I had the manometry test done last year and then had the POEM procedure. It helped tremendously. I lost so much weight due to achalasia I finally have put the weight back on and I am able to eat and drink again almost regularly. Only thing is thick sandwiches and over cooked dry meats. Those still can cause me to grab the water and start sending it down to help push it down to stomach. There is no cure for achalasia. But the surgery helped tremendously.
Hello Achalasia Sufferers, I just wanted to provide a real and honest healing experience. I suffered from Type 2 Achalasia since January 2022. I was at the time 223lbs, and now I am 159 lbs. I just wanted to say not to get all into the Internet stuff about how there is no cure for Achalasia. Yes, it is certainly a rare condition, but you need to see a good GI who knows about the condition and can treat it. I ended up in the emergency room twice this year (2023) and got three tests (barium swallow, CAT Scan, manometry) and a day later the doctor told me I had Type 2 Achalasia. On May 9, 2023 I had to get the POEM Procedure. Now, I am home recovering-eating food and drinking liquids again. Never lose heart and remember to pray! Feel free to contact me or reply with any questions.
How are you feeling, is your throat very sore? I too have been suffering with Type 2 Achalasia for over three years and scheduled for POEM this coming Tuesday.
@@KJ-xc6qs Hello KJ. I am feeling wonderful. I had the POEM Procedure done at 2PM on Tuesday and I am back home eating and drinking. I had a sore throat for about one day after the procedure but the sore throat is gone now. The only "side effect" that I have now is I feel that there is a lot of "excess air" in my GI system, but its not too bad. Also, my GI said that the esophagus had a little inflammation but that would go away in a few days. I am not in any pain at all and moving forward with getting back to a normal diet..... All the best!
@@aftabdullayeva9498 Salam. Mən sizin rəyinizi tərcümə etməli oldum. Qeyd etdiniz ki, bu yaxınlarda sizə axalaziya diaqnozu qoyulub. Mən başa düşürəm. Mənə təxminən bir il əvvəl diaqnoz qoyuldu. Yaxşı bir qastroenteroloqunuz olduğundan əmin olun və bütün testlərdən keçin. Mən POEM prosedurlarını etdim, lakin bəzi insanlarda Heller Myotomy var. Pəhrizinizi daha maye teksturaya uyğunlaşdırmalısınız və yaxşı olacaqsınız. Mən çoxlu smoothie, milkshake və şorba yeyirəm...
Tomorrow is my surgery. The last 3 days have been tough. Thin liquid diet. I have been lucky my whole life to never have know true hunger. I'm getting close after 72 hours of nothing but liquid. It will have been all worth it in a couple of weeks.
@@tim3laps3 not yet but I will my main doctor is out of town right now but when she gets back next Thursday I'm definitely sit down and talk to her about have a swallowing test and talk to her about that cause my GI specialist told me that I might have acid reflux but I don't believe that I can definitely think it's achalasia and every time I eat I feel things in my lungs and chest I'm mad 😡 upset what I'm going through right now truble breathing it's crazy so what do u think should I do or who should I ask for
I have the same problem for years ! No surgery yet , I have to drink carbonated drinks and that helps swallow also no cold drink everything with out ice . That may help you
Mine is that after eating a meal there’s a lil particle in my throat that won’t go away..even when I drink lots of water it won’t go away hays ( I wonder what’s the causes of it never had this b4:(
I have class 3. I’ve been affected since I was 12. The pressure test was terrible. I’ll take a colonoscopy or endoscopy all day over that test. Barium was easy and watching the pill get stuck right at the junction felt amazing. I finally got to see what the heck is wrong with me. My experience with Achalasia is food gets stuck and me having to vomit it out. If I don’t throw up the spit or water I try to drink just fills my esophagus till it goes into my lungs. Going out to eat always starts with, where is the bathroom, because I’ll have less than a minute to get there. Had a Mallory-Weiss tear. 3 days in the hospital with transfusions) Today my experience is, I’m starving, take 1 bite of food and the second it makes it to my stomach I’m nauseated. Giant burps and discomfort. I’m in line for Poem before the end of the year. I’m really happy that I might get to eat normally. Thank you all for your experiences, it sucks to be part of this ‘elite’ few, but it’s less lonely now
@@fauzianalwoga I am, thank you. I’m approved and on schedule to get Poem in a few months. I’m excited. I’m sorry about your mum. Sending love your way
@@Thesafespaceofficial I’m still waiting for the procedure. I think they’re working out some things or they’re trying to get a group of people together to get the surgery near the same time? I’m not sure
@@tatovive I Am Facing This Problem From Last 4 Months When I Eat Something it's Stuck in My Throat And I Need To Drink a Lot of Water And I Cannot Breath When Something Stuck in My Throat Do You Have The Same Problem Firstly I Didn't Notice This issue But Now it's Give Me Depression And Anxiety
I think I might have this problem cause everytime I'm eating I feel good getting caught and drinks going into my air ways I just had a endoscopy procedure and they see nothing wrong that's a damn lie
Poem procedure 1st, it failed ,.followed by 3 other jokes, so now after that i live my life with no cure, no help -a pat on the back by all concerned,,,the truth!
I feel you my partner is now deciding to do the feeding peg she’s over it I’ve never seen Doctors come in after doing the surgery and say it didn’t work and it didn’t work
I had the manometry test done last year and then had the POEM procedure. It helped tremendously. I lost so much weight due to achalasia I finally have put the weight back on and I am able to eat and drink again almost regularly. Only thing is thick sandwiches and over cooked dry meats. Those still can cause me to grab the water and start sending it down to help push it down to stomach. There is no cure for achalasia. But the surgery helped tremendously.
Sorry about the experience. Please stay strong.
Hello Francis. I had the POEM Procedure done two days ago ago and it definitely is a change.
Hello Achalasia Sufferers,
I just wanted to provide a real and honest healing experience. I suffered from Type 2 Achalasia since January 2022. I was at the time 223lbs, and now I am 159 lbs. I just wanted to say not to get all into the Internet stuff about how there is no cure for Achalasia. Yes, it is certainly a rare condition, but you need to see a good GI who knows about the condition and can treat it. I ended up in the emergency room twice this year (2023) and got three tests (barium swallow, CAT Scan, manometry) and a day later the doctor told me I had Type 2 Achalasia. On May 9, 2023 I had to get the POEM Procedure. Now, I am home recovering-eating food and drinking liquids again. Never lose heart and remember to pray! Feel free to contact me or reply with any questions.
How are you feeling, is your throat very sore? I too have been suffering with Type 2 Achalasia for over three years and scheduled for POEM this coming Tuesday.
@@KJ-xc6qs Hello KJ. I am feeling wonderful. I had the POEM Procedure done at 2PM on Tuesday and I am back home eating and drinking. I had a sore throat for about one day after the procedure but the sore throat is gone now. The only "side effect" that I have now is I feel that there is a lot of "excess air" in my GI system, but its not too bad. Also, my GI said that the esophagus had a little inflammation but that would go away in a few days. I am not in any pain at all and moving forward with getting back to a normal diet..... All the best!
@@williamhaynes8341 Glad to hear that you are doing well and recovering so quickly. I look forward to having this all behind me.
Allahın salamı olsun. Cox xahiş edirem mene kòmek edin.1ci tip akalaziya xestəsiyem.
@@aftabdullayeva9498 Salam. Mən sizin rəyinizi tərcümə etməli oldum. Qeyd etdiniz ki, bu yaxınlarda sizə axalaziya diaqnozu qoyulub. Mən başa düşürəm. Mənə təxminən bir il əvvəl diaqnoz qoyuldu. Yaxşı bir qastroenteroloqunuz olduğundan əmin olun və bütün testlərdən keçin. Mən POEM prosedurlarını etdim, lakin bəzi insanlarda Heller Myotomy var. Pəhrizinizi daha maye teksturaya uyğunlaşdırmalısınız və yaxşı olacaqsınız. Mən çoxlu smoothie, milkshake və şorba yeyirəm...
I have Achalasia type 2 for more than 2 years, did POEM sergury.
now my life is much better...
I am so glad to hear this. My POEM surgery is in 2 weeks. I can't wait!!!
How did u ask for the poem surgery
Tomorrow is my surgery. The last 3 days have been tough. Thin liquid diet.
I have been lucky my whole life to never have know true hunger. I'm getting close after 72 hours of nothing but liquid.
It will have been all worth it in a couple of weeks.
@@king-bs3wu Have you asked the doctors about achalasia?
@@tim3laps3 not yet but I will my main doctor is out of town right now but when she gets back next Thursday I'm definitely sit down and talk to her about have a swallowing test and talk to her about that cause my GI specialist told me that I might have acid reflux but I don't believe that I can definitely think it's achalasia and every time I eat I feel things in my lungs and chest I'm mad 😡 upset what I'm going through right now truble breathing it's crazy so what do u think should I do or who should I ask for
Thank you for the visual. I don't have a proper diagnosis yet, but this seem like it could be what's going on with me.
I have the same problem for years ! No surgery yet , I have to drink carbonated drinks and that helps swallow also no cold drink everything with out ice . That may help you
@@henryortiz5586 How do you do without solid food because I have the same problem
Hi, what are your symptoms?
Mine is that after eating a meal there’s a lil particle in my throat that won’t go away..even when I drink lots of water it won’t go away hays ( I wonder what’s the causes of it never had this b4:(
I have class 3. I’ve been affected since I was 12. The pressure test was terrible. I’ll take a colonoscopy or endoscopy all day over that test. Barium was easy and watching the pill get stuck right at the junction felt amazing. I finally got to see what the heck is wrong with me.
My experience with Achalasia is food gets stuck and me having to vomit it out. If I don’t throw up the spit or water I try to drink just fills my esophagus till it goes into my lungs. Going out to eat always starts with, where is the bathroom, because I’ll have less than a minute to get there. Had a Mallory-Weiss tear. 3 days in the hospital with transfusions)
Today my experience is, I’m starving, take 1 bite of food and the second it makes it to my stomach I’m nauseated. Giant burps and discomfort.
I’m in line for Poem before the end of the year. I’m really happy that I might get to eat normally.
Thank you all for your experiences, it sucks to be part of this ‘elite’ few, but it’s less lonely now
Hope you are well. Unfortunately my mom passed away 3 weeks ago due to this😢
@@fauzianalwoga I am, thank you. I’m approved and on schedule to get Poem in a few months. I’m excited.
I’m sorry about your mum. Sending love your way
@@tatoviveHi How Are You Are You Ok Now?
@@Thesafespaceofficial I’m still waiting for the procedure. I think they’re working out some things or they’re trying to get a group of people together to get the surgery near the same time? I’m not sure
@@tatovive I Am Facing This Problem From Last 4 Months When I Eat Something it's Stuck in My Throat And I Need To Drink a Lot of Water And I Cannot Breath When Something Stuck in My Throat Do You Have The Same Problem Firstly I Didn't Notice This issue But Now it's Give Me Depression And Anxiety
I think I might have this problem cause everytime I'm eating I feel good getting caught and drinks going into my air ways I just had a endoscopy procedure and they see nothing wrong that's a damn lie
i just had the heller myotomy in june. it helped for a while, but the trouble swallowing is coming back, and i’m not sure what the next surgery is
I would highly recommend the POEM Procedure. I jus had it done two days ago and I am back to eating and drinking again!
@@williamhaynes8341 that’s funny, i got it done about two months ago and it worked lol!
Thank you
You're welcome
J'ai la même maladie je veuxme soig6 je n'ai pas les moyens merci
Wat is cause of this disease
Poem procedure 1st, it failed ,.followed by 3 other jokes, so now after that i live my life with no cure, no help -a pat on the back by all concerned,,,the truth!
I understand the profound impact of emotional and mental struggles, and it's important to seek support and care for a healthier life. ❤️
I feel you my partner is now deciding to do the feeding peg she’s over it I’ve never seen Doctors come in after doing the surgery and say it didn’t work and it didn’t work