✅ Get evaluated by Dr. Omar Danoun directly, book your online appointment now (for age 16 years and older) appointment.dromardanoun.com/ In USA, please call the clinic
My adult child has the Empatica watch, also known as Embrace. I love it. It works. It saved my child when a seizure happened while sleeping. It sent the alert to me and my spouse and we were able to get my child help asap!
@@Anatolia0827my daughter has the embrace watch. It will only pick up the movement in her arms. If her seizure doesn’t cause her arm to move then it won’t detect it. It also costs £250 and £45 a month subscription which is a disgusting amount of money per month for a device that is very basic technology and very unreliable. I wouldn’t recommend it. My daughter sleeps next to me every night and will continue to do so until something reliable and safe is brought to Market.
We have been using an Apple Watch SE with the SeizAlarm app with our daughter for almost a year now. It took some time to adjust the sensitivity to not give us false positives but we have it good now. The biggest issue we have is that it kills the battery on the watch very quickly. Even when we take it off the charger, fully charged, and put it on our daughter at 9pm, it rarely lasts past 6am before we start getting alerts that the watch battery is low. We’ve tried every trick, turning off all other apps, resetting the watch, updating the watch, turning off notifications and other settings on the watch and it still can’t make it through the night. Considering that our daughter has only had her seizures while sleeping at night we can’t consider it to be reliable. Does anyone have any experience with the battery life on the Embrace 2? We need something we can rely on that will last at least 12 hours without needing to be recharged.
I had a seizure yesterday 😅 I just remember getting to my brother’s house, seeing my brother’s friend, then hearing my family saying are you ok and I think I said I was… after that, don’t remember a thing, I was sluggish but I didn’t think I had one 😂 I have iwatch with seizure detection, you can change the sensitivity. Also, detects when your heart rate goes up or down also your oxygen.
Really appreciate your videos and advice. I have a 9 year old son who was just diagnosed with epilepsy almost 2 years ago. We are really struggling with getting his seizures under control, and this being a new road to travel, we are having a hard time figuring out the best way to treat it. Watching your videos has given me a new light to a dark path.
I always am comforted by your videos. We are in the beginning of epilepsy for my adult child and he is away at school. Your information is priceless. We feel so uninformed at this point and are looking forward to a doctors appointment which can’t come any sooner. Prayers to all out there experiencing this. 🙏
We too are dealing with newly diagnosed epilepsy with an adult child…get to a level 4 epilepsy center…we struggled for months with a neurologist that wasn’t helping (our son has drug resistant epilepsy) if the appointment is too far out …put him in the car and take him to ER of a hospital that has a level 4 clinic! Goodluck…so hard for parents! ❤
@@carriepoer4931 thank you so much for your comment and support. He has an appointment in a couple weeks at a level 4 Epilepsy Center. I cannot wait to go, so far we have not seen drug resistance seizure to Keppra but only been on it since November. Prayers for your son and family also. 🙏 and I am with you, so awful you have to use the system to get them the proper care they need. We did go to an ER just so we could see a neurologist and not have to wait.
@@Jpb9548 Thank you greatly for sharing.. If you don’t mind sharing. Is your child still able to manage independently at school? Do they live on campus? I have concerns of first year student going off to college….
We also have a college student with a new diagnosis of epilepsy. It is terribly stressful for us parents. This year he is a sophomore so he is living off campus Ave no longer sharing a dorm room with others. I am nervous about him having seizures without anyone around. His are only at night and have only been in August and September, as far as we know. I contacted a company about the mattress detector, but they no longer make it.
My caregiver is my family. Nobody should have to pay a fee for devices like that especially somebody like me now thankfully, my seizures are under control. I don’t have them 24 seven around the clock like a lot of people would.
Thomas Warken I have been having tonic clonic seizures Sence I was 2 years old and now I am 62 years old and I could use that watch Po. 666 Falher,alberta,Canada . Here we can’t get that watch
I just don’t trust the technology, it’s still in its infancy. This reminds me of ‘Dragon’ voice recognition software, you have to spend hours teaching it to work for you specifically.
Good morning Dr. Omar thank you for your effort.. I want to buy a watch for my daughter she diagnosed a general epelipsy, but I can't afford the price 😢 I have no work and my husband he work as waiter. I wish I am the one lucky to have this watch..🙏 I'm from Philippines.
If you would like to make a consult with Dr Omar Danoun, age 16 years and older, please call or email the International Patient Services at Henry Ford Hospital and get your appointment if you are outside the USA: Office Hours: Eastern time 8:00 am -5:30 pm Mon-Friday, excluding holidays Phone: +1-313-916-8443 Email: InternationalPatientServices@hfhs.org In USA call the clinic www.henryford.com/physician-directory/d/danoun-omar
The apple I watch se will detect when you fall and if you don’t move for a second or don’t respond it calls EMT for you. It’s built into the device do there’s no subscription fee.
any idea if this works well for hypoglycemic seizures? i have hypoglycemia unawareness from 30+ years of type 1 diabetes and frequent hypoglycemic seizures with sometimes prolonged respiratory arrest. also, does american health insurance cover this?
Hi! I am Kelly and I am from Paso Robles, California and I am a 38 year old mother who's child feels the need to be my caregiver then on her studies.. I have been going through a wide range of different types of seizures since 2015 ( each type is debilitating in their own way, meaning the side effects vary). Doctors are still trying to understand the cause and the sudden onset so late in life. I haven't been able to work since 2018 three jobs I had before that I had been let go from due to the seizures and the complications of having them so often. Unfortunately there are some that I am unaware that I even had one. And the doctor always asks me so long they are. All I can tell him is I don't know so I need to get one of these watches
Hello hope you are well.. my son is 8 years old.. It's been 3 years since he was diagnosed with epilepsy and the doctor gave him epilation twice a day…but I don't believe that it is the right medicine because every month there are 3 epileptic episodes..😢 what do you suggest me to do?thank you so much
I have JME, and most of my seizures are myoclonic jerks. They are super short, so the watches don't detect them, even when I fall. My medicines don't work and I have a DBS. I am hoping the Nautilus study is effective as it targets a different part of the thalamus than DBS. If there's a watch or other device that will catch the myoclonics, that would be great, too. I have already had two different models of VNS and am not currently eligible for the RNS until Nautilus gets approved.
Thank you for the great information. My 7 year old boy has just been diagnosed with Epilepsy and would love to try using the watch for seizure detection. Thank you
Hello Dr Omar im glad I found your videos. I’m trying to help my adult son looking for information about his epilepsy Seizures. His seizures are only when he’s sleeping and I haven’t find any solutions about an specialist. They usually treat him as psychological problems instead of seizures every time he’s hospitalized they remove his epilepsy medication and he has his seizures back. I need to find a specialist to take him. I don’t know if his seizures are traumatic ir heritage.
I forgot to add that I have had EEGs that DO show seizing andddd in have been in the icu where I had three gran mal seizures back to back within 2 days! After failing down stairs! Andddd I was in such a crazy postictal state once I thought last year that Ronald Reagan was still president and that I was in high school and I cried when they mentioned I had kids because it didn’t make sense to me when I thought I was only in high school :(. ( I’m now 52) …. Is this possible to have more than one type of seizure due to two different head traumas ?
I know you cannot diagnosis on here, but with a teenager who started her seizures 3 years ago at 13, has autism and anxiety increased due to seizures, is verbal, was placed on lomictal. Breakthru seizures (45 sec) during menstrual period, and sickness, perhaps with lower immune system, anyway, she is at 8x25 every 12 hours, and she experiences what seem to be silent seizures and moments (15-25min) where she feels like one is coming and she loses almost all motor control, but stays mostly conscious. We are now backing down to 7x25 every 12 hours, and neurologist is considering Keppra, but i am not in favor because her moods, plus autism may change her mostly happy 8 yr old stuck in 15 yr old body outlook. Any thoughts?
Hi, my son has generalized epilepsy and Autism. He had a med interaction between with Keppra and Lamictal. It is a rare interaction but he had it. He was hospitalized May 2023 from the breakthrough seizures and med interaction. Maybe your daughter is in the same kind of "rare" interaction boat?
I’m Daniel from South Australia and I’ve had epilepsy since December 1979 when I was 15 months old. I have nocturnal, absence, generalised focal and tonic clonic seizures but I’ve tried every anti seizure medication since I was diagnosed and still they’re not controllable plus no Epileptologist or Neurologist has been able to find any cause of my seizures so if possible could you please let me know how I can get one of those seizure alert watches (I also have a dejavu aura normally a second before my seizures).
If you would like to make a consult with Dr Omar Danoun please call or email the International Patient Services at Henry Ford Hospital and get your appointment if you are outside the USA: Office Hours: Eastern time 8:00 am -5:30 pm Mon-Friday, excluding holidays Phone: +1-313-916-8443 Email: InternationalPatientServices@hfhs.org
I wish that were true. Unfortunately I've had one and the watch didn't do me any good. I fell this past April in my living room and was told I have a concussion. I was alone. I live by myself. My parents were not notified. I had the Embrace 2 watch. I got ripped off
Dr. Omar Danoun my wife Ayesha has been having seizures once every three months. I found your videos very knowledgeable and watch them regularly. I am from Karachi, Pakistan.
Thank you, my 5 year old daughter is suffering tonic clonic seizures day and night. We aren't sleeping. This video has helped and I will be purchasing the embrace 2. 👍 Thanks again
Have you ordered it? What has her epileptologist and neurologist had to say? My son is 6, had epilepsy since he was 4. He has multiple seizure types, just had a complex focal seizure.
@@SweetMamaG yes we have the watch now, it is very good and just helps us with piece of mind. I didn't know it needs a linked phone with Bluetooth within 10m but that was easily sorted, costly but worth it 👍 I hope your son is doing ok. My daughter is on epilim liquid now and the seizures have almost stopped luckily .
My son has embrace 2 one of the best.he wears it at school and a phone has to be connected.will encourage parents or anyone with seizures to get it.when u order it make sure you have prescription from the doctor .
Are there ANY devices that can detect absence seizures? Would it be worth getting my son a watch that measures heart rate/pulse or are absence seizures only detectable in the brain?
There's Times When I Know I'm Not Feeling Correctly & I Just Ly On My Bed Until It's Time For Them To Call Ambulance, I Live With Mother & Sister That That Were CNA's So They Know What's Going On With Me. I Where A Necklace When I'm Out.
Are you still giving away the smartwatch, my seizures have returned at nighttime after 30 years of being controlled on Phenytoin. After Phenytoin toxicity im now on Keppra, and finding it very difficult tracking my seizures. Good health.
Soooo I’ve been having seizures since my MVA in 2017 but really since I was 4 and again when I was 8 according to my father but then nothing til the accident. Which I was told can actually restart “ perception the onset of seizures again. My thing is that not ALWAYS do they show on EEG an symptoms are different like I appear to cry uncontrollably but it’s my eyes doing it and I can’t stop, I lip smack or rub my hands, my legs or my head… I yell out every now and then then I end up balling up like a baby after it’s all done truly crying then because I can’t stop shaking- I can’t remember everything although I never like completely pass out or like my eyes don’t anyway but I’m not quite “ all there” if that makes sense? At the onset I feel nauseous and like I have to “ really go “ to the bathroom… does anyone experience that a? Why am I different??? My doctor acts like I’m lying :(((
Thank you for the review, it’s really helpful. My father has seizures every few months, but he also has quite distinctive tremor on both hands. Do you know if any of the watches can differentiate shake from tremor on the hand and real seizure? Thanks.
Thank you for all the hard work that you do as a doctor. We are dealing with lgs 27 years and are grateful for all the knowledge that you are giving everyone its priceless. We are going back to the ketogenic diet with the hope it may work better than before.
The link for give away is is still being made but I have a question. You have your Thor's hammer, you have your non-scrambled eggs for brains. But what is that silver metal T-shaped thingy ( technical term I'm sure) on the other side?
I have just received one for my son, but unless our phones are next to the watch, it doesn’t stay connected. Which defeats the whole purpose. I’m a bit confused
@@DrOmarDanoun I’m not sure yet if I should just return it and get him an Apple Watch instead. Or maybe we need a phone just for my sons use of this watch. He is non verbal and can not use it, but I’m not sure how else it would work. I wish this was made clear. I’m sure other parents are having this issue too. Using an Apple platform would be so user friendly. Anyhow. I still have to monitor seizures. My son has Polymicrogyria
My daughter had her convulsion for the very first time last November 27 2022. Then she was admitted the same day, but the doctor diagnoses is astigmatism because her ct scan is normal. She was discharge the next day. Then nov. 29 she had seizure again.... that's why I bring her to an eent doctor. While waiting for her turn she had seizure, November 30 she had seizure again.... That's why I bring her to a neurologist. And he recommend to heve eeg...and their is history of seizure.that's why said he is going to load her seizure drugs.... Thanks god till then she didn't had seizure but she had maintainance leviteracetam..... Is that mean my daughter have epilepsy but the doctors diagnoses is seizure disorder?
Hang in there. This must be so frightening and frustrating. Your doing great. Pushing for help and answers is what we must do. This channel has great video's that may apply to your unique situation. Please also seek parental support groups even if only online. Parents need help too.
Sir I have Seizures in 2018 but when I'm takeking teblet zenreted 300mg valprol CR 500mg 3 years I'm totally OK no problem from 2018 to 2022 doctor call me and stop my medicine but in July 2022 I have TB positive when TB Medicine takeking again seizures is come back why sir please help me but my seizures problem only morning time 30 seconds lite seizures not like others seizures foling down But right now I'm takeking teblet doctors prescribe me epilex chrono 500 levipil 500 desval er 500 But right now also I have Seizures problem in 1 mount 2days not totally OK TB teblet also takeking TB course complete in APRIL 10 2023
@@DrOmarDanounsir my son has epilepsy since 2013 and now he's 24 years old..taking 3 meds kepretol 2x aday at 500 mg.. phenobarbital 2x a day at 90 mg...25 mg 2x a day of clonotril...but seizure still when morning time please advice me..
@@DrOmarDanoun already put my name in. Would be interesting to see how this watch compares. My galaxy 4 sends everyone a sos when my heart rate falls below 40 for over 5 minutes. By the time they get to me I'm doing the funky chicken . It would be interesting to see how long after my hr falls I start dancing in my sleep. It's always in my sleep . Makes a person afraid to go to sleep. But...... 1000mg of Keppra 2xs daily have put a dent in them and the funky spiky things on my frontal lobe eeg has made them quit saying they're all in my head.... get a good bash to the left forehead and you too can get a TBI, otherwise known as a gift that keeps on giving..
@Dr. Omar Danoun well, I am sure there are probably people who need it more than me. I did download a couple of the seizure apps on my galaxy 4 but they were either to sensitive or not sensitive enough so I didn't find them worth the membership price. My dog is an excellent seizure monitor but he weighs 120 lbs and I'd rather not have his big butt jumping on me all the time. I've been to Cleveland clinic, UK hospital, UC cincinnati. Big hospitals are good at treating Zebras, but suck at people skills.
One comment I will make about the embrace 2 is that the band sucks and it has sharp corners. I will never fault the damn thing’s sensitivity, but even when the watch is in your pocket or a bag while going down the highway, it will still go off
Thank you for this awesome video! My son was a late teen when diagnosed. I bought him Embrace 2 when diagnosed. Our Epilepsy specialist had not heard of it, and was curious to learn of the results. My son complained it was to sensitive to the video games. We also tried an Apple Watch with the seize alarm. After watching this I think we should try the embrace again.
I had the same issues when my child was younger. While gaming they shake their has so the answer - FOR US- it was just to switch to the ankle ONLY while gaming. My child has tonic colonic seizures and we use the Embrace2.
thanks for making this video. I was debating (and my partner was really pushing for this for safety) to have a watch to not only do this but also remind me to take my pills (i only have tonic clonic seizures and can have seizure freedom if i take my pills correctly). An apple watch seems best for this but i never knew there was an app for seizure detection! I have my seizures mostly at night and rely on feeling sore to know if it happened so i sometimes fear that i miss some (since i want to be able to drive so knowing i am truly seizure-free would be comforting)
Excelente video!! Tengo epilepsia bilateral con crisis mioclonicas, fui mal diagnosticada por años... hoy en busqueda de un smartwhatch que ayude a sobrellevar la enfernedad. Gracias por este video!!
✅ Get evaluated by Dr. Omar Danoun directly, book your online appointment now (for age 16 years and older) appointment.dromardanoun.com/
In USA, please call the clinic
My adult child has the Empatica watch, also known as Embrace. I love it. It works. It saved my child when a seizure happened while sleeping. It sent the alert to me and my spouse and we were able to get my child help asap!
Glad to hear that
What brand is it can I have nam😢
@@Anatolia0827my daughter has the embrace watch. It will only pick up the movement in her arms. If her seizure doesn’t cause her arm to move then it won’t detect it. It also costs £250 and £45 a month subscription which is a disgusting amount of money per month for a device that is very basic technology and very unreliable. I wouldn’t recommend it. My daughter sleeps next to me every night and will continue to do so until something reliable and safe is brought to Market.
Do we get this in india
@@Anatolia0827 the Brand is Empatica
Doc.can be my seizure will gone because I take medicine for 2 year
We have been using an Apple Watch SE with the SeizAlarm app with our daughter for almost a year now. It took some time to adjust the sensitivity to not give us false positives but we have it good now. The biggest issue we have is that it kills the battery on the watch very quickly. Even when we take it off the charger, fully charged, and put it on our daughter at 9pm, it rarely lasts past 6am before we start getting alerts that the watch battery is low. We’ve tried every trick, turning off all other apps, resetting the watch, updating the watch, turning off notifications and other settings on the watch and it still can’t make it through the night. Considering that our daughter has only had her seizures while sleeping at night we can’t consider it to be reliable.
Does anyone have any experience with the battery life on the Embrace 2? We need something we can rely on that will last at least 12 hours without needing to be recharged.
Embrace2 they say around 40hours
I had a seizure yesterday 😅 I just remember getting to my brother’s house, seeing my brother’s friend, then hearing my family saying are you ok and I think I said I was… after that, don’t remember a thing, I was sluggish but I didn’t think I had one 😂 I have iwatch with seizure detection, you can change the sensitivity. Also, detects when your heart rate goes up or down also your oxygen.
What watch do you have ?
@@LifeIsWonderful675 Apple Watch and you buy the seizure detection. My advice; it’s best for TC seizures.
Really appreciate your videos and advice. I have a 9 year old son who was just diagnosed with epilepsy almost 2 years ago. We are really struggling with getting his seizures under control, and this being a new road to travel, we are having a hard time figuring out the best way to treat it. Watching your videos has given me a new light to a dark path.
Thank you for sharing your experience
I always am comforted by your videos. We are in the beginning of epilepsy for my adult child and he is away at school. Your information is priceless. We feel so uninformed at this point and are looking forward to a doctors appointment which can’t come any sooner. Prayers to all out there experiencing this. 🙏
Glad to hear that
We too are dealing with newly diagnosed epilepsy with an adult child…get to a level 4 epilepsy center…we struggled for months with a neurologist that wasn’t helping (our son has drug resistant epilepsy) if the appointment is too far out …put him in the car and take him to ER of a hospital that has a level 4 clinic! Goodluck…so hard for parents! ❤
@@carriepoer4931 thank you so much for your comment and support. He has an appointment in a couple weeks at a level 4 Epilepsy Center. I cannot wait to go, so far we have not seen drug resistance seizure to Keppra but only been on it since November. Prayers for your son and family also. 🙏 and I am with you, so awful you have to use the system to get them the proper care they need. We did go to an ER just so we could see a neurologist and not have to wait.
@@Jpb9548
Thank you greatly for sharing..
If you don’t mind sharing. Is your child still able to manage independently at school? Do they live on campus?
I have concerns of first year student going off to college….
We also have a college student with a new diagnosis of epilepsy. It is terribly stressful for us parents. This year he is a sophomore so he is living off campus Ave no longer sharing a dorm room with others. I am nervous about him having seizures without anyone around. His are only at night and have only been in August and September, as far as we know.
I contacted a company about the mattress detector, but they no longer make it.
My caregiver is my family. Nobody should have to pay a fee for devices like that especially somebody like me now thankfully, my seizures are under control. I don’t have them 24 seven around the clock like a lot of people would.
How did u get it under control?
Thomas Warken I have been having tonic clonic seizures Sence I was 2 years old and now I am 62 years old and I could use that watch
Po. 666 Falher,alberta,Canada . Here we can’t get that watch
Why does everything rely on a subscription basis? We are talking about someone’s life potentially and all I hear is… “How much money can we make?” 😡
I just don’t trust the technology, it’s still in its infancy. This reminds me of ‘Dragon’ voice recognition software, you have to spend hours teaching it to work for you specifically.
Where can I get one of these watches from??? I have Temporal Lobe Epilepsy
Good morning Dr. Omar thank you for your effort.. I want to buy a watch for my daughter she diagnosed a general epelipsy, but I can't afford the price 😢 I have no work and my husband he work as waiter. I wish I am the one lucky to have this watch..🙏 I'm from Philippines.
Thank you.. Yes please sign up once the link is active tomorrow
I live in Sri Lanka and my cousin told me about this watch yesterday. How much is this watch and how can I buy one
If you would like to make a consult with Dr Omar Danoun, age 16 years and older, please call or email the International Patient Services at Henry Ford Hospital and get your appointment if you are outside the USA: Office Hours: Eastern time 8:00 am -5:30 pm Mon-Friday, excluding holidays
Phone: +1-313-916-8443
Email: InternationalPatientServices@hfhs.org
In USA call the clinic
www.henryford.com/physician-directory/d/danoun-omar
Doctor, any wearable devices to detect focal aware temporal lobe epilepsy in a Batten syndrome patient?
Thank you Doctor, great information.
I am from india and I am living with epilepsy from 20 years, I just want to know how can I get this machine in india ?
She said it’s called Empatica watch, also known as Embrace.
Thank you so much for all this info. Fantastic. 😊
I'm getting my VNS DEVICE FOR MY SEIZURES
My brother have been sick of epilepsy since 17yrs and now about 45yrs old ... what can you say?????
The apple I watch se will detect when you fall and if you don’t move for a second or don’t respond it calls EMT for you. It’s built into the device do there’s no subscription fee.
I was having seizures falling down I hurt my head and leg
any idea if this works well for hypoglycemic seizures? i have hypoglycemia unawareness from 30+ years of type 1 diabetes and frequent hypoglycemic seizures with sometimes prolonged respiratory arrest. also, does american health insurance cover this?
Hi! I am Kelly and I am from Paso Robles, California and I am a 38 year old mother who's child feels the need to be my caregiver then on her studies.. I have been going through a wide range of different types of seizures since 2015 ( each type is debilitating in their own way, meaning the side effects vary). Doctors are still trying to understand the cause and the sudden onset so late in life. I haven't been able to work since 2018 three jobs I had before that I had been let go from due to the seizures and the complications of having them so often. Unfortunately there are some that I am unaware that I even had one. And the doctor always asks me so long they are. All I can tell him is I don't know so I need to get one of these watches
Hello hope you are well.. my son is 8 years old.. It's been 3 years since he was diagnosed with epilepsy and the doctor gave him epilation twice a day…but I don't believe that it is the right medicine because every month there are 3 epileptic episodes..😢 what do you suggest me to do?thank you so much
I have JME, and most of my seizures are myoclonic jerks. They are super short, so the watches don't detect them, even when I fall. My medicines don't work and I have a DBS. I am hoping the Nautilus study is effective as it targets a different part of the thalamus than DBS. If there's a watch or other device that will catch the myoclonics, that would be great, too. I have already had two different models of VNS and am not currently eligible for the RNS until Nautilus gets approved.
Thank you for the great information. My 7 year old boy has just been diagnosed with Epilepsy and would love to try using the watch for seizure detection. Thank you
Slam Dr Omar I just want to say thank you for all the hard work you've been putting I would love to meet you at some point
I appreciate that
Can the Seizure Detection Watch help control or stop a seizure?
Hello Dr Omar im glad I found your videos. I’m trying to help my adult son looking for information about his epilepsy Seizures. His seizures are only when he’s sleeping and I haven’t find any solutions about an specialist. They usually treat him as psychological problems instead of seizures every time he’s hospitalized they remove his epilepsy medication and he has his seizures back. I need to find a specialist to take him. I don’t know if his seizures are traumatic ir heritage.
Seizure detected watch .....is it available in india?
Embrace 2 is no longer sold to US residents.
Someone tell me where will I buy this embrace
I have woken up at school or wherever and been told I had a seizure and I’m like no, i didn’t! 😂
I used have seizures in my sleep due to Electricity in my brain and I used take a medicine called Keepra.. Now I no longer have them
How did the seizures stop. What was your solution because I really want that for my husband
@@andreawright9749 I really don't know I was young at that time
I forgot to add that I have had EEGs that DO show seizing andddd in have been in the icu where I had three gran mal seizures back to back within 2 days! After failing down stairs! Andddd I was in such a crazy postictal state once I thought last year that Ronald Reagan was still president and that I was in high school and I cried when they mentioned I had kids because it didn’t make sense to me when I thought I was only in high school :(. ( I’m now 52) …. Is this possible to have more than one type of seizure due to two different head traumas ?
Yes
I know you cannot diagnosis on here, but with a teenager who started her seizures 3 years ago at 13, has autism and anxiety increased due to seizures, is verbal, was placed on lomictal. Breakthru seizures (45 sec) during menstrual period, and sickness, perhaps with lower immune system, anyway, she is at 8x25 every 12 hours, and she experiences what seem to be silent seizures and moments (15-25min) where she feels like one is coming and she loses almost all motor control, but stays mostly conscious. We are now backing down to 7x25 every 12 hours, and neurologist is considering Keppra, but i am not in favor because her moods, plus autism may change her mostly happy 8 yr old stuck in 15 yr old body outlook. Any thoughts?
Hi, my son has generalized epilepsy and Autism. He had a med interaction between with Keppra and Lamictal. It is a rare interaction but he had it. He was hospitalized May 2023 from the breakthrough seizures and med interaction.
Maybe your daughter is in the same kind of "rare" interaction boat?
I’m Daniel from South Australia and I’ve had epilepsy since December 1979 when I was 15 months old.
I have nocturnal, absence, generalised focal and tonic clonic seizures but I’ve tried every anti seizure medication since I was diagnosed and still they’re not controllable plus no Epileptologist or Neurologist has been able to find any cause of my seizures so if possible could you please let me know how I can get one of those seizure alert watches (I also have a dejavu aura normally a second before my seizures).
If you would like to make a consult with Dr Omar Danoun please call or email the International Patient Services at Henry Ford Hospital and get your appointment if you are outside the USA: Office Hours: Eastern time 8:00 am -5:30 pm Mon-Friday, excluding holidays
Phone: +1-313-916-8443
Email: InternationalPatientServices@hfhs.org
I wish that were true. Unfortunately I've had one and the watch didn't do me any good. I fell this past April in my living room and was told I have a concussion. I was alone. I live by myself. My parents were not notified. I had the Embrace 2 watch. I got ripped off
Sorry to hear that
Dr. Omar Danoun my wife Ayesha has been having seizures once every three months. I found your videos very knowledgeable and watch them regularly. I am from Karachi, Pakistan.
Glad to hear that
Thank you, my 5 year old daughter is suffering tonic clonic seizures day and night. We aren't sleeping. This video has helped and I will be purchasing the embrace 2. 👍 Thanks again
Welcome!
Have you ordered it? What has her epileptologist and neurologist had to say? My son is 6, had epilepsy since he was 4. He has multiple seizure types, just had a complex focal seizure.
@@SweetMamaG yes we have the watch now, it is very good and just helps us with piece of mind. I didn't know it needs a linked phone with Bluetooth within 10m but that was easily sorted, costly but worth it 👍 I hope your son is doing ok. My daughter is on epilim liquid now and the seizures have almost stopped luckily .
My son has embrace 2 one of the best.he wears it at school and a phone has to be connected.will encourage parents or anyone with seizures to get it.when u order it make sure you have prescription from the doctor .
Are there ANY devices that can detect absence seizures? Would it be worth getting my son a watch that measures heart rate/pulse or are absence seizures only detectable in the brain?
Currently no
Thank you for this information.
I do have a question.
In your opinion, would this technology help with non-epileptic seizures?
It might yes
How to order it
Otra pregunta tambien mide el nivel de cortisol?
Thanks a lot for your efforts to keep us update on advancement in epilepsy treatment.
You are most welcome
Thanks for good information 👍 from where cane we buy in Toronto Ontario
You can contact the makers on the website.. Just search the name of the watch
Thank you 🙏🏿 Dr
👨⚕️ you saving Life's 💯 can you send me the link so I can ask my brain 🧠 doctor to prescribe me one for my epilepsy sezuire 💯
Please search the name I mentioned in the video and you will find it
The embrace watch can be found on the site Empatica
Thank you Dr. Danoun
There's Times When I Know I'm Not Feeling Correctly & I Just Ly On My Bed Until It's Time For Them To Call Ambulance, I Live With Mother & Sister That That Were CNA's So They Know What's Going On With Me. I Where A Necklace When I'm Out.
Thank you 🙏
Thanks so much doc, your consistency of videos is always great keep up the good work !
Glad you like them!
Are you still giving away the smartwatch, my seizures have returned at nighttime after 30 years of being controlled on Phenytoin. After Phenytoin toxicity im now on Keppra, and finding it very difficult tracking my seizures. Good health.
Soooo I’ve been having seizures since my MVA in 2017 but really since I was 4 and again when I was 8 according to my father but then nothing til the accident. Which I was told can actually restart “ perception the onset of seizures again. My thing is that not ALWAYS do they show on EEG an symptoms are different like I appear to cry uncontrollably but it’s my eyes doing it and I can’t stop, I lip smack or rub my hands, my legs or my head… I yell out every now and then then I end up balling up like a baby after it’s all done truly crying then because I can’t stop shaking- I can’t remember everything although I never like completely pass out or like my eyes don’t anyway but I’m not quite “ all there” if that makes sense? At the onset I feel nauseous and like I have to “ really go “ to the bathroom… does anyone experience that a? Why am I different??? My doctor acts like I’m lying :(((
Thank you for the review, it’s really helpful. My father has seizures every few months, but he also has quite distinctive tremor on both hands. Do you know if any of the watches can differentiate shake from tremor on the hand and real seizure? Thanks.
This is SO cool. Thank you so much for sharing.
You are so welcome!
Hi ,I am from India .My 3 years old child have epileptic seizure. How can i buy this watch.
Is this device alert before seizure
No
My doctor said I do have seizures but different doctor told my sister I am not having any seizures ,
How can i order one of this detection watch
Go to the website of the company and order it
Thank you for all the hard work that you do as a doctor. We are dealing with lgs 27 years and are grateful for all the knowledge that you are giving everyone its priceless. We are going back to the ketogenic diet with the hope it may work better than before.
Glad to hear that
My name is opemipo
I'm a student of biomedical engineering
I want to see the components and the 3d design of this wristwatch please
I hate that you can’t see what the vital signs are when they are happening.
On Christmas shopping on five below Sherman store
Yes i has my Apple Watch with my me I drop my phone in ground
I wish I had a watch to trigger mine they look good but about the price what is it
I wish Im win the watch. My son started with seizures
Please the price of seizure watch
Salaam Dr. Danoun, and thank you 🙏
The link for give away is is still being made but I have a question. You have your Thor's hammer, you have your non-scrambled eggs for brains. But what is that silver metal T-shaped thingy ( technical term I'm sure) on the other side?
Excellent questions... This is my neurologist's secret.. The reflex hammer.. The most essential tool 🔨
Sir , i want this watch ,were is ?
My Apple Watch is 3 is while
Hi Dr, I wanted to apply for the watch giveaway my daughter is epileptic, and I need help please.
Link will be available soon.. Please check back later
Eat Foxtail Millet for epilepsy. Good result. It's Gluten free
This is not approved for epilepsy treatment and there is no evidence that it is even safe
If my teen has been having seizures for years can neurologist prescribe the seizure watch?
Yes
Gabby sosa Sacramento Ca.
I have just received one for my son, but unless our phones are next to the watch, it doesn’t stay connected. Which defeats the whole purpose. I’m a bit confused
Yes unfortunately it has to be connected to a phone nearby to work.. Hopefully in the future will be a standalone one
@@DrOmarDanoun I’m not sure yet if I should just return it and get him an Apple Watch instead. Or maybe we need a phone just for my sons use of this watch. He is non verbal and can not use it, but I’m not sure how else it would work. I wish this was made clear. I’m sure other parents are having this issue too. Using an Apple platform would be so user friendly. Anyhow. I still have to monitor seizures. My son has Polymicrogyria
From last week
I’m not wake uo
soy de México. Saltillo Coahuila. Donde puedo adquirir dicho smatch. porfavor, gracias
Please contact the company
My daughter had her convulsion for the very first time last November 27 2022. Then she was admitted the same day, but the doctor diagnoses is astigmatism because her ct scan is normal. She was discharge the next day. Then nov. 29 she had seizure again.... that's why I bring her to an eent doctor. While waiting for her turn she had seizure, November 30 she had seizure again.... That's why I bring her to a neurologist. And he recommend to heve eeg...and their is history of seizure.that's why said he is going to load her seizure drugs.... Thanks god till then she didn't had seizure but she had maintainance leviteracetam..... Is that mean my daughter have epilepsy but the doctors diagnoses is seizure disorder?
Please review the video on seizure vs epilepsy and Epilepsy for beginners for diagnosis and treatment
Hang in there. This must be so frightening and frustrating. Your doing great. Pushing for help and answers is what we must do. This channel has great video's that may apply to your unique situation. Please also seek parental support groups even if only online. Parents need help too.
Sir I have Seizures in 2018 but when I'm takeking teblet zenreted 300mg valprol CR 500mg 3 years I'm totally OK no problem from 2018 to 2022 doctor call me and stop my medicine but in July 2022 I have TB positive when TB Medicine takeking again seizures is come back why sir please help me but my seizures problem only morning time 30 seconds lite seizures not like others seizures foling down
But right now I'm takeking teblet doctors prescribe me epilex chrono 500 levipil 500 desval er 500 But right now also I have Seizures problem in 1 mount 2days not totally OK TB teblet also takeking TB course complete in APRIL 10 2023
I can't provide medical advice online.. Please discuss with your neurologist
@@DrOmarDanoun thanks you sir
@@DrOmarDanounsir my son has epilepsy since 2013 and now he's 24 years old..taking 3 meds kepretol 2x aday at 500 mg.. phenobarbital 2x a day at 90 mg...25 mg 2x a day of clonotril...but seizure still when morning time please advice me..
How much are Seizure watches ?
The prices are mentioned in the video and you can check out the website of the company
I live London how can get this
I believe they deliver. Ask the company
Is it work for absence seizures?
No only movement seizures
Link for give away isn't working
It will be available soon.. Please check back later
Hola disvulpen cuantoncuesta ?
Please contact the company.. Prices are mentioned in the video
Is it save for 5 year old children to wear the Seizure Watch?
Yes no problem
How will I pay this epilepsy watch
How distributive is the rns to the brain
Does not disturb the brain. Full details in the video on drug resistant epilepsy
@@DrOmarDanoun it’s crazy how a foreign object doesn’t bother the brain
Did anyone win the watch?
No not yet. Still there is a chance
@@DrOmarDanoun already put my name in. Would be interesting to see how this watch compares. My galaxy 4 sends everyone a sos when my heart rate falls below 40 for over
5 minutes. By the time they get to me I'm doing the funky chicken . It would be interesting to see how long after my hr falls I start dancing in my sleep. It's always in my sleep . Makes a person afraid to go to sleep. But...... 1000mg of Keppra 2xs daily have put a dent in them and the funky spiky things on my frontal lobe eeg has made them quit saying they're all in my head.... get a good bash to the left forehead and you too can get a TBI, otherwise known as a gift that keeps on giving..
@Dr. Omar Danoun well, I am sure there are probably people who need it more than me. I did download a couple of the seizure apps on my galaxy 4 but they were either to sensitive or not sensitive enough so I didn't find them worth the membership price. My dog is an excellent seizure monitor but he weighs 120 lbs and I'd rather not have his big butt jumping on me all the time. I've been to Cleveland clinic, UK hospital, UC cincinnati. Big hospitals are good at treating Zebras, but suck at people skills.
One comment I will make about the embrace 2 is that the band sucks and it has sharp corners. I will never fault the damn thing’s sensitivity, but even when the watch is in your pocket or a bag while going down the highway, it will still go off
Thank you for this awesome video! My son was a late teen when diagnosed. I bought him Embrace 2 when diagnosed. Our Epilepsy specialist had not heard of it, and was curious to learn of the results. My son complained it was to sensitive to the video games. We also tried an Apple Watch with the seize alarm. After watching this I think we should try the embrace again.
Thanks for sharing!!
I had the same issues when my child was younger. While gaming they shake their has so the answer - FOR US- it was just to switch to the ankle ONLY while gaming. My child has tonic colonic seizures and we use the Embrace2.
Great idea!!
@@7466ypbhow is the embrace working for you guys? My son was just diagnosed we are thinking of getting it .
thanks for making this video. I was debating (and my partner was really pushing for this for safety) to have a watch to not only do this but also remind me to take my pills (i only have tonic clonic seizures and can have seizure freedom if i take my pills correctly). An apple watch seems best for this but i never knew there was an app for seizure detection! I have my seizures mostly at night and rely on feeling sore to know if it happened so i sometimes fear that i miss some (since i want to be able to drive so knowing i am truly seizure-free would be comforting)
Excelente video!! Tengo epilepsia bilateral con crisis mioclonicas, fui mal diagnosticada por años... hoy en busqueda de un smartwhatch que ayude a sobrellevar la enfernedad.
Gracias por este video!!
Glad to hear that