Living with disability | PEOPLE
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- Опубликовано: 15 июн 2019
- Jordan was born with Spina Bifida and Hydrocephalus. This documentary focuses on Jordan's story and the challenges of living with disability
''Growing up with a disability has its fair share of disadvantages. When you see normal kids out in the playground and you are sat there on the sidelines, because you can't join in...that takes its toll on you'' Jordan
👕 Turning real stories into unique pieces you can wear.
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EPOCH is a project focused on sharing intimate and inspiring stories of people, through the form of short documentaries/films.
I found Jordan's story through Humans of Leeds Instagram page. Please check it out for a bunch of inspiring stories: / humansofleeds
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Thank you for watching. If you are looking for ways to support my work, you can do it by sharing it with friends, family or other platforms. You can also become a patron on www.patreon.com/epochdm
Here you can have access to the full interview with Jordan, as well as other posts where I share my future ideas for this platform.
I'm currently looking for people that would have a story to share, but for a specific reason, they want it anonymously. No faces and no names, just voice. It can be done by phone or personally, so anywhere in world would be doable. The only requirement is to be able to speak English. It doesn't need to be perfect - it's not about the grammar, it's about the story. Let me know in the comments if you know about someone.
Jordan is also taking over my instagram account next weekend to answer any questions people might have. So if you're interested, you can join by following instagram.com/epoch.dm
Finally, can't believe we've reached 10k. Thank you very much for all of your amazing support
Was this comment supposed to be pinned? (Or has it been pinned and was unpinned later?) Because right now it's at the bottom of the comment section, which is really a shame.
Also, I might have a story to share myself if you are interested, though I'm not sure what you are looking for.
Thank you for your great work. Your videos are amazing.
@@kilumbata thank you so much. It was supposed to be pinned but maybe I forgot haha
I would love to hear your story? Could you email me to epoch.documentaries@gmail.com
Thank very much for the support :)
@@epochstories I'll definitely email you, though it might take a few days, as I have some things to wrap up first.
@@epochstories How much do you want to know already in the email?
@@kilumbata as much as you feel comfortable telling really. Then I'll probably find a way to contact you so we can talk better about it :)
Wow, the fact that he looks like he's really good with children but still doesn't want to have them because he's worried that the child will be like him is heartbreaking. Thank you for sharing his story.
Honestly, for me that touched me a lot too. When I saw him interacting with his godchildren I could really tell how much he loved them.
it really give me a goosebumps.. someone live a very different life..
This is exactly how I feel with my disability
He’s smart
When he said that I felt like finally someone understood what I have been saying cuz I'm kinda the same I'm disabled and there is a big chance that my kid gets the same from me which is why I will never have one on my own even tho I really love children and I don't want anything more then been a father but I can't put them through that
“How do I expect others to accept me, when I can’t accept me…” That hit me hard…
i was also born with spina bifida and hydrocephalus. everything he said just made me extremely emotional. it is surprising realizing that i am not alone in this. the way he spoke about not finding a relationship hit me hard. sure i am 14 and i am really young but even in today's day and age most people my age look for love and relationships, and it is really hard to accept that nobody wants you because of something that you can't control but that's just how things are sometimes. not even just finding love, but finding friends is also extremely hard because at first sight, a humans nature is to judge based on whats clear to them, and most people never stick around long enough to know me for who i really am because theyre repelled by the fact that i have a disability. and even when i do have a "friend", it usually feels like they're friends with me out of pity, the pity of me not having anyone. i am grateful for the few real friends that i do have though. but at the end of the day, this much judgement in life for something entirely involuntary still really hurts.
People who bully are weak, not strong
Yeah, usually it means that there are a lot of internal issues to resolve and so they project it on others
As a kid with cerebral palsy this is really close to home and I appreciate you for doing this and creating this
I'm so glad it has connected with you. Thank you for watching Reagan
I work in Disability Services. Thank you for using your incredible art and talent to elegantly and respectfully shine a light on this realm and his individual experiences. His story is one of many who certainly deserve the voice, empathy & empowerment you provided through this film. And with such quality of art. Sincerely: thank you.
Thank you so much for such kind words
Why there is so little attention to this channel? This is decent and deserves at least a hundred times as much audience as it has now.
Thank you so much for the kind words. I don't know to be honest. Maybe it's because I don't post that often (this type of work requires a lot of time), or maybe this type of content just isn't for the RUclips algorithm. Not sure. But I'll keep on trying making my best work and see where it goes with time 😊
Can people not see he has it hard enough as it is. I wish I could help this lovely man
This man is such a legend. This video was so touching and beautiful!
Thank you very much! That's all I care. That my work inspires and touches people. Thank you
They don't know what it's like. It's impossible to truly know until you yourself have experienced it.
You‘re SO GOOD at this Epoch! 😊
Dear comment scrollers, have a great day! Take the positivity from this comment and share it...
Thank you so much! And thank you for dropping a lovely comment to everyone. I love the idea of a supportive community towards each other
This person is my cuz he does an amazing job he try’s his hardest and always pushes hisself to try harder Iv never know him to do his best xx
I had a lovely time with him and we had a fantastic 3 hour long conversation when we first met. Really inspiring
Great mini documentary. The editing and shots with the audio all come together very fluidly and professionaly
Thank you very much. I always try my best to keep it as good as possible
I admire your courage, even though I was not born with disabilities I have struggled with alot of things. your story inspires me . Thank you
Thank you. I'm glad this story has inspired you
Every word hit home , if this didn't explain what I'm then nothing else does.
Being afraid of having children and borderline making everyone around me believe that I hate kids when I love them and don't want them because there's a 50% chance of them being born with my disability.
The " why me? " part.
The part where I was angry at home because I couldn't stand up to bullies and outside world. And the regret i carry because of it.
The "reflection part "
It was as if he told my story of living with spina bifida for exactly 22 years today.
YOU DESERVE MUCH MORE SUBSCRIBERS, YOUR CONTENT IS AMAZING, your videos warm my heart, please, please make more of this content
Thank you so much! I'll do my best to keep on bringing more and more stories, and to keep on improving my delivery of content
This guy needs a friend to lean on.
He actually has a lot of amazing friends with him :) I didn't manage to film him with his friends, but he has a lot of people around him.
@@epochstories good, that makes me happy.
I have poliomyelitis, and I understand you when you said "reflection" while you're walking. Just walk man as you best can do it. You're not alone. Thanks for share your history,
Hi Jordan,
I understand the challenge you might have faced throughout your life. I have not experience it myself but my husband has a Spina bifida too and his walking limitations are on very serious level.
We live in India and it's not easy for disabled person to live here.
But he has converted his challenges into his strength, he has modified, updated, upgraded his surrounding to give him optimum live.
When I met him for first time, amazed by his strength and positivity, I asked him - don't you feel like questioning why only me?
He said I never got this question in my mind, because it's answer will not be any help to live my life better. I always asked how I can I do this (whatever he want to do).
My husband is 34 and when he was teenage the doctors already gave up on his condition and gave couple of years to live.
I know life is never easy, but what I learned from husband is focusing on finding solutions can only make it easy, complaining and grieving is of no use.
I hope you find the right people to talk to . Keep positive .
Oh man, these docs are so good. Incredibly touching and incredible well made.
Thank you very much Daniel. I'll keep doing my best to improve my work even further
Keep up the awesome work
Thank you very much Matthew
This made me cry
All my best wishes are with you Jordan
Thank you Michael
The pain in this world is too much sometimes.
Beautiful video. It summarizes everything that I have felt through the years of living with Spina Bifida. Thank you EPOCH for making this episode.
Thank you for sharing Jen! I'm glad it has resonated with you
Jordan words were so touching and moving - his strength and courage will see him through - top lad he is.
He is indeed. Had a great time meeting him :)
Killing it Epoch! Keep sharing stories :)
Thank you so much! I'll keep doing my best
Brilliant video, truly touched by the stories shared through this series.
Thank you so much JitterEye. It's always nice to read your lovely comments. I'll keep working hard
Thank You for sharing. Know you are not alone and that your voice has helped someone else today to keep the courage to carry onwards.despite the dissability.
I appreciate your channel so much.
And I really appreciate the lovely comment. Thank you very much!
Wow thanks brotha. You do have an inspiring story, thank you for sharing it. I've always thought of people who experience hardships like this as becoming some of the strongest souls.
It's very difficult mentally, and physically.
There have been weeks and months at a time the last few years that I cant, or can hardly, walk or function normally.
This is the first year I've not been able to work, it takes your mind to dark dark places.
It's inspiring to see your acceptance and decision to continue on. I'm still in denial of my situation, but am beginning to attempt accepting it, and consciously looking for hope each day.
Keep doing your thing man, it is very inspiring.
Thank you for sharing Chris. I hope you can overcome the obstacles your going through
Yes I have a disability myself I agree with you we can be targets while we were in school
You are Stronger then most people I know. Thank you for your courageous story.
I'm disabled too. I made the choice at 18 not to have kids. This was after 2 accidental miscarriages. I feel I made the right choice. I really respect his decisions in life and I know he will emotionally find his way. It sounds like he's on his way. Thank you for sharing his story. ♡
man these videos are just so amazing and inspiring, keep up the awesome work !!
Thank you so much! Comments like these are really a big motivation. I'll keep doing my best.
Loved this short film! Jordan was so interesting and wonderful to get to know a little bit. Great filmmaking work.
Thank you very much Brad :)
Another great video. Awesome work mate.
Thank you very much Benjamin
What a great story. Jordan you are an inspiration to all.
Very touching....great work and good luck to Jordan!
thanks for this. as someone with aspergers it's more relatable than i would prefer...
more education is needed on the "other" the people that can't do everything automatically.
Thank you for sharing a little about you John.
I completely agree. We should aim to normalize disabilities and other differences between people. We are all different, and so we should appreciate it, rather than judge it.
I have a lazy eye and I needed this my eyes now move on it is own and it is great to know i am not alone I will keep fighting thx
This video saved me
This man
I mean it is real and kind And realistic
I hate the toxic positivity and delusions of how hard disability and it is limitations
It is hard but we will keep fighting
You are amazing person
Hey, Congrats on 10k subs!
Thank you! It keeps going up and down haha
Hello, You are really strong and very lucky. I physically handicapped, 80 percent. I have two daughters and four grandchildren. Reconcile with your self.You can move on your own.Try to have good friends and be active. How blessed you are. Thank you.
Thank you for sharing Simon. I'm sure Jordan will appreciate those words
TY for sharing. Awesome job.
Thank you very much!
As the father of a child with a disability I've come to realize that I learn more from him than anyone else. Watching him live and enjoy and struggle but carry on anyway! I realize how disabled in our hearts we all are!
He's the normal one! He's the warrior who lives the life God has entrusted him with. We must see the value and respect that each and every one us has as a child of a God. We're all important and we all matter and we're all loved more than we'll ever know! Our choice in life is to accept that fact that we're loved, and to accept what's been given us. We're given certain things in life (at times difficult) that we perceive as not normal for a reason! Maybe we're given these difficulties to teach something that we never would have learned if we didn't have a certain struggle!!
Very often we'll never the reasons why but we must accept it nevertheless! Life is all about choices! Chose to accept, forgive, and don't look in the rear view mirror but through the windshield which is forward!!
We must carry our cross and fight the good fight till the end, and at the end of a difficult, joyful and sometimes very troubled life, our hope is to hear those words....
Well done good and faithful servant! Now enter into your Father's House!
Thanks for sharing your story. You Are an Inspiration to Many
this is really an inspiring story...now i’m gonna make my english project on this documentary only...thankyousm for sharing ...this need to be spread a lot!!
Thank you so much!
He a very nice looking guy with a pure heart
I am inspired. Thank you so very much💖
Much love. 💛
Love your work great video
What a great and smart guy he is. Thank you for your wisdom. I have cp myself so i know it all too well.❤
I dream of a day where we have a social consciousness to fight for our rights (those who can) and our mistreatments such and micro and macro agressions we live and have a viral moment with hashtags. Thank you for sharing!
I'm truly sorry for you.
You are simply amazing! I got spina bifida and celebral palsy so I totally understand you but I think you are beautiful inside out!!!
Thank you for sharing Payal
@@epochstories my pleasure
I just came across your video, I was born with cerebral palsy, it was mild but as I've gotten older my balance and motor skills have gotten worse, it cause me to have the early onset of degenerative arthritis on my joints. In my 40's my condition start to really take it's toll and at 50 I took early retirement and applied for SSDI. I'm doing the best that I can now, just go at my own pace, Just want to tell you to keep you head up.
Hi
Rock on, Jordan, rock on.
So brave, so tough
Man...you are good...n kids are health too of yours....seems all ok... morning problems can be overcome ...thanks...Deep
I saw so much of the things happened in my life in yours too.
Thank you for sharing Gihan. I hope things have turned well for you
Hope he meets someone lovely and be happy together
He definitely will. He has such an easy personality :) And he already has a lot of loving people around him too
very impressive work..
Thank you very much :)
amazing he's so amazing
I wanna be friends with Jordan
He's a great guy :) I had a great time getting to know him
what a inspiring video
Wow , what a story
If you can answer why not you other than someone else than you will magically be cured, imagine you were a caregiver to a child like you, than ask why you all other than someone else, a rich man told me if I could tell him why I deserve a million $ other than someone else and I couldn’t so now I am an old disabled caregiver to an adult child and both of us are poor and disabled because we still can’t answer why we deserve to offer this to other people.
Good my friend hard work life
There should be presentation of disabled in UN to raise their voice
This is an amazing video. It provides a lot of awareness on what everyday people tend to ignore unless they are directly effected by it. Jordan is extremely strong and independent as I don't know how I would do it if I were in his shoes.
Thank you so much for your kind words :)
I feel for the guy, I really do. But for me "why ME?" equals "It should've been someone else".
I much prefer to say "Why ANYONE?!"
That's a very valid point. From the conversation I had with Jordan, I didn't feel like he would wish that to anyone else instead of him. I feel that "Why me" was more a mindset he had while younger and the frustration of it was directed to himself, rather than others. Now that he's older and more mature he really accepts himself as him. Either way, I think you brought an interesting perspective. Thank you for sharing your opinion :)
@@epochstories - Thank you for taking the time to reply, and for your comments and perspective, it's very much appreciated :)
@@garyt4394 I'll always do my best to reply, even if it's just a thank you. For me, if you take your time to show the support, the least I can do is replying :)
Absolutely Superb!!!!
Thank you George!
@@epochstories your work is exquisite. You should have more views
@@GeorgeEliasPresents thank you so much! Hopefully it will get there with time 😊
I want this to be my life as wheelchair user from botswana and born as "spina bifida"
From someone that has been living life with disabilities myself, since I was born with a speech disability since I couldn't speech properly even the times.
I have to go to school even with disabilities but I never like the times I was being made fun of because of my speech disability which makes me not want
To go to school, which I do know in fact there will be people that will not respect people with disabilities which I know in fact there will be people that will.
Called people with disabilities the r word which it is so disrespectful to called a person with disabilities the r word which can hurt that person that has disabilities
Since someone from a Canadian high school goes on calling me the r word, which is pathetic of him calling a person with disabilities the r word which I know in fact.
There is not such thing as nice Canadians anymore since there exist rude Canadians that I encounter that were rude to me even in school which I have such struggles
Having to learn with learning disabilities, which I do see in fact school can be really frustrating for people with disabilities which I am sure there are other people.
That has disabilities that have struggles learning in school because of learning disabilities, which I never have any good times in school due to bullying and even
The times I was harassed in school before by rude skinny people that goes on saying to me, that I never have a male private part all because of my weight which.
Did got me mad how I was being harassed by rude skinny people that goes on claiming you don't have one by saying I don't have a male private part which is so cruel
To say to a fat male, which I do see that as harassments to say to a fat male that they don't have a male private part which also the times I never like the times.
I got name called by rude students and classmates too, from the times I was being called stupid which that honestly did hurt me before and even the times I was being
Gay harassed by males and females! which doesn't make sense to me of a female gay harassing a male though, since my own sister gay harassed me by calling me gay.
Which she was being homophobic to me and even the times I got gay harassed by other girls too, and even the times I was being called gay by males too and even in
School! and I never like the times I was being called as the f slur even though I am straight! which they were being homophobic to me by calling me the f slur and even.
They were using the f slur as an insult well even though anything nowadays can be used as an insult, since we are living in a world now that anyone will use anything as
Insults now, since I have see people use autism as an insult and gay and even the word scrub and snowflake as an insult and even how people are using kid as an insult too.
And even how people are using redditor as an insult too, which does proves to me that people will use anything as an insult though like ever since my school years were
Getting so bad since I have to go to school with disabilities, but having to deal with getting bullied and getting treated like crap since I was trying to be social to other people.
But I never like how I get told no one ask you which I find that so rude and impolite, like I quit school to stop my stress and my hell which I honestly wouldn't care anyway that I
Will end up homeless anyway, I would be happy to go homeless instead of having friends and being socialized to people which I will never will be socializing to people anyway.
Due to my bad experience with my life which I am sure there exist other people with disabilities, that will not be socialized to people anyway due to being treated badly
Which I honestly don't have good social skills anyway ever since I was bullied and harassed from school and even with my speech disability too which I honestly wish.
I was born normally which I would have a normal and good life and would be able to socialized to people and would be able to go to school and be smart and not have stress
By having learning disabilities, I just never have loves for my life all thanks to being born with disabilities I just wouldn't care I go homeless and end up being dead I would
Love to escape my hell from being born with disabilities.
wow , you did very well walking and better than me , I living with cerebral palsy
Honestly I found your channel when I look up video for listening skill (of course English laungage haha). I'm also disabled person so ıts very excited thing that listening same situation all around the world. grettings from Turkey !
Thank you so much Gulden!
Hi how are you?
Im also here like you.his skil is extraordinary and stunning.
Im also a whealchair user like him.his confidence and courage is on next level.situation is same around the world for disabled person.
Gretting from pakistan
In my opinion, situation isn't equal all over the world. By the way I just wanna say again pleasure to know someone who I same disability
@@serebralmipalsi5108 you are right according to your opinion .but according to my thought almost same situation.difference of opinion is beauty of liffe .which is admirable.
I'm also disable but I can walk easily I have physical disability having scoliosis.
this guy’s courage exhibits the best of humanity…. Especially at a time when the world seems mired in stupid people running things
I gave it the 500th like!😊
Thank you Soma :)
@@epochstories You're Welcome. The content you are sharing is really Good
I also feel like that. Just wanting to be nurotipical. It's exactly the same. Held down constantly. To much. You can make a difference to all this. It does repeat itself. You can self determin. I get that. A lot. What has happened to you had made you not except yourself. But you can. So what if your not. People will except if you ignore the strangers. You are the same as everyone else.
Hello Jordan
interesting documentary of your physical disability of spina bifadi
My God take you to wonderful places and bless you with kind friends.
COOL Ibanez electric guitar. YOU disserve a awesome band to join.
and do a music solo gig. Be safe out there. Have someone get you a service dog. And what not. And may god provide you a loving soulmate for a girlfriend who's caring and loving sweet and beautiful for love and friendship.
love all serve all.
Sean Chilton
They stare to witness not to be mean but to deem, if you want a perfect child and then later that child gets hurt and disabled, you shouldn’t cherry pick life because if you do than someone won’t get a chance to make it anyway and as best as they can, also when I am asked where are you guys going, we always answer to stare at people, we are going out to stare at what’s made it in life. When they say hello what are you guys doing we say we are staring at people because nothing quiets a restaurant like us staring at people, we can change the room on a whim.
Muito Bom! Mesmo. Ótimo content, espero que tenhas sucesso neste teu projecto. É óbvio que o algoritmo do youtube tem algo de errado, nota se logo pelo facto de que a maioria dos teus subs não são portugueses(suponho eu). Se o youtube promovesse canais interessantes e originais como teu em fase de crescimento, oh well.
Ótimo editing e Filmagem em si.
Continua com o teu fantástico trabalho e com o que adoras fazer !
Muito obrigado por um comentário tão simpático Gonçalo! É mesmo bom saber que tenho portugueses a apreciar o meu trabalho também.
Neste momento só tenho 13 episódios e publico um por mês (para manter a qualidade), por isso não posso culpabilizar o algoritmo. Acredito que com consistência e qualidade, mais cedo ou mais tarde chegará lá :)
A melhor forma de as pessoas me ajudarem é ao partilhar com amigos, família ou mesmo outras plataformas como o Reddit.
Estou a planear que o próximo episódio seja com uma portuguesa, por isso pode ser que isso traga mais pessoas portuguesas para o canal tambem. Vou sempre tentar promover diferentes línguas e culturas, porque isso é algo que acho bastante interessante.
Muito obrigado mais uma vez e espero que gostes de futuros episódios :)
I can relate about not having kids. Ever since I was diagnosed with my eye disease at 29 years old, I looked into gene therapy. I figured it was best not to have children, in fear they would get the same disease. I didn't want them to suffer.
Thank you so much for sharing. It must be a really hard decision to make
I m also disable,so I can realise this feeling
Thank you for sharing
Same
How can I contact him?
Hi i am Amputee
I am a physical disability.
As a trans woman I could relate to every word said by him
Its quite hard
at least the comments aren’t disabled
Doesn't help when DWP constantly want information and decline help and probably end up with no benefits being disabled even mentally unwell takes it's toll in time and gets to a point you don't want to go on anymore
🙂
Does he have a social media
I think he does. Let me check :)
Hello dear
Hello
He's wrong about bullies being tough. Most of them are cowardly wimps who only pick on those who can't or won't fight back.
Hiii