Thank you so much sharing and being so brave to talk about this. I’ve had IBS since I was 18, and you are so right about the shame and needing to be attractive and a girl.
Goodness, it sounds as if we have had very similar health experiences in life. Thank you for sharing your story. It's so easy to disregard the challenges we face everyday just to cover the basics in life when battling with health conditions (especially bowel, fatigue and gynae related ones). You have my absolute respect for giving yourself the grace (no pun intended) to be yourself and to appreciate the wonderfully kind and talented person you clearly are. You have obviously worked hard to find solutions for managing your symptoms and being your own advocate (with the support of those close to you). I'm over ten years older than you (but still very much 30 in spirit and at heart!!) but can certainly take a lesson from this. Keep going. Your vlogs showcase your creativity and I, for one, find them very relatable and calming. 💛✨
Bloody hell Suzanna, that was mega lovely. Reading relatable comments like that just fills my cup right up. I was quite nervous about sharing this whole story and the journey it’s taken me on because it makes me sounds quite dramatic. However it feels really validating receiving positive feedback. I really hope your health is on a great place and life is treating you well, you sound like such a wonderful person. Sending you all the love! 💕☀️
I think this is the first time I've ever commented on a yt video in my life but I've just sat & shed a tear or two as this was so validating for me. It weirdly felt like I was listening to you vocalise my own medical history. I was also slapped with the IBS sticker early on, as well as being on anti depressents & generally being a v socially anxious person. Had ultrasounds, blood tests, cut out food groups to basically no sucess. My symptoms began gradually increasing overtime & in my mid 20s, the flare ups that come in waves, so similar to what you mentioned were literally happening on a daily basis. Some days I could barely move & having to have my now husband get me to & from the bathroom. Thankfully, this peaked over lockdown so didn't effect my social life dramatically! I'd cut out gluten, dairy, onions, garlic, anything with too much sugar or too fatty. I was basically living off rice hahah. I still couldn't get any other diagnosis, until my periods stopped in May 2021. The flares ups & pain were still my main concern but the GP sent me to an appointment with Endocrinology which I had 8 months later. Sadly, any mention of my stomach issues were completed dismissed, even though I was so sure they were related to my periods stopping. It was heartbreaking after being so hopeful for the appointment to just have my main concern completely shunned. Following more blood tests, I had an MRI and I was diagnosed with a microadenoma - a teeny tiny, benign non cancerous brain tumor on my pituitary gland. Since being on medication to shrink the tumor, & the medication reducing the hormone my tumor releases, my stomach issues have massively decreased. I get the occasional flare up that tend to be when I'm v stressed. But I've been able to bring back all the foods I'd previously cut out. There's nothing official to say that the two things were linked by it's completely changed my life. I still take blimmin' fybogel everyday as I seem to have lazy bowels too, but it's so much more manageable now! Thank you for sharing your story, it's reassuring & hugely validating to know people have been through similar situations for the majority of their life 🩷
I have no words, truly this is heartbreaking. Really appreciate you commenting because this is so validating for me too, also makes me feel less alone. It’s the being fobbed off and not taken seriously that makes the whole entire ordeal beyond a nightmare. I would absolutely love to give you the biggest hug but for now, let’s just park it’s as a virtual, really meaningful one. I hope life is treating you well. I’m always up for a chat if you fancy a rant. I have my good and bad days and it’s hard to make sense of it all which gives me a bit of PTSD. But I’m managing a lot better than I was. Sending you all the love.✨💕
This is super interesting! I'm so sorry you went through many rubbish years of being mis/undiagnosed. I believe I have lazy gut issue, what medication did they put you on in the end? (After the other one was discontinued?)
I’m so pleased to have a diagnosis now! I do think there’s a bit more to the story but as long as I manage my stress levels things are relatively smooth. I’m now on Prucalopride (not sure if that’s just the brand name) too a while to work out the dose but it definitely makes me function loads better! 🙌🏼✨
Hey Grace 🤗 thank you for sharing your story, I’d never asked about your health issues but I had wondered. Some of what you said resonated with me and what I have gone through with my Emetophobia. What I went through is nothing compared to what you have experienced but there are definitely similarities in terms of I was afraid to go outside in case I was sick. Once I got used to being outside (my mum and dad forced me to go out 🙈 but it was the right thing tbf) I would walk the back roads to avoid crowds, I couldn’t go into busy shops, I wouldn’t eat before travelling anywhere, I always need to know where the toilets are, I sit on the ends of rows whenever I can….I still don’t eat before travelling now, I walk whenever I can and I can do the tube but only for a few stops…I do drive but can prob do about an hour max and then I have to have a break because I feel car sick….It is something that affects me daily in some way. I am so happy that you finally got your diagnosis but also sorry that it took so long and that you had your experience last year. I’m sure there are others with similar or the same condition and this video will help others to feel they are not alone. Looking forward to hearing more about you and Andrew ♥️ xxx
Woah, although different it's very relatable, I get you. 💕 It's amazing to see that you've got together some mechanisms that work for you. It doesn't matter how big or small the hurdles may be, if something is daunting, it's daunting and then can evolve into something that affects you more than you'd like to admit and becomes a whole thing. It creeps into daily life and ultimately needs to be addressed. Therapy for me has been amazing, we've been working on some goals to help me conquer some fears but it's baby steps, taking my time which will encourage growth. You should be mega proud. You have clearly put in the hard work. ✨
As someone that was diagnosed with IBS 11 years ago, but continues to be fobbed off everytime I collapse and end up in A&E and keep saying "this isn't right" and them just saying its "just stress". Being so scared to leave the house, and scared to be anywhere without a toilet, this has been such a breath of fresh air to watch. I am sorry that you've gone through this but I am pleased this is something you're open about and moving forward ✨
does the anxiety about a lack of toilet every go away?! I was diagnosed a year ago and it's become an engulfing fear for me, it controls my life. I can't even go to work and do my job as I'm so terrified. The worst part is and what I'm struggling with in therapy is that it's a VALID fear and is something that legitimately happens from time to time (upset stomach and being in public etc) :(
@@ammyyyoxx if I'm honest, it's still never gone away for me, but I know a few people have successfully managed to get over that with therapy over time and the right medication so I am hopeful that it'll happen for me too, and for you
Thank ✨YOU✨ for being so vulnerable and leaving a comment. It really doesn't matter how small or intense a stomach issue is, it's always somewhat embarrassing to manage in some degree. I wish the tummy girly's spoke up a bit more about it because I've felt quite alone.
This is me, to a T. I struggle daily, if I've got something on, or a full on wedding shoot day I have to wake up super early and almost prep to make myself go to the toilet. If I know I've been before a big ol' day it does lessen my anxiety. I also recommend getting a radar key from amazon so you can use the disability toilets in crowded places. I feel ya! 💕
Sorry if you mentioned this, but if you don’t mind saying, what anti depressants do you take? I’ve recently started Prozac and I’m really nervous!! Sorry if that’s a bit personal ❤
Oh, bless you! It’s a big step but can be life changing and give you back some control. I’m on escitalopram. I’ve been on a gazillion throughout the years so don’t be disheartened if you find Prozac doesn’t work out for you, we’re not all built the same and some work differently for others. Escitalopram didn’t initially work for me (they made me feel dizzy and sick) but instead of going down the road of changing to another SSRI my GP suggested trying to take my tablet before bed rather than in the morning. Game. Changer. Works perfectly for me! Do let me know how you get on, it’s a big decision to take but a very brave one. 💪🏼💕
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Thank you so much sharing and being so brave to talk about this. I’ve had IBS since I was 18, and you are so right about the shame and needing to be attractive and a girl.
It’s not the most glamorous vid BUT, thought it was pretty relevant as of late. Hope you’re doing well, I know each day can be different. 💕✨
Really interesting video. Thank you for all the information you shared ❤
Thanks Demi, that really means a lot. 💕✨
Goodness, it sounds as if we have had very similar health experiences in life. Thank you for sharing your story. It's so easy to disregard the challenges we face everyday just to cover the basics in life when battling with health conditions (especially bowel, fatigue and gynae related ones). You have my absolute respect for giving yourself the grace (no pun intended) to be yourself and to appreciate the wonderfully kind and talented person you clearly are. You have obviously worked hard to find solutions for managing your symptoms and being your own advocate (with the support of those close to you). I'm over ten years older than you (but still very much 30 in spirit and at heart!!) but can certainly take a lesson from this. Keep going. Your vlogs showcase your creativity and I, for one, find them very relatable and calming. 💛✨
Bloody hell Suzanna, that was mega lovely. Reading relatable comments like that just fills my cup right up. I was quite nervous about sharing this whole story and the journey it’s taken me on because it makes me sounds quite dramatic. However it feels really validating receiving positive feedback.
I really hope your health is on a great place and life is treating you well, you sound like such a wonderful person. Sending you all the love! 💕☀️
You make me prouder every single day. ❤
💕💕💕
I think this is the first time I've ever commented on a yt video in my life but I've just sat & shed a tear or two as this was so validating for me. It weirdly felt like I was listening to you vocalise my own medical history. I was also slapped with the IBS sticker early on, as well as being on anti depressents & generally being a v socially anxious person. Had ultrasounds, blood tests, cut out food groups to basically no sucess. My symptoms began gradually increasing overtime & in my mid 20s, the flare ups that come in waves, so similar to what you mentioned were literally happening on a daily basis. Some days I could barely move & having to have my now husband get me to & from the bathroom. Thankfully, this peaked over lockdown so didn't effect my social life dramatically! I'd cut out gluten, dairy, onions, garlic, anything with too much sugar or too fatty. I was basically living off rice hahah. I still couldn't get any other diagnosis, until my periods stopped in May 2021. The flares ups & pain were still my main concern but the GP sent me to an appointment with Endocrinology which I had 8 months later. Sadly, any mention of my stomach issues were completed dismissed, even though I was so sure they were related to my periods stopping. It was heartbreaking after being so hopeful for the appointment to just have my main concern completely shunned. Following more blood tests, I had an MRI and I was diagnosed with a microadenoma - a teeny tiny, benign non cancerous brain tumor on my pituitary gland. Since being on medication to shrink the tumor, & the medication reducing the hormone my tumor releases, my stomach issues have massively decreased. I get the occasional flare up that tend to be when I'm v stressed. But I've been able to bring back all the foods I'd previously cut out. There's nothing official to say that the two things were linked by it's completely changed my life. I still take blimmin' fybogel everyday as I seem to have lazy bowels too, but it's so much more manageable now! Thank you for sharing your story, it's reassuring & hugely validating to know people have been through similar situations for the majority of their life 🩷
I have no words, truly this is heartbreaking. Really appreciate you commenting because this is so validating for me too, also makes me feel less alone. It’s the being fobbed off and not taken seriously that makes the whole entire ordeal beyond a nightmare. I would absolutely love to give you the biggest hug but for now, let’s just park it’s as a virtual, really meaningful one.
I hope life is treating you well. I’m always up for a chat if you fancy a rant. I have my good and bad days and it’s hard to make sense of it all which gives me a bit of PTSD. But I’m managing a lot better than I was.
Sending you all the love.✨💕
@@graceoliviasue sending all the love right back at ya!! 🩷✨️
Oh grace im so proud of you, youre stronger than you think🌸
Thanks girly, that really means a lot. 💕
This is super interesting! I'm so sorry you went through many rubbish years of being mis/undiagnosed. I believe I have lazy gut issue, what medication did they put you on in the end? (After the other one was discontinued?)
I’m so pleased to have a diagnosis now! I do think there’s a bit more to the story but as long as I manage my stress levels things are relatively smooth. I’m now on Prucalopride (not sure if that’s just the brand name) too a while to work out the dose but it definitely makes me function loads better! 🙌🏼✨
Hey Grace 🤗 thank you for sharing your story, I’d never asked about your health issues but I had wondered. Some of what you said resonated with me and what I have gone through with my Emetophobia. What I went through is nothing compared to what you have experienced but there are definitely similarities in terms of I was afraid to go outside in case I was sick. Once I got used to being outside (my mum and dad forced me to go out 🙈 but it was the right thing tbf) I would walk the back roads to avoid crowds, I couldn’t go into busy shops, I wouldn’t eat before travelling anywhere, I always need to know where the toilets are, I sit on the ends of rows whenever I can….I still don’t eat before travelling now, I walk whenever I can and I can do the tube but only for a few stops…I do drive but can prob do about an hour max and then I have to have a break because I feel car sick….It is something that affects me daily in some way. I am so happy that you finally got your diagnosis but also sorry that it took so long and that you had your experience last year. I’m sure there are others with similar or the same condition and this video will help others to feel they are not alone. Looking forward to hearing more about you and Andrew ♥️ xxx
Woah, although different it's very relatable, I get you. 💕
It's amazing to see that you've got together some mechanisms that work for you. It doesn't matter how big or small the hurdles may be, if something is daunting, it's daunting and then can evolve into something that affects you more than you'd like to admit and becomes a whole thing. It creeps into daily life and ultimately needs to be addressed. Therapy for me has been amazing, we've been working on some goals to help me conquer some fears but it's baby steps, taking my time which will encourage growth.
You should be mega proud. You have clearly put in the hard work. ✨
As someone that was diagnosed with IBS 11 years ago, but continues to be fobbed off everytime I collapse and end up in A&E and keep saying "this isn't right" and them just saying its "just stress". Being so scared to leave the house, and scared to be anywhere without a toilet, this has been such a breath of fresh air to watch. I am sorry that you've gone through this but I am pleased this is something you're open about and moving forward ✨
does the anxiety about a lack of toilet every go away?! I was diagnosed a year ago and it's become an engulfing fear for me, it controls my life. I can't even go to work and do my job as I'm so terrified. The worst part is and what I'm struggling with in therapy is that it's a VALID fear and is something that legitimately happens from time to time (upset stomach and being in public etc) :(
@@ammyyyoxx if I'm honest, it's still never gone away for me, but I know a few people have successfully managed to get over that with therapy over time and the right medication so I am hopeful that it'll happen for me too, and for you
Thank ✨YOU✨ for being so vulnerable and leaving a comment. It really doesn't matter how small or intense a stomach issue is, it's always somewhat embarrassing to manage in some degree. I wish the tummy girly's spoke up a bit more about it because I've felt quite alone.
This is me, to a T. I struggle daily, if I've got something on, or a full on wedding shoot day I have to wake up super early and almost prep to make myself go to the toilet. If I know I've been before a big ol' day it does lessen my anxiety. I also recommend getting a radar key from amazon so you can use the disability toilets in crowded places. I feel ya! 💕
Love this vlog grace.
Thank you so much Hannah! ✨
Sorry if you mentioned this, but if you don’t mind saying, what anti depressants do you take? I’ve recently started Prozac and I’m really nervous!! Sorry if that’s a bit personal ❤
Oh, bless you! It’s a big step but can be life changing and give you back some control. I’m on escitalopram. I’ve been on a gazillion throughout the years so don’t be disheartened if you find Prozac doesn’t work out for you, we’re not all built the same and some work differently for others.
Escitalopram didn’t initially work for me (they made me feel dizzy and sick) but instead of going down the road of changing to another SSRI my GP suggested trying to take my tablet before bed rather than in the morning. Game. Changer. Works perfectly for me!
Do let me know how you get on, it’s a big decision to take but a very brave one. 💪🏼💕
❤
💕