End stage liver cirrhosis my symptoms
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- Опубликовано: 11 сен 2024
- This video is about how I first noticed something was wrong, and a bit of my story. Remember to stay positive and you’re not alone. There are many of us that have this. Also I need to move closer to the specialists that I need for all my conditions. I’m 4 hours away where I’m at now. If you would like to help me you can at
gofund.me/4819...
I hope this video helps. Stay positive and thank you for the support
My husband went in the hospital on 10/05/23. Diagnosed with liver, congestive heart and kidney failure and a collapsed lung from all the acities. I was told that I would never bring him home. He was transferred to GW in DC then to John’s Hopkins’s. His Meld score in beginning of Dec was 33, his February appointment meld score is down to 6. He walked a 1k race in June.
What caused all the failures? 6 is the lowest MELD score you can get. A normal person has 6. It’s a mathematical equation that the lowest is 6 and the highest is 40 but 33 was super high. There are many types of liver disease too. Does he have cirrhosis? I’ve seen where all 3 like that get bad together, it’s obviously to do with the liver but I forgot what they called it. Renal failure or something I think. But that had to be scary.
@@Redneckkenobi end stage cirrhosis due to years of alcohol abuse. Black coffee, avocados and berries. Low sodium diet.
@@Redneckkenobi He was so bad he was placed on the expedited transplant list without the 6 months sober requirement.
This is what life is all about.
A lot of times this is a snapshot in time thing. A dramatic presentation by a doctor should not be trusted. I worked inappropriately hospital and the prestige of a program is based on five year survival rates. A lot of times they are anti-white racists practicing Judaism who will use you as a guinea pig which was the case oat the Unit I worked at. One surgeon from the Unit actually wrote a “fiction” book “Heartland for Profit” which was really an accurate portrayal of what the nurse’s knew was happening which was performing operations on healthy patients, one of which was a college student.
My brother drank himself to death, he slowly deteriorated over the years as we sat by helplessly watching him Kill himself, he was also diabetic and stopped taking his medication, i begged him to stop but he couldn’t stop because he would get the shakes real bad without the alcohol, he went through rehab 4 times but the 5th time the doctor told my mother he wouldn’t survive the treatment, i never knew he was this sick as my mother withheld this information from the whole familythe last time i saw my brother he kept saying i love you and i thought this behavior was very weird, my older brother called me at work on a Monday morning 4 days after his birthday, i was informed that my brother passed away after having a heart attack, he crawled down a hallway all alone throwing up blood that appeared to look like coffee grounds in his blood. I should have tried harder to save him and to this day i blame myself for not trying harder. I hope this scares people enough to stop drinking, i hope this helps anybody that’s willing to read this and listen, i miss my brother every day and can’t imagine the physical and psychological pain that he went through, he’s in heaven now with my grandmother and sister-in-law.
I’m sorry for your loss, you can’t blame yourself, it was his decision. At that point there was nothing you could do. It’s so hard to see how it affects family. It’s tough but the blood was from vericies that are veins that shouldn’t be in the esophagus. It’s from portal hypertension, restriction in the main artery that flows through the liver. There is no way you could have stopped that. Those veins were probably there for years. Again I’m so so sorry, but I’m sure he would want you to move on and be happy. Hang in there
You could not have changed his mind nor his tragectory. I'm very sorry for your loss.❤
What a sad story. Don't blame yrself. I wish you all the best!
You can’t blame yourself… so sorry 😢
You can't blame yourself. I am alcoholic and haven't had a drink in almost nine years. I can not blame other people for what I brought upon myself. And I am sure your brother would not like to see you blame yourself either or see you hurt.
My son passed on May 25, 2024. Liver cirrhosis and an auto immune disease. His dad and I know now that he hid many of his symptoms by living with friends. He was 28. Gone too Soon. He didn’t want to be a burden now looking back on his comments. We would have done anything to help him. Anything!!!
@DianeAkeroyd So sorry for your loss. I have got it right now and I am hiding it. I'm ashamed and in Indian culture family and people start blaming you. Maybe I should just let it out when DX is official. I am a bit in denial but this is super serious. I will have an MRI done soon. May your beautiful son have eternal peace.
@@zaraz5130 please get help!! Please.
Find a way to get help. Please.
@@zaraz5130 your family will be devastated if you pass. Like we are with our son. Please
@DianeAkeroyd yes I am with a liver institute and they told me to find a live donor. Right now just have the ascities and muscle wasting. I will get help. Don't worry. I'm 49.
I got diagnosed just before xmas last year and i am scared shitless, I am scared shitless. Stay strong my friend.
Yeah it's pretty damn scary. But there are plenty of people out here to help you navigate the twisted road towards getting a handle on the emotions. If you can do that the doctors are willing to do the work most of the time.. if you need somebody to talk to you just send a comment to me and I am more than happy to help if I can.
@@d.mushroomhunter3528❤ You rock
It can be scary, when I went in I was scared and nervous, but I made the decision that I was going to do whatever it takes. I did find purpose in my reptiles, try to find something that makes you happy. Staying positive is so important. I hope you have family and friends to support you. And there are so many levels of liver cirrhosis. Two years ago this month they gave me 90 days. It’s been two years. There is hope. Hang in there and fight!
@@Redneckkenobi yeah my sister gave me a sewing machine and I learned how to do that. Started making hats (stormy kromer/ flat top). I used to always have snakes, I had a few boas /reticulated the usual stuff. my favorite was my Burmese she was totally chill I would get in the garden tub with her for sheds. My doctors would s*** right now if I did that because of the transplant drugs I'm on the immune suppressing meds make it dangerous as hell. The chickens and rats I raise to feed her probably wooden go over so well either!! 😂🤣🚑
@@Redneckkenobiby the way, I had a bunch of questions I wanted to ask you. Mostly about where you were I'm guessing maybe Canada? Since you're so far away from the nearest specialist? About one of the things I wanted to encourage you to do is find a way to build a small support group for transplant. here in Michigan it's important but not quite as hard as it seems. Especially if you're getting healthier and transplant goes well I didn't rely on my sister for barely anything other than making a meal or two and driving me around after I got home. My particular doctor does telehealth and it saved me a lot of driving.
The overall tone and message of this video is profoundly positive despite the subject matter. Appreciate you, brother. Fight on!!
I try to be as positive as I can. I know that it’s not easy. I struggle with that at times. But I feel that if I’m strong maybe it will help someone that maybe isn’t able to be. Thank you for this nice comment
Hi Neil, have you ever thought of trying Carnivore diet strictly.
May help
@@beatricelutchmiah8399most of what I eat is meat. But there are other nutrients that are needed as well, especially seeing as the liver handles those vitamins and nutrients and you can get very deficient in other things. Also due to the neurological disorder I have swallowing most meat doesn’t work for me, it just gets stuck or comes back up, but pulled pork and shredded chicken are winners at the moment
@Redneckkenobi maybe Dr. Ben Bickman or another of the metabolic docs in the ketovore/carnivore space.
I’m praying for you. My mom has cirrhosis due to medications for autoimmune issues. We found out when we were in a car wreck in February 2022. She also has an aneurysm on her stomach. I’ll keep you in my prayers when I pray for her.
I’m sorry about your mom. You talking about in the belly button? I have that. Just help her stay positive. It makes all the difference
I have been purposefully not watching this video for a reason but God made me watch it now. I also have end stage liver cirrhosis because of alcohol. God bless you.
Thank you for watching. I wish you the absolute best in your journey. This is such a vast and odd disease and it affects people in so many ways and have so many causes. I also know how taxing it can be on the emotional side of things and can be stressful. I try to stay positive especially for these videos because I do believe in hope and God
@@Redneckkenobi wow thank for responding to my comment. It means a lot. I have been very lucky because I haven’t had internal bleeding. I have esophageal varices and abdominal varices. I had jaundice and ascites when I went to the emergency room. I almost didn’t go but I was completely yellow and at the time I didn’t know what ascites was. Luckily I didn’t have to get it drained. I am on spironolactone and furosemide. My diet has saved me and some of the supplements I take. My end of stage number is 11, which isn’t great but at least I don’t need a liver transplant. Keep your videos going because there are a lot of us suffering with this. I work out almost every single day which is really important to do. I do get really really tired sometimes but I can tell when it is my liver. Oh and when I first found out I did hallucinate a few times. I saw all of these tiny bugs but I knew I was hallucinating and my balance was off. The itchiness was the worst. I thought I was going to go insane. It hasn’t happened in years thank the good Lord. I will keep you in my prayers.
What were you drinking and how much??
@andyrome316 well I have been drinking a lot of yrs off and on. I'm 49. I drank 2 750 ml of wine every day and then I started drinking vodka. Big mistake. I work out almost every day if I'm not extremely tired. But like every 6 months I can tell my liver is working really hard. I have a love hate relationship with my liver. It is almost comical.
Blessings to you DeeDee
Oh Man. I'm sorry you have these terrible diseases. I have Type 1 Diabetes and Leukemia. We all get something in our lifetime. I hope you pull thru this buddy.
Thank you. And I hope you stay healthy as you can also.
You seem like a pleasant young man. Keep on trucking and I pray your liver and swalling issues subside.
I know there’s no cure for either. Just the hope of a transplant. And the swallowing I’ll probably wind up with a feeding tube. But that’s not the end of the world. And thank you
My dad was a social drinker for literally like 5 years and needed a liver transplant 20 years later. He lived for 17 years with the new liver but never liked it. Said he wished we let him go. He said the liver felt heavy. He took so many meds for so many years. Everyone has a different experience. I hope it works out positively for you. Prayers ❤
Wow only 5 years, how powerful alcohol is (sure genetics maybe play a part too).
@@teijaflink2226 yes doctors said genetics play a huge roll.
just goes to show you how much genetics and pre existing conditions play a role because I know people who drank hard for 20 years and livers are fine
@@jondaniel6948 Yes my ex husband is one who still drinks and has drank heavy for 40 years and he is still ok so far, it is crazy.
Or he was drinking the whole time. 5 years of social drinking doesn’t kill your liver 20 years later.
I feel for you. I've had a debilitating chronic illness for 30 years and completely alone. People don't understand and it takes too much energy to invest in trying to develop a support system with people who don't want to understand. I gave up years ago. You are a hero...I'm so proud of you. Thank you for sharing with us.
That’s nice of you to say but I’m just a guy trying to get by, and maybe help a few people along the way
what is your illness ?
@@BRIANDER100 Chronic nuerolyme for 30 years, MS, chronic fatigue, CPTSD, just generally discapacitated. But I try to stay positive and pray.
@@thereseschab5042 Sorry to hear this, and my bloodwork came back that I have high cholesterol, and that has me worried, mine is nothing compared to you, I'm so sorry to hear of your issues and I am sending you my very best wishes
@@thereseschab5042get some legal ketamine infusions. Works nice
Lost my mother to hepatitis when I was thirteen. It's something that is never far from my mind. Your resilience is very inspiring. Life is so damned unfair. 😢
Thank you for sharing that. I am so sorry about your mom and how young you were. And thank you for saying that. I really just want to help others
I just want to wrap my arms around you and cry. You’ve been through so much, you are so brave. I will be your support person but I live in Australia
That’s very sweet. I have a friend that lives in Australia. It’s the one place I’d want to visit.
I am so sorry for your suffering. Swallowing issues are very debilitating
Getting protein is so important. So it makes it difficult for sure
@@RedneckkenobiI do egg yokes is that okay.i don't have much money to buy meat.
There’s a guy named Woody on YT who has since passed away who drank heavily from his teens to his mid-30s and then was sober until the age of 60 when he found out that he had cirrhosis. So apparently stopping drinking for years doesn’t guarantee that you’re out of the woods when it comes to developing end-stage liver disease.
This disease affects everyone differently. It’s a very complicated disease. So there’s no guarantee on anything either. It’s possible the damage was there but still functioning. They did a biopsy on mine and said the entire thing is burnt out meaning all scar tissue. By all rights I shouldn’t be here
He. Probably had fatty liver also.
@@Redneckkenobi Wow. I figured since you don’t have ascites that your liver regained some function. Well, glad you’re here and making videos.
I'm trying to understand how that happens. Your liver either regenerates or it doesn't. It shouldn't be fine for 30 years and then just kick the bucket.
Churchill drank 25 units a day for the majority of his life and died at 90. I feel like there's a genetic component to cirrhosis. Why do some people get away with drinking 1l of vodka every day while others drink a few beers a day and get cirrhosis?
@@arsonflyso many things could be involved. There’s a lot of liver issues on my dad’s side of my family. And it effects everyone a bit differently
Wishing you well. My son died May 19, from cirrhosis. He was 44. He ended up in an HE coma. The average time from decompensated liver is two years. My son Lived two years and 5 months. It sounds like you are doing well considering. It's true they don't tell you much about it. I was my son's caregiver. It was rough as I'm sure you know.. Stay strong. You have a good attitude, my son really didn't. He got phobic about doctors and was tired of being miserable. He decided to stop treatment and go on hospice. He was not a good candidate for transplant because he also had treated Fournier's gangrene unrelated to the cirrhosis. His chance of Fournier's coming back was high. He had 13 surgeries in SLC to remove the gangrene, This I believe was the origin of his phobia towards doctors and hospital. It broke my heart. I will be praying for your best outcome.
I am so so sorry about your son. It’s a scary disease. And I hear all the time oh you don’t look sick. Well the livers on the inside last I checked. lol the whole thing can be stressful. And a lot of regular doctors really don’t know much about the liver. I wish you the best. And take care 😊
In The Name Of Jesus And Our Powerful God's May You Be Healed My King Brother And Recover Instantly Sending You Love Healing Blessings Prosperity In All Your Troubles Stay Strong ♾️🙏💜🫂👑🌟☮️♾️
Thank you
@@Redneckkenobi
How are you doing?
AMEN. NO VSHOT. THAT'S WHAT GOT HIM
I love it. In the previous a Lord Jesus.
@@joebx1111 what are you talking about? When did I say I had any shot? 🤣🤣 if your referring to the cov shot no I didn’t. I never do flu shots or any of those. Are you taking new patients? Just curious
My daughter almost died last year of liver disease. She had a team of Doctors at the downtown Dallas hospital all work together and after a couple very close calls, she is now recovering with out a transplant. She was in and out of that hospital from August to December. The symptoms that her body went through were eye opening. I am sorry you are going through this. 🙏🏼💔
I’m glad she’s doing better. And I wish the best for you and her. Keep fighting!
Vshot
I got out of the hospital two weeks ago. I was told i was 24-48 hours from needing a possible liver transplant. It was scary. Thankfully i didn't need it (yet). Sadly my ATL is still well over 1,000 and now im waiting for another blood work up to come back to see how we move forward. I drank heavy as a teen and during covid and have not drank in 2 1/2 years. Much love to you ❤ you got this💪
how much and how long did you drink ?
I’m sorry to hear this. Stay strong and try to find something positive to focus or hope on
Read the previous post, perhaps read Dr. Berkson's book(s)
TAKE N ACETYL CYSTEIN!!! ITS AN AMINO ACID AND VERY GOOD FOR HEALING THE LIVER
What is your MELD score?
Just subscribed. You're not alone bro I'm 49 yrs.old & going through the same thing. Been having cirrhosis complications since 2017. But I'm still here working full time even though I have extreme fatigue. Take care bro, good luck on your journey. ✌️💪
Same to you. Keep positive and keep going
@@FroggerLoganO.C.620 I get extreme fatigue as well. I make myself work out and eat super clean. Foods that feed your liver help a ton.
@deedeeturner6577 Thanks for the advice, will try. Much appreciated. 💯
I just found your channel. I had my liver transplant 1/26/2003 at Baylor University Medical Center in Dallas. My MELD score at the time of my operation was 44. After about a year of recovery from being so sick, I went back to work as an engineer and eventually earned my Masters Degree. I retired 03/2017 and I’m now 73 with no serious health issues.
Have you ever looked into RSO oil. It's absolutely amazing. Do some research on it and give it a go. 💯🙏
I really enjoyed the video post where you introduced us to your rescue reptiles! Very interesting. Great day to you Neil
@@karlwildman5159 So did I
Damn bro, sorry to hear your story. It’s shocking to me that folks can develop liver disease from seemingly short bouts of drinking.
Many things can affect the liver. Liver problems run in my family also. You never know what can happen. We only have one body. So we should do our best to take care of it
@@Redneckkenobigenetics matter so much.
@@Redneckkenobisome people can be heavy drinkers for decades and decades
And taking a lot of RXs too@@veilmontTV
Hey Brother I live in Colorado and I drank like a fish until I turned 27 and I just got tired of being hungover every day so I just stopped and its been 15 years since my last drink but I live with a chronic pancreatitis as a result of my bad choices in the past, I get admitted to the hospital like 10 times a year with terrible pain when my pancreas decides to digest itself because it is leaking digestive fluid all the time, my liver counts have been a little elevated all my life but now I have cyclic vomiting so they decided to put in a GJ Tube and now I had it for a year and they refuse to take it out. I will pray for your health brother, due to my health I can relate to your health issues, I pray that we get better because we are in our 40s and we are too young for this crap. God Bless
I’m sorry you’re going through that. It’s not easy. Thankfully I’ve never had problems with my pancreas. I wish you luck and I hope u can get a break from all the problems. After awhile it starts feeling like a broken record
@@Redneckkenobi I know what you mean brother, God Bless and take care
I’ve had acute pancreatitis 4 times. In the beginning I was drinking like a fish morning noon night. First time was the worst time, I was 24 years old. I try to eat healthy now, was 3 years sober, I relapsed a few years ago and still have some wine now every night. I need to stop or it’s gonna be too late. I can’t gamble with it or take it for granted. I’m going to end up too late if I don’t turn this around. Despite being fit now and eating well. I can’t do this to myself anymore. I want to live, I just wish there was an alternative that felt similar to the effects of booze that wasn’t so dangerous or life altering. Your story pains my heart to the core, thank you for sharing
@@chrysophylax7199 After my chronic pancreatitis was diagnosed I was put on morphine sulphate 100mg x 3 a day and I was without pain but I was out of it and sleeping 18 hours a day so after a year I transferred to methadone and it saved my life because it takes all pain away but it also gives you energy and it took away my depression and anxiety and it made it a breeze to stop drinking, methadone makes you feel really good for like 20 hours on a single day dose so my brain stopped looking for any other drug, medicine or chemical. People on methadone are just good and don't need to take anything else. The increase of dopamine end endorphins is so pleasant that no one on methadone drinks or uses any drugs anymore from day one. Methadone is also free unlike beer or drugs were and it gives you a boost of energy with happiness that changes your life. It's also easy to sign up at a clinic, they open at 5am every morning and I'm at phase 5 so I get a month worth I put in a lockbox when I go to pick it up every 4th Friday. I helped 11 of my friends that had a hard time with alcohol or substances along with depression and anxiety to get into the clinic and it has changed their lives , They are all now happy and positive members of society without any mental health issues. I hope this testimonial helps brother. I'm on Facebook under my name like here Tomasz Starling if you have any questions. God Bless
@@chrysophylax7199please try to save yrself while you can... Hope it works out!
My dad passed away from liver cirrhosis when he was 39. I didn’t even know he had been drinking again until it was too late. He also had the distended stomach, yellowing of the eyes, and muscle degradation. It was tough watching him go like that, especially since I was still a teenager when he passed. Hopefully, you have more luck and at least you quit drinking.
I’m so sorry to hear that
Just found you on here and I think you're a very nice man and I'm sending you blessings and energy on your journey. None of us are promised tomorrow and we need to love and live life each day♥️
Yes! So true. Thank you for your msg of joy 😊
I feel bad for you not having anybody to help you. 😢 I’d be in the same spot. All my family and friends have moved away. I hope you get better. ❤ Bless you. 🙏❤️
@@darlene9154 thank you. That’s very kind of you to say. You take care as well
Feel bad for you brother being so young with ur liver f-uped already, i just turned 73 May 2024, been drinking beer, no hard liquor my whole life since i was 17 year old with cigarettes, average 12-15 beers a night with 1/2 pack ciggs, but i have been supplementing with minerals/vitamins since i was 42 years old, especially the supplement milk thistle and glutathione, my yearly Dr checks always show slightly elevated liver enzymes but no hepatitis/cirrhosis, God has blessed me
I had a doctor tell me my liver enzymes were slightly elevated about 2 years before all this happened. But the liver is very resilient and can regulate until it gets scar tissue
If your enzymes are elevated, stop polluting your liver with alcohol and cigarettes. Cut added sugar and processed foods out, supplements won't fix your current diet and habits. Your blessed body is giving you very clear signs to act now, dont wait.
milk thistle and glutathione🙂
@@johndoe-gn6nk channel owner deleted my factual comment about if youre abusing your liver that is never good. Whether you believe in divinity blessing you or you understand human evolution of the liver doing its job, till it can't. At any age, bragging about getting away abusing cigarettes and alchohol is not enlightened. That is the comment to be removed if any should. I see vlogger now added a comment, basically agreeing with me. To Never ignore even one elevated liver test ALT, AST, ultrasound, etc. That is the advice from serious health advocates. Trust in those who will speak accurately about health matters and who point out rationilizations we humans mistakenly use. Also anyone promoting a supplement to reverse disease is very dangerous, and should not be left unchallenged in Comments. Make them show receipts on extraordinarily claims. Help Make this channel and life about scoring a victory for humanity with your knowledge now. I wish you well.
@@Redneckkenobi both myself and my brother have recently had elevated liver enzymes flag up recently, we're 32 and 30 , our mum died with liver cancer, any tips ?
I’m on the cusp of this diagnosis. Your factual description of your life has been immensely impactful for me. 🙏🏻
Wow! I can only imagine how many people this video will help, regardless of their specific problem. It will also educate others about what a family member or friend is going through. Thank you for being so willing to share your experience and to help lift up others.
Thank you for saying so. I really want to help people that are going through similar situations. Your comment helps thank you
There comes a certain wisdom and freedom when you realize you only have so long to live. Things that were so important at one time now seem pointless and things that one has taken for granted now seem very important!
@@Bipolar_Spike Yes I absolutely agree with that one. It's bizarre that we only take things trivial and toss them to the side when in a jam or on the death bed. Everything that might seem important right this moment to you and myself is really not important if it really comes down to a so-called death bad scenario. Sorry it was so long and corny but I agree with you and it's probably better if I and others try to pay attention to important things rather than dwelling on little trivial problems at the end of the day.
@@Bipolar_Spike I sometimes try to imagine what's important if I were on my deathbed. I guess there would be regrets, there would be good and bad memories. I'm sure there might be a lot of anxiety and some situations. Being scared of what is next since this is only a one time event in an individual's life/c called death. But your comment is really true.
Why imagine a deathbed scenario, I start recognizing the things that would not be important and the things in that situation that would be of utmost importance.
Keeping you in my prayers brother.. my father passed away in 2017 from this disease. He was not a drinker but he had Crohn's disease since he was 20. He died at 67, my little brother just passed away a 37 in February from chronic alcoholism.. I've been sober 8 years. I have cic and it's been causing a lot of issues and I'm trying to get it under control but I believe it's due for my drinking.. one day at a time. Homeboy I hope you get better.
I hope you get better as well. Keep fighting and I’m sorry for your loss
@@Redneckkenobi you too brother..ty
Prayers??so your doing nothing?
@@ubeuonly I do I work thru AA to help men get sober .. I'm taking meetings out to jails ... Work with people in the streets and pray for all of them as well...
@@mikelreborn3254 good deeds no doubt..but prayer and 12 steps are nonsense. Pressure and peoples willingness to stop works. And u gave up your brain when u were reborn. I hope u find it again and realize that it's all made up nonsense by man for men
Thank you so much for this video. You're a hero opening up about your liver disease. You're doing God's work spreading awareness like this ❤🎉
Sorry I'm sick with Hep C...I take care of myself and taking care of a friend who had triple by pass surgery. Because she didn't have a support..sytem .just pray to God that you're right with him,because there's life after death!❤😢🎉🎉🎉🎉🎉❤
Hep C is is totally curable today and can be treated in 8 to 12 weeks. I hope you can get help with it. See a doctor about it.
@MasterHomebrew I've been in remission since I was diagnosed with it..I take care of myself and don't drink..and I feel good right now.😇😊😇
I am a believer. But I plan on fighting 😊
@@Redneckkenobi Good for you..I'm happy for you! Hang in there!🥰😇🥰😇
Hey, just wanted to thank you for another video. Your story in many ways is similar to mine, and I definitely can empathize with much of what you are going through. Wish I could help ya, bud, but I’m in much the same shape socially, and economically myself. You seem like such a sweet spirit, and I pray everything works out for you; may things get better for you soon…
Same to you. Stay strong
@@RedneckkenobiThx man 🙏🏼😊
Hello Neil , sorry for your situation. I am floored that you have this from two years of drinking ? How much did you drink ? I know people and family that are alcoholics and have drank unbelievable amounts of alcohol for decades and are in their late 50s , early sixties and just keep putting it away , with no apparent issues , thankfully. You seem so nice and only drank for a short amt of time. It must be you are predisposed because of auto immune issues. At any rate , God bless you , stay strong and keep being your own best advocate. We out here are rooting for you and it aint over till its over. So keep fighting and we will keep praying for you. We will be your support system. Keep us updated.
Thank you 😊 and that’s why my liver doctor is looking for other causes
Yeah, unless this guy was drinking like gallons of alcohol for two years, I really doubt this is the cause. It's probably his autoimmune disease
Many prayers for you. I thank you for your video and information to keep us all informed of what type of symptoms we should watch for. I recently quit drinking after 40 years. I've had enough! Am getting bloodwork done again to see how my enzymes are doing. I wish you the best and God Bless You.
Do you take medication or pain pills?
I was diagnosed with cirrhosis in 2021, early stage. I only drank beer, usually light beer at that & never crazy amounts. My Dr just blows it off that alcohol caused it just because I say I drank. I quit with no issue. I really need a new dr. I'm sick all the time with infections then put on antibiotics which make my numbers high. It's never fun.
Any kind of fatty foods make me ill also as well as swallowing. End stage liver disease isn't a joke! Thanks for sharing.
I can totally relate. I have it all, ascites, hepatic encephalopathy, portal vein thrombosis, pruritis, varices, and edema. I got this from Autoimmune hepatitis. My MELD score is 10. Good luck to all you have to deal with this.
Just keep fighting, my meld runs about 17 but I was at 29 two years ago. So you could have more time then you know. Just stay positive
Sending you love and prayers
Keep fighting and advocating for yourself. I will be here for as long as I can, you have been through so much. Chronic illness is awful.
Oh I will. I try to keep purpose and stay positive
Hey Neil! How you doing? Hopefully you are feeling better & your throat/ swallowing is getting better. Keep the videos coming!
Thanks! Will do!
Sorry to hear about the transplant rejection, that’s harsh. I needed a transplant but I had been in a coma for a month when they did it, and remained in a coma for a month afterwards. So I missed all the drama. My poor family went through hell, I just had a nice relaxing 2 month snooze.
I have a family member that NEVER drank, but has cirrhosis. From fatty liver. Also not overweight. Can also come from diabetes
A lot of things can cause it. Autoimmune diseases, hepatitis, too much Tylenol, too much fatty foods. NAFLD non alcoholic fatty liver disease can happen as well. In my case liver issues ran in my family and I have the autoimmune disease. Drinking for the two years was just throwing gas on the fire
🙏☀️🙏☀️🙏☀️🙏☀️🙏You are so right about you know your body when something is not feeling right!!!!! Hope u get a miracle!!!!🙏☀️🙏
So sorry you had to go through this and had no one to help you. I hope you find a community here and thank you for sharing so others will know about it. Stay positive and I love that you rescued reptiles! Good luck to you. 😊🙏🏻
The reptiles rescued me 😊 and the support on here has been amazing. But I really want to help others going through similar situations
Thank you for sharing your story. I, like many, im sure, really needed to hear this. If you can help one person to make better choices then you have immortality as they pass their story on to help the next person. You are in my prayers Brother! 🙏 ❤
@@vinnie1711 thank you. And that’s why I tell my story, it can be a scary time and knowing what happens and the procedures and the good and bad times I feel can help. Plus it’s a complicated disease. So if I can help by explaining it then I want too. Plus this is a place people can tell there stories and be surrounded by people that are going through it as well. I don’t believe I’m anything special. I just want to help.
My brother is very sick and i found your channel recently. Thanks for sharing your journey and strength ❤
I’m so sorry to hear that. Try to get him to focus on something positive, maybe a purpose. If he’s able. I wish you and your brother all the best
That's very sad, I hope things are getting better for you somehow!,✨
I just whispered a prayer for you. I’m not a drinker. However, I recently learned my liver is enlarged, and have some test that I never heard of coming up. The palms of my hands are itchy and red, and I mostly feel unwell. I believe the cancer treatments I underwent may be the cause. Seek out the teachings of Jesus, and hold on to His life lessons.
Thank you for the prayers, I am a believer. And I don’t know much about cancer treatments, but I am sorry for what you are going through. There are a lot of things that can affect the liver. Most of them are reversible. It’s only cirrhosis that can’t be fixed or get better. I wish you luck in finding out the cause
That absolutely sucks that they can condemn you to death because you have no support network! I thought the UK was bad, but I'm sure the NHS would never do that to anyone. Stay strong. There surely must be a support group you can reach out to? I wish you all the very best. You have a very positive outlook considering your position. You deserve better.
@@lynChip29 they see it as they want you to have the best chance of recovery. And that’s with a support system
@Redneckkenobi Then they should provide support! In the UK, that would be part of the care package.
you're a very charismatic guy and the way you comunicate is very engaging, congrats on that
Thank you. I’m not always. I try to be on camera. And I truly do believe the moment I give up on joy I will go down hill. So I keep positive. But it’s a lot harder then I may make it seam. Take care and thank you for your comment
Genetics are so odd, I started drinking at age 15, binge drinker, in the beginning I only drank on the weekends from age 15-20 and my average during those times was 12 beers, I quit drinking from 20-30 because beer started making me sick, I thought I was allergic to all alcohol then one day a friend forced me to have a glass of wine with him and when I didn't get sick the next day I went out and bought a bottle, within 2 weeks I was drinking 1/2 a bottle of vodka every other day, this went on from 30-36, I had a falling out with a women, caused a severe depression and I started drinking about 12 shots 5 days a week every day after work which went on for almost 2 years, I quit drinking at 41 because my stomach was getting messed up but I got my liver checked because of my heavy drinking and my blood work has always come back perfect, for everything, life can be so unfair.
I am sorry how you have suffered.
The person who gave you the wine is no friend.
Never let people lead you on just to be social everybody is different .
If beer did not suit you go with what your body is saying.
Try and fill your time with hobbies especially in winter.
If you drink heavy you won,t find a stable relationship with anybody.
I wish you luck in the future,and like l said don,t let anybody pressure you to drink.
I worked behind a bar for years,and believe me the times people tried to force me to drink,and at Xmas l would perhaps have one drink of whisky neverwith lemonade just not to be labelled a misery,and l never finished it.l wish you luck in the future.😊😊😊😊.uk.
That's honestly not that bad of drinking for that amount of time to be honest. Wouldn't keep it up obviously but that's not that bad compared to most hardcore alcoholics like I used to be
Blood work means nothing. You need an ultrasound on your liver. My bloodworks perfect too but ultrasound found i have fatty liver disease and was in 3rd stage, it can be reversed if its still FLD. Plesse just be careful.
@@ms.mittensmeowmeow7573 Good point, I would recommend finding a place that does Fibroscans for free for research purposes. I did one and to my surprise my liver was okay, even though my bloodwork was awful. My liver enzymes were all 100+, but 3 months no booze my blood work looks great.
@@jamesbank833 yeah liver cirrhosis can pick anyone. It’s such a complicated disease. And not every case is the same. Two years ago they gave me 90 days. I didn’t believe them 🤣 well I’m stubborn and refused to give up. All things considered I’m doing ok. Not to say it’s easy. But it could be a lot worse. Take care of yourself, thank you for telling your story. I hope you never get it 😊
Mechanic. Say no more. I understand the pain. It's one of the biggest reasons I drank. Turning wrenches and slinging parts was so damn stressful. Quit the booze earlier in the year, hopefully I caught it early enough.
I saw your thumbnail & just remind me of my friend back in New Zealand in the same predicament. I'm grateful that he told me before I left. He seems good. We met at the gun range. In short, I gave him something he could not refuse? I gave him 20,000 rounds of ammo to be used as stress management. I sort of know where this is going, but he seems to be in good spirit. My prayer to you too.
Thanks for sharing, and that was nice of you 😊
My husband died of it three weeks ago but he never drank--he had fatty liver disease that caused cirrhosis. I'm still in shock from this whole ordeal.
@@christine21068 I am so so sorry for your loss. It’s never easy. And it’s a tough thing to go through. That’s why I started this channel. Not only to bring awareness but to tell my story so others know there not alone. This disease is on the rise and no one talks about it. So this is a safe place for people that are going through it and there loved ones to tell there stories. Take care of yourself. And again I am sorry about your loss 😞
I completely relate to your lack of support system. Part of the reason I stopped drinking is because at 64, I knew if I got sick there would be no one there to assist, to drive me places or go shopping or whatever. I do have a couple of friends nearby after moving out of state but I only talk to them every few months and like you, I feel like I would be a burden. And you are absolutely correct that you should find some new interests if you can't participate in your old ones anymore. I'm retired and did just that accidentally. If I didn't find an interest that I am passionate about, I would probably sit around and drink myself into an early grave. What I do is help people find their lost pets. I acquired the training, equipment and experience on how to do that and I'm very motivated because many people see their pets as family and it's devastating to lose them and extremely rewarding if I find them. I do this on a volunteer basis on my own, but there must some kind of volunteer organization that fits the interest and passion of just about everyone. Keep on fighting brother.
I was rescuing reptiles for a while till I wound up in the hospital again. I’m working on getting a car to get around. But my reptiles I still have give me purpose 😊
@@Redneckkenobi That's a great hobby because it's so unique. Everyone cares about cats and dogs, but who's looking out for the reptiles? Coincidentally, I helped someone find their lost 90 pound Sulcata tortoise. I don't know anything about reptiles but the owner just happened to be walking down the street when I happened to be outside and asked me if I saw him. We both thought someone probably took him inside because they thought it was cool. So I put up a couple of neon posters and the next day she found him right down the road. Someone probably took him and got nervous when they saw the posters.
I had a liver transplant in jan of 2021. Im doing good now. Work 6-7 days a week, own a successful business with my wife. The transplant was way worth it.
You aren't alone. I am on my own health journey with chronic illness. I'm sorry that you are going through so much. I'd love to be a friend that you can correspond with, so feel free to send me a message on here if you'd like to. I am on a weight loss journey and I am using GLP-1 medication to help. I totally understand the finances being a problem too. We are all going through our own private hells, right?
Yes everyone goes through something. I don’t think one thing is any worse than another. Just different. You are welcome to email me at neil12020@yahoo.com put liver friend in the subject line
I'm here after a YT recommendation after searching kidney disease. Luckily I'm not quite there yet, but I have to stop taking OTC medicine unless I really need it. It definitely catches up with you.
I too have been afraid to go to the doctor just because I'm afraid of what they'll find. If nothing else you motivated at least 1 person to have a sit down with my test results and doctor.
Good luck bro.
Sorry to hear your story. I hope things get better and you triumph over your illness. Thanks so much for sharing.
I hope you are on a path toward good health and recovery from these challenging issues. Thanks for sharing your story and inspiring others to be aware and have hope in the face of adversity. All the best.
Thank you 😊
Prayers for you , my friend!
Thank you it means alot
Hope you're doing well Neil. I haven't watched the video yet but it's begun running. Just want to say howdy and hope you're doing mentally and physically somewhat well under your circumstances. Keep playing with those amphibians. That was a cool video too 🙏‼️❤
Thanks 😊
I'm taking care of my loved one who is at the very end stages. Luckily we live in Ireland, so we can have Hospice and all is paid for by the system.
I’m sorry to hear that. I know it’s not easy for anyone
To anyone who drinks alcohol in any capacity, one of the most overlooked secondary conditions is damage to your esophagus. If you take a sip or a shot, immediately follow with 3 swallow of water. My father drank whiskey daily. His liver was ok, but he died from esophageal cancer. So many people damage their esophagus from having alcohol, a known carcinogen, lingering on the esophagus. I'm not advocating drinking because it will cost you your health, but if you partake, wash it down with H2O.
@@vinnie1711 I do agree with you. Alcohol can do alot of damage to a lot of body parts. My esophagus issues isn’t from the alcohol. It’s neurological. My brain doesn’t communicate with it properly and it will close on the food and hold it there. Or cause it to come back up or the muscle will activate in the wrong order. I got my wires crossed lol. I’ve never heard of the water thing but I can see what you’re saying.
Wow, im glad that you eventually decided to go to the doctor. Sometimes just going is the hardest part for people because they are scared of what the doctor might find.
It sounds like you wouldnt be here today if you wouldnt have gone in, due to the fluid filling your lung & stomach.
Im glad you seem to be doing better now. Keeping a positive mindset is a very important part. The mind controls the body, so if you stay positive and confident You will find that you will do better physically as well. Of course it will not make it go away, but a strong positive mind will most definitely keep you healthier than a negative mindset.
I wish you the best.
Dont give up! Every day is an absolute blessing, so we must Make the most of it.
(Also what is on your tv in the background lol 😂 you moved a couple times and a portion of the tv screen showed and it looked spooky!)
I'm so sorry you're going through all of this. Sending lots of love and prayers to you from Louisiana ❤🙏
@@monicacampbell6505 thank you. 🙏 that’s very kind of you. I hear it’s hot in LA. Very humid.
I had NASH cirrhosis and autoimmune chronic acute pancreatitis in my late 30’s and when I was 44 it got really bad. I developed an infection and encephalopathy and was in a coma for weeks. I was too sick for transplant. Had to go through rehab to walk, shower, eat before they would put me on transplant list. Once I was on the list, I got a liver in 5 days. It was a lot of up and down but I am still here and turning 52. Liver disease is no joke. Prayers for you and everyone else here suffering. ❤
Oops. I also had liver cancer. It was the cancer that caused all the complications.
Thank you so much for sharing your journey. I can relate in so many ways. I'm 54 and have cirrhosis as well. I get the financial issue too. Sucks,! God bless you and know that you have helped me.
Bless your heart ❤ Thank you for sharing. I also recently got diagnosed with Liver Disease. I'll be seeing the GI next week. I have too many new health issues going on right now. I'm still being diagnosed. But I had just had lab work that came back abnormal. I will know more when I get to review them. I will pray for you, for all of us, Especially those who need extra prayers regarding their health. Bless you. May you have what you need ❤️
My ❤ goes out to you buddy. My mother contracted hep c from a blood transfusion when I was born. She lived with it till she was in her 50's when it was diagnosed. Because she was a nurse and worked in the hospital, she had the opportunity to be treated with interferon which affected her mentally and emotionally so profoundly that she asked that they stop the treatment which they did. She retired from work and lived another twenty years before succumbing to cirrhosis at 76. Although she opted out of the full course of treatments with the interferon, I'm sure she lived another fifteen years longer than she would have without it.
I will be praying for you! May God bless you and heal you!
Thank you. It means alot
@@RedneckkenobiYou’re welcome!
God exists in your mind. So your doing nothing but making yourself feel good
@@ubeuonlyI will pray for you. Read the Holy Bible. John 3:16. Jesus Christ died for your sins. I pray you accept Him as your Savior. Read Revelation in the Holy Bible. It tells everything that will happen when the end is near. We are so close to the Rapture! Please accept Jesus’s precious gift. The gift of Salvation! Open your heart and let Him in! God bless you!
Hi Neil so sad to hear this news. You will be in my prayers. God bless you my friend.
Thank you, and I appreciate the prayers. I am a believer and God won’t leave me or forsake me
@Redneckkenobi your absolutely right. God will never leave or forsake you hang in there 🙏 ❤️🧡
Great video. Stay strong.
Just for others, a church would give anyone a support system, all you have to do is ask!✨
The support system I’m talking about is medical, meaning if you have a transplant someone has to agree to take care of you for 6 months and not only give you care but help in mental stability and other things. It’s a lot to ask anyone, hey mind if I live with you for 6 months and you can take care of all my needs? It’s a hard thing to put on someone. That’s why it’s normally a family member
God bless you my man. I hope if you still need a liver transplant that you get it. And whatever else is going on with your body I hope you can be healed. 💙💙💙
You need to drink at least two liters of pure water a day and consume milk thistle capsules 3 times a day. In your case, the diet should be based on antioxidants, lots of raw vegetables and no fats, fruits should be very limited due to their fructose content. No carbohydrates like potatoes, rice and pasta. This way you will heal, it works for me having everything to lose. A hug and encouragement in this new stage to live with a new meaning that you find, that is the most important thing.
This I don’t agree with, because milk thistle has been known to cause more problems in someone who has a cirrhotic liver, because the liver can have a hard time processing it. Also you need lots of protein
Hi Neil, thank you for sharing! You are indeed in my prayers.
Thank you! Means a lot
I love you bro. You are not alone
I say this is a great video from the patient's perspective. Informational and educational. A little dry, bare bones, nothing fancy but it is all you need bc he touches all bases.
Thank you. It’s a very confusing disease and i wanted this Chanel to be about what’s it’s like going through it. Cause it can be scary. So I really wanted to come from that point of view. The regular person who is just finding out. Take care and stay strong 😊
Keep your head up!
I am completely touched by your video! Looking forward to watching more of them. Keep on fighting!! ❤
I love that you have the heart to care for other critters.
😭 You've been through the works. No support system ugh. You seem like a nice guy, I would have helped you given chance. Thank you Neil for spreading awareness about your experience. I'm sorry that you're going through cirrhosis and jaundiced. I hope that you are getting help for the reason you had to drink. Stress can pull you into fours. Take care of yourself. I heard apple cider vinegar/ lemon juice mixed with water mentioned by dr. Berg. I had fatty liver and its gone now. Hope that can be of use.
Blessings and good health for you Neil.♥
The symptoms you had are almost the same I had when I went to the ER complaining about not being able to breath. Turned out there was over a liter of fluid they drew out of my lung or around it, the left lung was completely collapsed with an 11 cm tumor on it, and I had severe case of pneumonia. I ended up staying at the hospital for over 2 weeks along with several days in the ICU. My life has not been the same ever since.
I am praying for you. Wish i was able to be of more help. Im so glad you're so positive.
All the best buddy. Hope you get alright
The human body if so unfair, thanks for sharing. ive quit drinking mostly now but had done 23 years of heavy drinking, binge drinking, all day everyday drinking. My liver is holding up. I do have an auto immune disease, but tht came before the drinking. I wish you the best. Sorry, i commented before i got to the end. Its so great you survived the 90 day thing. You have been thru so much. I will learn from you. Thank u
And yes my crohnic illness, crohns disease really makes me feel a burden and a flake. It's ruined my life, i didn't think I make it, so fell into addiction. I'm in the process of getting my purpose back and getting work fit but can barely work, but being unemployed is so depressing, stuck in between a rock and a hard place. I really relate to your story. I've subscribed, bell on. I'm glad to have found your video. Keep fighting, kia kaha (stay strong), much love from New Zealand
The one thing I learned from this video is that your a tough son of a gun!!! I'm what most of my people would say a tough guy but you got me beat brother!!! I had some issues a while back and ended up with a colostomy bag for a prize.I spent 3 weeks in the hospital fighting diverticulitis and lost the battle.They removed the bad section of colon and 6 months later they took the bag off and then had 2 more surgeries for hernias.All in all it was about all I could handle.There was never the c word or the other c word chronic.If I make it through this I'll be fine another words.You on the other hand it's different.I would not be so damn tough.I pray you get through this!!!
Kind of you to say. And your thing doesn’t sound fun either. I have my moments. But I have to be strong. Because I want someone who’s going through something and be able to say well he can do it so can I. I’m not always strong, and I don’t compare it to what others are dealing with. The way I see it if a situation someone’s going through is the worst situation they have been through, then it’s the worst thing. I wish you well and take care 😊
I’ll be praying that you find your path
Thank you posting this video. Very informative to some of the issues that I am going through. May God bless you and give you strength in your journey.
I don't know if you considered "God" as an option but He does perform miracles for those that ask and having others pray for you helps a lot!✨🕊✨ pray often!
Yes I do have a church. And yes people are praying.
@@Redneckkenobi That should do it,✨✨🕊✨
God has a plan
God is so good! He loves you so much!❤
@@Redneckkenobialso water fasting actually heals the body. Combine that with Gluthatione
Rest in peace Nathan Melton. My best friend. He Lost his battle with alcohol after his dad passed. I shoulda been more observant :/. See you again one day old friend
I’m sorry for your loss of your beloved friend. I really am. Sending condolences to you.
I’m so sorry to hear that.
Man, I am so sorry you're going through this.
Thank you. It gets hard but I have to stay positive
Wow! Brave man. I wish you only the best. Thanks for sharing.
Thanks for saying so. I don’t think I am. Just doing my best
@@Redneckkenobi No, Sir, you are very brave. My heart goes out to you. Be blessed.
People can also have cirrhosis of liver from non-alcoholic fatty liver disease if not caught early. Unfortunately, there are many people with this form of disease due to our diet in American. I am one of those people. I found out by accident from a CT for another issue. Then I had it followed up by a Fibroscan. Now, I am followed by a GI doc. Thanks for sharing your story, and my prayers are with you.
I have read a few cases where people reversed their cirrhosis with a strict healthy diet, but it took time, a few years.
I would watch Dr. Bergs videos. Eliminate all processed foods asap.
God bless you Neil…just remember you’re never alone and your soul is eternal 💝
Thank you for sharing your story
Thank you 😊 that’s very kind
I'm having such a hard time listening to this. Six years ago on the 27th I lost my 32 year old son. He had liver and kidney disease brought on by alcoholic hepatitis. He went to sleep on my couch and never woke up. I'm still lost, he was my only child. I hope your story has a different ending.
I am so so sorry for your loss. That in no way was easy. I’m sorry you had to go through that
God bless you! You are so strong And positive. I wish you all wel.
I truly hope you’re doing better. Sending lots of hugs, happiness, peace, comfort and good days! ❤❤❤
Thank you 😊
Bless you Sweetheart... I'm praying for you. ❤
Thank you 🙂