POTS: The Remarkable condition
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- Опубликовано: 14 окт 2024
- POTS is a remarkable condition. I say this for many reasons.
It is remarkable because of how prevalent it is in the general population and yet how little recognition there is for it by the medical profession
It is remarkable in that it tends to affect generally young, otherwise healthy and clean living people whose lives it changes overnight.
It is remarkable on how debilitating it is for the sufferer and yet how invisible it is to the outsider
It is remarkable in that it affects virtually every system of the body and patients spend months and months seeing every specialist for every system and yet remain undiagnosed for years.
It is remarkable in that it was first described in 1871 and yet to this date we do not have an effective cure for it.
POTS stands for Postural orthostatic tachycardia syndrome. When a patient with this condition stands up or even sits up, they will find that their heart rate shoots up preciptiously and they will develop very fast and unsettling heart palpitations. These may be accompanied with a sensation of severe dizziness and even blackouts. Given the nature of these symptoms, patient understandably avoid standing up and this results in deconditioning, poorer performance at work and school, social isolation because they simply cant do what they would like to with friends and family and a huge decline in their overall quality of life. These symptoms can develop overnight and we dont know why but we do believe that it is perhaps a genetic vulnerability that is triggered by an infection or trauma or a period of prolonged bed rest and deconditioning. I believe that the majority of patients with long COVID probably have POTS which was triggered by the infection.
As our awareness has improved it is becoming apparent that this is not just a condition which manifests when people stand, it affects them even when they are not standing. We now think of POTS as a disequilibrium between the flight and fight system and the rest and digest systems. These patients are always in flight and fight mode and never in rest and digest mode. They are always tired and wired. They never have a good nights sleep, they are always tired, they are troubled with brain fog, they are always bloated and nauseous because their digestion is left impaired. Unfortunately when these patients go to see their doctor, the doctor does not find anything structurally wrong and therefore after repeated visits asking for help, they are branded as having anxiety or being crazy. This lack of empathy and support makes everything worse and patients can spend several years being unfairly stigmatised and rejected in this manner by the medical profession, their colleagues and even family members. For me as a human, as a doctor and someone who looks after patients with this condition, this is heartbreaking. The reality is that with engagement, empathy, education and empowerment, patients do get much better. I dont think i have come across a single patient with POTS who hasn’t broken down in tears in my clinic when i have told them that i know what is going on with them. Everyone says the same thing. Thank god someone believes me.
This made me cry! I am 70 and have been sick for 50 years with no help. I figured it out myself but still have not gotten any help. Thank you for the validation.
"A good doctor is a doctor, who is patient oriented, not a doctor, who is protocol oriented." Dr. Gupta 2021. ❤️❤️❤️
I worked with so many doctors for 20 years. I have never seen such a Doctor like you who was a person who cares. It’s not a job, it’s a passion.
May you be blessed for speaking up and righting some of the hurt inflicted by doctors when they don’t listen or dismiss what they cannot fix with a pill
"Medicine without humanity is no medicine at all" very well said.
I have suffered with pots for over 50 years and was finally diagnosed 4 years ago at age 57. It was incredible to finally have a doctor who believed my symptoms were real, although he didn’t know how to treat it. I had to figure that out on my own thanks to the internet. Thank you for being such a kind & compassionate doctor. ❤️
How did you treat it if you don't mind sharing?
Can you please tell me your symptoms please
How did you treat yours? X
Amen sister! (me too!)
I have had POTS symptoms since I got chronic post viral fatigue syndrome (ME) in the 90s. Doctors told my parents to disown me as I was making it up. It's only in the last few years (and with Long Covid) I've learned what I have, mostly through self education and daily HR monitoring. I'm under cardiologists but such is the state of the system in the UK I'm still awaiting formal diagnosis 18+months later. This video did bring tears to my eyes. Thank you for seeing us.
Remarkable is certainly an understatement when it comes to your eminence in your field, your compassion, empathy and desire to care and share. Thank you Sir.
I'm literally in tears now. I cannot even imagine a nicer person, a better Doctor, like him. Just exceptional. Thank you, Dr. Gupta for being here for all of us, educate us, giving us hope for improving our health. Greetings from our hot Northern Ontario, Canada.
Me too, I can’t stop crying! 😭
Me too.
You sir, are an amazing Dr! If only all doctors were like you, this world would be a better place. Thinking of all that's going on in the world we could use a Dr we can trust to do the right thing for their patients instead of feeding the propaganda! God bless you🙏❤
I wish I could hug this doctor.
Thank you so much for posting this. This video brought back so many feelings. When I started searching POTS, I found your videos. Here in America, doctors seem to think that if your a woman, your emotions seem to cause your symptoms. 15 doctors.
well here in Finland is the same.. "Your Anxiety is the reason".. "You can cure it in your own mind." Doctors don't really know nothing about POTS and what is most sad is that they're not interested to learn eather.. Well Dr. Gupta seems really really care and it brings tears in my eyes.
Thank you so much for calmly and compassionately educating people on such a debilitating condition.
I am in tears from a tide of emotions that came about simply from an acknowledgement of my suffering as a REAL condition! For 50 years (from the age of 20) I have suffered from a slew of seemingly unrelated debilitating symptoms such as heart palpitations, chest pain, migraines, nausea, IBS, sleep issues, fibromyalgia and many others, and never got any recognition or support from doctors that I have seen. I have always known about Dysautonomia (back in USSR, when I was 20, they did diagnose me), but here in US nobody knows much about it. Great thanks and respect to the real DOCTOR - Dr. Gupta! Is there any hope to find a knowledgeable POTS doctor in US?
Dr Gupta !! Everything you said 👍👍
Thank You so much for your continued work and passion in helping others and the POTS/ Dysautonomia & EDS Communities!! AWARENESS MATTERS!!
Your videos and teachings for understanding is key and appreciated greatly !!
Your Utmost Kindness has been of a great help to me and many !! You are true to heart and a wonderful physician!!
Thanks be to you and your compassion to learn and help care💙🦓🦓💙
I was diagnosed today! Researching about it I found your video and brought me to tears. Thank you form my heart -you are a remarkable doctor!
Postural tachycardia I suspect
I had tilt table test today
my heart rate was increasing on tilt table from supine to standing by 30 to 40 beats and was fluctuating between 110 to 130 140 and my resting heart rate was fluctuating between 90 to 105
but techician considered it as normal and said ur report is negative as my bp was not decreasing and he said my heart beat is fluctuating and I didn’t faint so he didn’t supsect any orthostatic hypotension
what is ur advise on it
is it POTS ?
Hugs fellow (POTS) patient
@nikhilsharma6676 there are medical articles on the internet that say that the tilt table test isn't even reliable - because it doesn't actually recreate what a person's actual body/legs/muscles have to do or go through when a person's body is actually attempting to stand & hold up its own weight - ie compared to being on a table. Those criteria for establishing the disorder as POTS (or not) are really misinformed and outdated. This disorder (and the doctors/specialists involved that we are relying on for diagnoses) are really frustrating!
Thank you for this information. It took me 7 years to get diagnosed with POTS. Most doctors and nurses don't know what it is. Living in Sweden. When I tell the ambulance nurses that I have POTS they say "What is that?".
I also live in Sweden and it took me almost 6 years to get a diagnosis. Now when I have one - I still don't get any help.
@@ananira Som mig. Enbart betablockerare. En tur till akuten idag. Så YYYYR, allt snurrar. Jättejobbigt att bara ta sig dit i bil. Ingen stroke. Spänningar i nacken sa läkaren. Ska på sjukgymnastik. Det är allt.
Postural tachycardia I suspect
I had tilt table test today
my heart rate was increasing on tilt table from supine to standing by 30 to 40 beats and was fluctuating between 110 to 130 140 and my resting heart rate was fluctuating between 90 to 105
but techician considered it as normal and said ur report is negative as my bp was not decreasing and he said my heart beat is fluctuating and I didn’t faint so he didn’t supsect any orthostatic hypotension
what is ur advise on it
is it POTS ?
As someone who has POTS, I’m very thankful for your existence. Thank you for bringing awareness.
Postural tachycardia I suspect
I had tilt table test today
my heart rate was increasing on tilt table from supine to standing by 30 to 40 beats and was fluctuating between 110 to 130 140 and my resting heart rate was fluctuating between 90 to 105
but techician considered it as normal and said ur report is negative as my bp was not decreasing and he said my heart beat is fluctuating and I didn’t faint so he didn’t supsect any orthostatic hypotension
what is ur advise on it
is it pots ?
I love what you said at the end. I actually ended up in the hospital last summer after years (over 10) of being pushed around to different doctors. I was prescribed so many psychiatric medications. Finally a neurologist saw my medical history for what is was and dug very deep. She sent me for so many tests and I was diagnosed with POTS and a couple other things. It's amazing when I think back about all of the things I missed out on because no one would listen. Thank you for spreading awareness. As a POTS patient, this video made me very emotional.
I hope the diagnosis led to treatment and your doing much better than you was thanks for sharing with us all
@@ste4414 thank you. My quality of life has greatly improved in the last year.
@@SweetLifeofAmy thats great news can I ask what meds you take for it now? I'm on the same journey myself after getting covid in March 2020 cant do much at all think its down to pots, dysauromia symptoms
@@SweetLifeofAmy What do you exactly have in place to control your POTS? (What medication - diet etc)
@@ste4414 I'm just on lifestyle modifications. The neurologist diagnosed me and gave me things to do which have helped. I drink a liter of water every morning with electrolytes and then another one later in the day if needed. The biggest thing for me has been building up my tolerance for being vertical. It's definitely hard and last summer I was fainting occasionally. I also had horrible vertigo all of the time. Through just doing a little bit more activity each day, I'm now able to stand for up to an hour before I get the worst symptoms. Even then I push myself, because I'm stubborn. Everybody is different though and there are still days where I just can't push myself, I have to rest. I do have Gilbert's syndrome, so I'm very reluctant to take medications that aren't absolutely necessary. I'm also hoping to get in with a pots specialist here where I live to get a solution for my adrenaline spikes as they cause severe tremors and muscle spasms for me. Sorry I know this is a long explanation, but just know that it can get better. I spent the first few months mourning the life that I thought I would have. Being diagnosed with a chronic illness is an adjustment that is not just physical. Very emotional at times for me.
I genuinely don’t think I’ve seen a more real video on POTS than this. The way you described this is the exact experience I have been through so far, and it is nice to know that someone understands. Have a great day :)
I work in the healthcare industry and I am in awe of you. I’ve never met any physician in over 33 yrs of working in a hospital setting who come close to the compassion and empathy you exude. I always try to practice what I preach and that is to care for patients the same way I’d want someone to care for me and/or loved ones. But, unfortunately it’s not always the case. It’s frustrating and so sad to see.
I was a practice nurse and now burnt out..I gave 25 years to the NHS and struggled to get the help I need with dysautonomia. Sanjay Gupta is the only human Dr I know
You are so lovely!
God bless both ^ of you - and I hope you both get the answers and help that you need ASAP. I hope you feel so much better soon. Don't give up!
Loads of love & hugs 💞🫂💪🙏😘
Over 45 yr..very rare, few, far between
Thankyou. ❤ I developed Pots after having Swine Flu. After years of getting fobbed off by my GP he finally referred me to a cardiologist ( luckily for me ) who was knowledgeable about Pots. He diagnosed me more of less straight away. I felt so Ill I was struggling to work as a nurse I felt absolutely terrible all the time. I cried when he believed me and cried when a finally got answers as to why I felt so terrible in every way. That was 6 years ago. It’s still very hard I struggle everyday but I’m proud of myself as I’m still managing to work part time. I absolutely love my job it’s so important to me to still work. I’m exhausted when I’m not at work I can’t really do much but it makes me feel good I’m still managing to help other people. I wish every doctor was like you Thankyou for being such a kind caring compassionate person if everyone was like you the world would be a much better place. I find all your videos really helpful Thankyou. ❤
God bless you.... If only all doctors had your humanity , open mind , common sense , and willingness to listen to the patient.
Wow, explained the condition so thoroughly and accurately. The compassion Dr. Gupta possesses is remarkable. You made me want to cry, how much he cares is unbelievable wow, he is an angel. I will say, subclinical POTS can be caused by late stage adrenal fatigue, mycotoxin illness and vaccinations. Thank God for him🙏☺❤
Mine feels like adrenal fatigue. I’m feel burnt out..
@@joyceknox1341I definitely think that this thing is related to/caused by stress & the adrenal glands becoming extremely tapped-out, too.
I truly hope that everybody feels better soon!
I've found that low and slow building up of exercise, weights, electrolytes, pink Himalayan salt, coconut water, lots of filtered water over the day, calf lift exercises over the day, and the Nemechek Protocol (except I haven't taken the antibiotics in the latter protocol, just did all the rest = Google the NP 😉 ) to all have helped.
My doctor is trialling IV saline infusions for me next week (as advised by Dr Gupta in his other video) so fingers crossed that that helps as well (please God)! 🤞🤞🤞
You Dr, are a remarkable Dr a lovely man and a credit to your parents
This made me cry 😭 I’ve moved from America to the UK and I have so many POTS symptoms and you’re so right about battling every day . I would love to go to your clinic you seem different to any doctor I’ve ever met and the most empathetic
I'm struggling right now trying to get answers for my illness, but I'm happy that I found this channel ❤
Thank you for raising awareness and understanding around the systemic symptoms of Dysautonomia/POTS that negatively affect one's quality of life. I can't possibly articulate how difficult it is to suffer from debilitating symptoms while playing the role of researcher, diagnostician and patient advocate. Thank you for giving a voice to those of us who've been underserved for far too long. ❤️
Tears running whilst watching 😭
For so many reasons. But mostly for the REMARKABLE humble doctor I see in front of me. With so much knowledge and the right humble attitude ! Thank you for all your knowledge and these videos that brings me so much hope ! I’m floored 2 years 10 months and have seen 90 health professionals and have had more than 400 appointments over the course of time - which has made me worse ! I need to selfcare and slow down my sympathetic system - I’ve told my GP this but just sent around to referral after referral
It’s something so wrong with a system that enables that.
Stop - and think and listen to the patient and do little research and work TOGETHER with the patient ! That would save so much time and energy for all ❤ you have the right attitude 💯
Thank you !
So well said! ^ 👏 👍👌
Thanks for raising our awareness, I had never heard of it.
♥️♥️
You sir, brought me into tears. Thank you. You're such an blessing.🙏❤
I just love you. You care so much and say what others will not. I thought I possibly had POTS after a Lyme infection. I could not get a doctor to hear me. I had horrible things said to me. They treated me like an hysterical female who was anxious and a bit on the crazy side. I finally started doing my own research and figured out I may have POTS. But, no more doctors for me. I am planning on buying one of the brain retraining programs out there. They seemed to have helped many.
What a great man and doctor you are. I wish others had your understanding.
How wonderful you actually name your patients and how wonderful of a man you are in general. This reduced me to tears that somebody out there knows about and understands this condition. Nearly 4yrs on and I'm still being bypassed by my GP surgery although my cardio is more empathetic but struggling to see him till next April!!!!
God bless you Dr Gupta. I wish I’d found you last year when I was take to hospital with sudden onset arrhythmia, it was very frightening. You bring you so much reassurance to so many.
Wish I could have been there to hear you speak. I know you were great! You have a knack of tuning in to people's needs and how to step in and try to help! That's what makes you a great Doctor and a caring man. A doctor without heart is a job! A doctor with a heart is who you are, priceless and loved. Thank you! 💖
My dysautonomia is slightly different, I have the SVT’s the visual disturbance and chronic fatigue among other symptoms, but luckily not the orthostatic problems. Unfortunately I have genetic haemochromatosis too.
Sanjay your amazing for understanding us, for validating POTS and all its complexities, for believing your patients and knowing we aren’t crazy! . Thank you, you are a remarkable human being x
Thank You so much for being that remarkable doctor that cares & shows so much compassion for this illness! I mean that with all my heart & soul. I wish I could be your patient so badly. I appreciate your videos & look forward to them. Plz never stop. God Bless You!!
Dr Gupta, you are amazing. What you are saying resonates with me. Thank you 🏴
Positive tilt table test and cardiologists still don't take it seriously here in the part of the US I'm stuck in. All they care about is money and POTS treatment (lifestyle changes) isn't lucrative. Have accepted I'm on my own. Well done for maintaining your humanity and actually helping people who are suffering and desperately want to get better.
Great info, why is there less than 10 cardiologists in the uk who understand this condition? Its national scandal and should ne taught to every cardiologist in med school.
Not many in the USA either.....
@@sandyk13599 I was tentatively diagnosed by my rheumatologist, then referred to a neurologist for my final diagnosis. I’m in the USA.
@@a.kenneth3521 It’s a hit or miss with doctors. I had a tilt table test and the doctor said it was fine, no problem. My general practitioner put me on atenolol as I was passing out and wanted me to see a cardiologist. He said nothing was wrong and took me off atenolol and I suffered for several years and kept going to specialists to find and answer. When I went back to my GP she said I failed the tilt table, said I had POTS, put me back on atenolol and I have been fine. This care or lack of care as I have condensed the info was from the “world renown” Cleveland Clinic. Good luck!
@@sandyk13599 exactly Sandy... must be a world wide ignorance
@@sandyk13599 Wow, that’s awful. I’m sorry your experience was so traumatic. I’m glad you’ve gotten things straightened out, now.
You are one amazing doctor! Thank you for this video. I lost everything due to this condition. Validation took 16 years of being mistreated, dismissed and mislabelled.
Anyway, thank you so much.
Absolutely top man and medical professional.
Thank you! Thank you for speaking for us! -Joanna
I am having my family watch this because maybe they will believe you. Thanks!
Thank you! I started having symptoms as a pre-teen after a sun-poisoning incident. 40 years later, I was diagnosed with EDS, Dysautonomia, and POTS. If I had found a more thorough doctor earlier, my quality of life would have been drastically different. But better late than never. And, yes, I got deconditioned and have to train up to "nearly somewhat kind of normal" all over again. Otherwise, I will just be over here relaxing in the floor. Thank you, Dr. Gupta!
This is wonderful thank you. I live in Yorkshire and developed PoTs after a spinal CSF leak and associated bedrest. I have had to lie in a 10-15° trendelenburg for nearly 2 years now waiting for an epidural blood patch for my leak - and I think this positioning has also made my PoTs worse and has affected my lungs. I've had no help with my orthostatic tachycardia unfortunately, so rely on content like yours in order to learn more about it.
Thank you for listening to and helping to your patients 👍🏻
❤
Thank you for all you do for us! You are a wonderful doctor! Love and Blessings to you and yours!
Thank you so much for all your research and information. Could you please make a video on all the medications used for pots .
Dr. Gupta, I would like to thank you very much for the information you have shared online. Years ago, while both my adult daughter and I were searching on line for information on what may be wrong with her, we came across your smiling face speaking about POTS. There was so much that mirrored what seemed to be going on with her. After Three Emergency Room Doctors, Several Primary Care Doctors, Neurologist,......she was labeled as dramatic and overly sensitive......., diagnosed with "young & dramatic", blowing things out of proportion, just a migraine, not eating well,..... and treatment was "you just need to relax", take some Advil, go online and find some ways to relax and do some Yoga...... . Ugh! There was no rhyme or reason what was happening. She was not and had never been "Dramatic". Something was going on and she could not get a doctor or nurse to take her seriously. She had dropped to the floor and wheeled up to the Nursing Station at work, dropped to the floor attempting to use the toilet, dropped to the ground when standing in line at the grocery store, was totally exhausted, and would often end with her body totally rigid and hands claw-like ....she was afraid, I was afraid and . she was not taking seriously at all. Then, there was you. For so long she tried to get someone to listen and it appeared NOBODY knew anything about it. She begged to be helped, and finally with knowledge from you she said "Prove me wrong, by at least doing a tilt test or something". I am not even sure if they were aware of what that was!! Finally, the doctor had enough of listening to her pleas and set up a "Tilt Test" at the hospital. Well, he turned and said "Well it looks like you have Dysautonomia Postural Orthostatic Tachycardia Syndrome" good luck with that, your doctor will be calling you I assume." Well to make this long story short, her doctor didn't help her with this, basically making this seem like it wasn't a "real" problem, much like her migraines were not a "real" problem, but something she dramatizes....blah blah blah.....she has tried speaking to several other doctors who were just not knowledgeable on the subject at all either. This was and still is shocking ! Worse than a doctor not being aware is a doctor not caring enough to be aware and fluffing their patient off like they are worth nothing Her insurance does not cover going to the ONLY doctor specializing in this Syndrome who practices 60 miles away. Still, nobody recognizes that this is serious. Thank goodness, that she has been doing well at the moment, and has been doing better for several years, still symptomatic but has learned to use water packets, is familiar with the feeling she gets and will immediately sit down/lie down in position,...... She has basically been her own advocate, doing the best she can, with the information she has I don't know where she would be right now if it were not for you and the information you kindly share with all of us. Thank you very much. I hope your words reach people in the medical field so they are aware this is a REAL thing and not made up or dramatized!
Thank you! I will keep this and send it to people in my life that are clueless.
You are are are a remarkable doctor and human being!
i believe that i’ve had pots since i was a kid. i'm almost 70. i've come across some wonderful doctors, like dr gupta, who really tried to figure out what was going on, but the majority of the doctors that i've seen have been ignorant, not up for the challenge, and not at all empathetic. in the end, it was me who finally figured it out. and then i got covid. lucky me. we need more clinicians like dr gupta. many less people would suffer, and even less money would be spent. thank you, dr gupta, for all that you do for us. you're a master at your craft.
Would you mind sharing what helped you? Thanks. Sorry to hear you got Covid, hope you didn't get long term affects
@@marid4279 extra salt and water didn't help me. very gradual supine to upright exercise helped some. compression socks helped some. inderal brought my pulse too low. sorry. i hope you or whoever you're thinking of can find some help.
Thank Dr Gupta for your wisdom and compassion for us pots patients. It is heart felt and just what I needed to hear. Blessings to you and to us all!
Oh, You made me cry. Tears tears tears. Thank you. Greetings from Finland.
Hi doctor Gupta. I'm a doctor to be Dysautonomia Patient and I'm really inspired by you. Out of all the doctors I know as a Medical Student and a patient, you are the only one who has expressed this deep understanding of what these patients go through. It's not that like the general misconception amongst medical professionals ,that you wear compression stockings, drink more water and you're good to go, it's something that affects each and every part of the body , with symptoms continuing 24/7. I appreciate how much you advocate for these patients. The world needs more doctors like you. Thankyou
We desperately need more physicians like you! ❤👍
You are a remarkable doctor ✌🏾
Dr., it's so good to see you after a very long time.
Thank you so much for bringing this subject up. I had the "pleasure" of having it in the ER, however the nurse who discovered it said it was from dehydration, but either way, now I know what it is. Thank you!
What a kind and caring man you are sharing your wisdom here for all to benefit. Thank you! I don't have a severe version of POTS but I suspect I have it mildly because when I spend a moment or two in squatting position, usually gardening, and then stand up, I can have dizzy spells and lightheadedness, and probably palpitations (although I get those for other reasons as well). I started eating a low carb / keto diet a few years ago and I noticed how much more intense the dizzy spells get when I've not had carbs for a few meals. I know that can be caused by electrolyte disturbances too. I ate carbs for 2 out of 3 meals yesterday but still had dizziness this morning so I had a coffee. Coffee I can be sensitive to and it surely won't help with heart palpitations, but it seems to have helped the dizziness a little bit. It might make it worse for others though, not sure. I also just heard that Vit B1 deficiency is sometimes related to POTS and nutritional yeast has been suggested as a remedy but not sure how well it works.
Thank you for this.
My GP just laughed in my face and fobbed me of when I said I believe I have POTS and told me just to take anti depressants and propanol.
Would you be able to do a video on Naicin for POTS I have read online that a Niacin flush can help.
Many thanks
Thank you Dr. Gupta for your words of wisdom and knowledge 🙏 in your field !!!
Love you Dr. Gupta. You are a breath of fresh air. Thank you for everything you do
I have been experiencing so many symptoms that were sudden onset. I've been through so many tests in the last couple months. I was really sick November 2021 and ever since have been dealing with these symptoms. Bless you
What a great human doctor Gupta ❤️thanks God we found you.
Dr Gupta @york cardiology you are a very good doctor and there needs to be many more like you.
A big help for us. Another food for thoughts. Generous doctor. ❤🇵🇭
Thank you for this video. I have been having fainting or near fainting my heart was beating out my chest I had to sit down or lie down immediately I was referred to a cardiologist ..I had been a marathon runner I'm talking running 32 miles once a week I was a healthy beast...until I wasnt..I saw the cardiologist I knew I had mvp since birth no biggy I just couldn't run and talk...he scheduled a stress test..I began having a spell before the doctor showed up I was determined not to flip out as nurses kept asking if I were okay I could see each time I sat up or was tilted up right my heart rate and bp skyrocketed 212/124 my pulse range 124 to 202. The doctor asked if I were OK.. I said your the doctor isn't it your job to tell me? He said I must have white coat syndrome..I said no I dont get that at all..I'm very tired...he kept watching as my heart yo-yoed..when he shot the stuff in me it scared me as my butt went numb...I'm not kidding and the upper portion of my legs all feeling like 300 pounds...he said it was unusual but normal...then he told me I was fine and could go...I got to the waiting area felt nauseated and faint I sat for a few minutes then walked toward lobby of hospital where I just dropped..my legs turned to rubber my heart racing everything. everything went blurry..I was taken to the E.R who said my k+ was a little low and I was fine to leave after iv potassium given but my heart continued to slow to 64 then spike to188..I just gave up because no one was listening...the last er visit I thought I was having a stroke or heart attack my jaw and arm hurt the ekg monitor was alarming loud and flashing my BP 238/126...I begged the nurse to get a doctor...she said sure you are.. then laughed cut off the monitor leaving the room..I had a iv in of normal saline I had not gotten BP meds or anything....I was so scared after waiting 30 more minutes I pulled my iv loose from the bag and in a hospital gown stumbled down the hall blood backing out the tube dripping in the hall way where the needle was in my arm...I was holding onto the wall as I made my way to the parking lot..I got to my car..and got my BP meds down before passing out in my car.....this was way before covid..to be ignored and made to feel like your a crazy female when your BP and heart rate are so high was just mind boggling to me....my internist of 20 years is retiring...and now I am getting scared .the episodes aren't as frequent now thank goodness..but I'm so deconditioned...oh well I may delete this in a few hours thanks anyway foe whoever listens
Sounds horrendous Catherine. Hope you’re doing ok now. I can tell
you God cares and you will find answers when you seek Him.
May God richly bless you, you’re a true godsend. 🤍
Brilliant! Bravo!
Oh my goodness! Could we clone you? ;) The 13-year-old daughter of some dear friends of ours was just diagnosed with POTS. I can't wait to share this video with them!
After having this disease for 35 years, only to be diagnosed 4 years ago, countless doctors who told me to see a therapist….I finally feel seen by someone. Yes, I cried because I am grateful that I didn’t have to explain yet again that I am sick…you already know. I wish I could find a doctor like you to help, because what good is having the diagnosis if I can’t get treated?
You are an exceptional person. Absolutely amazing.
Exellent docteur ! Je regarde toutes les vidéos et je comprends de mieux en mieux ce qui se passe dans le corps le cœur l estomac le cerveau etc... les liaisons entre eux
Bravo Docteur Sanjay Gupta
I am curious your thoughts on taking B1 for POTs or IST? I would love to hear your opinion.
Thank you so much for understanding the journey to a diagnosis. It is so long and hard. So grateful for your passion to bring awareness.
Really great video. Thank you
Wow. What a guy! 🤩😍💪👍😘
My doctor agreed yesterday - to saline infusions for me for next week. THANK you gorgeous, amazing Dr Gupta! I will check back in and let you know how I feel afterwards 😉 xo
I wish you were my doctor. My heart is constantly beating so fast just even lifting my arms up. Nobody has been able to figure it out. I feel so defeated 😞
Did you find a dr to help you?
@@soulpowerful Unfortunately I haven't
Thank you for sharing
My cardiologist doesn't even believe the condition exists. I was diagnosed by another doctor who has since left. I havent seen a specialist as there are none in Northern Ireland. I'm only on one medication and have been since 2019. Never been monitored and have just been left to suffer. I'm getting no help whatsoever. I live on my own. The health system doesn't want to believe how bad this is and even though I've been diagnosed they still treat me like it's all in my head. I cant win and frankly I don't just fight my body I have to fight the depression and the urge to make it stop every day. I'm going through a real rough patch lately. But when your body literally rejects touch by flaring it up so I end up at hospital it makes it hard to ever imagine I can ever be a normal person again. I'm 30 and have been isolated for 8 years and suffered since I was 14.
Please go to Coleraine Vineyard and ask for prayer they see people get healed of ‘impossible’ illnesses all the time x
You are amazing and empathic.
Looking forward to this video! I have POTS and vtach, and other heart issues :(
Thank you Sanjay.
Very informative and helpful. Everyone deserves a doctor like Dr. Gupta.
great, and informative video Thank you Sanjay.
My cousin and her 2 daughters have pots and they are also remarkable! Thank you Dr. Gupta!
You are a GREAT Doctor. THANK YOU!
Thank you, Dr. Gupta! You are remarkable!
Sir, you are a doctor sent from Heaven, thank you very much❤️❤️❤️
Thank you dr. I have pots and you really help ♥️♥️♥️♥️♥️
Hello , i also think tht i have pots after covid, plz can i talk to u plz, i need to knw the symptoms
Requst u plz
You are a amazing terrific good doctor with your hart and mind on the good place. Thank you for speaking out!!!!!! Love from the Netherlands
Thank you for validating these patients. Unfortunately many still think it is a cardiology problem instead a neurological problem and that there are a lot of symptoms that are not posture related. Have you also had good results for patients with hyperpots or underlying illnesses?
Thank you for sharing this important information...you are truly appreciated.
But I was hoping to learn about the treatment??? Is there a second part coming soon?
Hi Dr. Sanjay. I do so respect you as you are a incredible doctor. I always respect what you have to say. Oh my you are excellent. My son has suffered so much over the years. This information is valuable. I respect you. Hope you are doing well. Thank you so very much. Kindest regards.
Thank you for this.
Hello, just found your outstanding channel. Thank you so much for everything you do to help educate the public. Could please help us understand what is aortic sclerosis and it's health implications and progression to stenosis. Thank you again.
Dr Gupta, would you please be so kind in answering this question.
Would there be a significant interaction between desmopressin for occasional pill in the pocket therapy and my daily 15mg hydrocortisone.
My son who has just turned 11 has his own struggles with ADHD & Tourette’s has been nominated for a young peoples award for caring for me. It’s on 30th November I would really love to feel well enough to accompany him to the ceremony. This will be a major event in his life. GP wasn’t comfortable prescribing desmopressin I think it would make the world of difference. I wish you were my doctor, I’m up in Scotland would I be able to request a visit to York cardiology instead of Edinburgh?
Your worth your weight in gold! Laura x
I'm 32 years old. My doctor and I think I probably first became symptomatic at 11. I was diagnosed 2 months ago