I thought about ending tourette by ending myself since I was quite tired dealing with it and its impact on my social & academic life. Then I talked to myself, what if a effective treatment becomes available after my death? Now, I plan to bravely face and solve any challenges while keeping a hope that there will be an effective treatment in the near! future
Don’t be afraid to tell them they need to know a lot of people are not educated in it I’ve had it for years now I understand how you feel but you have to tell them schedule a doctors visit with them
If you are afraid to tell your parents, tell your doctor or a teacher, ask them to help you. But if you can, please tell your parents as their reaction may surprise you! Tell someone soon, ok? ❤❤
I have a friend in my class named Austin and he has tics. He sometimes does face squinching and whenever he's talking to the teacher he does it too. I asked him why he did that and he said it's called "tics". I felt bad for Austin and he is actually doing very well and he is very smart.
@@coralcat5706 thats not true at all, i have tourettes, it does not affect your cognitive ability at all. Its not a learning disability nor enhancer. We are just people with a motor malfuction
I thinks that the little chock diverts your attention from ticing. Tics are all about attention, the urge to tic aka "compulsion" literally eats your attention.
Interesting. But for me, I found some tics increased for my FND when I used a TENS machine, so I'm curious. Though, then again, if the right area is stimulated, I could see how this could perhaps make sense. Very interesting. I get tics, similar to tourettes and muscle tenses kinda similar to parkinsons. Kinda messes with walking sometimes. Makes me unable to speak often. Other times, now I yell random thoughts, repeat what I am hearing, like what others are saying. I yell out loud what I am reading, have a tendancy to repeat things 3-4 times often, as I do with sneezes. I post a bit about my FND disorder
How can I enrol on this voluntary experiment, I’ve suffered with eye Tourette syndrome my whole life but gets worse when I’ve woken tired or when it’s sunny then it becomes unbearable to control and this will last either all day or for hours
@@thefoxyredfox6739 have you gotten it checked out I h th ought I had it until I had 2 seizures I’m on keppra because I was diagnosed with myoclonic epilepsy
I'm 42. Tourettes dominates my life. Most people don't know that I have it. They don't see what I'm like when I'm tired and when it's kept me awake all night. It's 2am now, I've not slept for hours. Is this available to get now? This would transform everything.
I found this syndrome from movie about a man who wants to be teacher but he had the syndrome. I didn't know what it is at all before it and now I realize one of my friends who were called "Autistic" kid turns out it's just a syndrome. He tick his head just like the green shirt boy in the video and sometimes his hand too. His mom tell our teacher that it's an autism. Damn. Now it's all makes sense that he doesn't have autism because he talk and behaves just like normal person do and he doesn't seem to have special ability or talent.
Right, these experiments need to be consistently replicated in different lab settings to be substantiated by peer-review scientific community in order for this study to not be deemed a coincidental anomaly.
From my knowledge there's no such thing as "one type of Tourette Syndrome", making it very hard to find or make a "one fix all" type of treatment. What experiments like this (in the past) has shown is that there's a connection between nerves and the loss of impulse control, for some with Tourette Syndrome it (as this study shows) can help to 'trigger' the nerve system to mitigate or even stop tics. Just because something isn't replicable in all Tourette Syndrome patients doesn't mean it's ineffective.
Unbelievable ignorance. Clearly, you don’t even know what that term means. How is it possible to have a 'double blind study' in such a situation? What are you testing? Electricity? If you shock people who don’t have Tourettes they’re going to feel a shock. What will that prove? Another example of someone glorying in their own stupidity, celebrating it and encouraging others to do the same out of some sort of antagonism towards the sciences, or perhaps thinking in general.
@@pencilfriendpaperscribbler6032 you're talking about a control study. A double blind study is one that tries to reproduce the result as independently as possible. E.g seperate lab seperate team. With as little influence as possible on each other. Hence 'blind'. Dont comment on things you dont understand.
Bartholomew Tott No, for a double blind study, both the participants and the doctors administering can have no knowledge of whether or not the participants are receiving a placebo or the treatment. Hence the term: Double Blind. Are you suggesting a study in which both people with Tourettes and those without, are shocked? First of all, everyone is going to react to the shock by feeling as though they have had a shock. Congratulations, you have discovered electricity. Secondly, if the shock doesn’t mitigate the symptoms in those patients with Tourettes, they will manifest Tourettes symptoms, thereby destroying any anonymity and the entire basis of the study. Are you suggesting that random people and Tourettes suffers shock themselves in secret and self-report? Are you saying there’s a placebo for electricity? Are you planning on pinching some people and shocking others? Are you saying that electricity is an unknown quantity that needs a control group? Do please, design this study for us.
Not involuntary at all. It's like you do what is totally wrong to do. If your are supposed to be silent, you can't. If you are supposed to be still, you can't. TS/OCD is that you do what you can't do. Like Coprolalia. It isn't involuntary to say/shout lots of dirty words. It's what you can't do - and still do.
I have TS, and that is absolutely not true LMAO. This comment is ridiculous. It’s completely involuntary, it’s not like someone says “be quiet” and all of a sudden I’m going to be loud. Idk where you got that info/idea from….
@@daicekube tics are when your brain sends an involuntary signal to the body. That signal tells the body to do a movement we don’t need or mean to do. Coprolalia isn’t voluntary. If it was, I and 10% of other Tourette’s havers wouldn’t possess it.
yes you're correct in that it isn't involuntary. it's better described as unvoluntary. tics can be suppressed (which means they aren't involuntary like a muscle spasm), but the immense, powerful urge to tic inevitably will override any conscious effort to suppress them coprolalia, much like other complex tics (echopraxia, echolalia, palilalia, etc) is not too well understood, but the denial and blame you're putting on sufferers is not helpful, practical, or moral (whether you intend to harm people or not) people with TS don't think "oh wow, this tic is so devious, I'm going to do it!", they think "oh my gosh I'm going to do this tic, I can't suppress it any longer. I hope no one notices"
You think I enjoy feeling like my eye lids are stuck in the corners so I open them wide and do this 5-10 times until it feels like the itch has been scratched. You think I enjoy clenching my jaw, and arm muscles constantly. Does it sound like I want the attention I get when I bend my right knee and lift my leg in a way that looks like I'm adjusting my nuts? The constant sniffing, grunting, throat clearing is fucking loads of fun to do when I want attention. I absolutely love holding my breath for what feels like it could be my last breath. Right up to the point that I feel i have finally scratched that itch for attention and I can once again breathe. My favorite part about that specific attempt at attention seeking is knowing I'm going to do it over and over again for maybe 10min or a couple hours while no one else is even around. I'm so upset about this comment. The idea of anyone thinking my plan every day is to act like a fu**ING uncontrollable spaz and hopefully, I could gain some much needed "attention" is ridiculous.
@@MadScientist267 Urgh. Okay. Right, 'technically' isn't being described in this article. It's an overview of device. 'Technically' might be right in a technical scientific sense. Not right in an English grammatical sense; it gives the wrong connotations. That's my point.
@@MadScientist267 More over, if you're scientifically minded you should be arguing that fact that isn't corporal punishment and this device actually does. Not just arguing with me the semantics of what the word 'shock' means.
@@DylanF Ok point taken about the word "shock"... As for the trolls, I leave them be... They just occasionally lead to something better... Like this ;)
I thought about ending tourette by ending myself since I was quite tired dealing with it and its impact on my social & academic life. Then I talked to myself, what if a effective treatment becomes available after my death? Now, I plan to bravely face and solve any challenges while keeping a hope that there will be an effective treatment in the near! future
Glad ya didnt do it
you can do this! i know you can ❤
We can do this!!! We have to stay strong!
all my support for you
Stay strong! 💪
Let's hope it is THE breakthrough many, many people wish for
I cry every night because my family says im loud and annoying, but i cant help it and i have tics, im scared to tell my parents, beacuse im embaress
Don’t be afraid to tell them they need to know a lot of people are not educated in it I’ve had it for years now I understand how you feel but you have to tell them schedule a doctors visit with them
If you are afraid to tell your parents, tell your doctor or a teacher, ask them to help you. But if you can, please tell your parents as their reaction may surprise you! Tell someone soon, ok? ❤❤
It's time to grow up there is no such thing as Tourette syndrome spoiled stupid young people
Same here, now my condition getting worse and in very tired , I can't even breath properly, it's so hard to deal
Quitting smoking anything and less caffeine has decreased mine IMMENSELY
Hope that works! A lot of people are waiting here.
I have a friend in my class named Austin and he has tics. He sometimes does face squinching and whenever he's talking to the teacher he does it too. I asked him why he did that and he said it's called "tics". I felt bad for Austin and he is actually doing very well and he is very smart.
Being smarter is actually one of the qualities of Tic syndromes!
@@coralcat5706 agree, no idea why though
@@andrewnash4041 Yeah, and I'm sure there are exceptions, it's just common.
@@coralcat5706 thats not true at all, i have tourettes, it does not affect your cognitive ability at all. Its not a learning disability nor enhancer. We are just people with a motor malfuction
boring
I would love to take part in this
Here's my money.Please God make it work
where? i see no money
I have Tourette’s and had it since I was 7 I’m 18 now and this would be fantastic I definitely need one of these
I thinks that the little chock diverts your attention from ticing. Tics are all about attention, the urge to tic aka "compulsion" literally eats your attention.
Interesting. But for me, I found some tics increased for my FND when I used a TENS machine, so I'm curious. Though, then again, if the right area is stimulated, I could see how this could perhaps make sense. Very interesting. I get tics, similar to tourettes and muscle tenses kinda similar to parkinsons. Kinda messes with walking sometimes. Makes me unable to speak often. Other times, now I yell random thoughts, repeat what I am hearing, like what others are saying. I yell out loud what I am reading, have a tendancy to repeat things 3-4 times often, as I do with sneezes. I post a bit about my FND disorder
So basically blocking the urge to tick
Tic
Any updates on the device?
How can I enrol on this voluntary experiment, I’ve suffered with eye Tourette syndrome my whole life but gets worse when I’ve woken tired or when it’s sunny then it becomes unbearable to control and this will last either all day or for hours
I cant wait for this to be available
I have tics I think this electronic band would help me how do I get one
Brilliant!
My brother is 7 and he’s has tics. He doesn’t even say swear words but those are his tics
I'm 70, had tics as long as I can remember. Been tormented and teased my whole life. I wish someone could find a definite cure.
There is… smoke cannabis
That's not a cure
PSA: do this with a TENS unit and us the Washington university thing
May i know how i can buy it from overseas? Thanks a lot.
You can’t buy it yet it’s currently in the first beta testing, im in the clinical trial waiting for it to get fitted actually
@@pinkeyed_pikachu3446 did you finish your trial ???what is your feed back plz?
@@pinkeyed_pikachu3446 hello?
Where can someone buy this wrist watch ?
will this ever be for sale? do you think you could ever make these for people to buy?
I've put myself forward for concept ideas and studies for this device. I'm hopeful it'll be useable.
Obviously you have not exhausted all medical avenues.
Meds don't work. The only thing available to us are anti-psychotics. They ruin your life and don't stop tics.
How much is it?
Shocks? Really? I understand it may stop them, but what kind of damage are these "shocks" doing LONG term?
I don’t think it turns the tics off I thought it was to reduce the urge and strength of the tics
Thats too enough
I have tourette , just reducing the urge would be the best day of my life :'( :)
@@thefoxyredfox6739 have you gotten it checked out I h th ought I had it until I had 2 seizures I’m on keppra because I was diagnosed with myoclonic epilepsy
Tourettes isn't the same
At least it isn't a shock collar. Why are those so cheap to buy?
I have torets
Awesome
I reduced my tics with weed.
Give me that.
How do it get this? Ive had it 30 years and im tired
Be careful as these can also be myoclonic seizures which turn into a seizure
I'm 42. Tourettes dominates my life. Most people don't know that I have it. They don't see what I'm like when I'm tired and when it's kept me awake all night. It's 2am now, I've not slept for hours. Is this available to get now? This would transform everything.
you think you can imitate this with a TENS machine
I have Tourette syndrome. Is this available
Pretty cool.
come to Boston and I will make you guys a cup of England breakfast tea
Shouldn't it have side effect? Tics probly not the only activities it can have an impact on, but lessss gooo plz make it and for mild cases too
Where do u get the device?
It’s an experiment for Nottingham university, I’m doing it and you can’t get it you have to sign up but not everyone gets in
Apparently the nhs is thinking by the end of 2021 they will be available for severe cases
It looks like a TENS machine, to me
More details @@RachelHellen23
Agree i hope 2026 will be soon! Im waiting for 47 years on this!
Could this manifest with restless leg syndrome?
No. Tourettes is chemistry. Leg syndrome is nerves.
I found this syndrome from movie about a man who wants to be teacher but he had the syndrome. I didn't know what it is at all before it and now I realize one of my friends who were called "Autistic" kid turns out it's just a syndrome. He tick his head just like the green shirt boy in the video and sometimes his hand too.
His mom tell our teacher that it's an autism. Damn.
Now it's all makes sense that he doesn't have autism because he talk and behaves just like normal person do and he doesn't seem to have special ability or talent.
Tourettes is on the spectrum
Most of these kind of studies can't be replicated.
Right, these experiments need to be consistently replicated in different lab settings to be substantiated by peer-review scientific community in order for this study to not be deemed a coincidental anomaly.
From my knowledge there's no such thing as "one type of Tourette Syndrome", making it very hard to find or make a "one fix all" type of treatment. What experiments like this (in the past) has shown is that there's a connection between nerves and the loss of impulse control, for some with Tourette Syndrome it (as this study shows) can help to 'trigger' the nerve system to mitigate or even stop tics. Just because something isn't replicable in all Tourette Syndrome patients doesn't mean it's ineffective.
@@MrGlennJohnsen no one said anything about all Tourettes sufferers
This man reminded me so much of someone... then I figured it out, he looks like Sean Bean!
can I use a dogs shock collar for the same effect ?
😂 I feel you bro how desperately we just need something, just fkng something....
Double blind studies please. We are in the midst of replication crisis.
Unbelievable ignorance. Clearly, you don’t even know what that term means. How is it possible to have a 'double blind study' in such a situation? What are you testing? Electricity? If you shock people who don’t have Tourettes they’re going to feel a shock. What will that prove? Another example of someone glorying in their own stupidity, celebrating it and encouraging others to do the same out of some sort of antagonism towards the sciences, or perhaps thinking in general.
@@pencilfriendpaperscribbler6032 you're talking about a control study.
A double blind study is one that tries to reproduce the result as independently as possible. E.g seperate lab seperate team. With as little influence as possible on each other. Hence 'blind'.
Dont comment on things you dont understand.
Bartholomew Tott No, for a double blind study, both the participants and the doctors administering can have no knowledge of whether or not the participants are receiving a placebo or the treatment. Hence the term: Double Blind. Are you suggesting a study in which both people with Tourettes and those without, are shocked? First of all, everyone is going to react to the shock by feeling as though they have had a shock. Congratulations, you have discovered electricity. Secondly, if the shock doesn’t mitigate the symptoms in those patients with Tourettes, they will manifest Tourettes symptoms, thereby destroying any anonymity and the entire basis of the study. Are you suggesting that random people and Tourettes suffers shock themselves in secret and self-report? Are you saying there’s a placebo for electricity? Are you planning on pinching some people and shocking others? Are you saying that electricity is an unknown quantity that needs a control group? Do please, design this study for us.
I nnever have tics...
@@bartholomewtott3812 you my friend, are terribly wrong 😂
Not involuntary at all. It's like you do what is totally wrong to do. If your are supposed to be silent, you can't. If you are supposed to be still, you can't. TS/OCD is that you do what you can't do. Like Coprolalia. It isn't involuntary to say/shout lots of dirty words. It's what you can't do - and still do.
I have TS, and that is absolutely not true LMAO. This comment is ridiculous. It’s completely involuntary, it’s not like someone says “be quiet” and all of a sudden I’m going to be loud. Idk where you got that info/idea from….
@@U286BRAINZ OK, so you say it's a spasm? A nervous discharge? How do you explain coprolalia? What spasm will make you utter four letter words?
@@daicekube tics are when your brain sends an involuntary signal to the body. That signal tells the body to do a movement we don’t need or mean to do. Coprolalia isn’t voluntary. If it was, I and 10% of other Tourette’s havers wouldn’t possess it.
ruclips.net/video/2KrRerjfBMY/видео.html
yes you're correct in that it isn't involuntary. it's better described as unvoluntary. tics can be suppressed (which means they aren't involuntary like a muscle spasm), but the immense, powerful urge to tic inevitably will override any conscious effort to suppress them
coprolalia, much like other complex tics (echopraxia, echolalia, palilalia, etc) is not too well understood, but the denial and blame you're putting on sufferers is not helpful, practical, or moral (whether you intend to harm people or not)
people with TS don't think "oh wow, this tic is so devious, I'm going to do it!", they think "oh my gosh I'm going to do this tic, I can't suppress it any longer. I hope no one notices"
nose ring is awful
There is no such thing as Tourette Syndrome what it's called is attention
Your tinfoil hat is a little too tight. Tourette's syndrome is real. Believe me.
You think I enjoy feeling like my eye lids are stuck in the corners so I open them wide and do this 5-10 times until it feels like the itch has been scratched. You think I enjoy clenching my jaw, and arm muscles constantly. Does it sound like I want the attention I get when I bend my right knee and lift my leg in a way that looks like I'm adjusting my nuts? The constant sniffing, grunting, throat clearing is fucking loads of fun to do when I want attention. I absolutely love holding my breath for what feels like it could be my last breath. Right up to the point that I feel i have finally scratched that itch for attention and I can once again breathe. My favorite part about that specific attempt at attention seeking is knowing I'm going to do it over and over again for maybe 10min or a couple hours while no one else is even around. I'm so upset about this comment. The idea of anyone thinking my plan every day is to act like a fu**ING uncontrollable spaz and hopefully, I could gain some much needed "attention" is ridiculous.
This a girl or a guy
It doesn't matter
They could be neither or both, or gender non-conforming. Overall it doesn't matter as they are a person.
Doesn't matter, they're hot af
Psychopaths would suggest shock treatment.
So South Park was right
Corporal punishment works?! 😱 Next on the Onion.
It's not though. The headline is sensational. It's delivers stimulation to the nerves, it does not shock you.
@@DylanF Again that's exactly what electrical stimulation is... A mild, but still technically electric *shock*.
@@MadScientist267 Urgh. Okay. Right, 'technically' isn't being described in this article. It's an overview of device. 'Technically' might be right in a technical scientific sense. Not right in an English grammatical sense; it gives the wrong connotations. That's my point.
@@MadScientist267 More over, if you're scientifically minded you should be arguing that fact that isn't corporal punishment and this device actually does. Not just arguing with me the semantics of what the word 'shock' means.
@@DylanF Ok point taken about the word "shock"... As for the trolls, I leave them be... They just occasionally lead to something better... Like this ;)
Good grief..sounds like a learned behavior
Tourette's isn't learnt behaviour. It's a condition of the nervous system and brain.
Your ignorance or stupidity is clearly learned behavior
As someone with Tourette’s, I wish it was a learned behavior. This disorder is fvcking medieval torture.
Maybe this explains why i feel like i have to " stretch" my eyes. i must look crazy 🤪