Vitamin B1 therapy and other Parkinson's supplements. Do they work?
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- Опубликовано: 10 сен 2024
- - Link to Daphne Bryan interview and her book - • Fighting Parkinson's D...
- Book - www.amazon.com...
- Research material about B1 Therapy
pubmed.ncbi.nl...
pubmed.ncbi.nl...
pubmed.ncbi.nl...
pubmed.ncbi.nl...
B1 Therapy Facebook group - / 232260083958797
Parkinson's Facebook research group - / 482344755486600
- Custom link to Comfort Linen comfortlinen.c...
Check out our website! - lifewithparkin...
Connect with us on Facebook - / davidslifewithparkinsons
I've included some helpful links in the video description.
NexStride - the award winning mobility device built for people with Parkinson's. Use the code to save 10% off your order and support Life with Parkinson's indirectly. USA only.
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If you're in need of some comfortable bedding or pillows, check out Comfort Linen: comfortlinen.c... They offer high-quality, affordable bedding that's perfect for anyone living with Parkinson's.
Additionally, if you're looking for some high-quality Red Light Therapy products, take a look at Rouge Care: rougecare.ca/?...
If you're interested in finding out more about Kizik shoes, check out my affiliate link: kizik.sjv.io/7... These shoes are a game-changer for anyone living with mobility challenges.
For all of your aches, pains, and strains of Parkinson's Disease, BraceAbility is there to help you. With their dedication to quality, as well as quick worldwide shipping options, you don't need to worry about getting your order on time.
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#parkinsons #parkinsonsawareness #parkinsonsdisease #yopd #youngonsetparkinsonsdisease #dystonia #vibrotactiletherapy #parkinsonsglvoves #mci #cognitiveimpairment #nexstride #gait #parkinsonsboxing #rocksteadyboxing
You did not say how much you took or what brand or for how long. My partner has taken 3000 mg Solar B1 for about 2 months with great results! Before the B1 I had to help him get out of a chair, and get dressed. Now he does these things in his own. His muscle weakness has subsided and he is able to lift heavy items again. Huge improvement!
Hi Marian, no sorry, I didn't keep very good notes when I tried it. So glad your partner is getting such good results out of it I think that is fantastic! 🎉👍🙂
This must be verified but 300 to 1000 mg thiamine is a mega dose I think but TTFD is so efficient that you don't need very much like maybe 100 mg. However, I just use Benfotamine. I divide a 150 mg into 4 parts which is about 40 mg at a time and take at various times during the day. My first dose is with 100 ml of potassium and 400 ml magnesium and B - complex but the rest of the day is just the 40 ml of thiamine.
Helpful to eat up to 10 eggs a day, the yellow part must be soft. I did it for three months and it worked. I am fine at present time.
@@margaretgoldgor9213 Thanks for the tip Margaret😀😀
@@StarStream707I was going to mention this too. There's a great podcast interview with Dr. Constantini from Italy. He has since passed away, but his research can be found on pubmed. He was getting great results from what he said.
I started B1 because Dr. Berg on RUclips said it would work for bladder leakage. 5 days later no noticeable difference EXCEPT my fingers on left had( skin tissue only, no bone) were cut so bad and just hanging on. They were sewn back which worked but left my fingertips numb and I notice they were no longer numb. Thats the only change , B1. SO my husband had a stroke 2 years ago and showed signs of Bradykinese therefore I gave him 125 mg am and pm. After about 5 days he's up, talking, steadier on his feet, walking longer and faster. I havent shared with Dr yet but will. The recommended dose is 1500 mg but this smaller dose is helping . Im thinking 600mg twice a day but want dr approval first, and by thexway after aboutc10 days my bladder leakage is essentially gone. Thank God for his mercy and health providers who share their knowledge.
Hi Margaret glad to hear the vitamin B1 therapy is helping your husband so happy to hear that. Hopefully there is something out there that helps you as well thanks for sharing 🎉😃
I have had tremendous success with methylene blue, but I dont ingest it. I couldnt get high doses of B1 into me because it greatly exaggerated the pain and spasms. I started mixing the blue into lotion that I pour into a jelly jar. Just 3-4 drops. I then rub some onto the soles of my feet every night. The pain and spasms immediately stopped with the first application. After a few weeks of this, I reintroduced the B1 and was immediately able to implement high doses which has me feeling really good. Sometimes pain will appear with a B1 dose so I'll just rub on some blue lotion and the pain subsides. Hope this info helps someone else, too. Thank you for sharing your journey.
Thanks Melanie, that is very interesting. I may look at the methylene blue again.😀😁😊
I really appreciate your efforts in making these videos. My brother was diagnosed with Parkinson at 49 and he is now 57. I just learned about B1 therapy and will get some vitamins for him soon. Greetings from Peru!
Your welcome and best wishes to your brother and your family. 😃🙂😄
I started B1 2 months ago and find it has been good result - although only minimal at this stage. I take 4000 mg daily, 1000 mg when I take Sinemet 250's. It has reduced dyskinesia and my intake of Sinemet. I know this treatment is not for everyone, but it seems to be working for me.
Thanks Gary, I appreciate you letting me know it is working for you. The more confirmations I get the more interested I am in trying again.
How are you taking the B1?
@@LifewithParkinsonsThe body cannot utilize B1 if it is magnesium deficient! Have you tried magnesium baths plus magnesium supplements, especially Magnesium Threonate, which crosses the blood brain barrier?
Magnesium HCL is pretty well useless - Benfothiamine is better. TTFD better still. See videos on it by Elliot Overton, EONutrition here on YT on the correct way to take it.
Braineducationtv is a good channel for the brain. She shows what you can do to increase heat around the naval area. If it's warmer than the forehead, it's a good sign for tinnitus easing but it may take a few sessions to get it to start working. So I thought of an easier way than the exercises she gave for this would be just to apply far-infrared heat to the naval area. It helps the vagus nerve which is related to B1. I just started this so we'll see....I have confidence that it may also help dry eyes which is also related to the vagus nerve and B1.
Hi Cathryn, great tip, and it immediately made me think of the Red Light Therapy trial I have just started. Please check out this video. Will be putting my first update beginning of April.
ruclips.net/video/U4uVYsPBI_c/видео.html
I've seen a lot of good things written about "Methylene Blue," yet most people have never heard of it. DMSO and Alpha Lipoic Acid may help as well. And yes, they aren't a magic pill, but it's worth a try. Please research it and ask your doctors about it.
Hi Nick. Yes I am looking into the methylene blue, just have a couple concerns about it before I recommend it to everyone. Thanks for watching and making suggestions. 😃
Dr shallenberger has a newsletter SECOND
OPINION
It says 2 inject B1.
I Take B1, B Complex and Benfotiamine twice a day 1500mg in the morning 500 MG before bed, I also take L-Tyrosin and Velvet Bean which has greatly reduced my Awful Parkinson's anxiety and I now get a decent night sleep without the active dreams that made me feel like I never got a wink of shut eye
Hi, glad you found a way to get good sleep at night. It is so valuable. Thanks for your tips!😀😁😊
Bless you for putting yourself out there for all to see. It helps others know they aren't alone.
I agree with you. We are individuals with our own chemistry makeup. What works on one may not work on another.
That being said, have you tried Methylene Blue? It works in the neurological system. There are several ways to do dosing, so research it a bit first. You should also take a break from using it, whether it be 3 weeks on 1 week off or 5 days on 2 days off. It's up to your body chemistry. It does not turn your skin blue, but be prepared for your urine to go from shades of yellow to blue or green depending on the shade of yellow your urine usually is.
Lastly, look into diet. Specifically the Terry Wahls Protocol. Her diet is amazing at helping so many different incurable diseases. She has MS and went from a tilt-recline wheelchair to riding her bike 28 miles in 1 years time. She has lots of testimonials in her book. One lady even came out of Alzheimers on her diet. She went from not knowing her husband to knowing him, driving her car again and going back to work. Her diet also arrested my husband's Dementia. Amazing.
Hello, thank you for your kind words of encouragement. I have looked at the methylene blue, but at this time I' having good results with my homemade parkinson's gloves and red light therapy that I don't want to try anything else atm. Thanks though😀😁😊
Hi David, like you we are trying everything. My husband for help with Parkinson’s, and I take the exact same as a control. We spend about $5000.00 a year on supplements as vitamins, minerals, nootropics, and therapies. I buy only the best, triple tested by outside sources. We are trying B1 megadose, we joined a gym to have access to the weight machines and power plate. We bought a red light /infrared machine, 10 minutes am, 10 minutes pm.Take fasciae massage, hyperbaric sessions, acupuncture, and bought an infrared sauna. I prepared a work out for my husband and he does two hours of stretching, weight lifting, cardio etc. We get exposure to sunrise and sunset light . We have changed what we eat and when we eat, other wise known as keto and intermittent fasting. We eat only between 12pm and 2 pm to increase ketones as brain food…… I have never felt better, unfortunately his Parkinson’s is marching on.
Hi Dina, what an inspiring comment 😊 it sounds like you and your husband are doing everything right and are looking constantly for ways to ease your symptoms which I truly admire 😃. Like you my wife and I both have a chronic illness that can be very debilitating but she does not have Parkinson's, my wife has endometriosis. We caregiver for each other from time to time which it sounds like you and your husband do for each other as well. I found it has brought our marriage closer together. The only other thing I can suggest that has helped my mobility issues in bed a lot is Comfort Linen. It has given me some feeling of safety being able to move at night and get out of bed if I need to. Here is the link. comfortlinen.com/pages/life-with-parkinsons-v1-1-dg?dt_id=122340
Thank you for your comment and thank you for taking the time to say hello and letting us know more about your situation. 😀
@Dina Pawlow you're an amazing wife and champion for your husband! Keep doing whatever is making YOU feel great, as your well-being should not be underestimated either. My dad had Parkinson's and fought the good fight for 12 years because my mom.
@@idid138 thank you, You will never know how much I appreciate your kind words which encourage me and will provide me solace on the days when I feel helpless. Thank you again.
@@LifewithParkinsons😮
You are a great woman. Keep doing, keep having beautiful energy and hope, and keep searching new ways. All the best ❤
After watching The Italian Doctor and his B1 study, I decided why not give it a try as at this point nothing else has helped and my results are just excellent I went from barely being able to walk, a Tremor like a Earth quake, blurry vision drooping left side of my face slurred speech to barely a tremor most of the day regained my positive gate
Hello, that's great that you gave the vitamin B1 a go, glad to hear it is working well for you!😀😁😊
Thank you for sharing. What brand / type / dosage B1 have you tried? What Parkinson's symptoms that B1 helped? Is B1 still helping you today? Greetings from San Diego!
I love this video. I am particularly thrilled to hear you say that “one size does not fit all” when it comes to supplementing and so called “breakthroughs” in supplements when it comes to treating PD. People out there try to prey on the desperation for a cure by offering snake oils and magic pills and powders.
Thank you Michael. Yes, I agree with the "many breakthroughs," I have looked up a lot of those. Unfortunately, the big one has not come yet.
The B1 needs to be IV
Developed cases can’t rely on oral B1.
Orally use Benfotiamine
In addition to the IV
Look up Italian scientists who developed this therapy
Thanks Kate!
Hi David, I’m Pat and my father was diagnosed with Parkinson’s over 23 years ago now. He takes his regular medicine, but he is really suffering most days and doesn’t really get up out the chair but maybe once a day. So I have been doing research for supplements and at home treatments for Parkinson’s for years now and I finally I have talk to my dad in two taking a few vitamins with little or no side effects, lol the reason why I’m messaging is I two did my research on the B1 in high doses, so what I found is that you want to stay away from the hcl version… it does not absorb very well, go with the sublingual b1 at about 200 mg per day to start and benfotiamine 300mg to start. The benfotiamine is a synthetic version of B1, which is much easier on your stomach and absorbs better in the body and more importantly can pass the blood brain barrier. And I also got him a supplement called MAGXIMUM, produced by trio nutrition, its magnesium, K2, D3, and mct oil, i love it and i found it all on Amizon for a pretty good price because i have them coming every other month on automatic…. So i finally got my father to let me help, i hope we see and feel some improvements over the next few months. Thanks for the videos, take care of yourself.
Hi Pat. That is awesome you are doing research and everything you can to help your dad. I hope the vitamin B1 therapy helps them and you are able to see some progress I would be interested in knowing how it works out for him. Thanks for the comment and for saying hello 😀🖐️☺️
What brand do you use for the B1 and the benfotiatiamine?
any update?
I read that mega-dose B1 therapy must be taken with Vitamin B Complex and magnesium together
What will be the dose of vitamin B1
@@akhilbiswas1600 ruclips.net/video/K4iAPfAFcs0/видео.html
@@akhilbiswas1600 ruclips.net/video/K4iAPfAFcs0/видео.html
Depends on the form. TTFD is the most bioavailable form for neurological conditions- it crosses the blood brain barrier... and up to 2 grams a day are useful for these types of conditions, but generally, less TTFD is needed. You have to titrate up and may experience paradoxical reactions, especially without adding magnesium and a b-complex. EOnutrition on youtube is a fantastic resource.
What is TTFD please
We are all in this together, keep moving, it’s harder to hit a moving target… thank you, your video is spot on. Tom LI NY let’s keep in touch, seriously… God bless keep the faith
Hi Tom. Thank you for your nice comment and encouraging words. Yes let's keep in touch and take this journey together. 😃🙂
I also take 500mg Benfotiamine morning & nights total 1000mg Daily ontop of B1 complex & 500mg C + Magnesium 300mg, max daily because of heart rhythms issues too. This in addition to normal neurologist prescribed Madopar mg 11:09 11:09 every 4 hours. Seems to help substantially all round. Happy new year PD comrades !
Happy New Year, Desmond. Thanks for sharing what you are taking. That is great it is helping you!😀😁😊
What a thoughtful and lovely person you are. Have you ever tried apple cider vinegar for restless legs...it works for me, I only hope it works for you. I pour a small shot of ACV into a large glass of water and get very quick results. Best wishes, Julia x
Hi J, thankfully at this time restless leg syndrome isn't a problem the red light therapy seems to be taken care of it. Thanks for saying hi and leaving a comment hope you have a good day
Thank you brother - for getting out and being there. This is 1st visit to your channel. For me? HD Vit B1 has eased some of my motor, and non-motor PD symptoms. That said, this is all new to me, with a lot more to learn. Bless you brother! Thank you!
Hi Jeff. Thank you so much for watching and for taking the time to say hello. It is a privilege to share my journey with so many other people like ourselves. I am very glad you are having some success with the B1 therapy thank you for sharing that and letting me know 😀🙏🙂
Incredible channel. I found you researching Daphne Bryan
Thank you. Glad you found us!😁😃😊
High dose of Ambroxol...a medication found in children's cough syrup in Australia is headed to phase 3 study trial by a Canadian university.
Thanks Owen, do you have a link for that, would like to check it out.
And buntanetap is going into 3 rd phase trials
@@rexeverything6249 Hopefully it does well
I had COVID caused tremors. This mitigated that, as long as I stay away from fatty meat like beef.
Unfortunately, imports were pulled from Amazon recently in the US.
It may be worth looking into Thiamine injections. If you have trouble absorbing it through the gut it wont matter how much you take.
Thanks Brain, I did not realize thiamine injections were a thing.😀😁😊
@@LifewithParkinsons yes, you can get them from your doctor. They use it to treat beriberi, but it has been used in studies for Parkinson's.
I have researched for a friend who has Parkinson's, he uses Macuna (powder form) with really excellent results. Very fast acting with symptom reduction almost immediately. Hope this is helpful.
Thanks TJ, yes I have looked into Macuna before but decided not to use it since my medication levels are so high already. The most success I have had so far, besides my regular meds and exercise are red light therapy, and Comfort Linen.. Thanks for saying hello and for helping your friend, we all need a friend like you😀😊😀
ruclips.net/video/U4uVYsPBI_c/видео.html ruclips.net/video/o3rCGqQkzIM/видео.html
Do you know how much Macuna powder per day?How many times?
He uses the Macuna powder prn (as needed) and so it varies day by day. As you may know, PD symptoms vary depending on many variables. But the effect is very rapid, and always quiets the symptoms. He calls it a miracle. BTW, he does not always know when the symptoms are occurring, perhaps because of the PD itself, and it helps if a caregiver who knows the patient well offeres the advice of when to use the Macuna. Hope this helps.
I take B1 TTFD(first made in Japan) from Objective Nutrients a form that goes through the blood brain barrier and I am happy with this.
But I don't have Parkinson's and I follow a low carb diet cutting out mainly grain products. Another form is Benfotiamine.(also crosses the barrier)
Thank you for your input and comment😀😁😊
I do think that doctor’s should be researching these treatments so patients can be advised.
Hi Sarah, I wish that as well, but it seems all they have are medications.😁😊😀
I have found it. Extreme daily exercise and superheating. When was the last time you rode a bike 15 miles? Try it. Or 15 miles of walking.
I just came across your channel about half an hour ago. I've been experimenting with high dose B1 for several months and like you I haven't noticed any improvement in my symptoms. More recently I have added glutathione, taurine and Co-enzyme Q10 in the hope that one order all of them would give me more energy and fight my extreme exhaustion. So far no measurable change and and just today I decided to stop all my supplements for a couple of weeks. When my system is clear of everything I'll start phasing them in again and reassess the situation.
My view is that I'm happy to give anything a try so long as it doesn't interfere with my medication.
Hi Nancy. I have had good results with the Parkinson's gloves coupled with red light therapy. Please check the videos on my channel. I hope this helps. If you would like more information please feel free to email me info@lifewithparkinsons.ca
@@LifewithParkinsons thanks very much for your response. I forgot to mention that I have also been using the red light therapy coronet for months with no appreciable difference to my symptoms, so it is now one of therapies which I have suspended as part of my attempt to reassess each one.
@@nancybennett4972 Hi Nancy, what is a red light coronet? Our Red light sponsor is Rouge Care Canada. rougecare.ca/?ref=LifewithParkinsons
Have you heard of or tried the carnivore way of eating or the lion diet? My mom has Parkinsons. I have been carnivore since March 2023 and it is amazing. Unfortunately, my parents do not want to listen to my crazy ideas so they are stuck on the hampster wheel of the SAD (standard American diet) and conventional medicine. This is a great video testimony. She Was Falling Apart, Then She Found Carnivore | Dr. Shawn Baker & Mimi
Dr. Shawn Baker Podcast
Hi Jeff, I'm sure the carnivore diet for some is great, but protein interferes with a lot of PD meds and needs to be spaced properly for the meds to have the desired impact. I try and adhere to the MIND diet as close as possible.. It's great that you care so much about your Mom. She is lucky to have you.😀😁😊
Interesting catch-22. Medication that treats a symptom takes precedence over proper nutrition that can heal the body. If it were me I would study this and do the spacing or whatever it takes to wean off as the nutrition takes over. This could be all done with the right doctors. I wish you the best on your journey.@@LifewithParkinsons
@@jeffglaza8318 Thank you Jeff
Have you seen dr Antonio Costantini's channel on youtube? He used injected thiamine. Apparently everybody responded well. Dose must be adjusted. The oral hcl form does not penetrate into the brain easily. Sulbutiamine, does. It needs tinkering around to find the correct dose.
Hello, I have followed this closely, thank you, but at this time I don't think it's for me.
@@LifewithParkinsons Sorry to hear you still haven't found what is right for you! Best of luck!
Have you watched the video of the Australian neurologist who says there's a common anti-fungal medication that cures Parkinson's, Lewy Body Dementia, and the other two closely related conditions?
And by the way, I actually AGREE with the "crazy-person-says-what?" customer that showed up at work and told you you had to get rid of the inflammation first... My 58-year-old brother had a draining dental abscess for over two years, and avoided going to the dentist because he's one of those people who gets anxiety even at just the thought of dental surgery. He started to get Parkinson's symptoms that rapidly got progressively worse (He seemed to have acquired Pure Autonomic Failure Syndrome). After he got the offending back tooth removed and got a deep dental cleaning, the Parkinson's symptoms quickly disappeared. I honestly think that all neurological diseases are the result of long-standing local infections that haven't been diagnosed and killed off yet. That is to say, I believe what your customer says is true...that Parkinson's is just a manifestation of INFLAMMATION OF THE NERVOUS SYSTEM - which, of course, includes the brain.
Can you send me the link please
@@LifewithParkinsons Hello! RUclips recommended me your video, maye because I like to read about every topic health related. Just trying to be helpful i found this link
www.ncbi.nlm.nih.gov/pmc/articles/PMC7053320/
Kind regards and hoping you can find something to help you get better
I saw your other video where you where showing your Parkinson's supplements & the B1 dosage was 100mg which seems to be low the usual dosage for oral Thiamin HCl is 1500mg to 4000mg. There is a need to find the right dosage of B1 for each individual before it can have an effect. If you are feeling hyper on high dose thiamine go off for few days to a week & start again with 250-500mg less from last dosage.
Thanks Muhammad. For now I'm having good success with red light therapy. Perhaps in the future I will look at the B1 again. ruclips.net/video/McrzcqwrBt0/видео.html
My understanding from Daphne and Elliott Overton on that video definite, takes it under the tongue where it goes directly in the blood. If you take the pill you don’t get as much she takes 100 mg that’s also working for me, but it took two months for results.
Magnesium helps digestive and constipation. B1 is debatable. I can speak to HIIT training ang balance exercises. They without a doubt have benefits. I did start taking TRAZADONE as my depression was at a dangerous level. It has really helped the depression and tremors. Unfortunately it causes dizziness, tiredness and comes with balance issues. Kind of a lesser of two evils for me. Check with your doctor of course to ensure this is the right medication. We must address our mental state in order to tackle our physical one.
Hi Schyler, thanks for sharing what you take. I totally get the issues with depression. My biggest problem is anxiety, Good take on the relationship between our mental and physical states. Thanks!
I think people need to think about the interaction with vitamins just like medications. Vitamins effect each other synergistly- for example - if you take iodine you need to find out what else you have to take with it , the cofactors. Just like higher dose of b1 needs magnesium and b complex. Research what to take with any additional vitamin. I was taking high dose vitamin c because of covid not knowing I should also take b1 with it.
Hi Lane, thanks for your comment, it makes sense😊😁😀
You are right about the silver bullet, there isn't one, but we can wisely keep looking and hoping, knowing it's a long shot :) I also appreciate your honesty when something you have tried doesn't work. Parkinson's isn't a one size disease. Thank you for your videos!! 🤗
Thanks Jennifer if I find the silver bullet you will be one of the first to know. It was funny I was so disappointed the b-1 therapy didn't work for me I didn't want to tell anyone and let them down,.
@@LifewithParkinsons and of course even if it worked that doesn't mean it will work for someone else 🙃 The truth may hurt at times but don't worry that telling it will be a letdown 🤗
I am not a doctor and I am not giving medical advice. I am also not writing about anything medica whatsoever. I am only asking questions. Have you ever heard of or taken any of these things consistently; purified aloe vera juice, gelatin, kefir, yogurt, raw milk, A2 raw milk, raw goat milk, natto, black seed oil, stevia full leaf extract, bone broth, pork tenderloin(high b1), grass fed beef, grass fed beef liver, cooked avocados, cooked carrots, cooked apples? Do you know for sure you absorb enough of every single vitamin and mineral possible. Have you heard of how supposedly the gut lining can get damaged and that supposedly ppl heal it with foods or supplements? Have you consistently tried humming meditation, frequency machines, or vibration machines? What kinda water do you drink? What is your diet like? Do you eat highly processed foods and/or high processed sugary foods? Do you drink coffee/tea? Have you ever heard of caffeine pushing vitamins out of the body leaning someone depleted of vitamins and minerals? Have you ever heard of prebiotics/probiotics/postbiotics? Do you have a safe and effective air purifier? Have you ever heard of ppl eating mushrooms? Have you ever heard of ppl not eating gluten? Have you ever tried different diets consistently and tried the supposed perfect way of trying those specific diets?
Thanks for all of your questions yes to most of them. I follow the mind diet as closely as possible. I drink decaf coffee and water the rest of the time. Eat yogurt, exercise and enjoy life as much as possible thanks 😀
Great information ❤I take vitamin D3 and B100 every morning with Breakfast which is yogurt oats and and tiny protein powder. Keep up the great work.
Thanks GoPro, glad you have something that works for you
Love your approach and thoughts. Three things I'd be very interested to hear your thoughts on, all of which have gained a lot of excitement concerning brain health. Love to hear if you or anyone has tried them with respect to Parkinson's. 1. Methylene Blue 2. Psilocybin (shrooms micro dosed showing great promise with depression) 3. Two-three Day water fasts (with fasting salts) to induce Autophagy which is said to stimulate the production of Stem Cells! also be interested regarding Homeopathy/Acupuncture - anybody you know had any experience seeing a homeopath or acupuncturist?
Thank you for your comment and your kind words. I have not tried any of the suggestions you have listed nor have I heard anyone else try them. I will definitely need to look into them a little bit. Thanks 😊😎😀
Yes. You do good research!
Hi Angela. I may try the vitamin B1 therapy again in the future but right now I'm sticking with what is working. 😊😎😀
Thank you for putting the video out there with Daphne. I have two sisters with Parkinson's. I'm a firm believer that it's caused by chemicals. They both didn't use organic. One of my sisters and I who have always used as much organic as possible, don't have Parkinsons.
Hi Cathryn, thanks sharing your family situation, that must be extremely difficult. I'm happy to mention Daphne's video. Just because the B1 didn't work for me doesn't mean it might not help someone else.
I have questions. Are there different types of Parkinsons? My husband is 84 and was diagnosed 2 years ago with Parkinson, He got it with dementia at the same time. It was after lockdown. We used to go to the gym 6 days a week. When we stopped that is when it seemed to have happened. We are retired in the Philippines in a very rural area. We have always still stayed several months in the States and would get most of our medical done there. When he was diagnosed we were going back to the Philippines, the Dr. gave him Carbidopa / Levodopa 25-100, he said I would know right away if it helped. I gave it to him a few days and did not notice any difference. When we went back this year I told the Dr and he asked us to try it again for a longer time but this time he walked a little faster (all of my husbands movements are extremely slow) but he became psychotic and angry. He was trying to walk back to the Philippines, I could not reason with him that we came on a plane. I called the Dr. and took him off the medication. We are back in the Philippines and he is doing well, other than he moves very slow. That is why I asked if there are different types of Parkinsons? Some have lots of movements, but not my husband he hardly moves. He has a tremor once in a while in his left hand, and a little ridgeity in his left arm but not in his right arm it is smooth moving. I don''t think he is able to go to the States any more, and he does not want to. But medical is not that good here. I have read about the B1. He also has Kidney failure, but his number are a lot better the past few years since I had him take sodium bycarb. B1 is somewhat good for the kidney, but how high I could take I am not sure, and I am very careful. I am him on 100mg reg type, I would like him to try the under the tongue type. I would have to wait for his daughter to bring us some from the States when she comes for a visit. I just saw your off days. In the last two years what he is able to do doesn't change that much, he just moves very slow all the time, he does not get angry much except when he took the C/L.
Hi Lynette. Yes as far as I know there are two main types of Parkinson's one is tremor based and the other is rigidity based. I have the rigidity based type of Parkinson's I rarely have any tremors. I hope that helps. If you have any other questions I will do my best to answer them. 😀😊☺️
@@LifewithParkinsons Thank you so much for your reply. I feel more overwhelmed by the dementia than the Parkinson. Not letting him drive has been the hardest part, he was a professional bus diver most of his life..
@@lynettepascua4730 hi Lynette that is a tough thing to deal with. Your dedication and love to your husband is beautiful
I don’t have Parkinson’s but I DO have issues with restless, jerky legs at times…especially after sitting too long, then going to bed. I have found Hyland’s Restful legs during the day and Restful Legs PM to be a great help.
Hello A. Thanks for the suggestions and for taking the time to say hello. Thanks for watching!😀😁
@@LifewithParkinsons
....
COQ10 - Grass fed organs liver, heart, etc.
😀
B1 helps alcoholics by preventing oxidizing radicals from slowly tearing apart our brains. I'm still learning about Parkinson's to help my dad, but I don't know what it's like when your own body produces the chemicals that destroy your nervous system. I have to pay for it, to put those chemicals in my brain myself. Anything, anything that can make your life easier, but I don't think Thiamin is the answer
Thanks for your comment Uberlisk. Thiamine isn't for everyone, but hopefully you can find something to ease the symptoms for your Dad.😀😁😊
Hello again David I have some swallowing issues and am looking for the harp seal oil including the Newfoundland product you mentioned, only seem to have capsules I have not found any liquid harp seal oil, and am wondering if you know of any I would think it would need to be refrigerated, but not sure Thanks
Hi Matt, I have not heard of one being in liquid form. I know someone that would just drain the liquid out of the capsules because he had swallowing issues as well. I tried chewing one and it wasn't fishy. Hope that helps.😊😁😀
Im just starting this trip on PD. I have a lot of bad days and a few good days. When i go camping, i feel much better, but i only eat ribeye steak for dinner and for lunch bacon or sausage with eggs cooked in lots grease. I've added the B1 and I'm up to 1000mg a day. I feel a little better. In a few weeks I'm going to try 1500 a day. Magnesium helps too but not the cheap Magnesium (oxide?)
Hi Josh, nice to meet you. I've been on this journey for 7 years now, and have just figured out that a lot of my issues were because of gluten(my wife figured it out). We are all a bit different, but if what you are eating is helping your symptoms best to explore that way a little more. I would like to eat more meat but I just can't at the moment because too much protein kills my meds. It is what it is. Here is my first gluten video link. Thanks for saying hi.ruclips.net/video/JW0PiVlGeqI/видео.html
@LifewithParkinsons I stopped gluten years ago. Severe reactions :( I tried low protein and felt horrible. So far the meds don't do much other than cause side effects
@@G36934 Sorry to hear that Josh, I only know of one other person that the meds just cause so many side affects. I hope you can find something that helps. I don't know if you have tried other treatment options but I have some on my website if you are interested. www.lifewithparkinsons.ca/
@@LifewithParkinsons Thanks! I will look into it.
Good info! I have one supplement that I LOVE...BioAstin Hawaiian Astaxanthin. I feel like it's the only supplement I really need. It alleviates so much pain. I know others who tried it and quickly noticed a difference.
Thanks Michele I will definitely look into That
@@LifewithParkinsons😂😮
I tried Benfotamines- and it made me depressed and extremely fatigued.
Hi Neil, the B1 gave me similar issues, but red light therapy has been very successful. ruclips.net/video/McrzcqwrBt0/видео.html
tried synthetic benfothiamine ... although gave me energy it also messed my circadian rhythm and initial liver discomfort...took 3 days only before stopping ... insomia lasted weeks
Hi Virginia, thanks for sharing your experience with the B1 therapy. I have had good results from the Parkinson's gloves combined with red light therapy. Check out our website for more info. Thanks
lifewithparkinsons.ca/
I just ran across your video when looking for info on B1 therapy. Have you tried cutting out dairy? There is some evidence linking dairy consumption to Parkinson's. People with Parkinson's tend to have high levels of casomorphins which are metabolized from milk protein. I'm not saying that cutting out dairy will cure you, but it might be worth trying for a few weeks to see if there is any symptomatic improvement.
Edit: The casomorphins are linked to scizophrenia. Rather the suspected link with Parkinson's -- besides pesticides -- is from galactose metabolized from lactose.
Hello Motivator, yes I have cut out about 90% of my dairy and sugar, all of my alcohol, and now I only drink water or decaf coffee. All of these changes have made a measurable difference. 😀
@@LifewithParkinsons Good to hear. Nutritionfacts has done several and Mic the Vegan has done one video on Parkinson's. Maybe something there might help if you haven't seen them. Like the one on a low protein diet which talks about either eating low protein overall or even just shifting protein intake to later in the day to make l-dopa work more effectively.
And no, I'm not vegan. Though I did switch to a mostly whole food plant based diet about a year ago for my heart health, and I saw amazing improvements overall. I basically eat fish once or twice a week and maybe a little meat on holidays or special occasions. At the very least, it cured my hypertension, got me off BP meds, and normalized my previously 240 cholesterol. Oh, and I haven't had acid reflux any more, either. It also forced me to be more creative in the kitchen. My wife says I'm a closet vegan.
@@themotivator2587 Thanks, that's good info. Yes, I agree, our diet can impact our health greatly.
Try mct oíl they say it good for the brain
Thanks Manny. Will do!😁😊😀
I am curious to know if anyone has ever tried high THC (RSO) indica to combat the disease?
I have never heard of that.😀
I am just doing regular dose B1 , nothing notice after almost a month . Asked family dr months ago , she never replied . And doubt I will have time to talk about it Friday with MDS . He said he would discuss movement disorder symptoms only when I return . I reorganize my list into 3 categories . 1 Symptoms , 2 medicines and group therapy and therapist .3 And researchers , studies and trial research .
I have too much on list . But he is going to limit me to movement disorder symptoms 😕 .
That RIGHT EYE VISION SYSTEM sounds like some interesting equipment/ technology to diagnose .... good luck trying to tell dr about your knowledge .
Say a prayer or 2 for my appointment to be good news and maybe find help to issues .
Geepers Jerry your MDS sounds like a peach. I don't know why they give you the runaround so much but yes I will say a prayer for you and hope you get some decent answers
@@LifewithParkinsons none of my drs have really made me feel like I have 1 good one on my team . I am switching family dr after a few years of seeing her . I know I have overwhelmed her numerous times . But I feel like I am dealing with someone who is messing with my mind literally . They screen me everytime for depression . Last visit told her nurse , yes been sleeping alot after waking up and not wanting to face the day . Guess because I hit dr with 5 other things . No extra time for mental health conversation from her .
Pulmonary dr took me off 2 of 3 meds , never indicated to go back on them .
Sleep apnea stuff been a treat with equipment . Heart dr tried to force vax on me last year , threw the fear at me in Cardiac icu and said I would die if I got c19 without vax ( and that was while in his care in hospital ) , gave me no faith in him at that point . Plus he wants to look for blockage with surgery after nuclear stress test and doesn't know where blockage is ( no thanks ) last heart dr told me that all was good and 6 months later heart not good . This 2nd neurologist seems overwhelmed . Took my GF to help with knowledge of symptoms , he cut her off and me off from talking so I just let him do his thing . Must have looked at his watch 20 times in 15 mins . I feel exhausted from trying to know what's going on .
Was like that for Fibromyalgia diagnosis , took years and some drs don't even discuss it or my chosen treatment .
Yeah I just don't get it . I have done every test they have thrown at me
And that's not even all of them .
Thanks for prayers , desperate to find some help and move to next page in this chapter of my life .
On a positive note , watched 2 videos this morning ( 2weeks old ) , out of Australia that are claiming they are close to slowing / stopping progression of PD . Using proteins I believe
@@jerrym1070 Hey Jerry, that's frustration beyond frustration. Feeling like you're not wanted there is no fun at all. I'm sure that doesn't help with the depression at all. Sometimes just being listened to is half the battle.
Hopefully Australia has something good.
Thanks for just listening David . It means alot .
Yes I will keep you updated or send link if you would like . Kinda pull the rug out from under you with 3 year thing . Maybe other countries working on it too . I am sure many would be grateful to tell the brain to stop all further progression of PD . What a great hope story
@@jerrym1070 Yes please, send the link, I'm happy to have a look.
I just started B1 sublingual a day 100 mg and in a week I will double the dose as I’ve only seen minor improvement which I will take but constantly searching
Hello, I understand your endless search for something, anything, to help ease your daily symptoms. My video this week is going to be related to your desperate search. I have been doing the same thing and have had good results from Red Light Therapy combined with the homemade Parkinson's glove system. Here are a couple videos to check out. Thanks for saying hello.
ruclips.net/video/4Fc6AlW8GQ0/видео.html
ruclips.net/video/yysH8OQCmnQ/видео.html
It took several months of 100mg a day for others to see improvement. I also started Carnivore and between the two you would never know I have Parkinson's. I've been released by my neurologist. I was about a stage 2 of Parkinson's, close to a 3.
@@paulaelliott47 Thanks Paul
The poison or toxin always wins. Toxic levels of copper have to be dealt with before you're going to see the benefits of thiamine deficiency correction fully. It takes 6+ months to years to correct. Get higher quality supplements aka not from walmart.
Good advice. Thanks!
Bentonite Clay supposedly takes away heavy metal toxicity.
Hi Dave , Sorry to tell B1 had 2 type , one as Thiamine which is water soluble , while another is benfotiamine which is fat soluble , I saw Daphne's video earlier so I try such B1 therapy , but I bought wrongly of thiamine also , I used 1 bottle and another still in use , then I will try to buy the correct one as benfotiamine see if works . I will keep in post after my try . Take care Dave as I was diagnosed 6 months ago , my right hand is slightly tremor occassionally and I took 1 sinemet in the morning only ( yet doctor told 3 times a daily which I don't followed as I been learnt that you will need more carbidopa 25 / levodopa 100 mg , so I dropped 2 daily instead )
Take care and keep in touch .... Bob
Hi Bob, yes please let me know how your B1 trial works out. Thanks.
Hi Bob, Any updates on Benfotiamine?
I say Daphne;s video and ordered her B1 from Amazon. My parkingson's stopped dead from progression. 7$ a bottle. I bought her book. No more cane or walker.
@@paulaelliott47 That’s amazing. How many mg did you need to get these results?
@@lynnpoag8173 I suggest you watch the video I saw Dec 22 that change my life.
Fighting Parkinson’s disease with vitamin B one interview with author, Daphne Bryan.
EONutrition. Elliot Overton is doing in-depth B1 work. I study all his videos. I did exactly what Daphne did use the same B1 exactly I even had the slow progression that she had, and didn’t realize I was getting better till other people said some thing the same experience she had it took me up two months to realize the changes.
I don't have parkinson. But what I would do is to go carnivor for the elimination stage. After that i would see and then move on to something like the walsh protocol.
Read about B6 P5P it's going to help I believe plus think taking tyrosine also. I hope that I help you and may God by with you.
Hi Reno's, thank you for your suggestion and encouragement. I am happy when someone finds an additional treatment that helps them. 😃👍
I haven't heard you mention infrared lights on your head like a hat or over your gut which is something that I've seen online.
Hello, here is my first Red Light Therapy video, there are updates also. Thanks for asking.😀😁😊 ruclips.net/video/U4uVYsPBI_c/видео.html
Removing inflammation is better done by balancing your EFA essential fatty acid ratios ie omega3 to omega 6 an 9 ratios
Because its directly impacting triglycerides which helps blood pressure an so forth
What makes me wonder is how much of a dysfunction in this dopamine cascade involves the ATP and Krebs picture
Like b6 and vit C are supposed to support dopamine production alongside L-Tyrosine
What about the MTHFR pathways with folate and dopamine?
And then directly like histamine overload potentially environmental triggers
Sending me grey in my 30s bloody looking at all this lol
Hi Brendan, yes it is a lot for me as well, but I appreciated your comment and for sharing this information here.😀😁😊
Thank you for the video.
You're welcome Ann 😊
I loved your video and I been taking B complex vitamins everyday. Dave do you have days feel tried and I go threw days I feel tried and I have trouble walking on those days
Hi Carrol, glad you enjoyed the video. I get tired every day also and usually need a nap to get me through the day.
Perhaps try the sublingual version?
Thanks for the tip. I want to try again in the future.
Have you attempted ttfd, which EONutrition claims is much more effective than normal thiamine, which you took, for which many people find no results.
Have you attempted contacting eonutrition to work through a proper regimen? He describes oftentimes a complex process of finding and regularly updating the ttfd protocol. Is he full of crap? :)
I will check out eonutrition. Thanks Brad
@@LifewithParkinsons am very interested in your results if you contact him. He is a youtuber and I think you linked to him in your video. Would be great if you would communicate and see if he has a better regimen for you to work through with him. I don't know the guy, maybe it is a scam, but he has hours and hours of videos on this topic
Elliett Overton I think is knowledgable says something like our cells in one organ or more maybe can fall onto what is called battleship mode where they just want to resist and somehow also to get passed this use TTFD. Additionally potassium with magnesium but battle ship mode cells just use small amounts every 2 hpurs or, if you can handle a mega dose first thing in morning then taper back thru day but nothing at night. Use the melatonin thats good.
Hi William, will have to look into Elliot Overton, you are the second person in a short span of time to mention him(lol so much to do).
Thanks for the info and for taking the time to leave a comment and say hello. Much appreciated,😀😁😊
What is Ttfd
I'm praying for a cure!
Thank you so much! 😀
Hi guys, may I ask what ur diet is like, have u tried carnivore ? Or low carb ? Love ur videos keep up the good work.
Hi Lorra, I follow the Mind Diet as closely as I can, sometimes I cheat, but I'd say 80% of the time I'm in line with it. I definitely feel better without sugar and processed food. Am planning a food video in the near future.
Glad you love the videos, thanks!
Are you on carnivore diet?
I have Parkinsons and do carnivore and B1. I'm 90% better. Parkinson's even reversed a little, no more walker, I can think, and no depression, in fact I've never been so happy in my life. Weird!!!!!
@@paulaelliott47 interesting! I am researching for my uncle. Combining the two most promising therapies is what I was curious about al along. Happy that it works for you. Any tips for my uncle?
I also started carnivore about four months after. A year later you would never know I have Parkinson’s. B1 100 mg a day under tongue. Amazon. Source. Under tongue goes right to bloodstream, pill needs digestion and not as powerful.@@hermanreulens2767
Stanford university is doing research on vibrile tactile therapy with lasting effects. I tried to post a link, but I think youtube auto deleted it.
Hi Owen, if you are talking about the Charco Cue1, I have been in touch with them.
@@LifewithParkinsons No this is different from the Cue 1. You can find it on youtube easy by typing in Stanford vibrating tactile glove. There is something to vibration on certain parts of the body that can help relieve and reduce or possibly reverse Parkinson's? The Cue 1 is also another tech I have looked at, however, it may not be as good as the glove Stanford is working on.
ruclips.net/video/S1kwvxdbhOo/видео.html
I had been thinking about buying a vibrating massage ball for my dad and see if that would help his early Parkinson's symptoms. However, I may not need to as he is responding to 300mg of Benfotiamine once daily. Not sure if you are aware...there are 4 types of vitamin B1. B1 HCL might be the least effective of the four types as according to studies it does not cross the blood brain barrier as well as the others.
@@LifewithParkinsons ruclips.net/video/YEEwbxFT4Bc/видео.html ... link to Stanford glove.
Thanks, I will look up the glove.
About 15 months ago my attention was drawn to vitamin B1. I bought some over the counter and take one pill daily. The reason for taking B1 was my Mild Cognitive Imparement which was evidenced with 15 second periods of confusion (where am I, where am I going). I still have MCI but at a much reduced level. I'm not saying this would work for anyone else.
Hi John, thank you so much for sharing that. I have some MCI as well, it can be really annoying.
Great information! Thanks for putting this together!
No problem Charlotte, thanks for watching
Sulfur is extremely needed to help rid heavy metal toxicity from the body....... Which is Extremely Important.
Thanks Frank.😀😁😊
@@LifewithParkinsons Any time Brother.
Nutritional Yeast
B1 - Great for anxiety
B3 - Niacin great for depression. Cardiovascular, endless other benefits. Also, have you heard of a Niacin flush ?
@@franksam6818 I have not heard of Niacin flush
@@LifewithParkinsons I posted 3 times, but doesn't show up. Gets erased.
@@LifewithParkinsons ruclips.net/video/qQjM5JbAFUo/видео.html
That's a bummer that it didn't work for you. I haven't found a magic bullet either. Thx for the research!
Thanks Jeremy. If something comes along I will let you know
Hello sir my mother is diagnosed with parkinsons around 4years ago.
Currently she is taking levedopa, ropark and parkitidin but due to all these medicines she had some side effects and even hallucinations too.
Can you please tell what supplements you are talking about or can you refer some?
I am.from India.
Thanks for sharing your valuable knowledge.
God bless you with blessed healthy life.
Hi Sabrina, here is the link to my supplements video ruclips.net/video/nyF-kpXwBSc/видео.html
Sorry to hear about your mom. Not sure what is available in India.
my wife tried that b1 therapy started haluciations really bad. after the first week.
Hi Norman, sorry to hear about your wife's experience with the B1 therapy, that must have been terrible. Thank you for sharing that.
Hey my friend what do you take to combat the fatigue? Or is there nothing to take?
Hi Rodger. For the fatigue I honestly just take a nap in the afternoon to get me through the day 😊
I also find a daily nap really helps
This may be a little off topic but I would like to share it. I have gone on a Whole Food Plant Based life style. Cut out all animal products, meat fish, eggs dairy etc. Also little to no processed items. 99% of what I eat is fresh vegies, fruits, and small amount of nuts and seeds. It has eased pain to where I rarely need any pain meds. I have had bad constipation all my life, with parkinsons making it unlivable. 2 to 3 weeks of nothing. If I do a smoothie particularly a lot of fruit, I go every day, and 2 to 3 times a day. I can't say if it would help others but worth considering. I am still working out what is best for me. At one point I lost 22 kg, 48 pounds in 5 months.
Hi John, thank you for sharing what is working for you. It is good to have as much info as possible and sort out what works for each individual. Thanks for leaving your comment.😀😁😊
David do you take Levodopa ? If so how much and do you feel any reaction, positive or negative, right away or after some time ?
Hi Mr244u, I do take levodopa, here is a link to my medication video a little while ago.
ruclips.net/video/dmt_Mcw_cpY/видео.html
It takes about 45 min to kick in, and I am very thankful for it. For me, the pros outweigh the cons.
Thanks for asking.😀
What does carnivore diet do to parkinsons?
Hello, I don't really know what the carnivore does to Parkinson's, but it is possible that too much protein can interfere with the medication if not spaced properly away from it. I try and keep my protein minimum 1 hour apart from my medication to lower the possibility of that. I follow the MIND diet as closely as I can. Check out this link www.parkinson.ca/wp-content/uploads/Levodopa-and-Protein-Medication-Absorption-Concerns.pdf
thank you
Hi Bill, you are welcome!😀😁😊
I’m not sure why thiamine HCL works for some people with Parkinson’s because it is shown to not raise brain levels of thiamine which is where I would think you would need it. Benfotiamine, Sulbutiamine, and TTFD are supposed to raise brain tissue levels of thiamine so maybe that would be worth trying for you. The only drawback would be that you may need more supplements to counteract potential paradoxical reactions that may occur from potential poor methylation, lower levels of glutathion, or sulfite sensitivity. Also, Daphne Bryan did sublingual Thiamin in relatively small quantities of a single 100mg tablet per day and it’s supposed to go into the blood rapidly and I think it would make sense for it to get into the brain tissue that way. Also, I’m curious if you’ve ever tried manganese supplementation.
Hi Aetherius. I am not sure why the B1 therapy works for others but I did read that the Michael J fox Foundation scrapped the trial after phase 1, and there is currently as far as I know no plans for a phase 2 trial. But if it helps for some people I am not certainly going to stop anyone from trying to ease their symptoms. I have not tried a manganese supplement to this point I have had a lot of success recently with red light therapy. ruclips.net/video/yGCER2grjYw/видео.html
Thank you for your comment and for saying hi and providing some interesting discussion on the B1 therapy. 😃👍🙏
Working in the gut is where it works then it helps the brain
Great video David, I'll have to look in to the Parkinson's Institute soon. I'm going in for rotator cuff repair surgery in the morning
Gonna take a awhile to recover
Got any knowledge of what works to repair muscles?
Hi Tory, thanks! Best wishes for your surgery tomorrow. I've had a lot of surgeries over the years, all I know what works is some rest and physio. Hope to see you soon.
@@LifewithParkinsons well I can do that 😃😁 thanks David
Do you have DBS implant surgery done on U ?
Hi MAnout, not yet, I'm on the wait list.
CO Q10 and PQQ combine
Thanks for the info Miguel.😀 Thanks for saying hi
Lions main is great for parkinson's
Hi Ray. I agree, I find lions mane very beneficial. Thanks😀😁😊
@@LifewithParkinsons also my grandfather uses vitamin b1 high doses it's helps him so much. Do research on it.
I have experimented with CBD oil, no apparent change, vitamin B Complex, no apparent change, vitamin C no apparent change.
I am ingesting Melatonin, co Q 10, omega 3, magnesium, still waiting but nothing has happened worth reporting yet. I will follow you and see what happens. The melatonin does seem to help with sleep but that’s all.
Hi wclogger1, what symptoms are you targeting with the supplements you are taking? Not everyone gets the same results. Please let me know, thanks.
Thanks for sharing 👍 😊
My pleasure 😊 I hope it helps.
Are you on a keto diet by any chance? I think carnivore will help you too. I just saw a video about coconut oil or mct oil will help you.
Hi Caroline I am on the mind diet. I have had a look at the carnivore diet but I just can't squeeze that much protein in between my medications. Here is my video about the carnivore diet.😃😄😊 ruclips.net/video/ioOROtxhJhU/видео.html
How long have you been diagnosed with pd
Since 2017.
Check out this video marking my progression - ruclips.net/video/Yey-QDlE8Sc/видео.html
Have you looked into Carnivore Diet for Parkinson's
Hi Kelly I follow the MIND diet as closely as possible
Hi Kelly the B1 didn't work out for me.
Dr Brooke Goldner can also help. Listen to her Wednesday Q&As. If you can try being a client for the best outcome 💕Best Wishes
Thanks for sharing!!
Eat…ribeye steak everyday…go carnivore
Thanks for the suggestion.😀
Benfotiamine but not to much with a bit of magnesium thats all you need gonna try serropeptase next
Thanks 😊
“Types of Parkinson’s Symptoms
Symptoms of Parkinson’s vary by the type of parkinsonism and between individuals. An individual with Parkinson’s will not necessarily experience all or even most symptoms. Parkinson’s is a progressive disease, which means that symptoms worsen gradually over time, new symptoms appear, and disability accumulates.
Motor Symptoms
Everyone with Parkinson’s experiences symptoms related to movement, known as motor symptoms. In early stages of Parkinson’s, motor symptoms are typically unilateral - limited to one side of the body. Motor symptoms are the hallmarks of parkinsonism, and the condition cannot be diagnosed without them. The most common motor symptoms of Parkinson’s include:
Bradykinesia (Slowed movement)
Tremor
Rigidity
Loss of balance
Other motor symptoms of parkinsonism include:
Stooped posture
Shuffling gait
Dystonia (repetitive twisting, swaying, or head-bobbing motions)
Painful muscle contractions
Muscle jerks or twitches
Freezing episodes
Mask-like facial expression
Decreased blinking
Softer, slurred, or mumbled speech
Speaking in a monotone voice
Drooling
Dysphagia (difficulty swallowing)
Micrographia (small handwriting)
Slowed or abnormal eye movements
Eyelid spasms
Difficulty opening the eyes
Nonmotor Symptoms
Many people with Parkinson’s experience other types of symptoms in addition to motor symptoms.
Cognitive Symptoms
According to studies, about 40 percent of those with Parkinson’s eventually experience cognitive difficulties. Cognitive changes, often referred to collectively as “cog fog” or “brain fog,” can include problems with memory, attention, processing information, finding the right words, slurred speech, learning and remembering new things, organization, and getting lost in familiar places.
Psychotic Symptoms
Between 20 percent and 40 percent of people who take medications for parkinsonism experience a loss of connection with reality known as psychosis. Psychosis can either be caused directly by the disease or as a side effect of treatment. Psychotic symptoms can include:
Visual hallucinations
Delusions
Paranoia
Irrational fears
Flashbacks
Nightmares
Sensory Symptoms
Decreased sense of smell is very common and often among the earliest symptoms of Parkinson’s. Approximately 96 percent of people newly diagnosed with Parkinson’s show a loss of sense of smell. Some people with Parkinson’s experience vision changes, including blurred vision, double vision, loss of sensitivity in the perception of color and contrast, and visual hallucinations. The sense of taste may also be affected by parkinsonism.
Mood and Personality Changes
Parkinson’s and medications for the condition often cause changes in mood and can affect personality traits. Psychological symptoms of Parkinson’s can include:
Depression
Anxiety
Anger
Irritability
Jealousy
Increased or decreased interest in sex
Impulsiveness
Compulsive behavior
Other Symptoms
Fatigue is common in Parkinson’s. Fatigue may not be caused directly by Parkinson’s, but stem from other symptoms, including motor difficulties, sleep problems, and depression, or be among the side effects of medication for parkinsonism.
Problems with sleep are widespread in people with Parkinson’s. Sleep disturbances are the most common sleep symptom, but insomnia, restless legs syndrome, nightmares, and difficulty turning over in bed are also experienced.
Orthostatic hypotension is the scientific term for feeling dizzy when you stand up. It is a common symptom of Parkinson’s - experienced by 20 to 30 percent of those with the condition - and can lead to faints and dangerous falls. Orthostatic hypotension is a result of low blood pressure either due to nerves damaged by the disease or as a side effect of Parkinson’s medication. Orthostatic hypotension usually happens within three minutes of standing. This symptom is more likely the older you get and the longer you have Parkinson’s.
Gastrointestinal (GI) symptoms, especially constipation, are among the most common Parkinson’s symptoms.
Bladder dysfunction is common in Parkinson’s. As many as 50 percent of those with advanced Parkinson’s report overactive bladder.
Pain in Parkinson’s disease comes in many varieties. Although Parkinson’s is not widely considered a painful disease, it can cause muscle pain from cramps and repetitive movements, neuropathy (nerve pain, or pins-and-needles numbness sensation), shooting pain such as sciatica, or a sharp, burning pain. Pain usually occurs on the side of the body most affected by Parkinson’s symptoms.
It is common for people with Parkinson’s to experience sexual dysfunction. Parkinson’s causes lowered libido and difficulty orgasming in both sexes. Motor symptoms can also make physical aspects of sex problematic. In men, Parkinson’s leads to erectile dysfunction and ejaculation problems. In women, decreased arousal, vaginal dryness, and pain with intercourse occur. In about 1 percent of people with Parkinson’s, medications cause hypersexuality - compulsive sexual behavior.
People with Parkinson’s are four times more likely to develop melanoma, a dangerous type of skin cancer. Those who have had melanoma are four times more likely to develop Parkinson’s.”
Hi! I'm new to this group. I recently joined because I am the administrator of an international Parkinson’s support group. We have 8,700 members, no subscription fee, no sales.
In Facebook click on the title of the group and a series of comments and information links appear.
Facebook:
Parkinson’s thiamine hcl
Hi Roy, I am a member of your FB group. Thanks for commenting and sharing some information. Hope you are well.😀
Hi NOSILVERBULLET4PD, On supplements their is a video where a nutritionist surveyed PD folks for what they ate and used as suplements and what seems to work best. Gingko had best results. ruclips.net/video/LdpfNnnAzKI/видео.html Last week I was telling a friend on the beach about how sugar made PD much worse and is a major cause of getting PD. He said "do you know I have PD?", I had not noticed. Yesterday ran into him again, he was very happy and said "It worked!" I had forgotten and asked what? He said he just cut out using sugar in his coffee and within a day his shaking reduced a lot. There is a very in-depth explanation of that by a neurologist here: ruclips.net/video/iBNNIIDBIYU/видео.html Hope this info helps.
Thanks gold miner, I did not know that video was out there, I will watch it. Yes, I agree, cutting out sugar has made my PD easier to manage. When I feel better, I tend not to miss or want sugar.
Thanks!😀😁😊
Have yuo take injection b 1
No, I have not tried that.
google 'DR CONSTANTI '
Hi Ziggy I did and I've gone through the research and tried it enough to know it's not for me. Thanks for the suggestion 🙂