What are Psychogenic Nonepileptic Seizures (PNES)
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- Опубликовано: 3 окт 2024
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Psychogenic Nonepileptic Seizures (PNES) are very common and yet very often missed. In this video we will explain what PNES. This is a part 1 of 4 part series on PNES.
Part 1: What is Psychogenic Nonepileptic Seizures (PNES).
• What are Psychogenic N...
Part 2: How to Diagnose Nonepileptic Seizures (PNES)
• How to Diagnose Nonepi...
Part 3: Causes of Nonepileptic Seizures (PNES). Hint, NOT Stress!
• Causes of Nonepileptic...
Part 4: Treatment of Psychogenic Nonepileptic Seizures (PNES).
• Treatment of Non-Epile...
The whole series:
• Psychogenic Nonepilept...
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#DrOmarDanoun #Epilepsy #PNES #PsychgenicNonEpilepticSeizures
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Not even 60 secs in & Im in tears b/c after 20+ years of gaslighting/guilt/shame by doctors and family, Ive spent the day seizing, debating going to the ER, and talking myself out of all the that those feelings. I should know its not my fault, and trying to control the seizures only makes them worse, but hearing it from a medical professional is healing. Thank you.
I started experiencing these as well 5 months ago since ive been under stress from an unrelated medical issue. I thought I was nuts. Like a full blown grandmal seizure but i was aware. I just remember "feeling better" afterwards. Like i just got a good workout in. When i heard other ppl have this, im like im so glad im not crazy. The brain does weird things when its overloaded. I just look at it as the brain needing to do what it needs to do to balance itself. Just like and other body system regulating itself.
SAME💔😭. I WORK in the ER! And watch the gaslighting happen and when I started having them I keep trying to explain to doctors how ITS NOT fake. It’s real and we have zero control.
I was diagnosed with pnes around 5 years ago. When they began, my local ER was no help. They thought I was faking or on drugs!!
I Completely Agree 100%.
How’d you get correctly diagnosed?? This really pisses me off how they assumed that!
What is an ER supposed to do after an initial encounter though?
😢yes!! Me too! They were horrible to me. It was terrifying 😔
@@Digital_Dweeb I was sent to multiple doctors before I was finally sent to a neurologist who diagnosed me.
Love this Video...I am the 10% with epilepsy AND non-epileptic seizures.
Thank you! Glad to hear that it was helpful
Me too
Me too
Sending you ❤
So am I. ❤
Same here. Having a "continuous EEG" being done right this very moment after having up to 50 total seizures over the last two days.
I'm 16 and have just recently been diagnosed with PNES. This video brought me to tears, so thank you so much Dr.
Thank you for spreading awareness of PNES. Doctors and medical field need to take these more serious and study more
As an ER nurse, I try to be extra compassionate and give extra attention to my PNES patients. Giving them that extra TLC makes them less likely to seize on me, which in turn makes my shift easier.
That’s great, thank you, because I’m new to this. It happened to me for the first time the other day and my therapist was here. I lost consciousness and she didn’t know what else to do.
How is it treated? I have no suppressed trauma. Mine came on after being sick with terrible sinus and ear infections that took months to get over
@@peacefulmental were you actually diagnosed with seizures that are psychological in nature? That is what we are speaking of here.
@@peacefulmentaltraditionally keppra
thank you for being kind and gentle
My doctors and nurses called them pseudo seizures, which really bothered me. The neurologist finally called it PNES. She said it was due to anxiety and put me on a lot of Clonazepam (Klonopin). I was still having anxiety and seizures, until I was put on Adderall for my ADHD and all my anxiety and seizures went away. Well for now at least.
My boyfriend had this. He would be taken to the hospital and they said he was faking it. His body would kinda jerk up almost as if he could t control it. He would. Try to say not safe or not fake in a breathless voice. It made me so mad that they treated him like he was a liar wasting their time. Shame we dont talk anymore cause id love to show him this
I have suffered from very strange "seizures" since i was 19. The symptoms are difficult to explain. They usually occur in clusters when I am very tired or on the verge of sleep. I am enveloped by a strange feeling of deja-vu and temporarily forget the time and date. It usually results in depression and anxiety. I always am able to keep on top of it, that is present a front to people around me so they don't know what I am going through at the time. It is such an unreal experience I find it difficult to articulate the sensation. Can anyone else relate to this?
Hi ! I feel that I have had a similar experience. It’s been much less disruptive lately, but I have clusters of involuntary movements when I’m going to sleep or tired+relaxed. Mine are usually accompanied by heightened anxiety and dissociation, but I don’t seem to have the same amount of confusion as you experience. I should also note that I have Tourette’s, but experience undiagnosed seizures separately, and the movements I experience are not similar to any tics that I usually have.
I get an aura and dejavu and dissassociation. I feel panic and anxiety like I'm about to die, I have to pray so I feel safe...My brain feels like slight tingling. Then I get episodes of feeling stuck and body tingly all over..I'm stuck staring into space and ru bing my itchy arms...afterwards
Classic complex partial seizures
I have PNES and mine started showing up when I was getting tired or falling asleep.
I have the exact same symptoms and they kept saying that it's electronic seizures or panic attacks for 4 years I took medication for something I don't have. Thank god now I discovered my diagnosis . It's something will be cured by a psychological doctor using CBT technique
The emu told me I have it. I also have Bell’s palsy. It’s hard and it took years to get help. Only a doctor that was a top PNES docs. I don’t feel hopeful and it’s scary every day for multiple time for episodes. I just want a good day.
I think functional neurological seizures are the best title for the diagnosis because it helps to group it with the other functional neurological disorders that are all treated similarly, that is, a strong combination of cognitive behavioral therapy and physical therapies.
false. epileptogenic seizures are NOT treated the same as nonepileptic behavioral spells. Calling them most seizures are not function and are debilitating, and calling them functional seizures confuses medical staff and physicians leading to overuse of medications
I call PNES a mental suppression program and it can be cured by exposure therapy. I have come up against 5 different psychiatrist’s and I won. I have invented the types of exposure therapy that actually works! I help girls testify against their abuser’s in court and it cures them instantly which is beautiful to see! I have new exposure therapy that will also work with severe anxiety or panic attacks and it not just some breathing exercises. My methods may seem a little out there but they do work and that is what matters!
I've been suffering from PNES since I was 19 and the treatment I got was just being told I had pseudo seizures and shuffled out the door. It took 10 years for someone to actually treat me and diagnose me properly. It came back with a force in the last year or so and it's destroyed my life.
Thank you for creating this content. This will be something I show people who need to know what's up with me. Great work man and thanks again!
I’m only 40 days into my PNES diagnosis and I’m trying to learn as much as possible. Thankfully the absolute worst seizure’s I’ve had multiple times per day 2-3 days in a row…. Was at the epilepsy testing hospital. I’m really hoping I don’t have anymore seizures that are that severe when I’m out living life or at home alone…. It’s terrifying cycling in and out of awareness when it’s happening . It’s so painful, exhausting, and shatters your confidence in your body working properly.
I am the best leading expert on curing PNES! This is a mental suppression problem. When you bottle things up and push them way deep down inside they can actually manifest itself physically. I offer many different types of methods of exposure therapy for people suffering from PNES. When I take girls to testify against their abuser’s in court it totally cures the PNES!
Whether your PNES comes from severe anxiety, panic attacks, trauma from abuse or all 3, I have invented new types of exposure therapy that actually works. When people push their problems down like a trash compactor it can manifest itself physically and that is why PNES is a mental suppression problem that calls for exposure therapy. My data that I sent into the American Psychiatric Association speaks for itself. I want to help you before this keeps going on. I asked my own neurologist if he knew much about these types of seizures and he didn’t know and I see a really great neurologist. This is a problem for an exposure therapist who specializes in this field like me! If you have any questions please don’t hesitate to ask!
You are the best Dr that I will never get to meet but watching your videos is great
Thank you
I was told when I had PNES the first thing the doctor told me was your not having seziures than "they are fake seziures" and it took me a well to understand what I have
Thank you for this video and will share it with my narcolepsy group as some were misdiagnosed or presently have this as a co-morbidity. It has become more of a discussion especially because of hypnagogic jerks or cataplexy.
Most importantly, thank you for your kindness and understanding.
My pleasure!
I'm 14, I got diagnosed with PNES when I was about 12 and a half. I'm a freshman now, and this past week the school was like "Hey, you're malfunctioning again, move you legs, get up and walk, or we will send you to a mental hospital!" Even though I couldn't walk or control my legs. And they put me on medication for it so, hey, here we go i guess
I showed my neurologist my seizure diary. It showed that if I took 1,500 Levetiracetam twice a day then I will only have a maximum of 3 seizures a month during my menstrual cycle. If I kept taking 750mg of Levetiracetam then I would have 5 or 6 seizures a month and may also have one focal to bilateral tonic clonic seizure. Yet the funny thing is because I work in a noisy environment with announcements, loud music and angry customers that would trigger the seizures due to my autism but find being on the medication is helpful because if I didn’t take it then I would have daily seizures and be unable to work.
Hope you feel better soon.. Please review the video on drug resistant epilepsy and discuss with your neurologist
Thank you for watching. Please ask me any questions about psychogenic nonepileptic seizures PNES or epilepsy
"Can't give medical advice"... ha.
Your thoughts on neuropsychiatry for pnes..my experience was bs with it they claimed it would help on either Epileptic or non epileptic seizures but nothing happened zero
@@FullTimePatient37 the system is designed to keep things going... think of the Matrix, whether these docs know fully or not they're working for the system. The more natural the better,in basically everything.
@@eballin45 it's better for their own psyche so they're not making emotional attachments to patients but that doesn't mean that they should act on professional and may experience was horrible because my psychiatrist was so unprofessional and ill timed
Hi doc can I control them
I have rassmussens encephalitis seizure disorder. Falls in epilepsy. I also have PNES
I was just recently diagnosed with epilesy, i have had seizures when i was younger(i have had only 4 but they stopped nearly 16 yrs ago-no one ever told me what kind of seizures i had, not even the doctors) and i passed out at home nearly a year and a half ago(i felt fine, just a normal morning getting ready for work-no headaches-when i had seizures i could feel them when i was about to have one but i had no feeling of it during the time) i remember feeling stressed about numerous things and when i was making my coffee for the morning i passed out but the strange thing is i woke up about 10 minutes later back in my bed and my right foot was burned on top(from spilled hot coffee), i don't like hospitals(i saw a loved one i was close with go down fast in 2 close hospitals near me-and i cringe anytime i am near one of them) so i went on it to work and a coworker noticed something off about me(i have been trying to get my driver's license hence all my stress and i can't drive until i am okayed by my dmv-waiting for papers to come in for me to fill out by doctors) and i told her what happened and she knew i didn't like hospitals so i told her i was going to urgent care when i got home(the urgent care doc thought i was drunk/crazy and trying to get attention-i don't drink or do drugs-i haven't been on any seizure meds in years and i do have anxiety but i would never do anything like this for attention) and after seeing my pcd(he was trying to put in my head that i was doing all this for attention to) and after having second opinions(several tests including a head mri which were all good results) i had to wait 3 long months to see a neurogist(i was willing to see anyone in that office so i could be checked out right quick but no one was available hence my long wait) it took a while to get a test done due to my med insurance not covering my test(it was a at home eeg video/audio test that i had done a few weeks ago-only had this test done for 2 days) and during the time of all this waiting the doc wanted me to take anti seizure meds just in case(i was having headaches before i started the meds and they are sometimes recurring feel just like tension headaches-my doc lied to me months ago of what all i could take otc in case i was sick or if i had a headache-otc cough meds are fine as long as i am careful of how much i take, otc headache meds have made my headaches worse cause they were messing with my meds-i had no idea and i was furious at the doc cause he told me i could take any otc med but then lied to me saying don't take this otc med). So when i had my test results come back a nurse from the doc office called me and said it wasn't seizures so i was happy(i was still taking the meds cause i was given strict instructions by the doc months ago not to stop taking them) last week i went to see the doc and he just straight up was like you have epilesy(i told him for months i was stressed when i passed out at home long ago-he ignored all i said to him) and i looked at him and i was ticked off and told him what the nurse told me, he apologized saying the nurse must have read my chart wrong but he told me there is no other test to rule this out(i think he overlooked my test results cause i was still stressed when i had the test done-i have taken steps to keep calm but after hearing this i was mad as hell at the doc cause he acted like it was no big deal and i wanted to walk out of that room and never see him again(my mom had epilesy-she had grand mal seizures and had a time trying to raise me and my brother on her own due to this-she couldn't drive/work and passed away 16 yrs ago due to a mysterious death-can't disclose what happened due to privacy reasons) i listened to the doc, he wanted me to stay on the meds for the rest of my life/etc, i did not like how he told me all this he acted unprofessionally(his posture-slouched on a small bed beside me, he looked at me some but wrote all kinds of stuff on his notepad the whole time and never said i'm sorry about this at all).
After talking to my brother(he doesn't have seizures) he looked at me like ' i think the doc should have done another test on you just in case' and my brother also said 'you don't look like someone who has epilesy' i was scared cause i did not want to end up like our mom and he assured me i wouldn't. He is currently staying with me for a while but after we got home we both had a long talk and i told him everything the doc said we both believe the doc should have done another test and we both agreed that i would get a second opinion( i believe i had PNES due to the stress i had-at the time of my passing out/syncope(the real name that everyone went with) and it can be diagnonised with the same test- i strongly believe that my doc misread the results and should have listened to me when i told him how stressed i was. I have watched this video many times and everything lines up perfectly with what happened to me long ago, i am gonna see someone else for a second opinion just in case anything was missed but i can't see another doc right now cause due to several things(like if i can drive-the doc says he sees no reason why i shouldn't drive but the decision is up to the med board at the dmv but i have to wait for a little while/if my headaches get worse i may not be able to work at my job much longer-i don't have headaches very often and i am careful on what i am doing when it happens) i have not had a seizure in a year and a half now and i am careful of what i am doing at home/work just in case.
Thank you! Doctors here in ND are ignorant about this disorder!
If you can, go to mayo clinic next door. That's where I was diagnosed
I have these seizures and ones were i just stare but mind gone blank, been taking them since the age of 14 and still have them. I was once under observation for a month in our local hospital with gadgets on my head and a monitor on my wrist, this was many years ago and i still take them. First they introduced me a psychiatrist thinking i was either faking them looking for attention, i do not take any medication for them but i was once on Epilim, then Epinutin, and another which i can't remember since it was a long time ago. But now i am on antidepressants because of it all i was on one 0.5mg and now i take two 45mg a night.
I have episodes where I can only stare as well. I can't move. I can't speak. I can only get enough air out to slightly moan a response sometimes. As it fades, my motor functions come back first but it takes a little while for me to be able to able to speak. Sometimes it comes back with a stutter. Reading your comment gave me comfort. Thank you for sharing.
@@NaturallySoJazzy thank you for responding to my comment i am quite surprised because i wasn't expecting one, i am so glad that i have given you comfort with your seizures. The aura i get is like i am floating on air which makes my head all fuzzy, i am in my 60's now and they say there is no medication to take for them. I am on Mirtazapine which makes me relax through the day but it doesn't stop the seizures, wish they could find something because i am so exhausted after taking one.
Hi Doc thank you for the videos I was diagnosed with PNES a year ago however I'm an over the road truck driver why do my seizures come and go I can go several months without having one then BAM all of a sudden I start having them again and it will stay with me for several months why is this
I am sorry I cannot provide medical advice online without evaluating the patient in my clinic. Please discuss with your neurologist
As I have an FND diagnosis - The term Functional seizure fits best
Just diagnosed with PNES today. The only thing going through my brain since they told me has been "so I'm not having real seizures, I'm just crazy".
😂😂😭😭 This was me when I was diagnosed last week.
@@acidicsoul4978 The worst part is.....I don't even know if I'm right or wrong.
I was diagnosed during chemo when I was neutropenia
My new neurologist I saw about 2 weeks ago called them pseudo seizures.
😳
Yep same here!!
Please see a therapist who specializes in exposure therapy!
my daughter looses her memory for hours or days. have u seen that before?
What if I have Wilson’s disease, but I’m having non epileptic seizures. My doctor is saying they aren’t related? And I think they are. What should I do?
Stress is a trigger!
Not always! Some of the people who I help are able to attend school or work without having this type of seizures. That’s why I started understanding that this is a mental suppression problem. I help girls testify in court against their abuser’s and they are cured of PNES instantly! This has become my life’s work and I really want to help doctors and people understand these seizures so they can get the best care possible! Exposure therapy is the answer and the cure!
Conversion disorder seizures make it easy to remember the presentation.
I was given my diagnosis in the emergency room and I didn't really receive much info from the doctor themselves (I was passed out from the hospital drugs and they just gave my mom a packet)... There weren't really any follow up appointments then. But I had numerous appointments a few years before for doctors trying to figure out tf I had lol. I moved to a bigger city for college and was immediately diagnosed o-O
Dr.Omar, could you make a video explaining "agenesis of the corpus callosum?" as to why it happens and what it entails, I have found little material about it as far as adults are concerned.
Please more information on Functional neurological disorder?
Watch out for the rest of the series
had one the other day for the first time so i dont actually know if it fits in the same category as the seizures other people in the comment section have on a regular. Doctors in hosptial believed it was caused by lack of sleep and maybe second hand cannabis consumtion. I was 100% aware of everything that was happening but couldnt open my eyes and was more or less choking for 3 hours. when the ambulance arrived they kept telling me it was only in my head and kept on hurting me by scraping their knuckles against my chest over and over for 10 minutes or so. I felt more and more like it was my fault that it was happening , they didnt seem to believe that im not simulating and i`m actually helpless... this was traumatizing i dont even want to know how it is for the people who have it more often
Thank you sir. Please are there ways a patient can avoid this? Are the foods one should eat,weather one should avoid or characters one should embrace and avoid?
Treatment in the last video in the series
@@DrOmarDanoun thanks a lot doc..you are awesome
Please what's your name on Instagram doc,I would love to follow you on Instagram.🤍
The first neurologist I saw , Dr. Stephen Howlett, called my episodes “pseudoseizures” and I felt that he believed I was faking the seizures or I was mentally ill; not just by his words, but by the rude tone he took with me. I have learned much more since that time, and know that Dr. Howlett did a disservice to many of his patients and gave a bad name to neurologists.
Thanks!
My daughter has this and we are constantly getting backlash from all emergency services , the police are threatening to arrest us and her , the firefighters threatened to get us arrested got waiting their time , what do we do
As one who was diagnosed with FND I prefer the term PNES.
I have nonepileptic seizures too and came too and found i could move found out i endwd up with a broken hip all from a seizure.
i had one today and am in so much pain
PNES is still probably the best although the Functional Seizure Disorders would be useful to cover a broad variety of types of PNES that express in different ways…I have read journal articles that describe different neuropsychiatric disorders that increase the likelihood of PNES so perhaps PNES is one type of FSD…?
I experience this with my Dissociative Identity Disorder.
When we fail to rest our minds & our bodies, this is the ultimate result. We put far too much mental & physical strain and stress on ourselves and then it’s almost like our conscious selves are “pushed out the way” so that our own bodies can make sense of what’s happening with us. I hate to compare us to digital technology but you notice what happens when our computers have too much information stored inside? Or even when we update our computers, should we use the computer or set it down? We need to rest ourselves. We are suppose to get at least 1 day of rest each week which equals 4 days of rest per month, that ultimately totals at least 48 days of rest per year. If you haven’t received rest in the past 3 years, that’s 48x3 days of rest you’ve missed. & Remember, sleep & rest are completely different. ✨
PNES is caused by mental suppression and can be cured using exposure therapy. Our bodies are not trash compactor’s but some people push their problems way down until it manifests itself physically. I hope that I can be of some help! I help girls testify against their abuser’s in court and it instantly cures their PNES and it is such a beautiful thing to see!
How can I be having these when I feel ok before them, I suffer with stress alot but my last one, I felt ok that day
Possible..stress is not necessary to trigger them though it can be a major trigger
Hi Doc, I was diagnosed with juvenile myoclonic epilepsy 20 years ago when I was 18. I started with myoclonic jerks at 16 then had a tonic clonic at 18. Ive been on various meds over the years, but the side effects have made me very sick. I only had tonics clonics when I was 18 and the aurus that would accompany them went at age 24. I am left with myoclonics, but worried these may turn into tonic clonics if I altogether leave the meds (currently on Briviact 25mg a day). However, I have had over 10 EEGs and MRI's over the years that have all come back normal, 1 was sleep deprived, 1 was for 24 hrs and on no meds. All neuros ive seen are baffled. Is this possible, thoughts?
I can't provide medical advice online.. Please review the video on generalized epilepsy for full information
Is there any medication to treat PNES? Can PNES happen in sleep as well? Desperate to resolve please 🙏! Your videos are very helpful - thank you.
I will explain the treatment in details in the treatment video in this series. Yes there are multiple treatments available. Mostly CBT therapy and SSRIs in certain cases
Look toward the Spirit and the Truth of Being and harmony/nature. Indigenous. As Carl Jung termed, 'the Shadow' must be discovered embraced and dissolved. The subconscious mind is quite a big player as well... 🙏
@@eballin45 where we are triggered is where we need healing!
@@DrOmarDanoun I was controlled for 25 years until the neurologist changed my meds 5 years ago. I used to be on tegretol - which I believe is an SSRi. But Iwadee feel so groggy but lamotrigine isn't doing the trick for sleep ones and the ones that are brought on by overwhelm and anxiety.
It all goes back to.childhood trauma.
'Psychogenic' is a better name than 'functional', because it's more truthful and the patient knows exactly what's going on in the doctor's mind. It's confusing if the doctor gives a pathological label to non-pathological illness. It can reinforce the psycho-patient in their sick role, and can also lead to genuine neurological conditions getting missed if the doctor is overly biased toward this trendy new FND diagnosis.
I have both Epilepsy and PNES, they added that on top thanks to week long EEG. I've tried all meds in the books and at highest recommended levels too so now I have appointments coming up to discuss VNS surgery..... I'm absolutely crapping myself 😅
Please try exposure therapy because it works! Meds can make a mental suppression problem worse so I will warn you about that. I go around helping people deal with their problems and it does cure the PNES. When I help girls testify in court against their abuser’s it completely, instantly cures their PNES. It doesn’t matter if you are having PNES from anxiety or panic attacks or abuse because it all comes from mental suppression!
Do people with PNES have any aura and any of the Ictal phases?
I do
At many government clinics in South Africa it is almost impossible to have a proper discussion with your doctor about your condition. We almost never see the same doctor twice because the clinic has a different doctor everyday. We don't get to decide which doctor we want to see. Many doctors at the clinic that me and my brother have gone to don't even know why we take the medication. They just simply repeat the prescription without looking through the file or asking questions. Some of these doctors don't even know about the epilepsy diagnosis. A few doctors will look at the file, ask questions and request blood tests. Some only request drug levels, but one or two doctors will look at liver, kidney and complete blood count details as well.
So sorry to hear that
I'm also from South Africa and had the same experience from the state hospital and clinic. Lucky for me that on a occasion that I was admitted at hospital one of the medical staff worked for plus 10 years in a trauma unit. She immediately said that I'm not having epilepsy seizure but the seizure is due to trauma. I whent to a private Dr and had a long consultation with him. He started me on medication and keep on monitoring my seizures. Eventually we tried a new therapy and changed my medicine. I was diagnosed with PNES that is a result of past trauma. I find that I must drink my medicine at the same time in the morning and the evening. Triggers that cause me to have a seizure is stress, anxiety, alot off people around me, smells and sounds and even someone's voice tone. I can just thank the medical staff and the Dr for all they did for me. At our local Hospital they sticked a red sticker on my file. Most off the medical staff know me and know my medical condition. Even our local ambulance service if they get the call for assistance the immediately know who I am and witch medication they have to give me to get me as quick as possible to the hospital. I had so bad seizures early this year that it took the hospital an hour to get the seizures to stop. They transferred me by helicopter to a bigger hospital.
Is it possible to have a PNES during sleep?
Or this is definitely an epileptic seizure?
Can't judge 100 percent based on one symptom.. Please review the video on diagnosis of PNES for full information and discuss with your neurologist
Hello...that is how mine start. My first one was in Jan of this year in my sleep my husband found me on the ground...then none till a few weeks ago and i had a series of them (seizures) in my sleep for 3 nites in a row..the last one i lost consciousness and fell bumped my head on the ground and ended up in the E.R. that is when i got the PNES diagnoses ...now i have a bunch of different DR appointments...It has been life altering.
@@ktbrown7643any updates? have you had an EEG during sleep to see if you have epilepsy instead of PNES?
Is dissociative seizure another name for this? And is it under Functional Neurological disorder?
I grew up living in a major abusive household and nobody really understands what it’s like to try to suppress it. This is why I am the leading PNES expert. I can actually cure people and my exposure therapy methods are killing it!
I was diagnosed with FND and PNES we call my seizures functional seizures or psychological seizures
Any thing that doesn't imply that the person who is having them can control them. They are not bad for having them . They are not sycophantic or crazy parson let's put u in a padded room. I have been told all this and want it to Stop.
So sorry to hear that
Is atypical seizure and PNES the same?
I don't understand how ER staff can tell psychogenic patients that they're faking it. Do they take tests and it shows it's not epileptic, so therefore they think it's all pretend and games?
My EEG’s have always been normal, but I have auras before I seize. I never had seizures until I was 20; however, I remember having auras as a child. I haven’t had a seizure in almost 3 years, but I currently take Aptiom. I was suffering with a severe case of OCD and was severely stressed when I started having full blown seizures. Even tho I had auras, could my seizures be non-epileptic?
are pnes and fnd the same?
It’s up to the doctors to diagnose and it’s my job to provide the cure! I was a master at mental suppression and keeping my own abuse to myself for years and that’s why I’m becoming the leading expert in PNES! I might only be a psychology student right now but I can still offer up possible solutions!
😮
How common are these? Seizures are my worst fear with my health anxiety. Anything with my head that feels weird makes me feel like I’m going to have one. Please help.
Not very common... Less likely than epilepsy which is 1 to 2%
@@DrOmarDanoun thank you so much for responding! I’m not doing well over here and dealing with a little PTSD. Whenever I get a brain zap, headache or dizzy I think I’m going to have one. Do you have any tips on calming this anxiety of mine until I get into my therapist on the 17th?
I can relate! My first one was in January...I am terrified of having more. This has been life altering for me..and after my last one a few weeks ago i have been so tired confused and overwhelmed. Good Luck to You! I am on a quest to find out as much as I can. Stay Strong :)
You need to address what is bothering you the most. If you push the problems way deep down inside and suppress it, then it can manifest itself physically into seizures. It’s similar to dying from grief. Exposure therapy is the answer and the cure!
Stress and postpartum can if you push it down like a trash compactor! You need to find out what drives these seizures and confront it. Exposure therapy can actually cure PNES!
My neurologist literally said good news there’s no epilepsy and that I have pnes and not they’re seizures . I changed my doctor he kept contradicting when he was saying like a yes and no to having seizures at the same time .
Did you suffer some kind of abuse, trauma or major anxiety that you pushed deep down inside? When you push stuff down then it can manifest itself physically and that’s what PNES is. The cure is exposure therapy! I know this because I help girls testify against their abuser’s in court and it totally cures the PNES! If you have any questions then please don’t hesitate to ask me!
Assalamualaikum doctor my niece started having seizures after painful break up
She 30 years not yet married her scans are clear suffering on and off from two and a half years started taking epilepsy medicine from two days should she take my medicine or phycho treatment
Please review with epilepsy specialist and maybe do the EMU test mentioned to make the diagnosis then treatment will be based on that.
I had these from 2 up to 19.. then they stopped. Then I had a few in my 20s, but only about 3. Then at 35.. I started getting them again. Then, they stopped for a year. Then, at 39.. they started again. But at 47 they got really bad. I was tested again and to everyones surprise.. they were epileptic. I had brain surgery because they turned into status epilepticus. And one time stopped my heart. That had always been my fear. Now it's possible. Seizures are NOT to take lightly!!
@dromardanoun I have syncope and convulsions . Does a convulsion look the same as pne?
What about idiopathic epilepsy?
Hello, Doctor Omar! A year ago I was diagnosed with epilepsy but last month I had a check up and the results showed that it was not epilepsy. Although, the exams show this results , I usually get off but at the same time is like my brain is active because I wash my dishes or make my bed and later on when Im back is like what happened? My doctor was confused but checking this video it makes me think I have this or not?
I can't provide medical advice online.. Hopefully the rest of the series explains the diagnosis and treatment will be helpful for you. Thank you
How common are episodes while under anesthesia? My daughter is having surgery soon and this is a big concern.
I can't provide medical advice online without evaluating the patient in my clinic and knowing everything.. Hard to judge.. Please discuss with your neurologist
I was diagnosed almost a decade ago, and treated like a lying drug addict, even weirder bc I had no drugs in my system nor have I ever… I stopped going to get seen because it was embarrassing, being called a liar
Hello, thank you for the All Informations. My daugther is 10 years old. Last summer, it was begin with non epileptic seizures. Today it was an Other seizure, she was standing, saw colorful dots and than she dont know and she has wet. Can this be an epileptic seizure? Last summer she has some Spikes in eeg.
Please review the videos on epilepsy diagnosis and treatment options and discuss with your neurologist. You need to stay following up with the neurologist not just see them once
Make sure you get a MRI of her brain and check to make sure that it not diabetes. PNES is a mental suppression problem and can be cured using exposure therapy!
PNES is good because it explains to anyone that doesn’t know about them what they are.
Hello again! Is NEAD the same as PNES?
Yes many names like we said in the video
Hey doc,i delivered a baby through ceaserean section.hence then i developed seizures.can cs cause epilepsy?
I can't judge without knowing the details of the case. Please review the video on epilepsy causes
هل يوجد نفس المقطع مترجم ل للعربية ؟؟
نعم سلسلة الصرع النفسي على القناة العربية د عمر دنون
How can I contact with you?
If you would like to make a consult with Dr Omar Danoun, age 16 years and older, please call or email the International Patient Services at Henry Ford Hospital and get your appointment if you are outside the USA: Office Hours: Eastern time 8:00 am -5:30 pm Mon-Friday, excluding holidays
Phone: +1-313-916-8443
Email: InternationalPatientServices@hfhs.org
In USA call the clinic
www.henryford.com/physician-directory/d/danoun-omar
Henry Ford in Michigan?! Do you take most insurances?
I understand these seizures and I am an expert on mental suppression! I use exposure therapy to cure these seizures!
@@phunnyguysixtynineI can help you and I can make a free house call because I live in Michigan! PNES is a mental suppression problem and I have invented new ways of exposure therapy that cures these seizures. I have been able to cure these seizures by having people testify against their abuser’s and it actually works. There’s different problems that cause mental suppression and I have solutions for exposure therapy for different types of problems! Most doctors don’t fully understand these seizures but this is what I do!
Try having the closest ertu tell your family that not to bring you back because there's nothing they can do for me 30 seizures in one day and they didn't even know how to run the blood pressure machine.
If you are a doctor and you have a patient with this illness and you believe they are faking it, you definitely are in the wrong profession. I have these type of seizures and they are scary. But anyway...
My PNES are grand mal that last for 30+ mins. If I live through them, I kick anyone’s arse who says they’re fake or drama.
Hi, do you seizures have a trigger and a delay? Like getting a routine frequent medical procedure in the morning, followed by a PNES 12 hours later? Just wondering.
I am about to give Lafrance a run for his money!
everyone here is studying up on their seizures. the best name is nonepileptic behavior spells ONLY treated with therapy. its psychological.
Exposure therapy is the answer! I help girls testify against their abuser’s in court and it totally cures the PNES because it is a mental suppression problem!
I think PNES is the ideal term because just being able to say you have Pee-Nes is incredibly comical and goofy
With all do respect, Dr. lafrance is no longer the world’s leading expert on PNES. He just got beat by a psychology student!
I like the functional name. If we have to explain it to non medical folks like employers, I think it's less likely to be interpreted with a stigma.
My second choice would be simply nonepileptic seizures (drop anything with psycho in the name due to misinterpretation by the general public)
I would like to be called epileptic and treated as such!
Sir how to contact you
Details are in the first comment
But is all in my head lmao 🤣
I wish they would give it a new name and not call them seizures. As an epileptic it’s a little insulting.
My brain has lighting storms and can make me drop dead suddenly. I know this is going to make ppl mad
I call it "pines" even though it's spelled PNES.
I call it a mental suppression problem and I find that the best cure can be through using exposure therapy.
I am the world’s leading expert in curing PNES and I don’t even have my psychology degree yet! I use exposure therapy that actually works!
Please submit research results to peer reviewed journal before practicing on people. Research methodology & ethics classes will cover how & why.
This is not an epileptic seizure it's a Pseudoseizure, and usually the most common causes are psychological problems (Simple Schizophrenia, Manic Depression and Overactive Amygdala in the brain) or Niacin deficiency (similar to pellagra diseases).
It is stressrelated. Because many mistake these seizures for not being ‘real’ (see the first part of the video….) you should try to refrain from using the phrase ‘Pseudoseizure’.
A seizure is a seizure, it’s a neurological malfunction, but people try to discredit it when the causality is psychological. What “psychological” means is basically still, neurological. Whatever you call it, stress the underlying cause/trigger. Stress is a physical, hormone-based thing - not just ‘get your shit together you dramatic/neurotic birch and stop pretending to have a seizure for attention’.
PNES is not a faked seizure, it’s not a pseudoseizure - it is an actual seizure, hence the name ‘Psychogenic Non-Epileptic Seizure’.
But it’s great you could enlighten us all about how this is not an epileptic or actual seizure when that literally is part of the name of the diagnosis. 😅 Great job! Keep minimizing serious conditions, you must be a nice person.
Also “simple schizophrenia” “manic depression” - in what century did you attend med school (if at all)?! 😂 None of these conditions exist in neither the current DSM or ICD.
How about you look up the significance of semantics before you blurt out bs like this.
My daughter was dying from bone marrow failure diseases and was diagnosed with PNES. She’s gone now, but she was fully awake, alert and oriented. I began having something that I first thought was a stroke. I drop to the floor, unable to move my arms or legs. Doctors just say they can’t find anything on the tests I have had. Upon my own research, I’m having drop seizures which are a type of PNES. It comes from an increase in cortisol levels caused fro extreme stress or trauma.
Stress and/or trauma (PSTD) cause overactive Amygdala in the brain. hope you feeling better. God bless you and your daughter.@@nursedk1
They are fake seizes and it is drama. 99% of the people who have them are younger age with mental health issues. They need mental health help.
How insensitive of you
@@bethschmidt1821 very
non-epileptic seizures so they can't be tested for. kind of like fibromyalgia