I've been exposed to tick bites, covid at the same time last Spring while living in mobile home that had water. I am now bedridden and can't work. Thank you for putting these videos out!
My exposure happened from a new job in 2020. Got CIRS in 2 weeks. My advice. Please LEAVE exposure! Get on binders like CSM, Welchol & Mycobind. Go slow. Watch your VCS Test improve until you pass. Go after Marcons and go after it hard, low MSH is why you have CIRS. Marcons helps keep it low. Also actinos! This is the biggest monster to CIRS. They like to colonize our skin after picking them up from the WDB. Lots of unknown about them. But do the Actinos skin test and see if your numbers are high. Right now I’m struggling at the Marcons step. My brain inflammation was SEVERE and now it’s moderate.
I keep coming back to CIRS and now there's so many connections i believe fully all my future issue stem from it. 14 years and still going... Can't wait to heal 😂 Thanks for putting out all of this information! Be well
@@thecirsgroup😊🙏 Btw, I did the VCS test---got 98% and 100% of vision / biotoxin. So a complete negative, but got 13/13 on the questionaire. Do you think it could still be CIRS? Chronic elevated inflammation via IGG4 blood tests for years now. Lived in black mold apartment 2-3 months + 10 months in mold before that, and gradually got Dysbiosis, MCS, MCAS, Sarcoidosis +++ (Celiac (HLA-DQ4/8 since age 2)).
Glad I found you guys! I too, did Carnivore before it was cool… lol… started back in 2019. Was living in a small mountain town here in CO for the past year and after about 10 mos it almost killed me. Blood in toilet, my digestion stopped, thought I had colon cancer. Did ERMI test and found various strains, including black mold. I got out & came back to Denver. I lost everything: my housing, my job, my career plans. Also, now being diagnosed with Endometriosis. This sh** is no joke!!
ugh WOW. That is terrible, I am so sorry you went through all of that. I know on the other side, it can be like a phoenix rising from the ashes, but man - losing everything and resetting to zero is an intense way to get there. I hope you're doing much better now and continue to heal! Thank you for sharing, your story can help others
I wonder if those with HLA susceptibility are more prone to long covid / long vax. Perhaps ppl with CIRS are also more susceptible to shedding and reduce efficiency at removing spike protein.
I appologize in advance if i come across angry, because i am. I took your advice about a neuroquant mri giving me a diagnosis of "mold exposure" and it did not despite 16 years working in a water damaged building. Now i can barely walk now and everything i try to get tested for is negative and my subsequent diagnosis of delusional disorder is more certain in the eyes of the doctors! I just want you to know that i cannot afford to travel to a CIRS doctor let alone afford out of pocket treatment payments. I am on food stamps and was forced into early retirement. At least medicare covers MRIs but there is still a co-pay i struggle to cover! I even convinced my primary doctor that neuroquant would produce a diagnosis of mold exposure! I am feeling embarrased at tge least! I wonder if you ever read your MRI report. It says things that not even my doctor can understand. Unless the CIRS doctors know how to read them and something in the report confirms mold exposure but does not say it outright, then how do i get passed this hurdle? I wish you would respond or don't have these videos!
Hi Kimberly - so sorry to hear you're struggling not only with chronic illness, but also with financial stress and poorly educated doctors as well. The NeuroQuant is a special software used with a MRI to specifically compare your brain with brains of others of your age and gender to determine the level of inflammation and atrophy that might be caused by mold exposure and/or lyme infection. This is Barbara, and I did get a Neuroquant. It needed to be ordered by my CIRS practitioner to be sure it is ordered correctly. They spoke directly with the MRI facility before I went in to get it done. The facility provided a report to my CIRS doctor, who then interpreted it for me. I understand your financial stress - I had to pay for these tests and the interpretation by credit card and I am still working to pay everything off. Since you do not have a Shoemaker certified physician, the SurvivingMold.com website has an analysis you can purchase for $25 to automatically interpret your NeuroQuant results. I have not personally used this system, so I can't speak to it's ease of use, but it is from Shoemaker, which is why I suggest you look into it: www.survivingmold.com/store/online-neuroquant-analysis I hope you find healing!
Cleaning can really help - we have lots of members that were able to drop their numbers with some thorough cleaning, thankfully. But some places can certainly be worse (and beyond hope) than others!
Yes! We have heard some members notice improvement from living in a tent or in an RV or other camping type option. It feels drastic, but its temporary just to get out of exposure and start feeling better, so then you can think better and find a better more long term solution from there.
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I've been exposed to tick bites, covid at the same time last Spring while living in mobile home that had water. I am now bedridden and can't work. Thank you for putting these videos out!
oh wow. I am so sorry to hear that! I hope you're able to get treatment and begin the healing process! Thank you for watching!
My exposure happened from a new job in 2020. Got CIRS in 2 weeks. My advice.
Please LEAVE exposure! Get on binders like CSM, Welchol & Mycobind. Go slow. Watch your VCS Test improve until you pass. Go after Marcons and go after it hard, low MSH is why you have CIRS. Marcons helps keep it low. Also actinos! This is the biggest monster to CIRS. They like to colonize our skin after picking them up from the WDB. Lots of unknown about them. But do the Actinos skin test and see if your numbers are high. Right now I’m struggling at the Marcons step. My brain inflammation was SEVERE and now it’s moderate.
Thank you.
What are you using to treat Marcons. BEG spray? Xlear?
Great Video ladies... And the group is awesome. Do what you can. Give yourself some grace.
absolutely. Thank you so much!
I keep coming back to CIRS and now there's so many connections i believe fully all my future issue stem from it. 14 years and still going... Can't wait to heal 😂 Thanks for putting out all of this information! Be well
You too, friend!
@@thecirsgroup😊🙏 Btw, I did the VCS test---got 98% and 100% of vision / biotoxin. So a complete negative, but got 13/13 on the questionaire. Do you think it could still be CIRS? Chronic elevated inflammation via IGG4 blood tests for years now.
Lived in black mold apartment 2-3 months + 10 months in mold before that, and gradually got Dysbiosis, MCS, MCAS, Sarcoidosis +++ (Celiac (HLA-DQ4/8 since age 2)).
@@JamieR I would say so. Did you ever play sports, especially baseball when younger?
I agree I was happy I got cirs… I can see the light now
❤️
I got bloodwork done a week ago and am waiting for results. Never hoped for a bad result so much in my life
Glad I found you guys! I too, did Carnivore before it was cool… lol… started back in 2019. Was living in a small mountain town here in CO for the past year and after about 10 mos it almost killed me. Blood in toilet, my digestion stopped, thought I had colon cancer. Did ERMI test and found various strains, including black mold. I got out & came back to Denver. I lost everything: my housing, my job, my career plans. Also, now being diagnosed with Endometriosis. This sh** is no joke!!
ugh WOW. That is terrible, I am so sorry you went through all of that. I know on the other side, it can be like a phoenix rising from the ashes, but man - losing everything and resetting to zero is an intense way to get there. I hope you're doing much better now and continue to heal! Thank you for sharing, your story can help others
Where can I find more info about the spike protein protocol?
Check out our episode on Long COVID - I linked a bunch of FLCCC resources in the show notes!
I wonder if those with HLA susceptibility are more prone to long covid / long vax. Perhaps ppl with CIRS are also more susceptible to shedding and reduce efficiency at removing spike protein.
Surviving mold has said it is a priming event for actino sensitivity. But I’m not sure they’ve identified spike protein susceptibility
Wow i didnt know it costs as little as $300 to test the environment in the USA - is costs $800 here for endos, actinos and mold!
Whoa. Everything CIRS related seems even more difficult outside the US
Will you name the electrolyte product you use? There are so many, I'd like to prchase one that will serve my highest good. Thanks 💫
I like to mix my own! 1/2 teaspoon salt, 1/4 teaspoon magnesium malate, 1/8 teaspoon potassium chloride. If I’m feeling lazy, I like LMNT
I appologize in advance if i come across angry, because i am. I took your advice about a neuroquant mri giving me a diagnosis of "mold exposure" and it did not despite 16 years working in a water damaged building. Now i can barely walk now and everything i try to get tested for is negative and my subsequent diagnosis of delusional disorder is more certain in the eyes of the doctors! I just want you to know that i cannot afford to travel to a CIRS doctor let alone afford out of pocket treatment payments. I am on food stamps and was forced into early retirement. At least medicare covers MRIs but there is still a co-pay i struggle to cover! I even convinced my primary doctor that neuroquant would produce a diagnosis of mold exposure! I am feeling embarrased at tge least!
I wonder if you ever read your MRI report. It says things that not even my doctor can understand. Unless the CIRS doctors know how to read them and something in the report confirms mold exposure but does not say it outright, then how do i get passed this hurdle?
I wish you would respond or don't have these videos!
Hi Kimberly - so sorry to hear you're struggling not only with chronic illness, but also with financial stress and poorly educated doctors as well. The NeuroQuant is a special software used with a MRI to specifically compare your brain with brains of others of your age and gender to determine the level of inflammation and atrophy that might be caused by mold exposure and/or lyme infection.
This is Barbara, and I did get a Neuroquant. It needed to be ordered by my CIRS practitioner to be sure it is ordered correctly. They spoke directly with the MRI facility before I went in to get it done. The facility provided a report to my CIRS doctor, who then interpreted it for me. I understand your financial stress - I had to pay for these tests and the interpretation by credit card and I am still working to pay everything off.
Since you do not have a Shoemaker certified physician, the SurvivingMold.com website has an analysis you can purchase for $25 to automatically interpret your NeuroQuant results. I have not personally used this system, so I can't speak to it's ease of use, but it is from Shoemaker, which is why I suggest you look into it: www.survivingmold.com/store/online-neuroquant-analysis
I hope you find healing!
If you live in a city with a sewer system, actino's can be anywhere. You have a sourcepoint right under your feet.
Cleaning can really help - we have lots of members that were able to drop their numbers with some thorough cleaning, thankfully. But some places can certainly be worse (and beyond hope) than others!
Can you explain this?
Could living outdoors be a way to stay away from exposure
Yes! We have heard some members notice improvement from living in a tent or in an RV or other camping type option. It feels drastic, but its temporary just to get out of exposure and start feeling better, so then you can think better and find a better more long term solution from there.
As long as you avoid tick bites.
an fyi, insurance will not cover any implant removal
Good to know. I was curious maybe if a doctor felt it was medically necessary, they might.
So what about those expensive cleaners that are recommended? Can a vinegar mix replace those?
yep! Even just some dish soap and water will work. The key is removing, not killing - and the soap and water mixture will do that.