Should Disabled People Be Forced To Work?
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- Опубликовано: 28 июн 2024
- i hope this video is interesting and that it educates some of you on the reasoning behind disabled people not being able to work full-time jobs whether it’s in person due to accessibility issues, or from home due to chronic illness or insufficient energy levels ♿️
every disability and chronic illness is different, so every individual is going to have different capabilities and limitations. not every disabled person will be affected by this change, and not all disabled people do claim benefits!
most of us want to work, but it’s rare that we find a career path or workplace which enables us to work and still take care of ourselves - meaning a high percentage of disabled people are unemployed
if you’d like to read the full article about the UK changes, i’ve linked it here 👇🏻
www.theguardian.com/uk-news/2...
theconversation.com/there-are...
information on the spoon theory 👇🏻🥄
www.thebraincharity.org.uk/wh...
en.wikipedia.org/wiki/Spoon_t...
- TIMESTAMPS✨
00:00 - intro
00:30 - harmful views behind “duty”
02:15 - who is “able” to work?
03:38 - workplaces aren’t accessible
04:44 - why can’t we just work at home?
05:51 - the “duty to work” fraud narrative
06:52 - stress impacts our health!
07:12 - addressing false claims
07:50 - guilt-tripping
08:36 - what we should be doing instead
09:15 - make workplaces accessible!
09:57 - forced to work unsuitable jobs
10:35 - the spoon theory
11:10 - my thoughts and summary
12:26 - outro
don't forget to subscribe! ♡
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1.What conditions do I have?
‣ I have Tourette's Syndrome, FND and POTS along with some mental health disorders.
2. How old are you?
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3. What is FND? 🧠
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My name is Zara Beth (zeezee25 on tiktok) and I post videos about disability, neurodiversity and what its like living with Tourette's Syndrome, Functional Neurological Disorder (FND) and a chronic illness called Postural Orthostatic Tachycardia Syndrome (POTS). Tourette's syndrome is a neurological condition causing involuntary movements called tics.
I use my social media (TikTok, RUclips and Instagram) to advocate and raise awareness for my conditions and show what it is like living with a disability as a neurodivergent person.
I am also autistic and share my sensory struggles along with my experiences with mental health disorders.
I show what its like having a disability and the accomodations I have to help my daily life. I am also an ambulatory wheelchair user showing my life using mobility aids and how symptoms change from day to day!
I am also a musician with a popular song called "She's Mine" available on all streaming services - I wrote, produced, mixed and mastered all my songs myself! I am also an artist and a writer. I love reading and I'm currently writing a novel and a book about my life!
But we do work! My life is a job!
Staying alive is a job for me. I’m sick and disabled.
Same.
But it doesn't add value to the system that pretends to support people. So, here we are.
Whats ridiculous about the whole thing is, disability benefits is barely enough to live on so most disabled people would love to be able to work and have more money. The government over spent during covid now they're making the people who need the help the most suffer. Its disgusting.
Agreed
The "conservative" way can always be boiled down to Social Darwinism. The philosophy, when taken to the extremes (as is the norm these days), literally means disabled people die. It's eugenics via policy that they refer to as "common sense."
I know I wouldn’t be able to do my profession. I had to stop work in my mid 40’s. At the time, they didn’t know what was going on with me. So many tests, doctors so much pain. Yes, I am certain many may look at me and say she’s fine. Meanwhile I am on medication for pain, muscle spasms. I also am on a Biologic which affects my immunity. As a nurse I need to function at high level and as well coming in contact with people who could affect my immunity. With COVID it almost leveled the playing field, everyone be masked. Speaking on that with ever COVID vaccine my quality of life went further and further down. My sister understands somewhat as she was diagnosed with SLE (Lupus) before I got sick. She has been in remission for several years now and was able to go back to work with restrictions meaning cutting hours. Many years ago when I was worried about her, I told her about the Spoon Theory and that in order to have quality in her life she needed to reduce her workload and reduce what she participated in outside work. ( being on committees, running every day etc) Now it’s me, next year I will be 65. My conditions Ankylosing Spondylitis and Fibromyalgia pretty much control what I do. I live by the Spoon Theory myself. I have to. It took me a long time to resign myself to get Disability Parking sign. I am now back to walking with a cane because I have so much pain and I need to steady myself. If I fall I need help getting back up. I bruise easily and get tissue tears and am sensitive to certain bandages. No way could I work as I have a full time job just looking after me. Thursday my sister took me out for brunch, and do errands and get groceries. Thursday night after unpacking groceries I went to bed. This was before dinner time (6pm) I slept all nights d much of Friday. Tomorrow I usually go to my sister’s house for Sunday dinner. Hence I am laying low again today in preparation for tomorrow. I am Canadian 🇨🇦and live on a disability pension which is not much. I would loved to have a RUclips channel as I love to bake ( also do crafts) but I cannot stand long enough. 😢
I fight every day to stay employed. I have a career that I love, and the level of discrimination in the US Labor Market. I’m extremely able when I am not flaring. And when I am, I want to be at work, but can’t always meet that requirement. They don’t even allow special accommodations. Neurodivergence needs to be the standard.
I agree. I am disabled and would love to work. I’m not even getting disability as I am one who falls thru the cracks.
This is outright disgusting. It's unfair and just fcking cruel. I hate our government.
The "conservative" way can always be boiled down to Social Darwinism. The philosophy, when taken to the extremes (as is the norm these days), literally means disabled people die. It's eugenics via policy that they refer to as "common sense." 😡
My passport expired and I can't bring myself to get another because I'm so angry at the British government. 😞
As a neurodivergent person with chronic illness (hidden disability) this scares me.
Because I am young people everyday judge me for not working. Thank you for speaking about this. The amount of stress and increased symptoms caused by having to go through assessments alone is overwhelming so no one should be making it any harder for us.
I have a blue badge and I get so many people blatantly checking to see if I have one or staring at me like I stole it because my chronic pain and chronic fatigue isn’t obvious.
@@phoebesmith8154 I get this too on days when I can leave my wheelchair at home and just use my crutches and foot afo’s. I’ve been trying to persuade my mum to get a blue badge because she has heart failure (therefore she can’t walk very far at all) but sadly she won’t apply for one because no one can see her illness and she said that she would feel judged and looked at if she used a disabled parking space. It just so wrong. And then there are those who use a disabled bay without displaying a blue badge meaning that people who do need the space can’t get one. GRrrrrrrr……. X
@@phoebesmith8154hidden disabilities should be taught about in primary school. It's the lack of awareness and a hyper individualistic society that creates this ignorance.
Maybe it would be easier to "do our duty" if the government actually accommodated for us, and made it easier for us to work.
You know what would help, more opportunities for disabled people. Options for flexible study for qualifications. Flexible Internships that offer skills that could help us find SUITABLE employment.
But actually the job centre washes their hands of you after the work capability assessment.
I really hate the narrative thst disabled people are just getting benefits, I remember the other day someone got annoyed at one of my best friends because she needed to cut the queue, (she is in crutches and standing in line for long would be painful) it was upsetting to see that they couldny allow her to skip out of so-called "fairness" when it was axtually fair to let her be able to be free of pain. I love your comtent Zara, keep strong!
i don't think people understand how HARD it is to actually qualify and apply and be assessed for things like benefits - they don't juts give them out willy nilly!!
@@Zara_BethI would love to know how the benefit/disability money fraudsters actually manage to fool the system and qualify for it. Like you have said we have to supply so much evidence, be medically assessed and jump through hoops. These people are the ones that the government should be targeting and not the genuine disabled. Keep up the great work and thank you for acting on our behalf. X
YES. I need to skip queues at theme parks because of my autism and sensory overload (it is physically and mentally painful), and have been snared at and been told I don't "look" like I need it. It's so exhausting.
@@millygd955Well if you paid for it then it's tough luck, they give that look to anybody regardless of status it's just people being irritated at those who can afford it, if you use a status to skip then yeah I can see why people would be irritated especially since they have to pay so much more just to skip.. As someone with autism too If I wasn't willing to pay I'd just skip the whole thing entirely instead of using my disability as an advantage just feels gross to do.
@@lilskipper4683 I didn't "use" my disability as an excuse. The system is there for a reason. If I could not use this system for it's intended person, then I would not be able to go. I didn't want to go into how much I need this accommodation as that is personal medical information that I do not wish to share online. Please do not judge me or others based on the accommodations they use as you never know fully why they use them.
Hi I really appreciate you supporting and raising awareness. I have M.E. And fibromyalgia and having those conditions and managing the symptoms is a full time job. It’s ignorant to think people who have disabilities or chronic conditions are sitting at home with nothing to do. I would love to work and have the benefits it brings like money, sense of accomplishment, social interaction etc instead of the half life I often have! It’s completely condescending to imply people who can’t work aren’t doing their duty, it’s downright offensive.
I actually feel bad when I say I don’t have any free time. Cause how can you explain that you lost the entire morning getting yourself together and walking the dog? That leaves me a few hours in the afternoon before he needs another walk (earlier now it’s dark so early) - I spend that trying to cope with life. If I can manage to hoover that day, can I manage a shower? Pay some bills? Deal with life admin or bills I missed?
I literally only get my evenings. And I’m exhausted.
@@phoebesmith8154exactly ❤
Completely agree with this. My days are lonely and I miss social interraction. I would dearly love for the situation to be different. The people making these decisions clearly have no clue about the reality of day to day life for people like us.
Yes exactly, no clue! Sending you love xxx
Our government has no understanding of how it is to live in the real world. They are so disconnected from society, living in their own rich lifestyle bubble. I can't stand our government they are only making the rich richer and the poor poorer. It is extremely frustrating being mad to feel lower class like ur nothing and looked down upon because of being unable to earn. I really feel for people with such illnesses or disabilities. Stay strong out there. 💞
The "conservative" way can always be boiled down to Social Darwinism. The philosophy, when taken to extremes (as is the norm these days), literally means disabled people die. It's eugenics via policy that they refer to as "common sense." They literally think most "disabled" people are lazy leeches looking for a handout... And they view *_visibly_* disabled people as unworthy (because they don't want to pay a dime in taxes to help them), but they'll never say that out loud. This is ignorance and heartlessness and a lack of empathy all rolled into one.
That is really unprofessional and rude. How dare he say that
He also suggested that if you weren't getting adequate healthcare from the NHS, you should go get acupuncture. Nevermind that if you're reliant on the NHS, you generally do not have £45 minimum for each extra acupuncture session you need to work in to make up for having no healthcare.
The man's name is Jeremy Hunt. You can imagine what we've been calling him for the past decade.
How dare he
I really couldn't believe it when i read this, I'm so thankful for disability benefits. I actually had my benefits stopped after my work capability assessment because when asked if I could work, I said I would love to but every medical professional has said I can't. He wrote said he could work! The DWP and this Government are just disgusting. Trying to stop people who are already struggling get the money they need to live, so they can line their pocket. My condition has got so bad I've had to move into care home. I mean I'm 36 with an 11 year old daughter and used to be a fitness instructor, do they really think I just woke up one morning and thought, can't be bothered with work, let's say I'm disabled.
Imagine a creature so smart they can fly to Mars but so stupid that they destroy themselves over a make-believe thing called money.
As someone with chronic fatigue, I barely manage self care and it’s exhausting. So they wouldn’t have much luck trying to force me to work. I’d end up fired and it would also mean diverting energy I need to say, shower? Which at my worst I could only do once a week.
That said, my work capability assessment last year DID look at if I could work from home.
Exactly, if I could work in any job full time, I would. You know what's not fun besides being disabled? Having to worry about money and not having a lot of it. It's awful.
The privilege of these people, wow.
That’s exactly it! The privileged, no clue, ignorance from this man is ridiculous. “Do our duty” so offensive and quite hurtful. Like we’d all choose to be disabled and doing nothing but trying to exist from day to day. No chance. If I could have it any other way I would do.
That is horrible. That statement was not at all reasonable or correct. Keep up the amazing work Zara. Your channel helps so many, and you make amazing points. Thank you for speaking out!
We love you Zara you are amazing 🤩 disabled people need there freedom
Due to some of multiple of life's most universally accepted severely traumatic experiences in a twelve month time frame I ended up housebound due to chronic anxiety, complex PTSD , insomnia for days on end followed by sleeping for 24 hours without break, inability due to fatigue to trust my judgements and ultimately i am vulnerable as a result - I would love to see the job that could accommodate my complex circumstances.
The whole project to try and bend the disabled into shapes they can not assume is beyond evil. How in gods name did the DWP ever get the ability to overrule the medical profession when judging whether a person is fit to work or not?.
Love n light x
I completely agree with everything you have said. I’m also disabled with progressive MS and other disabilities which affect my mobility, sleeping, my ability to carry out normal daily tasks and require ongoing treatment and numerous medications along with very strong painkillers including morphine and fentanyl. Until I became so sick and when I could no longer ignore my symptoms I worked full time as a Customer Care Manager within the new homes construction industry. I would drive around 3000 miles a month traveling to building sites across the whole south of the UK. I would leave home at 6am and return back home between 7-9pm (and even later if I was working that day at a site which was a 4 hour drive each way on top of a normal full working day) and I only had 12 weeks off on maternity leave when I had my children. Fortunately I was a high earner therefore I would pay between £2-3k a month in taxes, national insurance etc so I must have payed a huge amount in to the system over the 30+ years that I worked full time straight after leaving school. Now unfortunately I am too sick to work. My days consist of getting the children up and ready for school, driving them there and when I get back home I have to nap on the sofa straight away (because of the extreme fatigue that goes along with my illnesses) until my alarm goes off to pick the children up from school. I don’t even have the energy to make myself anything to eat at midday but I also cant eat much anyway because I have severe digestion issues that are being investigated at the moment but I’m currently being told that I will need a colostomy or ileostomy to go with my urostomy that I already have. If I don’t nap whilst the children are at school then I wouldn’t have the energy to even cook an evening meal for the family. My husband helps me obviously but he is also disabled following an accident and lifelong side effects from cancer surgery and treatment. Like me he has also worked full time all of his life (for o ver 35+ years) until he was diagnosed with the cancer. I have no idea how either of us would manage if we had to work, even if we could work from home. I only really leave my house to do the school runs in the car and do essential food shopping. I get everything else online because even shopping is too much for me to manage now. An example of how little I can do actually happened today. I took my daughter to get her ears pierced and whilst we were there we popped in to 3 other shops to look around. By the time I got to the 3rd shop and we had been out for about an hour I knew I had overdone it because I felt so nauseous and weak. Then the vomiting started which is how my body always reacts if I try and do anything. I just made it to the shop entrance and emptied a shopping bag to throw up in. That finished off what was meant to be a nice afternoon browsing around a few shops etc. Obviously we had to return home where again I vomited another dozen times so I now feel like someone has wiped away any energy that I had left in my body.
I do understand that there are differing levels of illness and disability which would affect what work someone is able to do. There may be people who could possibly work for a few hours a week and then there are others who are unable to do normal daily activities without trying to work also. Both my husband and I have been assessed many times for PIP payments and also assessed by a Universal Credit doctor and both of us have been found to be “unfit for work in any capacity” so I can’t understand how they could then say that we are suddenly considered fit enough to work?? Most of us would actually love to return to work and we hate having to live on disability money and universal credit. I would return to my job in a heartbeat if I was able to as I adored my job. It gave me a purpose, I enjoyed interacting with colleagues and customers and I’m someone who needs to work and be kept occupied. When I first was unable to carry on working I did volunteer work at our local Surestart centre and I became a school governor because I needed to do something. I managed these for about 6 months until even these few hours of being out of the house made my conditions so much worse so I had to admit defeat and stop doing pretty much anything over normal daily activities. I’m also someone who loves to sew and do any crafts that I can get my hands on but now I struggle to even hold a pencil, needle etc because my hands are numb and struggling with rheumatoid arthritis and Raynards syndrome. Oh I should also mention that our 3 boys are all autistic and have sleeping conditions requiring melatonin and promethazine, my oldest son also had adhd and Tourette’s on top of his aspergers syndrome and my middle son is under Camhs because he has “extreme anxiety and depression”, being treated with antidepressants, which left him too sick to attend the last 4 years of secondary school or sit for any GCSE’s because he was housebound (well bedroom bound).
Sorry for the extremely long comment but I felt compelled to explain our situation, why I feel that we are not benefit scrounges who choose to live of the state and why it would be almost impossible for us to work. I think people like us are frowned upon and considered just too lazy to work by many people. I wanted to show what that is not the case and explain why. I know we shouldn’t have to explain ourselves but I have sadly found that we do have to justify our situation. I truly hope that if this does go through parliament then they really will look at every person/case individually. There will be genuine people who are just too sick to be able to work. X
A long but lovely comment!❤️
Also, no one is gunna be handing out jobs from home. We’re going to be expected to seek them out, apply and interview for them. I sometimes put myself out of commission for a week+ by overdoing it a bit on the housework (i.e I did the hovering and mopping and took a shower on the same day). I am not going to be able to do that shit.
@@sushikissa7777it was rather long wasn’t it, lol. Thank you, that’s very sweet of you. X
@@phoebesmith8154it’s so easy to overdo it on days where you feel a bit better and like you can actually do something so you have my full sympathy. I now try and plan ahead for any activities. For example I know that a trip to do a food shop will mean that I can’t do very much for the rest of the day, so I make sure that I’m cooking a very quick and easy tea. I then also have to make sure that I can rest up the following day too. I hate living like this as I was always so active, but it is what it is and nothing can change it. X
I just want to say from your comment I can see how hard you work for yourself and your family. I'm so sorry you have to hear such demeaning and derogatory statements from our politians 🥲
this is absolutely disgusting. as a disabled person, all of my disabilities are always changing in intensity (don’t know how to say it properly). i also want to bring up the extreme lack of specialist schools and the process it takes to get into a specialist school. there are hundreds of children like me that have been out of school for months due to unaccommadating schools, and there is no spaces in specialist schools. wish it would change ❤
Quite a lot of schools around here are equipped with elevators for those who need it and only for those who need it, so from wheelchair users to people who could collapse from walking up a flight of stairs due to health issues.
Though back when I went to one of those schools they were incredibly horrible to me in all my health issues they were very kind to those who had visual disabilities or learning disabilities but if you had a medical problem pop up that wasn't seen as a huge deal because they were unaware of what it was then they'd just ignore you and your educational decline 😅
I honestly hate this government so much. My mum has not been able to work for months now, and has now been put on sick pay which is so much lower than her average wage, and she's likely going to be let go from her job completely soon, as sad as that is to say. She was diagnosed with sciatica, she has heart problems and has had multiple TIAs (mini strokes), and like a small/half heart attack (we don't really know what it was). She's also pre-diabetic and has many other issues with her health which has led to her not being able to work her physically demanding job anymore.
My dad can't work proper jobs either for other health issues that affect his mobility and other issues, but thankfully he was able to find a job that was minimal hours and literally like 1 minute from home, but it doesn't bring in much income, and if my mum loses her job the job centres or whatever will start coming for them both demanding them to have more work hours between them.
We don't claim benefits because we can't, my parent's conditions aren't deemed serious enough to get benefits. People pushing the narrative that people who don't need benefits are claiming them is just made up bs to further drive the narrative that disabled people are lazy.
My brother has Autism and struggles with it quite a lot and has thankfully managed to claim PIP (Personal Independent Payments). But my mum, who's difficulties are a lot broader than my brother's, has tried to claim PIP and got rejected!!! It's complete bs, especially because my mum also has Autism, as well as ADHD and quite moderate mental health issues on top of her other medical issues.
Disabled people get so much sh*t for something they can't control and get pushed aside all because SOMEONE ELSE WHOS LIKELY NEVER EXPERIENCED THEIR DISABILITIES, decides that they are perfectly fit to work and don't need help. And now the government is just pushing this even further.
Even my current partner's dad has apparently said behind my back that he thinks my parents are on benefits and abusing that system and blah blah blah, like wtf??? I bloody wished they were because then we wouldn't be struggling as much as we are right now!!! My partner's dad has also said that I should be working at my age while I'm studying 4 days a week at college. I have ADHD, Autism, Dyslexia, Dyscalculia and my own mental health issues, as well as being a carer for my mum and basically my brother as well. I don't have the spoons of energy to be working on top of how much effort I have to put into my education just to scrape passing grades. Hell I'm searching for an apprenticeship so I can still get college qualifications while working and get paid so I can help support my family, I SHOULDN'T HAVE TO BE LOOKING FOR A JOB TO SUPPORT MY FAMILY AT 17 YEARS OLD!!!
Mentalities like my partner's dad and now the government are why disabled people feel so guilty for being disabled. It's so messed up. This whole "disabled people need to work so they don't lose their benefits" is going to backfire so bad when someone gets harassed by job centres so much despite not being able to work because of their disabilities and they end up taking drastic measures. It's also generally hard for people with disabilities to even get jobs because employers aren't going to hire someone who they think aren't going to be able to do the job to the standard they require. If it's hard for people without disabilities to get a job these days, it's going to be even worse for people with disabilities. And just to add to this, there are little jobs out there where you can fully work from home, so it's just extra bs from the government when they make it out to be so easy to do.
This is half a rant about my family's struggles, but it just goes to show how people think it's so easy to claim benefits when in reality people who actually need benefits can't even get them, and how disabled people aren't lazy and want to be able to work and do day-to-day life like everyone else. I wish I could work while at college, my mum wishes she could work, my dad wishes he could work a job with more hours, but none of us can; and we shouldn't get support stripped away from us because of that because some person decides we're being overdramatic about our struggles.
This government is heartless.
I'm Right there with you Zara it is awful to think disabled people are targeted by the government so often is horrible. My partner has ND with sensory issues and anxiety we constantly get people thinking there is nothing wrong but they don't see how hard it is to decompress after a full day. You are not a problem if you have disabilities. Government are so disconnected from reality. Thank you for fighting this on your platform hope they change their mind on this messed up policy idea.
We literally can’t control it!
dose that make sense?
i get you, we definitely can't control our disablilites :/
Im also disabled. I cant imagine being forced to work full time job
9:05 perhaps "assessed" would be a better word than "decided" /gen
as in "if disabled people assessed that they were able to work (under certain conditions)" =)
also thank you for this video and sharing your point of view, it always makes me rethink certain things. I'm very grateful for you and your advocacy/content.
hope you have a great day with as little symptoms and flare ups as possible. you're an amazing human being
perfect, yes that's the exact work i was looking for!!
At the moment, I'm a full time student (In 6th Form College). I don't have a job, but all of my friends do- the jobs that I probably theoretically could get with no experience (waitress, etc) would not be great for me because of standing for a long period of time and also just general fatigue. I struggle to do my homework and self study because I'm so exhausted after a week at school. Work-from-home jobs are so difficult to get as well!
sending support from the US. this is a horrible situation and is absolutely unacceptable. I'm so sorry you all have to deal with that. sending love
I’m disabled in multiple ways I’m deaf along side mental issue and sight problems. My sight issues aren’t considered a disability due to the fact it can be corrected with glasses but my prescriptions constantly changes and glasses are expensive. I want to work and I might not be able to I’m in college at the moment and I’m off a lot of the time due to recent health and anxiety issues. I want to work but a lot of the jobs that are available I won’t be able to cope with. I know a lot of jobs won’t accept how often I need time off due to health issue and hospital appointments. What the minister said was ignorant and has made a lot of people angry for someone with a lot of invisible disabilities jobs are going to be difficult to find if I can even work at that point. It’s interesting that the minister believes that disabled people are the reason for the major loss in the country income when they get paid millions of pounds every year after they leave power it’s a hypocritical belief when he is the one wasting his countries money.
It's a difficult situation, and he's definately gone the wrong way about it.
I'm disabled and full time employed I was lucky enough that I have been able to manipulate my environment to be safe and accessible but I'm having issues at work because of the people. One of my symptoms is seizures and they keep getting involved unnecessarily which is causing issues, like appreciate they want to help (even though there is nothing they can do) but by them trying to get involved I might lose my job because the bosses see it as using up staff time for something other than the jobs they are supposed to be doing.
I wont qualify for benefits because I can do the job, but its starting to look like I will never be able to keep one because I would have to work with other people and its basically impossible for people to leave stuff alone especially if it has little/nothing to do with them!
I'll bet everyone in Parliament gets adequate compensation for everything they do... And their staff.. ECT.. and a third of the things they probably do is muck things up.. such like what your speaking about.... They should cut corners in their own budget before they cut Disability funding.
I love your room - The rainbow flag, leaves around them, the disks, the soft toys, your nicely made bed, your desk, and the most delightful you. You, and all disabled people are great inspiration for every other enabled people just how you all live your life by overcoming all the challenges that were not chosen by you.
I just don't understand why an uneducated individual are allowed to speak about something which they have no idea. Why? Because they are politicians? UNFAIR
Well put!! I'm at uni and if I did a job alongside my studies I would probably end up significantly worse. I hate that I have to see all my friends have jobs and be able to afford things I cannot. My student loan doesn't even cover my rent. I'm grateful I have parents that can finance my living, but the guilt of having to live off them and feel like a burden. It's impossible. I'm in the process of claiming PIP but even that system is so unaccessible to me. I have to go to tribunal so if I don't get that then I will be forced to live off my parents income. The system is completely broken and needs to be fixed.
The "conservative" way can always be boiled down to Social Darwinism. The philosophy, when taken to the extremes (as is the norm these days), literally means disabled people die. It's eugenics via policy that they refer to as "common sense." This makes me so mad!
Thank you for making this video! As someone who has several hidden disabilities, I feel this so much! I work cause my benefit are not enough to live on. Even with the "short" hours I work my energy is dead. I usually am so tired I crash during the days that I don't have work to recuperate.
For them to act as disabled people are a burden to society is so detrimental it's disgusting. Even now when I sit in the disabled seating I get looks cause I don't have a "physical" disability. I have gone so long without the support that I have just learnt to endure the pain. It's sad
Even if someone is completely heartless and believes that every adult has to work (be it paid or unpaid) since productivity is the basis of all economic activity and those who can’t contribute should just be allowed to starve, there is a subset in the disabled population who can work but they are being prevented to because the world only allows for two models of “work” - rigid full time or part time. If workplaces allowed for a bit of humanity to enter the picture, more people can work or work more productively. The current way we work doesn’t work for anyone, really. It’s tailored to the married cis hetero man who does 0% unpaid work (aka housework and child rearing). But even they suffer, imo, from the hours and the stress and the lack of humanity. They may be able to physically do it for a while, but I say it takes a mental toll or they suffer physical consequences too. So accepting we are all human and have varied abilities and needs and are not perfect machines will help everyone. Plus, having a larger, more diverse workforce is productive! So they should make work as accessible as possible even if they don’t give two shits about human rights/decency.
And for those who just cannot work - I suppose they think that their families should care for them, but that means those family members might not be able to be as “productive” as they can be. Costs are always decreased at scale. A private family supporting one individual will always be less efficient than having a system support that person. So even with that productivity only-fuck human rights mindset, they should be advocating for support so we can more efficiently care for those who need it. And if they think those who cannot work should just literally be supported by no one and allowed to die - well then they are a eugenist neo-nazi and i don’t really know what to say to that other than “are we not better than that?”
Plus the cost of weeding out the fraudsters exceeds the cost of the fraudsters themselves, so it’s just an inefficient approach overall. It’s ultimately not a logical argument but an emotional one. Some people are terrified of complexity and people not being all just
Ike them and feel that others being uplifted means they are being pushed down. I swear all people in power (be it in politics or business) need to be forced to get therapy so they can work their issues out in private and not project them onto decisions that impact so many.
Thank you for the doctor part. I feel so much like I have to give up on my dream job(s) because of my disabilities.
hopefully different accessibility accommodations will enable us to work jobs we dream of doing
@@Zara_BethI hope so !
I'm terrified that my benefits are going to be taken away because my disabilities are invisible.
Sometimes it gives me an impression of concentration camp - healthy people silently observe how disabled people are slowly dying. As if there are two completely worlds separated by invisible wall
❤I agree I am Sarah craven from the USA I have special needs too praying for you
I am autistic, have OCD, anxiety and depression… my past work place was in a hospital as a nurse, at the time I didn’t know I was disabled all I knew was that I felt different, and because of that my employers made me feel like lessor or a burden even though I had all the qualifications like everyone else and did the job exceptionally well. I just couldn’t communicate the same as others, or understand somethings that others picked up instantly but eventually I would have if given better instructions or accomodations. I was anxious and overwhelmed by the mistreatment I received after speaking to the unions about the poor staffing and inadequate care and inhumane failings towards each of the patients. I couldn’t bare working in that place anymore so I left for my physical and mental health. All I can say about this planned proposal is that it’s utter bollocks and what are they thinking forcing people to work who both physically and mentally can’t cope with a normal job, especially when I know for sure they wouldn’t accommodate those people at home or in the workplace. I’ve experienced this first hand. I’ll admit it now I’m a single stay at home dad caring for a 14 year old son, it’s the best thing ever. I received a disability pension from the Australian government and it helps me to survive and care for my son. Tbh without it I’d be on the streets and no where to live back in a terrible frame of mind and possibly considering to end it all due to a lack of self worth or hope. That’s the honest truth. If the British government see me post please don’t change this and force disabled people to work, it will cause more harm than good trust me I know. Don’t overwhelm those in the disabled population and community even more than they already are just trying to survive life as best they can without the pressures of being force to work, when their is a 100% garuntee they will not get the support they would need to perform those so called jobs at home.
Thanks also Zara for explaining the spoon theory, a person expendable energy levels are vital in explaining if the can work or not as a person with a quadruple whammy of disorders or conditions my energy levels aren’t able to cope with working let alone surrounded by others. Being autistic and having OCD, chronic depression, anxiety and ARFID an eating disorder linked in means I have very few spoons and by the end of the am usually exhausted and require quite time to recover those few spoons back so I can replenish them for the next day. Throw in insomnia and it’s a melting pot of exhausting.
Zara would you mind or be able to do a video on OCD and how it affects your life? I know one thing for me it takes away a lot of my viable time during the day because my mind and compulsions/rituals are always telling me to get fixated on something that I can’t control or avoid wasting my time on it. I get frustrated by this disability because I want to be more productive but I can’t.
Omg Same as me! Different diagnosis (bp and anxiety fibromyalgia) but I worked in the hoosital in the UK and I just felt like shit all the time from the treatment from other staff, the clickiness/bullying/being left out ect ect made life horrible there. I never slept a night before a shit threw panic attacks and had to go and girl constantly. I know it's not they're problem to deal with I get it but my god don't make things worse. I literally had someone come up to me and one point and ask me if I was like mentally ill! I also didn't know all my diagnosis at this point as it was quite a while ago.
Wow. Just, wow. I am so infuriated that anyone would make a statement like this! Especially governments. I’m not necessarily stunned by these comments from them (because it’s happening in the USA too). But I completely understand and agree that this is completely not okay to do. Especially to those who are already struggling to get the benefits they need. And to be denied from them when we can’t fit the “standard” mold (that honestly, I don’t think exists) is absolutely atrocious. Since I already despise a lot of governments, my thoughts are as follows: Angry face x3, Cussing out face x3, Concerned face x3, Crying face x3!!
Thank you Zara for sharing this and I hope this gets resolved asap! Sending love and spoons! -Gracie
Im disabled and I do work. My symptoms are well controlled enough for me to keep up with able people (even get some important promotions, which I'm really proud of). It is incredibly difficult to work and manage my illness. I kinda manage, but there are definitely parts of my life that I'm dropping the ball on. I consider myself lucky that I am able to work, but I can't imagine expecting someone who doesn't function as well as me being forced to work. It's horrible.
I was looking for videos of people from the UK to train my listening in British English and I ended up coming across your videos, somehow the videos you make are work for people, as inspiration for people who have other problems or even their own problem, In my case, your videos have been of great help both to train my English and to learn more about this syndrome that you have. Here's my congratulations and thanks. continue… you are very hardworking, a hug from an anonymous Brazilian friend.
I have Fibromyalgia and EDS, depression, anxiety, BPD, DID, complex trauma symptoms, migraines, undiagnosed ADHD I’m scared of this happening. I hope it doesn’t come in. i’d be a danger to myself and others in a workplace. I can lash out physically and emotionally due to my conditions it’s ridiculous. I used to work for DWP, the % of fraudulent claims is 0.7%, I’d rather have a few scroungers get it than a single genuine person lose their money
100% agree, some disabled people who work find it easier to work not at home since it helps with routine. It is often a bit easier for Autistic people to work in there specail intrests if they can work since it is a more familiar environment. I am Autistic and have Moebius Syndrome and it is really hard to even get an interview for a job.
Im struggling with neuropathic pain from a car crash. Also developed misophonia afterwards and life sucks a lot. If u see me in person ull never guess theres any struggle. Some days are ok, but others may turn into real struggle. I quit regular job 5 years ago, tried to re-engage with regular work again in the begging of the year but was able to make only 6 months, then i quit again. Hopefully i code and program so im able to work from home and to make a decent living. Good job to everyone who is going through some kind of debilitating ailment and are still going. Thanks for your video, kind lady.
Yeah, his statement is super messed up. He has a complete lack of empathy for his fellow human beings who are suffering. That's some sociopathic behavior right there. All non-disabled people have to do is put themselves in disabled persons shoes and they'll realize, "oh crap this system we have seems to only account for able bodied people and disabled people are swept under the rug and treated as a drain on society."
I really appreciate you. It must be so difficult and painful for you, but you never give up and you always do the best you can. All my love to you ❤
12:44 Eastern time ☮️
Thankyou for sharing your truth so bravely! You are so relatable.
Thankyou for normalizing all these feelings here.
I had a jaw surgery due to traumatic injury and now deal with muscle, nerve, and vocal spasms. I have gone for mri to see if seizures. Whatever I deal w, I can relate to neurodivergence.
I can relate to feeling disabled and feeling gaslighted like not good enough.
I get tired of feeling held up to these expectations in society when I deal w chronic pain and these symptoms that are not normal. I feel some people (even in my family) don’t understand or are jealous. Maybe I look fine in one moment so they judge based on that. Or I just get judged for “mental health” but if anyone dealt with the amount of spasms, stress trauma, the vicious cycle of pain and stress they would not be jealous I “don’t have to work. I wish I could. I wish I could just feel normal whatever that means.
Thankyou for normalizing my existence, my daily experiences and feelings here. I am sure you are helping a many!
Blessings to you dear one🌞
I HATE How he said that.
(I’m autistic and have ADHD)
Imagine being severely depressed and then you get forced to work 🫠
I have chronic fatigue. Keeping myself and my house together is literally all I can do. At my worst I couldn’t even shower more than once a week.
To force me to work would 1, fail and 2, mean I’d expend energy I need to care for myself.
BUT the work capability assessment I had, did look at if I could work from home. I don’t know if that will be affected by this.
I fortunately don’t suffer from depression but my 17 year old son is so so sick with it along with extreme anxiety (plus he’s just been diagnosed as autistic too), that he couldn’t attend over 4 years of his secondary school education, because he became housebound, or sit any exams despite him being academically extremely bright. When I think about his future working career (as he’s now trying to do his missed GCSE’s and an engineering course at college with finally the help of medications) along with my other two autistic sons, with mine and my husbands severe disabilities, this possible new policy literally scares the s#*t out of me. Me and my husband have worked full time for a combined total of over 65 years and now that we can no longer work and have to try and manage with severely restricted lifestyles (and quality of life) then this is the last thing we need. It will probably finish us off, but maybe that’s the plan as less disabled people are around then it’s better for their budgets. X
@@rossfamily1184I have early onset schizophrenia (I was diagnosed in early high school), and I was home bound for a good amount of high school, similar to your son. Despite everything, I managed to graduate and I’m currently in college, so it is possible. It’s always a struggle, but thinking about the future actually helped me pull through
Imagine????? ......right....... most people have to imagine this. instead of living with the reality of depression, on top of other debilitating conditions, and being unable to obtain disability.
@@Sixica actually you’ll find most of them worked far beyond what they could handle until they hit rock bottom and got significantly sicker.
I can't work, I can barely do other stuff. I managed to get on ssdi but the system does whatever it can to kick people off of it.
The politicians say things like this, in The USA all the time. Disability.. Or welfare.. Or elderly assistance.. Or even Food assistance for people barely making it. Even while working. They say welfare is a major drain on society .. meanwhile. In the USA our politicians vote to give Our military $700 BILLION dollars a year. .. and our military had just started doing an audit on itself. And regularly can't account for nearly one Third of this yearly fund.. to put it in context. Welfare. Disability. Food assistance . And assistance for the elderly. Would altogether add up to roughly what the Pentagon can't figure out what they did with.. so.. $250 billion dollars a year (it's actually more) and maybe out of this $700 billion. . About $190 billion Actually go to the soldiers and veterans.. a major chunk goes to military contrasts.. Boeing. Lockheed Martin... Blackrock.. and they buy a $600 million dollar jet fighter. Which is obsolete Because they should be developing Drones to take the place of manned Fighter jets. But I digress....a lot of$ lost is from devalueation . Like when you get a new car. Or Phone. The second you own it. Open it use it for a half a minute. It loses at least 15% of it's value. Because it's used. Well on a scale of mega billions. I can imagine what that number can be. But still. Don't try and cut disability when out military complex can't even tell where $300 Billion dollars a year went!
Conservatism consists of exactly one proposition: there must be in-groups whom the law protects but does not bind, alongside out-groups whom the law binds but does not protect.
I am one of the few that refuse to rely on benefits for my disabilities. After all, some people can work despite their disabilities. But I was a rehab tech for OT and there are people with disabilities in their forties that don't have the cognitive ability to move or even talk and work from home! I've pushed myself to go farther and farther, but I know there is only so much that I can get done in a specific amount of time due to my autism and other disabilities. I constantly feel like I'm going to get fired just because I am not always the fastest at work, or I am not very good at explaining things. I'm not a rehab tech anymore btw. But I'm constantly afraid that I won't be good enough due to my autism and adhd and other disorders. I don't expect the world to change for me, I don't whine for special treatment, but that doesn't stop the uncertainty that I will continuously struggle to do what I love, have relationships, and be able to support myself on my own
So what i have learned in the 40 years on this planet is that people that dont have mental disorders cannot empathize with us that do. I have severe anxiety to the point that it manifested physical symptoms. leaving the house use to take 7 spoons most of the time. Ive lost jobs because of it, and my wife. She being "normal" just couldn't understand. It took 20 years to find the correct meds to manage it. I drive a lot for a living now, something i could never even dream about doing before. But with that, it puts me into a depressed state that just drains me. But its better than feeling the way i did. I have fallen in love with your content, and i am so greatfull for your stance on this issue. You have taken your disability and are using it to help people, keep up the great work, from across the pond.... thank you!!!!
When employers see our disabilities and illnesses written down then they probably wouldn’t want to even consider us let alone employ us. Also what effect on their insurance would this have when they do employ someone with a severe disability? It may also cost them a lot of money to make any adaptions required to the workplace and also get H&S involved. When I did try and job hunt for an easier job with less hours just after I had to stop working full time in my current job because of my progressive disability I was told at the job centre (in a nice, caring and not in a condescending way) that no employer would even look at me and she doubted very much that I would even be invited to an interview. She said she wanted to be honest with me so I didn’t get any false hopes. Shortly after I was assessed and found unfit to work in any capacity so how can that suddenly change? X
Very well said 👏🏼 💜
Brilliant video ❤ from Ireland
Yes, BUT, with reasonable adjustments in place. Unless some other means of acquiring an income is obtained.
Love your videos do you have any advice on nurodivergency at school as love my new loop earplugs and noise cancelling headphones I have a chronic illness and probably autism
Good morning, New to your channel. I used to be a personal character for a disabled person spent a lot of time advocating for the 45 and the 801 laws back in the day.
I have autism and am unable to work. I spiral down to a deep depression. I go to a daytime activity for people with autism. I ‘work’ at a restaurant there, without the pressure of being employed.
I want to work, I just can’t. I have a special government payment for young people that are disabled or became disabled before their 18th. I work on my own terms in the restaurant, 2 days a week (4 ‘blocks’)
Yes, the guilt I feel everyday is huge. I still have the security of a “full time job” to go back to, (not getting paid) but I literally cannot work, and have not worked full time all year. I am lucky my workplace have let me keep my contract, as they value me and want to give me the choice in the future if I am well enough, and the peace of mind, but I am now on disability. I sit at home so unwell and spend every second absolutely wracked with guilt on top of being sick and having seizures. Just because I used to be able to work full time, and my illness is invisible. I still hold onto my job, wishing one day I could be well enough but deep down I know I am never going to be able to work the way I used to. I am tearing up right now, because I love working in mental health, it’s always been my “purpose” but I can’t even fulfil my life purpose because of my disability. I worked full time and studied full time to get my honours in Psychology and only just made it across the line when my seizures started this year. I am weeks away from possible registration as a Psychologist, this was my dream, and I am tearing up writing this because it’s truly gut wrenching knowing how many others go through this, not being able to do what they love, the guilt, feeling so much shame for not being able to do what society expects of us, based purely on how we appear to them. Like not a second of the day do I enjoy being at home on disability, I can’t enjoy a thing.
I’m not from the UK, but I can relate to the whole “work” dilemma as a person with invisible disabilities. I’m autistic and have severe social anxiety that’s confined me mostly to my room for going on five years. In that time, thankfully I’ve been able to attend a school for “vulnerable youth” that has accommodated me, but my time there is coming to an end next year. Thinking about what’s next is really scary. It’s hard enough for able-bodied young people to find out what they want to do with their life, but it’s even more difficult when you’re also left to wonder what you CAN do. Most workplaces would not be suited for me because of my intense anxiety in unknown places and situations, inability to talk to strangers, need for downtime and structure, etc.
I have a left below knee amputation. Currently wheelchair dependent. Lumps on nerves mean it's a shit load of pain at random intervals.
While going through run up to my amputation lumps were found on my spine. Those lumps have gone but the wrecked nerves in my lower spine so sitting down for longer than 45 minutes to a couple of hours (it varies). Then need to lay down to recover, never know how long. It has meant a load of personal bathroom issues...
That doesn't even begin to cover MH problems.
New subscriber here, i really like the things you post.
Ps. If politicians should do their duty, work for the peoples good.
8:05 I’m a disabled person with Asthma and I don’t have much force on one of my legs, asthma counts as a breathing disability, People are getting mad at me during gym class in my school and it bothers me, I have to take breaks a lot for the sake of my lungs, so that makes a disadvantage from my group/team and they get mad, but like- cmon! I can’t control my lungs? How about you try to start feeling what it’s like to not be able to go outside because your lungs will feel pain eh?
-A Mexican-American.
Right, this makes my anxiety terrible!! I had not heard this. We did a reform- why are we doing it again? I can't go through all that again... 😭
I agree it is totally wrong. I don’t know what would happen if It happened to me. Hopefully it will never happen to me.
This video is so important
As a person with cerebral palsy and hydrocephalus (that water on the brain thing really makes working difficult) and an electric wheelchair user because of my CP it really grinds my gears that the government think disabled people are lazy. Zara I love the fact you're shining the light on what us disabled people face and you know how difficult life is as a disabled person yourself
I am loving the socks on the desk behind her❤❤❤😂😂😂😅😅😅😮
As someone with hidden disabilities and on disability benefits, this really scares me. Going through the long process of getting PIP is arduous, degrading and you’re made to feel like you’re begging for the money which you’re entitled to. At the moment I ( like a lot of other people) am really struggling with the cost of living crisis and the never ending rises in heating costs. I am constantly juggling my finances to be able to feed myself and heat my home, I can barely make ends meet at the moment - then to hear news like this terrifies me, I’m worried sick. I would gladly give back every penny I have ever claimed if it made me well enough to work, I did not chose to be disabled
I believe that disabled people should have the care they need to live a fulfilling life. This includes the consideration of their desire and ability to contribute to society. It should be their choice.
I feel guilty because I can't work when I grow up as I have been studying something which I cam now not do
Your tic "blooper reel" made me smile, but you should consider editing them out less... at least sometimes. I follow many similar channels and don't think the editing makes videos better. Your tics are not only a part of you, but a large part of your platform. I can see maybe editing out anything offensive you accidentally say, but I say be you.❤
I live here in Georgia (the USA state and not the country) where 18-64 year olds who can't get Medicaid any other way are being made to show that they are working or volunteering at least 20 hours a week or for 80 hours week unless they are able to get a disability accommodation of not having to show any activities at all under this particle Medicaid expansion called Pathways that is being paid for with state funds here in Georgia.
I love your videos!! I am just starting to create my own videos and stuff, any suggestions on how to gain followers? Love what you’re doing!! 💖
Wow, your British Government sounds exactly like my American Government... Out of touch and nigh worthless.
I can’t even take care of myself, how tf could I hold a job😢??
this is too real
Zara do you have any advice on anxiety for school ?
Making anti-discrimination laws tougher would increase employment. Companies concerned about violating the law would give more consideration to applicants with challenges.
I struggle massively to find self worth, a purpose and a reson to live, this proposal makes me feel even worse. I had a full time job for 18 years until I was too sick to work. I then worked part time self employed but I even had to stop that after 2 years becauseof my disability and chronic illnesses. The whole "do their duty" really reflects how to government see us - worthless lazy scroungers. How can I find a reason for being now.
That is absolutely disgusting. Why would he do that when y’all physically can’t do anything like that. That is literally horrible and I am utterly disgusted. I hope that someone does something about this soon because it is not right and it literally make we want to fly over to the UK and punch the Prime Minister in the face not gonna lie. Anyways, have and amazing day Zara (if you see this).
Is the UK still trying to change this? This is heartbreaking.
I am in the U.S., to get on “disability benefits” here is hard. You fill out a booklet (basically covering your entire life), My doctors had to fill tons of it, sent it in, waited like a month for them to deny me. Although, how messed up is this system…they always deny you the first time, seems like a waste of time? But apparently, it’s to weed out the people that aren’t really disabled. I was told that it was due to my young age that I didn’t get it the first time. Apparently, young people aren’t allowed to become disabled in the U.S. This system makes no sense to me. The second time I applied I was told to get a lawyer. So I did, it still took months. But I got it. Yeah! Our government now agrees I am broken, and cannot take care of myself. They did pay the back amount from when I first applied. But I also had to pay the lawyer out of this. From start to finish this process took just over two years. From my doctor telling me I’ll never walk, to the first check the government sent me.
I have numerous physical, and mental disabilities. I also have a few autoimmune diseases to add to that mix. I was healthy till I was 32, then after an accident my body just decided it didn’t want to work anymore. These all impact my life so much that I have to have a 24/7 caregiver. I cannot be left alone. I am lucky enough that my mother can and is able to be my caregiver. The amount they pay her is a joke! And even though they know I have to have someone 24/7, they refuse to pay her for that.
The money I get from our government is also laughable. It isn’t even enough to pay my rent, Let alone cover any of the rest of my bills. So my amazing mother moved in with me and helps me with all the bills. Every six months my case worker calls my doctors, surgeons, specialists, and then comes out and interviews me for like an hour to just to make sure I’m still broken.
I hope this doesn’t happen in the UK. It will have devastating consequences.
as an autistic person us people that have disabilite should be free bc the minnister is jelouse and YOU zara u keep bing u x
You're amazing. I love you.
I'm disabled and I wouldn't be able to do it
100% agree
People pay taxes so that in the event they need support or others who have illnesses or disabilities are provided with support, the welfare system is there to support us all when we need it not to force people to work when they are unable to and therefore making their symptoms worse. The meritocracy has removed any bit of compassion and understanding that we have for our fellow human beings.
I get how you feel, I have sleep apnea and have fluid on my brain, called idiopathic intocranial hypertension (I.I.H, for short), and some learning difficulties and autism, and I got told I'd never work again, as I'm a liability, but what I don't get is my next door neighbour, who has nothing wrong with him, can climb ladders, build fences, and go weekend fishing when it's cold, all while claiming he's got the worst back in the world, can claim more than me and my mum put together, and I haven't even got started on what's wrong with my mum, but they won't even pay her anywhere near what she should be getting!!!! And now they want us to work, if anything, go find my next door neighbour, I'll give em his address happily!!!! Sarah from Yorkshire. X
I’m especially concerned about people whose symptoms vary from day to day. Like I’ve had days where I can be do a lot of physical activity but other days, I will get winded making tea and going to the loo and will need to catch my breath afterwards. On those days I would have to take a floor break for 10 minutes in the middle of making supper to get enough energy back to finish cooking. So what if they assess people on their good days? I’m personally fine as I can work and don’t live in the UK, but a lot of people have more severe conditions but still have odd days where they seem completely able. My dad is in a similar position as insurance is constantly trying to cut him off, because he has days where he can do a day of manual labor here and there, but they ignore the 3 days afterwards such labor where he can barely make his coffee in the morning. He will often ask me to do it as it’s difficult for him to get up to make it. But if they where to test his physical abilities on a good day, it would look like he can work a job doing manual labor. So I’m very conserved for people in positions like that.
I worked 7 years as a machinist after my diagnosis of MS.Wheni could no longer do the job.I received social security disability benefits. Its roughly 50% what I earned previously . I just attempt to adapt to a 🎢 of changes often
That's crap them saying that. I see your point and stand with you. Here in the USA there are lots of people that abuse the system that turns it for those who really need it. . as I always say to you I love you ❤❤❤
Capitalism at its finest.
Tbh I don’t think disabled peop should not be forced to ork
We should all work as far as possible. Why not work if you are able?
@@laurensa.1803 i just not saw i forgot to write not i am sorry
as i said in this part of the video, who is "able" to work is a very subjective statement! and being "able" to work doesn't mean that person can long term without it causing their health serious harm@@laurensa.1803
I'm about to go in for my disability hearing here in the US. I'm terrified, honestly. I have invisible illnesses. I'm terrified they'll deny me. Over and over again people I know, and even doctors have tried to convince me that I'm just being lazy. That mentality has litterally made my issues so much worse because I took it to heart and, of course, it had such detrimental effects that I couldn't even walk for a year. I, like Zara, can sometimes be mobile and sometimes not. I've gotten back to being able to walk, while still being in pain constantly, but still. I'm just so scared the panel or judges will think I'm just being lazy. I really have no idea what I could do if they deny me. Being this way is a full time job. I feel lucky that I can also clean my house. Sorry, end rant. This just stirred up a lot of emotions for me.
Sounds like the US…. It’s dire over here. In every single disability support group I’m in the most popular subjects are “what shoes can you all tolerate “ and “what jobs do you have??? I’m 24 and have [laundry list of disabilities]”
I would love to be able to work but I’m barely able to get by and am deteriorating 😅
Ty
Didnt even know this was happening. I have BP and fibromyalgia. The meds cause alot aswell. I used to work doimg care work. Community and hoosital. They dont think about when people are working but need time off! You get judged and looked down on so much. I had set shifts in the nhs. One due to childcare and two becuz of what i could cope with. I rememember one year it worked out i didnt work over xmas, bearing in my the next to years the set shifts worked out i did work over xmas. I was just lucky this one year i didnt have to. I was a single mum at the time with no one to even help with the kids that year and this young girl, with no kids gave me so much shit for it. Like insainly bordering bullying ! Made me feel the shittest person in the world. She didnt see my struggle to just get there to be able to work part time to support me and my kids. Just compared me to her sister who also worked the nhs would work xmas day while the one kid she had would be home with grandparents ! Lucky them. If whoever i cant even remember your name sees this, still 5 year on im hurt. Guess why ? Because i have extreme anxiety along with bipolar. Stuff like that messes with my head so so much. Anxiety is and was an every day thing that i hardly slept the night before work. Chuck in a few days off because your illness took over or worse months off and try going back into some of these envorinments were people hate you! Because your disabling condition gets accommodation which you then get made to feel shit over anway. Im a stay at home mum now. We get a top up ! Thats all. I dont get how the will get disabled people to get jobs that are accommodating all whilst not making them worse of financially. Oh and actually protecting them from work place discrimination and bullying! Especially for people with hidden disabilities. Which mine are but they affect me greatly and most days i dont even want to say how i feel.. i used to have dreams and aspirations
The thing that really gets me is when threats of surveillance and destitution are justified as ‘incentives’. No, they are products of political welfare negligence - not ‘incentives’ to work.