living with liver disease, my life expectancy, why I am not on a transplant list?
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- Опубликовано: 30 янв 2024
- A video where I go into why I am not on a liver transplant list right now. How long do I have to live? I go over a raffle on a free "liver disease " coffee mug
Music: Morning
Musician: LiQWYD
URL: / liqwyd
intro made by: Liver Disease Jr.
/ disease.l
facebook:
liver.diseas...
if you would like to donate to the channel:
cashapp: $liverdisease2024
#alcholic #alcohol #alcoholfree #alcoholism #liver #liverdisease #aa #cirrhosis #pancreatitis #bloodsugar
I've completely gone off any alcohol since watching your channel. I'm so sorry this has happened to you. I reckon I've nipped my demise in the bud before I do anymore damage due to excessive alcohol consumption over the years. That's all thanks to you.
Thank you!!! God bless
I’m on my 16th year! I was told roughly the same thing. so far, I’m doing much, much better! Keep strong brother!
How did you make it so long? What’s the secret
I will pray for you!! I lost my gorgeous, 28 year old daughter on 01/17/2019 due to liver failure from alcoholism. She self-medicated due to anxiety. She left a 4 year old daughter, & a 14 month old son. God can perform miracles & I pray he does for you, & yours!! Keep your head up!! 💜💜💜
So heartbreaking. Dam shit takes a mama from her babies!! 🥲🙏🏻
@@cynbadlonewolf9455 - It is heartbreaking!! 💔💔💔
Can someone send me the link to your merchandise please, , thank you.
9:03 Wichita Kansas. I have end stand liver Disney. My symptoms have been terrible and I am very swollen not with fluid.
Sorry disease not Disney 😂😂😂
My husband was on the transplant list for 3 years. He finally got his transplant on Sept. 2023, he passed away on Jan 7,2024. He did everything right, meds, test, follow up with the surgeons. I feel so horrible I lost the love of my life. Good luck to u and your family. Prayers🙏
i was told the first 6-12 months is when the mortality is highest, after transplant about 1/4 will pass away or get so critically ill they need a new transplant, and after these months the survival rate after 10 years are quite good, which is why the specialist i saw said if my meld continue to trend downwards she would not recommend for me to be on the transplant list
God rest him and God bless you dear. 💜
@@NoLefTurnUnStoned. thank you 🙏
I just lost my mom after liver transplant also 😢 complication with narrow of the hepatic artery try to fix it but the anatomy was complicated she could’ve kept fighting but it meant more time in the hospitals. She gave up 😔 it is the hardest thing ever.
@@johannaestrada1414 I’m so sorry. My condolences. It’s definitely difficult. Prayers🙏
This is a video a lot of people were waiting for.
Thank you for watching! God bless
My man...i hope everything gets healthy enough so that you can get a transplant!!!!! Your family and kids need you so much and you have helped so many people.....im praying
Thank you man! You are too kind! God bless
Thank you for sharing so much about your life.🙏 I’m sure I’m not alone in saying how much your channel is helpful to those of us on our journeys of sobriety.
The mug is awesome! Please count me in!
Thank you! And I have you down! God bless
I have seen folks in your comments who have lived a lot longer than 10 years with liver disease and all of it's complications. I'm like you, I'd prefer not to have a transplant, there are just so many complications. I didn't know varices ever got smaller, that is just so fascinating. I honestly feel like my life could end anytime, considering all that can happen to people. I mean, we all hope it will be longer, but maybe you can maybe not think about that part? Big hugs to you!
Thank you so much! Yeah.... it's a lot. Honestly. I would rather see someone who didn't waste their liver drinking it away get one rather than I. It's not fair for me to get one. They don't come around that often... Thank you again! God bless
U are great
As a Nurse this breaks my heart ❤prayers to you
My dad got a new liver at piedmont hospital in Atlanta. Wonderful experience during and after. We were very lucky to receive the liver after 9 months on the waiting list.
It’s been twelve years since then. He is alive and well at 68 years old. We still talk to the donor family.
Now he is on their yearly calendar and featured in their pamphlets. Wonderful success story.
We were lucky that he was able to stop drinking completely, do the courses and therapy. That really helped move him up the list. It was touch and go at the end but God pulled us through.
Oh my goodness I am so sorry you have been through so much. I definitely believe God has kept you here, and I am praying for your healing. I believe in miracles. I pray we both have a healing and a good praise report about our livers my varices are in my esophagus and intestine a few. Also I pray the pancreatitis heals, and your spleen. We stand with you may God's strength keep you during all this process. I love the mug your mom is wonderful and I would definitely like to get in the raffle or buy one eventually from you. God Bless all your family and bring peace and comfort through the healing process.
Thank you so much! I will let you all know as soon as they are ready for sale! God blesz
struggling at 38 years old after 7 years sober. had some trauma happen and went running back when I couldn't deal. been hospitalized twice for detox but haven't been able to kick it once I got back home. Thank you for sharing your story. Some of us are still in the thick of it.
I got a fibro scan and ultrasound to confirm my non alcoholic cirrhosis diagnoses and a new patient visit on feb 15th. My emotions are everywhere and it feels like I’m falling apart but your videos are helping me keep it together. Thank you for sharing! Haven’t watched this video yet but will today. Just needed to express my thanks.
How old are you and what do you think caused it?
FuzzyLiger - I would encourage anyone with a nonalcoholic cirrhosis or NASH diagnosis to ask their practitioner if testing has also been done to check for Alpha-1 Antitrypsin Deficiency. Blood testing is free through the Alpha Net Foundation. Do not let a doctor tell you that this isn’t important, it could be very important if you have it. My husband is lung affected, his sister is liver affected. I’m a nurse but have had to educate myself extensively about liver and lung decline over the past 4 years. Best to you.
@@JoeCanon17 it’s a little complex possibly. As a kid I was only 2 days old and got jaundice in the hospital. At one point the told my mother to not expect me to make it till morning. So that might be a sign to a genetic weakness or just random chance. Possibly lasting issues? But, as I was always, and still be am for now, heavy maxing out at 2 lbs shy of 400 excessive weight has always been an issues. If I had to take a guess built on a lot of self reflection and research I honestly think it’s just a perfect storm of several overlapping neurological issues leading into constant over eating and eating really low grade high calorie foods that are far to processed and containing way too much high fructose corn syrup. I was warned about 20 years ago of fatty liver but being mid 20s and having the doctors mention it as a “well no duh your fat so of course and now just lose weight” without them stressing the situation and myself not doing fallow up research is the issue. Needless to say I’m pretty much like a golden retriever always feeling hungry even when feeling uncomfortably full and want to stop eating.
@@JoeCanon17 oh, sorry got lost in my ramblings. I just turned 46 on the day I was told I have cirrhosis, but I can now beat my friends at the who has had the worst birthday game!
@@wigbangtheory3353 I will look this up and do some research.
Loved the cup, would like to be in on the raffle. Your mother is very talented. Wish you luck on your journey. Hopefully, things will look up for you. You are providing a great service to a lot of people.
Thank you so much! I have you down! God bless
I'm interested in the mug. I am suffering with pancreatitis and NAFLD. I was level 1 but went up to a boarderline 1-2. I'm having trouble with my energy level, fibromyalgia, celiac and cheonic back pain from previous sergeries and ruptured discs. My bloodwork is always wonky. I try to keep a sense of humor up. Your helping me a lot by not feeling alone in this. I wish you well.
Your Mom is amazing! Love her heart! ❤
Thank you so much!❤ God bless
Hi LD! Thanks for the update. I hope your varices and clots heal along with your pancreas, so your liver can remain stable. Those mugs are awesome, you should sell some merch! I’d like to be on the raffle too. I am a coffee-holic and collect mugs 😊. Memento is a good movie I agree. I really loved The Gentlemen 😊. Take care and Bless you 💚💚💚💚💚
Thank you mona! I have you down! Thank you so much for saying that! I will be finding out really soon how I'm doing. God bless
I live in Northorn Ontario. My brother is stage 4 liver cirrosis and Hepatocellular ca. Long story but I have lost my ex husband, my partner of 13 years of liver cancer. and father of cirrhosis.Now my own brother. You speak very well of this issue. Number one is learn to quit before it's too late. Thanks for helping people put their glass down for good.
Two of my siblings have ALD. one literally had his transplant earlier tonight. He's in ICU now hopefully on the way to recovery. I completely understand having so many people you love affected by alcoholism. ❤
Love the mug. I always learn something from your videos.and appreciate you sharing. It's not easy to talk openly and honestly about your struggles. Take care.
Thank you so much! I'm glad that you learn something from these videos! That's really cool! God bless
Your mom must be so proud of you ❤. My boys are 25 and oldest would be 29 he’s passed away but mommas love their boys!!! ❤
I'm sorry to hear about your son. Yes, mom's do love their boys. Thank you for watching. God bless
The mug is great would love it
🙏🏼 Dear Heavenly Father We ask for your healing hand on your child. We know that The Faith we have in your Son Jesus can and will bring your Divine Intervention to him. We ask this in your Holy Name 🙌🏻
Enough of that garbage
@@motive7475 Every knee will bow, every tongue will confess that he is Lord. Be polite
Thank you so much for this! You are so kind! God bless
@motive7475 there is absolutely no need for that here!
@@liverdisease-qb6rk I’m adding you to my daily devotional prayers twice a day morning and night my brother
Thank you so much for sharing ❤❤❤
I am happy your family is still with you through all you put them through, I know because I did the same thing and my wife and boys are still here❤, a true blessing that I still have them, don't know that I deserve it but I am sure grateful!
You're a blessing! Would love to use your mug❤
Cup is awesome! All the best.
Your story is nearly identical to my son who passed away on 11/27/23. He never got pancreatatitis that I know of, but was severely obese and had uncontrolled diabetes. He was 40 years old. I know all the terminology. It's good you are on task with this. My son got sick and tired of doctors and procedures. He was to obese and weak for transplant. He ended up with septic shock and died. Best wishes to you.
@investigativeoutcomes9343 so sorry for your loss. May God give you peace.
@@investigativeoutcomes9343 Well, that is a ver brave thing that he did, because it is very expensive to do treatment for all of those ailments and co-morbidities. We fought with my Mom on all of those issues, and it has drained her savings account. We had to sell everything she had, and now, we are also in debt -- more like $125,000 ourselves. Medical bills are just too much, and we're gonna have to file bankruptcy. I hope we don't lose our house because it's half-paid off. But, it's so easy to go into great debt, if you don't have really good insurance -- and, even if you do -- like my Mom's, they still charge you more than you can ever pay in many a life-time. Also, let me say -- sorry for your loss.
Love watching your channel and of course would love to be in the raffle for a cup ❤️
I wish you the best!
In interested in the cup! Keep it up bro love the vids!
Thanks dude. Similarly diagnosed. It’s comforting knowing I’m not alone.
Thanks for sharing ❤
You're welcome! God bless
I never miss your videos, you're an inspiration to me. I would love to have that mug!
Thank you for making these videos. Really gives me some hope for my future with liver disease. Take care Man
That was a good breakdown for me to hear. Thank you. 🙏✌🏻
Thank you for watching! God bless
I'd love to be in the raffle. And I think merchandise is a great idea!
Great video! Praying you heal and the next MRI shows improvement. And awesome cup! Put me on the list brother!
Praying for you man from SC!
Where about? Thank you! God bless
Roger Garcia love the channel man your a strong human being and so optimistic much respenct
Thanks for another great video 😊
You're so welcome! God bless
I’ll buy a mug. But at the moment I’m interested. Keep up the positive vibes
I appreciate you so much. You are helping so many individuals who are on their journey ❤
Great video and mug!
Please put me in.
God bless you 😇
Wisconsin here!
You are a brave young man. I hope you regain your health. Don’t give up.
Your mug is amazing! Have learned a lot about this terrible disease. Keep up the great work and may God bless you and your family.
Thank you so much!!! God bless
Love the mug LD! Your mom is amazing! Thanks for another wonderful video! ❤
Thank you so much! She really is! God bless
Thank you for sharing... 🙏❤️
You are so welcome! God bless
May you find comfort young man. God bless you honey, you and yours! Sending love to you. ❤
Also, I love the mug. I would rather you send it somewhere more locally to you! When you come out with some merch I would love to support you and your channel. You should think about making hats with the logo as well! Your mom and son did a great job creating it!
I would love to have a coffee mug! Thanks for sharing your story.
Absolutely! Thank you! God bless
When it rains it pours !! Things will get better
You are not kidding! Thank you! God bless
Awesome to hear u have a shunt
Wow sounds like u have a good team
I really do! Thank you!
I’m interested in the cup bro. Love your videos and praying for you
Thank you so much! Love all of you too! I'll put you down! God bless
You are so brave, dealing with all these health issues and you have a good outlook. Be strong. May God bless you and may you live long
Thank you so much! God bless
Hey LD hope you’re having a better day. You definitely seemed it today 😃. Thank you for the video and explaining the reasons why you’re not on the donor list. Im so glad that the second surgery was successful. I love the mug and definitely will support you when the merch is ready for sale. You have no idea how grateful I am that I came across your videos back in December. I was in a weird place, don’t consider myself an alcoholic but was on that path as I was drinking more than I would like. I just made the 31 day mark. Woot woot!! Something about your story clicked for me. Keep doing what you’re doing…it really makes a difference. I will forever be grateful to you LD and hope that you continue to heal. Everyday is a blessing and you’re making the most of it…which is the most important thing. Like the Tim McGraw song says live like you were dying. Check it out if you’ve never heard it.
Thank you! I'm so happy for you!!! 31 days is super! I will check out that song, never heard it before. Thank you for everything!God bless
I am intetested! Christian from Australia.
Stay strong brother, and God Bless!
Thank you sir! God bless
Stay healthy man!
Sure will! You as well! God bless
Thanks LD for the update! Transplants are tricky and I can understand why you may not want to do one if it's not necessary.
Bro keep your head up...
Thank you! God bless
I would definitely buy one of the mugs
God bless you brother
David Link
God bless you too! Got you down!
Hang in there, brother. I'm coming up on 5 yrs with the disease. I have alot of the same symptoms and issues.
I'm interested in the cup...thank you for sharing about your life
Amazing video as always. Mugs look very nice you should consider making more =]
I absolutely am! I will have my website with merch in the next few days! Thank you! God bless
Thanks for this message.I am interested in the mug.God bless.
Thank you for watching! I have you down! God bless
You've been through so much, but your strength of spirit & mind really shine through. You have really found your purpose in this channel - you are a natural communicator and are helping so many people. I pray that March 5th will go well and all the other tests etc.. that you have coming up!
Your son and mum are very talented and it's great they're creating merch for your channel. I love the cup, but won't ask you to put me in the raffle as I'm in France. But I'll order some merch when it's up & running. Big hugs and keep the faith my friend 🤗
Thank you so much Becky! I'm going to put you down anyway! God blesz
Love you brother ❤
I've watched most of your videos, and they've been incredibly helpful. They feel therapeutic in the sense that they give answers to many questions, and they're supportive to those who are worried or struggling. It's easy to take this kind of info from someone who you can sense is kind and genuine.
I'm going to add my name in for the raffle, but I would also like to suggest that you sell them! Maybe get an idea as to how many people are interested and decide from there! It may not bring in a ton of money, but the money could go toward activities with your family or whatever you choose! There aren't many ways that we can give back except to simply say thank you and to let you know that we're really wishing for the best for you! Even if I won one for free, I would still buy one just to reciprocate the support. God bless 😊
You are so nice!!! Thank you so much! That means so much to me! I will definitely sell some mugs and some shirts, maybe hoodies as well! I will talk about it soon! Thank you for saying I have helped! That's all I have ever wanted to do. God bless😊
Yep, interested in the mug.
Got you down! Thank you! God bless
We All Love You!♥️ I’m very sorry that you’ve been going through all of this. I’m dreadfully sick too. I sure hope that all of us will recover. You are educating many many people! Great Work! I love the cup! I’m interested and I’d love to buy some merch from you!! Thank you! & Take extra good care of you.💞
I'm so sorry that you are sick. Can I ask, is it liver related? I hope that you get better, I really do. I'll let you guys know when the merch is ready. But I'll put you down for the raffle too. Thank you. God bless
@@liverdisease-qb6rk Yes. I’m still undergoing more tests. So far I’ve been diagnosed with an inflated bile duct. They don’t know how much more damage. Thank you for putting me in the raffle. I look forward to the merch coming! Take good care and have a good day.
You officially have merch! 😁 ❤🎉I’m very proud of you for your sobriety and your efforts to help others through your experiences. I hope the best for you for continued healing. You’ve been going through sooo much here lately. When it rains it pours. I’m hoping you can catch a break ASAP! ❤
Thank you so much! I will be launching the merch very soon. Be on the lookout! I'll have a link soon! God bless
Love the mug. If you or your Mom ever get around to selling merch or art I would definitely buy something to support you. Sounds like you have a health great care team. Keeping you in my prayers🙏
Thank you so much! I will definitely have some mugs here in the next week or so. I should be able to get shirts done soon too. I really appreciate you! God bless
Praying for you, keep at it. With fasting, low carb, avoiding processed foods/sugar/alcohol of course and exercise you may be able to heal your liver.
I'm interested in the cup raffle! Later on, if you get more cups, I'd buy one!
Yes ma'am! I have you down for the raffle, I'll let you all know when the cups are ready! God bless
I like the cup brother! You are an all star.
Thank you so much! I will put you down! God bless
Merch would be great! Your son did an excellent job with the logo. Hope youre feeling well; i look forward to your videos. You would do really well as a motivational speaker.
Much love to you and your family. ❤ 🙏
Thank you so much! I'll have the merch up in the next few days! God bless
Put me in raffle. Kyle s. Keep your head up. I have similar problems. Diet is key to maximizing life
I will be praying for you ! 🙏😊
Thank you so much! God bless
🍵 im interested. Thank you for being thoughful.
Absolutely! Thank you! God bless
🙏prayers for your healing
I have to say it takes a heak of a lot of courage to go in front of a camera & speak let alone talk about your journey.
You are one strong man who is man enough to be vulnerable, kind, empathetic to others, selfless among other qualities
& your sober!!!!!!
God gave u a gift that’s for sure. I see it.
I’m so sorry about your other tooth. Dangit
Thanks for the video.
I didn’t know all of that. My goodness..
I have hope your body will start to heal & relax.
God bless
Night
Thanks Kristen!
Hey G. Sounds like you have an awesome team of doctors ! Only God knows your prognosis. Keep the faith. The mug is amazing. Sign up Jersey girl. Will support you in any way I can !!!❤
Thank you jersey girl! I will add your name to the list! I do have a great team! Hope all is well with you! God bless
Hey bro, respect from Australia. Keep fighting and thanks for your honesty and candour:)
Hey brother in Australia!!!! Thank you for being here! You are so welcome! God blesz
God bless from Puerto Rico thanks for sharing learning a lot ,and how your kidneys are doing?
@Mrstarboy331 hey from Puerto rico!! My old sous chef was from there! I heard a lot about it. My kidneys are ok as of right now. I find out more on the 22nd. I have all my blood work and cat scans this Thurs, I'll know everything when I speak to my Dr on the 22nd. I will let you all know. God bless you back !
Hey man, I’ve been having multiple symptoms to suggest liver failure for months following alcohol abuse (I’ve been clean since November) my GP is being useless so I’m going to pay to see a hepatologist soon and I’m absolutely terrified but watching some of your videos has made me feel a little better because they’ve reminded me I’m not alone ❤️
Watching from Belgium 🇧🇪 my thoughts are with you
Hey there in Belgium!!! That is so cool! Thank you! God bless
I am so very interested in getting a cup. Your mother did such a nice job. Seems like there is quite a bit of talent in your family.
Thank you! They will be ready very soon! Thank you! I will have them on my website. I already have one, just haven't finished it yet. Thank you! God bless
Great vidio as all ways. The mug is amazing. Please include me in the raffle. Think you'd definitely get some great support selling them / other stuff too. Thank you
Yes sir! Got you down! Thank you! God bless
My oldest brother just had his transplant today. ALD. Prayers to everyone affected by liver disease regardless of the cause. ❤
I am so happy for you and your brother! Thank you so much for the prayers for everyone! Keep.me posted on how your brother is doing please. I hope that he has a full recovery and he gets back to 100 percent soon! God bless 😊 🙌 🙏 ❤️
@liverdisease-qb6rk he is doing amazing! Surgery was 9 hours. He was out of ICU in less than 24. He is already home. He literally had the surgery last Thursday. It's Tuesday. There is always hope! Now he just needs to stay well. Thank you for your reply and we have to keep warning people about the dangers of drinking ❤️
Don’t ever ask the doctors for how many years you have left because they have zero clue. You will be suprised at how many people reverse their damage
Lol... hopium is the ticket..
I'd love a mug love your videos they scare me but maybe I should be.I had liver damage for a while.
Thank you! I'm sorry these videos scare you... and I'm sorry that you have liver damage, I know your pain. God bless
Keep your faith LD. All things happen for a reason. Maybe you can create a new life. For sure that is what you are trying to achieve. You can try your best from now on to do the right things for improving your health. Lots of people here wishing the best for you,including myself. Have a good week my friend.
Thank you sir!!! I really appreciate you! I am trying, everyday. God bless
Of all the no sensible u tubechannels, your serve a great purpose. Embrace it and do what u were sent here to do! It’s a great service and genuine! Thanks!
I have not watched this new video yet, but I will. I have watched nearly all of your videos now. I quit alcohol and these videos have given me some motivation and inspiration. I never considered myself an alcoholic, but looking back I can see was a low-level extremely high functioning alcoholic. Booze might have even helped me conquer some of the hardest times in life, like law school and the bar exam. But now it is time to let it go. I hope to contribute to these threads, and I hope you keep doing this channel. If you ever want to bring on a person for an interview about high function alcoholism, please feel free to keep me in mind. I pray for your health and continued recovery. Thank you for doing what you are doing here.
Thank you so much for watching! I really appreciate you being willing to talk with me! I will definitely keep you in mind. If you get a chance one day. Message me on Facebook or Instagram if you can, I would love to chat with u! Thank you! God bless
I'm extremely Interested
. This is such a kind gesture. You're Mother raised such a wonderful Soul. #Godisgood
Thank you so much for saying that! And thank you for being here! God bless
I'm definitely interested in one of your cups!!!❤
Exercise and diet with liver disease would be a good topic. I’m still trying to figure it out. Throw me in the raffle 🙌
I sure will do both! I will absolutely talk about that, it's something that totally changed my life, for the better. Thank you for the idea! God bkess
I’m watching every video even though I rarely comment. The enabler one hit close to home for me. I sometimes bought wine for my husband when it was on sale rationalizing that he would buy it himself and pay full price rather than buying it on sale. Also he didn’t know how to open the bottles and he would talk me into doing it. One time I said no and he got the cork stuck trying and was going to throw the $53 bottle of wine away so I took over and “saved” most of it. So far I’m happy to report he’s cut way back to one day from his old habit of four days a week! I’m 37 days today and he was joking about drinking a $500 bottle today and I had no desire for it!
Regarding a liver transplant, I’m not sure if everyone is familiar with a domino transplant but sometimes they do those and they are able to save two people. It’s available in specific cases. My niece has a very rare genetic disease and she was able to get a liver transplant which saved her and her liver was given to someone else without giving the 2nd person the problem she had which was inability to digest 3 specific amino acids. I’m not sure how common that type of transplant is but I think it’s amazing how they can do that.
Thank you so much for every video. You are helping so many of us! God bless you.
Thank you so much for watching every video! That's so cool! I'm glad to hear that your husband has cut back k too! Thank you for sharing that! Also, congratulations on 37 days! You have got this!!!! Thank you for everything! God blesz
Love the mug and would like to buy one! I recommend Gran Turino - we watched it on Netflix a while back. You sure got my attention when you mentioned your filling, my dear I hear ya and feel ya! Lost fillings, teeth chipped and once the fillings fell out those teeth started to break. Not fun. I drink a cup of milk a day plus a calcium with d3 and k2 - not sure if that helps but I’m sticking to it. Keep up the great videos, I really appreciate you doing them. 😊
Gran Turismo - oops
Thank you so much! Sorry you have been dealing with the same thing. I will let you all know as soon as they are ready for sale! God bless
I know you had to get somewhat honest to get all those pro's to give you the time of day. Something tells me you're going to get through this even though your condition is serious as heck. You're doing the right thing with this channel. Godspeed
Thank you!!!