Millions of Americans affected by 'medical gaslighting' every year
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- Опубликовано: 5 апр 2022
- Dr. Simone Wildes, infectious disease specialist, said patients should do research and speak up if they think doctors aren't taking their symptoms seriously.
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#ABCNL #MedicalGaslighting #SpeakUp
This definitely happens. It’s truly disappointing to go to someone who is supposed to help you and you get pushed away.thank you for bringing awareness to this. Something has to change 😕
Not only do these type of Doctors brush you off but they also charge you for the visit. They should be held accountable
About 5 years ago I went to ask my gp if the way I was feeling (completely dreadful) was POTS, I was breathing but feeling dizzy & faint as though I wasn’t taking in enough oxygen. He stuck a pulse odometer on my finger & dismissed it being pots. Had it been correctly diagnosed then I would have saved me from many blackouts, I don’t get any warning. In a split second I’m on the floor, I’ve smashed glasses, grazed on side of my face & eye area, temple area. The dr in a & e though my I’d have broken facial bones, my already weak & hyoermobile wrists were almost broken, he said if I hadn’t been hyper mobile I would have definitely broken them. I shook when I tried to pick up a drink with both hands, impossible with just one. I fall outside, on the stairs, up and down…I won’t list everything. But it shows as women we aren’t taken seriously. I remember going with my ex to a dr appointment (I’d not seen a dr with someone with me since I was 22) with him. I didn’t like that particular dr anyway. But he was completely different! His whining about his rib hurting, in sooo much pain he had to take A…as in ONE solitary ibuprofen and was given a week off. Chostro something, inflation around a rib.
I was angry because I had gone to see him about serious pain from EDS and not having any quality sleep & wasn’t helped 🤷🏼♀️
I can tell you from personal experience this is a universal problem. I am sure that it impacts women and people of color but I have been through hell trying to get help with Long Covid Symptoms and the autoimmune issues I've been struggling with because of Covid. Some of the doctors I spoke with were incredibly rude and dismissive. This is indicative of the overall problems we have with our health care system. For many people who work in health care it is nothing more than a job and the only thing they seem to be concerned with is money. Many doctors seem to almost resent their patients.
Story of my life so true
Then you pay hundreds and thousands of dollars
Two of my family members are dead due to this exact reason. Thank God someone is bringing this to light.
I'm so sorry. Oh, this make me angry! Why do they even go to medical school if they don't want to help?! This is egregious!
When I was 17 I started having pain in my lower stomach on the left side. I went to my doctor and he told me I was fine. The pain got worse over the months, every time I went to see my doctor he would tell me it was all "In my head" or I was "Seriously exaggerating". Eventually the pain was so bad I would vomit through out the day. One day shopping with friends I pass out and get taken to the ER. The ER did an ultrasound and found a cyst the size of a "toddlers head". I had to have emergency surgery and my ovary removed. Apparently, it wasn't "in my head" at all 🙄🙄
Your ovary had to be removed? 😱
Wow. Hope you're healthy now.
So sorry this happened. I was told my neck pain was stress and sent home. I went dr’s for 3 years always they said it was stress. Turned out to be a ruptured disk and bc I dealt with pain for so long, I ended up with lifelong fibromyalgia. It was a ruptured disk, I had neurosurgery and it immediately fixed the problem.
I'm glad you recovered..
I’m so sorry and went through something similar. Those doctors should all be held accountable!
@@sheilashields6386, that's just awful. The doctor should be held accountable.
I’m unfortunately one of these people don’t trust the healthcare system at all and if you get a second opinion you are dr shopping 🤦🏻♀️
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Agreed
Same boat here. Went to a doctor once, was given medication that apparently I didn't need. Long story short, had horrible service, "Oopsie. Oh well, you'll be fine."-like treatment, and the meds made me NEED to use a Cane. I was SLOWER than Grannies at the ripe old age of 29.
If I ever go back to a Doctor, I'll be straight forward and ask:
"Due to previous issues with Medical Gaslighting, I'd like to conduct to see if we're a good doctor to patient match. Would you allow me to Record All of Our Messages? I want to ENSURE I don't *_"forget"_* anything."
@@Mary-Ann_B_Mabaet I finally broke down crying about the pain in my left ribs so a different dr finally did a ct found a nodule on my lung but said it was fine ugh I’ve had a pretty bad constant cough for a year now
@@harpergrace5846 Keep finding another doctor if you still have the energy, time, and hope left in you. I've heard stories of people finding someone who actually looked into them after 8+ doctors. It's nuts.
Otherwise if work etc complains about anything and about you not parring up to standards, tell them to talk to your doctor about it since they are the ones saying that you're fine and that your condition is PERFECT. Honestly? I'd be pissed.
If you can figure out a lawyer that can help you pro bono, do it. Otherwise try to get a consultation to see (a) Upfront Costs, (b) Estimated Potential Earnings if you Win the Case and (c) get those doctors fired for malpractice. IF you get a doctor that actually helps you, you have evidence against the doctors that didn't. So, there's that. Getting them out of the work force they don't belong in would be ideal at best. Prevent them from earning a paycheck off of people that actually need help but they turn away.
It absolutely happens, and it’s scary. I think a lot of it has to do with some doctors being so full of themselves that they don’t want to explore what can be wrong.
That may be part of it, but they are also full of fear of legal liability as well.
you got that right. The world is full of narcissist.
Doctors don’t care to listen anymore.
@@eddenoy321 If they understand how the human body works and knew how to be objective, they wouldn't have fear of legal liability.
@@eddenoy321 The special protections for doctors that lead to the lack of fear of repercussions or accountability is what makes this problem particularly excessive in America, no?
Medical care has dropped extremely low in quality over the last decade+
Maybe something to do with Obamacare?
It’s very bad in Canada as well
Char, I agree! I remember in the early 1990's I was young, getting started in life and had excellent health benefits through my job. Also, we were hearing that it was important to be a partner in your medical care and that you were part of a team with your doctor. Preventive medicine was getting big, as well. It was all very positive and encouraging. Then, in the last 10-12 years something changed.
@@twistedinnocence8617it's because the healthcare system only cares about money, not patients lives. That existed well before Obamacare.
@@twistedinnocence8617 you are not very well informed are you, sounds like you’ve been gaslighted by Fox News
My child works in a hospital and she said NEVER leave a family member alone.
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True that.
Sort of tough to do when visiting hours are over though.....
Or family member is having surgery and nurses won’t let you see them “until they are comfortable” which can take over an hour.
@@NicolewithouttheH That is because the patient is in the recovery room and they are being closely monitored while they are coming out of anesthesia.
This happened to me more than once, and led to severe health consequences. Thank you for bringing awareness. However, I don’t believe that the Dr’s who do this will ever change.
They are changing. There are a couple on youtube that actually care. And they honestly tell you this stuff wasn't taught in medical school.
@@nancyfahey7518 if you read what Shiela Shields said slowly and accurately, she said, "Those type of Doctors" will never change and she is 100percent correct 💯
@@nancyfahey7518 Are you talking about "free" American doctors who act in a generic manner,
much like spell-check for sick people?
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Of course not, we only live in our bodies. They are book smart and healthy people don't ask questions
Even psychiatric/psychological symptoms are real. Suicidal thoughts, depression, panic attacks, and debilitating anxiety are still really serious. Diseases of the brain should be taken seriously too.
Problem is psychiatry’s specialty is symptoms that are “ all in your head”. The day a Neurological Biomarker is used to diagnose and treat these conditions, is the day psychiatrists will be out of a job.
Yes mental health is important. No this is not the topic. And the discussion of mental health in this context just exacerbates this topic of medical gaslighting. I had a gigantic tumor in my neck. I had cancer. It was not anxiety or addiction or any other mental disease. I had thyroid cancer which is 100 percent treatable with almost no chance of reoccurrence but I nearly lost my job because I was so sick I couldn’t work…not to mention I nearly lost my life to something so treatable. I didn’t need Xanax I needed surgery. And I didn’t have anxiety when I had cancer but after being treated so horribly with only medical gaslighting I have anxiety any time I need to renew my thyroid medication with a doctor visit.
Why is the responsibility all on the patient to do the work? How about the medical community step up and take steps to recognize this is a problem and improve their approach?
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Agreed
💯
Exactly! It's not the Patient's Fault that the Doctor Misdiagnosed them!
Or Diagnosed them to Gaslight them later, yelling that surely they were mistaken in misremembering that such a thing was ever diagnosed.
It's awful that, as a patient, you should now always ask that something is to be put on your charts. IF something is denied, to write it on your charts. You are legally allowed to see your charts, too, to ENSURE they've done it.
It's awful that we have to constantly macro and micro manage our own doctors to ensure they are actually doing their jobs. It's AWFUL! However, it is undeniably the ONLY Defensive Reaction we have against these Bad Doctors, until we find a better one or hope to.
They won't just like policing won't change it's abusive ways toward society. Power like that corrupts and they will think they are above modifying harmful behavior. They must face the threat of prosecution and real world consequences in order to change.
I am a senior and had a major surgery and was very ill after I got home. My husband took me to the doctor and he just gave me a pill and opened my wound a bit and sent me home. A few hours later hubby had to call an ambulance. I was in sepsis and transferred to a big hospital. He should have never sent me home, almost died.
wow.
Thank goodness you’re alright.
@@elizabethmcleod246 Thank you.
My dad had sepsis couldn't figure out what happened. Spent 6 months in rehab, FINALLY did the awful painful spinal tap 2 yrs later. He was walking around with cancer 2 yrs. Why he didn't say Don, I don't know what is wrong let me give you your reports see if an intern or Infectious disease But NO, it would make him look bad. All these decisions ripple down to all who suffer and they will be alone face to face with God. As for me so many medical errors I should be a billionaire if I sued. It's been bad. I had an old gastroenterology who did a bad thing to me. His word against me with brain injury. NEVER GO IN WITHOUT THE NURSE OR SOMEONE.
@@annmarievalenti9264 Annmarie, I agree. It’s appalling that we can’t trust doctors anymore.
How are you doing?
Not all doctors graduate at the top of their class.
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Still surprising that they graduated at all, to be honest.
They studied for so long to do what? Not use that information to actually help patients? To simply dismiss them? It's all suspicious, really.
I have experienced the worst medical gaslighting especially from gynecologists. It is just devastating. Thanks for validating us!!!
This has been happening to me for over 25 years. I’m now disabled because of it.
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Doctors disabled me as well.
Me too. Gave me an extremely dangerous antibiotic without informed consent, it nearly killed me, they altered the medical records to cover their tracks, and most of their colleagues covered it up or denied it. It’s genocide.
I am sorry to hear, I understand.. You will be in my prayers today 🙏
I'm so sorry. for 24 yrs I've been treated really bad by many doctors and I got much worse from them not helping me find out whats wrong and blowing it all off like I'm no body and they're some god. Judgement is on the way as I write this. Everyone will stand before the Lord God Almighty and be judged.
This right here is exactly why it took me 9 years to get a diagnosis of Narcolepsy. At the time he told me without hesitation, "This is anxiety. It's in your head, and you need to find a psychiatrist who knows how to do their job." I found out later that my MSLT study results and clinical presentation were well within the diagnostic parameters. He was pissed off that my psychiatrist made the referral. It took me a decade to get the diagnosis which is required for insurance to pay for treatment. I went through high school and undergrad with untreated narcolepsy and suffered horribly.
If you are working in medicine or thinking of working in medicine and this is how you plan to treat your patients - do us a favor and STAY OUT.
He was PISSED that someone actually HELPED you get confirmation so you can have inner peace and get better to a degree? DUDE, please tell me you have or are working with a lawyer pro-bono to get that doctor OUT of the Medical Field. He literally wasted 9 years of your life because he misdiagnosed you for THAT LONG. Certainly the Hospital has records of your visits still? Maybe your Psychiatrist has your back in the matter?
I went to doctors repeatedly for years asking for tests to see if I had chrones, lupus, or anything like that because I had IBS and swollen lymph nodes all the time. They just told me to try changing my diet. No tests ran at all.
No one took me seriously until I got very underweight and was always shakey. One blood test showed I needed my thyroid removed.
I went to the ER with intense chest pain and they assumed it was an "anxiety attack". Xray showed it was pleurisy.
I hate doctors at this point. They cost a fortune, dont care or listen, treat me like I'm a hysterical teen instead of a mid 30s woman. Diagnose you before running tests half the time. Its infuriating and exhausting.
Right. At this point in time, I'd rather Die Happy with unknown issues, without expending extra time clawing and trying to figure out what issues I have. At least if I die this way, I don't leave a higher debt for my family than if I died at a hospital. Trying to get better is thoroughly exhausting in America. It's quite a phenomenon of how many doctors really don't care.
@@Mary-Ann_B_Mabaet I thought i was the only one who felt this way. I have so many bad experiences with doctors where you pay them alot of money get dismissed, embarassed and talked to like a child and then they dont even find out what is really wrong with you. Might as well stay home, pray and avoid the debt and abuse. Most times it just made me feel worse than before with no progress
I've been going through this for about 5 years .It took me 8 months to see a do nothing neurologist.
Wow! I am waiting to see a Neurologist right now and have been waiting for 3 weeks. I will continue to call until I get scheduled.
Took me a year. The neurologist then just screamed at me because I refused to just take heavy duty tranquilizers for the rest of my life. So she pumped me full of tranquilizers via injections. I lost all cognitive function, the use of my left arm, control over my bodily functions. On top of my severe disability that she refused to treat... never regained the use of my left arm and I still got the original disability.
@@LittleKitty22 Please tell me you went to a lawyer for some pro-bono work and consultation! That's AWFUL!!!
@@Mary-Ann_B_Mabaet Lawyers don't do pro bono for cases like mine, they only do it for cases involving children, especially welfare breeders and woke cases. I tried to find a lawyer on a no win no fee basis - been trying for years, no one wants to take my case on. They only take cases involving birth injuries and brain injuries now on the no win no fee because that's where the big money is. No one gives a hoot about a childless woman that's been abused by doctors and just wants to be able to get up again, never mind sit and walk again. There's no money to be made on my case.
@@LittleKitty22 Damn. I guess it depends on the Region then. It's sad how this is becoming more and more common. I'm sorry that you've no luck. I hope you keep finding someone. Did you have a consultation on how much it WOULD cost if you front it yourself? At the least you could see an estimate of: (a) Upfront Costs, (b) Potential Estimates if you Win the Case, and (c) getting someone that shouldn't be in Medical Practice out of a Job from hurting more people. If you can manage c, there's one evil soul out of the medical field.
I'm glad this is finally being reported on. And did you all hear about the nurses getting angry with the court about that one guilty nurse who killed her patient?? This is why people shouldn't blindly trust doctor's and nurses. They need to be held accountable and there should be an organization to oversee what they're doing. They've literally been getting away with murder for years. They make sick patients sign waivers saying they cannot sue for medical malpractice too 🙄 why was this ever legal??
Free enterprise, what everyone loves soo much, ok than
That's disgusting and dangerous
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Happened to me so much past two years and still going through it !!!!
This has happened to me so many times. If it wasn’t for me advocating for myself and being very tenacious I don’t know what would have happened. I saw 10 ob/gyn’s when I was younger. I had endometriosis and knew I had it. One Dr said I had “no right” to be in so much pain and two others said it was all in my head. I had it so bad I ended up having a hysterectomy at age 29. I wish docs were better educated so they won’t do this any longer.
Omg🤭
This is sad and horrible!!🤦🏻♀️So sorry you went through this!!
@@nellyjones1928 Do you know what they say that that doesn’t kill us makes us stronger
OMG. It is the attitude of "I'm smart, you're not."
It is stonewalling!
@@graceelizabeth4070 Truth
This happened to me and a few other women including my daughter at the Christmas Valley clinic in Oregon. The provider there told me I would never have a heart attack. She wouldn't listen to what I was going through. Just told me I needed to see a behavioral health specialist. I ended up having a massive heart attack with a 99% blockage. She does this to almost all the women out here. She won't send them for testing or to other specialist. She just tells them to talk to the behavioral health counselor. Now I'm fighting cancer and no longer going to that clinic.
Please try to work with a lawyer pro-bono to sue her and get her fired. Not only leave but save another soul from going thru your despair, if possible!
You can get a second opinion and you get accused of dr shopping ! And each facility is electronically connected! So any note many side notes note in section of the chart for physician only - snake bites
SOOOOOOOO VERY thankful this is FINALLY being addressed because ive dealt with medical issues since I was a very young adult & my symptoms went misdiagnosed as being "in my head" or stress related" for 8yrs until I was FINALLY diagnosed with Myasthenia Gravis, premature menopause, osteoporosis & then Thyroid Cancer....probably from ALL of the WRONG mental medications+other unnecessary meds I DIDN'T TRULY need🤯😭 ! & NOWWW I have a true phobia of Drs, hospitalizations, etc... that I'd rather live in agony than risk being gaslighted EVER AGAIN!
I’ve been left traumatized by the deliberate gas lighting of doctors to. It should be deemed criminal that we are brushed off.
Same with me as going to the doctors is a nightmare and I'll live with the agony as I've have been as the doctors just don't care. I feel they want me gone from this earth. Both sides of my family thinks it's me that I'm not ill cuz the doctors weren't finding what is wrong. Now many yrs. later a doctor sent me for a CT scan and my results was a list of many serious illnesses and let me know through "My Chart" not even call me into the office to go over all the things wrong with me. What does he do he sends me for tests that doesn't have anything to do with all what is seriously wrong with me that I already had with other doctors. I'm done with doctors! I was left with blood clots after major back surgery for about 11 years and they kept telling me I had nerve damage is why my legs were in so much pain. Only reason a doctor found the blood clots is cuz I needed surgery for a cyst on my ovary two Gyne's watched for 8 yrs I needed clearance for the surgery. The doctor told me when I woke up from surgery he broke the cyst inside me getting it out and it had cancer in the cyst.
Same. I vomited everything one day, including water. I was rushed to an ER and given an IV. I was told it was the Stomach Flu. The Stomach Flu typically lasts no more than 8 days. After a month of having aftermath symptoms which included having lesser appetite (only half of an Appetizer Amount was what I could feel comfortable eating for a meal), extreme lower abdominal pains that come in and out at bursts, and minor pains near the Sternum, I saw a GastroIntestinal Doctor.
The Doctor told me he didn't know what was wrong with me but he said he didn't want to do surgery on me to find out. (Although, I was confused at the time about that statement, I wasn't entirely suspicious of it as I was just wanting answers about the issue at hand. Now, I am suspicious that instead of tests, "surgery as the only way to do a test" attitude is 100% suspicious.) So, he gave me pills to try out for 2 months. He said that that was the most obvious option we could do because he didn't want to do surgery on me. He said he wasn't sure it was going to work. He said to keep taking them even if they didn't work.
It was Omeprazole at 2x the OTC Dosage. I was told to take them 30min before a meal, 1 - 2 times a day. I was told that if I wanted to stop taking it, I must first take it 1 day at a time then every other day -- to slowly ween it from my system.
At a Month, I developed Urticaria or Rashes. My Doctors believed so heavily that I developed an Allergy. I didn't believe them so I asked for a Skin Allergy Test. They lied to me. They said that they couldn't give me an Allergen Test because they were only reserved for people with severe symptoms. I found out that they are like $60 - 300.
I did not know that, if denied something, I NEEDED to REQUEST that it would be put on my Charts. My friend looked into the Medication they gave me and apparently, I had been experiencing every single issue on it. There are some that we couldn't be for certain; however, the incident left me needing a cane and walking slower than Grannies when I'm not at home, which leads me to believe that the incident also left me with microscopic bone fractures. It was painful. I felt like I was a living broken Glass Statue and every movement just irritated all pieces of my existence. I stopped taking the pills immediately after my friend figured it out for me. The next phone call was the most airheaded call ever -- I told my Doctor that I've stopped taking the pills as they have caused me the extra issues and then she responded with "Alright. Please stop taking them." and I'm like... "I said I already did." VERY INFURIATING.
Another incident was when my doctor finally diagnosed me with "Asthenia", a generalized term for people with EXTREME fatigue and weakness that can impact basic things and their day to day living and that lasts for over 6 months -- typically it means the patient has a lethal underlying issue(s) that may be very complex. She FINALLY diagnosed me after 7 Years of having deteriorating health and said that she'll prep tests for me and recommendations. After I moved then phone called her back to talk to her about in 2 years later, she completely aggressively kept saying how it wasn't she who diagnosed me. (To be honest, I didn't question why she never called me back about doing those tests then as I was busy with the move and all. But now, it makes sense why she hadn't followed through with it!) Then she downplayed that she wasn't going to give me a Doctor's Note for "Simple Fatigue" to "Just get out of Jury Duty". Today is my 10th Year since the beginning of the Deterioration of my Health and I agree that I do NOT EVER want to see another Doctor due to Rampant "Commonplace" Medical Gaslighting.
It's been fcking sickening. Going to a Doctor, just to get Mental and Emotional Mistrust of them and the System as a Whole, AND needing to use a Cane. We go to Doctors to be diagnosed and to have treatment, NOT to come out WORSE THAN BEFORE! It's quite SHAMEFUL!!!
It's 🤯 that every reply to my comment is from WOMEN who have EACH had EXTREMELY SIMILAR things occur to US from our "trusted" medical "professional systems... My 🙏 are with all of you & may we all be showered in blessings of peace & painless, stress-free days 🤗
My question is what happens to these doctors after they've run someone out of there office, to later find out that patient had a serious condition
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Absolutely nothing
Doctors are above the law.
@@elizabethmcleod246 And Politicians. And Corporations. And Influential Rich Families. "Rules for thee but not for me" crap is BS.
Founding Fathers probably disappointed from their Graves right now! We're supposed to move forth from the ires of the past and be better than them!
Just left the hospital and I definitely feel like they did nothing the medication they prescribed me is not taking the pain away
I’m sorry to hear that 😢
That's probably due to heavy regulations and not the Dr.
Narcotic pain meds are really hard to get prescribed in 2022.
I would get a second opinion. A different Doctor or even the ER maybe more helpful..
It was the ER Sookie Sookie
It's hard to run into great doctors that pay attention to their patients rather than brush them away like our voice doesn't matter because they practice medicine and we're just the patient!! I've been through this quite a few times and left an appointment crying in disbelief. Meanwhile, it makes you think you're going nuts!! It's definitely a form of narcissistic behavior on their part. Thanks God for all the wonderful doctors that pay attention and save lives..❤️
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They are taught to put a band aid on things not to cure. It would be a loss to big medicine if all people were healthy. Many doctors have been thrown in jail for curing people.
In their minds... patients are not people.. they're "specimens"..
they told me I was "attention seeking". I said "everyone who comes to this office is attention seeking." Like he is going to insult me because he doesn't know how to diagnose? when I was young we went to a doctor and they knew how to fix stuff, now they send you to 3 buddies and no one knows what is wrong after thousands of dollars of tests.
I'm a man but have bipolar disorder and have loads of experience with this. I've been treated like I'm hysterical or overdramatic. I had cellulitis in my foot, thought it was a blood clot and suddenly got the "check between the toes for injection marks" and I've never done IV drugs.
It happens to all...all the time...I'm on SSDI and treated like a POS at all doctor's appointment... anyone that wants to start a group to stop this let's get together now...it needs to stop... hurting in FL and the care sucks
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Yup. Every time I went to see the doctor about stomach pains I'd explain my problem and all he did was listen to my lungs with his stethoscope. Not the first time I've been ignored! Once I had pneumonia and I was sent home repeatedly and told to take Motrin. Once I broke my foot and the doctor said not to raise my arms above my head, and didn't even look at my foot. I stopped going to doctors in this country.
See a gastroenterologist. They will do more thorough testing
This happened to me after I was diagnosed with Diabetes. My Doctor at the time told me my blood sugar was so high because I was eating a lot of carbs. I was so sick I couldn't even eat lettuce. I went to the ER that night and found out I was Type 1 not Type 2 and would have died if I listened to that Doctor.
I would love to be interviewed for this. I have tape recorded conversations that the hospital refused to listen to and took the doctors word even though I could prove they were lying. I almost killed myself after suffering a massive stroke because of the confusion, disrespect and medical gaslighting they inflicted on me. They ignored that I was being poisoned by gas in my home and told me I had anxiety, that I was manifesting stroke symptoms that were real, that I was either faking on purpose or because I was crazy my speech deficits. None of it was said to my face until years later when I discovered the records after being so confused and mistreated. I have had at least a dozen CT scans that I did not need because of lack of information and medical gaslighting. I got one doctor to admit that he committed malpractice because he believed and respected the other doctor and I was the first patient he saw out of college. I’m permanently disabled and I don’t know if I could’ve been fixed if they had and screwed me over so badly
I’m also suffering from a rare and test and all my rotation that for the last three years has been called constipation as I deteriorate and now I am awaiting gut reconstruction surgery because I finally hunted down a doctor that could help me. Again, at least 10 CT scans that I didn’t need.
Unable to walk and suffering from hallucinations and unable to speak, they accused me of having anxiety. I have been breathing gas in a gas leak in my home for six months and had gone 12 times to the ER to be told I have anxiety every single time. Until the day we found the gas leak and told the hospital and we finally got me out of that house and treatment before I died. I didn’t even recognize people that last day.
I have had good doctors trained me how to communicate with doctors so that they will not gaslight me. It’s so fucked up and I want to blow the roof off of all of this bullshit. I have two doctors on tape saying things that go against the American Stroke Association, Hyppa and just generally being assholes to me. And nobody will listen to them because they just don’t wanna believe me. They just want to keep me in the box that I’m crazy and their doctors couldn’t possibly be wrong and evil.
@@spreadgoodnessday Unreal neglect.
"Millions of Americans affected by 'medical gaslighting' every year" so let's #ConvinceItForward
My adult congenital heart doctor did that to me in 2016. It took my surgeon and my current pediatric cardiologist to figure out what was causing my symptoms. Thankfully I was put on the right medications. I am doing so much better at this point in time.
This is frighteningly common. It's happened to me many times and I consider myself to be a good advocate for myself.
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Happens all the time since I crossed 40. Everything is dismissed as age related without much investigation
I am a RN & have seen it done to others & I have also personally experienced this as a patient! Very sad!
I have serious auto-immune diseases. I suffered my first full-blown stroke at age 39 while I was a single parent to my then, 7 year-old son. I'm an MPH and I'm so tired of lazy corporate-controlled physicians. They refused to transport me to the hospital- thankfully I self-treated better than any care they were willing to give me. Thank goodness I'm able to properly triage, diagnose and treat myself, to save my life. We must have Universal care. We must keep Big Pharma and corporate interests out of curriculum development!
Omg I just watched the rest of the video. I was definitely gas lighted. One of the emergency room doctors said they saw something in or on my heart that looked weird but he kept telling me that I wasn’t being still. I was nervous but I wasn’t shaking or trembling. I was as still as I could be. He said whatever he can’t sit still so whatever and they wheeled me out the x ray room and back too dealing with the pulmonary embolism’s. It’s been 5 years an I’ve had some weird symptoms over the years. The blood thinner is crazy. I’m 40, I was 37 at the time I have kids needed to work but not much too offer when everything cuts or hurts you. I’m not a college grad, my parents told me they couldn’t afford it. I could understand if they really couldn’t afford but they could at the time. That’s another story lol, but this is all wrong and does happen all the time. They love you when you have that great expensive insurance and people who have a lot of cash money. The system is flawed in so many ways
ruclips.net/video/3sVDOISpRko/видео.html
I literally had a gynecologist scream at me on the exam table that where I was showing him my pain was was not what I said on the phone. I had already had 2 surgeries for endometriosis and was in severe pain because he had moved my appointment twice and I had to wait two and half weeks to see him. I didn’t see him again and also just quit telling them I was in pain. I was having ovarian cysts and just dealing with them. One was so bad I woke up crying from a dream of having a baby but it was the cyst rupturing. Also have arthritis and another doctors only option was cymbal take, an antidepressant that made me into a drooling zombie. Tried another doctor, first words outta their mouth when I told them I was having extreme shoulder pain was,you guessed it: “ We don’t prescribe pain pills”. I answered right back that I didn’t want any I just wanted to know what doctor to go to. Ended up having shoulder surgery for that one. I think the main reason for this is the DEA’s misunderstanding the CDC’s “guidelines for pain medication. They didn’t take into consideration that there are ppl who live in pain everyday and their medicine is being taken away, and they are either not living a life now or killing themselves. The pain news network is a great place to get news on this subject.
Happens a lot to elderly as well
I can relate to you on so many levels. I am a woman and have heart symptoms I still have been suffering and I feel like I'm closer to death every day. I go to the ER and I get no help other then told I have anxiety
Keep trying . My sister had heart surgery a few months ago . They found a random thing but it took several doctors to get there.
What can someone do if they are experiencing this, but cannot afford an attorney? Also, finding new providers is limited/ difficult because of health insurance issues.
I had to hire a registered nurse consultant.
WE CAN'T AFFORD MEDICAL CARE, EVEN WITH INSURANCE. Ffs, why is this problem being ignored by our lawmakers? We definitely can't afford to go to multiple doctors until we finally find one that will listen to us. Smdh
You go abroad and hope for the best
biofilm medical upcoding they are in cults this is an OLD GAME
Yup, been there done that, my entire life. Although mine started with my adopted mother telling me I was just saying things hurt to get out of doing chores etc. so I was rarely taken to the dr. As an adult I just kept pushing myself like I did as a kid/teen. Eventually I was diagnosed with Ehlers Danlos Syndrome at 33. A genetic connective tissue disorder. That was 2008, by the end of 2010 I had to “medically retire”, as I called it, due to how bad my hands were. I’m now 46 with no cartilage left in my knuckles.
The other issue took 2 decades to diagnose & started after my youngest daughters pregnancy. I was afraid to eat because I would spend the rest of the day in the bathroom, & yet I kept gaining weight. Finally diagnosed with lymphocytic colitis & autoimmune gastritis AKA allergic gastritis in just the last few years. Was then told we would probably never figure out what was causing the allergic reaction in my stomach, throat, & tongue. Dr figured out the allergic gastritis because when he went to do an endoscopy last August he couldn’t get the camera down my throat it was so swollen. They had to use a balloon to enlarge my esophagus. I figured it out, cause it’s the one ingredient I’ve had trouble with, in multiple forms, my entire life. Yeast, vinegar causes the worst reaction, I guess because it’s fermented. But yea, not new to medical gaslighting. Been dealing with it my entire life.c oh! And most people don’t know this, yeast has MSG, monosodium glutamate, in it so I have to avoid that now also. I’ve been able to wean off the steroids, which was the only way I could eat, I’ve lost 44 pounds, & no longer spending hours in the bathroom if I eat. Although I can still accidentally eat yeast as companies are allowed to list it as a natural ingredient or spice. Now, if that happens I’m sick for about a week & have to eat only eggs, tortillas, & some cheeses until my “system” is back to normal. As much stuff as I’ve figured out ON MY OWN after being medically gaslighted, the amount of research papers etc. I’ve read, I should have an honorary dr title! J/k would be funny though!
Had thyroid out because Dr didn't tell me to go to an endocrinologist. Went to him every month, never gave me thyroid meds every month. 18 months later had a thyroidectomy. My life hasn't been the same as he wasn't hearing me tell him I have tremors like a 90 yr old, heart palpitations and anxiety with complete exhaustion. Dr. said I should see a therapist for anxiety, I told him I researched I have hyperthyroidism. 2 yrs I suffered with insomnia, choking in my sleep, still no help with that. Ended up last month, get an endocrinologist he said you have hyperthyroidism and he lowered my dose to 60 MG. I was on 175 MG. 125 MG. 90 MG. now 60 as no one 3rd Dr listened because hyper after removing the thyroid is rare. I was dropping weight so rapidly, because my heart never stopped racing, (thyroid med was so high)but I have brain injury and I am allergic (opposite reaction) so I don't trust Dr's as they DON'T HEAR ME! Been sick over 20 years.
look up Accute Infectious Thyroiditis, biofilm, medical upcoding, the longer an infection persists the more profitable the treatment may be in the future with reported 33% kickbacks between Medical doctors status quo, spread the word to chronically ill
It's been happening for a long time, I kept telling my obgyn that I felt so sick and I thought I was pregnant she said there tests showed up negative and she thought I should get on hormone therapy, 2 blood tests later that I took on my own at a clinic they determined I was past 5 months pregnant! Thank God I got a 4th opinion on my own and refused to accept that it want just in my head. But it's not just happening to people of color it's everyone! My mom in law was misdiagnosed so many times cause Dr's would not listen and by the time they did she had cancer that was so far gone that she died in 3 months of being properly diagnosed by a Dr. That would finally listen! Enough is enough! This absolutely needs to change!
ruclips.net/video/3sVDOISpRko/видео.html
wow.
I’m so so sorry this happened to you. It’s appalling
My mum, went to the ER for the first time in her life complaining of chest pains they would do nothing for her, treated her like she was crazy. She insisted on being transferred to Amy Sinai where Dads cardiologist practices… they begrudgingly gave in. Upon arrival at Mt Sinai they discovered she needed a quadruple bypass to save her life. Had she gone home she would of died.
Second opinion - lol. Once the second doctor collects your medical records they are biased by the previous doctors' records. I suggest every person demand your medical records, and read what has been written about you. I was stunned when I read through mine. One untrue statement in 1977 affected me for over 30 years, compiling untrue information. It was if I was reading about someone else - not me. It was shocking. For years I wondered why doctors were dismissing me and not taking my issues seriously. I finally have a trusted Rheumatologist, but I cringe every time I have to go to another for something. The lies in my medical records has me in fear. People in general are poor listeners, and that includes professionals who are paid to listen. They hear a few things, fill in the blanks, and then write down things that were not said. Unless you read what was written you have no idea if you were heard correctly.
"Use your voice" only works if the other person can use their ears.
When I was 17 yo, I had weird symptoms and didn't know what was wrong. When I went to a few doctors, they told me I was a hypochondriac. It turned out that I had physical symptoms of anxiety and distress and I've spent the last 15 years not getting help.
Since 2016 for me. after my Dad past away now I been getting treated like the bad guy.
So after years of extremely painful periods, one week I ended up with abnormal heavy bleeding and pain that had me in tears and I have a HIGH pain tolerance. I had been to the ER and they had me follow up with my OBGYN two days later. When I got to the OBGYN I was in tears from the pain and had screamed in the car the whole way there.
The OB sent me back to the ER where a young male doctor explained to me (28 years old at the time) that women “can have something called cramps when on their period” and the proceeded to explain to me what happens during a period…
The nurse suggested I talk to my OB about endometriosis because I had all the classic symptoms and it’s hard to get diagnosed because it won’t typically show up on scans and it’s hard to get women’s pain seriously. She also confirmed that the doctor failed at his job that day.
Six months later I had surgery and confirmed endometriosis in FOUR locations. I had four incisions.
The medical system is a rough place and I work in an ER!
"Use your voice". Yes. I do not fail to speak up when I am not being heard, only to find my concerns are still being brushed off. Now I have a second tier backup.
Taking the tone of a very annoyed mom, I demand, "Look at me! " Wait for eye contact. -Not a quick glance but actual eye contact. "Did you hear what I said?" I ask for proof, "Repeat it back to me." After being sure what I said was registered, I say, "I am not the first patient to bring up this, someday, some doctor is going to hear it and do something about it", or words to that effect, adjusted to the specific circumstance.
It has become clear me that treatment will be put off long enough for me to die, at which point it will be natural causes. But someday this bizarre iteration of medical care will be repaired.
They call me noncompliant. Not true!!-unless asking questions is noncompliant.
I call them Keystone Cardiac. At least I have a sense of humor.
Yup that's exactly what I'm going through! Asked a few questions so I am now "non-compliant and violent". I am severely disabled and bedbound... Been waiting for treatment for several years (UK here), I also have no doubt they are keeping me on a never ending waiting list so that I will die off. I have been deemed an "undeserving patient" because I have no children.
Happened to me. 16 years of crushing migraines, always dismissed as peri or menopausal migraine, with a prescription for triptans. One day, I had a major seizure while shopping. I woke up in the ER to a doc calling my name. He informed me that I had a seizure, and needed an emergency craniotomy to remove a 7.5 cm (tennis ball) meningioma.
biofilm look it up
Thank you for your article❤
I could’ve died from extreme abdominal adhesions, suffered two years, scared for my life, I switched health insurances. I had emergency robotic surgery w/in two weeks. I now have scarring…
I was forced to change several doctors thanks to medical gaslighting. I also ask too many questions regarding nutrition they can’t answer. I checked my last GP out, she had five stars… I’m flabbergasted, filing a grievance… I’ve got diagnosed ADHD for 27 years but now I can’t get a psychiatrist to continue with my low Adderall regime and no other referrals who truly know their craft. I was diagnosed two and a half years ago as HS autistic. Psychiatrists almost killed me with bipolar medications🤯
I embarked on my own research..: healed Big Pharma’s polycystic kidney disease in five years with FOOD.
Grateful for hypnotherapy, EMDR, biofeedback, excellent books, etc.
Naturopaths should be fully covered by HMO’s.
It has happened too me over & over.
These are good ideas to follow, but what if you can’t go to any other doctor because the one who won’t listen to you has to be the one to give you an authorization to see another doctor. You can’t afford to see a doctor who is not in your insurance plan and some doctors do stick together and will agree just to have the other doctor’s back. I’m just saying you can’t win for losing. I don’t trust too many men doctors for women. And unfortunately the majority of doctors are men.
this is exactly why I avoid HMOs, if given a choice and stick with PPOs so i can see whatever provider i need without a permission slip
I was going to suggest the same re PPOs so you don’t have to go through the referral nonsense. Those referrals can take way too long let alone little choice in the doctor.
I had a friend who had all the symptoms of diabetes. We his friends and his family sent him to the doctors. He told the doctor that he had the symptoms of diabetes. The doctor told him that a thin, young man like himself could not have diabetes he was 29. The doctor did not send him for tests. He did not take any test in the office. He did nothing. My friend died from a diabetic coma that, weekend.
My friend did not tell anyone the name or the address of the doctor he saw the Thursday before his death. My friend’s whole entire family and community wanted to sue the pants off that doctor at least ostracize the doctor. We would get the word out through the community to not go to this Doctor. We would told people if they were patient of this doctor to be very cautious of his diagnosis and treatment, or lack of treatment.
Been going on for decades. It's not really a gaslighting problem, it's an incompetence AND corporate for-profit medicine problem. Doctors have too many patients and are pressured not to recommend more expensive tests. Americans pay huge premiums for insurance they can barely use. How do you get a second opinion if you're in a HMO? The only recommendation provided here is to work harder to get bad doctors to listen. No mention of the $$$$$ it costs to see numerous doctors while you may have a life threatening issue, or ANY accountability for the docs who are refusing to treat patients appropriately.
Yes....experience gas lighting with several physicians in NYC. One of them, even lied on record so SHE could committed insurance fraud. I immediately canceled them ALL out. This video is right on!!!
This is a huge problem, and it is growing. Especially if you have many years on you. Some one needs to step in.
I recently showed up at Baptist Health medical center in Little Rock, Arkansas, after seeing parasites in my 💩.
They obtained blood and urine samples, never looked at the poop, and they discharged me with a diagnosis of Substance Abuse Disorder after they discovereing my routine medications in my urine and blood. Several doctors came in. One of them said..."we don't think you have this".
Someone please tell me -when did having worms become a subjective matter?
They refused to do a test on my stool.
Is this even legal?
I unfortunately 100% agree. I have been sick with systemic lupus & FSGS since i was 15yrs old.I am 35yrs old now. I know my body VERY well because me not being aware when becoming sick at such a young age, could have been my death sentence. I can't tell you how many times Drs have tried to speak down to me or play down my symptoms. My grandma being a surgical nurse taught me, use my voice. It comes with the territory of being a women AND of color. Its sad this is even still an issue in 2022. This is the very thing that made me go in to nursing school & becoming a Nurse. To treat people the way I unfortunately a lot the times was not.
hat off to you for becoming part of the solution! after being gaslit by many (especially gyn) doctors to tragic results, i have raised my own daughter to know and understand WE are the experts regarding our own bodies, and if a doctor disagrees with that, find another doctor.
I hope there will be a lot more nurses and doctors like you. ❤️
Hell in white as white can be, typical white male and it took me 3 years and 5 doctors to fix my heart issue at 26. I needed a damn pace maker. Im 33 now going on 34 soon, doing better than ever.
How interesting to see videos on medical gaslighting. This has happened to me more than once delaying the care needed and leaving me to deal with the symptoms and at times, the pain for months or years longer than than necessary.
I have all the symptoms of Thyroid problems but they don't do anything because of my hormone levels! Losing hair gained weight nails look funky. Every thing . They only do one type of test and don't do other hormone tests. I'm disgusted.
Unfortunately gaslighting DOES happen way too often.
When my baby was born, he did not pass his hearing test. After discharge, two days later, we went back to get the hearing test and he still didn’t pass.
We were told to go see the ENT. Again, a hearing test was done and he failed again.
When we met with the dr, he told us to be prepare to have a child who is deaf.
I was flustered and began to ask all sorts of questions only to be made and feel that I was stupid and I was waging his time. I mean, I don’t know anyone who is deaf so I don’t know how to take care of someone who is deaf.
I left the appointment defeated. Months later, I was contacted by a state nurse who encouraged me to see the ENT at a different facility and guess what…. My baby failed all those hearing tests bcus he had fluid in his ear.
How is one ENt doctor able to figure this out on our first appointment while the other ENT doctor told us to prepare for the worst.
#worstdrever
Two different doctors (pediatrician & regular primary ) suggested I had a mental health issue that required therapy because of recurring cough. They said it was me seeking attention. One day I started coughing and decided to call the nurse line for my insurance. She became alarmed quickly and told me to hang up and go to the hospital because I was having an asthma attack. The emergency room doctor confirmed the nurses diagnosis. How these doctors treated me for years and couldn't come up with a diagnosis that a nurse was able to diagnose over the phone is baffling to me. And that's just the first time he could have killed me. He's no longer my doctor.
biofilm, medical upcoding, yeah I knew someone with sepsis gaslighted by an ent doctor, the doctor ended up catching the pneumonia that caused sepsis, it's a cultgoing back a long time allegedly
Seeking second opinions is expensive and takes a lot of time. It's very stressful not getting the help you need many times in a row. I've had the experience of medical gaslighting and was told I just have anxiety when I in fact had Guillian Barre syndrome following a severe case of Fifth Disease. I was in a wheelchair and multiple doctors said I'm doing it to myself, one said I had rheumatoid arthritis despite no evidence. It shouldn't be at the patient's financial expense and mental health to seek out a provider that will actually do BASIC testing and referrals. The "it's all in your head" doctors are taking the lazy, easy way out. Sadly you can "use your voice" all you want but if you have a doctor unwilling to do the bare minimum you will just wind up with discharge papers and a fat bill.
Only when it will start to cost the health system too much money they will get enough incentive to address this problem and make changes. It happened to me multiple times and had a devastating impact on my life.
Get a solicitor and start suing them!
Enough is enough!
Yes this is true, I'm a living example I almost died and was under a Asian doctor for 2 Years fresh out of Medical School... SMDH 😣
But that doesn’t mean that it was “medical gaslighting“. Doctors are human beings as well and some are better than others. People get second opinions all of the time and find out that their first doctor was wrong. Doesn’t mean they gave a bad assessment because of a race or gender.
@@tonytouch145 It ends up being Gaslighting when they give you an incorrect diagnosis then they make you think it's in your head when the symptoms don't go away.
ruclips.net/video/3sVDOISpRko/видео.html
Who cares if he was asian
I've had Doctors not only misdiagnose me but didn't even run any tests, and then charge me for the visit..
Found out later that I was dehydrating at rapid speeds and almost to the point where water wouldn't have cured it. I had to TRIPLE my intake of water..
ruclips.net/video/3sVDOISpRko/видео.html
For real! Bandaide or decide it’s psychological
They'll tell you it's psychological. I was told that from a physical therapist, while there's swelling in my knee!! 🤷🏽😡
I went to a pulmonologist , and he tried to say that I don't have COPD , when I was diagnosed years ago.
biofilm, dictors are in a cult, watch my public playlist, the gov was allegedly cloud seeding pathogens ALLEGEDLY
And the women say, "OH REALLY?!?!" We have been treated this way for years and years.
I have had an female internist gaslight me. By reading her so-called clinical notes, she is claiming i have diabetes, when i have NONE of the symptoms, have never complained of ANY diabetic symptoms. She also claimed that i have osteoporosis, without ANY of the symptoms. I have PTSD from a near crash from a multi ton teash truck. I no longer in her practice because of this gaslighting.
Absolutely! Even women doctors will gaslight other women. It is disgusting! I had some questions, the doctor told me I was a "girl half empty kind of gal". I was only asking a few questions that I had researched from other people with the same condition.
If we have a rare condition, and health insurance, we can't shop around. If the doctor is well known, the orher doctors wont take you, or they are afraid to go against the popular doctor who is the head of their department.
Unfortunately this is true for me.
Not remotely surprised, sadly.
Such an important topic, great information provided. Thanks to the nurse, to Dr. Simone Wildes, and to ABC News!
ruclips.net/video/3sVDOISpRko/видео.html
Dr. Wilde is absolutely right 👍🏽
ruclips.net/video/3sVDOISpRko/видео.html
OMG, I wasn't treated for years. I had an emergency away from my medical network. I ended up going to another ER. They ended up making a recommendation for the procedure I had been requesting for 11 years. in the meantime not getting the treatment has made things worse. I finally received the my procedure....
Get Second Opinions!!! If you can afford to pay out of pocket.
There are so many stories of patients being misdiagnosed or receiving a significantly delayed diagnosis because of doctors who don’t order tests to determine the cause of the symptoms. It seems like doctors are more likely to dismiss a patient’s symptoms than to look into it further. My question is: Why are doctors so reluctant to order tests? Are they worried about who will pay for it? Are they in a hurry and don’t have the time, or don’t want to take the time? I’d be curious to hear thoughts from people in the medical profession.
there is an old cult literal cult physicians are in one allegedly invilved in mass murder spreading pathogens causing epidemics robbing taxes etc., look up biofilm watch my public playlist
Taxes through Welfare (Medicaid/Medicare) pay for all mental healthcare, insurance just gets paid to be a moddle man there and with certain treatments, spread the word to chronically ill
Medical education should be free. the only people who should become doctors are the ones who are dedicated to treating the ill less fortunate. Not the doctors who only are concerned about money. doctors today can only be concerned about money because they’re in a lot of debt to become a doctor and stay a doctor and many of them became doctors for the money.
I have been dismissed and dissed a lot. One NP was esp nasty on top of incompetent. Dismissed me dropping things and falling doing yoga - was severe heart condition. Found out when I had a stroke. All my neighbors say the same with their doctors. My neighbor had pneumonia and was told she didn't, had to fight for xray which showed she had serious pneumonia. I wish I had turned in the NP.
They do this ALL THE TIME!!!! “It’s nothing. It’s all in your head. Just nerves. Should I set you up with a psychiatrist? You just want attention.”
Took 97 to 23 to get diagnosed with lupus! Oh you’re just overworked, new mom, dehydrated, not eating well and so on it’s sad
I’ve given up on pursuing my autoimmune diagnosis due to this very thing. Positive ANA and symptoms but It’s not worth the fight.
This has gotten much worse since the pandemic. They don't want to follow up on abnormal test results or refer you to a specialist when you really need it.
A tip I've heard is to ask the doctor to write their diagnosis in your chart. For example, if you go into the hospital in severe pain and they say it's all in your head, ask them to document that. This way, if they are wrong, you can prove it to the hospital board and hold the doctor accountable for their misdiagnoses. If they don't want to write that nonsense in your chart, they might actually do some tests or take it more seriously. Also, take someone you trust into appointments with you. It's harder to gaslight two people than one.
Watching this story and reading all these comments makes me so mad and so sad. I wish you all the best with your healthcare journeys. I always feel like I’m in a fast food line when I go into the doctors office now and half the time they get my order wrong.
People wait too long cause doctors won't listen until it's bad. I strongly believe the amount of people who are right that something is wrong is way more than those type of people that would waste a doctor's time. Basically they want to spend 10 min. with you and that just doesn't cut it. Being persistent is key but a lot of it comes in communication styles too. The doctors are going to assume you're just being a loud woman so if the message isn't getting across you can adjust how you deliver it.
This happens and it needs to be discussed and remedied.
A worldwide problem.
Meanwhile on the tail end of 2023, I can confirm this happens. White male with 14 years of documented illness that tends to cause severe pain if not managed well with medicines with immunosuppressive qualities. Started after my long-time provider started work elsewhere. The new one, she writes off my worsening symptoms with physical signs as severe anxiety. Tells me things like “It would be healthy for you to get a job” despite the fact that I am so debilitated from the absolute agony I am in, I can’t even maintain a regular sleep schedule. I have to sleep when the exhaustion finally outweighs the pain, which can take days and cause severe spikes in blood pressure, with equally dizzying dips.
What’s even more messed up… My condition is so obscure, no other general practitioner wants anything to do with my case. So I’m stuck with her. My quality of life has cratered. And in turn, I’m starting to get to the point where all I can do is self medicate with alcohol and risk severe complications - or lay around in pain, almost wishing for death.
What the hell kind of ethics are they teaching doctors in med school, these days…?
They teach them that they are gods - and they constantly reinforce that message. Newly qualified doctors leave university a bunch of conceited, abusive narcissists who consider anyone that's not a fellow doctor as "subhuman".
I have been through so much of this. In fact, I'm in constant pain for the rest of my life because of this. Etc.
I was gaslit and my injuries dismissed by both Cedars Sinai and UCLA here in So Cal. Now I have permanent damage, spasms, and difficulty standing. And I understand have studied anatomy for my profession! Doctors are taught to profile and discriminate to save their companies money.
Their patient experiences dept isn't helpful either. They aren't advocates. They work for the corporations that employ them, and are an insurance policy for angry customers who have been harmed or treated poorly. They are 'handlers'. Don't go to the patient experiences departments at either UCLA or Cedars, they will gaslight you like the Dr's and not do anything to help you.
Language evolves through the years. I get her frustration, but overuse of a very specific word like gaslighting leads to muddy communication.
23 years ,that’s how long it took me to get an Ankylosing Spondylitis diagnosis. Only because my spine fused itself on imaging did I finally get the diagnosis. Back pain is highly stigmatized and being a woman with pain, I was told I needed to just exercise, to de-stress, that it was in my head. I can go on and on. I can tell you this, never stop advocating for yourself. Healthcare is a paid for service here in the USA, you don’t like your Doctor go to one that will listen. I will say I wish I went to a University hospital sooner, anyone struggling with unusual symptoms or minsdiagnosises go to a Teaching hospital if you can.
A good example is myself I’m 65 years of age now, and I’ve always been grossly obese. I have never had diabetes. Every doctor I see including the ones I see presently think that I’ll get diabetes at any moment. It doesn’t hurt to have they do the test for diabetes constantly. As I get older, it is common in my family history, that we get something called age onset, diabetes. Where the pancreas gets too old and doesn’t function correctly. Doesn’t make any difference whether we are fat or thin. It’s the same despite the difference in weight. It usually occurs after the age of 75.
I think a lot of doctors don’t truly understand or bother to look up and refresh their memories about the details, the history and the nature of diseases that they treat or are confronted with. So the sicker you get the more apparent the disease.
I think the doctors believe the myth that if you exercise and eat whole food , you’ll be healthy.
I try to keep my doctors as long as possible. I believe that once they get to know you they won’t make such errors. I’ve seen doctors that I have been a patient of end up getting sick themselves. They thought everything was perfect because they followed that mantra of staying fit and eating healthy. You won’t get these diseases. If that was true, we would need Doctor.
I have Ehlers Danlos and every Dr I saw as a child told me to seek psychological help. After I fractured my spine (unbeknownst to me) my Dr told me I was too young to have a bad back. I didn’t find out about what had happened until I was an adult. I live in severe pain every minute of my life and I have unusual neurological issues that plague me; yet, I am still dismissed and told that my mental health is the cause of my conditions. I have almost lost my life several times because Drs did not believe me. I waited 41 years to receive my first diagnosis. I lived silently in pain as a child; afraid that I would be blamed for the pain that Drs told me was in my mind. I don’t understand why this behavior is allowed in the medical world. Something needs to be done to protect patients from this abuse. I almost lost my son because Drs wouldn’t believe what I was saying. And CPS almost got called because Drs didn’t understand one of my son’s symptoms. If the Dr doesn’t have an answer (if you challenge their “vast” knowledge) it inevitably gets thrown back on you, as the patient. It’s great to teach patients how to handle this situation, but it’s NOT enough. There should be policies in place that offer consequences to these Drs. They have endangered the lives of me and my loved ones because of their pride. I don’t know what the current statistics are, but at one point the number one cause of death was medical “care”. We research and put full energy into other causes of death; yet, we continually fail to address this huge issue. I truly do not understand. Patients should have the right to fight back.
Its in Australia too, I have a rarish disease and l have been ignored 9 times out of 10.
I suffer flare ups which I become very ill.
This gets ignored.