your dreams/goals sending my love! 💕💕💕💕
Happy to see your face. How your recovery is going well. Love from the US
I love this sweet angel 💜💜💜
Amy its good to have your shining personality back! ❤🐾🐾
I love seeing you post! So glad to hear from you.
Yay we can hear your pretty voice on this one! Miss ya Amy❣
I really needed this video, You are perfection, thanks for all the content you have provided over the years ❤️💜🧡🖤💛🤍💚🤎💙
Oh I’m so happy to see you back xx
We don't mind the long videos but okay love, so glad to see you back.😁
Amy, you are so beautiful! PLEASE don't worry about your skin. Everyone has break outs every now and again! I certainly don't look or notice them in your videos until you point it out lol. Much love from Texas, USA!
I was so excited when I saw you had posted a new video. I missed you. I hope things are going ok and your surgery went well
So glad to see you back!
Welcome back missed your videos
So so excited to see that you’re back and doing well! :) Sending you lots of love and hugs Amy! 🖤🤍🖤🤍🖤🤍
I hope everything went well for you!! Welcome back!! Hope you're healing well after surgery.
You are such a beautiful 😍 soul that the world is a better place for your sharing with us. 🙏
It worked perfect, I hope everything is going alright for you, Ill be praying for you.
Welcome back Amy!!!!
so sweet young lady God bless take care from Texas
Great to see you again Amy!
as an american seeing everyone not wearing a mask is ... !!! hope you're doing okay
Jess Rose right!?! I was so confused like you don’t have to wear masks anymore!?
She said this was filmed in July. Masks weren't made mandatory in Australia until later on! 😊
Caitey B masks are not mandatory every where in Australia. On in Victoria.
Western Australia is living it's best normal life it's crazy! They are living like the virus doesn't exist because it doesn't in that state, no restrictions no nothing! I'm living in the eastern states of Australia and it's a very different story... Melbourne is recovering from a second wave of covid and has been in heavy lockdown since July!
Glad you are ok! And pretty as always
Amy you are a nice person . HANG IN THERE, don't let thing people say hurt you .
Hey Amy glad to see you back again can't wait to see more and updates xx
Glad your back missed your videos hope you and Tom are well and stay safe ❤️
Awesome to see you again
You're awesome Amy💟 Nice to see you back
How's everything over there with covid just curious cuz i see no one with mask cuz here is not so good. Glad to see you again
She said there is pretty much no cases where she is. There is in other states but not hers and all the borders are closed where no one can come in or go out
Other than Melbourne, Australia is pretty much covid free
So lucky💜
yay you're back :) Happy to see you!
So happy you're back
Hey girl hey, glad to see you are back. Love that you stay in such good spirits. Love you ❤❤
I was so happy to see you uploaded a video! And I can’t wait until Christmas season, I enjoyed you two opening your Harry Potter Christmas countdown!!!!!! Missed you so much! Glad to see that face of yours 🤩
Miss you Amy
So happy you are back!!!!
Also, I am going to be evaluated for gastroparesis soon. I had 2 liver transplants 3 years ago and now I am throwing up every morning, so bloated all the time, pressure... it’s no fun. I’m so happy I started following you ♥️
Hi Amy, I'm so happy to see you. Thank you for the update.😊
Miss you Amy! ❤️. RIP
Glad to see you going strong still 🙂🙂🙂🙂
I loved this vlog! You looked so happy ❤️ all the best and can't wait to see more
missed you xxx
Really good to see you and that you have put weight on. Hope your surgery went well, Stay safe xxxxx
So happy to see your face Amy!
Nice to see you back.
Oh, yuck, I had IV iron treatments for severe anemia. I don't tolerate oral iron, but the IV version hurt like h**l! Bless you! 😷🇺🇸
Glad you will be back up and “running” soon. ❤️❤️❤️
... or HOPPING like a kangaroo! 🦘
Susan Margaret Wills ahahaha 😂😂😂
🏃🏻♀️🏃🏻♀️🏃🏻♀️🏃🏻♀️😂
Happy you're back, can't wait to see you more often
I'm watching this video on my work computer cause I can't wait until I get home to watch you! Missed you!!
Yay!!! I’m so happy you’re back!
So good to see you again, stay well❤
Glad to see you back , I have missed you so much , love you cutey
Hi Amy! Glad to see you back and a video. 😀 Hope you and your family are doing well 😊
So glad to see you again!💗
Omg girlll!! I'm so happy your ok! 💜✌️💪
so glad to see you back 💛
So glad u uploaded ❤️❤️
Omg I’m so happy to see you back ! ❤️
Happy to see you again! 💕
Hi Amy. I always keep waiting 4 ur video 4 my required dose of life's inspiration.
Been waiting for a new video for so long! Missed you so much ❤️
Lovely to see you again ❤️
Omggg hi Amy yay ur back
I've just had my 3rd lot of injections of Xolair, it has been amazing!. Before Xolair I was covered from the bottom of my feet to my scalp in severe hives, and now I just have a few hive heat and there.
Stupidly I thought I could stop having the injections 🤦♀️ WOW what a massive massive mistake.q
babybluex i’m literally the same, this drug has been absolutely life changing for me, I couldn’t live without it… Literally😂😅😭
@@amyslife4457 i didn't know how I could live day to day before this, I took 1 month off and my gosh it hit me like a train! I was off the meds for 1 month and my god it came back twice as hard! I regret ever coming off, I just thought that maybe I could but oh no! I have reactions ever day but 3 days ago my entire body was destroyed in hives,.
@@amyslife4457 I am never going to give xolair up it is just not worth it.
I'm so happy to see you back on YT Amy xx we've missed you xx.
Happy to hear from you again 🥰 I was beginning to worry 😅
Had no idea you were having a full hip replacement? Where they unable to do the same surgery as last time?
She goes over it in a more recent video, but her left hip is even more hyper mobile and the surgery took like double the time and was a lot harder to do.