I was diagnosed with cirrhosis of the liver 1/21/22 from alcoholism at 38. It was the hardest fight of my life for 10 months. I was only given 3 months to live. The disease took over my body and eventually only had weeks because it was so bad. On 10/17/22 I received a phone call from University of Michigan and they had a match for me. They saved my life and I've been sober since 1/21/22.
Hi my name is Frances,I was noticing your comment about a transplant did you have it done ?how are you feeling today !could you please give me some information about liver disease if possible I would appreciate your help,your thoughts about having liver disease!is there any certain symptoms should I be concerned with!
@@CityParanormal173 yes I received my transplant on 10/17/2022. I'm feeling much better, but I do lack energy from to to time. The liver disease was extremely devastating and required lots of treatment to stay alive.
Detox in 2018, 3 months to live, hospice. 6 years of no relapse sobriety, great blood work. The Dr. says no need for a transplant yet. Feel great and getting stronger daily. Never give up, It ain't over.
wow. amazing. my sister died from liver failure @ 2 years ago. 58 then. drank vodka daily. i’ve been sober @3 years now. cold turkey. i too was a daily drinker. ( beer)
My dad lived from 1969 -2006 with cirrhosis of the liver. But his was from drinking alcohol. He stopped drinking. And lived a long time. He did not pass away from the cirrhosis. Again thank you for all the information.
Some folks can survive it whilst others don't. My dad died of liver and colon cancer and drank once in a blue moon but was a chain smoker. My cousin lived with all kinds of cancers that started with breast in mid 30's . They'd cure her from one type of cancer then a year later it would show up somewhere else. She was told she was dieing but didn't let diagnosis bring her down. She was allowed to work from home so she could keep her insurance....she was beloved by everyone she met. She had 3 young kids she wanted to finish raising and she did. She past a few days after her youngest turned 18. Probably 10-12 years after being told she was dieing.
I was dx in 1988...so I have had cirrhosis for 36 yrs...Am now 58 yr old. Planning to do a 100 mile hike this summer. Eat well, sleep, jump on infections or any sign of illness, and lots of exercise. as you said, it doesn't need to be death sentence...good luck!
I know someone in my family is hardcore massive alcoholic (drunk 24/7) from 14 to 74 and they’re super healthy in amazing shape (better than me) and they look like they’re 50. I’m sure he has massive cirrhosis but not eating McDonald’s and processed trash will save you fast.
@@ZxAMobileoh yeah, some genetics are better than others. In my family strong livers run BUT strong hearts don't. Many of my family members died from heart attacks but the livers were fine during the autopsy.
I was diagnosed on my birthday, January 1st, 2021. I am doing the best that I can to keep mine from getting worse. I have bloodwork and an mri done every 6 months. The Lord is by my side and helping me every step of the way. Mine is non alcohol cerosiss of the liver. God bless you and thank you for all of the information.
@juliadixon8465 I'm so sorry. It's a journey for sure.. if I can answer any questions about what I am doing just let me know. I take some supplements and the medicine my liver specialist has me take. Hang in there.
Thank you for educating me! Just lost my mom 2 months ago to cirrhosis and internal bleeding. She was a great mother, but struggled with drinking. I’m now an advocate for a drinking awareness! Blessing to you for helping people. You are awesome!!
I also have liver cirrhosis. Diagnosed in 2019 brother. My Mom had liver failure secondary to diabetes. I was an alcoholic but quit in 2018 before being diagnosed. It sucks but I've been driving on. I also have chronic kidney failure but I've been doing rather good I believe. I feel good at least. I just do my best to stay positive brother. Keep doing the same buddy
Cirrhosis at 17....with hepatitis...took meds for hepatitis, cured, still livin with Cirrhosis......now 71...went to specialist ...ultra sound on liver 1600 count you have liver failure...sober since 1990 livin with a 1400 count...😅...more good days than bad..hallelujah!...
Neil this was a very good video! You covered so many of the questions people wonder about when newly diagnosed. My liver Dr told me he wanted to see me live 30 more years without a transplant! I am 58 so you have many more years to go my brother in C. I was diagnosed Nov 2022 and went thru all the hoops in August 2023 to make the transplant list. Nov. 2023 with tears of joy in his eyes my Dr said I was too well and not in need of a transplant now. It’s a rare thing he said so you and I are so Blessed! One thing that I still struggle with is neuropathy in my feet - left foot is worse. But like you, put one foot in front of the other & keep on keeping on. All the best
@@religiousandspiritual9374 I upped my protein to 90+ grams a day, got more sun plus increased my physical activity. I’m not a Dr and no medical professional recommend this, but I added Milk thistle supplements as well as glutathione to my vitamin ritual of C,d3 with k2, zinc and calcium Above all I started and ended each day with Gratitude and let go of the things I cannot change. I pray this helps you & May God Bless You
@@micki45melanson91 I am sorry you are going through this, it is scary. Try your best to remain positive. Set goals - don’t drink alcohol if you have been. RUclips is a great information source - ask your doctors everything you can think of. Sending you prayers and support 🙏🏻💕
@@religiousandspiritual9374the main thing I did was quitting alcohol. Consume 1 gram of protein per my body weight daily and more on days I could. Read everything I could online about cirrhosis and decided I was going to enjoy the day but plan for the future & give myself permission to have a bad moment but not a bad day. Lots of rest then get up and accomplish one small task daily.
I love your positive attitude. This has really helped me as my husband was diagnosed about two years when he started hemorrhaging (varicosities), he was close to death. So far, no cancer. He never smoked, doesn't drink and was a vegetarian for 15 years. He has recently been having arterial nose bleeds due to the blood thinning, bilirubin kicking butt but no jaundice.... nausea, fatigue, mood swings.... you covered a lot and I think your video is a blessing to others. I wish we could donate to you, but as you well know and so do we, this diagnosis kills you financially. We are hanging on by a thread. Will keep you in my prayers along with my husband. Oh...and I was diagnosed with NASH 8 months ago. Doing my best to reverse.
My husband had cirrhosis for 15 years got a transplant recently that lasted for three months and then he passed away from something else. Keep fighting everybody prayers
Can't tell you how much your words of encouragement helped me today. Between coping with career changes and living with chronic liver disease, it's been hard to stay positive. But your story gave me hope and reminded me that living a happy and healthy life is a matter of choice and discipline. "Make a choice, right here, right now, to change those ways, and say 'yes' to living." 🙏 Thank you.
Thank and God Bless you,,,,I am also dealing with liver cirrhosis Sadly im 78 yrs, and know that due to age they won't do a transplant. They prefer to give to someone younger, as they say you lived a goodlife so there is where I am,,,,trying to stay positive, Its hard but its one day at a time..I'm sure we are glad that posted this video, you don't many who do this,,,,
Thank you so very much for making this video! Recently diagnosed with non alcoholic cirrhosis. Still in shock! You did a great job of explaining things my doctors have mentioned but I didn't understand. God bless you and keep you!
TBH, I never would have thought you had cirrhosis based on your appearance. You look relatively healthy. Thank you for sharing this information. It may help save lives or quality of lives. I hope only the best for your recovery. Take care.
People, besides drinking alcohol. Monitor your Sugar intake because High Sugar diet is very similar to drinking alcohol.2nd a high Refined Carbohydrate diet.Limit your carbs and sugar. 3rd,also High Fat diet or more like Saturated Fat diet (eating too much fatty Red Meat;ribs,bacon,ribeye steak,sausages,etc.) and processed deli meats- keep an eye on these foods in not eating too much of it.These items are generally super hard on the Liver that if we consume so much of it that it could kill the Liver.
I need to get a better control of my sugar intake . I quit alcohol over 18 months ago but I somehow developed quite a sweet tooth , especially for ice cream .🤔
@@andrewhazenberg3398 If you have to,trade it for Greek Yogurt that has Zero Fat and very low carbs/sugars. Also, maybe get the Frozen Yogurt,but for this you will have to check the calories nutrition facts. Also,trade your regular Ice Cream for Sugar Free and/or Low Fat Ice Cream. This are just ideas for healthy snacking alternatives.Good Luck
I’ve seen many examples of people reversing fatty liver and the occasional anecdote of reversing fibrosis on a purely red meat carnivore diet. Cases that were considered irreversible. The data is still coming in as that diet gains popularity, but it looks like we may have to pump the brakes on the previous way of thinking regarding fatty red meat. It may even be the missing answer for slowing cirrhosis.
I have to commend your outlook! There’s another guy who has a channel who has cirrhosis. I couldn’t finish watching it. All he did was complain. You have the right attitude. Having had cirrhosis myself - until I got a transplant- I lived everyday as it were my last - no alcohol of course. Finally, be careful of your protein intake. It can cause encephalopathy. Look it up. Also, drink lots of Water to keep your kidneys going. They’ll take a beating throughout the years. Your immune system is low also… white blood cells are low. Good luck brother.
Hey Neal ..I got my liver January 16th...I was only on the UNOS transplant list for a total of 10 days from being listed to transplant. I sure never thought it would happen that fast but I have AB + blood type which is pretty rare. But I recovered very quickly I spent 1 day in ICU and 4 days in a private room. I was discharged Monday afternoon and going back to the clinic Friday morning to have my labs checked
I got home yesterday...it sure feels good to be back home. I have to go back to the clinic on Fridays to have the labs checked to see what medications need to be readjusted and hopefully get the staples out too..my right side is pretty tender yet.
Thanks for the videos man, It’s greatly appreciated. I can absolutely relate. My dad passed away when he was 36 years old from a genetic form of liver disease/cirrhosis and unfortunately I was diagnosed with it about a year and a half ago and next month I will be 36 and I am coming up on my 2 year mark. I have been hospitalized multiple times for variceal bleeding, H.E. And a handful of other complications due to cirrhosis. It’s a rough process that is for sure, it’s hard to plan anything because the symptoms can hit so fast and be so disorienting and crippling.. it makes every day a struggle and a complication. It’s tough to plan to do anything with the family, makes it extremely difficult to work every day.. it makes it difficult to plan for tomorrow, which makes it impossible to plan for the future because ultimately we don’t know if we will even have one or if we will get liver transplant or what our health and quality of life will be. It’s a nightmare I’ve sat here and lost track of what I’m writing or thinking.. I wish there were better answers and not just “you could live with this for the rest of your life.” That must be in the book somewhere because those are the same exact words my doctor told me. I hope the best for you and your family and everyone that is going through the same thing
@@aaronsanxiety3571 I honestly had the same thoughts when I was first diagnosed, so far the Dr’s don’t talk like that is one of their concerns. But I would have to assume it’s a possibility probably the same as the possibility that anyone getting an organ transplant may have complications with their body rejecting the new organ or many other complications that could potentially come along after such a procedure.
Thank you for the way you have explained this. I was diagnosed in 2019 . And they sent me on my way. I’m trying to do my best to eat healthy. I appreciate you so much. You explained it so well for me to understand it. I will be following you.
I'm sorry to hear you are going thru this. I have liver issues that run in my mother's side of the family. I turned to alcohol right before the pandemic and then when I was unemployed during the worst of the pandemic. I drank a lot lot. I'm trying to do something about it. I wish you all the best. Cheers my friend!
I left the standard American diet behind and my body is healing. I have hepatic steatosis and borderline hepatomegaly. Fatty liver of course, only thing to reverse that is diet and lifestyle change. Which I did, went ketogenic and hitting the gym every other day, strength training works wonders for physical and mental health.
My wife has been diagnosed with cirrhosis since 2019 and she's doing well till date, tho we have good insurance, tomorrow we are seeing our doctor i really hope he has good news for us. Thanks Neil am happy listening to you, you are a blesing.
Thank you, you are a voice and blessing for those who walk the same path, but cannot yet put it into words. Thank you and I hope that you make it through your ordeal, thank you so much. ✨🕊️
One thing I noticed is how alcohol -centric our society is. I watched a comedy with friends last night and the whole damn movie basically revolved around liquor
As a believer in Christ, I believe miracles can happen, I've seen them and experienced them. Times I thought I would die (ruptured esophagus) I almost died, but God saved me. I mean, there was blood everywhere, looked like a crime scene. This was in 2008, don't lose faith. Keep praying ❤🙏
My liver was severely impaired from my test results. Shockingly bad from 20 years of heavy drinking. I went cold turkey for 138 days and my liver came back completely normal. Unfortunately I went back to drinking but at least it shows that your liver can totally regenerate if you give it enough time. So please try!
I was diagnosed with alcoholic fatty liver disease in 2011, I was 32. Drinking alcoholically, now I've been sober 10 years, my liver healed after 6 months of teetotalling. Wishing you well, I hope you have healing and good health, I like your videos, you are so informative and brave. 🇦🇺 🌻💙
my dad died recently from complications due to cirrhosis, he always loved a drink which might of been a contributing factor but he was also on medication to deal with arthritis and goutte which I was told effected his liver. he constantly had his liver scanned due to his medication and although fatty his liver was in good health apart from that (He ended up getting an infection in his liver). the scary part was how quickly it came on, one day he was fine the next he became sleepy and suffered from delirium and wasn't himself. stay strong whoever has this. I don't write this to scare anyone but because his tale needs to be told and everything I do I will donate money to liver charities to support those who do love you Dad
This is the most informative video on liver disease I've watched! Thanks for sharing this! 💯 You have a great attitude and staying positive is helpful to your well-being.
In 2021 I had a chest scan because of chest pain that turned out to only be gas but they did notice a scar on my liver. My doctor didn't bother reading the entire report until 2 months ago. Had fibrosis and ultrasound Recently that confirmed cirrhosis. I instantly change everything about my life two months ago but it's so hard when you get fourteen different answers for almost everything. Thank you very much for making this video, also a big thank you to everyone who commented, reading them really helped me.
Thank You this was very informative i was diagnosed in November 2021. My meld was 9 it is now 18. I have experienced most of what you talked about only fluid in my abdomen. Paracentesis helped and of course the meds. Mine was from fatty liver disease. We are talking about a living donor in the future i hope i can wait for a while. Your so right about exercise, and doing the best you can to help your liver and body. Prayers 🙏 for you and others going through this.
Hey bro…sending you a lot of love. I’ve had pancreatitis and it almost killed me…my lungs filled with fluid and I was on a respirator for two months. You’re story hit home. Continue living my brother!
This was such a great video! I was diagnosed with decompensated cirrhosis on October 2nd 2021 at 39yrs old. I had bad acites, jaundice, and I have varices. I have been hospitalised twice with HE. I haven’t had a drop of alcohol since the day I was diagnosed. My MELD score at the beginning was 21, it is now at 6. My cirrhosis was similar to yours, already predisposed to liver complications (developed in my pregnancies 18yrs ago) and a stage where I was drinking quite heavily for a few years due to some tough situations I didn’t deal with properly.
Thank you so much for your video.l am waiting to see my liver consultant after being diagnosed with cirrhosis of my liver .You stay positive I am determined to.
Thank you for this. You sound so calm and relaxed. Chronic Pancreatitis here and it's not fun. I'm trying my hardest to be positive even though knowing the end is near. I've had at least 10 doctors who see me first every time I go to the hospital. The ER staff at my hospital all know who I am already, which is sad. I wake up in chronic pain daily because my leg muscles are torn, my back is in constant pain all the time except for when I get an abdominal tap and I don't drink anymore or eat anything fatty or fried. I take around 24 pills a day prescribed to me by my doctors. It hurts to get up, it hurts to lay down, it hurts to even get on my computer and to top it all off, I also have ascites which is the worst. The abdominal taps royally suck, and I'm not looking forward to doing them weekly. I'm 46 and was diagnosed a month ago. How do you stay so calm and collected during all this? I'd really like to know. My doctors won't tell me the bad news so I have to learn for myself. They're not very good at telling me the truth. Stay well buddy and thanks again for the video.😎😎
Find one thing to focus on and put your energy there. Every case is different. When I was at my worst they figured 3 months. That was almost 2 years ago. So that maybe why they don’t talk that way to you. Because anything is possible. One day the fluids stopped building up. I don’t know how long it’s been since stopping alcohol but it took 6 months before I noticed a difference. Keep fighting and find something to hope for. I wish you the best
thanks for your video. it sounds like you have decompensated cirrhosis. For those out there that still have compensated cirrhosis, I would like to give them a word of encouragement. I was diagnosed back in 2019 a couple of months before the shutdown. They told me I was on the borderline between compensated and decompensated. And said I had about 3 years to live. I made both habit and lifestyle changes. No drinking (which I don't believe was the primary cause, but was a contributing factor), diet restructuring (on going), supplements and exercise. I also gave up driving. And bike as much as possible, on a good day I can get 10 miles. But other days I can't even get out of bed. I have been hospitalized four times for esophageal varices ruptures. which is actually how they found out about my condition. I still work but take about twice as many days off as I get in sick days. I normally don't speak about this topic but to close friends, so I would like to commend you on your willingness to put yourself out there. Also enjoyed the answer to the question how long do I have? It brought a little respite to an otherwise sobering topic. Keep your head up my friend, ...
What diet do you follow? I have been doing low fat, low carb, low protein to lose weight, but I have heard you need to have more protein, I might start drinking pure protein shakes (no sugar/flavouring)
@@mike_au with cirrhosis of the liver, each person is different. I see a dietitian and a liver specialist a couple times a year. They are always adjusting their recommendations. But the general advice is try to eat as natural as possible. Grass fed beef, wild caught fish, free range eggs. For fats; real butter, and MCT's oils. No vegetable or canola oils. Low carb and starches. I don't eat keto or gluten free bread. Substitute rice for riced cauliflower. No potatoes, soft drinks, etc. I drink at least 32 oz of sports drink a day. Body armor lite, is the one I like. There is a guy on RUclips named Dr. Breg, he talks a lot about fatty liver disease but he does have some videos on cirrhosis. Between him and my dietitian I have learned a lot. I also will have days that I don't follow a strict diet, or other recommendations. It's a lot of try this and then try that. Hope this helps.
Thankyou for posting this, you’ve given me hope. I am not a drinker, I socially drink sometimes as I’m a single mum of 11 year old, it’s not often. I went on two plane trips, Covid jab and worked as a traffic controller in 45 degree heat, with not enough water. Sedentary lifestyle. Now clexane every morning and night. 😮😮 I had no idea till now why hernias, vertigo bloated belly, lack of energy and blockage occurred at 49. I was fitter than most. Told I was not improving so surgery for hepatic portal vein thrombosis. Stent put in! Now told kidney function may be normal but I have cirrhosis scarred liver. I’m sad at not being able to see my little girl grow up! I have always worked hard now pointless!
The one thing I have learned is we don’t know what tomorrow may bring. It could be positive. and I know it could be bad. But there’s a chance it’s good, so that’s worth finding out. And try not to think about not seeing your child grow up, because you just might. Every body is different. Some people have years. Or maybe 20 years. If you haven’t found a liver doctor I would suggest a specialist. And I’m sorry you are dealing with this. Keep the fight! Don’t break 😁😊
Thank you for sharing. I am at MELD 18 for four years now, and I share most of the experiences you have been through. I have a very crummy prognosis but I still want to talk to friends and family in an intelligent way. Your knowledge and feelings hit so close to home to me and certainly with so many more people than you can imagine. Q: How do we talk to folks without spooking them away? Q: Are you okay with being quoted? Every day, I think of a thousand things that I will never get to see, to do, or even whether or not I will even wake up tomorrow. I hope you allow yourself to plan some things that are especially meaningful and fun for you. Stay warm and surrounded. And big hugs to you. ~TODD
Thanks for these videos, my brother is an alcoholic and does drugs, he’s in denial but he is having hallucinations now and believes some guy is always harassing him and coming into his home, some days he acts normal and when he drinks heavier on certain days he has those visions. I think it’s already affected his brain but he gets mad at anyone who tries to tell him he has a problem
I’m so sorry to hear that. Remember this disease affects everyone a bit different. Also the biggest thing is her finding purpose, the loss of the abilities that someone used to have or could do will probably change. So it’s not a can’t do it is a now this I can do. A lot of changes and it’s hard. But staying positive and active is so important. I was at that stage 2 years ago. They gave me 90 days. Well my liver numbers have gotten actually better. So there can be hope. Hang in there. I wish you all the best.
I’m sorry you’re so ill, liver disease is a very painful disease to live with. I hope you have a lot more time left, you’re very positive and brave, thanks for sharing your story.
Going on 10 years of extra life given to me from a liver transplant in oct 2014. I had varices diagnosed 3 prior to transplant. My dr put me on beta blockers to keep them from growing. They didnt want to band because i was a hemophiliac and they were afraid of bleeding. At time of my transplant when they opened me up they found the beta blockers made the varices totally disappear. All this started from a bad blood transfusion for my hemophilia that gave me hep c which eventually destroyed my liver. Fun fact. The new liver got rid of my hemophilia as it contains the factor 8 clotting factor my birth liver did not have. So i got to live and am no longer a hemophiliac. Grateful to be alive. Best of luck to you brother.
My girlfriend is diagnosed with cirrhosis liver she told me that on Tuesday I'm worried about her but I'm praying for her everyday hopefully she's get well soon I want us to do our get togethers I miss all of our get togethers she in the hospital right now
I used to be a super heavy drinker, then got sober for 2 years. Had an ultrasound some months back, and my liver was in very good shape. Not fatty, not enlarged, no scarring. It surprised me at first, I was drinking like a madman before finally getting sober. The way it was explained to me, is that the liver will heal from just about anything- as long as you don't go over a certain threshold of damage, which is different for everyone and impossible to predict. That's why some people can drink a bottle of vodka daily for 30 years and never get cirrhosis, and why someone who only drank a couple beers 3 or 4 times a week gets cirrhosis at 35. It's unfair, but there it is.
@@2Hard4UrGrandma Up to a litre of vodka or whisky, plus as many beers as my stomach could take, at the worst of it. It wasn't like that all the time, of course. Some times I'd drink beer several times a week. But when it got bad, it got bad for a month or two at a time. I usually needed medical help to stop at that point.
Thank you for your informative video. I hope that you live longer and in the best condition possible. Your personal experience is very important for people with liver disease.
I came to this video in hopes my comment can help you. I halted my father in laws stage 4 cirrhosis c*. Dandelion root and milk thistle WILL GREATLY help detox and cleanse your liver. That and other vitamins really really helped him. Please look into 🙏
@muthufeb18 unfortunately after getting much better the doctors told him to stop, put him back on their protocols and he was gone within a few weeks. I'm grateful we got that extra time with him just before when he took my advice. After a few days of stopping, Everything came crashing down quickly once he listened to the drs. The rest of the family knew that's what was changing things for the better. I'm hoping it will help save others the extra grief. Sometimes the western way of doing things isn't the best way. Look into all of your options. Instead of helping him they just tried to make him more comfortable. Sometimes you have to use many methods. It's no one size fits all. I wish you all love and prayers
I am living proof of that it sure dose work wonders 11 years with cirrhosis with no problems but the first 3 years was hell they gave me 3 years to live and I am living a Normal life these days. I had stags 4 as well thanks for sharing I am sure it will help someone out. wishing you and your father in law the best.
I was diagnosed with cirrhosis 11years ago and had horrendous health problems, I have however been fine for a long time now ,roughly 10 years at aged nearly seventy I am still perfectly fine and hoping to stay well for a good while yet ,best wishes to you.
It depends on if your pancreas is affected , if you have liver cirrhosis with pancreatitis , your time could be relatively short and filled with non stop nausea.
I have cirrhosis 15byears,hep c over 30 years,from a tattoo,i dont drink alcohol,or take drugs can only eat junk,like chocolate 🍫 love it,i have chronic pancreatitis since 2005,with acute pancreatitis 7 times,a gall stine,splenic artery aneurysm,my pancreas is dying,and no Dr sees ne,just treat me like trash here in New Zealand 🇳🇿 no pain relief,for my vack,shoulder and hip,they won't give me pain relief anywhere nor palliative care,i feel they dont care,no dignity or respect,so cant get help,im 61 this year,and its hard on my own,but just keep going i hve to
Why do you say times shortened with cirrhosis and pancreatitis..i have gone past 15 years cirrhosis, longer with pancreas, pancreas is dying but i keep going ok. Thanks 👍
I was diagnosed with cirrhosis of a had a fiber score of four. That was four years ago. I quit all alcohol. I eat healthy. I have no symptoms no side effects. I’m taking no medication. I feel completely normal. You know they tell you you have cirrhosis you feel like you’re gonna die, but I don’t feel like I’m sick at all, I get scanned to check for cancer. They’re always good so I believe if you’re healthy, we can live with this for a long time.
There’s no set time frame. And liver cirrhosis is painless for the most part. Your liver can keep going with only 5 percent left. Like there are days even weeks that I feel normal. I still have it though. All you can do is eat right and avoid alcohol.
can you make a video describing how it feels? how the symptoms feel? like.. from the beginning what signs did you have etc.. and you will be fine prayers to almighty
I drink lemon juice first thing been itching in evening had a drain over Xmas they drew 5 liters off my back but I feel fine .im 66yrs I sleep alot ot time but could be due to age I live pretty lonely but enjoy my days no varices no yellowing probably down to1500 calories. Stopped throwing up I expect another few yrs
@@KamranKhan-fr3qu Organic plant based diet, milk thistle tea, no sugar, no refined grains, chemicals or alcohol. Hasn’t been easy but it’s doable. Took control of my medical such as learning what blood tests I needed and making sure Drs did them right and on time. Have had over 100 therapeutic phlebotomies. Good luck!
My mother was diagnosed with liver cirrhosis on december 2023 i'm so afraid of losing her i love her more than anything in the world transplantation is not possible in my country 😢
One of my best friends got a bloody lip one night. It didn’t stop bleeding for a couple days until he went to the doctor. He was a drinker, probably heavy. However he was given the news by his dr that he had inherited a gene from his dad’s side where the liver wouldn’t repair themselves properly. His liver was done. He needed a transplant or certain and imminent death. This was I think April 2014. I watched him quickly pass away in the early morning 4th of July of the same year. Both his brothers were tested and one of the younger ones had the same gene. He was a bartender who also drank more than healthy. He also passed away. What was most sad about the younger brother is he knew he had it, and continued to drink. Alcohol is the most toxic and life ruining drug there is. My friend was 31
Ammonia build up. My friend would have to take laxatives to try and get the ammonia out. He would start talking and making no sense. It’s heartbreaking to hear this because it brings back memories that I wish I could forget.
My skin is turning yellow and my whole back gets itchy at night. Sometimes, my feet and hand also get itchy. These are definitely signs of Cirrhosis. I did a recent blood test and the test said that my liver and kidney are fine...but I am going back to discuss if my liver is fine, why is my skin turning yellow and I still have itchy body every single night. Wishing for the best. I have been told to start eating a keto diet or lots and lots of veggies and limit meat. Cut sugar and sweets.
My itching stopped when I cut down on sugar. Initially I thought it was pre diabetes but I realise, since scans on my liver, the itching was related to the liver disease.
My family member was doing okay….got a UTI…went septic…gone. Other infections is what you need to worry about because your liver can’t process the meds needed to save you.
Just happened to find you. I was diagnosed with NASH fibrosis stage 3 in 2016. My MELD score is 6 and no varices that are needed to be rubberbanded with medications and no ascites but high levels of Ammonia thst I just got paperwork back from. My psychiatrist decided to have my ammonia tested due to confusion and hallucinations. I have several psychiatric diagnoses as well which could actually be my symptoms of confusion/hallucinations as well as Ammonia levels. I am not sure what is going on. I have a million doctors that I see for various conditions. I am a complicated case they say. I have severe neuropathy but no diabetes, I need to knee replacements, etc. Help, doctors say I am sick but am I? I have lost 55 lbs. In the last 2 years. So, that is a positive thing!
There are many things that can cause liver damage, ask about lactose that is a thick syrup that is a laxative but it collects ammonia in your body and flushes it out. And Xfaxon it’s a strong antibiotic that protects the brain. Also have you considered maybe a connective tissue disorder? For me they are testing me for EDS it’s hyper mobility disorder, basically if you were double jointed when you were younger, stretchy skin and there’s a lot of other signs. If that sounds familiar google that. It can effect everything organs and all. But what ever it is hang in there.
My soninlaw passed away 3weeks ago today 36 years old. 7kids left behind and my daughter. It was the most horrible thing 😢I've ever seen in my life. Any human go through. Godbless you sir prayers for you😢
Someone very close to me has decompensated cirrhosis and has gallbladder issues but they are not willing to take the gallbladder out right now due to the dangers of the surgery. Which causes so much pain. And the insurance she has only gives her 1 option of a group of doctors for liver transplantation. The medical care is unrealistic!!! So sad!!!!! And HE IS SUPER SCARY!
I was knocked back twice to take my gallbladder out,they said to dangerous so i suffer pain all the time from thst,they just call me an Addict i dont tale drugs nor drink,its cause i have gep c from a tattoo,and cirrhosis from hep c,so drs ignore me now,oh well such is life
I'm worried about my dad. He has been a drinker all of my life. The topic of him quitting has come up with family, but I'm pretty certain he would have to be medically detoxed, as he is physically dependent at this point, and up until now he has said he has no interest in doing so. I know he has tried on his own to cut back some, but I'm not sure it's with enough success. About four years ago, I was visiting, and his wife mentioned that he told her the doc said his liver was hardening, but he refused to say or discuss anything further. This last Christmas, and recently in photos, I've noticed his belly looking quite a lot larger, but the rest of his body is looking thinner. I'm really hoping that this is just a normal aging thing, but I'm worried that it's ascites, he has always been a very fit guy. I know I probably won't find any answers here, I'm just so worried, and sad, and I don't know what to do. I hope he is not in too bad of a condition, and will still be able to turn things around, but it's so hard to know since he is avoiding talking about it, and there's really nothing any of us can do. I feel like I have to guess where he is at with all of this, I'm just scared and I don't want my dad to suffer, and I don't want to lose him he is only 55 as of now and I just want to have as much time as possible with him, and for him to enjoy his life and feel happy and well.
Cirosis due to Hepatitis C left undetected many years, just had my gallbladder removed and they discovered my liver is real upset and is wanting to bow out. Not sure if it's cancer yet, this week I'll know. Not gonna lie, I'm slightly stressed.
I quit 2 summers ago. Went from 1 wine box + a week and a 6 pack. Now nothing. Do I miss it yes, but I'd rather have my wife at home, not separated, and my daughter being able to rely on me to drive her and her friends around 24 7. Than sitting alone buzzed. As well as my liver of course
You need to take Tudca and Cholene like I did when I was diagnosed with stage 4 cirrhosis , along with clean diet my gastro Dr told me I got in remission. 14 year's ago !!!
@@tamaradungan8016 Yep. I've since done an 11 day dry fast. It needs to be done under medical supervision and there are still risks involved however prolonged dry fasting is pretty much the only thing close to a cure that we have for diseases involving scar tissue like COPD, liver disease, etc. Even then there's no guarantees, it all depends on how severe your liver damage is and how far along it is.
@@jackking2461 That's what the pharmaceutical companies want you to think. SOME of it can be reversed if caught early. People with advanced liver disease won't be able to be helped that much by it.
You r great thank you just got diagnosed I do see liver Doc hard to stop drinking but I wanna live been really sick lately sooo tired too thank you Neil
Keep going, if you drink start over the next day, one day at a time. Small victories. Plus be honest with your doctors, they can help with finding support. Don’t let it win. Your life belongs to you!
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I was diagnosed with cirrhosis of the liver 1/21/22 from alcoholism at 38. It was the hardest fight of my life for 10 months. I was only given 3 months to live. The disease took over my body and eventually only had weeks because it was so bad. On 10/17/22 I received a phone call from University of Michigan and they had a match for me. They saved my life and I've been sober since 1/21/22.
So happy for you!
Amazing
Hi my name is Frances,I was noticing your comment about a transplant did you have it done ?how are you feeling today !could you please give me some information about liver disease if possible I would appreciate your help,your thoughts about having liver disease!is there any certain symptoms should I be concerned with!
@@CityParanormal173 yes I received my transplant on 10/17/2022. I'm feeling much better, but I do lack energy from to to time. The liver disease was extremely devastating and required lots of treatment to stay alive.
Dont drink and drive your body to the grave- officer friendly 😂
Detox in 2018, 3 months to live, hospice. 6 years of no relapse sobriety, great blood work. The Dr. says no need for a transplant yet. Feel great and getting stronger daily. Never give up, It ain't over.
What is your advice on diet, etc?
@@CP-rc6wb 120 grams of protein daily, sleeping as much as possible and no stress. Exercise as much as you can and fight through the fatigue.
wow. amazing. my sister died from liver failure @ 2 years ago. 58 then. drank vodka daily. i’ve been sober @3 years now. cold turkey. i too was a daily drinker. ( beer)
@davejohnson6702 Sorry about your sister. I have zero cravings now at 6 years, the first 2 or 3 were tough. Good for you, stick with it.
Got cirrhosis from drinking and doing drugs told me I wouldn’t survive 3 months 1 year sober no need for transplant yet I pray god heals me fully
My dad lived from 1969 -2006 with cirrhosis of the liver. But his was from drinking alcohol. He stopped drinking. And lived a long time. He did not pass away from the cirrhosis. Again thank you for all the information.
@@adelagutierrez6099 livin healthy😆
Some folks can survive it whilst others don't. My dad died of liver and colon cancer and drank once in a blue moon but was a chain smoker. My cousin lived with all kinds of cancers that started with breast in mid 30's . They'd cure her from one type of cancer then a year later it would show up somewhere else. She was told she was dieing but didn't let diagnosis bring her down. She was allowed to work from home so she could keep her insurance....she was beloved by everyone she met. She had 3 young kids she wanted to finish raising and she did. She past a few days after her youngest turned 18. Probably 10-12 years after being told she was dieing.
I was dx in 1988...so I have had cirrhosis for 36 yrs...Am now 58 yr old. Planning to do a 100 mile hike this summer. Eat well, sleep, jump on infections or any sign of illness, and lots of exercise. as you said, it doesn't need to be death sentence...good luck!
What stage of Cirrhosis?
I know someone in my family is hardcore massive alcoholic (drunk 24/7) from 14 to 74 and they’re super healthy in amazing shape (better than me) and they look like they’re 50. I’m sure he has massive cirrhosis but not eating McDonald’s and processed trash will save you fast.
I am a Nurse and I have cirrhosis. Medically the longest expected to live once diagnosed is 12 years. You are a unicorn.
The average once diagnosed is 8 to 12 years without a transplant. I am very early stage diagnoses two years ago.
@@ZxAMobileoh yeah, some genetics are better than others. In my family strong livers run BUT strong hearts don't. Many of my family members died from heart attacks but the livers were fine during the autopsy.
I was diagnosed on my birthday, January 1st, 2021. I am doing the best that I can to keep mine from getting worse. I have bloodwork and an mri done every 6 months. The Lord is by my side and helping me every step of the way. Mine is non alcohol cerosiss of the liver. God bless you and thank you for all of the information.
*cirrhosis*
@juliadixon8465 I'm so sorry. It's a journey for sure.. if I can answer any questions about what I am doing just let me know. I take some supplements and the medicine my liver specialist has me take. Hang in there.
Can you share supplements and meds taken?@@donitatiller7214
How are you doing? God Bless you.
Thank you for educating me! Just lost my mom 2 months ago to cirrhosis and internal bleeding. She was a great mother, but struggled with drinking. I’m now an advocate for a drinking awareness! Blessing to you for helping people. You are awesome!!
Sorry to hear about your mom
I'm so sorry ❤
I also have liver cirrhosis. Diagnosed in 2019 brother. My Mom had liver failure secondary to diabetes. I was an alcoholic but quit in 2018 before being diagnosed. It sucks but I've been driving on. I also have chronic kidney failure but I've been doing rather good I believe. I feel good at least. I just do my best to stay positive brother. Keep doing the same buddy
22 reishi purple reishi mushroom incure 8oz drink all in 15mins mesima 7 pills a dae for 8 weeks
Stay strong brother, I'm praying for you.
Cirrhosis at 17....with hepatitis...took meds for hepatitis, cured, still livin with Cirrhosis......now 71...went to specialist ...ultra sound on liver 1600 count you have liver failure...sober since 1990 livin with a 1400 count...😅...more good days than bad..hallelujah!...
I was in hospice in 2018. 2024, still sober and feeling great with cirrhosis and really great blood work? Winning, right?
You lost me at sober
Sobriety didn't t happen another 20yrs..sobered up 1990
@@garryanderson598 I was just making a bad joke. It is hard to imagine never drinking again. Even for the taste of some things.
You know I m in the safe place...
Neil this was a very good video! You covered so many of the questions people wonder about when newly diagnosed. My liver Dr told me he wanted to see me live 30 more years without a transplant! I am 58 so you have many more years to go my brother in C. I was diagnosed Nov 2022 and went thru all the hoops in August 2023 to make the transplant list. Nov. 2023 with tears of joy in his eyes my Dr said I was too well and not in need of a transplant now. It’s a rare thing he said so you and I are so Blessed! One thing that I still struggle with is neuropathy in my feet - left foot is worse. But like you, put one foot in front of the other & keep on keeping on. All the best
Anything special you did to become healthy again?
@@religiousandspiritual9374
I upped my protein to 90+ grams a day, got more sun plus increased my physical activity. I’m not a Dr and no medical professional recommend this, but I added Milk thistle supplements as well as glutathione to my vitamin ritual of C,d3 with k2, zinc and calcium Above all I started and ended each day with Gratitude and let go of the things I cannot change. I pray this helps you & May God Bless You
Just recently diagnosed I'm scared
@@micki45melanson91 I am sorry you are going through this, it is scary. Try your best to remain positive. Set goals - don’t drink alcohol if you have been. RUclips is a great information source - ask your doctors everything you can think of. Sending you prayers and support 🙏🏻💕
@@religiousandspiritual9374the main thing I did was quitting alcohol. Consume 1 gram of protein per my body weight daily and more on days I could. Read everything I could online about cirrhosis and decided I was going to enjoy the day but plan for the future & give myself permission to have a bad moment but not a bad day. Lots of rest then get up and accomplish one small task daily.
I love your positive attitude.
This has really helped me as my husband was diagnosed about two years when he started hemorrhaging (varicosities), he was close to death.
So far, no cancer. He never smoked, doesn't drink and was a vegetarian for 15 years. He has recently been having arterial nose bleeds due to the blood thinning, bilirubin kicking butt but no jaundice.... nausea, fatigue, mood swings.... you covered a lot and I think your video is a blessing to others.
I wish we could donate to you, but as you well know and so do we, this diagnosis kills you financially. We are hanging on by a thread. Will keep you in my prayers along with my husband.
Oh...and I was diagnosed with NASH 8 months ago. Doing my best to reverse.
Avoid alcohol, processed food, and sugar. Go low carb diet with intermittent fasting. You can do it.
My husband had cirrhosis for 15 years got a transplant recently that lasted for three months and then he passed away from something else. Keep fighting everybody prayers
I’m so sorry 😢
So sorry!!
😮
Can't tell you how much your words of encouragement helped me today. Between coping with career changes and living with chronic liver disease, it's been hard to stay positive. But your story gave me hope and reminded me that living a happy and healthy life is a matter of choice and discipline. "Make a choice, right here, right now, to change those ways, and say 'yes' to living." 🙏 Thank you.
Thank and God Bless you,,,,I am also dealing with liver cirrhosis Sadly im 78 yrs, and know that due to age they won't do a transplant. They prefer to give to someone younger, as they say you lived a goodlife so there is where I am,,,,trying to stay positive, Its hard but its one day at a time..I'm sure we are glad that posted this video, you don't many who do this,,,,
Thank you so very much for making this video! Recently diagnosed with non alcoholic cirrhosis. Still in shock! You did a great job of explaining things my doctors have mentioned but I didn't understand. God bless you and keep you!
TBH, I never would have thought you had cirrhosis based on your appearance. You look relatively healthy. Thank you for sharing this information. It may help save lives or quality of lives. I hope only the best for your recovery. Take care.
People, besides drinking alcohol.
Monitor your Sugar intake because High Sugar diet is very similar to drinking alcohol.2nd a high Refined Carbohydrate diet.Limit your carbs and sugar.
3rd,also High Fat diet or more like Saturated Fat diet (eating too much fatty Red Meat;ribs,bacon,ribeye steak,sausages,etc.) and processed deli meats- keep an eye on these foods in not eating too much of it.These items are generally super hard on the Liver that if we consume so much of it that it could kill the Liver.
I need to get a better control of my sugar intake . I quit alcohol over 18 months ago but I somehow developed quite a sweet tooth , especially for ice cream .🤔
@@andrewhazenberg3398
If you have to,trade it for Greek Yogurt that has Zero Fat and very low carbs/sugars.
Also, maybe get the Frozen Yogurt,but for this you will have to check the calories nutrition facts.
Also,trade your regular Ice Cream for Sugar Free and/or Low Fat Ice Cream.
This are just ideas for healthy snacking alternatives.Good Luck
I am going to start doing that . Thanks for that suggestion🤗 @@Eros13adios
Fructose is probably as bad as alcohol for the liver and it's very high in Honey, Fruit and processed foods containing HFCS (High Fructose Corn Syrup)
I’ve seen many examples of people reversing fatty liver and the occasional anecdote of reversing fibrosis on a purely red meat carnivore diet. Cases that were considered irreversible.
The data is still coming in as that diet gains popularity, but it looks like we may have to pump the brakes on the previous way of thinking regarding fatty red meat.
It may even be the missing answer for slowing cirrhosis.
I have to commend your outlook! There’s another guy who has a channel who has cirrhosis. I couldn’t finish watching it. All he did was complain. You have the right attitude. Having had cirrhosis myself - until I got a transplant- I lived everyday as it were my last - no alcohol of course. Finally, be careful of your protein intake. It can cause encephalopathy. Look it up. Also, drink lots of
Water to keep your kidneys going. They’ll take a beating throughout the years. Your immune system is low also… white blood cells are low. Good luck brother.
Hey Neal ..I got my liver January 16th...I was only on the UNOS transplant list for a total of 10 days from being listed to transplant. I sure never thought it would happen that fast but I have AB + blood type which is pretty rare. But I recovered very quickly I spent 1 day in ICU and 4 days in a private room. I was discharged Monday afternoon and going back to the clinic Friday morning to have my labs checked
That’s great! Nice to hear you are doing well
@@Redneckkenobi now we all have to pray that they'll match you asap.
So happy for you. That is so awesome. May God Continue to bless you. 🙏
@@brucebrooks8144 thanks😊 I need to get sicker again first. But hey whatever is meant to be will be 😊
I got home yesterday...it sure feels good to be back home. I have to go back to the clinic on Fridays to have the labs checked to see what medications need to be readjusted and hopefully get the staples out too..my right side is pretty tender yet.
Another great informative video Neil . I just want to wish you all the best . I hope God gives you a miracle. 👍❤🙏
Thanks for the videos man, It’s greatly appreciated. I can absolutely relate. My dad passed away when he was 36 years old from a genetic form of liver disease/cirrhosis and unfortunately I was diagnosed with it about a year and a half ago and next month I will be 36 and I am coming up on my 2 year mark.
I have been hospitalized multiple times for variceal bleeding, H.E. And a handful of other complications due to cirrhosis.
It’s a rough process that is for sure, it’s hard to plan anything because the symptoms can hit so fast and be so disorienting and crippling.. it makes every day a struggle and a complication.
It’s tough to plan to do anything with the family, makes it extremely difficult to work every day.. it makes it difficult to plan for tomorrow, which makes it impossible to plan for the future because ultimately we don’t know if we will even have one or if we will get liver transplant or what our health and quality of life will be.
It’s a nightmare
I’ve sat here and lost track of what I’m writing or thinking..
I wish there were better answers and not just “you could live with this for the rest of your life.”
That must be in the book somewhere because those are the same exact words my doctor told me.
I hope the best for you and your family and everyone that is going through the same thing
If it is a genetic problem. After getting a transplant would the same thing happen to the new liver?
@@aaronsanxiety3571 I honestly had the same thoughts when I was first diagnosed, so far the Dr’s don’t talk like that is one of their concerns. But I would have to assume it’s a possibility probably the same as the possibility that anyone getting an organ transplant may have complications with their body rejecting the new organ or many other complications that could potentially come along after such a procedure.
Thank you for the way you have explained this. I was diagnosed in 2019 . And they sent me on my way. I’m trying to do my best to eat healthy. I appreciate you so much. You explained it so well for me to understand it. I will be following you.
I'm sorry to hear you are going thru this. I have liver issues that run in my mother's side of the family. I turned to alcohol right before the pandemic and then when I was unemployed during the worst of the pandemic. I drank a lot lot. I'm trying to do something about it. I wish you all the best. Cheers my friend!
Update?
Crazy so many young ppl are now getting cirrhosis. Mid 20's to early 40's are starting to sky rocket!
That'll be the standard American diet . But it makes people Rich
I left the standard American diet behind and my body is healing. I have hepatic steatosis and borderline hepatomegaly. Fatty liver of course, only thing to reverse that is diet and lifestyle change. Which I did, went ketogenic and hitting the gym every other day, strength training works wonders for physical and mental health.
I think people are drinking at an earlier age, and drinking more.
@@Theruckingcarnivore74 so true
@@That1GuyLouie yep
I’m fighting the same battle. Best wishes to you.
Thank you so very much, you are to kind. Keep fighting too! And stay positive 😊
My wife has been diagnosed with cirrhosis since 2019 and she's doing well till date, tho we have good insurance, tomorrow we are seeing our doctor i really hope he has good news for us.
Thanks Neil am happy listening to you, you are a blesing.
Thanks for sharing! I hope the appointment goes well 😊
Thank you, you are a voice and blessing for those who walk the same path, but cannot yet put it into words. Thank you and I hope that you make it through your ordeal, thank you so much. ✨🕊️
One thing I noticed is how alcohol -centric our society is. I watched a comedy with friends last night and the whole damn movie basically revolved around liquor
Legal accepted drugs like alcohol cigarettes pot caffeine are all dangerous fatal drugs.
thats american society. not everywhere is the same.
That's a load of crap and you know it @@archuk6058
@@archuk6058 It's the case in a LOT of countries. Definitely not an American thing lol
Yes everywhere, adverts, occasions everything is about alcohol, a very serious illness.
Wish u all well ,anyone suffering 😢
As a believer in Christ, I believe miracles can happen, I've seen them and experienced them. Times I thought I would die (ruptured esophagus) I almost died, but God saved me. I mean, there was blood everywhere, looked like a crime scene. This was in 2008, don't lose faith. Keep praying ❤🙏
I recently was diagnosed with a fatty liver and the doctor told me that I needed to exercise and lose weight. Good luck to you, man.
My liver was severely impaired from my test results. Shockingly bad from 20 years of heavy drinking. I went cold turkey for 138 days and my liver came back completely normal.
Unfortunately I went back to drinking but at least it shows that your liver can totally regenerate if you give it enough time.
So please try!
Can I ask what your results were? I understand that's super personal info but just trying to get a better idea of what you mean.
Looking good Neil, thanks for the video. Take care
Thanks so much for sharing. Your positive attitude has given me hope. I wish you all the best and many many many years ahead of you.
I’m so glad I could help. Keep fighting and never give up!
I was diagnosed with alcoholic fatty liver disease in 2011, I was 32. Drinking alcoholically, now I've been sober 10 years, my liver healed after 6 months of teetotalling.
Wishing you well, I hope you have healing and good health, I like your videos, you are so informative and brave.
🇦🇺 🌻💙
Thank you! It’s good to hear your positive story
my dad died recently from complications due to cirrhosis, he always loved a drink which might of been a contributing factor but he was also on medication to deal with arthritis and goutte which I was told effected his liver. he constantly had his liver scanned due to his medication and although fatty his liver was in good health apart from that (He ended up getting an infection in his liver). the scary part was how quickly it came on, one day he was fine the next he became sleepy and suffered from delirium and wasn't himself. stay strong whoever has this. I don't write this to scare anyone but because his tale needs to be told and everything I do I will donate money to liver charities to support those who do
love you Dad
This is the most informative video on liver disease I've watched! Thanks for sharing this! 💯 You have a great attitude and staying positive is helpful to your well-being.
I stumbled upon your videos, turmeric, ginger and milk thistle is helpful for liver, I take them everyday
Over use, toxic. Be mindful.
Also lemon and lime juice clean out your liver.
In 2021 I had a chest scan because of chest pain that turned out to only be gas but they did notice a scar on my liver. My doctor didn't bother reading the entire report until 2 months ago. Had fibrosis and ultrasound Recently that confirmed cirrhosis. I instantly change everything about my life two months ago but it's so hard when you get fourteen different answers for almost everything. Thank you very much for making this video, also a big thank you to everyone who commented, reading them really helped me.
Great video Neil. Always informative and uplifting.
Thank You this was very informative i was diagnosed in November 2021. My meld was 9 it is now 18. I have experienced most of what you talked about only fluid in my abdomen. Paracentesis helped and of course the meds. Mine was from fatty liver disease. We are talking about a living donor in the future i hope i can wait for a while. Your so right about exercise, and doing the best you can to help your liver and body. Prayers 🙏 for you and others going through this.
Thanks for your videos still watching from Australia and still trying to improve my liver ( fatty liver disease)
Hey bro…sending you a lot of love. I’ve had pancreatitis and it almost killed me…my lungs filled with fluid and I was on a respirator for two months. You’re story hit home. Continue living my brother!
That’s the plan. Stay strong and positive. Thank you for your support
Praying for a healing for you amen
Please would you pray for me too. Liver disease, rheumatoid arthritis and osteoporosis. X
This was such a great video! I was diagnosed with decompensated cirrhosis on October 2nd 2021 at 39yrs old. I had bad acites, jaundice, and I have varices. I have been hospitalised twice with HE. I haven’t had a drop of alcohol since the day I was diagnosed. My MELD score at the beginning was 21, it is now at 6. My cirrhosis was similar to yours, already predisposed to liver complications (developed in my pregnancies 18yrs ago) and a stage where I was drinking quite heavily for a few years due to some tough situations I didn’t deal with properly.
Sounds very familiar 😊 just got to stay positive and change the way you live. Thanks for sharing this
Thank you so much for your video.l am waiting to see my liver consultant after being diagnosed with cirrhosis of my liver .You stay positive I am determined to.
Thank you for this. You sound so calm and relaxed. Chronic Pancreatitis here and it's not fun. I'm trying my hardest to be positive even though knowing the end is near. I've had at least 10 doctors who see me first every time I go to the hospital. The ER staff at my hospital all know who I am already, which is sad. I wake up in chronic pain daily because my leg muscles are torn, my back is in constant pain all the time except for when I get an abdominal tap and I don't drink anymore or eat anything fatty or fried. I take around 24 pills a day prescribed to me by my doctors. It hurts to get up, it hurts to lay down, it hurts to even get on my computer and to top it all off, I also have ascites which is the worst. The abdominal taps royally suck, and I'm not looking forward to doing them weekly. I'm 46 and was diagnosed a month ago. How do you stay so calm and collected during all this? I'd really like to know. My doctors won't tell me the bad news so I have to learn for myself. They're not very good at telling me the truth. Stay well buddy and thanks again for the video.😎😎
Find one thing to focus on and put your energy there. Every case is different. When I was at my worst they figured 3 months. That was almost 2 years ago. So that maybe why they don’t talk that way to you. Because anything is possible. One day the fluids stopped building up. I don’t know how long it’s been since stopping alcohol but it took 6 months before I noticed a difference. Keep fighting and find something to hope for. I wish you the best
thanks for your video. it sounds like you have decompensated cirrhosis. For those out there that still have compensated cirrhosis, I would like to give them a word of encouragement. I was diagnosed back in 2019 a couple of months before the shutdown. They told me I was on the borderline between compensated and decompensated. And said I had about 3 years to live. I made both habit and lifestyle changes. No drinking (which I don't believe was the primary cause, but was a contributing factor), diet restructuring (on going), supplements and exercise. I also gave up driving. And bike as much as possible, on a good day I can get 10 miles. But other days I can't even get out of bed. I have been hospitalized four times for esophageal varices ruptures. which is actually how they found out about my condition. I still work but take about twice as many days off as I get in sick days. I normally don't speak about this topic but to close friends, so I would like to commend you on your willingness to put yourself out there. Also enjoyed the answer to the question how long do I have? It brought a little respite to an otherwise sobering topic. Keep your head up my friend, ...
What diet do you follow? I have been doing low fat, low carb, low protein to lose weight, but I have heard you need to have more protein, I might start drinking pure protein shakes (no sugar/flavouring)
@@mike_au with cirrhosis of the liver, each person is different. I see a dietitian and a liver specialist a couple times a year. They are always adjusting their recommendations. But the general advice is try to eat as natural as possible. Grass fed beef, wild caught fish, free range eggs. For fats; real butter, and MCT's oils. No vegetable or canola oils. Low carb and starches. I don't eat keto or gluten free bread. Substitute rice for riced cauliflower. No potatoes, soft drinks, etc. I drink at least 32 oz of sports drink a day. Body armor lite, is the one I like. There is a guy on RUclips named Dr. Breg, he talks a lot about fatty liver disease but he does have some videos on cirrhosis. Between him and my dietitian I have learned a lot. I also will have days that I don't follow a strict diet, or other recommendations. It's a lot of try this and then try that. Hope this helps.
@@mike_auhigh protein diets are thought to possibly make it worse but one school of thought but there aren’t enough studies to prove it.
Thankyou for posting this, you’ve given me hope. I am not a drinker, I socially drink sometimes as I’m a single mum of 11 year old, it’s not often. I went on two plane trips, Covid jab and worked as a traffic controller in 45 degree heat, with not enough water. Sedentary lifestyle. Now clexane every morning and night. 😮😮 I had no idea till now why hernias, vertigo bloated belly, lack of energy and blockage occurred at 49. I was fitter than most. Told I was not improving so surgery for hepatic portal vein thrombosis. Stent put in! Now told kidney function may be normal but I have cirrhosis scarred liver. I’m sad at not being able to see my little girl grow up! I have always worked hard now pointless!
The one thing I have learned is we don’t know what tomorrow may bring. It could be positive. and I know it could be bad. But there’s a chance it’s good, so that’s worth finding out. And try not to think about not seeing your child grow up, because you just might. Every body is different. Some people have years. Or maybe 20 years. If you haven’t found a liver doctor I would suggest a specialist. And I’m sorry you are dealing with this. Keep the fight! Don’t break 😁😊
My scarred liver is from portal vein thrombosis given 3 years
Good video brother stay strong keep that positive mindset
Thank you for sharing. I am at MELD 18 for four years now, and I share most of the experiences you have been through. I have a very crummy prognosis but I still want to talk to friends and family in an intelligent way. Your knowledge and feelings hit so close to home to me and certainly with so many more people than you can imagine.
Q: How do we talk to folks without spooking them away?
Q: Are you okay with being quoted?
Every day, I think of a thousand things that I will never get to see, to do, or even whether or not I will even wake up tomorrow.
I hope you allow yourself to plan some things that are especially meaningful and fun for you.
Stay warm and surrounded.
And big hugs to you.
~TODD
Thanks for these videos, my brother is an alcoholic and does drugs, he’s in denial but he is having hallucinations now and believes some guy is always harassing him and coming into his home, some days he acts normal and when he drinks heavier on certain days he has those visions. I think it’s already affected his brain but he gets mad at anyone who tries to tell him he has a problem
Thanks!
Thank you
appreciate your videos and smile and positivity. I will go to my first and hopefully only rehab at the end of month, for AUD.
I've only just been diagnosed with cirrhosis... thank you for this video. I'm pretty low at the moment
Hang in there! It’s a crappy road but at the end you will be so strong! Nothing will stop you!!
😢
God bless you and thank you for sharing this!! My sister in law just found out shes at stage 4 cirrhosis and its been so hard on us.
I’m so sorry to hear that. Remember this disease affects everyone a bit different. Also the biggest thing is her finding purpose, the loss of the abilities that someone used to have or could do will probably change. So it’s not a can’t do it is a now this I can do. A lot of changes and it’s hard. But staying positive and active is so important. I was at that stage 2 years ago. They gave me 90 days. Well my liver numbers have gotten actually better. So there can be hope. Hang in there. I wish you all the best.
I’m sorry you’re so ill, liver disease is a very painful disease to live with. I hope you have a lot more time left, you’re very positive and brave, thanks for sharing your story.
Thank you for saying so. These kind of msg give me hope 😊 stay well your self.
Thanks
Thank you 😊
Happy that you quit drinking and hope you live a long life, keep up the positivity 🙏🙏
Going on 10 years of extra life given to me from a liver transplant in oct 2014. I had varices diagnosed 3 prior to transplant. My dr put me on beta blockers to keep them from growing. They didnt want to band because i was a hemophiliac and they were afraid of bleeding. At time of my transplant when they opened me up they found the beta blockers made the varices totally disappear. All this started from a bad blood transfusion for my hemophilia that gave me hep c which eventually destroyed my liver. Fun fact. The new liver got rid of my hemophilia as it contains the factor 8 clotting factor my birth liver did not have. So i got to live and am no longer a hemophiliac. Grateful to be alive. Best of luck to you brother.
Wow what a great story, thanks for sharing. I’ve had 9 varices binded and there’s no sign of them anymore. I too have been on a double beta blocker.
My girlfriend is diagnosed with cirrhosis liver she told me that on Tuesday I'm worried about her but I'm praying for her everyday hopefully she's get well soon I want us to do our get togethers I miss all of our get togethers she in the hospital right now
Amazing video. I just went to doctor with my mother in law, found out she has cirrhosis and I want to know more and more about. Thank you.
I used to be a super heavy drinker, then got sober for 2 years. Had an ultrasound some months back, and my liver was in very good shape. Not fatty, not enlarged, no scarring. It surprised me at first, I was drinking like a madman before finally getting sober. The way it was explained to me, is that the liver will heal from just about anything- as long as you don't go over a certain threshold of damage, which is different for everyone and impossible to predict. That's why some people can drink a bottle of vodka daily for 30 years and never get cirrhosis, and why someone who only drank a couple beers 3 or 4 times a week gets cirrhosis at 35. It's unfair, but there it is.
If you don't mind me asking what was your alcohol intake like?
@@2Hard4UrGrandma Up to a litre of vodka or whisky, plus as many beers as my stomach could take, at the worst of it. It wasn't like that all the time, of course. Some times I'd drink beer several times a week. But when it got bad, it got bad for a month or two at a time. I usually needed medical help to stop at that point.
@@Peter-vn5jq Dang, glad to hear you're doing better!
Thank you for the encouragement.
Good to hear your positivity despite all you’re going through.
Thank you for your informative video. I hope that you live longer and in the best condition possible. Your personal experience is very important for people with liver disease.
Your will to live is amazing. My liver and kidneys are all fucked up and I keep abusing orals.
I came to this video in hopes my comment can help you. I halted my father in laws stage 4 cirrhosis c*. Dandelion root and milk thistle WILL GREATLY help detox and cleanse your liver. That and other vitamins really really helped him. Please look into 🙏
Thanks .....what stage is he now / has his fibroscan score decreased ?
@muthufeb18 unfortunately after getting much better the doctors told him to stop, put him back on their protocols and he was gone within a few weeks. I'm grateful we got that extra time with him just before when he took my advice. After a few days of stopping, Everything came crashing down quickly once he listened to the drs. The rest of the family knew that's what was changing things for the better. I'm hoping it will help save others the extra grief. Sometimes the western way of doing things isn't the best way. Look into all of your options. Instead of helping him they just tried to make him more comfortable. Sometimes you have to use many methods. It's no one size fits all. I wish you all love and prayers
I am living proof of that it sure dose work wonders 11 years with cirrhosis with no problems but the first 3 years was hell they gave me 3 years to live and I am living a Normal life these days. I had stags 4 as well thanks for sharing I am sure it will help someone out. wishing you and your father in law the best.
@@PhoenixEvolution sorry to hear that
I was diagnosed with cirrhosis 11years ago and had horrendous health problems,
I have however been fine for a long time now ,roughly 10 years at aged nearly seventy I am still perfectly fine and hoping to stay well for a good while yet ,best wishes to you.
What is you diet sir pls tell us it will help all of us
It depends on if your pancreas is affected , if you have liver cirrhosis with pancreatitis , your time could be relatively short and filled with non stop nausea.
I have cirrhosis 15byears,hep c over 30 years,from a tattoo,i dont drink alcohol,or take drugs can only eat junk,like chocolate 🍫 love it,i have chronic pancreatitis since 2005,with acute pancreatitis 7 times,a gall stine,splenic artery aneurysm,my pancreas is dying,and no Dr sees ne,just treat me like trash here in New Zealand 🇳🇿 no pain relief,for my vack,shoulder and hip,they won't give me pain relief anywhere nor palliative care,i feel they dont care,no dignity or respect,so cant get help,im 61 this year,and its hard on my own,but just keep going i hve to
Why do you say times shortened with cirrhosis and pancreatitis..i have gone past 15 years cirrhosis, longer with pancreas, pancreas is dying but i keep going ok. Thanks 👍
I was diagnosed with cirrhosis of a had a fiber score of four. That was four years ago. I quit all alcohol. I eat healthy. I have no symptoms no side effects. I’m taking no medication. I feel completely normal. You know they tell you you have cirrhosis you feel like you’re gonna die, but I don’t feel like I’m sick at all, I get scanned to check for cancer. They’re always good so I believe if you’re healthy, we can live with this for a long time.
There’s no set time frame. And liver cirrhosis is painless for the most part. Your liver can keep going with only 5 percent left. Like there are days even weeks that I feel normal. I still have it though. All you can do is eat right and avoid alcohol.
can you make a video describing how it feels? how the symptoms feel? like.. from the beginning what signs did you have etc.. and you will be fine prayers to almighty
Hang in there brother
I drink lemon juice first thing been itching in evening had a drain over Xmas they drew 5 liters off my back but I feel fine .im 66yrs I sleep alot ot time but could be due to age I live pretty lonely but enjoy my days no varices no yellowing probably down to1500 calories. Stopped throwing up I expect another few yrs
I’ve gone 30 + years with cirrhosis and fatty liver disease caused from hereditary hemochromatosis. Was in total liver failure
What did you do? Was it the medicine that helped you or did you make some changes to your diet?
@@KamranKhan-fr3qu Organic plant based diet, milk thistle tea, no sugar, no refined grains, chemicals or alcohol. Hasn’t been easy but it’s doable. Took control of my medical such as learning what blood tests I needed and making sure Drs did them right and on time. Have had over 100 therapeutic phlebotomies. Good luck!
22 reishi 8 oz drink all in 15mins mesima 8 pills a dae for 8weeks
That docs answer was as accurate as possible without any excessive optimism or pessimism. I can see how annoying it would be, but I respect it.
My mother was diagnosed with liver cirrhosis on december 2023 i'm so afraid of losing her i love her more than anything in the world transplantation is not possible in my country 😢
Love your attitude!
Great information. Thank you!
Thank you for saying so. I wish you the best
I have made the choice to STOP and you’re so right about choosing life!
One of my best friends got a bloody lip one night. It didn’t stop bleeding for a couple days until he went to the doctor. He was a drinker, probably heavy. However he was given the news by his dr that he had inherited a gene from his dad’s side where the liver wouldn’t repair themselves properly. His liver was done. He needed a transplant or certain and imminent death. This was I think April 2014. I watched him quickly pass away in the early morning 4th of July of the same year. Both his brothers were tested and one of the younger ones had the same gene. He was a bartender who also drank more than healthy. He also passed away. What was most sad about the younger brother is he knew he had it, and continued to drink. Alcohol is the most toxic and life ruining drug there is. My friend was 31
Ammonia build up. My friend would have to take laxatives to try and get the ammonia out. He would start talking and making no sense. It’s heartbreaking to hear this because it brings back memories that I wish I could forget.
I’m sort to hear about your friends. Nothing good comes from a bottle.
@@Redneckkenobi nothing. God bless.
Thank you so much for making this video!!
Thanks! I was diagnosed may of 2022 also so I'm doing good 14 months sober and loving the time I have, I'd love to pick your brain on treatment.
Thank you. And you can ask anything you would like. And email is neil12020@yahoo.com
Praying 🙏 for you all
Thank you 😊
My skin is turning yellow and my whole back gets itchy at night. Sometimes, my feet and hand also get itchy. These are definitely signs of Cirrhosis. I did a recent blood test and the test said that my liver and kidney are fine...but I am going back to discuss if my liver is fine, why is my skin turning yellow and I still have itchy body every single night. Wishing for the best. I have been told to start eating a keto diet or lots and lots of veggies and limit meat. Cut sugar and sweets.
My itching stopped when I cut down on sugar. Initially I thought it was pre diabetes but I realise, since scans on my liver, the itching was related to the liver disease.
My family member was doing okay….got a UTI…went septic…gone. Other infections is what you need to worry about because your liver can’t process the meds needed to save you.
Just happened to find you. I was diagnosed with NASH fibrosis stage 3 in 2016. My MELD score is 6 and no varices that are needed to be rubberbanded with medications and no ascites but high levels of Ammonia thst I just got paperwork back from. My psychiatrist decided to have my ammonia tested due to confusion and hallucinations. I have several psychiatric diagnoses as well which could actually be my symptoms of confusion/hallucinations as well as Ammonia levels. I am not sure what is going on. I have a million doctors that I see for various conditions. I am a complicated case they say. I have severe neuropathy but no diabetes, I need to knee replacements, etc. Help, doctors say I am sick but am I? I have lost 55 lbs. In the last 2 years. So, that is a positive thing!
There are many things that can cause liver damage, ask about lactose that is a thick syrup that is a laxative but it collects ammonia in your body and flushes it out. And Xfaxon it’s a strong antibiotic that protects the brain. Also have you considered maybe a connective tissue disorder? For me they are testing me for EDS it’s hyper mobility disorder, basically if you were double jointed when you were younger, stretchy skin and there’s a lot of other signs. If that sounds familiar google that. It can effect everything organs and all. But what ever it is hang in there.
Thank you😊 very well done. I have cirrhosis. Been sober a year and a half. I am not ready to die. Disability turned me down cuz i can walk and sit.
My soninlaw passed away 3weeks ago today 36 years old. 7kids left behind and my daughter. It was the most horrible thing 😢I've ever seen in my life. Any human go through. Godbless you sir prayers for you😢
I’m so sorry for your and your daughter’s loss. 😢❤ 36 is no age.
Someone very close to me has decompensated cirrhosis and has gallbladder issues but they are not willing to take the gallbladder out right now due to the dangers of the surgery. Which causes so much pain. And the insurance she has only gives her 1 option of a group of doctors for liver transplantation. The medical care is unrealistic!!! So sad!!!!! And HE IS SUPER SCARY!
It can be difficult. I drive 5 hours for my doctor
I was knocked back twice to take my gallbladder out,they said to dangerous so i suffer pain all the time from thst,they just call me an Addict i dont tale drugs nor drink,its cause i have gep c from a tattoo,and cirrhosis from hep c,so drs ignore me now,oh well such is life
Thanks! Try'in to help my brother!
Thank you for being so truthfull.
I'm worried about my dad. He has been a drinker all of my life. The topic of him quitting has come up with family, but I'm pretty certain he would have to be medically detoxed, as he is physically dependent at this point, and up until now he has said he has no interest in doing so. I know he has tried on his own to cut back some, but I'm not sure it's with enough success. About four years ago, I was visiting, and his wife mentioned that he told her the doc said his liver was hardening, but he refused to say or discuss anything further. This last Christmas, and recently in photos, I've noticed his belly looking quite a lot larger, but the rest of his body is looking thinner. I'm really hoping that this is just a normal aging thing, but I'm worried that it's ascites, he has always been a very fit guy. I know I probably won't find any answers here, I'm just so worried, and sad, and I don't know what to do. I hope he is not in too bad of a condition, and will still be able to turn things around, but it's so hard to know since he is avoiding talking about it, and there's really nothing any of us can do. I feel like I have to guess where he is at with all of this, I'm just scared and I don't want my dad to suffer, and I don't want to lose him he is only 55 as of now and I just want to have as much time as possible with him, and for him to enjoy his life and feel happy and well.
Thank you
Cirosis due to Hepatitis C left undetected many years, just had my gallbladder removed and they discovered my liver is real upset and is wanting to bow out. Not sure if it's cancer yet, this week I'll know. Not gonna lie, I'm slightly stressed.
Hi Sir. Going full carnivore might make a Big difference.
Only meat and Organic eggs.
I have hepatitis cirrhosis. It’s been a year and my count is way better. Fell off a couple times at the beginning, but haven’t drank since
I quit 2 summers ago. Went from 1 wine box + a week and a 6 pack. Now nothing. Do I miss it yes, but I'd rather have my wife at home, not separated, and my daughter being able to rely on me to drive her and her friends around 24 7. Than sitting alone buzzed.
As well as my liver of course
That only sounds like a few drinks a day. Not much more than the recommended health guidelines.
@danlopez.3592 that's what I said. That's maybe a beer at lunch and 2 glasses of wine throughout the night. 6pm to midnight. 😢
@@raymondlin8728 very healthy lifestyle.
You need to take Tudca and Cholene like I did when I was diagnosed with stage 4 cirrhosis , along with clean diet my gastro Dr told me I got in remission. 14 year's ago !!!
Did tudca reverse your cirrhosis
You should look into dry fasting. A 7 day dry fast completely cured my cirrhosis.
You dry fasted for 7 days without eating or drinking “at all?”
@@tamaradungan8016 Yep. I've since done an 11 day dry fast. It needs to be done under medical supervision and there are still risks involved however prolonged dry fasting is pretty much the only thing close to a cure that we have for diseases involving scar tissue like COPD, liver disease, etc. Even then there's no guarantees, it all depends on how severe your liver damage is and how far along it is.
@@jackking2461 That's what the pharmaceutical companies want you to think. SOME of it can be reversed if caught early. People with advanced liver disease won't be able to be helped that much by it.
How can a dry fast heal the scarring in the liver? How bad was your cirrhosis?
nothing cures cirrhosis, stop lying
You r great thank you just got diagnosed I do see liver Doc hard to stop drinking but I wanna live been really sick lately sooo tired too thank you Neil
Keep going, if you drink start over the next day, one day at a time. Small victories. Plus be honest with your doctors, they can help with finding support. Don’t let it win. Your life belongs to you!
Lots of great information on this video. 👏