Excellent video Dr Zafar! Today my person got his pepbuddy and it is helping so much because his attempt at purse breathe was hyperventilating with puckered lips! We needed pepbuddy so much. He was resistant to the idea so I trained him with a straw whike we waited fir pepbuddy in the mail. He like pepbuddy more and it actually INCREASED his oxygen! I hope is is one of the people from your study that benefits the most.
I have very severe emphysema and also I co2 retainer Last yr I got respiratory failure and pneumonia then caught covid 2 days before being discharged from the hospital I felt fine for the few few days then it hit me. I had a really bad exacerbation and had to go back on antibiotics and steroids, it was awful and I never returned to my base line, I’m now breathless all the time, I was assessed as needed care as I can no longer care for myself. Before all this happened I was still walking round looking after horses cleaning stables, I used to get breathless but after a few min of stopping but it was a different kind of breathlessness, nothing like it is now. I get breathless doing nothing and I’m really struggling My lung function is now 27%, I have lost 2stone because I struggle to eat, I feel full all the time and completely lost my appetite. Iv lost my muscles the skin around my calf muscle is just loose skin now. To top it all I have severe osteoporosis and while I had respiratory failure and pneumonia I had a terrible pain in my back from coughing. I was told it was all muscular. 5 months later I was re admitted with my gallbladder and had to have a Ct scan because they couldn’t see the gallstone that I had. Ct revealed two severe wedge fractures at T6/7 and also that I now have kyphosis caused by the fractures. The report also say the fractures were present on X-ray when I was admitted for respiratory failure and pneumonia So all that time I was as told to carry on as normal as the pain was muscular. My lungs showed wide spread emphysema with very little sparing in the middle and that I was med to severe, it was the spirometer that showed I was very severe and how much lung function I have. I told the specialist that my inhalers don’t work like they used to but he said I’m on every thing that he can give I e Trimbow x2 puffs a day Nebulizer that I have salbutamol and saline through also Ventolin for my rescuer, carbocisteine and morphine I also have mild bronciatrasis which he Ct picked on also So what chance do I have of making things easier for myself Iv seen the specialist once no follow up appointment The specialist I needed for my spine refused to see me as the gap between my fracture and being diagnosed was to long, so cement on my breaks was not an option and they took many months to heal. I feel Devasted my life changed with a click of the finger. I’m now housebound because the humidity effects me terribly if I go out, even going in the car is not an option for me anymore 😢😢
Clear, concise info on what makes us short of breath and how we can breathe better.
Love the new background and editing skills!
Excellent video Dr Zafar! Today my person got his pepbuddy and it is helping so much because his attempt at purse breathe was hyperventilating with puckered lips! We needed pepbuddy so much. He was resistant to the idea so I trained him with a straw whike we waited fir pepbuddy in the mail. He like pepbuddy more and it actually INCREASED his oxygen! I hope is is one of the people from your study that benefits the most.
Thanks for sharing!
I have IPF and found this useful with my condition
I have very severe emphysema and also I co2 retainer
Last yr I got respiratory failure and pneumonia then caught covid 2 days before being discharged from the hospital
I felt fine for the few few days then it hit me. I had a really bad exacerbation and had to go back on antibiotics and steroids, it was awful and I never returned to my base line, I’m now breathless all the time, I was assessed as needed care as I can no longer care for myself.
Before all this happened I was still walking round looking after horses cleaning stables, I used to get breathless but after a few min of stopping but it was a different kind of breathlessness, nothing like it is now. I get breathless doing nothing and I’m really struggling
My lung function is now 27%, I have lost 2stone because I struggle to eat, I feel full all the time and completely lost my appetite. Iv lost my muscles the skin around my calf muscle is just loose skin now.
To top it all I have severe osteoporosis and while I had respiratory failure and pneumonia I had a terrible pain in my back from coughing. I was told it was all muscular. 5 months later I was re admitted with my gallbladder and had to have a Ct scan because they couldn’t see the gallstone that I had. Ct revealed two severe wedge fractures at T6/7 and also that I now have kyphosis caused by the fractures. The report also say the fractures were present on X-ray when I was admitted for respiratory failure and pneumonia
So all that time I was as told to carry on as normal as the pain was muscular.
My lungs showed wide spread emphysema with very little sparing in the middle and that I was med to severe, it was the spirometer that showed I was very severe and how much lung function I have.
I told the specialist that my inhalers don’t work like they used to but he said I’m on every thing that he can give
I e Trimbow x2 puffs a day
Nebulizer that I have salbutamol and saline through also
Ventolin for my rescuer, carbocisteine and morphine
I also have mild bronciatrasis which he Ct picked on also
So what chance do I have of making things easier for myself
Iv seen the specialist once no follow up appointment
The specialist I needed for my spine refused to see me as the gap between my fracture and being diagnosed was to long, so cement on my breaks was not an option and they took many months to heal.
I feel Devasted my life changed with a click of the finger.
I’m now housebound because the humidity effects me terribly if I go out, even going in the car is not an option for me anymore
😢😢
Why do I get post exertional malaise about 2 hours after walking?
I think if you over do it, it might raise the co2 level too much. Breathing out is very hard for COPD patients .
ultimately, inhalers worsen the situation, I hear...
Hi
Nothing new.