MakDarko2010 i just can’t take it anymore I have to called in to work several times because I got hives all over my neck and arms , people look at me like I have a mange or disease ☣️
This xoliar is magic !!!! Last year i had severe urticaria, started suddenly, nothing helped, i took about 4 pills a day and nothing worked, my doctor recommended xoliar, and from the first injection i was hive free, all disappeared, the itching, the pain, everything!!! Im taking one shot every month for a year now, hopefully i will start reducing the amount until my body get balanced, but for now all is amazing
@@sonjasleator7582 Hey sonja i am going to take my first shot in few days and I have a question that if i urticaria is relapse after full treatment , will it cure after 2nd same treatment coz i have urticaria since 15 + years pls ans this❤
I just wanted to say I’m so glad I came across your urticaria videos. I get severe anxiety with my hives and seeing how calm you are with it all is so inspirational! I just got my first xolair shot 5 days ago, and was so relieved to hear it took you three shots to see total results. I just wanted to say thank you for your willingness to put this out!
I'm starting my Xolair shots tomorrow! I did a little RUclips search to see what I could find for patient experience and came across your videos. Thank you for sharing! ❤️
@@sonjasleator7582Hey sonja i am going to take my first shot in few days and I have a question that if i urticaria is relapse after full treatment , will it cure after 2nd same treatment coz i have urticaria since 15 + years pls ans this❤
I've been taking Xolair for 3 years. I also took two shots like you, but now I take one with 2 anti-antihistamines per day. Happy for you to be off of it! It's a nightmare that most don't understand.
so you dont worry about the blood clots poor blood circulation heart attacks or cancer that Xolair warns you it can cause? I suffer greaty from CIU as a kid and as an adult. i have been on dapsone and many other meds that stopped working. yet this xolair they want to inject me with, it seems that people like myself that are desperate to get their quality of life back, are not concerned about blood clots in the lungs cancer heart attacks or poor blood circulation that xolair has been known to cause. As much as I suffer.I am concerened about that. I wonder if people even got those serious side effects if they even would relate it to xolair? Since they only see the positive side and negelet the possible sieeffects it can cause in the long run. How Peculiar indeed.
Thanks so much for posting this. I have chronic hives and my doctor has suggested Xolair. This is scary and your experience helped to calm my fears. Thanks again for your openness to share your experience.
Mine started in 2012. It lasted for 3 weeks. Again in 2016 for 3 weeks . Each time I was a steroid to control them. Now in 2020, it's been 10 weeks. Each time I have allergy test, and I'm never allergic to anything. I've been tested for lupus, leukemia, and other diseases, everything came back negative. I was on steroids for 5 weeks, in which it controlled the hives and swelling. But I had to get off the steroids. As soon as I got off everything came back. I tried all kinds of antihistamine and nothing. I had mine first xolair injections a couple of days ago, but I'm still having issues. Hopefully soon I get better too. Thanks for the info. Glad I'm not the only one going through this. Your video really helps.
I really hope that over time you will see results. It took me about 3-4 months before I saw a change. I kept up my antihestimes while getting them tho, just incase xx
@@sonjasleator7582 Hey sonja i am going to take my first shot in few days and I have a question that if i urticaria is relapse after full treatment , will it cure after 2nd same treatment coz i have urticaria since 15 + years pls ans this❤
Thanks for the video. Great information. I just passed a two month episode of urticaria. I noticed that milk may be the culprit for me and I determined this by keeping a food diary with symptoms so I can rule out any possible causes. But, I think my case is due to leaky gut and maybe the milk (or other substance) caused a problem in the gut (allowing food particles in my blood stream where an immune response in the form of hives occurred) and it took about two months to heal. I introduce this comment because if the hives are caused by leaky gut, then the Xolair can be masking a greater and more dangerous problem. I look forward to more videos from you. Thanks.
Afroditi Lakou I’ve actually completely solved my problem. Once I stopped drinking milk (I love milk) my hives completely went away. I haven’t had the problem for a long time and I’ve actually stopped taking antihistamines.
Afroditi Lakou I believe the milk caused the gut problems. They wouldn’t appear immediately so that is why I believe it was related to leaky gut. All the food I thought I had a sensitivity to are not a problem anymore.
@@MandieLovesMAC It probably took about a week for it to completely clear up. It was getting so bad that I was not even able to sleep. I also needed to stop eating cheese, which is really difficult since cheese is in so many dishes. I was pretty determined, so just removing a specific type of food for a while and seeing what happened, and after removing many different foods, like eggs, or specific spices, or other foods that seemed like it was causing the hives, milk was the culprit. Interestingly, milk seemed to just lower my defenses and cause other things to give me hives, like detergents, or basil. Like when I get out of bed, the hives seemed to be located only in the areas where the sheets touched my skin. After stopping milk, not even detergents would cause the hives. I hope this helps. If milk doesn't stop your hives, then eliminating a different food may do the trick.
Thank you! This is a very informative column. I am 87, and I am having a session with CIU! I find that icing down the wheals gives relief. I also find that rubbing the wheals with coconut oil keeps them from itching as much. I just started my hives session, but recognize that I have had other sessions In the past. My hives sessions, I thought, began with a cold, drippy nose, but never progressed to my throat, and skipped to my lungs, for a bronchitis and a honking cough. I have had this session for 3 weeks now. First doctor gave me prednisone and Benadryl and claritin. Visit to ER after lip started swelling after 3 days on remedy #1. ER doctor gave me stronger prednisone, a Benadryl drip and I am taking a stronger prednisone course and the Benadryl and Claritin. I will see an allergist in 2 weeks. Your video helps me get up on new things for hives. It used to be Calamine and oatmeal wrapped in handkerchief, tied with rubber band, and dabbed in water to make a paste that you patted over your wheals. Ice packs work better. (I have 5 ice packs of various sizes. ). Another thing I am going to try is supercleaning my bedding. I will wash sheets with detergent, then wash again in-clear hot water, and dry in dryer. I will also put comforters and bedspreads in a hot to warm dryer for at least 30 minutes. Who knows, there could be bacteria or tardigrades in the bedclothes that you might not suspect. This would be good especially if you have had itching at night. Good luck! Love from G’ma.
I’ve had CSU for 15 years after doctors telling me it was “allergies”, they finally found what it was! I was prescribed Montelukast and Plaquenil (neither worked) and now I am going to start my Xolair injections, so this was very informative :)
@@inammir1979 I’ve only had my first 2 injections so far but it’s been working really good! If I get any hives (rarely now) they’ll leave quickly.. I’ve only got bad hives 1 week before my 2nd injection but I’m good now :)
Greetings from Florida USA I'm happy the xolair is working for you🤗🤗. I also got diagnosed with idiopathic urticaria. I am allergic to certain medicines, antibiotics, also environmental and food allergies . I started the xolair injections in January of this year and unfortunately I continue having hives. I can say xolair is keeping my asthma under control. The intensity and the duration of the flares of urticaria has decreased. I think is slowly working and hopefully soon I'll be free of hives and medicines. I just subscribed to your channel😊
Hey! Thanks so much for subscribing! Im glad to hear that its helping, even if its helping slowly! Mine took a while to kick in too! Let me know you get on over time :) x
Thank you so much for the video Sonja, it is my Senior year of highschool and I have missed out on so many parties and so many activities with my friends it is very depressing due to CIU. Now, in a week or two I will be taking Xolair for my CIU due to Antihistamines not working and im so happy you could give me insight! Im grateful to know now how good it is to be normal and I hope to free just like you for the rest of my life! Cheers to you being CIU free!
Evan Blodgett hey! I'm glad the video was able to give you a few tips about the Xolair injections. Good luck with it and let me know how you get on :) xx
Hope to start xolair soon! Been dealing with this for about 10 years. Comes and goes with hot and cold weather, stress and anxiety, spicy foods. OTCs anti histamines dont work. Was prescribed prednisone which made it all go away for about 3 weeks. Came back like before so xolair it is, hoping for the best.
Update: Unfortunately, I had no luck after 7 Xolair injections on each arm over the course of 5 months. I started working with an itch specialist in Miami and I am now off of Xolair and began taking cyclosporine, which, in my case, has provided some relief, less frequent hives after 2 weeks. Hoping it improves even more. Something else I was recommended by my allergist is to try the Wim Hoff method since cold water helps me 🥶 - still have yet to try it. Anywho, everyone is different but do not lose hope. I’ll provide another update later on 🙃
Just got diagnosed after having hives for 6years and also did Xolair, but Xolair made me gain weight. The brain lesion was missed... I am really happy that Xolair worked for you and that you are hive free! In Canada Xolair is approx 1750/month. It's much cheaper in the USA.
Xolair is available in America. I had to go on cyclosporine until I got approval from my insurance company for the injections. If you have insurance, call Xolair because they have payment assistance where you only pay $5 or $10 for the injection. The only qualification is that you must have insurance; there’s no income limit or anything like that.
I used to have urticaria,and every one knows the loneliness and anxiety with ciu patients,I got my Xolair injections 300mg a month,I completely got red of them after 2 weeks
after i watched your video about hives, yesterday i just took my first injection of xolair....hope the progress is good.... thx alot for your video....once again...really thank you....
Hi..how did you get xolair? Did you just bought it or you need a doctor to prescribe. I have this hives for 15 years and im so happy that i have found this video and hopefully help me to get rid of this nightmare.
@@TedlinksChannel I am not sure, I just know that my grandmother and father had the same diagnosis. Sadly, they both passed away the last few years and hadn't been tested. I find it statistically unlikely that their symptoms were caused by some other gene(s), or that somehow my own is isolated. I never underwent therapy due to medication sensitivity predicted in a pharmacokogenomics test I had taken.
Had hives for over a year now , gonna try the injections , I previously read about it, im glad it worked for you, Im going to see my doctor for recommendations , thanks 👍
@@hibaqobsiye2040 hi no I went for allergy tests , not allergic to dairy products , wheat ECT, basically saying it's not food related , still don't know, what causing it, I'm on steroids at moment keeping it at bay, but I've got a few starting again,
@@hibaqobsiye2040 plus I'm on loratadin , but they are not really that good, it's the steroids, but I've finished the packet now , so bet they will return
@@hibaqobsiye2040 I'm going to st Thomas hospital for tests again on 19th jan I'm hoping to see a doctor who can help me in getting the injection , nothing else is working , it's my last resort, all the best thank you
Great information you encouraged me to seek help. Watched your first blog last night. Called G.P. This morning, seen him as an emergency and was given steroids. Itching has cooled down straight away. I am looking forward to a good night sleep. I have also been refers to a dermatologist so I hope I get free like you Thank you keep going
I stared with CIU in September 2018. I take Zyrtec, Xyzal, ranitidine, montelukast, and Doxepin. I received my first Xolair injection almost a month ago. My hives are still severe and unrelenting I really hope the Xolair injections work because it's my last hope.
Dont give up. I've had it since 2013 and i can honestly tell you it eases after time but you also have to help it.. exercise and a good diet helps it ALOT. Any time ive gone back to eating as i usually would ( junk food and foods high in histamine ) it came back bad.
Has anyone here gotten cold/flu symptoms? I got my first round of Xolair injections May 31st. Within a few weeks I was getting like fatigue/soar throat symptoms. Then like June 17th I came down with like flu symptoms, acheyness/fever. This turned into crazy cold that just like lingered for rest of June. End of June it almost felt like I had like strep throat, but rapid/lab test came back negative. I'm feeling better as of July 5th, sore/strep throat feeling went away, but I still have some body fatigue that comes and goes, and just have this annoying post nasal drip and a cough that comes and goes. I've just never had sickness last this long before which is what freaks me out. Taking Xolair for mild chronic urticaria that started in December 2021. Did second round of injections June 28th, 2 injections per month. Dermatologist wants to keep me on Xolair at least 6 months.
@@sonjasleator7582Hey sonja i am going to take my first shot in few days and I have a question that if i urticaria is relapse after full treatment , will it cure after 2nd same treatment coz i have urticaria since 15 + years pls ans this❤
HI Sonja, how is your chronic urticaria 4 years after Xolair injections? They never come back again? I have my first shot days before, I have chronic urticaria for 5 years, it dont bothers my daily life, but just my periods are very weird. and I have wheat-dependent exercise-induced urticaria,WDEIU which I think I can avoid by not exercise after eating wheat. I saw a lot of people say their chronic urticaria come back when they stop the shot , So I wonder how is your situation. Thank you~
Hi Dana, I am still doing okay! I think I’ve been off the injections now for 4/5 years I think. Everything is still good and I’m just keeping everything crossed I stay this way! I hope you are feeling okay too xx
Just saw your original video. I had surgery a couple of years ago and had a terrible allergic reaction to the steri strips they used to cover the small incisions. Once that cleared up, I broke out in hives everywhere and went through pretty much what you described in your video. I’ve been on Xolair for 1.5 years. I’ve tried to wean off by extending the time between injections slightly but then the hives start popping up again.
I have it severe I had it since I was 7 and I’m 18 now when I get hot , nervous , or the temperature change all of a sudden my whole body whelps up in hives I get headaches sometimes and I have to lay down or get in a cold place to let them calm down and go away it’s really embarrassing and I get allot of questions. Is it contagious, do I have hepatitis c , they ask me stupid questions like that sometimes when it happens I just want to get away people 😔
omfg the are you contagious one is so relatable. going to an all girl's school having them run away terrified they'd get it was horrible no matter how many times I told them it wasn't contagious
I have been suffering with ciu for the past two years and am so tired of people ask If it’s contagious. It effects my sleep, my daily life and confidence. Going into Xolair next week hopefully it works
@@erinsylvester9664 i hear you.. ive had it since 2013 and i was getting thess injections in 2015 but for me it didnt help immediately and it did take a while to help me but once i did get it i found it became SO MUCH easier to adapt to the change during summer however, winter it always flares up again because of the temperature going back to being COLD. With what i said i dont mean to sound like im taking your hope away its just being through it all and knowing what it does mentally and physically, im just trying save you from stress that will ruin your life :(
Romayne mo thank you so much it’s nice to have support and hear from someone who understands, I had the injection a couple of weeks ago and unfortunately had some quite negatives side affects - I am debating whether or not to carry on with the treatment.
jj m I’m taking 2 shots of XOLAIR every month. The third shot made a big difference for me tbh and now I can be under the sun for about 10 mins (I have solar urticaria).
I'm getting ready to start the xolair shot I've been tested for everything that they say I'm negative but everytime I eat eggs and cheese I break out in hives so I don't know if the scratch tests are accurate. And I have chronic hives I'm just curious about your opinion on it I'm thinking I take this xolair shots just to get a restart in my immune system
It deffo sounds that your body cant deal with eggs and cheese if thats the only time you break out. If you break out even when you dont eat them then sure, give xolair a try. Always go by what your dr recommends tho xx
Scratch test didnt find all my allergies the blood test did. You tell them what you think you react to and they jot it down and have it checked. I had bad reactions to Tomatoes and the scratch test never caught it but the blood test did. But like you I already noticed my bodies reaction to it.
For those of you who are starting the Xolair treatment, I wish you the best of luck and I really do hope it works out for each and everyone of you. I’ve been suffering with CSU 20 years, the doctors are messing me about can you plz give me suggestions on how I can convince the doctors to refer me for the Xolair treatment. Thank you x
@@sonjasleator7582 my partner is really worried about the possible bad side effects of xolair she was offered it she's had urticaria 17 years every winter mainly I'm UK
How did you feel when you get less tablets? I feel it will take a long period of time before I can be completely off the medicine because the medicine doesn't cure me, but only press down the symptons.
Hi sonja I need to ask after the injections are you still hives free. Did you had angioedema aswel and now is the swelling all gone now please let me know thanks.
Greetings from Las Vegas, USA.. I love your accent it's so cool. I was given a booklet for this medication from my doctor and came past your video. I will discuss this with my family and see what they think and find out if my medical insurance will cover most of the cost. Ugh..nerrvous but I am over the steroids and antibiotics. and the bronchitis. I had sinus surgery to help with that, but it's not going to stop everything. Thank you.
Cristal Rojas my doctor prescribed me and my health insurance covers it for me. For me it worked 100% I never had urticaria again thank god that shit was super annoying
I developed csu in 2016 as well and started the xolair injections in 2018 I still to this day am on the injections. I still barely get any relief with this medication and it’s 2022. But it is the only thing that’s works to help.
i am suffering by urticaria from last 4 year. And i take Antihistamine daily. Now doctor suggest me for Xoliar. But Xoliar is very expensive in our country. My monthly Income is almost 100$, But Xoliar 300ml Price is 350$. what can i do. please help me😢
I have for 2 years a CU..in this 2 years i take a lot of medicine..nothing help me..finally..untill now 5 months ago when i make the first injections with xolair 150 mg...but untill now i see not results..how many injections i have to take?i dont know what to do..to take..i cant go outside..nothing
i get 2 every month one in each arm it helps me a lot but i still get them sometimes. But they dont last very long and are only on like 1% of my body where as before it was around 60% and last a long time.
My mother in-law wants to try this. Her hives started about 6 months ago and wont go away. She has a question: are the shots a forever thing? How can she write to you? Thank you for posting this video!!
It completely depends on what the dr suggests. I got the shots for 6 months and I know some people had them for a few years. I suppose everyone is different and will need a different amount. I hope that helps x
Thanks for the videos. I have autoimmune hives due to hypothyroidism/hashimoto’s. Were you tested for thyroid function? The first thing they did when I had hives in 2017 for 10 months every day was test my thyroid. I now have hives again in 2022. It’s horrible. I’m glad you’re feeling better.
They didn’t test for thyroid as they where convinced it was just an allergic reaction to something…. It was only when I went to a private clinic they said something triggered my immune system but they weren’t sure what? I think it may have been a antibiotic I was on 🤷♀️ but they said I might not ever know, it can just happen… I hope you start to feel better again soon ❤️❤️
@@sonjasleator7582 Sonja, if they come back may I suggest you have them do a full Thyroid panel including antibodies. They know now that chronic urticaria is very often tied to Thyroid function and or another autoimmune disease. I am so glad you are doing well!
@@sonjasleator7582 Hey sonja i am going to take my first shot in few days and I have a question that if i urticaria is relapse after full treatment , will it cure after 2nd same treatment coz i have urticaria since 15 + years pls ans this❤
Hello! My mother was diagnosed with this illness in around September. She was prescribed with Xolair since antihistamines didn’t work well in her case. She presents angioedema (swelling in her lips hands and feet) Did you by any chance also have angioedema? If so did Xolair also calmed it? Greetings from Argentina
Hello, yes I had swelling in my lips but just the hives on my hands and feet. The xolair for me calmed it all down and I’m very thankful for that. I hope the xolair can help your mother ❤️
@@sonjasleator7582 thank you very much, for your input!! Another question if you don’t mind me asking. Did Xolair cause you fatigue? Cause my mother recently had her 2nd dose and time to time she feels very fatigued. I know I should ask this to a doctor but your experience is very helpful. Thanks in advance
Hi. Did you ever get hives on your scalp? I have them and they are so painful and ITCHY. I'm very healthy and scared to see Dr. Are there any side effects from this drug? Please let me know. Best, Johnny
No side effects for me! And it is rare to cause side effects according to my dr. You should definitely go to an allergist! You can be healthy and still get chronic urticaria, but it wont last forever x
I dont remember having any on my scalp but I would have them across my fore head and yes the itching drove my insane! I havnt had any side effects from this drug thankfully. I think some people got hair loss but I suppose it all just depends on how your body works and reacts to things. xx
I just wanted to thank you for the video. I just realized the other day that I’ve been dealing with this off and on for well over a year. Maybe more than two. Now there’s never an off period. It’s every day. I was just diagnosed a month ago and am currently waiting to be approved for Xolair. I wasn’t diagnosed as having CIU for the longest because I was going through a huge amount of turmoil in my life. I had been hospitalized in a psych ward. I wasn’t working and had lost my way. My mother passed away. It was simply chalked up to emotional stress. The best was in the psych ward when they said I was too emotional and I should just calm down. “Gee thanks useless twit. My depression of 35+ years is now miraculously cured because of your incredible wisdom so I’ll just be chill now!” My hives aren’t small. I get huge hives. Some as much as a foot in diameter like the ones that occupy my entire abdomen so that I appear to be 3 months pregnant. Others that wrap their way around my entire arm or leg. Ones that cover my whole face, hands, feet, back. The more I scratch, the more they bruise so that on top of being itchy they are painful even days after one of them has disappeared. Once I scratched so deep I was in danger of developing cellulitis. This illness is life crushing. I have no life. It’s isolating because I feel too uncomfortable with all the scratching that I’d be embarrassed to be in front of anyone acting like I have a raging case of scabies. It feels like I’m being punished for something and I don’t know what that something is. I cry all the time. And yes, prednisone absolutely does the trick but that’s no long term solution and if you suffer from depression it actually makes the depression worse. I can’t wait to start Xolair. Hopefully it’ll happen in the next month. I just wanted to thank you because your video made me realize this mess might have an end point and it made me realize I am not alone. This particular misery really loves the company but wouldn’t it be nice if we were all over it already?
I got my first Xolair shot exactly 4 weeks ago I. I had my next injection scheduled for today. Because of unforeseen circumstances I had to reschedule my appointment for next Friday and just like clockwork, my hives appeared again midday. I’m upset that I have to wait another week for my second injection after a solid month without a single hive but I’m happy to know that Xolair was and is the solution.
@@mousegirl100 I'm glad to hear that there's a solution for you. when the hives reappeared were they just as aggressive as before? hopefully it will all get sorted by the next injection and you get your life back
salma amin They’re exactly the same which is to say they’re huge. My whole inner thigh is covered as well as my entire left forearm. It probably won’t get sorted until after that second injection and best believe I will stick to the monthly regiment. One thing I noticed after the first injection. The hives were gone the following day. The following week I stopped taking my hydroxyzine thinking I was covered by the Xolair. The hives may have been gone but without the hydroxyzine I was still incredibly itchy. The Xolair site does advise that you not stop taking the other medications prescribed before starting the Xolair. They couldn’t be more right! I wonder if there’ll be a time when I don’t have to have injections or have to take pills.
@@mousegirl100 you're right, it's best to keep taking the antihistamines and then slowly wean yourself off of the anti-histamines after your final xolair like how the girl in the video did so it gives your body time to repair itself. I believe there will be a time as apparently after xolair injections, the chances of you getting urticaria is the same chance of getting urticaria in the first place which is like less than 1% of the population. I believe they will be permanently work for you
My son Facing same problem from last 6 month his age 15 year. is this Medication - Levocetirizine and Montelukast Injection - Omalizumab (Xolair) is it available in India???
Just a suggestion Sir, I also had urticaria. Try to drink the cobra's blood or cook the meat of cobra then eat it. Sounds crazy and weird right but I got no option and I just try it
Did you get it for free from the NHS as im told its to expensive. Iv been put on all types of Antihistamines over the past 3 years with little or no effect. currently taking steroids that work and back to specialist on Friday this week. fingers crossed they will put me on Xolair.
@@sonjasleator7582 Thanks for getting back to me so quickly. im sure going to push for it this week. Im not looking forward to another summer indoors :( Thanks again
Did you feel you flared up a little bit after your xolair injection? I’m in my 5th month I’m still a little itchy and it’s affecting my sleep was you in the 5th month?
The itchiness stayed with me for quite a while because I was so used to scratching. It was especially hard at night. But by the 5th month my body was still trying to heal. I hope you feel better soon x
@@sonjasleator7582 cool I'm glad your cleared up I'm going on my 4 the injection but I'm still itching and no relief ? how many Injections do you have to take to get full relief. I'm on my 4 the injection and still I'm quite itching tho I don't think xolair is going to work at all ?
You do have to pay in the US. some insurance may cover it and they do have good copay programs but without insurance it be upwards of $1,000 a month for the medication and the injection :(
Hey sonja i am going to take my first shot in few days and I have a question that if i urticaria is relapse after full treatment , will it cure after 2nd same treatment coz i have urticaria since 15 + years pls ans this❤
@@Ryan-gc3sd honestly i took only one shot 5 months ago because its very expensive here in my country i was not able to afford the 6 shots so i stopped the injections , and i am still suffering from urticaria till now . tomorrow i will go to a doctor that gives natural treatment hope it will work , if it works i will let you updated hope you become better soon
Do you know if you have any autoimmune issues? I am antinuclear antibodies (ANA) positive and my allergist thinks that may contribute to my hives and swelling. I’m currently taking a high dosage of antihistamines and Doxepin but I still have hives and swelling daily.. so the next step will likely be xolair. Our stories are very similar so I am just curious if you are also ANA positive like me.
I was ANA positive when they tested me back in February 2021. I also found out then I need my tonsils taken out, and just found out my hormone levels are low. I can’t do anything about any of it since my ICU is not stable. Have been in higher levels of antihistamine and Pepcid since February with not a lot of relieve. Looking at Xolair as an option now.
Did you gain weight on Xolair? Ive been on it for 5 months now and I gained 20lbs. I'm a very active person and at the gym 4-5x a week for 2hours. I still can't lose any weight!
Hello Dear you expein very well I need to ask I have urticaria last 12 years I'm going to take omalizumab injection 💉 could you please let me know after your injection still you have urticaria? I hope after omalizumab Injection urticaria permanently go Please please reply my message 🙏
Hi sonja I just watched your urticaria video just wanted to ask for update are you fully cured kindly tell me if Xolair worked and your are living as normal. Plz do reply back
@@kuldeepkumar-pm7zf sorry, meant leave instead of left. Update, I already stopped using xolair since i discovered my main trigger is lack of sleep. Since i used to wake up at 6 am (so i could go to school) every morning and go to sleep very late (between 12 and 1 am) due to my duties (as a student and home responsabilities) my urticaria was always at its fullest. Now that I attend colllege, my schedule is not as tight as it was before and I don 't have to wake so early in the morning. Plus, now my diet is almost out of proccessed foods.
I did xolair it has stopped the hives (the look of them), but the itching, stinging, and burning srill there especially on scalp. Did anyone else get that result I've had 5 months worth of treatment- 300 mgs every month. What else did you use to help the burning and itching stinging, other than Zyrtec, benadryl, hydroxine, and doxepin. ,
@@sandy-us6ig Yes, it is a lot. But nothing else was working. Ibam now at a pount where I get rhem every 6 to 7 weeks. The plan is to ohase them out all together. I think there are programs to help with the cost, maybe call the company that makes it.
How much does it cost ? I'm in Canada and just left a allergist and he said it's expensive but not sure how much? I'm also wondering do you know if there's an other name for the injections? I'm about a month with the hives not as bad as yours visually, it's not patchy like yours my looks like a sun burn everywhere. So with that I wonder if I'll allegeable.
The official medical name for the Xoliar Injections is Omalizumab. Ive been told in the states the injection can be anywhere from £500 - £1000.. I live in the UK and was on the NHS waiting list for 6 months and got it for free... xx
@@triciahamilton3035 I was suppose to today but cancel after I watch a video on how it causes certain cancer and got scared. I don't want to have to live through this anymore but I'm scared of it becoming something else worse
Stopped injections after second one was in agony with joint pain mainly hips but it got rid of my urticaria straight away my doctor advised against any more injections urticaria came back about six weeks after stopping injections x
Hi - I go tomorrow for my third xolair injection and about a month ago I did notice hair 😔. As far as results - I may go two weeks without a flare up - hopefully I’ll see better results after the third injection🤷🏽♀️
@@rahulkote1636I’ll try to explain - I section my hair into 6 section after shampooing it - the thickness of two combined sections equals what one was in the past - however I was also diagnosed with hypothyroidism which could have also been a factor
Hey! I am from Russia, im 26 y.o. and i had the same problem almost for 2 years.. Hronic urticaria.. Terrible thing ever.. And now i finelly had a therapy to stop beeing like hepard) Maybe it will help as that helped to you! Wish one day to wake up without urticaria..
@@jerrilyncarnesi3742 hey is your cancer is the side effect of xolair shots? Pls reply coz i am also thinking of getting xolair And i hope you're doing well❤
My doctor did me a favour at the time and managed to sort out a a years worth for free but if u do have to pay you'll be looking at £120-£150 per injection or atleast that was the price in 2015 im not to sure about now.
Hey Sonja, i start my first shot on thursday and I was wondering if you ever drank alchohol or smoked anything while you were on xolair and if you did what were the symptoms if any?
Hey! How did your shot go? Im not a big drinker... I think I maybe had the odd glass of wine but no it didnt effect me at all thankfully. I am a smoker but again it had no effects with it either :)
Sonja Sleator My shot went great!:). The day of that I got my shot I was super happy and so I didn’t break out at all. The second day was the first day ever that I didn’t break out on my back and I could barely feel any hives on my arms and legs it was great. Unfortunately, on the 3rd day I was super stressed and somehow broke out on my back and again and it was painful. I still feel better overall, but not a ton better. If I could somehow never stress out I would probably be cured very quickly, unfortunately since Im about to graduate my parents want me to get a job for the summer before I go to college, and I can’t be in the heat because of the hives and job in general is too stresssful and my parentS dont care enough about my problem for me not to have a job. Does the Xolair progressively get better (my first shot was 300 mg), meaning will i feel less hives even a week from now? And does that second shot help a lot more? I really am desperate for answers because if im going to have to get a job i dont want to be miserable and on the brink of suicide :(.
Evan Blodgett I'm soooo sorry that you are so stressed! But yes if you feel better and noticed a difference after the first injection it will only get better from here on in! If you are like me hopefully you will notice a huge difference by the summer. I would really rethink about a summer job. Let your body rest and take time to adjust to this new medication rather than worrying about a summer job. Jobs will always be there. So use this time now while you can to look after your health. That's just my opinion on it. But only people like us can really understand just how bloody horrible this disease is x
whyisthisinmyrecommended I’ve been unemployed since I’ve been diagnosed with this at 17 and I’m 22 now :( I’ve done 2 apprenticeship between those 5 years and both times have had to quit within 3-4 weeks because of the pain
Thanks for making this. Urticaria is ruining my life and no one seems to understand.
I understand, I'm miserable. Hang in there
I know. I'm a teen girl going through this, the bullying sucks. Your not alone. It took 8-10 months for me to get diagnosed
MakDarko2010 i just can’t take it anymore
I have to called in to work several times because I got hives all over my neck and arms , people look at me like I have a mange or disease ☣️
@@MakDarko2010 I understand I had it severely and now its more of occasional. I made a video on it if your interested. Have had it for about 17 years
@@pablosierra2234 I get that, I went to urgent Care for a broken toe and the doctor was like "what's going on with your face?" 😑
This xoliar is magic !!!! Last year i had severe urticaria, started suddenly, nothing helped, i took about 4 pills a day and nothing worked, my doctor recommended xoliar, and from the first injection i was hive free, all disappeared, the itching, the pain, everything!!! Im taking one shot every month for a year now, hopefully i will start reducing the amount until my body get balanced, but for now all is amazing
So pleased you are doing well 😊
Did you pay for it or is it free in uk
@@sandy-us6ig im in israel, and yes i pay for it every month and a half about 150$
@@sonjasleator7582 Hey sonja i am going to take my first shot in few days and I have a question that if i urticaria is relapse after full treatment , will it cure after 2nd same treatment coz i have urticaria since 15 + years pls ans this❤
I just wanted to say I’m so glad I came across your urticaria videos. I get severe anxiety with my hives and seeing how calm you are with it all is so inspirational! I just got my first xolair shot 5 days ago, and was so relieved to hear it took you three shots to see total results. I just wanted to say thank you for your willingness to put this out!
Hi Brittany! I hope the Xolair injections work well for you! Your more than welcome for the video! Good luck! hope you feel better soon xx
Any side effects
I'm starting my Xolair shots tomorrow! I did a little RUclips search to see what I could find for patient experience and came across your videos. Thank you for sharing! ❤️
You are more than welcome! Good luck! ❤️
@@sonjasleator7582Hey sonja i am going to take my first shot in few days and I have a question that if i urticaria is relapse after full treatment , will it cure after 2nd same treatment coz i have urticaria since 15 + years pls ans this❤
I've been taking Xolair for 3 years. I also took two shots like you, but now I take one with 2 anti-antihistamines per day. Happy for you to be off of it! It's a nightmare that most don't understand.
Yeah I agree! It's good to be in the clear for know. Don't think I'll ever really know how I got it?
so you dont worry about the blood clots poor blood circulation heart attacks or cancer that Xolair warns you it can cause? I suffer greaty from CIU as a kid and as an adult. i have been on dapsone and many other meds that stopped working. yet this xolair they want to inject me with, it seems that people like myself that are desperate to get their quality of life back, are not concerned about blood clots in the lungs cancer heart attacks or poor blood circulation that xolair has been known to cause. As much as I suffer.I am concerened about that. I wonder if people even got those serious side effects if they even would relate it to xolair? Since they only see the positive side and negelet the possible sieeffects it can cause in the long run. How Peculiar indeed.
Hey are you still taking xolair?
Thanks so much for posting this. I have chronic hives and my doctor has suggested Xolair. This is scary and your experience helped to calm my fears. Thanks again for your openness to share your experience.
You are very welcome. I hope it’s helped xx
Mine started in 2012. It lasted for 3 weeks. Again in 2016 for 3 weeks . Each time I was a steroid to control them. Now in 2020, it's been 10 weeks. Each time I have allergy test, and I'm never allergic to anything. I've been tested for lupus, leukemia, and other diseases, everything came back negative. I was on steroids for 5 weeks, in which it controlled the hives and swelling. But I had to get off the steroids. As soon as I got off everything came back. I tried all kinds of antihistamine and nothing. I had mine first xolair injections a couple of days ago, but I'm still having issues. Hopefully soon I get better too. Thanks for the info. Glad I'm not the only one going through this. Your video really helps.
I really hope that over time you will see results. It took me about 3-4 months before I saw a change. I kept up my antihestimes while getting them tho, just incase xx
Xolair isn’t working for me and it’s been two weeks. I hope it works better on the second shot. I pray it works.
@@jerrilyncarnesi3742 Hey, how's your treatment?
@@sonjasleator7582 Hey sonja i am going to take my first shot in few days and I have a question that if i urticaria is relapse after full treatment , will it cure after 2nd same treatment coz i have urticaria since 15 + years pls ans this❤
Thanks for the video. Great information. I just passed a two month episode of urticaria. I noticed that milk may be the culprit for me and I determined this by keeping a food diary with symptoms so I can rule out any possible causes. But, I think my case is due to leaky gut and maybe the milk (or other substance) caused a problem in the gut (allowing food particles in my blood stream where an immune response in the form of hives occurred) and it took about two months to heal.
I introduce this comment because if the hives are caused by leaky gut, then the Xolair can be masking a greater and more dangerous problem. I look forward to more videos from you. Thanks.
Any other sympoms you had with your leaky gut?
Afroditi Lakou I’ve actually completely solved my problem. Once I stopped drinking milk (I love milk) my hives completely went away. I haven’t had the problem for a long time and I’ve actually stopped taking antihistamines.
Afroditi Lakou I believe the milk caused the gut problems. They wouldn’t appear immediately so that is why I believe it was related to leaky gut. All the food I thought I had a sensitivity to are not a problem anymore.
How long did it take from when you stopped drinking milk for the hives to go away? X
@@MandieLovesMAC It probably took about a week for it to completely clear up. It was getting so bad that I was not even able to sleep. I also needed to stop eating cheese, which is really difficult since cheese is in so many dishes. I was pretty determined, so just removing a specific type of food for a while and seeing what happened, and after removing many different foods, like eggs, or specific spices, or other foods that seemed like it was causing the hives, milk was the culprit.
Interestingly, milk seemed to just lower my defenses and cause other things to give me hives, like detergents, or basil. Like when I get out of bed, the hives seemed to be located only in the areas where the sheets touched my skin. After stopping milk, not even detergents would cause the hives.
I hope this helps. If milk doesn't stop your hives, then eliminating a different food may do the trick.
Thank you! This is a very informative column. I am 87, and I am having a session with CIU! I find that icing down the wheals gives relief. I also find that rubbing the wheals with coconut oil keeps them from itching as much. I just started my hives session, but recognize that I have had other sessions In the past. My hives sessions, I thought, began with a cold, drippy nose, but never progressed to my throat, and skipped to my lungs, for a bronchitis and a honking cough. I have had this session for 3 weeks now. First doctor gave me prednisone and Benadryl and claritin. Visit to ER after lip started swelling after 3 days on remedy #1. ER doctor gave me stronger prednisone, a Benadryl drip and I am taking a stronger prednisone course and the Benadryl and Claritin. I will see an allergist in 2 weeks. Your video helps me get up on new things for hives. It used to be Calamine and oatmeal wrapped in handkerchief, tied with rubber band, and dabbed in water to make a paste that you patted over your wheals. Ice packs work better. (I have 5 ice packs of various sizes. ). Another thing I am going to try is supercleaning my bedding. I will wash sheets with detergent, then wash again in-clear hot water, and dry in dryer. I will also put comforters and bedspreads in a hot to warm dryer for at least 30 minutes. Who knows, there could be bacteria or tardigrades in the bedclothes that you might not suspect. This would be good especially if you have had itching at night. Good luck! Love from G’ma.
Getting my first shot ever in about an hour! So nervous but excited
how did it go? I'm getting mine this month and I'm nervous lol
I’ve had CSU for 15 years after doctors telling me it was “allergies”, they finally found what it was! I was prescribed Montelukast and Plaquenil (neither worked) and now I am going to start my Xolair injections, so this was very informative :)
good luck! I hope it helps you x
Sonja Sleator thank you! x
@@MkdRep2000 hey did it work
@@inammir1979 I’ve only had my first 2 injections so far but it’s been working really good! If I get any hives (rarely now) they’ll leave quickly.. I’ve only got bad hives 1 week before my 2nd injection but I’m good now :)
@@MkdRep2000 glad to hear that it works well that means there is hope.
Have a speedy recovery......
Greetings from Florida USA
I'm happy the xolair is working for you🤗🤗. I also got diagnosed with idiopathic urticaria. I am allergic to certain medicines, antibiotics, also environmental and food allergies . I started the xolair injections in January of this year and unfortunately I continue having hives. I can say xolair is keeping my asthma under control. The intensity and the duration of the flares of urticaria has decreased. I think is slowly working and hopefully soon I'll be free of hives and medicines. I just subscribed to your channel😊
Hey! Thanks so much for subscribing! Im glad to hear that its helping, even if its helping slowly! Mine took a while to kick in too! Let me know you get on over time :) x
are u hive free?
I love you so much you’re an angel. Thanks for sharing. I was so depressed but you gave me hope
Glad I can help x
Thank you so much for the video Sonja, it is my Senior year of highschool and I have missed out on so many parties and so many activities with my friends it is very depressing due to CIU. Now, in a week or two I will be taking Xolair for my CIU due to Antihistamines not working and im so happy you could give me insight! Im grateful to know now how good it is to be normal and I hope to free just like you for the rest of my life! Cheers to you being CIU free!
Evan Blodgett hey! I'm glad the video was able to give you a few tips about the Xolair injections. Good luck with it and let me know how you get on :) xx
I've been taking Xolair for the past 5 years. It's saved my life.
I’m so glad! It saved my life too!
how often do you get them
Hope to start xolair soon! Been dealing with this for about 10 years. Comes and goes with hot and cold weather, stress and anxiety, spicy foods. OTCs anti histamines dont work. Was prescribed prednisone which made it all go away for about 3 weeks. Came back like before so xolair it is, hoping for the best.
I wish you all the luck! I really hope it helps xx
It will help...guaranteed 👍🏼🥂
Update: Unfortunately, I had no luck after 7 Xolair injections on each arm over the course of 5 months. I started working with an itch specialist in Miami and I am now off of Xolair and began taking cyclosporine, which, in my case, has provided some relief, less frequent hives after 2 weeks. Hoping it improves even more. Something else I was recommended by my allergist is to try the Wim Hoff method since cold water helps me 🥶 - still have yet to try it. Anywho, everyone is different but do not lose hope. I’ll provide another update later on 🙃
How do i get refered for xolair. Can it be referred by gp
@@sandy-us6ig I went directly to an allergist who administered the injection
Just got diagnosed after having hives for 6years and also did Xolair, but Xolair made me gain weight. The brain lesion was missed... I am really happy that Xolair worked for you and that you are hive free! In Canada Xolair is approx 1750/month. It's much cheaper in the USA.
Maxine A.G. Guess that is interesting, I have it chiari malformation and now this.
Xolair did not work. But is does work for others. I find dietary changes worked best especially a more vegan diet.
Thanks for asking, stay safe and hive free!💗💗💗🙏🏻🙏🏻🙏🏻
Xolair is available in America. I had to go on cyclosporine until I got approval from my insurance company for the injections. If you have insurance, call Xolair because they have payment assistance where you only pay $5 or $10 for the injection. The only qualification is that you must have insurance; there’s no income limit or anything like that.
Thanks for the video 😊 You’re not alone! I’ve had it too, still taking the injections!
Afroditi Lakou For how long? I’ve been getting Xolair for 1.5 years.
Like 4 months! Why have you been taking it for so long?
I’m so glad you are doing well!
I used to have urticaria,and every one knows the loneliness and anxiety with ciu patients,I got my Xolair injections 300mg a month,I completely got red of them after 2 weeks
after i watched your video about hives, yesterday i just took my first injection of xolair....hope the progress is good.... thx alot for your video....once again...really thank you....
Hi..how did you get xolair?
Did you just bought it or you need a doctor to prescribe.
I have this hives for 15 years and im so happy that i have found this video and hopefully help me to get rid of this nightmare.
Ervin Mari you have to go to the doctor normally
Starting treatment soon... I really hope it works for me.
Did it get better?
@@Dreadtheday what site did you use for finding the mutation?
@@Welshie. not doing treatment. I used 23 & me. I am not.the only carrier in my family.
@@Dreadtheday What is the mutation/gene you looked for?
@@TedlinksChannel I am not sure, I just know that my grandmother and father had the same diagnosis. Sadly, they both passed away the last few years and hadn't been tested. I find it statistically unlikely that their symptoms were caused by some other gene(s), or that somehow my own is isolated. I never underwent therapy due to medication sensitivity predicted in a pharmacokogenomics test I had taken.
Had hives for over a year now , gonna try the injections , I previously read about it, im glad it worked for you, Im going to see my doctor for recommendations , thanks 👍
are u hive free?
@@hibaqobsiye2040 hi no I went for allergy tests , not allergic to dairy products , wheat ECT, basically saying it's not food related , still don't know, what causing it, I'm on steroids at moment keeping it at bay, but I've got a few starting again,
@@hibaqobsiye2040 plus I'm on loratadin , but they are not really that good, it's the steroids, but I've finished the packet now , so bet they will return
@@georgebrouder8160sorry to hear that. have you ttried the xolair injections?
@@hibaqobsiye2040 I'm going to st Thomas hospital for tests again on 19th jan I'm hoping to see a doctor who can help me in getting the injection , nothing else is working , it's my last resort, all the best thank you
Great information you encouraged me to seek help. Watched your first blog last night. Called G.P. This morning, seen him as an emergency and was given steroids. Itching has cooled down straight away. I am looking forward to a good night sleep.
I have also been refers to a dermatologist so I hope I get free like you
Thank you keep going
I stared with CIU in September 2018. I take Zyrtec, Xyzal, ranitidine, montelukast, and Doxepin. I received my first Xolair injection almost a month ago. My hives are still severe and unrelenting I really hope the Xolair injections work because it's my last hope.
Dont give up. I've had it since 2013 and i can honestly tell you it eases after time but you also have to help it.. exercise and a good diet helps it ALOT. Any time ive gone back to eating as i usually would ( junk food and foods high in histamine ) it came back bad.
Hi, are you still having all kind of foods? Or you are still avoiding something?
Has anyone here gotten cold/flu symptoms? I got my first round of Xolair injections May 31st. Within a few weeks I was getting like fatigue/soar throat symptoms. Then like June 17th I came down with like flu symptoms, acheyness/fever. This turned into crazy cold that just like lingered for rest of June. End of June it almost felt like I had like strep throat, but rapid/lab test came back negative. I'm feeling better as of July 5th, sore/strep throat feeling went away, but I still have some body fatigue that comes and goes, and just have this annoying post nasal drip and a cough that comes and goes. I've just never had sickness last this long before which is what freaks me out. Taking Xolair for mild chronic urticaria that started in December 2021. Did second round of injections June 28th, 2 injections per month. Dermatologist wants to keep me on Xolair at least 6 months.
It didn’t happen to me but everyone is different. I hope you start to feel better soon x
@@sonjasleator7582Hey sonja i am going to take my first shot in few days and I have a question that if i urticaria is relapse after full treatment , will it cure after 2nd same treatment coz i have urticaria since 15 + years pls ans this❤
HI Sonja, how is your chronic urticaria 4 years after Xolair injections? They never come back again? I have my first shot days before, I have chronic urticaria for 5 years, it dont bothers my daily life, but just my periods are very weird. and I have wheat-dependent exercise-induced urticaria,WDEIU which I think I can avoid by not exercise after eating wheat. I saw a lot of people say their chronic urticaria come back when they stop the shot , So I wonder how is your situation. Thank you~
Hi Dana, I am still doing okay! I think I’ve been off the injections now for 4/5 years I think. Everything is still good and I’m just keeping everything crossed I stay this way! I hope you are feeling okay too xx
@@sonjasleator7582
Hi soja any side effects for inj yolair
Xolair is the best one!!!!
I suffer urticaria lots of years!!
Such a nightmare ! Breakouts with unknown cause !!!!
Just saw your original video. I had surgery a couple of years ago and had a terrible allergic reaction to the steri strips they used to cover the small incisions. Once that cleared up, I broke out in hives everywhere and went through pretty much what you described in your video. I’ve been on Xolair for 1.5 years. I’ve tried to wean off by extending the time between injections slightly but then the hives start popping up again.
And the symptoms disappear after you start taking xolair?
Thank you for sharing I’m about to get my first injection!!
I wish you all the luck!!!
I have it severe I had it since I was 7 and I’m 18 now when I get hot , nervous , or the temperature change all of a sudden my whole body whelps up in hives I get headaches sometimes and I have to lay down or get in a cold place to let them calm down and go away it’s really embarrassing and I get allot of questions. Is it contagious, do I have hepatitis c , they ask me stupid questions like that sometimes when it happens I just want to get away people 😔
omfg the are you contagious one is so relatable. going to an all girl's school having them run away terrified they'd get it was horrible no matter how many times I told them it wasn't contagious
I have been suffering with ciu for the past two years and am so tired of people ask If it’s contagious. It effects my sleep, my daily life and confidence. Going into Xolair next week hopefully it works
@@erinsylvester9664 i hear you.. ive had it since 2013 and i was getting thess injections in 2015 but for me it didnt help immediately and it did take a while to help me but once i did get it i found it became SO MUCH easier to adapt to the change during summer however, winter it always flares up again because of the temperature going back to being COLD. With what i said i dont mean to sound like im taking your hope away its just being through it all and knowing what it does mentally and physically, im just trying save you from stress that will ruin your life :(
Romayne mo thank you so much it’s nice to have support and hear from someone who understands, I had the injection a couple of weeks ago and unfortunately had some quite negatives side affects - I am debating whether or not to carry on with the treatment.
jj m I’m taking 2 shots of XOLAIR every month. The third shot made a big difference for me tbh and now I can be under the sun for about 10 mins (I have solar urticaria).
I'm getting ready to start the xolair shot I've been tested for everything that they say I'm negative but everytime I eat eggs and cheese I break out in hives so I don't know if the scratch tests are accurate. And I have chronic hives I'm just curious about your opinion on it I'm thinking I take this xolair shots just to get a restart in my immune system
It deffo sounds that your body cant deal with eggs and cheese if thats the only time you break out. If you break out even when you dont eat them then sure, give xolair a try. Always go by what your dr recommends tho xx
Scratch test didnt find all my allergies the blood test did. You tell them what you think you react to and they jot it down and have it checked. I had bad reactions to Tomatoes and the scratch test never caught it but the blood test did. But like you I already noticed my bodies reaction to it.
For those of you who are starting the Xolair treatment, I wish you the best of luck and I really do hope it works out for each and everyone of you. I’ve been suffering with CSU 20 years, the doctors are messing me about can you plz give me suggestions on how I can convince the doctors to refer me for the Xolair treatment. Thank you x
Try speaking to an immunologist doctor. They might be able to help you more x
@@sonjasleator7582 my partner is really worried about the possible bad side effects of xolair she was offered it she's had urticaria 17 years every winter mainly I'm UK
Message the company that provides xolair.
It must be an immunologist
How did you feel when you get less tablets? I feel it will take a long period of time before I can be completely off the medicine because the medicine doesn't cure me, but only press down the symptons.
So happy for you ❤
Hi sonja I need to ask after the injections are you still hives free. Did you had angioedema aswel and now is the swelling all gone now please let me know thanks.
Hello. Yes im still hive free and hoping that i remain this way. I didnt have angioedema. x
Greetings from Las Vegas, USA.. I love your accent it's so cool. I was given a booklet for this medication from my doctor and came past your video. I will discuss this with my family and see what they think and find out if my medical insurance will cover most of the cost. Ugh..nerrvous but I am over the steroids and antibiotics. and the bronchitis. I had sinus surgery to help with that, but it's not going to stop everything. Thank you.
I had it for 8 months it was terrible and today I’m taking my 4th Xolair shot
Cristal Rojas my doctor prescribed me and my health insurance covers it for me. For me it worked 100% I never had urticaria again thank god that shit was super annoying
@@Lucamourap you experiencing any side effects? I agree this shit is so annoying
I developed csu in 2016 as well and started the xolair injections in 2018 I still to this day am on the injections. I still barely get any relief with this medication and it’s 2022. But it is the only thing that’s works to help.
i am suffering by urticaria from last 4 year. And i take Antihistamine daily. Now doctor suggest me for Xoliar.
But Xoliar is very expensive in our country. My monthly Income is almost 100$, But Xoliar 300ml Price is 350$. what can i do. please help me😢
I have for 2 years a CU..in this 2 years i take a lot of medicine..nothing help me..finally..untill now 5 months ago when i make the first injections with xolair 150 mg...but untill now i see not results..how many injections i have to take?i dont know what to do..to take..i cant go outside..nothing
do you have to carry en epi pen at all times? i just got one to carry always...first shot scheduled in 2 days.
i get 2 every month one in each arm it helps me a lot but i still get them sometimes. But they dont last very long and are only on like 1% of my body where as before it was around 60% and last a long time.
My mother in-law wants to try this. Her hives started about 6 months ago and wont go away. She has a question: are the shots a forever thing? How can she write to you? Thank you for posting this video!!
It completely depends on what the dr suggests. I got the shots for 6 months and I know some people had them for a few years. I suppose everyone is different and will need a different amount. I hope that helps x
@@sonjasleator7582 thank you!
I did my second shoot of xolair so far I didn’t notice any pozitive changes it only got worse I’m praying that 3,4 shot will got better 😓
Hey, how's your treatment?
?? How you now
@@trevormcgrath7648 I was good for two months now I’m very very bad
That’s crazy to think about you only had to get that many I get two at a time every other week
I have one that is head induced, it’s pink, and only flushed when I’m hot or feel deep emotion. Would you think that the xolair might work for me
going to start this treatment soon and i really hope it works and makes it go away :)
Good luck! I hope it helps x
Thanks for the videos. I have autoimmune hives due to hypothyroidism/hashimoto’s. Were you tested for thyroid function? The first thing they did when I had hives in 2017 for 10 months every day was test my thyroid. I now have hives again in 2022. It’s horrible. I’m glad you’re feeling better.
They didn’t test for thyroid as they where convinced it was just an allergic reaction to something…. It was only when I went to a private clinic they said something triggered my immune system but they weren’t sure what? I think it may have been a antibiotic I was on 🤷♀️ but they said I might not ever know, it can just happen… I hope you start to feel better again soon ❤️❤️
@@sonjasleator7582 Sonja, if they come back may I suggest you have them do a full Thyroid panel including antibodies. They know now that chronic urticaria is very often tied to Thyroid function and or another autoimmune disease. I am so glad you are doing well!
@@justineb.4019 yes if they do come back I will definitely ask them to do that! Thank you for your suggestion ❤️
@@sonjasleator7582 Hey sonja i am going to take my first shot in few days and I have a question that if i urticaria is relapse after full treatment , will it cure after 2nd same treatment coz i have urticaria since 15 + years pls ans this❤
ah just found this update too - thanks :)
Hello! My mother was diagnosed with this illness in around September. She was prescribed with Xolair since antihistamines didn’t work well in her case. She presents angioedema (swelling in her lips hands and feet) Did you by any chance also have angioedema? If so did Xolair also calmed it? Greetings from Argentina
Hello, yes I had swelling in my lips but just the hives on my hands and feet. The xolair for me calmed it all down and I’m very thankful for that. I hope the xolair can help your mother ❤️
@@sonjasleator7582 thank you very much, for your input!! Another question if you don’t mind me asking. Did Xolair cause you fatigue? Cause my mother recently had her 2nd dose and time to time she feels very fatigued. I know I should ask this to a doctor but your experience is very helpful. Thanks in advance
Hi. Did you ever get hives on your scalp? I have them and they are so painful and ITCHY. I'm very healthy and scared to see Dr. Are there any side effects from this drug? Please let me know. Best, Johnny
No side effects for me! And it is rare to cause side effects according to my dr. You should definitely go to an allergist! You can be healthy and still get chronic urticaria, but it wont last forever x
I dont remember having any on my scalp but I would have them across my fore head and yes the itching drove my insane! I havnt had any side effects from this drug thankfully. I think some people got hair loss but I suppose it all just depends on how your body works and reacts to things. xx
Worked 1st course but came back.2 more courses given up do nothing.
When your hives where in their peak 1-4 months did you find any foods made your urticaria worse ?
I just wanted to thank you for the video. I just realized the other day that I’ve been dealing with this off and on for well over a year. Maybe more than two. Now there’s never an off period. It’s every day. I was just diagnosed a month ago and am currently waiting to be approved for Xolair. I wasn’t diagnosed as having CIU for the longest because I was going through a huge amount of turmoil in my life. I had been hospitalized in a psych ward. I wasn’t working and had lost my way. My mother passed away. It was simply chalked up to emotional stress. The best was in the psych ward when they said I was too emotional and I should just calm down. “Gee thanks useless twit. My depression of 35+ years is now miraculously cured because of your incredible wisdom so I’ll just be chill now!” My hives aren’t small. I get huge hives. Some as much as a foot in diameter like the ones that occupy my entire abdomen so that I appear to be 3 months pregnant. Others that wrap their way around my entire arm or leg. Ones that cover my whole face, hands, feet, back. The more I scratch, the more they bruise so that on top of being itchy they are painful even days after one of them has disappeared. Once I scratched so deep I was in danger of developing cellulitis. This illness is life crushing. I have no life. It’s isolating because I feel too uncomfortable with all the scratching that I’d be embarrassed to be in front of anyone acting like I have a raging case of scabies. It feels like I’m being punished for something and I don’t know what that something is. I cry all the time. And yes, prednisone absolutely does the trick but that’s no long term solution and if you suffer from depression it actually makes the depression worse. I can’t wait to start Xolair. Hopefully it’ll happen in the next month. I just wanted to thank you because your video made me realize this mess might have an end point and it made me realize I am not alone. This particular misery really loves the company but wouldn’t it be nice if we were all over it already?
are u hive free?
I got my first Xolair shot exactly 4 weeks ago I. I had my next injection scheduled for today. Because of unforeseen circumstances I had to reschedule my appointment for next Friday and just like clockwork, my hives appeared again midday. I’m upset that I have to wait another week for my second injection after a solid month without a single hive but I’m happy to know that Xolair was and is the solution.
@@mousegirl100 I'm glad to hear that there's a solution for you. when the hives reappeared were they just as aggressive as before? hopefully it will all get sorted by the next injection and you get your life back
salma amin They’re exactly the same which is to say they’re huge. My whole inner thigh is covered as well as my entire left forearm. It probably won’t get sorted until after that second injection and best believe I will stick to the monthly regiment. One thing I noticed after the first injection. The hives were gone the following day. The following week I stopped taking my hydroxyzine thinking I was covered by the Xolair. The hives may have been gone but without the hydroxyzine I was still incredibly itchy. The Xolair site does advise that you not stop taking the other medications prescribed before starting the Xolair. They couldn’t be more right! I wonder if there’ll be a time when I don’t have to have injections or have to take pills.
@@mousegirl100 you're right, it's best to keep taking the antihistamines and then slowly wean yourself off of the anti-histamines after your final xolair like how the girl in the video did so it gives your body time to repair itself. I believe there will be a time as apparently after xolair injections, the chances of you getting urticaria is the same chance of getting urticaria in the first place which is like less than 1% of the population. I believe they will be permanently work for you
My son Facing same problem from last 6 month his age 15 year. is this Medication - Levocetirizine and Montelukast
Injection - Omalizumab (Xolair)
is it available in India???
Just a suggestion Sir, I also had urticaria. Try to drink the cobra's blood or cook the meat of cobra then eat it. Sounds crazy and weird right but I got no option and I just try it
Hello Hitesh bhai i m also from india and having same problem from last 10 years did u found any solution please reply 😭😭
Please reply
@@dineshnandal4975
U take inj xolair
Did you get it for free from the NHS as im told its to expensive. Iv been put on all types of Antihistamines over the past 3 years with little or no effect. currently taking steroids that work and back to specialist on Friday this week. fingers crossed they will put me on Xolair.
Hiya. Yeah I got it free on the NHS. I was on a six month waiting list. I could have got it quicker if I went private but i just couldnt afford it. x
@@sonjasleator7582 Thanks for getting back to me so quickly. im sure going to push for it this week. Im not looking forward to another summer indoors :(
Thanks again
Did you feel you flared up a little bit after your xolair injection?
I’m in my 5th month I’m still a little itchy and it’s affecting my sleep was you in the 5th month?
The itchiness stayed with me for quite a while because I was so used to scratching. It was especially hard at night. But by the 5th month my body was still trying to heal. I hope you feel better soon x
@@sonjasleator7582 cool I'm glad your cleared up I'm going on my 4 the injection but I'm still itching and no relief ? how many Injections do you have to take to get full relief. I'm on my 4 the injection and still I'm quite itching tho I don't think xolair is going to work at all ?
You do have to pay in the US. some insurance may cover it and they do have good copay programs but without insurance it be upwards of $1,000 a month for the medication and the injection :(
Hey sonja i am going to take my first shot in few days and I have a question that if i urticaria is relapse after full treatment , will it cure after 2nd same treatment coz i have urticaria since 15 + years pls ans this❤
I started with the first injection of 150 mg two days ago hope it works
Glad it works for you
Hey did it work
Did it work???
@@Ryan-gc3sd honestly i took only one shot 5 months ago because its very expensive here in my country i was not able to afford the 6 shots so i stopped the injections , and i am still suffering from urticaria till now .
tomorrow i will go to a doctor that gives natural treatment hope it will work , if it works i will let you updated
hope you become better soon
Do you know if you have any autoimmune issues? I am antinuclear antibodies (ANA) positive and my allergist thinks that may contribute to my hives and swelling. I’m currently taking a high dosage of antihistamines and Doxepin but I still have hives and swelling daily.. so the next step will likely be xolair. Our stories are very similar so I am just curious if you are also ANA positive like me.
I was ANA positive when they tested me back in February 2021. I also found out then I need my tonsils taken out, and just found out my hormone levels are low. I can’t do anything about any of it since my ICU is not stable. Have been in higher levels of antihistamine and Pepcid since February with not a lot of relieve. Looking at Xolair as an option now.
Did you gain weight on Xolair? Ive been on it for 5 months now and I gained 20lbs. I'm a very active person and at the gym 4-5x a week for 2hours. I still can't lose any weight!
andiee248 no I didn't gain any weight that I noticed? My weight goes up and down a few lbs over the year anyways but it could be a side effect? X
I get hives when I get hot or exercise but they are small hives and are not dangerous but are extremely painful can I still be prescribed to this???
Hello Dear you expein very well I need to ask I have urticaria last 12 years I'm going to take omalizumab injection 💉 could you please let me know after your injection still you have urticaria? I hope after omalizumab Injection urticaria permanently go
Please please reply my message 🙏
Hello! No thankfully I am still doing okay 😊 I hope it works for you too xx
Thank you for replying my message
Hi take the inj xolair
How is the result
Didn't work for me still getting rashes 😔
Hi sonja I just watched your urticaria video just wanted to ask for update are you fully cured kindly tell me if Xolair worked and your are living as normal. Plz do reply back
Hello, yes im still currently hive free and hoping that I stay this way x
You are so lucky, I've been using the xolair injections for amost 3 years because if I left them the hives come again
Any side effects?
Why you left in middle?
@@kuldeepkumar-pm7zf sorry, meant leave instead of left. Update, I already stopped using xolair since i discovered my main trigger is lack of sleep. Since i used to wake up at 6 am (so i could go to school) every morning and go to sleep very late (between 12 and 1 am) due to my duties (as a student and home responsabilities) my urticaria was always at its fullest. Now that I attend colllege, my schedule is not as tight as it was before and I don 't have to wake so early in the morning. Plus, now my diet is almost out of proccessed foods.
Ik this video is old but is it still gone after 2 years without using xolair now
Are there any negative long term effects of Xolair? Does it affect fertility?
Thanks for such a wonderful video. Just wanted to know whether still no Hives as of September 2019?
Hey i just wanna know r u still hives free or u had taken shots again after years..
I did xolair it has stopped the hives (the look of them), but the itching, stinging, and burning srill there especially on scalp. Did anyone else get that result I've had 5 months worth of treatment- 300 mgs every month. What else did you use to help the burning and itching stinging, other than Zyrtec, benadryl, hydroxine, and doxepin. ,
I have got hives with burning and itching on my scalp as well. Did you pay for xolair
@@sandy-us6ig Insurance paid for a large portion of it, but I still payb. $600 every shot!!
@@angeminc thats a lot and how many shots did you take
@@sandy-us6ig Yes, it is a lot. But nothing else was working. Ibam now at a pount where I get rhem every 6 to 7 weeks. The plan is to ohase them out all together. I think there are programs to help with the cost, maybe call the company that makes it.
How much does it cost ? I'm in Canada and just left a allergist and he said it's expensive but not sure how much? I'm also wondering do you know if there's an other name for the injections? I'm about a month with the hives not as bad as yours visually, it's not patchy like yours my looks like a sun burn everywhere. So with that I wonder if I'll allegeable.
The official medical name for the Xoliar Injections is Omalizumab. Ive been told in the states the injection can be anywhere from £500 - £1000.. I live in the UK and was on the NHS waiting list for 6 months and got it for free... xx
Hi,does xyloair helps in food allergy.i am suffering from urticaria bcauz of food allergy
Do you maybe remember how high your IgE was when you began the treatment?
It affects the immune system. Dr think i had lymes its controlled now. Will taking xolair flair it up my symptoms?
Thanks for the video I had my first Xolair injections on thursday for pressure urticaria heres hoping they work xx
hows it going?
@@Leahanne95 totally disappeared after first injection having some joint pain after second one but hopefully this will settle down xx
@@triciahamilton3035 I was suppose to today but cancel after I watch a video on how it causes certain cancer and got scared. I don't want to have to live through this anymore but I'm scared of it becoming something else worse
Stopped injections after second one was in agony with joint pain mainly hips but it got rid of my urticaria straight away my doctor advised against any more injections urticaria came back about six weeks after stopping injections x
How are you doing right now? Did you continue xolair injections? Did urticaria go away?
I’ve had it for 5 years now. Do you go to a normal doctor for this or dermatologist
Dermatologist. I truly believe normal doctors egos are too big to take suggestions. Good luck I feel ur pain :( cholinergic urticaria for me
Did your condition impact your vision at all? Or cause joint pain? Thank you.
Good job
Hi
I will have this injection next week, I want to know how long did you have these symptoms?
Thanks
i heard hairfall and skin darken as a side effect of xolair injection so is that true or not please kindly answer me ??
Hi. I didnt get any of those problems thankfully xx
Hi - I go tomorrow for my third xolair injection and about a month ago I did notice hair 😔. As far as results - I may go two weeks without a flare up - hopefully I’ll see better results after the third injection🤷🏽♀️
@@sonjasleator7582i wish.. BTW tommmorow is my checkup thanks... love from pakistan
@@Miss_Tika1
How much hair fall
@@rahulkote1636I’ll try to explain - I section my hair into 6 section after shampooing it - the thickness of two combined sections equals what one was in the past - however I was also diagnosed with hypothyroidism which could have also been a factor
Hi,
I want some more information on the hives treatment, please respond to message.
thank you!! nice video
Did it help you with dermographia?
What Dose and price? Available India? ? My ige level 306.70...please reply i am from India
3000
what did you do to releive you hives on a daily basis
Hey! I am from Russia, im 26 y.o. and i had the same problem almost for 2 years.. Hronic urticaria.. Terrible thing ever.. And now i finelly had a therapy to stop beeing like hepard) Maybe it will help as that helped to you! Wish one day to wake up without urticaria..
So did you just ask your doctor about the injections and they put you on a list?
Yes the shots really really helped me. But then I got breast cancer small enough that I didn’t need chemo. I’m scared to quit getting shots!
sorry about that, do you think the cancer was related to taking the shots? How long fid you take xolair for?
@@likkeaaaabawss No I don’t, I thought about it!
@@jerrilyncarnesi3742 I hope you get cured soon
@@jerrilyncarnesi3742 hey is your cancer is the side effect of xolair shots? Pls reply coz i am also thinking of getting xolair
And i hope you're doing well❤
Are you from uk and do we need to pay for it . Plz reply thank you
My doctor did me a favour at the time and managed to sort out a a years worth for free but if u do have to pay you'll be looking at £120-£150 per injection or atleast that was the price in 2015 im not to sure about now.
And are u hive free
Hey Sonja, i start my first shot on thursday and I was wondering if you ever drank alchohol or smoked anything while you were on xolair and if you did what were the symptoms if any?
Hey! How did your shot go? Im not a big drinker... I think I maybe had the odd glass of wine but no it didnt effect me at all thankfully. I am a smoker but again it had no effects with it either :)
Sonja Sleator My shot went great!:). The day of that I got my shot I was super happy and so I didn’t break out at all. The second day was the first day ever that I didn’t break out on my back and I could barely feel any hives on my arms and legs it was great. Unfortunately, on the 3rd day I was super stressed and somehow broke out on my back and again and it was painful. I still feel better overall, but not a ton better. If I could somehow never stress out I would probably be cured very quickly, unfortunately since Im about to graduate my parents want me to get a job for the summer before I go to college, and I can’t be in the heat because of the hives and job in general is too stresssful and my parentS dont care enough about my problem for me not to have a job. Does the Xolair progressively get better (my first shot was 300 mg), meaning will i feel less hives even a week from now? And does that second shot help a lot more? I really am desperate for answers because if im going to have to get a job i dont want to be miserable and on the brink of suicide :(.
Evan Blodgett I'm soooo sorry that you are so stressed! But yes if you feel better and noticed a difference after the first injection it will only get better from here on in! If you are like me hopefully you will notice a huge difference by the summer. I would really rethink about a summer job. Let your body rest and take time to adjust to this new medication rather than worrying about a summer job. Jobs will always be there. So use this time now while you can to look after your health. That's just my opinion on it. But only people like us can really understand just how bloody horrible this disease is x
@@sonjasleator7582 👍
I was just told to start this
I get dermatagaphisim
Can’t take antihistamines too dry inside as it is
This sucks but I hope t helps
TALKSiiCK same but I can take antihistamines thankfully 👍 hope everything gets better
U can take them ? Wish I could too dry for me already glad it works tho thank u hope something helps me
Have you lost or gained weight on Xolair? xx
Mandy Reynolds Personally I have gained weight after being on xolair for 6 months now and am curious to know if anyone else has also!
what are the jobs we can do while we still have this condition
whyisthisinmyrecommended I’ve been unemployed since I’ve been diagnosed with this at 17 and I’m 22 now :( I’ve done 2 apprenticeship between those 5 years and both times have had to quit within 3-4 weeks because of the pain
Thank you dear for sharing
How common are the side effects?
Please some ! Tell me after the xelory no more trimen?