IgG4-related diseases Q & A

0:00
0:18 What is the best way to monitor my condition?
1:19 How do I know what symptoms are caused by my IgG4?
2:45 What would I notice if it was affecting my salivary glands?
3:22 Is IgG4Rd a form of vasculitis?
4:48 How is understanding IgG4 relevant to someone with vasculitis?
7:29 How would explain IgG4 to a newly diagnosed patient?
9:16 How do you explain to the patient what he/she can expect in terms of management, or prognosis?
11:36 How often do you see your patients with IgG4?
12:02 How long does it usually take a Rituximab infusion to begin working?
13:12 IgG4 typically affects older males. What is the youngest patient you have treated?
13:50 What is meant by fibrous
15:31 What is the life expectancy when you have IgG4?
16:32 Does IgGA run in families?
IgG4-related diseases Q & A
Recorded May 2023

[@BDShepon]

❤❤

[@anjelgirlgifts4847]

Thank you for all this great information, Dr.Wallace. I’m newly diagnosed and scared since I’ve had symptoms for 10 yrs in many organs. Glad to hear rituximab can bring prompt results. I have many chemical and medication sensitivities and I hope I am a candidate for this medication.

[@vasculitisfoundation]

We are so glad you found this information helpful. You can find additional resources such as videos, information about virtual support groups, and more on our website www.vasculitisfoundation.org

[@vasculitisfoundation]

If you have not already connected with the IGg4ward foundation you can find more information on their website igg4ward.org/

[@BluePlanet88]

Typo alert. Video recorded May 2024 and IgGA instead of IgG4. Probably 2023. Thanks for QA, it gives more info on IgG4.

[@vasculitisfoundation]

Thanks for the catch. We've corrected the date.

[@alexstreczyn2]

THank you for this interview. I appreciate it.

[@vasculitisfoundation]

We are so glad you found this information helpful. You can find additional resources such as videos, information about virtual support groups, and more on our website www.vasculitisfoundation.org

[@vasculitisfoundation]

If you have not already connected with the IGg4ward foundation you can find more information on their website igg4ward.org/

[@Technoide1]

Can it also trigger tinnitus?

[@vasculitisfoundation]

While researchers believe this is rare, we did find case reports of people who had middle ear issues (including tinnitus) believed to be related to IgG4. Here's one case report journals.sagepub.com/doi/full/10.1177/0145561320976411#:~:text=According%20to%20these%20case%20studies,are%20the%20main%20clinical%20symptoms.
Here's another www.ncbi.nlm.nih.gov/pmc/articles/PMC4135164/

[@vasculitisfoundation]

The IGg4ward foundation is a great place to find more information on IgG4 related diseases. igg4ward.org/