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When I have an aura, I get hot, my heart starts pounding with anxiety, I feel scared, like I need to get somewhere safe asap, and it's hard to talk or stand. I get dizzy, and my vision gets blurry. Thank you for these videos they are very helpful!
The racing heart with need to get somewhere safe . Like I'm gonna die, but if I get away I won't. But I never do. I always wake up somewhere, where I wasn't before. Very scary. I hate even thinking about the thought. It's like it can drag me into the sezure
I don't just get poundings in my heart, I would first have a strong shock in my heart then only would my heart be pounding extremely fast. I also have the other feelings aswell, and it is a scary feeling. I wouldn't ever want anyone to have these feelings, not even my worst enemy. I have to say that even when I wake up from a seizure, I feel like I have gone back in time, like I have been sleeping for years and my body would feel numb, almost like I am awake but I'm still sleeping. Like I'm in a dream world, even though I do recognize the world I'm awake in. The worst feeling for me is when I get shocks in my heart and it starts pounding extremely fast. It's like a feeling that you are about to die, but over the time what I have learned to do to help my shocks in my heart go away, I say in my mind "No". That's all I say, and it goes away, it's actually amazing how that works for me, because if I don't say no, then I get the shock in my heart and my heart starts to pound extremely fast.
I get deja vu, I tell my self,I’ve seen this before, then I get worried, and my hearts starts pumping quickly. Sometimes I feel like I’m having a panic attack. Also, my vision when you walk towards a mountain, it looks like it goes further away from you, I close my eyes, relaxing and I start to see my vision getting longer and it’s SCARY
I get tingling all over, anxiety fear sets in, then the bells or ringing and dejavu my body goes in a sort of video game mode...I have to male the right choices always end up praying
My aura could be called deja vu, but it feels more like my mind is entering where dreams are made. I can make myself have a seizure if I focus on the dream I was having just after I wake. I just get it over with while I’m still safe in bed.
I also have deja vu's before my seizure as well and try to focus on something else but the seizure still happens. However, mine comes if I don't have a dream. So when I wake up and didn't have a dream, I get scared throughout the day.
Exactly and when I get a full deja vu it's fucking scary. Mine starts with hyper awareness, chills, then hot followed by deja vu feeling like in a dream like state, and when it gets to the point where i get disoriented and I'm deja vu mode+ the full ass the memory is affected and you can't remember who you are or what is happening and you go in and out of consciousness ❤❤
I have all sorts of auras, sometimes none at all. Actually, a car accident is what led to my diagnosis. Doctors were blaming it all on anxiety. Sometimes I'll start sweating profusely and feel jittery, can't think or focus. This usually leads up to a metallic taste/lightheaded spell. Other times I can actually feel the electrical current move from that taste to smelling that taste, following by nausea. The current is not painful, but I can feel the abnormal bursts of current travel. All brief. I had an unusual aura back in August 2022. I was walking down the stairs, about half way, and froze. I knew something was going to happen, and it's as if I was being instructed to make a decision. Do I want to try to run to the bottom and hope I make it or sit down? Neither was really safe. I was going to try running, but too many milliseconds had passed that I decided to sit down on the stairs. I can even remember sinking into the step. Some sleep seizures will wake me up, have me stumbling through the hallway to the bathroom. I'll feel disoriented. I often go downstairs for a bit, and if it continues, my head will drop. Medication reduced those episodes. My favorite ones are when it feels like the universe is honing in on me, almost hugging me. Everything looks crisp and warm. The greatest kind of aura. Only one of those.
I had a focal seizure at work and woke up in the hospital. All tests came back clear. I researched my situation and realized it wasn't my first seizure. I have had these auras for longer than I want to admit.At least I know now I am not going insane. It's very scary.
Friday at dialysis this happened they said I was stomping my feet and fighting I woke up in the hospital test came back clear my family think I’m reading to much into it I knew I wasn’t crazy
After my 4th tonic clonic seizure my memory has been in shambles. Very old memories feel like they just happened, other things i forget within seconds/minutes, asking partner same question, telling the same story etc. The auras you refer to, I feel like i have been having those multiple times a day since my last seizure. My neurologist has upped the medications a week ago after they saw on EEG that I have every 20-30 seconds epileptic activity. I am guessing these are the auras i am also having frequently? I have been feeling lost in the overload of information . Feel l dont know what to ask or share with the specialist to help me feel more safe and secure in the treatment. These videos have been helping tremendously though. This one in particular is at the best timing moment, gave me a sense of validation and probably more knowledge then my own neurologist gave me. Thank you Dr Danoun.
I'm actually pretty grateful for my auras because I see them as warnings to get down and tell someone to call the number on my bracelet, NOT 911. They're generally around 10-15 seconds and feel like a pulsating dizziness.
It makes me feel good hearing someone say they are grateful and understand the benefit of these. My seizures come on instantly with no warning at all. I’ve injured myself so many times, even crashed a car once. A few weeks ago I woke up in a pool of blood on my bathroom floor with my front teeth broken. I’ve actually had to have my teeth repaired twice now due to falling and busting my face. I wish so badly I had some sort of aura so I could get down or warn somebody. I hope everything is going alright with you and you’re seizure free, this is a hard condition to deal with, we’re in this together ✊
@@nathanlaney1542 Oh I'm so sorry to hear of your dreadful seizures-tonic clonic I assume? Bless your dear heart. I wish you well & hope that you can find a med that works well for you & boots those seizures in the butt. 😥❤️🩹
I have auras about once a week or so. Normally there's dizziness, a confused feeling, and my eyes go in and out of focus. But when it proceeds an actual tonic clonic seizure, the eyes going in and out of focus, as well as the confusion are much stronger. The last seizure I had (I don't refer to Auras as seizures), I was in the grocery store in the cheese section, trying to figure out which was the best deal, and first I realized I couldn't do the math to figure out which was the best deal. Normally I'm very good at math, so this was confusing. Almost immediately, my eye focus started going in and out very strongly. Once this happened, I knew it was coming, I knew that there were people around me, I thought to myself: Oh no, please not now. Next thing I remember, I was in the ambulance and these medics were asking me questions, that I couldn't answer. I must have had another seizure in the ambulance because I had more lost time, because the next thing I remember, I was in the emergency room. It's so disconcerting. I just wish there were reliable foods or herbs or whatever that could help control seizures. As it is, I'm on Aptiom and Briviact, but I would LOVE to get off those meds.
It’s a low carb diet Tim stick to a low carb diet this was used to control seizures in children as far back as the 1920s and it really works! Look into it thanks for sharing and good luck 👍🏻👍🏻👍🏻
I've dealt with a seizure disorder since around 2017 and when I get what's known as an aura, sometimes also known as an out of body experience or feeling of dejavu it makes me feel as if I'm out of my body but feel paused to reality. A feeling of zoning out but also feeling unattached from my physical form. About 30 seconds later is when I usually go down
Best explanation I have ever heard in my life, thank you so so much! Thank you for covering the vast array of symptoms, I have experienced every single one and it’s hard to explain to people that the symptoms are not the same with each aura, yes there are the common ones for me but there are also uncommon ones I’ve only had a handful of times. Your description of stomach pain is especially helpful, I wish doctors knew more about how bad stomach problems can be with epilepsy. Also very impressed with the way you described what feels like a movie flashing in front of you, that one was the most difficult for me to describe. It was like déjà vu but like all I could see was a flash of a memory I didn’t remember, but like my view was covered completely all of a sudden by this “movie”. This is so helpful and I wish every teacher and employer would watch this 💜
Ive had epilepsy for 25 years and im amazed how much the symptoms can change, i used to have deja-vu but it changed to ones of strong fear and now I've also started over the last 3 months to smell unbelievably strong smoke! Thanks for all the info you've provided its great to hear more details.
@apinhmi I can't believe we have people like you, and they're allowed to vote! Tell Jesus to teach you how to spell seizure as he's not doing a very good job!
@@christianwatson2032I take 300mg of lamotrigine a day, 350mg of topiramate a day, 8mg of perampanel in the evening and I have an emergency medicine called buccolam
Has anyone here experienced getting trapped within your head? as in you start having intense thoughts, and all of your external focused is immediately pulled internally. To the point where you are nearly sleepwalking or driving you have to pull over til you can get back to reality. And head is cleared! Like you’re being pulled into your dreams or mind space only!! he didn’t quite mention what I just described anyone else notice this?
I have them lol it’s like auditory hallucinations or something.pretty scary yet helpful for me because i can tell people around me that i’m about to have seizure and lay myself to the ground or go to a safer place all within 15/30 seconds.
I ignored my warning aura. It kept getting stronger and I was afraid but still ignoring it. It took my first ever hallucination, Yoda, dressed in Ewok garb, really mad, telling me to take my med & get into bed, NOW! I did but it cracks me up the lengths my subconscious went to in order to make me listen.
I get the feeling of my stomach turning over, a strange metallic taste in my mouth and a distorted view on reality causing me to not recognise where i am
So sorry you're suffering in this way-I've been there, but since May 2021 tge neurologist prescribed me lamotrigine and I reached a level ( 200 mg bd) where so far it's kept the lid on my seizures. Nice not to be terrified & screaming & then waking up with a chunk out of my tongue & feeling as if I've had a fight with a rhinoceros. I hope that you can find a med that helps keep your seizures under control 😰❤️🩹
It’s called Jamais vu. It’s the opposite of deja vu. It’s scary as hell. I get the feeling I’m some place I shouldn’t be and there is someone or something that doesn’t want me there. Impending doom
Sometimes it can be hard to explain having auras to others who may not know much about epilpesy and auras themselves. These videos you are doing can teach those who may want to learn about it or if they have partners who have epilpesy themselves can teach them too know what he or she should do. To my own family at times it hard to explain the feeling they do see changes when I've had grand mal ( Tonic clonic ) fits/seizures to this day my family hate seeing me have seizures because they can't do anything while in one other than make sure nothing in your way by your mouth other things too. I first started to have epilepsy at six years old at first they didn't know what was going on with me after a number of tests I was diagnosed with were pulled out of mainstream school to go to a school who could deal with everything. One or two of the worst experiences I've had fighting for my own life my own fits nearly killed me.
Wow! Between the video and the comments I feel so validated. I’ve had some of these feelings not realizing they are an aura because I don’t usually have a seizure after them but I am Epileptic
Exactly dude I always thought my epilepsy was gone now, but everything in this video is still going on. I thought they were normal until I saw that the people in the comments were just like me
Thank you for this video. I have bipolar 1, PTSD, panic & anxiety disorder. I’ve been having horrible episodes lately of zoning out, flashes of lights, tingling, etc. my new dr is sending me for a MRI to rule out seizures. I feel so much better now getting a doctor that’s actually listening to me.
I live in Arizona, driving laws here allow you to drive as long as you have auras of sufficient timing which means that if you have an aura, you still have enough time to pull over and stop your vehicle before the big one hits. It's amazing how every state differs on driving laws
@@frankw3545 I live in a very small town in central AZ with just a 2 lane highway unless you drive atleast 1 hour north or south to get to a bigger city. Unfortunately in 2019 I was driving in wickenburg az and had a grand mal behind the wheel. Thank God my family wasn't in the car and no one else but a brick wall got hurt.
You better be lucky you’re not in California. They’ll steal your license if you even pass out!! Arizona has good driving laws for people with epilepsy.
My auras are one of the most horrible feelings. I feel fear, hearing music or voices but can't repeat them, dizzyness and INSTANTLY I lose apetite! I would feel depressed the day after. They were diagnosed as depression and anxiety. Accidentally, I found out I have epilepsy auras showed on EEG, left temporal lobe.
I had a few blackout suspected TCS. I take anti seizure meds for chronic migraine. Im now off road and on watch in case I pass out again. I have the same experience. I feel depressed after the migraine and have bad nausea. I'm 5 stone 9 because of it.
I have auras where one side of my face gets cold and begins to go numb. It gives me just enough time to lie on the floor, couch, bed, etc. I always have a cushion closeby just in case to protect my head as I have tonic clonic seizures. Thank you so much for your enlightening videos and for bringing awareness. Blessings
For as long as I can remember, I've had what I would call deja vu attacks (intense feelings of deja vu with nausea), and I had to stop thinking and doing until it stopped. It wasn't until 2018 that it led to losing my awareness (which I wasn't aware of), and I was told I was drooling and appearing vacant. This led to my diagnosis. It's strange to look back on it now and realise they were seizures, and I always had epilepsy.
I used to have it before every epilepsy seizure, and I caught on and used it to warn my parents and it worked sometimes. I was cured 14 years ago by brain surgery, but I still have the feeling sometimes, I did just now. But that's all that happens. It only lasts a few seconds. I've also noticed that it only happens if my sleep schedule is altered, like having to stay up too late, or even sleeping too much. So I have it under control for the most part.
This is how I feel every time a seizure starts: I first notice a small red dot up in right part of my eyes. This red colour then spread all over, and I get a weird kinda good rush, but still a bit scary feeling. The best way of describing this feeling is listening to the background sounds in The Beatles's song "Tomorrow never knows" with the volume turned up to 11. This lasts about 30-40 sec, before "the real" seizures appears. Can take hours before I'm back.
I have auras regularly , each month with my cycle . Since starting ketogenic diet my auras have been much less intense and I feel much better mentally and physically . I have gone from a size 20 to a now size 14 and my mental clarity is much better too.
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I get a unique smell I can’t describe. Hot. Drenched with sweat. Deja vu, and viewing myself from outside, with shifting in balance and perception. And reoccurring memories. Sometimes I have to go on my hands and knees. It’s all over in about 2 minutes. It’s worse if I’m sleep deprived.
I get covered in gooseflesh. Especially my face when it's happening. That how my family knows it's coming... Goosebumps on my cheeks. It's so terrifying. Feels like deja vu and then I feel it in my stomach and goes up to my head and it's like being injected with terror... It's scary.
Hi Doctor, Good morning. Your videos are so helpfull and really great job ❤ Iam from India, aged 49 years, male. I have focal seizure from past 28 years. Since from 18th age. Now iam taking medicine as per Doctor's advice 1. BETNOVYL - 100 MG. during night before sleep 2. Freizium - 5 mg Still I face 6 days maximum seizure in 30 days. That means every month im getting seizure atleast 5 to 6 days , around 10 to 15 times in a day and each time 5 to 10 seconds. What should I do further Doctor? Is is is Serious or curable? I don't have any injury in my brain. EEG tells left side in brain triggers seizure. If u can. Pls advise and support me sir 🎉🎉 🎉
I get auras somewhat infrequently. Sometimes multiple times a week, other times once every few weeks or months. Usually deja vu, sometimes anxiety, sometimes it's a really really weird spacey feeling, and sometimes it's sudden stomach sickness that goes away after a few seconds, sometimes I'll be talking and stop and stare into space (this one more often with alcohol use) , if very excited I tend to stutter and its sometimes accompanied with repeated movement. I also will get sudden intense ringing in my ear that is not related to sitting up too quickly, I used to have that more when I was younger, especially when trying to sleep. Interesting, no?
Thank you for this video, I haven’t had one in a long time, but in the shower last night I all of a sudden had intense Deja vu and started remembering an old dream from years ago (I don’t remember the dream itself now, just know that it was OLD). I remember hearing some repetitive song too and then when I stopped spacing out I was light headed and nauseous. This video helps me get a starting point when I speak to my doctor 😬
I have been having "episodes" like this since about a month ago after a bad flu and have gone to the ER all tests normal, when i came across focal seizures it is the closest thing that explains what i have been experiencing. I'm learning what seems to "trigger" it, usually after a long day or if i haven't eaten or drank enough.. I'm not sure what else it could be but what some of you have described is very similar to what I have felt.. The first time was really bad i felt this feeling inside my "center" abdomen getting bigger and bigger (when i couldnt find my words as it was happening i kept saying "it's going up"), my muscles went weak for a second like i got really heavy, covered in sandbags feeling, my throat went tight, the back of my neck went really tight (and does each time i feel it) strange sensation in my nose like it was full of smoke then i felt like an electrical storm in my head then it progressed to these strange sensations coarsing through one side of my body (then later as i had another it switched sides) i felt like liquid fire rush through all my nerves and like electricity flashing through my nerves after the head and i got really hot, shaky and clammy.. i got a rush of intense fear/anxiety go through my stomach like rush through me out of nowhere.. it faded away.. then later got another and the other side started up.. i had several of these over a few hours, i tried eating which seemed to help after a while, they eventually stopped... ever since then I'll be fine for a couple of days then start feeling this strange sensation in my stomach/throat before it would happen.. so since my sodium was low the first time and my sugar was low another time, i figured not having eaten as much and being tired after most of the day has been triggering this somehow.. i have an appt with a neurologist soon.. i don't know what or why this is happening but likeni said started after this bad flu, they had me on a couple meds while i was sick, a couple of them lower seizure threshold.. but interestingly enough one of my meds IS an anti-convulsant! when i called for help the first time i knew it was coming from my brain i kept saying it's in my brain. was hard for me to find my words properly until it would pass.. I'm really worried, have looked up so much on what this could be or why but reading some of the experiences on here seems so familiar to this... sometimes before it happens I'll get tingling, too.. i can always tell just before it happens..
Lord, have mercy! Yes, if that medicine states "convulsants." It's definitely pertaining to seizures. I've found that sleep deprived, low blood sugar and dehydration. Can and in fact does cause seizures. Every time I've mentioned dehydration to the doctors. They dismiss my claim because it's uncommon. My daughter was not born with seizures. She started having them at 10, out of the blue. But she's had every immunization. Plus she's been on psychiatric medications too. A lot of meds state if you stop this medication. It can cause, this side effect. Her seizures stared off as 1 every 2 years. Now most recently this year it's been 1 every two months. I always watch her behavior and ask questions to try and pin point what was the onset. While doing her most recent EEG test. The neurologist actually believe us. I said take her off her seizure meds and no water. The doctor suggested they also sleep deprive her. On the 4th day of inpatient hospital stay. I woke up to her having a seizure, she went on to have three more. She was diagnosed with focal awareness seizures. She too has had an aura. Most times it's ear ringing, anxiety and fear. It has taken 8 years for her seizures to finally get recorded on that old EEG test! I cried like a baby about witnessing the whole situation. She have not ever had more than 2 seizures in a day. Her first time having a seizure she had one back to back. I wish it would stop, I'm on a quest to get her cured of seizures. I've know two people that have died from them. The doctor increased her medication Keppra 750 mg. Once in the morning and once at night. To 2 in the morning and 2 at night. I also just found out a few months ago that Wellbutrin was an onset to seizures. The pharmacist that we started going to told us that. And it was prescribed by her psychiatrist. Her last seizure she had this Monday she woke up at close to 6 AM. I kept calling her, she didn't answer me. I watched her walk from her room to the kitchen. I seen her reach in the medicine cabinet for her seizure meds. I didn't hear the bottle rattle with pills. I then didn't see her, I jumped out of bed. And stood at the bathroom door and said, "hey you didn't hear me calling you?" She was looking straight ahead while on the toilet using the bathroom. She made a terrible moaning noise. I said oh Lord, you're having a seizure. I then wiped her up and placed my arms under her armpits. I begin to attempt to lift her off the toilet. She was dead weight! Her limbs and went weak. At that point she was non mobile and verbal. I flopped her to the bathroom floor. She was so heavy I couldn't drag her out of the bathroom. She was stuck between the door frame and cabinet. Her head begin to hit the door frame. I moved her over and her convulsions caused her feet to kick and jolt. At the bathroom cabinet door frame. I was so upset and scared. She begin to vomit and immediately after the episode I wiped her mouth. She went into this grizzly bear deep sleeping snoring sound. And she rattling the saliva and remaining vomit in her mouth. The episode started at like 6 o'clock and she came to at 6:12 AM. I took her to the hospital afterwards. But by that time her vitals were back to normal. She was back walking and talking. She did catch a cold from being caught in the rain a few days before. So the doctor summed it up to viral infection (cold). However I mentioned 14-16 days prior she received a required vaccine meningitis and tetanus shot. I read that the meningitis shot can cause seizures. But of course the ER Neurologist brushed off my claims. She said some people just have seizures for no reason. I'm like what?! I refuse to believe that! It's a reason! It's just not everyone knows why. Illnesses are not normal. This is no way to live. (I apologize if pieces of the story is all over the place. I'm typing this from my cell. It's giving me problems. Plus it's merely 4 AM eastern. Anywho, I would love to travel to a recommended Neurologist who specializes in seizures. And aims to find out why and how to heal the individual.)
I hear a noise I can only explain as a ping pong ball bouncing around my brain and smell and pepper bunt toast smell I swear I thought I was going crazy
My aura is an intensive feeling of fear- I am suddenly afraid 😱but I don’t know what I am afraid of. It’s also as though I am reliving these minutes from before. This sudden feeling of panic grabs without warning but after it’s over I can conclude I’ve had another “aura”😅 I wish they would stop but I have no control over them- the medicine does little to nothing.This started when I was 14-I am 70 now so go figure 🤷🏻♀️? This “feeling” starts in my stomach and progressively extends through my stomach until it reaches my entire system and this is frustrating and frightening.
I used to have 3 of those sensations all at once. Intense fear, sensation rising up from the stomach, and hearing a woman’s voice talking about my death in the past tense. Utterly horrid.
I get a sound of what might be called "ear fluttering " which is like the sound and feeling when you are yawning, only I'm not yawning. It happens slowly at first then escalates. I also get a weird feeling, like an amorphous blob that sits just behind my eyes and nose, and it's like brainfog to the max. It makes me feel I need to lay down and soon I've passed out.
Thank you very much for talking about Epilepsy and explaining it so well. There are many doctors (including my own) who are not bothered about their patients. They just give you the diagnosis, some pills and send you home confused. I had no idea that an Aura is in fact a focal aware seizure.
My aura was my eyes loose focus and they start fashing like bulbs flash and then i could'nt see from the one side of the eyes, its dark. Then after that one side of the side started twitching...and right after that twitch i loose conciousness and found myself in the hospital... What type of seizure is this??
It made me so nervous when he talked about flashing lights and then said, “Let’s see the difference.” 😂 I’m glad he just explained it, and didn’t show us.
It is an unexplainable feeling, similar to deja vu but not really the same. And a few other things. I mostly get them on their own but very occasionally they turn into grand mals. I ask someone to get me a glass of cold water. And take small sips. It helps me stay calm while it’s happening.
I get this too. Deja vu on steroids. The Deja vu happens but then it’s like I’m having a vision or something. After that passes is when I get sweaty and flush and panicky. I’m now able to breathe slowly and control that panicky feeling. Takes a few minutes to get back to normal. Sometimes I’m tired for a couple hours after
I just had one 2 days ago. Very intense deja reve, followed by a hallucination of what felt like an old dream, that feeling of being in a dream lingered a long time, followed by complete confusion, blank pale face and a hard time speaking what I wanted to say. Spent 8 hours at the ER yesterday, all tests normal🤷♂️
My Aura’s are like dejavu. It’s like I am living outside my body and can tell what is going to happen next. It feels like my brain and body are not working together and my brain is like a second behind. Its so weird and so hard to explain to anyone.
Thank you, Dr. Danoun for your videos. I've recently started having issues, and am being treated currently. This is all new to me, and your videos have been a great resource for comfort and understanding. It has kept me from being overwhelmed with it, and has also helped communication between my doctor and I. Thank you!
I suspect having some type of seizures however, the doctor says otherwise, I just don't know if I actually believe it completely. Back in October 2020 I suddenly started to get dizzy and pass out several times a day, I could feel in my chest my blood pressure drops and my pulse raise, then I would start to taste it in my mouth at the roof of the month and smell it right before passing out, however, I don't always fall out on the floor, idk how I managed to do that 😳(we may be able to fall asleep standing but we can't sleep standing, without some type of assistance that would keep you from falling down,) I do know that when I would wake(idk how long I was out)back up I found my arms and legs shaking trembling and I had muscle jerks and it takes a few seconds or so to finally wake up enough get to the point of being aware of my surroundings, which is a little weird, and when I get up it's as if my legs want to give out from under me, makes it a bit hard to answer the door when that happens. I also will suddenly just stop talking completely and as I've been told I just stare😳 and they can see when I (come back) by my eyes), I'll also have times where I can be watching TV and realized that I somehow missed a part of the show and yet remain seated, now that's a weird feeling 😹, this is separate from the passing out thing which I've been diagnosed with orthostatic hypotension tacicardia syndrome where my blood pressure goes down to 76/51 and my pulse is usually at 120 at rest, however, I run low to begin with with an average BP between 90 to 100 as sistolic and 50 to 65 diastolic was once 49bpm🤷, I have to go into public if it were to happen in public, lucky for me and since I can feel them coming I just steaded myself and stood there until it passed holding on to the cart. Lol, One day at Walmart I saw this lady with a toy poodle who was wearing a 2020 mask😷🙀 and I went to see her and she couldn't get to me fast enough, not knowing why I just stood there and she climbed out of the cart and up on my chest, as I explained what stresses I was going through when suddenly I felt this huge release of stress it felt like a release in my chest and I could actually breathe. She told me that her dog is her seizure dog The whole thing kinda freaked me out some, I've NEVER felt anything like it before that or since, miss that😔. Did have a neurologist do one of those test with the wires on your head, lol, I can't think of the name of it, lol, yes, I have big memory issues, he said that I had narcolepsy and hypersomnia before I sleep too much, came home from working like 5 hours and went home a took a 19 hour nap, didn't even get up to pee, eat, or feed my furbies(kitties) which I felt bad for but they understand, of course I also have depression and anxiety and PTSD and SI. I wonder with all of the major stress(lost my home to fire in 2018, Lost the home I bought because the seller didn't pay the mortgage, and then I moved in this apartment building where the management harassed me constantly for things , and had actually bullied me into attempting suicide twice 3 weeks apart, and robbed me and I almost died, was intubated and on a ventilator and had liver failure both times, and they also stole like $15,000 worth of my belongings, including all of my toilet paper 💩 🧻 leaving me without any, and took my hygiene items out of my shower, it was a retaliatory eviction, they won because when I was to be in court on the 13th of January I had OD'd on pills for the 2nd time in 3 weeks, first time in December it was over 50 morphine 30mg tabs, narcan X's 2 with no response, and so since I was in ICU they decided to not tell the judge and I lost by default, should not be legal, just saying, took them 4 days to go through my stuff, they read everything they could including my dairy and poems that they never gave me back, then I stayed at my brother's house and that was a disaster because his wife Stole $500 from my debit card and then they decided since I pressed charges on her that they would just get rid of all of my all my belongings including my Ashley sleigh bed and now i have no bed just a mattress on the floor, 😳, Im 52 and have numerous medical issues that make it hard to get off of the floor, not as agile as I once was🤦, took so much of my life's items, he took about $75,000 of my items (5000 beanie babies, approx 20,000 sports cars, etc, too much to mention, and, I've not been able to get through what they have put me through, and they don't care either 🤷 so in that short of time and to make things even worse it's as if it's never going to end, or end well🤷, I now have grown to hate and not trust anyone from this experience 😮😮, I've never been this way or under this much stress, ever, my doctor and I are just waiting for me to have a heart attack or stroke from all of this stress that I've been going through for over this for almost 2 years now, could this also be an issue that can cause some type of seizures ? Can excessive stress cause seizures?. And what about the passing out issue? Thank you for your time and I do apologize for the long message, I tend to feel that I need to explain things more thoroughly to explain it so that I feel someone would get it, know what I mean? You can actually email me with your thoughts if you care to, if not, again thank you for your time and have a great day, stay safe.
In your opinion, can people have an aura prior to a non epileptic seizure. I get this sensation frequently, almost everyday. Majority of the time I feel warm/hot and get pins and needles throughout my body. I experience minor shakes that feels like my head is shaking but theirs hardly any movement. And my eyes flicker and I get twitches of the eye lids.
I don't know how to tell if I've had a full on seizure, but so many of peoples symptoms are so relatable. I'm working with specialists to figure out what is going on.
I only have auras. This video makes me think that some other things I have may also be auras. I have a stabbing stomach pain that happens about once or twice a month and I just assumed it was a mild ulcer. My auras are ringing in my ear, sound changing in my ear, cold rushes in my head, a yellow patch in my vision, tingling on skin, loss of muscle tone that causes me to almost fall and drop some things.
First aura, then stomach woes, the de ja vue, then discomfort in my head. Then lose my ability to continue a confirmation with jibberish and memory issues
My auras are very different . My ears start to listen less and i feel that this things have happened before like dejavu .. Sometimes i control the seizure by breathing heavily.. not all the time.
Hey man, thanks for your videos I really appreciate the information you're giving out, I have started experiencing nocturnal seizures since November 2021 when I was 24 years old and I'm so happy to learn from your videos, what your saying about auras makes me curious - do you know if this de-ja-vu feeling can occur in dreams before a nocturnal seizure occurs? I often feel myself dreaming in a way only describable as how you've explained auras here!
Sir my twins baby of 16 months having infantile spasms since last six months ۔we are treated them with vigabatrin and livetercitam and some vitamins ۔but fits are still happening to them۔we have done EEG and MRI brain۔
I've been getting auras since I was around 4 years old. We didn't know what they were as I used to call them "funny feelings and deja-vu" My Mum and all never really understood it because of the way I was describing it. I normally start off with a headache and then the same smells add to it and then very echoing voices which people raise their eyebrow at me when I say I can hear Donald Duck but that's not my fault, I'm only saying what happens and it's always the same. I have to go to the bathroom and I'll be sitting on the toilet rocking back and forward in frustration trying to make it stop. I also get the same smell each time an aura starts. It wasn't until I was 16 years old that I had my first fit, of which we know. I went to the bathroom and had the aura, got so bad that I passed out and fell to the floor, knocking myself out on the sink. My Mum came into the room after hearing a loud bang and there was me face down on the floor. I was diagnosed with epilepsy when I was 16 years old, I am now almost 36. I get auras during the day sometimes after I've watched certain films. I can't eat roast chicken crisps because that is a smell I get in my auras :( My favorite flavor as well! I don't normally have a seizure unless it's during the night but auras can happen at any time. P.S, I have had a seizure today. Was bloody awful! To everyone here who also suffers from this horrible condition, stay safe and take care.
I get auras every month before my menstrual cycle starts or I might get it at end of my menstrual period, they vary in many ways , I feel a warmth feeling from the forehead to the back of the head, I get dry mouth, I get nausea, I feel a sensation usually down the side of the body, I might smell something that I’ve smelt before or I might see a scene. In front of me that I’ve experienced before . I get these every month like I mentioned, and when these happen, I usually sit down and let it do its thing, because they cannot be stopped . I don’t get these every month of the year , I think it is when the menstrual bleeding is very heavy or the oestrogen is very strong. I am almost in menopause and I’ve been doing ketogenic for one year. Since doing ketogenic the auras have been less intense and less active, I’ve only had one major seizure but I felt the seizure happen so slowly that I was in control of it , I took my frisium to stop it going further . My dog sat on my Lap the whole time, my dog knows my epilepsy well and he sticks by me when these happen
Mine are also monthly or every other month or so, closely associated with my menstrual cycle. It’s weird though because I’ve had these since I was a child before I started menstruating (also, I am not pre-menopausal). It’s pretty predictable though timing wise at this point in my life.
@@Kedolmansame , i have scarring in my brain which could have been when I was dropped as a child and hit my head , I had these auras as a younger child before menstrual cycle, I didn’t know what was happening , i tried talking but nobody listened to me, I was scared etc and I tried to commit suicide which left me with short term memory loss and then the auras disappeared maybe because I forgot them but they returned around when I was 27 when I lost my father and brother and a lot of trauma happen to bring on the stress . So I’m told it’s either from scarring that could have happened either from being dropped or overdose . But they would have seen this scarring when I did overdose and they would have been more attentive ?
@@kyliejacobs6817 WOW. What you’re saying is SO SIMILAR to my story. I was pushed off of a very tall slide when I was 3 years old- I broke my arm and was knocked unconscious. My auras started as a young child, and they seemed to stop during my teenage years. They started again in my early twenties and have been regularly happening around my cycle ever since. Maybe scarring has something to do with it.
@@Kedolman correction, the overdose did not play a part in my diagnosis because all doctors said I would have had seizures very soon after . I didn’t start having seizures again until 3-4 yrs later
And thought I was having focal seizures because my dad said it wasn’t an anxiety attack, but I remember the very FaceTime I had an episode was when I was standing in line in middle school to register for my classes. No, I have a brain disease I was born with, and I remember standing in the line and all of a sudden, my ride I couldn’t see clearly I couldn’t talk. I couldn’t hardly open my mouth. I started feeling like I wanted to gag. I kept smacking my lips because a lot of saliva started accumulating in my mouth and I wasn’t able to speak clearly and the right side of my body started to shake a lot, I remember one time I was at my grandmother house and I had just came in from playing outside with my cousins. I was totally fine and then this episode came on and it was pretty bad. I was trying to get to the fridge raider to see if I could get me something to drink to start what was going on, but I ended up hitting my head and I had a cut on my headfor a couple years then all of a sudden they start back up recently. I had four in one day.
After being seizure free, on no meds, for 8 years, I started seizing. Very short intervals between. My husband said these were different because I was having both tonic and clonic movement's. I vaguely remember in the ambulance hearing "she's seizing again" and later "we're pulling up to the hospital, your going to. She's starting another" This is where my aura story starts. Before, nothing. Then over a 2 year span the following; A horrible smell, 3 different times. Then one day I was working away from the house, on our ranch, and I had deja vu. Then as time passed it kept getting stronger. Every 5 to 15 minutes it would wash over me, getting more intense. I had the butterfly sensation and deja vu only now it was something bad coming. I started walking home ASAP. About the time I was near my porch, again only when I looked up, there was Yoda wearing Ewok clothes. I've never hallucinated before, I knew it wasn't real but it seemed as real as anything else! He told me I was having a seizure and it was going to get worse, I was to go take my valium, which I HATE, and go to sleep. I did it immediately. In 2020, we had no power due to winter storm, after day 7, went to hotel. The next morning, in line for breakfast, deja vu once and I just knew that the next time the "Swiss Miss", an ad character, would be there because she was coming. I went to my room, took my heard. Now I know the difference between deja vu and deja ohshit I'm going to have a siezure. I don't understand, and apparently neither do any of the docs I've seen, understand the changes. No head injury, negative scans etc. Why and how does this happen?
You sound almost identical to me! This past summer at 33 years old, for the first time ever in my life with no injuries, etc, randomly started having these exact seizures a few times a month but mainly when I’m coming off my cycle so I’m wondering if I even may have catamenial epilepsy but there has been couple times it was during other random days of my cycle. A couple months ago, I had my first ever tonic clonic seizure in my sleep which my 8 year old luckily felt since she was laying with me that night by the grace of God… even a few hours later right after getting home from hospital, it happened again. I have a video of my second one on my Tik Tok to spread more awareness on these things. I have appointment with neurology soon too. I was negative for Lupus and Addisons disease which I had possible symptoms of both. Glad I don’t have those! Guess we will see what happens. They offered to start my on seizure meds but I said no, not unless I continue having tonic clonic seizures or even too many of the partials! It’s miserable every time no matter what type it is! Just awful!!!! I’m so sorry to you and everyone else having to live this way not having solid answers can be so scary. Prayers! ❤
@@jessicahampton1991 Please be very careful. Read up on the side effects because side effects can cause additional problems. I hope you don't mind me asking but after your seizures do you feel a desperate need to sleep? The period after the seizure is called the post ictal state. Most people just fall into a deep sleep. However, there's a small percentage of people who wander around. Before we knew about this possibility, my husband would put me to bed. Next thing I'm wandering around the house the yard. He thought I was just being contrary. I tried to explain that I just felt compelled to walk. Now he gets it. The only thing that terrifies me is when it happens, if I'm alone. Only because for about 15 minutes I don't know "when I am" I know my kids are grown and I have grandkids but my brains ability to understand time is caput. I jcan look at a calendar, my phone but it means nothing until I hear someone tell me the day, date and time. Something about hearing it and my time "feature" pops on. Before I'm just lost in time. The neurologist, write down every med you take even occasionally or supplements because the interaction can be bizarre. I hope everything works out for you. If you can, let me know by adding another comment here. Good luck.
You must live in Texas! Lol! My 22 year old son has strong auras with pre seizure migraines, metallic taste, impending doom, and random electric shock sensations several minutes prior to full blown status epilepticus episodes that a total of 3 have ended up with him being sedated and intubated in the neuro ICU and the EEG and all other tests were inconclusive for true epilepsy diagnosis. Next time we hope to get admission to a neuro research center like UT Southwestern Dallas tx.
The part that I hate isn't that I chew my tongue to bloody mush, it the feeling immediately after. I don't know WHEN I am. My husband knows to come if I call him and ask him "When am I ?" I can stare at a calendar til I'm blue in the face, it means nothing. I know I have kids, grandkids, I know how old they are but I don't know where in their life I am. I know that makes no sense, seeing real live, Yoda, I knew it wasn't real, maybe my subconscious just got tired of being ignored! The other thing is I'm not afraid of much, roaches make me embarrass myself, but that's about all. Before a seizure, I am filled with this sudden terror. It makes no sense because seizures don't frighten me but I guess it's part of the seizure. When I was 27, I injured my back. We were buildig a house. My husband would lay out the rebar, stell reinforcement and on my day off of 12 hr shifts in the OR, I would tie the steel and fill feed bags 2/3 full and use our backhoe to move the where he told me to put them. I was 2nd scrub on a TVH, total vaginal hysterctomy assisting Dr Methusela and his older brother. So there were 3 of us between this woman's legs. They were soooo slow. Over an hour without a break, holding two retractors, 1 up, 1 down and bent at my waist and hip to one side, a vessel started bleeding, the dr said "STITCH!" and when I straightened up there was a weird snapping so loud every one heard it and my uuugh. I powered on til the end when they helped me to the ER. This began my hell trip. Prozac had just come out and after all the seminars and pharma bullshit, aplan for back pain was begun. All pts had to go to a psychiatrist because other ydrs didn't prescribe antidepressants. And you HAD to take them. Prozac made me shake, they changed it over and over until I got one that would paralyze my throat then I had to cough to break it. They wouldn't stop. I shook so badly from amitriptyline I couldn't feed myself. Then came Ludiomil. After that things were better. I had surgery that was great. After 4 weeks it was Christmas and I hadn't shopped. The doc said I could go if I didn't drive. So my mother and I are at the mall. My mom sits to people watch while I went to return tennis shoes for my dad. Mama said it was taking a while but she was watching the EMS come into the mall. Then they got off the elevator, looking sise to side she saw nothing. It wasn't until they went right behind her that she turned and saw me on the floor. This seizure was over 15 minutes. Never had one before. A couple months later it was reved from other countries for this reason. They knew but gave it to me even though my brain didn't like them. Years later I had my 6-8 year seizure. Long story short, my white cell count dropped so klow they tested me for HIV. It was the black box warning. After it got lower with each med they tried, I refused. They did this to me because of big pharmas rule. I'm 64 now, my mega seizure was in 13. I was fine til 180ish when I bought 2 horses for my grandkids to ride, i always rode the fresh off them to be sure all was well. This horse wouldn't lope, would not and when I gave him a good kick, he went full on rodeo. Ive come off since childhood in every imaginal way but this. My grandkids said " Granny yoy flew up so high and then landed on your head. You then had a seizure. I refused hospital because they were gonna say what I already knew. I had a concussion, at least 2 broken, but not h displaced ribs, later confirmed at regular GP appointment. The story goes on but I won't waste time. Do your investigating about meds not on google and check other countries.
So, I get feelings of dejavu quite frequently. I sometimes feel like time is moving differently. Almost like it's moving in frames. I also have extreme anxiety and panic attacks, strange out of body feelings or like I'm about to pass out and almost like I jump out of my own body. I've never been diagnosed with epilepsy, but I also sometimes get tremors especially in my hands. Not asking for an online diagnoses, but has anyone else had feelings like this?
What about being in dream-like state? Not a deja-vu or anything like that. Straight up a dream. Being in control of your body and thoughts and then brain crashes and next thing you know you are in ambulance/hospital. What causes that?
When I was around age 16, I was fishing at a pond near my house. I was overcome with intense unexplainable fear. I ran home as fast as I could. My mom had me sit down, and then the right corner of my mouth started to pull towards my left ear. I was moving my mouth over to the left side of my face uncontrollably. My head began to turn to the left as well, but my eyes were still fixated towards my mother. She called the neighbor over and he cast evil spirits out of me. I was so gaslit via religion that I am just realizing at age 34 that I have been having seizures throughout my life.
When I have an aura, it’s a warning that I’m about to have a fit seizure, it’s helpful in a way as I know I have around 5 minutes to get to a safe place, time it and put something soft under my head, let someone know it’s about to happen if they’re home and make sure there’s nothing around me that can hurt me. I’ve now got used to it and know for sure that I’ll bite through my tongue 🤦🏻♀️😭 my partner has got used to it too and thankfully he’s very supportive and makes sure I’m always safe 🥰
My auras have varied Sometimes I feel that feeling of ok you’re gonna fall off the cliff brace yourself Or people coming toward me Or some doll coming off a conveyor belt A guy dancing All of them always look like cartoons And several other ones but it takes a lot to be able to describe them
My guy Dr. Omar: do a in-depth video on how to differentiate scintillating scotoma from benign etiologies such as spreading cortical depression vs from occipital epileptic etiologies such as seizure or lesions of the posterior brain that could lead to this experience (bright, rainbow, C shaped, flashing bilaterally). I had this for the first time yesterday but no headache following, the visual symptoms matched migraine due to fortification effect and not circles or round spots that are more typical with aura due to epileptic source / a seizure so it’s kinda odd, considering asking doc for mri but I’m sure he gon say that’s overboard but i don’t care, imma have to throw him overboard if he don’t go overboarrd!
I’m trying to figure out if I’m having seizures or TIA’s. I recently had an episode where all of a sudden I felt like I was on laughing gas/high type feeling and I couldn’t read, my eyes rolled to the right and upward. I kept bringing them back down to try and read (with effort), but they would roll again. My head wanted to fall backward and I felt like giggling and I did a few times, it was hard to stop, even though it did not match the situation and made me feel embarrassed. I felt a buzzing feeling in my body like in my veins, my pupils were dialated really big, my heart was a bit faster and I was a bit short of breath. My eyes wanted to close. I was mostly aware and talking to the person who was with me….but confused enough to not ask them to take me to the ER so my decision making was impaired. Speaking seemed to take more effort and was slower. I was really tired and just wanted to sleep. I was also seeing stars/sparkly lights and I felt some pressure behind my right eye. As far as I know, that was about 15minutes. Then I was doing a drawing task and was very slow and had a hard time connecting lines. Another 15min and I was feeling much more aware and the weird feelings were all gone. I still felt odd for about 6 days afterward. Like I was slowed down a lot, my body and thoughts. I felt a shift back to a more normal level, but feel like I’m not back to my baseline. When I have odd episodes like this I feel like im slightly more impaired each time. I’ve had aphasias and declining short term memory, my adhd gets worse and worse. My neuropsych exam shows severe deficits in some types of memory and this actually happened in the middle of that exam. I did the Rey complex figure test after that episode occurred and he said my recognition portion was severely impaired. I basically had to circle the shapes I recognized from a drawing I saw 30min prior and he said I circled all the wrong ones. My IQ is high so he said it was very unusual and it was as if my visual processing may have been rotating the images by 90 degrees. I didn’t have an eeg, but I have had two random eegs in the past and one at home video eeg and they didn’t show anything. I had a CT 3 days later because I was mixing up my right and left when asked and still felt slow, but the scan only showed that my vertebral artery was slightly bigger than the right, which was not on prior scans. When I tell my doctors these crazy symptoms, they tell me to see psych, but psych told me there isn’t a mental illness that would cause my eyes to roll like that. I’m angry and scared because I feel like they’re ignoring this. I haven’t been able to work. I live alone so I rarely have a witness and I struggle to track these because of the confusion and altered awareness and exhaustion they cause. I notice these are almost always triggered by screens (computer/tv/phone) and I’m hoping someone can help me figure out if there are special glasses or screen covers I could buy to allow me to still use screens so I can work, communicate with friends and enjoy watching movies. I’m applying for disability, but without a diagnosis for this it’s doubtful I’ll get it. The neuropsych diagnosed a neurocognitive disorder, unspecified. I’ve had other odd neurological symptoms like random foot or hand dystonia that I wasn’t aware were happening, odd sensations like water on my legs or electric shocks, I’ve had phantom smells, dejavu, lots of headaches, slurred and garbled speech, ptosis that was short lived, muscle weakness, nerve damage on my thermoregulatory sweat test, positive tilt test for pots, hypersomnia, hypnogogic and hypnopompic hallucinations, (seeing shadows, bugs, hearing a slamming door, seeing a spinning black and white keleidascope pattern, etc), and sleep paralysis, and one time at the doctors office I was staring at a painting in the waiting room and I couldn’t tell what it was. I stared for one minute and the picture finally came together and realized it was a mountain. This has all been over a period of 5 years and came on after a virus and I’ve never been the same. I’m worried I’ll never get my memory back to what it was. I would appreciate your opinion on what this may sound like to you and if I should investigate seizures more….I have a hard time advocating for myself because they just look at me like I’m weird and tell me I have anxiety, but in reality I think they’re the crazy ones. It is not normal to be experiencing all this at 37. All they’ve told me is that I have a connective tissues disorder/autoimmune and autonomic dysfunction. Could they be autonomic seizures because my eyes were dialated and heart was fast? They tried to tell me I was just anxious, but I was actually very calm before during and after. I feel like so many doctors tell women they are anxious instead of actually investigating these serious symptoms. I don’t know what to do if the only people that can help won’t listen. 😢
Oh and I have had the rising stomach sensation and nausea too. Yesterday I tried getting work done at the computer and kept fighting back sleep (eyes closing) and nausea and confusion. I tried to get work done all day and wasn’t successful. I also have two sisters who have had 1-2 seizures before (the drop and shake kind), one of those sisters has 7 children who have all had seizures and fainting (none diagnosed with epilepsy yet), and I have a cousin diagnosed with epilepsy.
I had that head feeling before, feeling like high like my head and arms had helium in them. I felt complete peace honestly. I was sitting in the Urgent care waiting room during one of them and I honestly felt good as hell haha. But I never got any help from any doctors. I have major trauma from medical professionals, especially in the ER. During one of the scariest episodes of my life, I actually asked the ER doctor if it is possible to be a seizure and the doctor told me that it is not possible to be awake during a seizure and not possible to remember it. I tried nicely to be like, are you sure? I'm pretty sure that there are seizures like that. He was rude and uncaring and told me that I'm completely wrong. And treated me like trash the whole time. At that point I just wanted to laugh because it was so crazy. And laugh at myself for continuing to go to the ER, knowing that they will never help me unless I'm bleeding out or have like a very simple thing like an ear infection lol
Just before a tonic clonic seizure, I feel like I’m on an elevator, like when you get to your floor and go slightly up and down. I wonder where that comes from? I get it 3-5 times. It gives me time to lay down, take of my glasses and hearing aids, try to put my arm under my head, and it is just like wow. I have others that aren’t that, but I really honestly like the roller coaster feeling I get randomly. I know that sounds weird but it’s fun even though I know it’s a seizure. 😂 I also get disoriented , nothing looks familiar though I see what’s around me but THAT is scary. Also, auras are great, but laying in an ant pile cause you don’t wanna have one on the sidewalk. 😂 rather that though that concussion. That’s fun too. (Sarcasm, of course)
Frequently, I'm encountering abrupt memory lapses lasting around 10 to 20 seconds. During these incidents, I also experience trouble speaking, a sensation of buzzing or ringing in my ears, and I hear voices (various voices that I can't identify). These occurrences take place several times throughout the day, and I'm feeling extremely anxious about them. Could this be considered an aura or a seizure? Currently I am on Tegral 200, taking one before bed time.
I’ve been waking up startled and scared, the bed feels like its shaking, I spoke to a friend about it feeling embarrassed because we were both thinking that it was a bad spirit in my bedroom, but I don’t want this thought, so was wondering if it may have anything to do with sleep seizures, I’ve also woken with bruises on my upper arm which were not there before bed, I still feel embarrassed even posting this, but wondering if anyone could put light on this for me, thanks
My cat has seizures, about 1 every 2 months and he can’t tell me how he feels but I know it’s not good because before the last seizure he started swearing and before other seizures he will suddenly run through the house at top speed I never understand why until I read the comments written by people who also suffer them thanks everyone that shared their experiences.
Sometimes my body seems to stay in the version of aura-like a repeat of a past event. I don’t get to the point of the actual passing out all the time. This is very frightening for the two minutes it endures-feals I’m repeating these minutes from before but I’m unable to recall from where 🤷🏻♀️-WHY? An intense feeling of fear!
I can relate to that. Weird thing is in my case, i don't know if im experiencing the same events, or cycling through different distance places. Also, i used to assume i forgot what happened afterwards.Recently i was fully alert and realized the experience is just too extraordinary to understand as opposed to faded memory.
am i the only one who literally never gets a aura before a seizure????? everyone else has a strange feeling before hand. I only had a “aura” two times. Every other seizure i had there was literally no warning for it
Ma Dr diagnosed me with Nead even tho ma eeg came back abnormal & i keep gettin fobbed off wen i go 2 drs ovwr ma seizures. Ma auras feel like an all over body like drunk & dizyness before collapsin & then te seizure happens. It starts off as myclonic tonic jerks & twichs then can progress in 2 grand mal. Some have lasted over an hour & half. Ma seizures are affecting ma breathing & they say itz a panic attack wen i no itz not a panic attack its defo a seizure.
My auras are terrifying. Intellectually I understand that it's all in my head, and that this soon shall pass. But it doesn't make it any easier. I have deja vu and jamais vu, sadness, migraines, and a very upset stomach. It's debilitaltating. All I can do is wait it out. At 40, I've been dealing with this since I was 16. The migraines started at 8. The doctors can't pinpoint a certain reason it all started. But most likely it's genetics and childhood trauma that kind of twisted my brain I suppose. I can't drive or work outside of the home. I feel for anyone going through similar experiences, and know that you are not alone. ❤️
Hello Dr. While involved in a playground accident in first grade, 54 years ago, I got a concussion. My neurologist that diagnosed me in 2007 said that is what caused my partial complex seizures. Since onset, my aura was smelling ammonia. My question is, have you ever heard of an Aura changing? I randomly smell maple syrup, even when I haven't eaten any. It usually happens after a stressful event. The feeling of exhaustion and emotions are there just like when I smell ammonia. What do you think?
Just lost my ex husband he was my rock,he had a seizure on 29th May,he was in bed,now I can understand why he was hearing voices,he was seizure free for about 3 years,he was also a bus driver si its just luck it was at night,can i add that im a migraine sufferer,i also get aura's deja vu,fast heartbeat,very similar ti epilepsy,R.I.P,Simon,love you always🇬🇧🦋🦋🦋🦋🦋
Crazy to think I've been living with this my entire life, wondering why I was having such a terrible time trying to keep a job even though I'm nearly 40, and it turns out I've been having seizures my whole life. Out of nowhere feeling like I'm zoning out, body tensing up, noises sounding strange, can't focus, feeling like I need to sit down but can't make my body move, etc. Really want to go for an official diagnosis. But I often lose the ability to speak during this period and then it's embarrassing because people have witnessed it.
I had my first seizure yesterday…felt confused, tingling feeling, nausea and hallucinated voices….almost smelled a weird smell. Got to work felt it again and then I woke up in hospital.
My “Breeze” starts in my stomach and then travels everywhere. Anybody else have that? Is there any other blood pressure or lower heart rate associated with this? I’m so tired of people telling me it’s a panic attack or anxiety. I have had them surfing, cooking pancakes for the kids or just sitting around. MRI and EEG found nothing
I have auras, and not all are followed by convulsions. My auras cause the right-hand side of my body to tingle; everything from my foot to my tongue tingles. My stomach doesn't know what's going on, and it sometimes releases what it's holding. While I am feeling all of this, I hear voices talking about me, in third-person, discussing what might have triggered the seizures. I hear male and female voices.
Have had them for many years an have experienced status epilipticus. Have you every had a patient born polydactyl with two left thumbs? Or any knowledge on the pp21 genome 🧬?
My auras/sezuires changed over the last 3 years .. first year was TERRIBLE, but this last year they have been "weak" ... still not fun when you try and work and get slapped with a aura/FS that changes your personality from normal to apathetic/unforgiving, drooling and eyes rolling. The urge to puke is very real... but a bigger urge to be unpleasant and "remember" something
They said my brain scan after a seizure was "unremarkable" but I've had deja vu seizures & a stroke before!!! & after that I've had two more seizures this may i wish it was easier to figure out what's wrong upstairs💔Its exhausting I've given up trying to talk to them it's like nobody understands here😮💨✨
Is it possible that auras get worse during medicating? I started blacking out for a few seconds, I don't feel anything, I don't move at all..even at yoga class I stayed in the position but started mumbling. I heard my instructor asking me are you ok and I couldn't speak. Only respond with ahammm. As if my consciousness wandered somewhere far... I have been taking Levetiracetam for a year now ( even though I had depression history ). The doctors don' care about that.. :(
When I was a teen I would get hot and see spots for my auras. Now, in my 30’s and 40’s, I get deja vu! It’s mixed with anxiety. I think the same thought. The thought starts out with my ex-boyfriend driving his car to me. He’s rushing to my side before I go into a tonic clinic seizure. My two daughters are surrounding me on the bed asking if I’m ok. Or, I’m in the shower getting ready to fall. If I keep thinking about it, I put myself into it.
I'm not sure if I'm having an aura or a panic attack or anxiety. It goes away after I make it to safety, knock on wood. I had a seizure at work twice and they found nothing wrong. Sometimes I feel like aura what you describe on the video and I'm afraid it could be a seizure or just a panic attack. I don't know
I’m not sure if what I had was a seizure or not since I was alone, 5 years ago I woke up from a terrible dream and I couldn’t move, felt impending doom, and felt a rush of wind zooming towards the back of my head until it sounded and felt like a huge angry bee buzzing in my brain in the back like it had grabbed ahold of my brain and was vibrating it. Never happened again tho.
I am 41 and have been having grand Mal seizures since I was 12. I get auras and I get the seizures at bedtimes and now I get the partial seizures random times during the day. Not everyday but every month. I’ve had multiple brain surgeries and taken multiple different medications that have only made me get more seizures. No doctor has been able to help me. I have actually had less seizures now that I’m not on medication but still have them. I don’t drive or work. It’s not an easy life..
This is so interesting. I was on levetiracetam and after a few years started to get auras in the mornings, but like with my seizures I was aware of what was happening so could get to a safe place, but eventually was put on to Briviacetam and now I’m stable and no more auras or seizures. My auras used to affect what I was seeing and often ot was shelves of bottles or shelves of cans😳 not quite sure I should see these visions but there you go!
2 месяца назад
I've gotten auras for years and it feels like a huge mix of a panic attack and Deja-vu, i feel like i'm watching a scene I've already seen before, and a feeling that there are other spirts and people surrounding me that are from a different universe, and they trying to show me that God is real....
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When I have an aura, I get hot, my heart starts pounding with anxiety, I feel scared, like I need to get somewhere safe asap, and it's hard to talk or stand. I get dizzy, and my vision gets blurry. Thank you for these videos they are very helpful!
I have the ptsd panic 😱 sometimes which is when I feel an aura coming on
I’ve been asking myself ok whose in charge? Me and sometimes it stops
Thats literally everything I feel before I become unconcious. Even though I rather get cold and hot at the same time its weird.
The racing heart with need to get somewhere safe . Like I'm gonna die, but if I get away I won't. But I never do. I always wake up somewhere, where I wasn't before. Very scary. I hate even thinking about the thought. It's like it can drag me into the sezure
I don't just get poundings in my heart, I would first have a strong shock in my heart then only would my heart be pounding extremely fast. I also have the other feelings aswell, and it is a scary feeling. I wouldn't ever want anyone to have these feelings, not even my worst enemy. I have to say that even when I wake up from a seizure, I feel like I have gone back in time, like I have been sleeping for years and my body would feel numb, almost like I am awake but I'm still sleeping. Like I'm in a dream world, even though I do recognize the world I'm awake in. The worst feeling for me is when I get shocks in my heart and it starts pounding extremely fast. It's like a feeling that you are about to die, but over the time what I have learned to do to help my shocks in my heart go away, I say in my mind "No". That's all I say, and it goes away, it's actually amazing how that works for me, because if I don't say no, then I get the shock in my heart and my heart starts to pound extremely fast.
@@angeliqueschamrel6253 I am going through this 😪
I get deja vu, I tell my self,I’ve seen this before, then I get worried, and my hearts starts pumping quickly. Sometimes I feel like I’m having a panic attack. Also, my vision when you walk towards a mountain, it looks like it goes further away from you, I close my eyes, relaxing and I start to see my vision getting longer and it’s SCARY
Yesss exactly how mines be smh
Hi,mine is pain in the chest and abdominal ,eyes twitching,and dizzy,no balance in the body ,heavy eyes open ot by force,and like having à panic.
I have a similar experience. It's very scary!
I get tingling all over, anxiety fear sets in, then the bells or ringing and dejavu my body goes in a sort of video game mode...I have to male the right choices always end up praying
@@joneteldridge9125 same brother
Thank you for explaining this. NO neurologist in the 40+ years I've had has ever explained this to me!
Glad it was helpful!
My aura could be called deja vu, but it feels more like my mind is entering where dreams are made. I can make myself have a seizure if I focus on the dream I was having just after I wake. I just get it over with while I’m still safe in bed.
EXACTLY! I`ve been trying to explain this to my doctors.
I also have deja vu's before my seizure as well and try to focus on something else but the seizure still happens. However, mine comes if I don't have a dream. So when I wake up and didn't have a dream, I get scared throughout the day.
You just described what I have been trying to say
Exactly and when I get a full deja vu it's fucking scary. Mine starts with hyper awareness, chills, then hot followed by deja vu feeling like in a dream like state, and when it gets to the point where i get disoriented and I'm deja vu mode+ the full ass the memory is affected and you can't remember who you are or what is happening and you go in and out of consciousness ❤❤
Closest explanation of my experience
I will get a flash of heat and start profusely sweating. That’s when I need to find safety.
Thank you for sharing your experience
Get no aura for g-mal seizures just folcals & generalized
Same here I can sweat through layers of clothes in minutes it's crazy!
I have all sorts of auras, sometimes none at all. Actually, a car accident is what led to my diagnosis. Doctors were blaming it all on anxiety.
Sometimes I'll start sweating profusely and feel jittery, can't think or focus. This usually leads up to a metallic taste/lightheaded spell. Other times I can actually feel the electrical current move from that taste to smelling that taste, following by nausea. The current is not painful, but I can feel the abnormal bursts of current travel. All brief.
I had an unusual aura back in August 2022. I was walking down the stairs, about half way, and froze. I knew something was going to happen, and it's as if I was being instructed to make a decision. Do I want to try to run to the bottom and hope I make it or sit down? Neither was really safe. I was going to try running, but too many milliseconds had passed that I decided to sit down on the stairs. I can even remember sinking into the step.
Some sleep seizures will wake me up, have me stumbling through the hallway to the bathroom. I'll feel disoriented. I often go downstairs for a bit, and if it continues, my head will drop. Medication reduced those episodes.
My favorite ones are when it feels like the universe is honing in on me, almost hugging me. Everything looks crisp and warm. The greatest kind of aura. Only one of those.
@@sarahjames1806 Does that turn into a tonic clonic or is that your focal seizure ?
It seems alot of us have strange feelings and unexplainable things in between our seizures. Does this sound normal or am I going crazy😂
I had a focal seizure at work and woke up in the hospital. All tests came back clear. I researched my situation and realized it wasn't my first seizure. I have had these auras for longer than I want to admit.At least I know now I am not going insane. It's very scary.
Have you had a CT scan or MRI? After I found out about my seizures, they found I had a brain tumor. I've had two brain surgeries
@@ocorley3124 I had all tests performed and thankfully I was clear. I hope you get through this, never give up.
@ralphdeshon9710 that's great,vthx and good luck to you brother!
Friday at dialysis this happened they said I was stomping my feet and fighting I woke up in the hospital test came back clear my family think I’m reading to much into it I knew I wasn’t crazy
Same bro
After my 4th tonic clonic seizure my memory has been in shambles. Very old memories feel like they just happened, other things i forget within seconds/minutes, asking partner same question, telling the same story etc.
The auras you refer to, I feel like i have been having those multiple times a day since my last seizure.
My neurologist has upped the medications a week ago after they saw on EEG that I have every 20-30 seconds epileptic activity. I am guessing these are the auras i am also having frequently?
I have been feeling lost in the overload of information . Feel l dont know what to ask or share with the specialist to help me feel more safe and secure in the treatment. These videos have been helping tremendously though. This one in particular is at the best timing moment, gave me a sense of validation and probably more knowledge then my own neurologist gave me. Thank you Dr Danoun.
I'm actually pretty grateful for my auras because I see them as warnings to get down and tell someone to call the number on my bracelet, NOT 911. They're generally around 10-15 seconds and feel like a pulsating dizziness.
It makes me feel good hearing someone say they are grateful and understand the benefit of these. My seizures come on instantly with no warning at all. I’ve injured myself so many times, even crashed a car once. A few weeks ago I woke up in a pool of blood on my bathroom floor with my front teeth broken. I’ve actually had to have my teeth repaired twice now due to falling and busting my face. I wish so badly I had some sort of aura so I could get down or warn somebody. I hope everything is going alright with you and you’re seizure free, this is a hard condition to deal with, we’re in this together ✊
I get auras just before I get a migraine... So it gives me a warning to take meds too minamalise my migraine symptoms 😅
@@nathanlaney1542 Oh I'm so sorry to hear of your dreadful seizures-tonic clonic I assume?
Bless your dear heart.
I wish you well & hope that you can find a med that works well for you & boots those seizures in the butt. 😥❤️🩹
I have auras about once a week or so. Normally there's dizziness, a confused feeling, and my eyes go in and out of focus. But when it proceeds an actual tonic clonic seizure, the eyes going in and out of focus, as well as the confusion are much stronger.
The last seizure I had (I don't refer to Auras as seizures), I was in the grocery store in the cheese section, trying to figure out which was the best deal, and first I realized I couldn't do the math to figure out which was the best deal. Normally I'm very good at math, so this was confusing. Almost immediately, my eye focus started going in and out very strongly. Once this happened, I knew it was coming, I knew that there were people around me, I thought to myself: Oh no, please not now.
Next thing I remember, I was in the ambulance and these medics were asking me questions, that I couldn't answer. I must have had another seizure in the ambulance because I had more lost time, because the next thing I remember, I was in the emergency room. It's so disconcerting. I just wish there were reliable foods or herbs or whatever that could help control seizures. As it is, I'm on Aptiom and Briviact, but I would LOVE to get off those meds.
It’s a low carb diet Tim stick to a low carb diet this was used to control seizures in children as far back as the 1920s and it really works! Look into it thanks for sharing and good luck 👍🏻👍🏻👍🏻
@opalescentmica Thank you for all this valuable advice! ❤
Jesus healed people with epilepsy. He casted out their demons that were inside them.
These have been helpful since getting diagnosed with epilepsy I thought I was just going crazy at times
Thank you for saying that, before I had a major seizure I was having auras and I thought I was going insane.
When I have an aura, my heart starts pounding fast, I start hearing voices and feel like I'm losing my mind. Thanks for the video.
I've dealt with a seizure disorder since around 2017 and when I get what's known as an aura, sometimes also known as an out of body experience or feeling of dejavu it makes me feel as if I'm out of my body but feel paused to reality. A feeling of zoning out but also feeling unattached from my physical form. About 30 seconds later is when I usually go down
Best explanation I have ever heard in my life, thank you so so much! Thank you for covering the vast array of symptoms, I have experienced every single one and it’s hard to explain to people that the symptoms are not the same with each aura, yes there are the common ones for me but there are also uncommon ones I’ve only had a handful of times. Your description of stomach pain is especially helpful, I wish doctors knew more about how bad stomach problems can be with epilepsy. Also very impressed with the way you described what feels like a movie flashing in front of you, that one was the most difficult for me to describe. It was like déjà vu but like all I could see was a flash of a memory I didn’t remember, but like my view was covered completely all of a sudden by this “movie”. This is so helpful and I wish every teacher and employer would watch this 💜
Ive had epilepsy for 25 years and im amazed how much the symptoms can change, i used to have deja-vu but it changed to ones of strong fear and now I've also started over the last 3 months to smell unbelievably strong smoke!
Thanks for all the info you've provided its great to hear more details.
Give your life to Jesus and repent ✝️🙏
Read Mark 9 siezures are curable. Jesus Christ is the key. It starts by giving your life To Jesus Christ.
@apinhmi I can't believe we have people like you, and they're allowed to vote!
Tell Jesus to teach you how to spell seizure as he's not doing a very good job!
What meds do u take.. 25 years is a long time you would know alot about epilepsy by now
@@christianwatson2032I take 300mg of lamotrigine a day, 350mg of topiramate a day, 8mg of perampanel in the evening and I have an emergency medicine called buccolam
Has anyone here experienced getting trapped within your head? as in you start having intense thoughts, and all of your external focused is immediately pulled internally.
To the point where you are nearly sleepwalking or driving you have to pull over til you can get back to reality.
And head is cleared!
Like you’re being pulled into your dreams or mind space only!! he didn’t quite mention what I just described anyone else notice this?
I have them lol it’s like auditory hallucinations or something.pretty scary yet helpful for me because i can tell people around me that i’m about to have seizure and lay myself to the ground or go to a safer place all within 15/30 seconds.
Thank you for sharing your experience
Same bro
I ignored my warning aura. It kept getting stronger and I was afraid but still ignoring it. It took my first ever hallucination, Yoda, dressed in Ewok garb, really mad, telling me to take my med & get into bed, NOW!
I did but it cracks me up the lengths my subconscious went to in order to make me listen.
same here either I can tell them and get my self to the ground or yell
I get the feeling of my stomach turning over, a strange metallic taste in my mouth and a distorted view on reality causing me to not recognise where i am
So sorry you're suffering in this way-I've been there, but since May 2021 tge neurologist prescribed me lamotrigine and I reached a level ( 200 mg bd) where so far it's kept the lid on my seizures.
Nice not to be terrified & screaming & then waking up with a chunk out of my tongue & feeling as if I've had a fight with a rhinoceros.
I hope that you can find a med that helps keep your seizures under control 😰❤️🩹
It’s called Jamais vu. It’s the opposite of deja vu. It’s scary as hell. I get the feeling I’m some place I shouldn’t be and there is someone or something that doesn’t want me there. Impending doom
Sometimes it can be hard to explain having auras to others who may not know much about epilpesy and auras themselves. These videos you are doing can teach those who may want to learn about it or if they have partners who have epilpesy themselves can teach them too know what he or she should do. To my own family at times it hard to explain the feeling they do see changes when I've had grand mal ( Tonic clonic ) fits/seizures to this day my family hate seeing me have seizures because they can't do anything while in one other than make sure nothing in your way by your mouth other things too. I first started to have epilepsy at six years old at first they didn't know what was going on with me after a number of tests I was diagnosed with were pulled out of mainstream school to go to a school who could deal with everything. One or two of the worst experiences I've had fighting for my own life my own fits nearly killed me.
Wow! Between the video and the comments I feel so validated. I’ve had some of these feelings not realizing they are an aura because I don’t usually have a seizure after them but I am Epileptic
Exactly dude I always thought my epilepsy was gone now, but everything in this video is still going on. I thought they were normal until I saw that the people in the comments were just like me
Thank you for this video. I have bipolar 1, PTSD, panic & anxiety disorder. I’ve been having horrible episodes lately of zoning out, flashes of lights, tingling, etc. my new dr is sending me for a MRI to rule out seizures. I feel so much better now getting a doctor that’s actually listening to me.
Me too . Finally some answers that make sense
@@meditationpractioner5080mri only takes away a tumor potential
I live in Arizona, driving laws here allow you to drive as long as you have auras of sufficient timing which means that if you have an aura, you still have enough time to pull over and stop your vehicle before the big one hits. It's amazing how every state differs on driving laws
It’s just another form of discrimination because people on cell phones do the most damage. And heart patients or type 1 diabetes can cause accidents.
I kinda get it. Arizona roads are 5 lanes with next to no pedestrians. NYC has pedestrians near you at all times
@@frankw3545 I live in a very small town in central AZ with just a 2 lane highway unless you drive atleast 1 hour north or south to get to a bigger city. Unfortunately in 2019 I was driving in wickenburg az and had a grand mal behind the wheel. Thank God my family wasn't in the car and no one else but a brick wall got hurt.
@@andypoppey5243I hope you’re doing well Frank.
You better be lucky you’re not in California. They’ll steal your license if you even pass out!! Arizona has good driving laws for people with epilepsy.
My auras are one of the most horrible feelings. I feel fear, hearing music or voices but can't repeat them, dizzyness and INSTANTLY I lose apetite! I would feel depressed the day after. They were diagnosed as depression and anxiety. Accidentally, I found out I have epilepsy auras showed on EEG, left temporal lobe.
Mine are like this, music, deja vu and intense fear. Cannot speak, few seconds later I have a grand Mal.
I had a few blackout suspected TCS. I take anti seizure meds for chronic migraine. Im now off road and on watch in case I pass out again. I have the same experience. I feel depressed after the migraine and have bad nausea. I'm 5 stone 9 because of it.
Same brother
I have auras where one side of my face gets cold and begins to go numb. It gives me just enough time to lie on the floor, couch, bed, etc. I always have a cushion closeby just in case to protect my head as I have tonic clonic seizures. Thank you so much for your enlightening videos and for bringing awareness. Blessings
For as long as I can remember, I've had what I would call deja vu attacks (intense feelings of deja vu with nausea), and I had to stop thinking and doing until it stopped. It wasn't until 2018 that it led to losing my awareness (which I wasn't aware of), and I was told I was drooling and appearing vacant. This led to my diagnosis. It's strange to look back on it now and realise they were seizures, and I always had epilepsy.
I used to have it before every epilepsy seizure, and I caught on and used it to warn my parents and it worked sometimes. I was cured 14 years ago by brain surgery, but I still have the feeling sometimes, I did just now. But that's all that happens. It only lasts a few seconds. I've also noticed that it only happens if my sleep schedule is altered, like having to stay up too late, or even sleeping too much. So I have it under control for the most part.
This is how I feel every time a seizure starts:
I first notice a small red dot up in right part of my eyes.
This red colour then spread all over, and I get a weird kinda good rush, but still a bit scary feeling.
The best way of describing this feeling is listening to the background sounds in The Beatles's song "Tomorrow never knows" with the volume turned up to 11.
This lasts about 30-40 sec, before "the real" seizures appears.
Can take hours before I'm back.
I have auras regularly , each month with my cycle . Since starting ketogenic diet my auras have been much less intense and I feel much better mentally and physically . I have gone from a size 20 to a now size 14 and my mental clarity is much better too.
what is the this diet ?
@@aliceknight623 ketogenic diet . Check out Dr Eric Berg
and Dr Steven Gundry
316 views less then 100 likes that’s the problem lack of awareness
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In the Leg and the stomach huh?
So when I'm having an Aura I'm having a seizure,I've just always been curious about my medical condition.
Please share about PCDH 18
I get a unique smell I can’t describe. Hot. Drenched with sweat. Deja vu, and viewing myself from outside, with shifting in balance and perception. And reoccurring memories.
Sometimes I have to go on my hands and knees.
It’s all over in about 2 minutes.
It’s worse if I’m sleep deprived.
I get covered in gooseflesh. Especially my face when it's happening. That how my family knows it's coming... Goosebumps on my cheeks. It's so terrifying. Feels like deja vu and then I feel it in my stomach and goes up to my head and it's like being injected with terror... It's scary.
Hi Doctor,
Good morning.
Your videos are so helpfull and really great job ❤
Iam from India, aged 49 years, male.
I have focal seizure from past 28 years. Since from 18th age.
Now iam taking medicine as per Doctor's advice
1. BETNOVYL - 100 MG. during night before sleep
2. Freizium - 5 mg
Still I face 6 days maximum seizure in 30 days.
That means every month im getting seizure atleast 5 to 6 days , around 10 to 15 times in a day and each time 5 to 10 seconds.
What should I do further Doctor?
Is is is Serious or curable?
I don't have any injury in my brain.
EEG tells left side in brain triggers seizure.
If u can. Pls advise and support me sir
🎉🎉
🎉
I get auras somewhat infrequently. Sometimes multiple times a week, other times once every few weeks or months. Usually deja vu, sometimes anxiety, sometimes it's a really really weird spacey feeling, and sometimes it's sudden stomach sickness that goes away after a few seconds, sometimes I'll be talking and stop and stare into space (this one more often with alcohol use) , if very excited I tend to stutter and its sometimes accompanied with repeated movement. I also will get sudden intense ringing in my ear that is not related to sitting up too quickly, I used to have that more when I was younger, especially when trying to sleep.
Interesting, no?
Thank you for this video, I haven’t had one in a long time, but in the shower last night I all of a sudden had intense Deja vu and started remembering an old dream from years ago (I don’t remember the dream itself now, just know that it was OLD). I remember hearing some repetitive song too and then when I stopped spacing out I was light headed and nauseous. This video helps me get a starting point when I speak to my doctor 😬
I have been having "episodes" like this since about a month ago after a bad flu and have gone to the ER all tests normal, when i came across focal seizures it is the closest thing that explains what i have been experiencing. I'm learning what seems to "trigger" it, usually after a long day or if i haven't eaten or drank enough.. I'm not sure what else it could be but what some of you have described is very similar to what I have felt..
The first time was really bad i felt this feeling inside my "center" abdomen getting bigger and bigger (when i couldnt find my words as it was happening i kept saying "it's going up"), my muscles went weak for a second like i got really heavy, covered in sandbags feeling, my throat went tight, the back of my neck went really tight (and does each time i feel it) strange sensation in my nose like it was full of smoke then i felt like an electrical storm in my head then it progressed to these strange sensations coarsing through one side of my body (then later as i had another it switched sides) i felt like liquid fire rush through all my nerves and like electricity flashing through my nerves after the head and i got really hot, shaky and clammy.. i got a rush of intense fear/anxiety go through my stomach like rush through me out of nowhere.. it faded away.. then later got another and the other side started up.. i had several of these over a few hours, i tried eating which seemed to help after a while, they eventually stopped... ever since then I'll be fine for a couple of days then start feeling this strange sensation in my stomach/throat before it would happen..
so since my sodium was low the first time and my sugar was low another time, i figured not having eaten as much and being tired after most of the day has been triggering this somehow.. i have an appt with a neurologist soon.. i don't know what or why this is happening but likeni said started after this bad flu, they had me on a couple meds while i was sick, a couple of them lower seizure threshold.. but interestingly enough one of my meds IS an anti-convulsant!
when i called for help the first time i knew it was coming from my brain i kept saying it's in my brain. was hard for me to find my words properly until it would pass.. I'm really worried, have looked up so much on what this could be or why but reading some of the experiences on here seems so familiar to this... sometimes before it happens I'll get tingling, too.. i can always tell just before it happens..
Lord, have mercy! Yes, if that medicine states "convulsants." It's definitely pertaining to seizures. I've found that sleep deprived, low blood sugar and dehydration. Can and in fact does cause seizures. Every time I've mentioned dehydration to the doctors. They dismiss my claim because it's uncommon. My daughter was not born with seizures. She started having them at 10, out of the blue. But she's had every immunization. Plus she's been on psychiatric medications too. A lot of meds state if you stop this medication. It can cause, this side effect. Her seizures stared off as 1 every 2 years.
Now most recently this year it's been 1 every two months. I always watch her behavior and ask questions to try and pin point what was the onset. While doing her most recent EEG test. The neurologist actually believe us. I said take her off her seizure meds and no water. The doctor suggested they also sleep deprive her. On the 4th day of inpatient hospital stay. I woke up to her having a seizure, she went on to have three more. She was diagnosed with focal awareness seizures. She too has had an aura. Most times it's ear ringing, anxiety and fear. It has taken 8 years for her seizures to finally get recorded on that old EEG test! I cried like a baby about witnessing the whole situation. She have not ever had more than 2 seizures in a day.
Her first time having a seizure she had one back to back. I wish it would stop, I'm on a quest to get her cured of seizures. I've know two people that have died from them. The doctor increased her medication Keppra 750 mg. Once in the morning and once at night. To 2 in the morning and 2 at night. I also just found out a few months ago that Wellbutrin was an onset to seizures. The pharmacist that we started going to told us that. And it was prescribed by her psychiatrist. Her last seizure she had this Monday she woke up at close to 6 AM. I kept calling her, she didn't answer me.
I watched her walk from her room to the kitchen. I seen her reach in the medicine cabinet for her seizure meds. I didn't hear the bottle rattle with pills. I then didn't see her, I jumped out of bed. And stood at the bathroom door and said, "hey you didn't hear me calling you?" She was looking straight ahead while on the toilet using the bathroom. She made a terrible moaning noise. I said oh Lord, you're having a seizure. I then wiped her up and placed my arms under her armpits. I begin to attempt to lift her off the toilet. She was dead weight! Her limbs and went weak. At that point she was non mobile and verbal. I flopped her to the bathroom floor. She was so heavy I couldn't drag her out of the bathroom. She was stuck between the door frame and cabinet. Her head begin to hit the door frame. I moved her over and her convulsions caused her feet to kick and jolt. At the bathroom cabinet door frame. I was so upset and scared. She begin to vomit and immediately after the episode I wiped her mouth. She went into this grizzly bear deep sleeping snoring sound. And she rattling the saliva and remaining vomit in her mouth. The episode started at like 6 o'clock and she came to at 6:12 AM. I took her to the hospital afterwards. But by that time her vitals were back to normal. She was back walking and talking.
She did catch a cold from being caught in the rain a few days before. So the doctor summed it up to viral infection (cold). However I mentioned 14-16 days prior she received a required vaccine meningitis and tetanus shot. I read that the meningitis shot can cause seizures. But of course the ER Neurologist brushed off my claims. She said some people just have seizures for no reason. I'm like what?! I refuse to believe that! It's a reason! It's just not everyone knows why. Illnesses are not normal. This is no way to live. (I apologize if pieces of the story is all over the place. I'm typing this from my cell. It's giving me problems. Plus it's merely 4 AM eastern. Anywho, I would love to travel to a recommended Neurologist who specializes in seizures. And aims to find out why and how to heal the individual.)
Sometimes I get a strange smell - burnt toast - no one else can smell it & then I'll feel 'odd' for a while, but no further seizure activity.
I hear a noise I can only explain as a ping pong ball bouncing around my brain and smell and pepper bunt toast smell I swear I thought I was going crazy
@@melodymegginson7772 I smell burnt toast....it's so horrid isn't it, bcs of the fear of the possibility that a seizure might be on the way 😥
I have heard that it’s not unusual to smell bananas prior to having a seizure.
Yes-exactly that 😥 Even if there actually is burnt toast, it reminds me of the pre seizure smell 😱
Sorry that you're also suffering 😥❤️🩹
@@melodymegginson7772 Awful. Do you ever get a jolt if there actually is burnt toast bcs it reminds you of the pre-seizure smell?
My aura is an intensive feeling of fear- I am suddenly afraid 😱but I don’t know what I am afraid of. It’s also as though I am reliving these minutes from before. This sudden feeling of panic grabs without warning but after it’s over I can conclude I’ve had another “aura”😅 I wish they would stop but I have no control over them- the medicine does little to nothing.This started when I was 14-I am 70 now so go figure 🤷🏻♀️? This “feeling” starts in my stomach and progressively extends through my stomach until it reaches my entire system and this is frustrating and frightening.
I used to have 3 of those sensations all at once. Intense fear, sensation rising up from the stomach, and hearing a woman’s voice talking about my death in the past tense. Utterly horrid.
I get a sound of what might be called "ear fluttering " which is like the sound and feeling when you are yawning, only I'm not yawning. It happens slowly at first then escalates. I also get a weird feeling, like an amorphous blob that sits just behind my eyes and nose, and it's like brainfog to the max. It makes me feel I need to lay down and soon I've passed out.
Thank you very much for talking about Epilepsy and explaining it so well. There are many doctors (including my own) who are not bothered about their patients. They just give you the diagnosis, some pills and send you home confused.
I had no idea that an Aura is in fact a focal aware seizure.
My aura was my eyes loose focus and they start fashing like bulbs flash and then i could'nt see from the one side of the eyes, its dark. Then after that one side of the side started twitching...and right after that twitch i loose conciousness and found myself in the hospital...
What type of seizure is this??
Your information is very good. Thank you for taking the time to educate online. It's good to validate some information I have.
It made me so nervous when he talked about flashing lights and then said, “Let’s see the difference.” 😂 I’m glad he just explained it, and didn’t show us.
It is an unexplainable feeling, similar to deja vu but not really the same. And a few other things. I mostly get them on their own but very occasionally they turn into grand mals. I ask someone to get me a glass of cold water. And take small sips. It helps me stay calm while it’s happening.
I get this too. Deja vu on steroids. The Deja vu happens but then it’s like I’m having a vision or something. After that passes is when I get sweaty and flush and panicky. I’m now able to breathe slowly and control that panicky feeling. Takes a few minutes to get back to normal. Sometimes I’m tired for a couple hours after
I just had one 2 days ago. Very intense deja reve, followed by a hallucination of what felt like an old dream, that feeling of being in a dream lingered a long time, followed by complete confusion, blank pale face and a hard time speaking what I wanted to say. Spent 8 hours at the ER yesterday, all tests normal🤷♂️
May Allah reward you my dear brother, jazakh Allah Khair for your efforts!
My Aura’s are like dejavu. It’s like I am living outside my body and can tell what is going to happen next. It feels like my brain and body are not working together and my brain is like a second behind. Its so weird and so hard to explain to anyone.
Thank you, Dr. Danoun for your videos. I've recently started having issues, and am being treated currently. This is all new to me, and your videos have been a great resource for comfort and understanding. It has kept me from being overwhelmed with it, and has also helped communication between my doctor and I. Thank you!
Glad to hear that
I suspect having some type of seizures however, the doctor says otherwise, I just don't know if I actually believe it completely.
Back in October 2020 I suddenly started to get dizzy and pass out several times a day, I could feel in my chest my blood pressure drops and my pulse raise, then I would start to taste it in my mouth at the roof of the month and smell it right before passing out, however, I don't always fall out on the floor, idk how I managed to do that 😳(we may be able to fall asleep standing but we can't sleep standing, without some type of assistance that would keep you from falling down,) I do know that when I would wake(idk how long I was out)back up I found my arms and legs shaking trembling and I had muscle jerks and it takes a few seconds or so to finally wake up enough get to the point of being aware of my surroundings, which is a little weird, and when I get up it's as if my legs want to give out from under me, makes it a bit hard to answer the door when that happens. I also will suddenly just stop talking completely and as I've been told I just stare😳 and they can see when I (come back) by my eyes), I'll also have times where I can be watching TV and realized that I somehow missed a part of the show and yet remain seated, now that's a weird feeling 😹, this is separate from the passing out thing which I've been diagnosed with
orthostatic hypotension tacicardia syndrome where my blood pressure goes down to 76/51 and my pulse is usually at 120 at rest, however, I run low to begin with with an average BP between 90 to 100 as sistolic and 50 to 65 diastolic was once 49bpm🤷, I have to go into public if it were to happen in public, lucky for me and since I can feel them coming I just steaded myself and stood there until it passed holding on to the cart. Lol,
One day at Walmart I saw this lady with a toy poodle who was wearing a 2020 mask😷🙀 and I went to see her and she couldn't get to me fast enough, not knowing why I just stood there and she climbed out of the cart and up on my chest, as I explained what stresses I was going through when suddenly I felt this huge release of stress it felt like a release in my chest and I could actually breathe. She told me that her dog is her seizure dog
The whole thing kinda freaked me out some, I've NEVER felt anything like it before that or since, miss that😔.
Did have a neurologist do one of those test with the wires on your head, lol, I can't think of the name of it, lol, yes, I have big memory issues, he said that I had narcolepsy and hypersomnia before I sleep too much, came home from working like 5 hours and went home a took a 19 hour nap, didn't even get up to pee, eat, or feed my furbies(kitties) which I felt bad for but they understand, of course I also have depression and anxiety and PTSD and SI. I wonder with all of the major stress(lost my home to fire in 2018,
Lost the home I bought because the seller didn't pay the mortgage, and then I moved in this apartment building where the management harassed me constantly for things , and had actually bullied me into attempting suicide twice 3 weeks apart, and robbed me and I almost died, was intubated and on a ventilator and had liver failure both times, and they also stole like $15,000 worth of my belongings, including all of my toilet paper 💩 🧻 leaving me without any, and took my hygiene items out of my shower, it was a retaliatory eviction, they won because when I was to be in court on the 13th of January I had OD'd on pills for the 2nd time in 3 weeks, first time in December it was over 50 morphine 30mg tabs, narcan X's 2 with no response, and so since I was in ICU they decided to not tell the judge and I lost by default, should not be legal, just saying, took them 4 days to go through my stuff, they read everything they could including my dairy and poems that they never gave me back, then I stayed at my brother's house and that was a disaster because his wife Stole $500 from my debit card and then they decided since I pressed charges on her that they would just get rid of all of my all my belongings including my Ashley sleigh bed and now i have no bed just a mattress on the floor, 😳, Im 52 and have numerous medical issues that make it hard to get off of the floor, not as agile as I once was🤦, took so much of my life's items, he took about $75,000 of my items (5000 beanie babies, approx 20,000 sports cars, etc, too much to mention, and, I've not been able to get through what they have put me through, and they don't care either 🤷 so in that short of time and to make things even worse it's as if it's never going to end, or end well🤷, I now have grown to hate and not trust anyone from this experience 😮😮, I've never been this way or under this much stress, ever, my doctor and I are just waiting for me to have a heart attack or stroke from all of this stress that I've been going through for over this for almost 2 years now, could this also be an issue that can cause some type of seizures ?
Can excessive stress cause seizures?. And what about the passing out issue?
Thank you for your time and I do apologize for the long message, I tend to feel that I need to explain things more thoroughly to explain it so that I feel someone would get it, know what I mean?
You can actually email me with your thoughts if you care to, if not, again thank you for your time and have a great day, stay safe.
In your opinion, can people have an aura prior to a non epileptic seizure. I get this sensation frequently, almost everyday. Majority of the time I feel warm/hot and get pins and needles throughout my body. I experience minor shakes that feels like my head is shaking but theirs hardly any movement. And my eyes flicker and I get twitches of the eye lids.
I don't know how to tell if I've had a full on seizure, but so many of peoples symptoms are so relatable. I'm working with specialists to figure out what is going on.
Perfectly explained ❤
I only have auras. This video makes me think that some other things I have may also be auras. I have a stabbing stomach pain that happens about once or twice a month and I just assumed it was a mild ulcer. My auras are ringing in my ear, sound changing in my ear, cold rushes in my head, a yellow patch in my vision, tingling on skin, loss of muscle tone that causes me to almost fall and drop some things.
Does your vision ever get very bright, then very dark repeatedly?
Hi Nicole, do these happen around your menstrual cycle? I always get dejavu at beginning of my bleeding or the end of the bleeding ?
First aura, then stomach woes, the de ja vue, then discomfort in my head. Then lose my ability to continue a confirmation with jibberish and memory issues
My auras are very different . My ears start to listen less and i feel that this things have happened before like dejavu .. Sometimes i control the seizure by breathing heavily.. not all the time.
Do you have a video about ictal headaches? I know you mentioned migraines but I'm curious the difference between migraines and ictals.
Hey man, thanks for your videos I really appreciate the information you're giving out, I have started experiencing nocturnal seizures since November 2021 when I was 24 years old and I'm so happy to learn from your videos, what your saying about auras makes me curious - do you know if this de-ja-vu feeling can occur in dreams before a nocturnal seizure occurs? I often feel myself dreaming in a way only describable as how you've explained auras here!
Gonna be honest. Just ignore my other comment made on one of your other vids... you have actually given some of the most useful info ive gotten yet
Has anyone else had an aura that causes their vision to get very bright and then very dark repeatedly?
Sir my twins baby of 16 months having infantile spasms since last six months ۔we are treated them with vigabatrin and livetercitam and some vitamins ۔but fits are still happening to them۔we have done EEG and MRI brain۔
Unfortunately I only can treat adults 16 years and older
I've been getting auras since I was around 4 years old. We didn't know what they were as I used to call them "funny feelings and deja-vu" My Mum and all never really understood it because of the way I was describing it. I normally start off with a headache and then the same smells add to it and then very echoing voices which people raise their eyebrow at me when I say I can hear Donald Duck but that's not my fault, I'm only saying what happens and it's always the same. I have to go to the bathroom and I'll be sitting on the toilet rocking back and forward in frustration trying to make it stop. I also get the same smell each time an aura starts. It wasn't until I was 16 years old that I had my first fit, of which we know. I went to the bathroom and had the aura, got so bad that I passed out and fell to the floor, knocking myself out on the sink. My Mum came into the room after hearing a loud bang and there was me face down on the floor. I was diagnosed with epilepsy when I was 16 years old, I am now almost 36. I get auras during the day sometimes after I've watched certain films. I can't eat roast chicken crisps because that is a smell I get in my auras :( My favorite flavor as well! I don't normally have a seizure unless it's during the night but auras can happen at any time. P.S, I have had a seizure today. Was bloody awful!
To everyone here who also suffers from this horrible condition, stay safe and take care.
I get auras every month before my menstrual cycle starts or I might get it at end of my menstrual period, they vary in many ways , I feel a warmth feeling from the forehead to the back of the head, I get dry mouth, I get nausea, I feel a sensation usually down the side of the body, I might smell something that I’ve smelt before or I might see a scene. In front of me that I’ve experienced before . I get these every month like I mentioned, and when these happen, I usually sit down and let it do its thing, because they cannot be stopped . I don’t get these every month of the year , I think it is when the menstrual bleeding is very heavy or the oestrogen is very strong. I am almost in menopause and I’ve been doing ketogenic for one year. Since doing ketogenic the auras have been less intense and less active, I’ve only had one major seizure but I felt the seizure happen so slowly that I was in control of it , I took my frisium to stop it going further . My dog sat on my
Lap the whole time, my dog knows my epilepsy well and he sticks by me when these happen
Mine are also monthly or every other month or so, closely associated with my menstrual cycle. It’s weird though because I’ve had these since I was a child before I started menstruating (also, I am not pre-menopausal). It’s pretty predictable though timing wise at this point in my life.
@@Kedolmansame , i have scarring in my brain which could have been when I was dropped as a child and hit my head , I had these auras as a younger child before menstrual cycle, I didn’t know what was happening , i tried talking but nobody listened to me, I was scared etc and I tried to commit suicide which left me with short term memory loss and then the auras disappeared maybe because I forgot them but they returned around when I was 27 when I lost my father and brother and a lot of trauma happen to bring on the stress . So I’m told it’s either from scarring that could have happened either from being dropped or overdose . But they would have seen this scarring when I did overdose and they would have been more attentive ?
@@kyliejacobs6817 WOW. What you’re saying is SO SIMILAR to my story. I was pushed off of a very tall slide when I was 3 years old- I broke my arm and was knocked unconscious. My auras started as a young child, and they seemed to stop during my teenage years. They started again in my early twenties and have been regularly happening around my cycle ever since. Maybe scarring has something to do with it.
@@Kedolman correction, the overdose did not play a part in my diagnosis because all doctors said I would have had seizures very soon after . I didn’t start having seizures again until 3-4 yrs later
And thought I was having focal seizures because my dad said it wasn’t an anxiety attack, but I remember the very FaceTime I had an episode was when I was standing in line in middle school to register for my classes. No, I have a brain disease I was born with, and I remember standing in the line and all of a sudden, my ride I couldn’t see clearly I couldn’t talk. I couldn’t hardly open my mouth. I started feeling like I wanted to gag. I kept smacking my lips because a lot of saliva started accumulating in my mouth and I wasn’t able to speak clearly and the right side of my body started to shake a lot, I remember one time I was at my grandmother house and I had just came in from playing outside with my cousins. I was totally fine and then this episode came on and it was pretty bad. I was trying to get to the fridge raider to see if I could get me something to drink to start what was going on, but I ended up hitting my head and I had a cut on my headfor a couple years then all of a sudden they start back up recently. I had four in one day.
After being seizure free, on no meds, for 8 years, I started seizing. Very short intervals between. My husband said these were different because I was having both tonic and clonic movement's. I vaguely remember in the ambulance hearing "she's seizing again" and later "we're pulling up to the hospital, your going to. She's starting another" This is where my aura story starts. Before, nothing. Then over a 2 year span the following; A horrible smell, 3 different times. Then one day I was working away from the house, on our ranch, and I had deja vu. Then as time passed it kept getting stronger. Every 5 to 15 minutes it would wash over me, getting more intense. I had the butterfly sensation and deja vu only now it was something bad coming. I started walking home ASAP. About the time I was near my porch, again only when I looked up, there was Yoda wearing Ewok clothes. I've never hallucinated before, I knew it wasn't real but it seemed as real as anything else! He told me I was having a seizure and it was going to get worse, I was to go take my valium, which I HATE, and go to sleep. I did it immediately. In 2020, we had no power due to winter storm, after day 7, went to hotel. The next morning, in line for breakfast, deja vu once and I just knew that the next time the "Swiss Miss", an ad character, would be there because she was coming. I went to my room, took my heard. Now I know the difference between deja vu and deja ohshit I'm going to have a siezure. I don't understand, and apparently neither do any of the docs I've seen, understand the changes. No head injury, negative scans etc. Why and how does this happen?
You sound almost identical to me! This past summer at 33 years old, for the first time ever in my life with no injuries, etc, randomly started having these exact seizures a few times a month but mainly when I’m coming off my cycle so I’m wondering if I even may have catamenial epilepsy but there has been couple times it was during other random days of my cycle. A couple months ago, I had my first ever tonic clonic seizure in my sleep which my 8 year old luckily felt since she was laying with me that night by the grace of God… even a few hours later right after getting home from hospital, it happened again. I have a video of my second one on my Tik Tok to spread more awareness on these things. I have appointment with neurology soon too. I was negative for Lupus and Addisons disease which I had possible symptoms of both. Glad I don’t have those! Guess we will see what happens. They offered to start my on seizure meds but I said no, not unless I continue having tonic clonic seizures or even too many of the partials! It’s miserable every time no matter what type it is! Just awful!!!! I’m so sorry to you and everyone else having to live this way not having solid answers can be so scary. Prayers! ❤
@@jessicahampton1991 Please be very careful. Read up on the side effects because side effects can cause additional problems. I hope you don't mind me asking but after your seizures do you feel a desperate need to sleep? The period after the seizure is called the post ictal state. Most people just fall into a deep sleep. However, there's a small percentage of people who wander around. Before we knew about this possibility, my husband would put me to bed. Next thing I'm wandering around the house the yard. He thought I was just being contrary. I tried to explain that I just felt compelled to walk. Now he gets it. The only thing that terrifies me is when it happens, if I'm alone. Only because for about 15 minutes I don't know "when I am" I know my kids are grown and I have grandkids but my brains ability to understand time is caput. I jcan look at a calendar, my phone but it means nothing until I hear someone tell me the day, date and time. Something about hearing it and my time "feature" pops on. Before I'm just lost in time.
The neurologist, write down every med you take even occasionally or supplements because the interaction can be bizarre. I hope everything works out for you. If you can, let me know by adding another comment here. Good luck.
You must live in Texas! Lol! My 22 year old son has strong auras with pre seizure migraines, metallic taste, impending doom, and random electric shock sensations several minutes prior to full blown status epilepticus episodes that a total of 3 have ended up with him being sedated and intubated in the neuro ICU and the EEG and all other tests were inconclusive for true epilepsy diagnosis. Next time we hope to get admission to a neuro research center like UT Southwestern Dallas tx.
The part that I hate isn't that I chew my tongue to bloody mush, it the feeling immediately after. I don't know WHEN I am. My husband knows to come if I call him and ask him "When am I ?" I can stare at a calendar til I'm blue in the face, it means nothing. I know I have kids, grandkids, I know how old they are but I don't know where in their life I am. I know that makes no sense, seeing real live, Yoda, I knew it wasn't real, maybe my subconscious just got tired of being ignored! The other thing is I'm not afraid of much, roaches make me embarrass myself, but that's about all. Before a seizure, I am filled with this sudden terror. It makes no sense because seizures don't frighten me but I guess it's part of the seizure.
When I was 27, I injured my back. We were buildig a house. My husband would lay out the rebar, stell reinforcement and on my day off of 12 hr shifts in the OR, I would tie the steel and fill feed bags 2/3 full and use our backhoe to move the where he told me to put them. I was 2nd scrub on a TVH, total vaginal hysterctomy assisting Dr Methusela and his older brother. So there were 3 of us between this woman's legs. They were soooo slow. Over an hour without a break, holding two retractors, 1 up, 1 down and bent at my waist and hip to one side, a vessel started bleeding, the dr said "STITCH!" and when I straightened up there was a weird snapping so loud every one heard it and my uuugh. I powered on til the end when they helped me to the ER. This began my hell trip. Prozac had just come out and after all the seminars and pharma bullshit, aplan for back pain was begun. All pts had to go to a psychiatrist because other ydrs didn't prescribe antidepressants. And you HAD to take them. Prozac made me shake, they changed it over and over until I got one that would paralyze my throat then I had to cough to break it. They wouldn't stop. I shook so badly from amitriptyline I couldn't feed myself. Then came Ludiomil. After that things were better. I had surgery that was great. After 4 weeks it was Christmas and I hadn't shopped. The doc said I could go if I didn't drive. So my mother and I are at the mall. My mom sits to people watch while I went to return tennis shoes for my dad. Mama said it was taking a while but she was watching the EMS come into the mall. Then they got off the elevator, looking sise to side she saw nothing. It wasn't until they went right behind her that she turned and saw me on the floor. This seizure was over 15 minutes. Never had one before. A couple months later it was reved from other countries for this reason. They knew but gave it to me even though my brain didn't like them. Years later I had my 6-8 year seizure. Long story short, my white cell count dropped so klow they tested me for HIV. It was the black box warning. After it got lower with each med they tried, I refused. They did this to me because of big pharmas rule. I'm 64 now, my mega seizure was in 13. I was fine til 180ish when I bought 2 horses for my grandkids to ride, i always rode the fresh off them to be sure all was well. This horse wouldn't lope, would not and when I gave him a good kick, he went full on rodeo. Ive come off since childhood in every imaginal way but this. My grandkids said " Granny yoy flew up so high and then landed on your head. You then had a seizure. I refused hospital because they were gonna say what I already knew. I had a concussion, at least 2 broken, but not h displaced ribs, later confirmed at regular GP appointment. The story goes on but I won't waste time. Do your investigating about meds not on google and check other countries.
So, I get feelings of dejavu quite frequently. I sometimes feel like time is moving differently. Almost like it's moving in frames. I also have extreme anxiety and panic attacks, strange out of body feelings or like I'm about to pass out and almost like I jump out of my own body. I've never been diagnosed with epilepsy, but I also sometimes get tremors especially in my hands. Not asking for an online diagnoses, but has anyone else had feelings like this?
What about being in dream-like state? Not a deja-vu or anything like that. Straight up a dream. Being in control of your body and thoughts and then brain crashes and next thing you know you are in ambulance/hospital. What causes that?
When I was around age 16, I was fishing at a pond near my house. I was overcome with intense unexplainable fear. I ran home as fast as I could. My mom had me sit down, and then the right corner of my mouth started to pull towards my left ear. I was moving my mouth over to the left side of my face uncontrollably. My head began to turn to the left as well, but my eyes were still fixated towards my mother. She called the neighbor over and he cast evil spirits out of me. I was so gaslit via religion that I am just realizing at age 34 that I have been having seizures throughout my life.
يعطيك العافية دكتور
When I have an aura, it’s a warning that I’m about to have a fit seizure, it’s helpful in a way as I know I have around 5 minutes to get to a safe place, time it and put something soft under my head, let someone know it’s about to happen if they’re home and make sure there’s nothing around me that can hurt me. I’ve now got used to it and know for sure that I’ll bite through my tongue 🤦🏻♀️😭 my partner has got used to it too and thankfully he’s very supportive and makes sure I’m always safe 🥰
My auras have varied
Sometimes I feel that feeling of ok you’re gonna fall off the cliff brace yourself
Or people coming toward me
Or some doll coming off a conveyor belt
A guy dancing
All of them always look like cartoons
And several other ones but it takes a lot to be able to describe them
My guy Dr. Omar: do a in-depth video on how to differentiate scintillating scotoma from benign etiologies such as spreading cortical depression vs from occipital epileptic etiologies such as seizure or lesions of the posterior brain that could lead to this experience (bright, rainbow, C shaped, flashing bilaterally).
I had this for the first time yesterday but no headache following, the visual symptoms matched migraine due to fortification effect and not circles or round spots that are more typical with aura due to epileptic source / a seizure so it’s kinda odd, considering asking doc for mri but I’m sure he gon say that’s overboard but i don’t care, imma have to throw him overboard if he don’t go overboarrd!
Can auras include swollen of the wrist, plus the nobness of the fingers, weakness of the hands..?
I’m trying to figure out if I’m having seizures or TIA’s. I recently had an episode where all of a sudden I felt like I was on laughing gas/high type feeling and I couldn’t read, my eyes rolled to the right and upward. I kept bringing them back down to try and read (with effort), but they would roll again. My head wanted to fall backward and I felt like giggling and I did a few times, it was hard to stop, even though it did not match the situation and made me feel embarrassed. I felt a buzzing feeling in my body like in my veins, my pupils were dialated really big, my heart was a bit faster and I was a bit short of breath. My eyes wanted to close. I was mostly aware and talking to the person who was with me….but confused enough to not ask them to take me to the ER so my decision making was impaired. Speaking seemed to take more effort and was slower. I was really tired and just wanted to sleep. I was also seeing stars/sparkly lights and I felt some pressure behind my right eye. As far as I know, that was about 15minutes. Then I was doing a drawing task and was very slow and had a hard time connecting lines. Another 15min and I was feeling much more aware and the weird feelings were all gone. I still felt odd for about 6 days afterward. Like I was slowed down a lot, my body and thoughts. I felt a shift back to a more normal level, but feel like I’m not back to my baseline. When I have odd episodes like this I feel like im slightly more impaired each time. I’ve had aphasias and declining short term memory, my adhd gets worse and worse. My neuropsych exam shows severe deficits in some types of memory and this actually happened in the middle of that exam. I did the Rey complex figure test after that episode occurred and he said my recognition portion was severely impaired. I basically had to circle the shapes I recognized from a drawing I saw 30min prior and he said I circled all the wrong ones. My IQ is high so he said it was very unusual and it was as if my visual processing may have been rotating the images by 90 degrees. I didn’t have an eeg, but I have had two random eegs in the past and one at home video eeg and they didn’t show anything. I had a CT 3 days later because I was mixing up my right and left when asked and still felt slow, but the scan only showed that my vertebral artery was slightly bigger than the right, which was not on prior scans. When I tell my doctors these crazy symptoms, they tell me to see psych, but psych told me there isn’t a mental illness that would cause my eyes to roll like that. I’m angry and scared because I feel like they’re ignoring this. I haven’t been able to work. I live alone so I rarely have a witness and I struggle to track these because of the confusion and altered awareness and exhaustion they cause. I notice these are almost always triggered by screens (computer/tv/phone) and I’m hoping someone can help me figure out if there are special glasses or screen covers I could buy to allow me to still use screens so I can work, communicate with friends and enjoy watching movies. I’m applying for disability, but without a diagnosis for this it’s doubtful I’ll get it. The neuropsych diagnosed a neurocognitive disorder, unspecified. I’ve had other odd neurological symptoms like random foot or hand dystonia that I wasn’t aware were happening, odd sensations like water on my legs or electric shocks, I’ve had phantom smells, dejavu, lots of headaches, slurred and garbled speech, ptosis that was short lived, muscle weakness, nerve damage on my thermoregulatory sweat test, positive tilt test for pots, hypersomnia, hypnogogic and hypnopompic hallucinations, (seeing shadows, bugs, hearing a slamming door, seeing a spinning black and white keleidascope pattern, etc), and sleep paralysis, and one time at the doctors office I was staring at a painting in the waiting room and I couldn’t tell what it was. I stared for one minute and the picture finally came together and realized it was a mountain. This has all been over a period of 5 years and came on after a virus and I’ve never been the same. I’m worried I’ll never get my memory back to what it was. I would appreciate your opinion on what this may sound like to you and if I should investigate seizures more….I have a hard time advocating for myself because they just look at me like I’m weird and tell me I have anxiety, but in reality I think they’re the crazy ones. It is not normal to be experiencing all this at 37. All they’ve told me is that I have a connective tissues disorder/autoimmune and autonomic dysfunction. Could they be autonomic seizures because my eyes were dialated and heart was fast? They tried to tell me I was just anxious, but I was actually very calm before during and after. I feel like so many doctors tell women they are anxious instead of actually investigating these serious symptoms. I don’t know what to do if the only people that can help won’t listen. 😢
Oh and I have had the rising stomach sensation and nausea too. Yesterday I tried getting work done at the computer and kept fighting back sleep (eyes closing) and nausea and confusion. I tried to get work done all day and wasn’t successful. I also have two sisters who have had 1-2 seizures before (the drop and shake kind), one of those sisters has 7 children who have all had seizures and fainting (none diagnosed with epilepsy yet), and I have a cousin diagnosed with epilepsy.
I had that head feeling before, feeling like high like my head and arms had helium in them. I felt complete peace honestly. I was sitting in the Urgent care waiting room during one of them and I honestly felt good as hell haha. But I never got any help from any doctors. I have major trauma from medical professionals, especially in the ER. During one of the scariest episodes of my life, I actually asked the ER doctor if it is possible to be a seizure and the doctor told me that it is not possible to be awake during a seizure and not possible to remember it. I tried nicely to be like, are you sure? I'm pretty sure that there are seizures like that. He was rude and uncaring and told me that I'm completely wrong. And treated me like trash the whole time. At that point I just wanted to laugh because it was so crazy. And laugh at myself for continuing to go to the ER, knowing that they will never help me unless I'm bleeding out or have like a very simple thing like an ear infection lol
Just before a tonic clonic seizure, I feel like I’m on an elevator, like when you get to your floor and go slightly up and down. I wonder where that comes from? I get it 3-5 times. It gives me time to lay down, take of my glasses and hearing aids, try to put my arm under my head, and it is just like wow. I have others that aren’t that, but I really honestly like the roller coaster feeling I get randomly. I know that sounds weird but it’s fun even though I know it’s a seizure. 😂 I also get disoriented , nothing looks familiar though I see what’s around me but THAT is scary.
Also, auras are great, but laying in an ant pile cause you don’t wanna have one on the sidewalk. 😂 rather that though that concussion. That’s fun too.
(Sarcasm, of course)
Thank you for sharing your experience
Frequently, I'm encountering abrupt memory lapses lasting around 10 to 20 seconds. During these incidents, I also experience trouble speaking, a sensation of buzzing or ringing in my ears, and I hear voices (various voices that I can't identify). These occurrences take place several times throughout the day, and I'm feeling extremely anxious about them. Could this be considered an aura or a seizure? Currently I am on Tegral 200, taking one before bed time.
I’ve been waking up startled and scared, the bed feels like its shaking, I spoke to a friend about it feeling embarrassed because we were both thinking that it was a bad spirit in my bedroom, but I don’t want this thought, so was wondering if it may have anything to do with sleep seizures, I’ve also woken with bruises on my upper arm which were not there before bed, I still feel embarrassed even posting this, but wondering if anyone could put light on this for me, thanks
My cat has seizures, about 1 every 2 months and he can’t tell me how he feels but I know it’s not good because before the last seizure he started swearing and before other seizures he will suddenly run through the house at top speed I never understand why until I read the comments written by people who also suffer them thanks everyone that shared their experiences.
Sometimes my body seems to stay in the version of aura-like a repeat of a past event. I don’t get to the point of the actual passing out all the time. This is very frightening for the two minutes it endures-feals I’m repeating these minutes from before but I’m unable to recall from where 🤷🏻♀️-WHY? An intense feeling of fear!
I can relate to that. Weird thing is in my case, i don't know if im experiencing the same events, or cycling through different distance places. Also, i used to assume i forgot what happened afterwards.Recently i was fully alert and realized the experience is just too extraordinary to understand as opposed to faded memory.
am i the only one who literally never gets a aura before a seizure????? everyone else has a strange feeling before hand. I only had a “aura” two times. Every other seizure i had there was literally no warning for it
Ma Dr diagnosed me with Nead even tho ma eeg came back abnormal & i keep gettin fobbed off wen i go 2 drs ovwr ma seizures. Ma auras feel like an all over body like drunk & dizyness before collapsin & then te seizure happens. It starts off as myclonic tonic jerks & twichs then can progress in 2 grand mal. Some have lasted over an hour & half. Ma seizures are affecting ma breathing & they say itz a panic attack wen i no itz not a panic attack its defo a seizure.
My auras are terrifying. Intellectually I understand that it's all in my head, and that this soon shall pass. But it doesn't make it any easier.
I have deja vu and jamais vu, sadness, migraines, and a very upset stomach. It's debilitaltating. All I can do is wait it out. At 40, I've been dealing with this since I was 16. The migraines started at 8. The doctors can't pinpoint a certain reason it all started. But most likely it's genetics and childhood trauma that kind of twisted my brain I suppose. I can't drive or work outside of the home. I feel for anyone going through similar experiences, and know that you are not alone. ❤️
Hello Dr. While involved in a playground accident in first grade, 54 years ago, I got a concussion. My neurologist that diagnosed me in 2007 said that is what caused my partial complex seizures. Since onset, my aura was smelling ammonia. My question is, have you ever heard of an Aura changing? I randomly smell maple syrup, even when I haven't eaten any. It usually happens after a stressful event. The feeling of exhaustion and emotions are there just like when I smell ammonia. What do you think?
Just lost my ex husband he was my rock,he had a seizure on 29th May,he was in bed,now I can understand why he was hearing voices,he was seizure free for about 3 years,he was also a bus driver si its just luck it was at night,can i add that im a migraine sufferer,i also get aura's deja vu,fast heartbeat,very similar ti epilepsy,R.I.P,Simon,love you always🇬🇧🦋🦋🦋🦋🦋
Crazy to think I've been living with this my entire life, wondering why I was having such a terrible time trying to keep a job even though I'm nearly 40, and it turns out I've been having seizures my whole life. Out of nowhere feeling like I'm zoning out, body tensing up, noises sounding strange, can't focus, feeling like I need to sit down but can't make my body move, etc. Really want to go for an official diagnosis. But I often lose the ability to speak during this period and then it's embarrassing because people have witnessed it.
I had my first seizure yesterday…felt confused, tingling feeling, nausea and hallucinated voices….almost smelled a weird smell. Got to work felt it again and then I woke up in hospital.
My “Breeze” starts in my stomach and then travels everywhere. Anybody else have that? Is there any other blood pressure or lower heart rate associated with this?
I’m so tired of people telling me it’s a panic attack or anxiety. I have had them surfing, cooking pancakes for the kids or just sitting around. MRI and EEG found nothing
I have auras, and not all are followed by convulsions. My auras cause the right-hand side of my body to tingle; everything from my foot to my tongue tingles. My stomach doesn't know what's going on, and it sometimes releases what it's holding. While I am feeling all of this, I hear voices talking about me, in third-person, discussing what might have triggered the seizures. I hear male and female voices.
Have had them for many years an have experienced status epilipticus. Have you every had a patient born polydactyl with two left thumbs? Or any knowledge on the pp21 genome 🧬?
My auras/sezuires changed over the last 3 years .. first year was TERRIBLE, but this last year they have been "weak" ... still not fun when you try and work and get slapped with a aura/FS that changes your personality from normal to apathetic/unforgiving, drooling and eyes rolling. The urge to puke is very real... but a bigger urge to be unpleasant and "remember" something
They said my brain scan after a seizure was "unremarkable" but I've had deja vu seizures & a stroke before!!! & after that I've had two more seizures this may i wish it was easier to figure out what's wrong upstairs💔Its exhausting I've given up trying to talk to them it's like nobody understands here😮💨✨
Is it possible that auras get worse during medicating? I started blacking out for a few seconds, I don't feel anything, I don't move at all..even at yoga class I stayed in the position but started mumbling. I heard my instructor asking me are you ok and I couldn't speak. Only respond with ahammm. As if my consciousness wandered somewhere far... I have been taking Levetiracetam for a year now ( even though I had depression history ). The doctors don' care about that.. :(
When I was a teen I would get hot and see spots for my auras. Now, in my 30’s and 40’s, I get deja vu! It’s mixed with anxiety. I think the same thought. The thought starts out with my ex-boyfriend driving his car to me. He’s rushing to my side before I go into a tonic clinic seizure. My two daughters are surrounding me on the bed asking if I’m ok. Or, I’m in the shower getting ready to fall. If I keep thinking about it, I put myself into it.
I'm not sure if I'm having an aura or a panic attack or anxiety. It goes away after I make it to safety, knock on wood. I had a seizure at work twice and they found nothing wrong. Sometimes I feel like aura what you describe on the video and I'm afraid it could be a seizure or just a panic attack. I don't know
Thank you for your comprehensive explanations, Doc! We appreciate this a lot 😊❤! We look forward for your future videos 😊😊
I'm having an aura before seizure but my eeg says it's non-epileptic in nature. No definite epileptiform discharges.
I’m not sure if what I had was a seizure or not since I was alone, 5 years ago I woke up from a terrible dream and I couldn’t move, felt impending doom, and felt a rush of wind zooming towards the back of my head until it sounded and felt like a huge angry bee buzzing in my brain in the back like it had grabbed ahold of my brain and was vibrating it. Never happened again tho.
I am 41 and have been having grand Mal seizures since I was 12. I get auras and I get the seizures at bedtimes and now I get the partial seizures random times during the day. Not everyday but every month. I’ve had multiple brain surgeries and taken multiple different medications that have only made me get more seizures. No doctor has been able to help me. I have actually had less seizures now that I’m not on medication but still have them. I don’t drive or work. It’s not an easy life..
Mine was apparently “agh! Something’s about to hap…”
This is so interesting. I was on levetiracetam and after a few years started to get auras in the mornings, but like with my seizures I was aware of what was happening so could get to a safe place, but eventually was put on to Briviacetam and now I’m stable and no more auras or seizures. My auras used to affect what I was seeing and often ot was shelves of bottles or shelves of cans😳 not quite sure I should see these visions but there you go!
I've gotten auras for years and it feels like a huge mix of a panic attack and Deja-vu, i feel like i'm watching a scene I've already seen before, and a feeling that there are other spirts and people surrounding me that are from a different universe, and they trying to show me that God is real....