Living without Muscle Movement (Myotubular Myopathy)
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- Опубликовано: 19 июн 2024
- Lucas lives with myotubular myopathy, a condition that leaves his muscles so weak that he can only move a few fingers. He desires connection with other kids, but struggles to create friendships because he cannot do many of the things other teenagers enjoy. Lucas wants others to know that if you want to be his friend just talk to him about his interests, like board games and music.
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Check out Lucas' blog at handsomeboywrites.org/
In this interview Lucas mentions that he created a blog where he writes primarily short stories from his cat's perspective. That blog is in the description if you want to check it out!
@@WrenGirl maybe if you’re uncomfortable with kibble and litter 😅
i love the blog! its so creative and entertaining
I’m going to read the blog, that sounds like an interesting perspective to write in 😺🐈
Edit: I’ve now read some of Raven’s Diary entries and it is so well written and funny!😹Especially how Raven is embarrassed and mad when he finds out that us humans have been reading his private diary.
@Wren Just about all the videos on this channel are kid friendly.
The amount of energy he must be summoning to speak is spectacular, mindblowing. I wish Lucas better than the best.
I was thinking that, too. Making him more intentional about whatever words he does say. I can see how that would give him a different perspective (among other things)
@@cuttlefishagain you're totally right. I know this doesn't compare, but English is my second language, and when I need a new perspective on something, or simply to calm down, I talk to myself in English. I am fluent but I still have to make an effort to come up with the right words, It can be draining. And yes, everything I say is more intentional
@@marinaflorio95 That makes sense! I've been living in a country that doesn't speak my native language, so I get what you mean. Although I tend to just get discouraged easily and give up talking even after six years. The patience Lucas has is remarkable
Cope
@@TrolladinPlays Naaah dude, this aint the place.
Even though he faces difficulties in speaking, his intelligence shines clearly. What an exceptional and wise young man!
Je pense mentallement il est sudoué je le trouve tres mature pour son age
For real, I'd love if he lived near me. Cheers!
He reminds me of Steven hawking
No wonder Lucas is as amazing as he is. He has amazing parents.
He’s a good person because his parents raised him well. Is that what you meant? Nice comment btw
Navigating a lifelong disability would be so much easier with great parents
And Sister!
And he did choose them 😊
@Erⲓc E🤥🧢 You can learn it yourself.
A good way to look at discipline is doing everything to make things easier for your future self.
Like not leaving your dishes in the sink but washing them and putting them away so that your future self doesn't have to be bothered with it later that day or the following day.
Bring your shoes to the shop to fix the soles so that your future self doesn't have to do it next week.
Cleaning the aquarium so that your future self is not beating himself up because you postponed.
Etc.
You do it for yourself in the first place.
The way he was conducting himself, I thought Lucas was a grown up! I was shocked when Chris asked about the 8th grade. What an articulate young man.
May l ask how old are 8th graders? Thank you.
@@deniselancaster6888 13ish.
@@ThatWouldBeCareless thank you.
About 13yrs.
yea I thought he was college age
During my life I have seen people with disabilities treated as if they were children. Their dignity was taken away by this behaviour. Instead, in these interviews they are treated simply for what they are: human beings. A frank and open-minded communication that can help to better understand others. Thank you for your work
Well said and agreed
@huldaarran382, I know, right? I’ve had that happen to me and it fluffing purrs me off (We have a cat so that’s how I got fluffing purrs me off.)!
SBSK, thank you!
haha i’m gonna steal that, nina! cute! fluffing purrs you off… hehe
That's why this is so important. They get to have a voice on this platform so we can get to know them and hear what they have to say.
Agreed. I have learned so much from watching these interviews. When you see a disabled person out in public, it is impossible to have a meaningful conversation with them. Listening to these interviews provides such a deep insight into who they are & their view on the world. The diversity of their emotional states are very interesting. I can only think of one person that had a negative impression though. And they were probably just having a bad moment in time. These are brave human beings. I'm inspired to be better.
Dad ran in with the suction like he's on a pit crew. The love these guys have for each other is touching.
#1 comment!
when i was really young (2nd grade maybe?) there was a disabled student in my class who i now understand had a speech disability. none of the teachers or staff took the time to explain this to us, so when i couldn’t understand her, i asked the teacher what language she spoke out of genuine curiosity and hopes of learning about her. instead of educating me and facilitating conversation, she yelled at me for being rude, saying things like “how dare you” and “shame on you.” it took a long time for me to learn that it’s ok to not be able to understand someone and ask for help if available; everyone deserves to be spoken to! thanks for showing us this
darn that is so unhelpful of the teachers lol
The way Chris keeps eye contact with Lucas when his dad is repeating what Lucas said just made me cry. Chris you are a treasure.
you are so right, I didn't catch that and it's so important!
He really is!!
I like the way Lucas communicates. Nothing wrong with speaking slowly. It makes me feel like he's putting a lot of thought into the things he says 😌
I understood almost all of what Lucas said. I think he does great communicating. And I think it’s important and great that Dad helps facilitate connections between his precious son and other people Lucas meets.
Oh and he’s an old soul, too! 60 & 70’s music!
Wishing Lucas, his Dad, Mom and adorable Sister all the best. He’s an amazing young man!
I agree, he is not difficult for me to understand.
Yeah. Actually his articulation is VERY good despite no upper lip movement at all, and barely lower lip movement. He's figured out how to use his tongue and phrasing to compensate more than well enough to understand him. Good for him.
I think it seems way easier for us because we see the words as well.
I understood about 70% of what he said if I closed my eyes, but because of the subtitles I could understand everything. But I can definitely see how if someone spends a few days talking with him, you’d be able to always understand him. (I can’t understand people when I’m in a noisy restaurant, so it’s definitely a me-issue)
Also, great taste in music!
The dad’s care just puts tears in my eyes. Lucas has the kind of father’s love most of us never got growing up. I’m in love with this family. Even with all of their struggles, I still envy them.
Can totally understand where you’re coming from. I always wanted to be accepted by my family. Unfortunately that was rarely the case despite my disability being incredibly mild. 😢 I love that all special kids don’t have to endure what I did.
I can totally relate to what you said about fathers. How I wish I had a father who loved and cared about me when I was a little girl and growing up.
Same!
One thing I've realized as I've gotten older is that there is SO much trash and POS people out there it is truly mind boggling. It's very unfortunate. Unfortunately some of these people choose for some inexplicable reason to have children or to marry into families with children. I'm really sorry you didn't have the dad you deserved to have.
SBSK does a wonderful job of showing what true family love and devotion is all about. Not only do they show amazing human beings living with and overcoming their limitations, but they remind us that wonderful people and true family love is out there. I had two parents at home but I could have used a more supportive and healthier home environment as well.
Mom too!
I've been a member of this channel for a while now, and I have to say say that I really admire and respect what you're doing with this channel, and how you bring to light that these are real people who just happen to have disabilities, and that they are NOT their disabilities. They are bright, charming, intelligent and wonderful people with wonderful personalities. They are just like everyone else in the world. Unique and non judgemental. I feel like I kind of makes new friend with each new person you introduce. Thank you for creating this wonderful channel.
Yes, this! ❤
For real! Thanks to this channel I've learned about so many conditions. I feel so comfortable talking to people with various disabilities like the normal people they are.
Indeed.
Chris is doing an teriffic job! But i wonder how taxing it is to make new friends all the time, get to know their struggles and even outlive many of them despite being much older. Its easy to look away but you guys dont! Keep it up, it really help evaluating things and becoming a better person... maybe even a good one some day!
OVO NIJE ŽIVOT OVO JE MUKA I ZATVOR
"What do you mean you don't know?" His sister is so funny. 😂 They both are so sweet and I can tell they really love each other. Lucas seems like a superbly bright kid with a lot of insight to offer this world.
Ikr I cracked up on that part two and this was a great interview i love this channel so much and I actually have two disabilities autism and psychosis 😉👍
I used to make jokes about disabilities but ever since I saw the video with Sophia, and I read a book called Flowers for algernon I always stand up for kids with disabilities and try to educate people about it I'm 14 by the way.
Good job. It is important to grow and learn in life and you did just that.
Yeah really I am disabled myself but I never really truly understood how other disabled people really feel but because of SBSK i know really how they are just like any other human they just have struggles with their disability but it doesn't change what makes them a person.
I cried when I read Flowers For Algernon
i still make them, i just dont do it to attack anyone, and i have some deformities too, not that it matters, it wouldnt be better or worse if was normal
i wouldnt call them disabilities tho, i can lead a normal life, and do my stuff, but im deformed in some parts
you can use a knife as long as you're not sticking them into anyone's body or cutting them, or threatening them with it
same with words, say anything, just dont verbally attack anyone
the best way i had to get around sometimes was to crack a joke and try to smile, dark humor is within humanity since ever, and its done more good than bad in history.
Yes, do educate other people as a 14 year old who has hardly seen or experienced anything.
Teenagers….
He’s super intelligent and emotionally mature. It really shows how he’s had to grow up so much faster than his peers :(
Man, Lucas is incredibly thoughtful and mature for his age in particular! When it was said that he was in eighth grade it really blew me away, because I was very much similar as an eighth grader, but I would have assumed he was more around my age (20) from the way he speaks and carries himself intellectually and emotionally! I agree that having a Disability often does make us more observant and developed, not because we’re born super humans or anything, but just because we navigate an inaccessible world and grow up a little bit faster than other kids. I don’t know of many other 8th grade boys who would have similar perspectives as him, that’s a really absurdly tough age to be a kid! This guy is going places- but not because of or in spite of his Disability, he’s going places alongside it!
i thought he was older too. cool kid
I don't think any kid (disabled or not) could ask for a more loving family than Lucas has. He's funny, goofy, intelligent, and has GREAT taste in music! Wish more kids his age would befriend him. 💙
Hi, I have never heard of Myotubular Myopathy. Lucas, I can hear every word just fine. Your speech is quite clear. My name is Sherry. I have worked with teens with autism since 28 years before you were born. I find the best thing about you is that you are very able to say what you think. That you share yourself, with grace, in the world. I love cats. I will check out your blog. Chris, very respectful interview.
I loved how you and Lucas discussed your understanding of his speech. I feel like acknowledging when you have trouble understanding can be so awkward and easy to overthink, and I loved how you were both able to just be like "yeah this is a thing that takes practice and we haven't practised together yet"
The sweet smile on Lucas’s little sisters face when he said she was funny was so precious!!! 🥰☀️
He's incredibly intelligent and well-spoken for an 8th grader, and has a good sense of humor that he slipped in there a couple times. It seems that some people didn't catch on to the latter lol
As someone who has the privilege of knowing Lucas, I can wholeheartedly say that he has a sharp sense of humor and great comedic timing.
i agree. i thought he was much older. im in my 30's but could see myself getting along with him
@jinicole3321 lucky
"I am the handsomest man in the Universe." Epic answer! Yes you are, Lucas! 🧡
i could only dream of having the level of self-confidence this kid has
Lucas, I'm a retired ELA teacher, and you are the sort of writer I always especially enjoyed! What a great sense of organization, word choice, and humor you have! Keep that good stuff coming, and best wishes.
It makes me so sad to hear him say he doesn't have many friends. We all support you Lucas!!!! We're all your friends on the internet in these comments ❤️❤️❤️
Your a friend that will forget him in roughly 5-10 minutes after seeing this
I love his self confidence. Yes Lucas you are the most handsomest in this world.
I like many aspects of him. Intelligent, strong, positive and many more. But i don't like when someone says he is the most handsome guy in the universe. But everybody has a different taste and that is okay.
he is talking about his cat
@@philippschmid9338bro…..
You're doing a great job by putting yourself out there and participating in this video, Lucas! It broke my heart when you said you don't have many friends, but I hope it's helpful to know that you now have TONS of people rooting for you from across the globe.
Very inspiring, Lucas really seems like an amazing kid!
I feel so bad for people who deal with these disabilities
What
I love how Lucas doesn’t give up on his life!! He is suck an amazing person! ❤❤❤ Also he is a really positive boy 🤩
I don't think he can? Are people with disabilities like this allowed to do some, for lack of better words, assisted suicide?
I can't help but feel like it's a miserable existence. Poor kid
I hope something like this exists for people who would want it.
@@oopsiesh In some countries yes, but usually it has to do with unbearable chronic pain.
*such
@@oopsiesh and who are you to judge on his life for him?? 🤨 Don't feel sorry for him. Feel happy that he exists.
@@oopsiesh this channel highlights all that Lucas brings to his family, friends and the community. Lucas can speak and ask for what he needs or wants. He has incredible love and support. Lucas is amazing!
Here's a message for dad: It sounds to me like you raised a fine son. Humor, intelligence, self-distance. You're an inspiration both of you!
Hey Lucas! I liked your video, it was very eye opening. It’s difficult for many people to put themselves in another person’s shoes, and getting this glimpse into what your day to day life is like was informative and helpful in that regard.
As for board games, that’s actually become a rather new topic of interest for me. I’ve played M:tG for awhile now, and because of that I’ve received some exposure to board games. I never knew there were so many different types and genres! All I knew was stuff like Monopoly, Parcheesi etc. To learn of so many fascinating looking games was really awesome. Some even blur the line between table top role playing games and traditional board games.
Oh I also wanted to let you know you’re quite lucky to have compassionate parents. Just seeing your father here in this video makes me wish he was my father.
That's not living in my opinion... It's tourture... But to each is different opinion... Poor soul trapped in this body , experience almost nothing but the light, a prisoner of life.
Chris - I’ve been watching this channel for a while and it continues to make me work on being a better person. The steadfast dignity, compassion, and professionalism you offer to everyone is the way to be, simply put.
Lucas you speak eloquently! Like you really think about each word you want to say- rare quality these days
Lucas seems like a really cool kid! I didn't have much trouble understanding his speech, great parents!
What an amazing young man and such a wonderful family!
His dad checking in to make sure he wasn't annoying him was nice. We all need help with things, but sometimes in can get frustrating when you feel like people are overstepping. Everyone wants autonomy. I also appreciate his parents acknowledging how hard things can be for him and not just being overly positive. Lucas is cool and his question to Chris about assumptions is very important. I like that Chris is committed to actually learning and never thinking that he knows everything.
I wonder if an exoskeleton could be helpful for people like Lucas, and other with similar disorders like muscular dystrophy? It's a device that a person wears on their arms or legs to increase their physical strength. It's basically like a set of shirt sleeves or pants, that have robotic arms or legs inside, that fit on top of a person's own limbs, in order to increase their physical strength when they move and lift things. The device is meant for non disabled people to be able to lift heavy objects that they normally wouldn't be able to lift, like boxes in a warehouse, for example. But I wonder if anyone has ever thought about trying them for people with disabilities, where their muscles are extremely weak, but they do have some movement. It seems like the device could increase what little movement and physical strength they do have so that they could do more. I've seen videos about exoskeletons before, but actually I'm not even sure if they actually exist for non-disabled people, let alone disabled people. I think the ones that exist now are only prototypes.
That is an awesome idea. I bet in 50 years there will be a lot of advancement in that area.
I recently saw a video about something similar, a guy who is paralyzed was able to walk again using something like that. It's on RUclips if you want to look it up. He got a brain bridge implant and some kind of sleeves he wears on his legs
I imagine in our lifetime, there is going to be amazing advancements in technology to treat/cure chronic illnesses. I watched a video the other day about a man who had two arm transplants. The entire arm! That was science fiction when I was in 8th grade, 22 years ago.
@@parisinthe30sx I think I know what video you're talking about. I saw that too. But the thing I'm talking about is different. It doesn't involve an implant or surgery at all. It's just a thing you wear on the outside of your body.
@@Melissa0774 oh I know, but he had things on his legs as well as an implant. Either way, it's crazy how far modern medicine has come
This channel is a treasure. Thanks for showing all this wonderful people!
What an amazing young man. His story is beautiful.
“Most important thing to know? I’m the most handsome man in the universe ✨”
Thank you for the smile today, Lucas! I really needed it. ❤
I’ve been watching for years but I LOVE SBSK for concentrating on our friends with disabilities. SBSK’s mission is so important. I love how Chris asks the questions that many may feel uncomfortable to ask. I think many people avoid asking these questions because they don’t want to offend, they don’t want to sound rude, or they just don’t know how to approach. As Chris and our friends show, asking those questions is okay & it’s not inappropriate. We are humans living together, respecting each other.
What an amazing young man! His parents are very special people as well. Thank you for this interview.
Wow, this man makes these people feel so special.
It was so beautiful when he said he was the most beautiful person in the universe, I love that confidence
I understood him right away!
I think the hard part is when he tries to speak over the machine breathing in for him and his voice goes away. He’s doing an amazing job communicating!
This kid is awesome, huge heart and great personality. People who judge people like him need a reality check, and I've seen many people who love to tease the disabled. I wish more people had an open mind and wouldn't judge so quickly, more people need to look into this and improve their opinions and thoughts. Anyway, much love to Lucas and others like him and everyone else in the world living with a disability.
I actually had no difficulty understanding Lucas at all. I am sure he is unique and certainly very special. I would like to know Lucas's world views and other insights from his perspective. I am glad I was able to see this video and Thanks to Lucas and his Dad for presenting to the world ... Cheers
Love the confidence man. Parents should be very proud.
I love Lucas' confidence, what an amazing boy! He is so lucky to have such incredible parents.
Love this channel so much, thank you for doing such a beautiful job, Chris.
Lucas is a great person with a such a positive attitude and wonderful parents that love him alot
His barber messed him up, as if the disability wasn't enough
😂😂😂
his haircut looks great to me…
What a sweet kid! He deserves the best of everything! Keep that head up and that voice coming! Because your wit, and humor and beautiful.
I went to middle school with someone with this dx. He was so sweet! Thanks so much for sharing these amazing people ❤and what an amazingly awesome family He is blessed to have! Absolutely beautiful.
I'm touched by your compassion and the attention and respect that you treat everyone you meet with.
Thank you for brightening the days of your friends in these videos and on your channel
Thank you for giving a platform to people with challenges. Each one you have highlighted has been an amazing light to be known to this world!
Lucas is so incredible. Thank you, Lucas, for reminding me that being unique gives the world the gift of your unique perspective. Your unique point of view makes the world a better place. ❤
Chris I can tell you have grown a lot by the way you are more serious and ask deeper questions during interviews now. Lucas you ask some great questions. You are an inspiration. Your parents are amazing too.
Wow I loved every bit of this episode. The family’s connection and their care for him is so inspiring. Lucas you are a great human being and you matter! I pray that you will continue to impact the world with your story. God bless you ❤️
Thank you Lucas for being so open and sharing your life experience. I also loved the questions you asked Chris.
You are a very intelligent and mature young man and I hope we get to see more of you through your stories and future videos. Kudos to this family for being such a great team. Love from Mexico!
Brilliant and beautiful conversation ❤❤❤
What incredible people, such a wonderful young man and lovely family!
It was nice to meet someone like Lucas! Thank you for this!
Hi Lucas. I took care of a fellow MTM patient for a year who lived in Missouri but then moved to Arizona. I miss him greatly. Watching this vid brought back so many memories of our time together. Thank you for sharing your story.❤
Chris I think what you do is so amazing! I also love it that you ask the person you are talking to for permission to ask parents personal things ,,is it ok that I ask your mom/dad....." that shows how much respect you have for them! And Lucas you are amazing and you are absolutely right, the longer I listened to you speak, in the end I could understand you pretty well so people just need to take the time and effort to listen because you are absolutely worth that!
Hi Lucas! It was nice to start to get to know you today. I'm a musician and music teacher so hearing that you enjoy music was great. I like 60s - 70s classic rock too although, I must admit it was new when I heard it (yeah, I'm that old, lol) I look forward to reading your blog; I like seeing the world from the perspective of my cats .
I worked as a caregiver for a young woman with CP. she was very hard to understand for other people but once you got to know her it was easy for me to understand her. It just takes time to adjust to their speech patterns. Be patient and don’t be afraid to politely ask them to repeat what they have said. Don’t be embarrassed if you can’t understand something, just be honest and straightforward.
Thank you Chris for all that you are and all that you do to lighten up and educate our world. Lots and lots of respect 👍❤️🙏 Love from France 🇫🇷
Immediately checked his blog and the outpouring of love and support is so beautiful 💙
All SBSK videos are interesting (huge under-statement) and so informative and worth watching, but meeting Lucas particularly struck me, and I found this hugely moving. We are all so impatient in my family (although I am working on that and am better than I was) - and I find Lucas extraordinary in the way he deals with the considerable challenges that are present pretty well all the time. It's clear he is a bright, perceptive young man. I would love to read his short stories. He has wonderful parents with a great sense of humour and a lovely sister - and I like her honesty too!
PS Lucas, I have only read #1 (it's nearly midnight here) but I think it's brilliant. It really resonates with me because late at night a neighbouring cat often comes into our garden, mewing, looking for next door's cat (who is tiny and dainty but really feisty) and I think this cat is looking for a fight! I just love your writing style - and I look forward to reading more tomorrow.
It's so nice to meet you Lucas! 😄 And also your mom, dad, and sister! You all transmit such a positive energy. 💚💚
Wow. . . What a wise young man. He most certainly does have a unique perspective and understanding which is so valuable to everyone. I am brought to tears----being touched by him and all he has to share. I am humbled by all that I don't know and how important it is to listen and learn from everyone. He didn't directly speak to it, but I wonder how he felt about what his sister said-----must have been kind of difficult to hear. It was amazing the she was honest enough to share that. Thank you for bringing Lucas and his family to us. Thank you for all you do.
Lucas, you are an amazing young man, and I'm looking forward to reading your blog! I have a cat too, and I love the theme of your blog. Your families is so loving, and we all love you too!
I rarely have the attention span to watch long-form videos any more, yet I’m always captivated by SBSK interviews. Thanks for sharing your story Lucas, and it was wonderful to see the tables being turned and Chris being interviewed! You asked some great questions. Love the dynamics in this family, felt the love through the screen. 💕
A cookie for you.
His sister is absolutely adorable and has a very pure heart. You can tell she really cares for her brother. Lucas is a dear young man, and Im so thankful he has a happy loving family. I wish him only happiness and love in his future.
What a bright, good young man!! And his parents have also done such a good job. My heart melts seeing these interviews - every living being has value and a purpose- some stand out more than others. He is absolutely remarkable and melts my heart
Lucas is awesome. His blog is so cool too. Never met or come across anyone as creative and innovative to build a world of your stories, ideas, poems etc. I am looking forward to reading through more!
handsomest man in the universe....I agree!!
Great communication from Lucas, I understood most of his speech. What a lovely young man. Love how his sister makes it clear she loves to help but is also a typical sibling 😅
I appreciate your take on listening to ppl with disabilities and how diverse we are. Even in my own disability there’s thousands of different mutations and ways it manifests in the body.
This was a remarkable interview. I so admire Lucas & his family, and I enjoyed hearing Chris speak a bit more about his own goals and challenges.
What a great young man. He has such an amazing and supportive family. I enjoyed hearing about his interests and things he enjoys. I did have to laugh when his sister said she didn't know and Lucas said what do you mean you don't know? Such a little sister answer lol. I'm going to check out his blog and see his cat's perspective. At the end, Lucas had such a good question for Chris. Lucas would make a good interviewer, he's smart, you can tell he has a good sense of humor and is interested in people. I wonder about his thought on Lynyrd Skynyrd? Best wishes for Lucas and his family and thank you for sharing some of your story with us. We are all learning and we can learn something from each other and we all have something to contribute and Lucas makes the world a little brighter.
I knew Lucas was smart when he mentioned his favourite music! What a cool kid he is. Another amazing one in the books!
Lucas. You're an amazing young man. Your family is pretty rad. I could understand you just fine and you seem to be a very sharp dude. I will specifically pray for Blessings of friendship in your life. I hope you enjoyed doing this and sharing your story with us all!
Thank you for helping bringing love and attention to these wonderful people.
Lucas, I really look forward to reading your blog! You’ve got great recommendations for music documentaries on there, I’m a huge fan of docs and music (and the combo of the two of course) Happy Thursday from LA!
i think my favourite part was when Lucas was able to ask you questions, you handled it so well, gave him (and us veiwers) some insight.
whatta smart kid!
Hey Lucas! Your interview was so cool! I think you’re SO smart, funny & creative! Your family is also awesome! I will check out your blog. Blessings to you & your family.
He Is awsome! Thank you @SBSK, thank you for bring this material for us...
That family bond is incredible. Such a nice family.
Poor lad.Only having to move a few fingers is awful! I would love to be this dudes friend as hes so calm 🙂
Ofcourse he is calm. He can't move
Bro no shit,i was just complimenting him.Chill.
On the bright side: He is the handsomest man in the universe.
He has a page... He would love to add one more friend... Look it up...
Agreed, he's very chill and funny. And also the sound of his ventilator is soothing.
Lucas seems like such a wonderful kid. His family amazes me, too. I'm so grateful for the work you do, Chris, so I have the opportunity to meet these amazing people.
Thanks y'all for giving him a voice. This young man is a good person who is wise beyond his years.
Chris, you really are an incredible human being. I praise you for being you. Thank you.
These videos touch my heart every time you upload. Thank you so much for doing what you do. ❤
In tears, so humbling. What an amazing young man and thank you special books for letting us hear his story.
Funny, articulated, intelligent and kind. No wonder he is the most handsome boy in the world! My best of wishes to him and his family!
Dude got me with his #1 wish. He didn't say he wanted to be cured or better. He just wants to be able to relate easier to kids his age so he can have more friends. Hope for nothing but the best for this young man.
My first thought hearing Lucas’s voice was how incredibly relaxing it is to listen to! Beyond what limits he has affecting his speech, he’s extremely articulate and mature. The parents have done a great job raising this young man.
This young man and his attitude is so inspiring. I cannot imagine the effort it takes for him to speak, but it is not holding him back. Thank you for bringing me back to reality.
I would definitely take all the time necessary to form a friendship.