What I fear the most with Parkinson's is Dementia. At least from what I have read PD dementia is not as bad as so many of the other types of dementia like Lewy Body or Alzheimer's. I believe that I read some where that I have a higher probability of getting PD Dementia than someone that's YOPD. When my mom passed away she had Dementia (we believe Alzheimer's). I can remember years before she passed, I gave her a little gift...she was very happy and surprised...a couple of minutes later she would say "what is this?" and I would say "it's a gift for you"... she did this seven or eight time. I also remember March 24, 2002 at 3:00pm I asked my mom, "Do you know who I am"? she said, "Yes, you're Tim my youngest boy"... she took her last breath at 3:30pm that day.
I try not to think about it....if I do the list is never ending. I fear getting hit by a psycho driving 125 mph down the highway at one o'clock in the afternoon.....having a stroke or heart attack on top of Parkinson's.....an aneurysm....I could keep going but I won't. I love every day I have and do my best to stay in the moment and make the most of it even with Parkinson's! ♥
Death by Semi-trucks driving on the highway freaks me out. “I can’t drive 55” if my tremors start up on my gas-pedal foot. I would love to “Ride Like The Wind”…oh, and to be free again. lol/but seriously/the fear is so real for all of us.
The worst would be stuck in a crow's nest on a pirate ship in the middle of the Pacific ocean. This gets my fear of heights and deep water. Oh yeah put my kids in as well cuz I have a fear somebody's going to throw them out... With Parkinson's my fear is dementia. It's not me losing control of myself. It's the pain. I know my children are going to suffer. I also hope that when you lie there in your bed for hours on end that you're not aware of time . I had three grandparents that had Alzheimer's or dementia and they seemed quite happy. They might not have known where they were or who I was but they were smiling and happy to see me. It was me that suffered, wishing I could have them back. My mother had Lewy body dementia and for her she just lay in bed staring straight ahead. Not talking, not moving. Not eating. I don't know if she was even aware that I was in the room.
Thx for the honesty, Rick. Dementia is terrifying as knowing that you are losing a little more of yourself every day. Not to mention the heartbreak that your family will go through as you slowly disappear. Scary stuff!
The fear of losing self identity and worsening physical impairment are pretty high on the list, but the uncertainty of how this disease will unfold send the anxiety meter to “eleven” - if I let it. I try to stay busy and push the fear ack down when it bubbles up. CBT also helps me redirect those thoughts.
I exercise a lot and I credit that with my slow progression of PD. I fear losing physical capabilities and my progression speeds up. I already have some executive cognitive loss, so losing more.... yikes. I don't live in fear or worry too much though. Gotta live life full while I can
JMac! A pleasure to watch as always. Was a worry to me but now it's a reality. Its my speech.. I still have steadi-ish hands to text and type but it isn't easy when i'm really off, lol. I've lost about 70% of my speech, still holding to whats left with doing speech therapies etc. HUGE from going to gift of gab to What, what, can't understand you...trying to activate Amazons Alexa is fun too! haha oh I am jumpy nowadays on the scary movie thing..bring a whole new experience now in watching. Still love em tho..Keep on trucking JMac, love to hear and watch
I think of the old Osbornes tv show when Ozzy is speaking to his voice activated car stereo. He kept saying “radio on!” and the car couldn’t understand him! Funny but not funny.
You mentioned a lot of legit fears. I try not to think about that stuff…but if I had to pick the one that creeps in my thoughts from time to time…it’s dementia. Now something that is terrifying is dating in this day and age! Lol You are blessed to have a wonderful wife that supports you.
Hello, JMac. I often think of being on your show! My biggest fear is the unknown. My biggest symptom now is left side tremors but it’s manageable. I often think about what’s coming next. I workout daily and hoping that helps long term, but again, it’s just unknown.
I take MCT oil every day for memory. Use message gun for legs n hands, n gym every other day cause I have to force myself to go. I worry about loosing mobility n falling. But I don't watch scary movies, but love watching end time movies, war movies n true stories .. my son n I saw Bee Keeper was a good movie! Retired now hubby n I take of each other...thank God!! I do paint n bead to keep brain busy
@JeremyMcdonald no, but I will have to get it!! Refresh my German. My youngest son n Marines will be learning I believe Russian, arabic or Chinese. He will soon let us know. N the mean time I do text him n German to keep him on his toes..haha!!
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What I fear the most with Parkinson's is Dementia. At least from what I have read PD dementia is not as bad as so many of the other types of dementia like Lewy Body or Alzheimer's. I believe that I read some where that I have a higher probability of getting PD Dementia than someone that's YOPD. When my mom passed away she had Dementia (we believe Alzheimer's). I can remember years before she passed, I gave her a little gift...she was very happy and surprised...a couple of minutes later she would say "what is this?" and I would say "it's a gift for you"... she did this seven or eight time. I also remember March 24, 2002 at 3:00pm I asked my mom, "Do you know who I am"? she said, "Yes, you're Tim my youngest boy"... she took her last breath at 3:30pm that day.
That is an incredible story about your mom! The human brain is the least understood organ in the human body.
I try not to think about it....if I do the list is never ending. I fear getting hit by a psycho driving 125 mph down the highway at one o'clock in the afternoon.....having a stroke or heart attack on top of Parkinson's.....an aneurysm....I could keep going but I won't. I love every day I have and do my best to stay in the moment and make the most of it even with Parkinson's! ♥
I agree! Live in the moment and let tomorrow worry about itself.😁
Death by Semi-trucks driving on the highway freaks me out. “I can’t drive 55” if my tremors start up on my gas-pedal foot. I would love to “Ride Like The Wind”…oh, and to be free again. lol/but seriously/the fear is so real for all of us.
That sounds terrifying!
The worst would be stuck in a crow's nest on a pirate ship in the middle of the Pacific ocean. This gets my fear of heights and deep water. Oh yeah put my kids in as well cuz I have a fear somebody's going to throw them out... With Parkinson's my fear is dementia. It's not me losing control of myself. It's the pain. I know my children are going to suffer. I also hope that when you lie there in your bed for hours on end that you're not aware of time . I had three grandparents that had Alzheimer's or dementia and they seemed quite happy. They might not have known where they were or who I was but they were smiling and happy to see me. It was me that suffered, wishing I could have them back. My mother had Lewy body dementia and for her she just lay in bed staring straight ahead. Not talking, not moving. Not eating. I don't know if she was even aware that I was in the room.
Thx for the honesty, Rick. Dementia is terrifying as knowing that you are losing a little more of yourself every day. Not to mention the heartbreak that your family will go through as you slowly disappear. Scary stuff!
Thanks for the weather update. Here and now is all we have. Take time to enjoy every moment.
You got that right!
The fear of losing self identity and worsening physical impairment are pretty high on the list, but the uncertainty of how this disease will unfold send the anxiety meter to “eleven” - if I let it. I try to stay busy and push the fear ack down when it bubbles up. CBT also helps me redirect those thoughts.
I have a CBT as well. It’s a must if you have PD, in my opinion. thx, Ken!
I exercise a lot and I credit that with my slow progression of PD. I fear losing physical capabilities and my progression speeds up. I already have some executive cognitive loss, so losing more.... yikes. I don't live in fear or worry too much though. Gotta live life full while I can
So true! Exercise is the only thing that helps.
JMac! A pleasure to watch as always. Was a worry to me but now it's a reality. Its my speech.. I still have steadi-ish hands to text and type but it isn't easy when i'm really off, lol. I've lost about 70% of my speech, still holding to whats left with doing speech therapies etc. HUGE from going to gift of gab to What, what, can't understand you...trying to activate Amazons Alexa is fun too! haha oh I am jumpy nowadays on the scary movie thing..bring a whole new experience now in watching. Still love em tho..Keep on trucking JMac, love to hear and watch
I think of the old Osbornes tv show when Ozzy is speaking to his voice activated car stereo. He kept saying “radio on!” and the car couldn’t understand him! Funny but not funny.
@@JeremyMcdonald All i can do is laugh, and i do get to hear and see things i wouldn't normally ask for though lol
afraid of not being able to take care of myself
You mentioned a lot of legit fears. I try not to think about that stuff…but if I had to pick the one that creeps in my thoughts from time to time…it’s dementia. Now something that is terrifying is dating in this day and age! Lol You are blessed to have a wonderful wife that supports you.
My wife is my hero!😍
I just try to think about my fears when I am OFF, that's when they are the worst.
It’s so true! I just can’t let myself go down that road too often.😟
danke
Gern geschehen!
Hello, JMac. I often think of being on your show! My biggest fear is the unknown. My biggest symptom now is left side tremors but it’s manageable. I often think about what’s coming next. I workout daily and hoping that helps long term, but again, it’s just unknown.
Hit me up on email and we’ll set a time for you to be on the show!
I worry about how fast and the amount of decline. However, I mostly fear clowns.
Clowns! Yes!
I think what scares me is the slow lava flow of inevitable loss 😢
It’s so true. I have been on this road for 11 years and it’s not getting any easier.
The loss of support of family.
Truly frightening! Thx, Joe ✌
Jmac - how does one get interviewed by my favorite person with Parkinson’s disease?
Send me an email, bro! jaymacpodcaster@gmail.com
I take MCT oil every day for memory. Use message gun for legs n hands, n gym every other day cause I have to force myself to go. I worry about loosing mobility n falling. But I don't watch scary movies, but love watching end time movies, war movies n true stories .. my son n I saw Bee Keeper was a good movie! Retired now hubby n I take of each other...thank God!! I do paint n bead to keep brain busy
I also love war movies! What are some of your favorites?
@@JeremyMcdonald Hacksaw ridge n Brave Heart both w Mel Gibson
@@inezzbeadz Brave Heart is amazing, and Hacksaw Ridge is on my list! Have you seen “Downfall”? One of my favorite WW2 movies….and it’s in German!
@JeremyMcdonald no, but I will have to get it!! Refresh my German. My youngest son n Marines will be learning I believe Russian, arabic or Chinese. He will soon let us know. N the mean time I do text him n German to keep him on his toes..haha!!
dracula was scary for me
Nosferatu still freaks me out!