I would just like to say if there is anyone out there who wants to judge and complain just please GO AWAY! This is a care group of like minded people and Leslie is doing her very best to trust GOD and put one foot in front of another as she loves and cares for the love of her life. GOD bless you dear sweet Leslie. We are in this together. You and Jason are loved very much by this community and everything you post is so very appreciated. Thank you so much. ❤️❤️❤️🙏🙏🙏
Oh Leslie, I am so sad you have to go through this. My husband died in 2021, with "muscle weakness" and dementia. I insisted on keeping him home as long as possible (I'm now 81) and it nearly brought me to my knees. Thankfully my doctor intervened and moved him to health care (nursing home) where he spent the last 6 months. All of this during Covid. I would urge you to get someone to relieve you as much as possible. He no longer knew who I was and possibly was not clear who he was. I truly did not understand the toll it was taking on me until after he died. Do not consider it to be selfish to ask someone to help you. It's such a difficult journey for both of you. God bless.
we all have our own journey and make the choices that best suit our relationships. I honor Leslie's choices not just because I made the same choice but because her choice is perfect for her. :)
My heart goes out to you. I lost my husband just 3 weeks ago to dementia. We were on this journey for a decade. I retired 5 years ago to be home and care for him and the last 3 required full time care with constant monitoring. It’s the cruelest of diseases. I’m so glad you have a support group and please know that you will need either family or a paid caregiver in the late stages. No one person can care for a dementia patient 24/7. Prayers 🙏
No one should say anything negative about how you are coping with this situation. I know it is heartbreaking and sometimes hurtful when all you are trying to do is keep Jason safe and happy. Your happiness you have to take bits at a time because you are constantly looking after him and sometimes sorrow comes along with that. I applaud you for loving him and doing all you know to do to protect him and support him in anyway you can. Prayers for the both of you that God will continue to give you strength and trust in Him as you go through this battle together.
No one should ever judge you. You are doing an amazing job. I am a hospice nurse now but a former ICU nurse for 25 years. Most of my patients have dementia and they are all so different but similar in many ways. It has to be one of the hardest things to watch. I feel for you and Jason. It affects everyone and no one more than you and your kids. The stress it puts on the spouses is tremendous. You sharing your story with others is so helpful to all caregivers dealing with this. I have the pleasure of knowing many spouses of patients who I have known for a year and they are amazing people. The stress I see on some of them is tremendous. They do become children again. sending you all love
Your love for Jason shines through each time you do one of these videos! I’m thankful that you also have a support group and your faith to lean on. Never feel funny or weird about unloading on us. We are here to support you and send love/prayers to you both.
When someone comments negatively about things you have to do with Jason they obviously do not know how hard it is to deal with someone with dementia and how very difficult it can be. They are coming from a place of ignorance and it's sad that they think they know better. Unless you are forced to live a life with dementia in yo it is very hard to explain what you are going through with others. All you are trying to do is protect him but you also have to protect yourself and your finances. My in laws both had dementia and alzheimers and it was very difficult to reason with them, explain things to or just try to get them to change their minds once they are set on something. My father in law threw tantrums and got very ugly when we finally had to move them to an assisted living facility. They even tried escaping several times and actually made it out once and spent $450.00 on a taxi to "go home" to their house 2 hours away! He didn't even recognize his own house when he got there. I'm so sorry you are going through this, Leslie. Life can be so unfair, sometimes and I am so sorry you have been dealt with such a difficult situation. I think you are doing a wonderful job, and I know you are doing the very best you can with being very sensitive to Jason's feelings. My prayers are with you.🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏
Keto diet -- high fat and low carb, coconut oil (1 - 3 tbspns daily) and vitamin D help people with dementia. New research points to dementia being related to fungus in the brain -- see video from dr. cameron jones dated august 15 2020. Parasites may also be an issue. God bless Jason and family.
@@rccyberwarrior2267Leslie, u r doing such a great job dealing with Jason's problems. U must have had a wonderful. Life together.. as I have said before, u grew up together as u have been together since your early teens. I am a retired nurse who has to deal with these problems daily, from the hospital or living situation. Dementia, and altzheimers were my patients. On my side of the curve, I was able to give such good and loving care to your loved ones as my job. I got sdo much from these patients and their families. I miss my people very much. I feel blessed to have been able to give this care, and not only help the patients, but the families. I miss them all. Again, Leslie, please do not wear yourself down to the nubbins before u finally get to the end. God bless you and your families so much. My prayers surly go out to u all. Love 💕 Glenda veborg.
My dad had Lewy Body, and my mom was his primary caregiver for the duration. You’re doing an amazing job. It’s a hard road, and unless you can see behind the scenes, it’s almost impossible to understand. Although my mom is gone now, I know she would be a huge cheerleader for you and Jason! You both are doing a huge service to other people dealing with a dementia diagnosis. My mom would have so appreciated such a resource when she went through it. Thank you!
I am crying as I’m watching this because I had to totally get me and my husband are in it right now and it changes all the time he has vascular dementia and Alzheimer’s and it does it changes the whole relationship / marriage dynamic. He was like my best friend now I’m the person he likes the least and it does hurt if I didn’t have God in my life I don’t see how I could get through it. What has been especially hard is finding support groups in my area. . I appreciate your videos very much.
It's so difficult for me to imagine anyone questioning your caregiving choices and techniques with Jason. I'm sure off camera things get tougher, but on camera they can still be pretty tough. I admire you so much for the love you exude for Jason and the patience and kindness. to me, you are a saint! 💝
My heart is broken 💔 for you both. We had to form new bank accounts, cancel credit cards, take out house phone, it's exhausting. You are a mother to him now, start planning for 24 hour nursing needs as it will shift to next stage quickly. Please plan for your self, living arrangements, keep your true friends close, counseling on acceptance the relationship is coming to an end as you knew it so your heart is more ready. They seem to go to a place we can't share, basically your just an observer to keep them safe for now. In those moments of clarity, simply show the love ❤️. Take care and pray diligently, Heavanly father hears you and will send you help. God bless sweetheart.
I felt so bad for Jason, it is one thing to be confused and another to know you should be able to do a task but can’t. Jason is so blessed to have you as his wife. It is terrible journey for a couple to be on. Sending you hugs. ❤️❤️❤️❤️❤️❤️
Oh Leslie, you are going through it with grace and dignity. I know we don’t see behind closed doors but you are an inspiration for sure. I’ve been watching you and Jason off and on for the past several years. Please know we don’t expect you to be strong, cool, calm and collected all the time. It’s got to be so very hard to lose your best friend to this difficult disease who also happens to be your dear husband. Prayers for you and Jason❤
Leslie, please tell Jason, when he's ready, that his honesty is all he needs to give when you help tell about this journey. He never needs to apologise nor do you. Thank you for your bravery.
I can’t even imagine the massive adjustments you’re both having to make on this terrible journey. All diseases are awful, but to me there’s something particularly insidious and evil about dementia. I’m so sorry it came to you two, yet so grateful for your openness and transparency. A few years back, this was my sweet mother’s journey. Tomorrow, it could be mine. Or my husband’s. It could *and will* happen to many of us in our turn. Everything I can think of to say seems so inadequate, but I was thankful to hear that you are both Believers. Our Abba Father walks every journey beside us, and promises that what we endure on this side is NOT the end of the story. 💜
Doing the same with a close relative ....it is very much like one person disappeared and I am learning to adjust to someone who is a stranger. Thank you for your videos.
I'm really glad that you respected Jason's wishes and didn't push him to film . He seems uncomfortable a lot to me in your videos so it was interesting to hear him express that . I take care of my mom who has dementia and I really appreciate your videos . I hope Jason doesn't feel like he needs to "show boat " for us . He can be real it's appreciated ❤
I’m sorry for your loss.😢 Be good to yourself and let go of any guilt or regret. I’m sure your husband would agree that now you need to try to relax and take care of yourself. Much love and prayers for you from NC ❤
No one knows the struggles of other people. If you have never been a caretaker of a person with dementia please don't be critical. Even if you have been a caretaker every circumstance is different. My dad had dementia and what I missed most was being able to have an intelligent, meaningful conversation. He died of a heart attack before the dementia was end stage. In a way I am glad it was the heart attack because even though he most likely lost time he didn't linger and suffer.
I’m speechless right now and scared to death. I need to move my DW with dementia and think it will promote more decline. I feel helpless but we need to move to get expenses down so I can stop work soon and look after her. It’s a horrible disease. Thanks for your contribution to this channel. It helps me to not feel so alone
Leslie, I am a retired Nurse and worked in long term care with Dementia residents. My heart goes out to you. I have been watching you for several years. I am so sad this is happening to your family. I am sending you hugs and 🙏🙏🙏🙏. Don not listen to anyone. They are not walking in your shoes daily. Please take care of yourself.❤️
My heart breaks listening to you as his caregiver. My Mom had Alzheimers and was aggressive, and was so angry when she lost her independnece. So hard. Many prayers for you and Jason.
I completely identify with this. I remember when my dad was no longer logical in his actions or thinking, and trying to discuss things and reason with him did no good. Ultimately we had to put things in place to protect his finances and his personal safety that he vehemently opposed, which was tough being his daughter (not his spouse or mother), but they were necessary in order to protect his financial and physical livelihood. I remember feeling amazed at how much the parent/child relationship had transitioned to me behaving as his mother, which was crazy to me. He passed away in 2019 due to Alzheimer's so I know exactly what you're going through. The road is long and tough and never gets easier. Sending love and light your way. And don't forget to take care of yourself so you can remain strong and resilient.
The same with my dad as well. We had to move him from his home in Arizona to our home in Colorado. He lived with us the last 8 months of his life. We had 24/7 care for him. As much as it was a blessing to have him at home it was also so terribly hard to see him regress on a daily basis. My dad was a highly intelligent man that had his own business for over 40 years. I had to shut that all down which was heartbreaking for me. To watch my dad go from running a successful business and living alone to seeing him lift a spoon full of food up and not know what to do with it was awful. I miss our talks and his advice. I miss his love and his crazy sense of humor. I miss him. I know that him losing his mind had to be the worst way to go for him.
Prayers for you Leslie. I always said that God sent me to EMT school when I was 44, got me a job working in an ER for 20 years helping RN's Docs, PAs, so when my husband (of 40 years) had cancer, I could take care of him at home. We only got 7 months with chemo and radiation, but no one in his family realized how tired I was from doing it all alone. I admire you so much, and I know you don't sleep well because they get up at night and fall, or I had to put a lock on the basement door...God Bless you! Jason is very lucky to have you as his wife and caretaker.
Well, I’ve just watched this and cried my eyes out! My husband has Lewy Body dementia and it’s such a cruel disease. Before, he was the kindest most gentle of men, so empathetic and decent. Occasionally, that side of him slips through and I try to remember that it’s still there, but more often it’s replaced by someone who is totally self-obsessed with no thought at all for anyone else, who can also be quite vicious. He is an educated man, who can no longer read or write, or discuss politics or follow a tv programme. It breaks my heart. I do my absolute best to care for him and I still love him deeply, but our roles have changed so significantly and our lives are so very different now. I do feel more like a mother than a wife, just like you seem to, and I feel so sad about it. You seem to cope with such grace, which I aspire to, but know I fail, usually when I am tired. I think of you both often as you continue your journey. Your calm and loving presence in your videos is so appreciated, and we all know Jason is entitled not to want to be filmed ever, let alone when he is not in the mood. It does help to hear you articulate how you feel, to know that you are not alone in this. Thank you so much for all that you do to show what life is like. X
I know exactly what you’re talking about in every situation I went through this with my mom… I can’t believe people have the nerve to judge or say anything. You are one of the most gracious women I have seen in this situation. Consider keeping us updated with just videos from you… You’re a great speaker and we love to hear from you and what’s going on. If Jason doesn’t want to do the videos anymore that’s fine… We will still watch and we are still interested!
Leslie you are a woman of grace & dignity. I look to you as an example of how I’d like to be during my really tough days with my husband with Alzheimer’s. My husband was diagnosed when our youngest child graduated High School so I traded parenting for caregiving. It’s the worst.
I’m so glad you have a support group! My mom took care of my Dad by herself for five years by herself and the toll it took on her was so hard to see. Keep getting support!!
My mom had dementia and her husband was her primary caregiver with me and my sister with our husbands, helped out. Once my mom hit stage 4-5 the disease progressed rapidly. It’s the most difficult heartbreaking disease for both caregiver and patient. I also had a dear friend with LB who’s husband was her caregiver. Unless you’ve been through this with someone it’s very difficult to grasp how stressful and life-altering this disease is for everyone. Caregivers mist have downtime and some physical activity to release stress. My heart goes out to you Leslie…💜
Bless you... my husband battled lung cancer for 3 1/2. In the last several months the cancer moved to his brain. It was the hardest few months. I'm still struggling with how it changed him. Sending you a huge heart hug!
With dad & mom both with dementia I had to make very difficult calls. Drivers done. Take over finances. Incorporate more Home care and much more. I dealt with their anger for several years. But as a care giver these decisions are necessary. What is so painful is that our roles change. Prayer for you Leslie is for discernment, wisdom and of course peace that passes all understanding in this particularly hard stage.
I know exactly what you're going through. My husband at age 62 is at stage 4-5 Alzheimer's. Its so great to see someone going through the same thing and someone that understands what I'm going through. This is the most difficult thing I've ever been through.
I agree with everything you have said. My husband has had dementia/Alzheimer's early onset for 10 years now. It is unpredictable not just daily but moment by moment. It was also easy for him to give up driving. He took care of all our finances and was a CPA so for me to transition into that role has been the most difficult. I've done it all now for a number of years. The only reason I can do this is though my faith in Jesus Christ. Thank you for sharing your journey. I am right beside you.
Oh man, Leslie, do I hear you! Finances were one of our worst struggles. No matter how I tried to explain my husband could no longer reason like he used to. He insisted on ordering expensive stuff for himself, and I just wasn’t quick enough to catch it all. Prayers for you.
Hold on tight hunny! The road is rough and down right brutal on this journey. Caring for my mom with dementia has given me insight that I wish I never had! You can do this!!!! Bless you both!
You are just one of the best wife’s on this planet. Strength, Dignity, Respect, Honesty and Love is how I would describe you. Jason is a warrior and in my eyes a true hero for all the time spent away from his family whilst serving our Country. So Jason, I want to say that I am sending much love to you, young man (I am elderly so I consider you a young man). I so wished that this disease could someday be cured, and I know Jason has suffered irreparable damage to his brain while on a mission. Love to you all, Respectively❤❤
I found Jason not wanting to participate in the moment a reality check in the video,and actually a good one because Jason is always so obliging in discussing his condition, it was positive for him to be able to show his feelings at that time and say no.Lesley ...despite the hardships of this disease you are doing a fanastic job, take care of yourself too
Bless you for the journey you’re on. I became the mother of my mom. I still relate to what you’re saying with the fits, the fixations, and the reality of it can be so overwhelming. Gratefully, I have a friend whose wife passed from Alzheimer’s, and she helped me understand and vent through all the stages. Mom is now in the glory of God And out of her broken body. I’m so happy for her. When I say, “ I’m so happy for her to be with God” to people that don’t understand our walk they think I’m cruel. Stay strong and know people are praying for you.
I don't know your mom and I'M happy for her to be with God! You hit the nail on the head, @innergirlart, to those that think you are cruel, they are not on the journey you are with God!
I know how your feeling, my husband is going through dementia also. Everything you say is how I feel as a caregiver, thanks for your insight also, Bless
I so appreciate the effort that you have taken to help others. Please take care of yourselves. Live your lives a day at a time🙏🏼💕 we are with you all🙏🏼💕
Good evening Leslie! I admire you so much for having the strength to get through each day! I believe your strength comes from God. He will never leave you nor forsake you. I believe He is going before you and carrying you as well in this difficult journey of your sweet Jason. Thank you for sharing with everyone. May God bless you both. I’m praying for you and Jason. 🙏🏻💕
You are fantastic! We just went through this with my mom, and I must say I totally get it. To those critics.....PLEASE just DON'T SAY ANYTHING. It can get to the point where every single thing is a worry. Everything is a struggle. My mom went through temper tantrums, and that's really hard to watch. I wasn't even the PRIMARY care giver like you are, and it was sooooo hard for me to watch. If they were critical of you acting like a "mom" to Jason, they'd have had a fit when I had to be a "mom" to my mother. She'd burn through money (and NO I didn't' care about how much I was going to inherit), saying "well the bank always lets me withdraw so it must be ok." She couldn't understand that her money was needed for bills/food etc. Anyway, thank you so much for sharing your struggles with us, and anyone who is a caregiver and is honest, will understand what's happening. I will continue to pray for you.
You both are absolutely amazing. I am 64 that thinks along with everyone else I am still in my 40's. Started caregiving with my grandmother in a coma when I just turned 30. What a blessing that 11 months in my home was. Then my dad, my brother and now my 90 year old mother and with each person it started to change me. I do not even know myself today when it comes to family dynamics. I also do this for a living. So much easier dealing with clients than family. You take care of yourself for this last round with my mother has been treacherous for both of us. I actually was injured with one of my clients and had to send my mother to my son's home until I am well, that was a saving grace. Never would have thought that since she was one of my best friends and now at times I believe my dislike for her behaviors during the end stage of her life has removed all the appreciation and much of love we both shared for each other. Please, please, please, do not be too proud to ask for help. You seem so nice and I understand your mindset of being a nurse and why should I not care for this person I pledged my life to but the trade off can be far more emotionally rest of your life expensive.
My heart goes out to you and Jason, he’s a great guy and so blessed to have you as his wife and caregiver but so stressful for you ! Your a wonderful loving, godly woman and I have so much admiration for you. And Jason! Praying in earnest for you both, I know it’s not easy and just know its going to be alright by the grace of God! 🙏🙏🙏❤️❤️
I like your videos. I do worry about your safety at times. I know its not in Jason's nature normally, but some people can get violent as the disease progresses. I'm glad you have a great support system. Your bringing alot of good information about dementia.
I'm so sorry that you are having to go through this. my husband had FTD doe about 8 years during which time he could not work. I was on disability as was he so money was tight. Eventually he developed cancer and was put in hospice care at the hospital. He wanted to go into long term care which was unreasonable and it would have used up all of our resources. He said to me that I'd be fine, "with no money" until he passed away , which was about 10 weeks later. He became very cruel in the last 3 years of our life together. I don't know how I coped. My faith, I guess. Hang in there. Pray lots. God bless.
I’m so sorry you’re going through this Leslie. This is a horrible disease. I’m praying for you and Jason. I’m so happy that you have your faith to help get you through this very difficult time. My father had Alzheimer’s and passed 2 1/2 years ago. My mother was his caregiver and it definitely was so hard for her, especially at the end. Support is so vital and I’m happy to see you have this as well! Take care of yourself and thank you for sharing your story with us! 🙏❤️
Thank you for sharing. My husband is 64 and diagnosed with FTD earlier this year. I am slowly losing my partner. I totally relate to what you are sharing. Hugs.
I don’t know why this video came up on my recommendations but now I’m subscribed to both of your channels and am binging everything. I hope you know what an inspiration you are, in so many ways.
The change in relationship must be so hard for you both. Dementia is a very cruel disease, I've worked with people dealing with it and had experience within my family too. My heart goes out to you both and your wider family and friends ❤️
It saddens me to hear what the two of you are going through... it's such a cruel disease... You all have opened up your personal lives to us ... And for those immature people who can't give you support & instead ridicule you, it's obvious they haven't experienced what you & others are going through... God bless you & Jason...my 💝& prayers are there for you two...
I worked in senior living and we had a memory care unit. I also did dementia education and lead our support group. You are doing a great job dealing with this very difficult disease. You’re right that a support group is a necessity for caregivers and I wish more people would find that support. At the end when you spoke about your marriage changing, my heart really goes out to you. One of the ways I think dementia is so evil is because loved ones have to grieve so many times. You grieve the loss of the person you knew, your marriage, etc. and each time they decline more you grieve the loss of that version of them. Grief starts at diagnoses and doesn’t really stop and I know that’s hard. Just remember this, every day you get the chance to start over. Don’t hold on to the struggles or frustrations. He will likely forget and you holding on to that is unhealthy for you. So just remember the bad is temporary and you get a fresh start each day.
I’m praying for you guys. I’ve never had a good relationship with my mom, but I watched her take care of my dad, who was my hero, throughout his experience with Alzheimer’s. I gained a new respect for her because of the way she loved him and cared for him. I see that in you. ❤
I am so sorry. When you have done everything right. When you have enjoyed the reward of seeing your dreams come true for you and your family. When you finally are at a point to sit back and enjoy the results of all you and your spouse have built together through the years, to realize you will be making the rest of life’s journey without him has got to be the most heartbreaking and unfair conclusion I can imagine. I am so very sorry. It just isn’t supposed to work out this way.
You have my deepest respect for how you are managing the changes that you are experiencing due to Jason's illness. You are doing the very best you can in the face of this terrible illness.
From one caregiver 24/7 to another, thank you so much for addressing us caregivers. It’s physically, mentally and emotionally exhausting at times but I remind myself if my mom can go through this long, heartbreaking journey, I need to pray for strength to go through it with her💔. It is by far the hardest job I’ve ever done and I’m 64
My heart aches for both of you! My father-in-law had Alzheimer’s for twelve years before he passed away. My mother-in-law, who was a RN, took care of him the first eight years. She was so kind and good with him. We finally got help from our US Congressman, to get him into the VA hospital. My MIL., just couldn’t take care of him. But every day she would go to the hospital and stay all day, and fed him the three meals. He was never violent, he just couldn’t remember things, then he lost his mobility to walk and talk. The last 4 yrs. he was bedridden. For any outsider looking at this situation, you shouldn’t judge other people, going through this. It’s a long hard road. God bless you and Jason.
We are going through the same issue. Early onset dementia at age 61 now after years of no answers, with no real diagnosis besides FTD. I know things are going to get rougher with time. Our relationship dynamics have changed, our finances, his ability to cope, my fears, his lack of reality checks. I appreciate your honesty and frankness. It helps me to see what lies ahead for us and ways to cope and prepare. You are doing an amazing job taking care of Jason! Thank you for sharing your journey.
I know this is an older video that you’re moving over to your “Living with Dementia” channel, but I just want to comment that I think you are doing a marvelous job of taking care of your sweet husband and running your household. I think of you and pray for you frequently. Dementia is a horrible disease and it breaks my heart that your family has to endure this at such a young age. My mom got dementia at 95 after a mild heart attack. Her body recovered but her mind did not. She lived for 5 more years and my brother was her care giver 24/7. He said it was his mission to take care of her until she went to Heaven. He was so loving and patient with her. You are an Angel and I know you will be rewarded greatly for your love and compassion! 🙏🙏❤️❤️
I’m loving your videos, I wish you lived near me. We would have to be great friends! if you wouldn’t mind praying my mom has dementia. We are losing her. She’s in the final stages and me and my siblings are not speaking ,we’re very much at odds, my two sisters are alcoholics and my brother is completely checked out and has been no help. I am a born-again Christian, but have to admit I’ve been dealing with some anger towards God. My mom loves the Lord. It’s beyond heartbreaking watching my mom diminish… and she’s in pain and suffering, right in front of my eyes. I’ll continue to watch your videos. They are helping me. God bless you!
You are doing a great job! Be proud of yourself. The real Jason would know you are taking amazing care of him. I remember watching the first video also…maybe it’s good you didn’t know what was going to happen and how painful it would be. In heaven, you will reunite with Jason without this terrible disease, and know how much he loves you and how sorry he is for these years that you lost. (I hope this makes sense, don’t listen to the people who haven’t had to grapple with dementia or caregiving. They just don’t know)
Thank you I see myself in you. I'm starting to understand so much more. The momey, temper and feeling a mother sometimes. God bless you for sharing your journey
For those who have no idea about this horrible disease you do become a mother to your loved one. It doesn't work any other way. What else can you call it? You need to bathe them,wipe their bottoms,dress them exactly what any mum would have done to her child.I have been taking care of my mum for nearly 4 yrs. She is at home with dad and me and there is no talk of her going into a home by my dad,me or my siblings. I am her primary caregiver and it isn't easy at all at times. My mum has reached the stage where she can only eat or drink by herself. Her walking is slowly going so has the use of a wheelchair when we are out. I can leave her with dad for about an hour or so but any longer is harder on my 'young' 93 year old dad especially if she needs to go to the toilet and she doesn't recognize him. The journey is hard,every month is different but there are still good moments in the day. At least my siblings are able to help out in small ways but for me to go away for days is impossible. I had a 3 week break in January but i can go out for a coffee or dinner. In my country I am able to receive a carers benefit for looking after my mum and all her pull on panties are supplied free of charge . We are able to get more support but don't need it at present but when the time comes we shall use it. This is the biggest and last gift I can give to my mum for all the love she showed me. She is definitely worth it and I don't see it as giving up my life for her.I was living a very full life until the age of 55. I never had kids so didn't put my life on hold for anyone else. This is my time to 'mother' someone, that being my beautiful mum who is just that both inside and out.And she is worth it!! I am not English but from the Mediterranean region and my generation still take care of our elderly at home if possible.
My heart goes out to you. I have been a caregiver for my neighbor who had dementia. How I loved her. People need to realize that at some point, they do become child like. And they react positively when treated as such. At least in my case. I would make sure that a challenge turned into a laughing fest. God bless you! Keep the faith!
This one brought me back to the phones calls with my mom while she was the care taker of my father during his years with Dementia. Prayers for all of the family.
You are amazing Leslie,I dont know how you manage to deal with all.of this ! I know God can help one day at a time,and often one hour at a time.I started following you when our adult daught was having multple neurological issues,and I found comfort in your videos. Your audience loves you and Jason, and I know that many of us pray for you regularly. Thank you for sharing this difficult journey. You are blessing the lives of many ❤
I don’t comment ever, but felt led to say your love for each other & for Jesus is amazing.I prayed for and your family today.I have watched you both for years & think you are such an inspiration.God bless you 🙏🏻💕
Leslie, watching you and hearing you humbled me. People don’t realize the patience and strength it takes to be a caregiver of someone with dementia. Everyday is a struggle with mourning the loss you’re experiencing. It’s amazing that Jason has done as well as he has. But that’s due to you and the safe environment you’ve made for him. He’s not shy about snapping at you and knowing this is part of the disease doesn’t make it any easier. Even with normal aging, a spouse can become impatient, suspicious and angry. Life changes and inflexibility exacerbates the slow loss of your previous life. I’m just grateful to still have him to love. Talk to God all the time. He’s the ultimate Comforter. 🙏🏼
Its so heartbreaking he is acutely aware. Oh my gosh, my heart just goes out to ya'll. I am putting every fiber of hope into research and treatment for you guys.
May amazing grace (with its unconditional love ) be yours and Jason’s safe place in this difficult time. You are God’s precious gift! It’s clear you are both held with warmth and acceptance, where loving-kindness sets the tone, and where empathy with its handmaiden hope stands stronger than impaired cognition. Sending a boatload of blessings over you both - in much the treasured way you inspire and bless the rest of us. ❤
I'm so glad I found you today. I've been on this journey with my husband now since about 2010. His progression has been very slow, thankfully, but he's probably at about stage 6a now.
Take him off all financial accounts! This is practical and necessary. That is too much stress for you to deal with. You ARE dealing with a childlike mind many times. It is difficult, but you have had to take the parental role. God bless you. You are doing your best. Much love. 💗🙏💗
I know your feeling this breaking your heart. It happened to my husband and it was so alone. He had other health issues that required cardiologist and surgeries so they never really addressed the LBD. In fact I didn’t even know it was LBD for a long time. It all hurt me deeply and I felt I was in a nightmare to see the man I loved so much suffer and change. I don’t know how I survived it but 8 years later I try hard to only think of the good memories we had together. I honestly cannot go to those other memories it hurts too much. I still see him in my heart and mind as that strong handsome young man I met so many many years ago. Keep making good memories and thank you for your videos. It will help so many who don’t know the signs or feel so alone.
My late Farmer had LBD, there are no support groups in our rural area of NW Wisconsin. This documenting of your journey thru this incredibly challenging devastating disease is so valuable to those like me W/O support or understanding. I see Jason resenting the questions and your respect for his wishes - so when Jason decides to opt out I hope you will be able to continue with updates for other caregivers. Bless you for what you do do for others.
I’m thankful you and Jason have been so brave to be real and make videos- dementia can be such an isolating disease. My heart breaks for you and your family. Just know you’re cared about and loved.
God bless you for your positive attitude…your husband is so lucky. I helped my dad take care of my mom who had dementia. My dad was such a loving husband and caregiver, and mom passed peacefully, although it was a difficult journey. I learned so much during that time. And your vlog gives hope and and positivity to all of us.
Thank you Thank you Thank you I've always felt like nobody could possibly understand what it's luke to be a caregiver for a husband who is declining. Thank you for seeing me. I wish I could give you a big hug❤
As someone who has watched three friends do this, I think this is the hardest stage, They are functional enought to have the tantrums, you still have to monitor their every move and it's when the relationship dynamic really changes. The latter stages are difficult too, but I feel like feeling like you have to take away their "freedoms" is really tough. You are doing a great job!! Jason is lucky to have such a loving partner, even if he doesn't see that sometimes.
We see your love and adoration for Jason. We lift y’all up! Leslie you are AMAZING and we send you love. My auntie was just diagnosed with Lewy Body and your videos have been so helpful so thank you! N🩵
Stand behind you 100 per cent, my husband of 40 years is also in similar stages, he dont want to talk and just want to let you know your videos have been a great support for me, as wife and care taker. Love❤ from Florida😢
Thank you for always sharing! I am also caring for my husband. He has early onset dementia and I so appreciate you sharing your point of view as a caregiver. You’re amazing!!
You are doing an amazing job! I think all different dementia diseases exploded lately and they are seen in younger ages. As well as autism in children. Most of us are touched by these mental problems and sometimes what grindes us is the feel of guilt that we are not always perfect caregivers.
I am keeping you and Jason in my thoughts and prayers. I placed my uncle with dementia into assisted living a year ago. By the time he passed away of a massive brain stem stroke last October, he did not like me at all. I had to make his end of life decisions, too. Now my aunt has dementia, too. She is being cared for as well. I keep telling myself that this is what my dad (their sibling) would have wanted. Caring for them till the end. Neither one was ever married or had a family of their own. My doctor says that it very well may be genetic. It breaks my heart that you and Jason are on this journey. . I wish I could give you a big hug. ❤
I have been following your journey with Jason for awhile. My heart goes out to both of you. I am also a caregiver for my husband. He doesn’t have dementia but has Parkinson’s Disease. For 7 years in addition to my husband, I also took care of my parents. They both passed away in 2021. You show such kindness and control with Jason. Sometimes you do have to be like a mother to him. I get that. I do not have a support group but after hearing you, I am going to find one. This is a 24/7 job that takes a lot of love, strength, compassion, will power, to handle. Take care of yourself too.
People that make negative comments to you about being motherly have no idea. Any of us that have looked after a loved one with dementia knows what you are talking about. I became the mother in my relationship with my mom because you are correct, they are more like children, only like children they don’t learn and remember, they get worse. It is a very long and stressful disease that is so difficult to go through. God bless you and Jason, my heart goes out to both of you during this terrible time. Jason to me always seems like he was a very fun person and it’s sad to not see you growing old together the way you should be. You are very strong Leslie.❤🙏❤🙏❤🙏❤🙏❤🙏
Not walking in your shoes I simply can’t imagine the daily struggles you must go through. Such a cruel disease. You have found in yourself a strength that is unimaginable. My hats off to you. May you continue to walk in grace and patience 🌺 You are now head of household without a partner. Such a big responsibility to keep him and you safe. Bills to be paid repairs to be made lawn and garden care. Shopping cooking cleaning………….and you do it with a sunny patient and positive disposition. My hats off to you. All this upon your shoulders as you watch your beloved husband slowly, bit by bit, slip away from you. I am so sorry for you struggles.
Just recently found your channel. Thank you for sharing such personal experiences with us. I lost my dad 16 years ago to alzhemier's after 16 years, My mom was his caregiver and the only blessing was that my dad was the temper tantrum kid before his diagnosis and became very calm and sedate once diagnosed. There came a point where mom could no longer care for dad, her own health was in jeopardy. Blessed to find a wonderful facility dad carried on for another 3 years and passed peacefully. In many ways this is such a horrible disease for both the patient and caregiver. Keeping you BOTH in my thoughts and prayers and thank you again for your courage to share your journey with us.
I would just like to say if there is anyone out there who wants to judge and complain just please GO AWAY! This is a care group of like minded people and Leslie is doing her very best to trust GOD and put one foot in front of another as she loves and cares for the love of her life. GOD bless you dear sweet Leslie. We are in this together. You and Jason are loved very much by this community and everything you post is so very appreciated. Thank you so much. ❤️❤️❤️🙏🙏🙏
I don’t see any negative comments.
Oh Leslie, I am so sad you have to go through this. My husband died in 2021, with "muscle weakness" and dementia. I insisted on keeping him home as long as possible (I'm now 81) and it nearly brought me to my knees. Thankfully my doctor intervened and moved him to health care (nursing home) where he spent the last 6 months. All of this during Covid. I would urge you to get someone to relieve you as much as possible. He no longer knew who I was and possibly was not clear who he was. I truly did not understand the toll it was taking on me until after he died. Do not consider it to be selfish to ask someone to help you. It's such a difficult journey for both of you. God bless.
we all have our own journey and make the choices that best suit our relationships. I honor Leslie's choices not just because I made the same choice but because her choice is perfect for her. :)
I went through the same thing with my husband during Covid! A nightmare! I was 79 years old.
My heart goes out to you. I lost my husband just 3 weeks ago to dementia. We were on this journey for a decade. I retired 5 years ago to be home and care for him and the last 3 required full time care with constant monitoring. It’s the cruelest of diseases. I’m so glad you have a support group and please know that you will need either family or a paid caregiver in the late stages. No one person can care for a dementia patient 24/7. Prayers 🙏
Bless you x take care of yourself, I'm sorry for your loss x
I’m so sorry for your loss. ❤️
I am so sorry for your loss!
Sorry for your loss
So sorry for your loss
No one should say anything negative about how you are coping with this situation. I know it is heartbreaking and sometimes hurtful when all you are trying to do is keep Jason safe and happy. Your happiness you have to take bits at a time because you are constantly looking after him and sometimes sorrow comes along with that. I applaud you for loving him and doing all you know to do to protect him and support him in anyway you can. Prayers for the both of you that God will continue to give you strength and trust in Him as you go through this battle together.
❤
No one should ever judge you. You are doing an amazing job. I am a hospice nurse now but a former ICU nurse for 25 years. Most of my patients have dementia and they are all so different but similar in many ways. It has to be one of the hardest things to watch. I feel for you and Jason. It affects everyone and no one more than you and your kids. The stress it puts on the spouses is tremendous. You sharing your story with others is so helpful to all caregivers dealing with this. I have the pleasure of knowing many spouses of patients who I have known for a year and they are amazing people. The stress I see on some of them is tremendous. They do become children again. sending you all love
Your love for Jason shines through each time you do one of these videos! I’m thankful that you also have a support group and your faith to lean on. Never feel funny or weird about unloading on us. We are here to support you and send love/prayers to you both.
When someone comments negatively about things you have to do with Jason they obviously do not know how hard it is to deal with someone with dementia and how very difficult it can be. They are coming from a place of ignorance and it's sad that they think they know better. Unless you are forced to live a life with dementia in yo it is very hard to explain what you are going through with others. All you are trying to do is protect him but you also have to protect yourself and your finances. My in laws both had dementia and alzheimers and it was very difficult to reason with them, explain things to or just try to get them to change their minds once they are set on something. My father in law threw tantrums and got very ugly when we finally had to move them to an assisted living facility. They even tried escaping several times and actually made it out once and spent $450.00 on a taxi to "go home" to their house 2 hours away! He didn't even recognize his own house when he got there. I'm so sorry you are going through this, Leslie. Life can be so unfair, sometimes and I am so sorry you have been dealt with such a difficult situation. I think you are doing a wonderful job, and I know you are doing the very best you can with being very sensitive to Jason's feelings. My prayers are with you.🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏
@@9384cows , Very well said. Its sad , so sad.
oh my goodness, my husband had lewi Body died in March. i took away debit card. you for sure hsve to be his mom like caregiver
Keto diet -- high fat and low carb, coconut oil (1 - 3 tbspns daily) and vitamin D help people with dementia. New research points to dementia being related to fungus in the brain -- see video from dr. cameron jones dated august 15 2020. Parasites may also be an issue. God bless Jason and family.
@@rccyberwarrior2267Leslie, u r doing such a great job dealing with Jason's problems. U must have had a wonderful. Life together.. as I have said before, u grew up together as u have been together since your early teens. I am a retired nurse who has to deal with these problems daily, from the hospital or living situation. Dementia, and altzheimers were my patients. On my side of the curve, I was able to give such good and loving care to your loved ones as my job. I got sdo much from these patients and their families. I miss my people very much. I feel blessed to have been able to give this care, and not only help the patients, but the families. I miss them all. Again, Leslie, please do not wear yourself down to the nubbins before u finally get to the end. God bless you and your families so much. My prayers surly go out to u all. Love 💕 Glenda veborg.
My dad had Lewy Body, and my mom was his primary caregiver for the duration. You’re doing an amazing job. It’s a hard road, and unless you can see behind the scenes, it’s almost impossible to understand. Although my mom is gone now, I know she would be a huge cheerleader for you and Jason! You both are doing a huge service to other people dealing with a dementia diagnosis. My mom would have so appreciated such a resource when she went through it. Thank you!
I am crying as I’m watching this because I had to totally get me and my husband are in it right now and it changes all the time he has vascular dementia and Alzheimer’s and it does it changes the whole relationship / marriage dynamic. He was like my best friend now I’m the person he likes the least and it does hurt if I didn’t have God in my life I don’t see how I could get through it. What has been especially hard is finding support groups in my area. . I appreciate your videos very much.
It's so difficult for me to imagine anyone questioning your caregiving choices and techniques with Jason. I'm sure off camera things get tougher, but on camera they can still be pretty tough. I admire you so much for the love you exude for Jason and the patience and kindness. to me, you are a saint! 💝
My heart is broken 💔 for you both. We had to form new bank accounts, cancel credit cards, take out house phone, it's exhausting. You are a mother to him now, start planning for 24 hour nursing needs as it will shift to next stage quickly. Please plan for your self, living arrangements, keep your true friends close, counseling on acceptance the relationship is coming to an end as you knew it so your heart is more ready. They seem to go to a place we can't share, basically your just an observer to keep them safe for now. In those moments of clarity, simply show the love ❤️. Take care and pray diligently, Heavanly father hears you and will send you help. God bless sweetheart.
I felt so bad for Jason, it is one thing to be confused and another to know you should be able to do a task but can’t. Jason is so blessed to have you as his wife. It is terrible journey for a couple to be on. Sending you hugs. ❤️❤️❤️❤️❤️❤️
Oh Leslie, you are going through it with grace and dignity. I know we don’t see behind closed doors but you are an inspiration for sure. I’ve been watching you and Jason off and on for the past several years. Please know we don’t expect you to be strong, cool, calm and collected all the time. It’s got to be so very hard to lose your best friend to this difficult disease who also happens to be your dear husband.
Prayers for you and Jason❤
Leslie, please tell Jason, when he's ready, that his honesty is all he needs to give when you help
tell about this journey. He never needs to apologise nor do you. Thank you for your bravery.
Oh my goodness-
I’m alone in my journey with my husband and you are speaking my heart right now.
Thank you for sharing ❤
I can’t even imagine the massive adjustments you’re both having to make on this terrible journey. All diseases are awful, but to me there’s something particularly insidious and evil about dementia. I’m so sorry it came to you two, yet so grateful for your openness and transparency. A few years back, this was my sweet mother’s journey. Tomorrow, it could be mine. Or my husband’s. It could *and will* happen to many of us in our turn.
Everything I can think of to say seems so inadequate, but I was thankful to hear that you are both Believers. Our Abba Father walks every journey beside us, and promises that what we endure on this side is NOT the end of the story. 💜
Doing the same with a close relative ....it is very much like one person disappeared and I am learning to adjust to someone who is a stranger. Thank you for your videos.
I'm really glad that you respected Jason's wishes and didn't push him to film . He seems uncomfortable a lot to me in your videos so it was interesting to hear him express that . I take care of my mom who has dementia and I really appreciate your videos .
I hope Jason doesn't feel like he needs to "show boat " for us . He can be real it's appreciated ❤
We’re with you Leslie, my heart aches for you. Keep on trucking you’re doing a wonderful job.
I just lost mine a month ago. This journey is a hard one. It is not for the weak. Hang in there. You are awesome.
I’m sorry for your loss.😢
Be good to yourself and let go of any guilt or regret. I’m sure your husband would agree that now you need to try to relax and take care of yourself.
Much love and prayers for you from NC ❤
No one knows the struggles of other people. If you have never been a caretaker of a person with dementia please don't be critical. Even if you have been a caretaker every circumstance is different. My dad had dementia and what I missed most was being able to have an intelligent, meaningful conversation. He died of a heart attack before the dementia was end stage. In a way I am glad it was the heart attack because even though he most likely lost time he didn't linger and suffer.
I’m speechless right now and scared to death. I need to move my DW with dementia and think it will promote more decline. I feel helpless but we need to move to get expenses down so I can stop work soon and look after her. It’s a horrible disease. Thanks for your contribution to this channel. It helps me to not feel so alone
Leslie, I am a retired Nurse and worked in long term care with Dementia residents. My heart goes out to you. I have been watching you for several years. I am so sad this is happening to your family. I am sending you hugs and 🙏🙏🙏🙏. Don not listen to anyone. They are not walking in your shoes daily. Please take care of yourself.❤️
My heart breaks listening to you as his caregiver. My Mom had Alzheimers and was aggressive, and was so angry when she lost her independnece. So hard. Many prayers for you and Jason.
I completely identify with this. I remember when my dad was no longer logical in his actions or thinking, and trying to discuss things and reason with him did no good. Ultimately we had to put things in place to protect his finances and his personal safety that he vehemently opposed, which was tough being his daughter (not his spouse or mother), but they were necessary in order to protect his financial and physical livelihood. I remember feeling amazed at how much the parent/child relationship had transitioned to me behaving as his mother, which was crazy to me. He passed away in 2019 due to Alzheimer's so I know exactly what you're going through. The road is long and tough and never gets easier. Sending love and light your way. And don't forget to take care of yourself so you can remain strong and resilient.
The same with my dad as well. We had to move him from his home in Arizona to our home in Colorado. He lived with us the last 8 months of his life. We had 24/7 care for him. As much as it was a blessing to have him at home it was also so terribly hard to see him regress on a daily basis. My dad was a highly intelligent man that had his own business for over 40 years. I had to shut that all down which was heartbreaking for me. To watch my dad go from running a successful business and living alone to seeing him lift a spoon full of food up and not know what to do with it was awful. I miss our talks and his advice. I miss his love and his crazy sense of humor. I miss him. I know that him losing his mind had to be the worst way to go for him.
Prayers for you Leslie. I always said that God sent me to EMT school when I was 44, got me a job working in an ER for 20 years helping RN's Docs, PAs, so when my husband (of 40 years) had cancer, I could take care of him at home. We only got 7 months with chemo and radiation, but no one in his family realized how tired I was from doing it all alone. I admire you so much, and I know you don't sleep well because they get up at night and fall, or I had to put a lock on the basement door...God Bless you! Jason is very lucky to have you as his wife and caretaker.
My heart goes out to you both after watching my dad look after my mum with Alzheimer’s. You are doing an amazing job and are so graceful and kind. 💕
Well, I’ve just watched this and cried my eyes out! My husband has Lewy Body dementia and it’s such a cruel disease. Before, he was the kindest most gentle of men, so empathetic and decent. Occasionally, that side of him slips through and I try to remember that it’s still there, but more often it’s replaced by someone who is totally self-obsessed with no thought at all for anyone else, who can also be quite vicious. He is an educated man, who can no longer read or write, or discuss politics or follow a tv programme. It breaks my heart. I do my absolute best to care for him and I still love him deeply, but our roles have changed so significantly and our lives are so very different now. I do feel more like a mother than a wife, just like you seem to, and I feel so sad about it. You seem to cope with such grace, which I aspire to, but know I fail, usually when I am tired. I think of you both often as you continue your journey. Your calm and loving presence in your videos is so appreciated, and we all know Jason is entitled not to want to be filmed ever, let alone when he is not in the mood. It does help to hear you articulate how you feel, to know that you are not alone in this. Thank you so much for all that you do to show what life is like. X
I know exactly what you’re talking about in every situation I went through this with my mom… I can’t believe people have the nerve to judge or say anything. You are one of the most gracious women I have seen in this situation. Consider keeping us updated with just videos from you… You’re a great speaker and we love to hear from you and what’s going on. If Jason doesn’t want to do the videos anymore that’s fine… We will still watch and we are still interested!
Leslie you are a woman of grace & dignity. I look to you as an example of how I’d like to be during my really tough days with my husband with Alzheimer’s. My husband was diagnosed when our youngest child graduated High School so I traded parenting for caregiving. It’s the worst.
I’m so glad you have a support group! My mom took care of my Dad by herself for five years by herself and the toll it took on her was so hard to see. Keep getting support!!
My mom had dementia and her husband was her primary caregiver with me and my sister with our husbands, helped out. Once my mom hit stage 4-5 the disease progressed rapidly. It’s the most difficult heartbreaking disease for both caregiver and patient. I also had a dear friend with LB who’s husband was her caregiver. Unless you’ve been through this with someone it’s very difficult to grasp how stressful and life-altering this disease is for everyone. Caregivers mist have downtime and some physical activity to release stress. My heart goes out to you Leslie…💜
Bless you... my husband battled lung cancer for 3 1/2. In the last several months the cancer moved to his brain. It was the hardest few months. I'm still struggling with how it changed him. Sending you a huge heart hug!
With dad & mom both with dementia I had to make very difficult calls. Drivers done. Take over finances. Incorporate more Home care and much more. I dealt with their anger for several years. But as a care giver these decisions are necessary. What is so painful is that our roles change. Prayer for you Leslie is for discernment, wisdom and of course peace that passes all understanding in this particularly hard stage.
I know exactly what you're going through. My husband at age 62 is at stage 4-5 Alzheimer's. Its so great to see someone going through the same thing and someone that understands what I'm going through. This is the most difficult thing I've ever been through.
My heart goes out to you! I can’t imagine it. My mom had Alzheimer’s and now my oldest sister does, very sad! Kudos to you for all you do for him🥰🥰
I agree with everything you have said. My husband has had dementia/Alzheimer's early onset for 10 years now. It is unpredictable not just daily but moment by moment. It was also easy for him to give up driving. He took care of all our finances and was a CPA so for me to transition into that role has been the most difficult. I've done it all now for a number of years. The only reason I can do this is though my faith in Jesus Christ. Thank you for sharing your journey. I am right beside you.
Oh man, Leslie, do I hear you! Finances were one of our worst struggles. No matter how I tried to explain my husband could no longer reason like he used to. He insisted on ordering expensive stuff for himself, and I just wasn’t quick enough to catch it all. Prayers for you.
Hold on tight hunny! The road is rough and down right brutal on this journey. Caring for my mom with dementia has given me insight that I wish I never had! You can do this!!!! Bless you both!
You are just one of the best wife’s on this planet.
Strength, Dignity, Respect, Honesty and Love is how I would describe you. Jason is a warrior and in my eyes a true hero for all the time spent away from his family whilst serving our Country. So Jason, I want to say that I am sending much love to you, young man (I am elderly so I consider you a young man).
I so wished that this disease could someday be cured, and I know Jason has suffered irreparable damage to his brain while on a mission.
Love to you all, Respectively❤❤
I found Jason not wanting to participate in the moment a reality check in the video,and actually a good one because Jason is always so obliging in discussing his condition, it was positive for him to be able to show his feelings at that time and say no.Lesley ...despite the hardships of this disease you are doing a fanastic job, take care of yourself too
Jason is so lucky to have you. This is such a difficult disease to live with. Bless your heart for being such a wonderful caregiver.
Bless you for the journey you’re on. I became the mother of my mom. I still relate to what you’re saying with the fits, the fixations, and the reality of it can be so overwhelming. Gratefully, I have a friend whose wife passed from Alzheimer’s, and she helped me understand and vent through all the stages. Mom is now in the glory of God And out of her broken body. I’m so happy for her. When I say, “ I’m so happy for her to be with God” to people that don’t understand our walk they think I’m cruel. Stay strong and know people are praying for you.
I don't know your mom and I'M happy for her to be with God! You hit the nail on the head, @innergirlart, to those that think you are cruel, they are not on the journey you are with God!
I know how your feeling, my husband is going through dementia also. Everything you say is how I feel as a caregiver, thanks for your insight also, Bless
I so appreciate the effort that you have taken to help others. Please take care of yourselves. Live your lives a day at a time🙏🏼💕 we are with you all🙏🏼💕
Good evening Leslie! I admire you so much for having the strength to get through each day! I believe your strength comes from God. He will never leave you nor forsake you. I believe He is going before you and carrying you as well in this difficult journey of your sweet Jason. Thank you for sharing with everyone. May God bless you both. I’m praying for you and Jason. 🙏🏻💕
You are fantastic! We just went through this with my mom, and I must say I totally get it. To those critics.....PLEASE just DON'T SAY ANYTHING. It can get to the point where every single thing is a worry. Everything is a struggle. My mom went through temper tantrums, and that's really hard to watch. I wasn't even the PRIMARY care giver like you are, and it was sooooo hard for me to watch. If they were critical of you acting like a "mom" to Jason, they'd have had a fit when I had to be a "mom" to my mother. She'd burn through money (and NO I didn't' care about how much I was going to inherit), saying "well the bank always lets me withdraw so it must be ok." She couldn't understand that her money was needed for bills/food etc. Anyway, thank you so much for sharing your struggles with us, and anyone who is a caregiver and is honest, will understand what's happening. I will continue to pray for you.
You both are absolutely amazing. I am 64 that thinks along with everyone else I am still in my 40's. Started caregiving with my grandmother in a coma when I just turned 30. What a blessing that 11 months in my home was. Then my dad, my brother and now my 90 year old mother and with each person it started to change me. I do not even know myself today when it comes to family dynamics. I also do this for a living. So much easier dealing with clients than family. You take care of yourself for this last round with my mother has been treacherous for both of us. I actually was injured with one of my clients and had to send my mother to my son's home until I am well, that was a saving grace. Never would have thought that since she was one of my best friends and now at times I believe my dislike for her behaviors during the end stage of her life has removed all the appreciation and much of love we both shared for each other. Please, please, please, do not be too proud to ask for help. You seem so nice and I understand your mindset of being a nurse and why should I not care for this person I pledged my life to but the trade off can be far more emotionally rest of your life expensive.
Your doing good kid. Hang in there. Prayers and lots of love I'm sending your way.
My heart goes out to you and Jason, he’s a great guy and so blessed to have you as his wife and caregiver but so stressful for you ! Your a wonderful loving, godly woman and I have so much admiration for you. And Jason! Praying in earnest for you both, I know it’s not easy and just know its going to be alright by the grace of God! 🙏🙏🙏❤️❤️
I like your videos. I do worry about your safety at times. I know its not in Jason's nature normally, but some people can get violent as the disease progresses. I'm glad you have a great support system. Your bringing alot of good information about dementia.
I'm so sorry that you are having to go through this. my husband had FTD doe about 8 years during which time he could not work. I was on disability as was he so money was tight. Eventually he developed cancer and was put in hospice care at the hospital. He wanted to go into long term care which was unreasonable and it would have used up all of our resources. He said to me that I'd be fine, "with no money" until he passed away , which was about 10 weeks later. He became very cruel in the last 3 years of our life together. I don't know how I coped. My faith, I guess. Hang in there. Pray lots. God bless.
It’s so brave of you to share all of this, you are amazing. Remember the good times of your marriage. Lots of love to you.
I’m so sorry you’re going through this Leslie. This is a horrible disease. I’m praying for you and Jason. I’m so happy that you have your faith to help get you through this very difficult time. My father had Alzheimer’s and passed 2 1/2 years ago. My mother was his caregiver and it definitely was so hard for her, especially at the end. Support is so vital and I’m happy to see you have this as well! Take care of yourself and thank you for sharing your story with us! 🙏❤️
Thank you for sharing. My husband is 64 and diagnosed with FTD earlier this year. I am slowly losing my partner. I totally relate to what you are sharing. Hugs.
I don’t know why this video came up on my recommendations but now I’m subscribed to both of your channels and am binging everything. I hope you know what an inspiration you are, in so many ways.
The change in relationship must be so hard for you both. Dementia is a very cruel disease, I've worked with people dealing with it and had experience within my family too. My heart goes out to you both and your wider family and friends ❤️
It saddens me to hear what the two of you are going through... it's such a cruel disease...
You all have opened up your personal lives to us ...
And for those immature people who can't give you support & instead ridicule you, it's obvious they haven't experienced what you & others are going through...
God bless you & Jason...my 💝& prayers are there for you two...
I worked in senior living and we had a memory care unit. I also did dementia education and lead our support group. You are doing a great job dealing with this very difficult disease. You’re right that a support group is a necessity for caregivers and I wish more people would find that support. At the end when you spoke about your marriage changing, my heart really goes out to you. One of the ways I think dementia is so evil is because loved ones have to grieve so many times. You grieve the loss of the person you knew, your marriage, etc. and each time they decline more you grieve the loss of that version of them. Grief starts at diagnoses and doesn’t really stop and I know that’s hard. Just remember this, every day you get the chance to start over. Don’t hold on to the struggles or frustrations. He will likely forget and you holding on to that is unhealthy for you. So just remember the bad is temporary and you get a fresh start each day.
I’m praying for you guys. I’ve never had a good relationship with my mom, but I watched her take care of my dad, who was my hero, throughout his experience with Alzheimer’s. I gained a new respect for her because of the way she loved him and cared for him. I see that in you. ❤
I am so sorry.
When you have done everything right.
When you have enjoyed the reward of seeing your dreams come true for you and your family.
When you finally are at a point to sit back and enjoy the results of all you and your spouse have built together through the years, to realize you will be making the rest of life’s journey without him has got to be the most heartbreaking and unfair conclusion I can imagine.
I am so very sorry.
It just isn’t supposed to work out this way.
You have my deepest respect for how you are managing the changes that you are experiencing due to Jason's illness. You are doing the very best you can in the face of this terrible illness.
From one caregiver 24/7 to another, thank you so much for addressing us caregivers. It’s physically, mentally and emotionally exhausting at times but I remind myself if my mom can go through this long, heartbreaking journey, I need to pray for strength to go through it with her💔. It is by far the hardest job I’ve ever done and I’m 64
My heart aches for both of you! My father-in-law had Alzheimer’s for twelve years before he passed away. My mother-in-law, who was a RN, took care of him the first eight years. She was so kind and good with him. We finally got help from our US Congressman, to get him into the VA hospital. My MIL., just couldn’t take care of him. But every day she would go to the hospital and stay all day, and fed him the three meals. He was never violent, he just couldn’t remember things, then he lost his mobility to walk and talk. The last 4 yrs. he was bedridden. For any outsider looking at this situation, you shouldn’t judge other people, going through this. It’s a long hard road. God bless you and Jason.
We are going through the same issue. Early onset dementia at age 61 now after years of no answers, with no real diagnosis besides FTD. I know things are going to get rougher with time. Our relationship dynamics have changed, our finances, his ability to cope, my fears, his lack of reality checks. I appreciate your honesty and frankness. It helps me to see what lies ahead for us and ways to cope and prepare. You are doing an amazing job taking care of Jason! Thank you for sharing your journey.
I know this is an older video that you’re moving over to your “Living with Dementia” channel, but I just want to comment that I think you are doing a marvelous job of taking care of your sweet husband and running your household. I think of you and pray for you frequently. Dementia is a horrible disease and it breaks my heart that your family has to endure this at such a young age. My mom got dementia at 95 after a mild heart attack. Her body recovered but her mind did not. She lived for 5 more years and my brother was her care giver 24/7. He said it was his mission to take care of her until she went to Heaven. He was so loving and patient with her. You are an Angel and I know you will be rewarded greatly for your love and compassion! 🙏🙏❤️❤️
I’m loving your videos, I wish you lived near me. We would have to be great friends! if you wouldn’t mind praying my mom has dementia. We are losing her. She’s in the final stages and me and my siblings are not speaking ,we’re very much at odds, my two sisters are alcoholics and my brother is completely checked out and has been no help. I am a born-again Christian, but have to admit I’ve been dealing with some anger towards God. My mom loves the Lord. It’s beyond heartbreaking watching my mom diminish… and she’s in pain and suffering, right in front of my eyes. I’ll continue to watch your videos. They are helping me. God bless you!
Love you Jason, thank you for sharing your life and journey.
You are doing a great job! Be proud of yourself. The real Jason would know you are taking amazing care of him. I remember watching the first video also…maybe it’s good you didn’t know what was going to happen and how painful it would be. In heaven, you will reunite with Jason without this terrible disease, and know how much he loves you and how sorry he is for these years that you lost. (I hope this makes sense, don’t listen to the people who haven’t had to grapple with dementia or caregiving. They just don’t know)
Thank you I see myself in you. I'm starting to understand so much more. The momey, temper and feeling a mother sometimes. God bless you for sharing your journey
For those who have no idea about this horrible disease you do become a mother to your loved one. It doesn't work any other way. What else can you call it? You need to bathe them,wipe their bottoms,dress them exactly what any mum would have done to her child.I have been taking care of my mum for nearly 4 yrs. She is at home with dad and me and there is no talk of her going into a home by my dad,me or my siblings. I am her primary caregiver and it isn't easy at all at times. My mum has reached the stage where she can only eat or drink by herself. Her walking is slowly going so has the use of a wheelchair when we are out. I can leave her with dad for about an hour or so but any longer is harder on my 'young' 93 year old dad especially if she needs to go to the toilet and she doesn't recognize him. The journey is hard,every month is different but there are still good moments in the day. At least my siblings are able to help out in small ways but for me to go away for days is impossible. I had a 3 week break in January but i can go out for a coffee or dinner.
In my country I am able to receive a carers benefit for looking after my mum and all her pull on panties are supplied free of charge . We are able to get more support but don't need it at present but when the time comes we shall use it. This is the biggest and last gift I can give to my mum for all the love she showed me.
She is definitely worth it and I don't see it as giving up my life for her.I was living a very full life until the age of 55. I never had kids so didn't put my life on hold for anyone else. This is my time to 'mother' someone, that being my beautiful mum who is just that both inside and out.And she is worth it!! I am not English but from the Mediterranean region and my generation still take care of our elderly at home if possible.
My heart goes out to you.
I have been a caregiver for my neighbor who had dementia. How I loved her.
People need to realize that at some point, they do become child like. And they react positively when treated as such. At least in my case.
I would make sure that a challenge turned into a laughing fest.
God bless you! Keep the faith!
It’s hard when my mother is combative over all care. Prayers for you all. I need a lot of grace on this walk.
This one brought me back to the phones calls with my mom while she was the care taker of my father during his years with Dementia. Prayers for all of the family.
You are amazing Leslie,I dont know how you manage to deal with all.of this ! I know God can help one day at a time,and often one hour at a time.I started following you when our adult daught was having multple neurological issues,and I found comfort in your videos. Your audience loves you and Jason, and I know that many of us pray for you regularly. Thank you for sharing this difficult journey. You are blessing the lives of many ❤
I don’t comment ever, but felt led to say your love for each other & for Jesus is amazing.I prayed for and your family today.I have watched you both for years & think you are such an inspiration.God bless you 🙏🏻💕
Leslie, watching you and hearing you humbled me.
People don’t realize the patience and strength it takes to be a caregiver of someone with dementia.
Everyday is a struggle with mourning the loss you’re experiencing. It’s amazing that Jason has done as well as he has. But that’s due to you and the safe environment you’ve made for him. He’s not shy about snapping at you and knowing this is part of the disease doesn’t make it any easier. Even with normal aging, a spouse can become impatient, suspicious and angry. Life changes and inflexibility exacerbates the slow loss of your previous life. I’m just grateful to still have him to love. Talk to God all the time. He’s the ultimate Comforter. 🙏🏼
Such bittersweet times my heart goes out too you both. Sending love and prayers 🙏❤️
Truly sending Christian love… your husband is fortunate to have your love and care!
Its so heartbreaking he is acutely aware. Oh my gosh, my heart just goes out to ya'll. I am putting every fiber of hope into research and treatment for you guys.
May amazing grace (with its unconditional love ) be yours and Jason’s safe place in this difficult time. You are God’s precious gift! It’s clear you are both held with warmth and acceptance, where loving-kindness sets the tone, and where empathy with its handmaiden hope stands stronger than impaired cognition. Sending a boatload of blessings over you both - in much the treasured way you inspire and bless the rest of us. ❤
I'm so glad I found you today. I've been on this journey with my husband now since about 2010. His progression has been very slow, thankfully, but he's probably at about stage 6a now.
LESLIE, you are doing a phenomenal job loving and caring for Jason!
Take him off all financial accounts! This is practical and necessary. That is too much stress for you to deal with.
You ARE dealing with a childlike mind many times. It is difficult, but you have had to take the parental role. God bless you. You are doing your best. Much love. 💗🙏💗
I know your feeling this breaking your heart. It happened to my husband and it was so alone. He had other health issues that required cardiologist and surgeries so they never really addressed the LBD. In fact I didn’t even know it was LBD for a long time. It all hurt me deeply and I felt I was in a nightmare to see the man I loved so much suffer and change. I don’t know how I survived it but 8 years later I try hard to only think of the good memories we had together. I honestly cannot go to those other memories it hurts too much. I still see him in my heart and mind as that strong handsome young man I met so many many years ago. Keep making good memories and thank you for your videos. It will help so many who don’t know the signs or feel so alone.
My late Farmer had LBD, there are no support groups in our rural area of NW Wisconsin. This documenting of your journey thru this incredibly challenging devastating disease is so valuable to those like me W/O support or understanding. I see Jason resenting the questions and your respect for his wishes - so when Jason decides to opt out I hope you will be able to continue with updates for other caregivers. Bless you for what you do do for others.
I’m thankful you and Jason have been so brave to be real and make videos- dementia can be such an isolating disease. My heart breaks for you and your family. Just know you’re cared about and loved.
God bless you for your positive attitude…your husband is so lucky. I helped my dad take care of my mom who had dementia. My dad was such a loving husband and caregiver, and mom passed peacefully, although it was a difficult journey. I learned so much during that time. And your vlog gives hope and and positivity to all of us.
Thank you Thank you Thank you I've always felt like nobody could possibly understand what it's luke to be a caregiver for a husband who is declining. Thank you for seeing me. I wish I could give you a big hug❤
As someone who has watched three friends do this, I think this is the hardest stage, They are functional enought to have the tantrums, you still have to monitor their every move and it's when the relationship dynamic really changes. The latter stages are difficult too, but I feel like feeling like you have to take away their "freedoms" is really tough. You are doing a great job!! Jason is lucky to have such a loving partner, even if he doesn't see that sometimes.
We see your love and adoration for Jason. We lift y’all up! Leslie you are AMAZING and we send you love. My auntie was just diagnosed with Lewy Body and your videos have been so helpful so thank you! N🩵
Stand behind you 100 per cent, my husband of 40 years is also in similar stages, he dont want to talk and just want to let you know your videos have been a great support for me, as wife and care taker. Love❤ from Florida😢
Thank you for always sharing! I am also caring for my husband. He has early onset dementia and I so appreciate you sharing your point of view as a caregiver. You’re amazing!!
You are doing an amazing job!
I think all different dementia diseases exploded lately and they are seen in younger ages. As well as autism in children. Most of us are touched by these mental problems and sometimes what grindes us is the feel of guilt that we are not always perfect caregivers.
I am keeping you and Jason in my thoughts and prayers. I placed my uncle with dementia into assisted living a year ago. By the time he passed away of a massive brain stem stroke last October, he did not like me at all. I had to make his end of life decisions, too. Now my aunt has dementia, too. She is being cared for as well. I keep telling myself that this is what my dad (their sibling) would have wanted. Caring for them till the end. Neither one was ever married or had a family of their own. My doctor says that it very well may be genetic. It breaks my heart that you and Jason are on this journey. . I wish I could give you a big hug. ❤
I have been following your journey with Jason for awhile. My heart goes out to both of you. I am also a caregiver for my husband. He doesn’t have dementia but has Parkinson’s Disease. For 7 years in addition to my husband, I also took care of my parents. They both passed away in 2021. You show such kindness and control with Jason. Sometimes you do have to be like a mother to him. I get that. I do not have a support group but after hearing you, I am going to find one. This is a 24/7 job that takes a lot of love, strength, compassion, will power, to handle. Take care of yourself too.
People that make negative comments to you about being motherly have no idea. Any of us that have looked after a loved one with dementia knows what you are talking about. I became the mother in my relationship with my mom because you are correct, they are more like children, only like children they don’t learn and remember, they get worse. It is a very long and stressful disease that is so difficult to go through. God bless you and Jason, my heart goes out to both of you during this terrible time. Jason to me always seems like he was a very fun person and it’s sad to not see you growing old together the way you should be. You are very strong Leslie.❤🙏❤🙏❤🙏❤🙏❤🙏
Not walking in your shoes I simply can’t imagine the daily struggles you must go through. Such a cruel disease. You have found in yourself a strength that is unimaginable. My hats off to you. May you continue to walk in grace and patience 🌺
You are now head of household without a partner. Such a big responsibility to keep him and you safe. Bills to be paid repairs to be made lawn and garden care. Shopping cooking cleaning………….and you do it with a sunny patient and positive disposition. My hats off to you. All this upon your shoulders as you watch your beloved husband slowly, bit by bit, slip away from you. I am so sorry for you struggles.
My prayers go out to both of you! You’re doing an amazing job caring for him! ❤
My sister had our mom for 5 years and I know how hard it is, God bless you.
My father (aged 92) is experiencing some of these same symptoms. The temper tantrums are disturbing for everyone. My heart goes out to you guys.
Just recently found your channel. Thank you for sharing such personal experiences with us. I lost my dad 16 years ago to alzhemier's after 16 years, My mom was his caregiver and the only blessing was that my dad was the temper tantrum kid before his diagnosis and became very calm and sedate once diagnosed. There came a point where mom could no longer care for dad, her own health was in jeopardy. Blessed to find a wonderful facility dad carried on for another 3 years and passed peacefully. In many ways this is such a horrible disease for both the patient and caregiver. Keeping you BOTH in my thoughts and prayers and thank you again for your courage to share your journey with us.