So much love to you. The amount of times I've been called a hypochondriac as a person with chronic illness is astounding. And later on I was finally diagnosed and my doctors were like "ohh..." yeah I was right. Take care of yourself and fight for you!
CASSANDRA!! I was also born with uterine didelphys!! 2 cervix AND ONE KIDNEY! I am 48 years old and have had 12 surgeries since I was 12 years old... I GET IT 💛 I did end up having to have a hysterectomy at 24 years old. I am also a registered nurse for the last 17 years... I understand your pain and can help if you would like 😘
May I ask you, you had 12 general anesthesias? Sorry for asking, but I am worried about the general anesthesias if they can actually harm us on long term.
Such an amazing job of taking a very complicated topic and providing an epic narration! This is exactly why I watch you!!! You can conquer any topic, and most definitely figure out what is going on with your health. 💪🙏❤
@@MyCleverHandle You had no time to listen to her. … Yet you spent a half hour typing to diss on her for being honest about health struggles and finding answers. Ok that made a ton of sense. 🙄 Hope you feel better.
As someone struggling from female pattern hair loss at 28, this resonated with me so much. Thank you for posting this Cassandra, you're my favorite as always.
I am a doctor and have struggled with hair loss since my early twenties. At one point I thought I would lose my hair and need to use wigs or other ways to camouflage. I am now 40 and it is better than it was then, I can wear it long and does not show. My two cents - minoxidil helps, even if it is telogen effluvium - nizoral and exfoliating lactic acid shampoos for the inflammatory part of hair loss (I have some dandruff and seborrheic dermatitis) - nutrition: vitamin D, iron (look at your ferritin stores and if they are less than 60-70 supplement- take the supplement with something with vitamin C like a tangerine, and away from tea, coffee or dairy) - make sure your vegan diet includes lots of protein : eat a good portion of pulses every day (chickpeas, beans, lentils) and a good portion of tofu. - marketed hair supplements and vitamins are usually not very helpful and simple brewers yeast tops them all (with IRON and PROTEIN) xxxxxx Iron and protein may be another two things to supplement.
Thank you for commenting this! I have been suffering with hair loss ever since I was 13, yet I’m still struggling to find a solution. I also noticed that every time I wash my hair, my hair gets much thinner near my temples and on the crown of my head. I’m not exactly sure if I’ve been washing my hair wrong or the shampoos that I use are harming my hair. I usually use head and shoulders or Pantene but I feel like they’re making my hair a lot worse. What shampoos would you recommend for sensitive scalp?
@@milan9123 those shampoos are quite harsh. I haven’t used those since I was in my twenties and I feel my scalp going out of balance if I use them. The shampoos that worked for me were klorane quinine for a long time, and since I have been more aware of seborrhoeic dermatitis in my scalp with a few flare ups, I have used alternate days Healpsorin (has lactic acid and it’s anti inflammatory so good if you have dandruff or inflammation) and Nizoral (this has an active principle which is also anti inflammatory and inhibits Dh testosterone which can drive hair loss- it’s a frequent one recommended for hair loss). Nizoral can be very drying on scalp so just use 2-3 times a week then once a week when things stable. Vitamin d supplements and iron are the main nutrients to sort (and it’s so common to be deficient in those, even if you are within “normal limits” often not enough for hair health) and you can supplement with a tablespoon of brewers yeast a day for other micronutrients (it’s bitter, I take it with yoghurt and a bit of sugar and bust). Avoid stress and try to take things easy. See a (good) dermatologist but be aware that many may not necessarily know what they are talking about. Hair loss has 3 components and you may have more than one- nutritional/ stress, inflammatory and androgenetic- which is for you pretty much excluded at that age. Some people have autoimmune causes especially if it falls in localised round patches. If things look bad, don’t be scared of minoxidil once a dermatologist ruled out other causes, but be careful that it doesn’t go down your face by accident. I put it on at night and let it dry under a night cap to avoid this (can cause facial hair growth)- I have used it for 20 years. Iron levels are measured with ferritin and this should be around 60 or over if you have hair loss. Over half the population is very vitamin D deficient and most people don’t have optimal levels so taking a supplement blind over could we months when there is little sun is pretty safe at the doses given commercially (1000-4000 units). Just don’t forget on it as like Cassandra said, it is bad in excess (but this is very difficult to do) Best of luck x
@@Ok-cb5lw yes, it may be more effective but then it can really cause side effects as in unwanted body hair growth. For most people it is perfectly effective given topically.
I'm enthralled by all this science in this video. As a medical professional this kind of content keeps my attention and excites me. I appreciate your courage to put so much of your PMI out to the public, and appreciate that it will allow someone with similar issues to hopefully feel not so alone and maybe help them understand better.
Cassandra: you are brave and amazing for sharing these intimate details of your life. You are certainly a medical marvel. I am a former family physician who was often educated by my patients on their conditions. I had a woman who correctly self diagnosed herself as having Ehlers - Danlos syndrome. This was confirmed by a medical geneticist. It was very helpful for working with her in helping to give her appropriate care. Good luck on your continuing journey of self discovery!
Short term obsessive viewer, first time commenter. I found this video really interesting and my partner laughed at me while I watched. He's convinced that my hypermobile Ehlers Danlos Syndrome is contagious since I seem to find hypermobile folks everywhere I go. In my day job I'm an Occupational Therapist and I specialise in supporting people with complex long term conditions. I work with a LOT of people who have connective tissue disorders. Watching your video there were a few things I just wanted to mention so you can research and follow up with your Docs. Theres a trio of conditions that often run together with connective tissue disorders like EDS and Marfan. The first is PoTS (postural orthodontic tachycardia syndrome) which links to dizziness, autonomic dysfunction, digestion, sweating and urination. The second one is Mast Cell Activation Syndrome (MCAS). Common symptoms of which are histamine responses, oral allergies, food intolerances, urticaria, flushing, skin irritation, dry skin, eczema and other allergic reactions. These three conditions combined often work together to cause IBS-like symptoms. Partly stretchy gut, partly autonomic wonkiness, partly allergic responses. The downside of these combined issues is poor absorption of some vits and minerals. Often vit D, B and Magnesium. Not everyone with a hypermobility disorder will have obvious symptoms of all 3 conditions. But elements of each are common. I lean much more heavily towards the autonomic dysfunction than the MCAS but when unwell or stressed in particular I find my skin gets dry or irritated, my food intolerances get worse and my hair falls out more and my scalp gets flaky. It's really common with a hypermobility disorder to find each condition plays off each other and in times of stress or illness (hello global pandemic stress) flare ups of one of more condition cause a kind of cascade decline in all conditions. Fatigue and "burn out" are a common end result. I worked most of this out the hard way and spent ages seeking out the right healthcare team. When I qualified as an OT I was determined to let others have the same struggles. So I hope some of that was useful!
I’ve been watching you for around 10 years now and although I knew of some of your health concerns I had no idea the battles you were fighting behind the scenes. You are so strong for sharing your story and helping so many other people in the process. When you kept listing conditions I was almost getting angry - why would such a wonderful person have to fight through so much?? We are here for you and i hope you get the answers you need soon and find a team of doctors who truly respect and listen to you.
Dang, Cassandra! I have PCOS, and doctors have suspected endometriosis since 2019. Hearing someone else say they had to be on super powerful painkillers for pain in that area resonated so hard!! (Even if your issues are different than mine, I appreciate that someone else has spoken up and said they had to be on painkillers stronger than anything over the counter because of suspected/proven reproductive issues.) Thank you for being so willing to be open with us about your own problems.
I can't pretend to know exactly what you're going through, but I do know these words come straight from my heart. We are here for you -- to listen, to help, to care, because you mean so much to us.
Finally, someone is speaking about issues while trying to find a way through and not coming up with a magical remedy for a Problem, they never talked about before. I truly hope, Cassandra finds the answers to all of her questions. Thanks for opening up. I really apreciate your honesty.
Cassandra, I remember figuring out that almost every “unrelated” medical problem I had been experiencing for decades was because of hEDS. I can empathize with where you are now- it was one of the most enlightening and difficult periods of my life. I hope you get the answers you deserve to live the healthiest, happiest life possible!
my ex literally has all these conditions 😳 she was born with two uterus and only one kidney... also she does have long fingers and used to complain about dry patches.. will surely share this with her, there's really a few of you unique people ❤️ and you're definitely not alone in any of this
The comment about your gynacolologists really resonates with me. I've noticed that some doctors do not listen to you about your own body, obviously doctor's study for a long time and have an incredible amount of knowledge but some tend to undermine our experiences as well as pain, it seems harder as a woman.
This couldn’t have come at a better time. My hair has been falling out in patches and I need to find a doctor that I feel safe with to get to the bottom of it. I love that you have so many informed questions that you can take in with you when you see your specialists. Selfishly, I’d love to hear more about this part of your journey so that I feel like I have a buddy in this. But I understand that you’re just sharing that you’re kind of going thru it right now, and to that I say, HANG IN THERE SIS! YOU’RE NOT ALONE!
My mind is blown from this video. I adore you and your channel and I had no idea you were going through all of this! Thank you for being so vulnerable and willing to share. You’re so much braver than I am! I hope you get to the bottom of your health issues and start feeling better soon. Please keep us updated if you feel so inclined. I know videos like this impact a lot of people, including me. Thank you again 🦋
I really loved this video because it IS interesting and it's also refreshing because people just don't discuss their health - it's personal and private and there are good reasons why we don't (people can be shitty, bad unsolicited advice, - the works) but when you're experiencing something abnormal it can be so, so, so isolating. And finding a diagnosis sometimes isn't better because you almost feel hesitant to address other issues you have bc you feel like you'll be seen as a hypochondriac/won't be taken seriously. You almost start to think you have too much going on for it to all be true - but no, human bodies are incredibly complex. I was diagnosed with lupus last summer and already have a small collection of other issues (PCOS, 1 kidney, insulin resistance - untreated anxiety and I am 97% sure I have ADHD). But it is so nice to not feel alone out here navigating the medical system figuring out what's going on.
I live in the UK, and the government are silently privatising our NHS so we can't access healthcare unless we're literally dying. I told my doctor it was impacting my mental health so badly, and my sense of worth was on the floor. They just said sorry we can't help, take some vitamin D. I went again and the doctor told me they 'can't measure my hormones because they fluctuate'. No one takes female health seriously. There are so many campaigns about seeking help when you have mental health problems, but when you actually try and access that help no one wants to know. Plus every website always says 'speak to your GP', but they are less helpful than google sometimes!
Same - it took around 5 doctors trips over the course of a year to get my throat scanned because I couldn't eat without pain and was coughing constantly.. now I have permanent throat damage from my undiagnosed *severe* acid reflux. My own stomach acid and digestive enzymes were literally eating away at my throat and nothing happend for a year. That's just my general health stuff.. anything to do with my abdomen, like the random stabbing pain I would get on the lower right side, was attributed to my period... It took 6 years for me to get an ultrasound for that and they found nothing and dropped it. The first doctor I talked to about my migraines said it was "hormonal and [I'm] just making a fuss about nothing".. I've been on preventative prescription meds for over a decade now and still get migraine even after I started controlling my hormones with the contraceptive pill.. The NHS is shit now because the government don't think we have a right to exist in our very fragile human bodies unless we pay for it..
@@quintecence The thing is that we do pay for it, that’s precisely what our tax and national insurance contributions go towards, but the government are using it on other things that they deem “more important”which doesn’t make sense because surely the health of the people the government is meant to serve is a priority in order to keep the country going; if for nothing else but the fact that we’re willing to do the jobs that they don’t want to, like working in healthcare!
@@annafovargues5542 I think it's a problem when people claim stuff is free when it's not...keeping expectations low & complacent when things are "free"
You are so well informed! I am pre PA with intent to specialize in derm and this was so fun to listen to because you have a knack for explaining complex interactions within the body. Thank you for demonstrating how interconnected our body systems are and being an excellent example of self-advocacy in healthcare ♥️
Omg i have marfans syndrome and i started crying when you started mentioning it. I also have skin disorders and joint pain. I get checked every 6 months about my aorta. I wish you well girl ❤️💕 I hope you'll find the problem and treat it properly 💚 love from Turkey 💜
I have chronic Hashimoto's and around this time last year, I was found to also be extremely vitamin D deficient; another delightful side effect of the pandemic and having to be mostly indoors because of it. Whenever my TSH is high (and my metabolism is slower as a result) my skin and hair are dry and my hair tends to fall out much easier. With the vitamin D deficiency on top of that, my hair was really falling out and I freaked out a bit. Once the levels went back to normal, though, my hair did too. Skin and hair are good things to keep an eye on when you've got thyroid issues. They'll usually clue you in quite quickly when something's off. At least they do for me. Thanks for opening a conversation around these issues, Cassandra. I feel that thyroid disease in general and Hashimoto's, in particular, are rarely talked about but have such a huge impact on our physical, as well as mental health.
Thank you. I too have Hashimoto’s, hypothyroidism, and have a vitamin D deficiency. Alaska is probably the biggest reading for Vitamin D deficiency. And it’s rarely talked about. I had no idea until I did research myself that vitamin D can affect your Hashimoto’s. I am currently dealing with hair loss and stress. It’s nice to not be alone. And thank you for the advice about the skin and hair changes being clues.
@@melissagregory9882 You're very welcome and yes, it does help to know that Hashimoto's is pretty common. It's also slightly frustrating that, even though it's so common, it's very rarely talked about. I was also surprised to find out that there's a link between Vitamin D and Hashimoto's, especially since I've been getting treated for it for 8 years now and I was only told last year when I switched endocrinologists. I'm so sorry you're struggling with stress. For me, that's one of the biggest triggers. Whenever my stress levels go up for longer periods of time, my thyroid is all over the place. Hang in there, though, it's manageable. Hope you feel better soon!
Hearing you talk about painful period pains was so validating to listen to, I’ve had intense pain since I started my period at 13 but over the years it was just ignored by doctors and i was basically told ‘women have periods so get over it’ anyway when I was 15 I went into retention (couldn’t pee) I had to go into hospital and have a catheter, but there was no clear indication why and I can’t remember all the results from the tests I had because it was 15 years ago, so that was swept under the rug. Over the years after that I was getting recurring uti’s but they started getting bad in my mid 20’s and I was being hospitalised with kidney infections and sepsis due to the infection, so by this point I’m hounding the doctors for some answers and it wasn’t until I moved and changed my doctor that I started getting answers. With all my symptoms he sent me for blood test and scans and I found out that I had fibroids and pcos that’s when my doctor started linking the two and maybe what’s going on in my uterus could be causing my bladder/kidney infections, I am going in for laparoscopy to see if I have endometriosis and to see if any of it has grown onto my bladder. Having this issues and not having them taken seriously is something I’ve dealt with for a decade, and hearing other women like you talk about your experiences makes me feel so much better, I’m also take prescription pain meds (co-codamol) because regular pain meds like ibuprofen don’t even touch the pain, I do get a little iffy talking about the medication because a lot of people think they have the right to give you a lecture on how additive they are (like we don’t already know all this information) and I get extremely defensive since a lot of these people don’t have a clue what I go through, so thank you as well for being honest about the pain medication.
Karen here. Im 70. My Dr. Told me in 1975 they tell women after 6 years on the pill to get off. I later found out they were giving us 20x the dosage Drs. Give women now. Went off because I had a breast tumor removed. For decades I had pain in my Uterus area. After 10 Drs, some of which said it was psychosomatic, I got better insurance, a a Dr. Found a tumor the size of a grapefruit. Had a hysterectomy at 32. Went through menopause, lost hair on my head and body. Grew hair on my face. Many go through this crap. So heartbreaking. It affects relationships.
I've been shedding for the past 3 months and lost more than half of my hair. And I must say that even though I have an ED the hair loss was too much to be only due to my ED, I've literally taken every vitamin and multivitamin. So I went to the dermatologist and apparently I have seborrheic dermatitis and I started treating this, and when i brush my hair now I don't see as much hair as before! Now we're waiting for the blood exams results to do anything else!
Did you have your SD flare up on your scalp to cause your hair loss? I get it in odd areas which seem to migrate around my body, (which did once include my scalp years ago but not currently) but I am loosing hair still. Was just curious if mine could be related too.
@@lauramac6269 I have it on my scalp, face and ears, but I didn't know I had SD on my scalp for at least a year (I thought it was dandruff at first and was trying to get rid of it with only Nizoral and it got better and I'm still not sure what caused my SD to get so out of hand these past few months), and as for my face when I started seeing SD (but note that at that time I didn't know what that even was) I switched my skincare routine to products that contained certain ingredients (and my face it's pretty much 99% curated now) (also those ingredients are now in the products I now use for my scalp so I have big hopes). As for hair loss SD definitely played a role (because it's been two weeks since I started using what the dermatologist told me to use and when I brush my hair there is 80% less hair) but I'm still waiting for my blood results back, me and my dermatologist think it's also due to hormones and vit D deficiency (these ones are due to my ED)
Hedwig i suggest you to check your vit D level. Vit D defiency tend to be associated with hair at this period winter time as well as SD . I pray this helps.
Chronic telogen effluvium & AGA patient here (who is sending hugs & greatly appreciates your bringing awareness to the topic of hair loss). I was previously vitamin D deficient, but had a lot of luck with prescription vitamin D/now a liquid OTC supplement. Also had a great experience with low dose oral minoxidil after using topical for a few years, and added spironolactone and Nutrafol on as well two years ago, also with success and some regrowth. If you can find a derm who specializes in hair loss, I 1000% recommend it. It made all the difference in the world, as I think many derms have been trained to assume most forms of hair loss respond poorly to treatment/are a bit dismissive of wanting to intervene early. I hope that you can stabilize your vitamin D levels/find the answers you're looking for soon!
I have rheumatoid arthritis for several years now as well, and I know how debilitating it can be to discuss it with anyone - I hope that it’s much better in the Americas and Western Europe, but being from Ukraine I had to research it myself and almost prove it to doctors (and change a lot of them), as the general myth here is that RA occurs only with senior people. Now I’m on continuous medication, and recently I have noticed massive hair loss. Thanks to your video I know that I should definitely consult a doctor with it. Thank you so much for sharing this in this clear and confident way. Lots of love and appreciation to you ❤️
I am on that part over obgyn and I just wanted to share my own frustration, woman's health is still very neglected. This is sad but we keep hearing "sucks to be a woman", "it's part of being a woman" but NO! STOP, we want doctors to listen to our problems and actually do research. I was barely in time to find my androgenetic alopecia because my doctor didn't want to look into my hormonal unbalance... I still have pain because apparently everything is fine with my cervix but I keep going back and forth with discharge and occasional pain. But doctors almost say "man up!" Woman health is neglected.
You are absolutely right ! I have endometrioses, and I feel like everything related to women's identity or women's pain (period pain, pregnancy, labor) is sort of the blank point of medicine ! We are almost expected to be willing to suffer, and if we look unwilling we are labeled as sissies or drama queens...
Absolutely! I had a gynecologic issue that was causing me extreme discomfort. Went to several doctors who all said nothing was wrong. I did my own research and the only thing I could see that seemed similar was listed as "extremely rare with barely any reported cases". Long story short I ended up at the emergency department unable to sit or walk without being in pain. They finally acknowledged something was wrong but I ended up leaving with no answers, they said if it gets worse go to the emergency room at the women's Hospital so I went there. Had a bunch of student look at my genitals, was "treated" which was so painful I almost passed out. Then they offered me tramadol (despite it being contraindicated with my medication). I said I was driving home so they offered me a lower dose. But here is my issue... despite the symptoms they wrote down being exactly what I read on Google before going to the hospital, my results won't be reported anyway, they won't go in some journal so that it might help another woman in my position. Because women's genitals or reproduction, they don't want to hear it or deal with it. It killed my sex life, my sex drive, my self esteem, caused borderline debilitating pain but no one gave a shit.
Thank you for talking about this, and thank you for making yourself vulnerable. I am sorry you are going through what you are going through. At 26 years old, I have this summer realised that I have suddenly lost a lot of hair in some places on my scalp, including my hair having become suspiciously thin. I don't know if this has been slowly progressing and it has only now gotten to a point where I realise it (because the difference is now dramatic enough), or because something happened. However, I have been battling with (initially severe, now very moderate) psoriasis and atopic dermatitis since I was 20 years old which has left me itching so badly that I drew blood. It has also really f-ed up my scalp, but I thought not much of it, because I had been battling with (non-itching) dandruff since I was a teenager. Now, since I do not have uteri, it cannot be related to what you're having, but I'm glad you are talking about this. So, maybe the hair loss is just androgenetic alopecia, maybe it is related to psoriasis, maybe it is stress-related, maybe it is some substance that harms my hair follicles. I HAVE been talking about it to my friends too, and I have been open about using Minoxidil starting in September, and you are right: it really feels like a load taken off when I open up about it. Again, thank you, and I hope to see more K-Beauty hair products in the future. :D
I didn’t get to finish the whole vid but would like to share: I had terrible terrible acne years ago come to find out I was diagnosed with Ulcerative Colitis. (Which of course no doctor correlated the two) But once I started to treat the inflammation in my colon, my acne went away. Had changed nothing else. I think it’s important to look at our bodies as a whole - not my certain systems.
I totally agree! Once I started using probiotics, my severe headaches, as well as frequent vaginal infections, finally stopped after YEARS of suffering!
I worry you might be not absorbing nutrients especially minerals. I also have ibs and gut damage. I cant absorb certain things so i have to supplement. For eczema (which i used to have) i recommend a liquid b complex, liquid zinc, iron, and vitamin d3 to increase immune and wound healing ability. I got blood tested and was very deficient in d3. I guessing since ive been inside a lot during thid pandemic. I got a rash on my cheek, added d3 into my diet, and it healed! Magnesium is also important too. I put cashew powder in my overnight oats! It has zinc/iron/magnesium in high amounts. Please take supplements cassandra! Trust me. Some people just don't absorb it well or need more due to their body types! There are studies for example that show we lose the ability to absorb b12 as we age so we must supplement! Try it out and see how you feel! Im also vegan! I try to get as much of these minerals from my food. I am consistently taking d3 and b12. Iron was a one time thing and it was enough to cure my anemia (i was anemic even on a meat diet). Protien with each meal is also important and omegas. Only eat organic legumes and breads as the pesticides can damage intestinal lining! Anyhoo, i just wanted to help!
I love how open and honest you are. I do watch you all the time. I am now going back to older videos now since I had a lot of medical problems last year due to Covid. I also have low vitamin D and I am on 5000 iu at this time. I find your descriptions of everything informative and very eye opening. I will continue watching all your current and older videos and if you haven’t already, please continue with this information. I am very interested in learning anything and everything! You are awesome and I will love and support and pray for you! Thank you for being you!
I have EDS so I understand the testing, skin issues, heart problems and so many other things. I hope you find your answers soon and I hope your dad’s cancer will be in remission soon!!
Thank you for explaining all this. I can’t imagine having to go through all you’re going through. You seem to be handling it all like a champ, though! I’m actually going through hair loss too. It’s such a frustrating condition! Please keep us updated!
i have EDS and this video off top made me feel something. regardless of what it is, thank you for braving up & sharing your health journey. i’m sure it makes a lot of us feel less alone.
You are so courageous coming here and explaining all this to us. Thank you. My mother had a "disease" in her uterus too, not like yours, but she had a lot of abortions because of babies dying inside her ( I was the blessed one to be born). Everything seemed fine until she started having longer and more painful periods, and she took too long to go to the right doctor and in the end she ended up just doing a surgery to take off the uterus. Now she is free from those. If you don't plan to have children of your own or consider adoption maybe try checking with your doctors if you can do this surgery and be free of those painful periods. You are so strong, congratulations for going through it... You are YOUTIFUL both inside and out
Cassandra you are an amazing , natural teacher. I learned so much from this video, and as someone who just lost my last grandparent who also suffered with dementia, it is very nice and comforting to know I'm not the only one dealing with that, and things of that manner. People don't discuss these sorts of medical subjects a lot and it is so important and vital to open convos to make it more acceptable to talk about medical issues/situations. Thank you seriously from the bottom of my heart this vid helped calm me x
I noticed Cassandra's hairline for sometime now but I was a little worried and concerned about posting any kind of reaction...as always, Cassandra always stays true and open about any subject!!!
Hello Cassandra, I was told I have Telogen Effluvium after a stressful period in my life. It was a struggle for me but I've definitely realised that hair loss in women needs to be discussed more. Even though you haven't been diagnosed I really appreciate you discussing this part of your life. Anyway you look incredible.
Going through a lot of the same health issues. From my experience and what helps me is bone broth, glutamine supplementation, carnivore diet, liver supplementation, and vitamin d3. Wishing only the best for you! 💕💕💕
I just wanted to say that I'm crying. I've been dealing with Juvenial RA for 40 years. I was diagnosed with JRA when I was 3. I started taking all the medications that they suggest, including I'm on Experimental treatments for Auto immune diseases. My skin was in terrible shape after mengetis twice and and cancer twice. I also have polycethemia a permenat blood cancer. It's been a very rough time but when I started watching your videos, I learned so much about skincare and I feel so much better. I don't know what to say except that seeing you get online and talk about what it's like to be sick and for most of your life just made me feel like I wasn't alone. Thank you so much, I might be a cyster but I'm right there with you and now I feel l ike a have a sister in life.
Cassandra, I have always found you absolutely gorgeous & so authentic. While I do not have the same condition youve opened up about, I have struggled with other severe chronic conditions and can sympathize. Finding an expert who coulf actually provide a diagnosis after 30+ months was LIFE CHANGING. Sending tons of thoughts your way & hope you find a physician who can change your life too!
I totally hear you on the pain. Endo Stage 4, doctors didn’t catch it and just said I was crazy Now my cervix is connected to my colon and they can’t fix it. Plus PCS it’s really tough. I took morphine when I had insurance. I’ve had horrible obgyns this world hates vaginas!
Thank you for mentioning Hashimotos disease, I've seen throughout my whole life how my mum has struggled with it, especially getting diagnosed. But since she was officially diagnosed, she hs been doing so much better! But she suffered for decades
I have Hashimoto's and I just want to say it's so common for thyroid testing to not be extensive enough or to be interpreted according to the newer, tighter lab ranges. So many people fall through the cracks. Dr. Will Cole has a good article with the updated lab ranges (the "functional" ranges) and which tests to get. Ideally, you want TSH, T3, T4, Free T3, Free T4, Thyroid Binding Globulin, TPO antibodies, and TG antibodies (for some reason, antibodies are rarely checked but since Hashimoto's runs in your family, definitely get them checked). I would also check ferritin levels, as that can be a big cause of hair loss in people with hypothyroidism.
I’m glad you wrote this comment. So many people don’t know that basic testing for thyroid is useless for a lot of people. Always get a full panel. I got the basic TSH a year ago and it was a 3.4 which is in the normal range. But I was having issues. I insisted it be treated and now it’s at a 0.9 and I feel so much better. Ideally the number should be under 2.
Thank you for sharing your story! I totally sympathize/empathize with you. I have suffered from terrible skin issues/overall body pain since I was a child, among other health issues. Like you, I also suffer from a congenital form of scoliosis called Kyphoscoliosis. I went to doctor after doctor only to be met with skeptical looks and no answers. When I moved to Houston I made an appointment with a geneticist at Baylor University and was finally diagnosed with Hypermobile EDS (Ehlers-Danlos Syndrome) which is also a rare genetic connective tissue disorder characterized by overly mobile joints…that can dislocate very easily…due to the lack of a protein in my body which is responsible for the production of collagen. I am so sorry that you have to go through all these health issues, but I can’t tell you how appreciative I am for your strength and courage in sharing your story. It means the world to have an opportunity to converse with someone who can actually understand what it’s like to have to deal with a plethora of chronic health issues!!! God bless you and I pray that your doctors are able to figure out what is going on with your health!!!
I had te and it was so hard on me. I didn't realize how much my hair was a huge part of my self esteem. I got my hair back within a year I was also diagnosed with a blood disorder and other things. Thank you for sharing your medical information because I find it so informative. Also, I had endometriosis and pcos with the worst pain and having a period for so long that I couldn't even remember when my last one ended my doctors would prescribe me with tylenol and send me on my way. Wishing you luck on figuring out what is going on 🙂
Watching this makes me travel down my own health journey for the past couple of years, especially with my dermatomyositis diagnosis. Your story sounds very similar to mine, so hearing this is so comforting to me. It would be amazing to talk to you in person cause it is hard to find people that actually understand. That is why I love the beautiful Butterfly family here. I have looked up to you for a long time now & once again…you show me why you are a hero to me. Thank you for being so open & honest with us while also teaching us more about ourselves every day. I purple you very much & again…from the bottom of my heart, thank you! 💜❤️💜
Wow, girl! You are dealing with a lot of health issues and then some! I hope you find the connection and get the right answers! Good luck and don't give up! After complaining for years about depression, anxiety, hair loss, etc. I have low thyroid too, and am now wondering about other issues that may be related.
Man! I have NO REASON to complain about my little problems. Thanks for making me realize that I've actually got it pretty darn good Cassandra! Thanks for being so open. Know you're not alone!
This should be a whole series. It’s really nice to see how physical issues manifest in to the mental are really connected. I’m currently dealing with impacted ear which I had to find out is more common as you get older. My mom had eczema but she suffers from the other skin common skin condition.
Hugs to you. This is a lot to handle, and it’s amazing you shared with us. I have an autoimmune condition that took some time to diagnose, so I appreciate anyone using their platform to discuss their health.
As someone who has lived with psoriasis for almost 30 yrs, my skin is a hot mess. I love that isntree bifida ampule...my skin loves it. I absolutely applaud you for being so open and transparent with us. ❤ I hope you have an amazing Christmas. 🤗
Just omg, that not what I expected from hair loss video. Started with “‘be been there, done there” on childhood psoriasis and psoriatic arthritis. And dropped a jaw later. Admiring Cassandra with having energy to be that crazy active and productive, as only one diagnosis almost took me down 10 years back. Of course I am not competing or comparing conditions. But admiring wisdom 🙌🏻
I was diagnosed with rheumatoid arthritis 13 years ago, and I have gone from super oily skin to super dry skin, as well as my normal skin has become more and more sensitive. The more my illness progresses, the more my skin becomes drier and MUCH more sensitive. I also have lost a great deal of hair in this time, and my scalp (and hair) have changed radically as well.
Oh, man. I cried when you spoke about not being believed for your period pain... Relatable! I have Stage 4 Endometriosis and Adenomyosis. I have had to have blood drained because it's clumped up, numerous cysts, been given crazy painkillers that don't work. Have thrown up and passed out from pain sooooo many times. It's insane to me how many people think I am exaggerating and I'm "having a bad period". Once I needed emergency surgery due to a cyst rupturing on my ovary, pictures were taken to show how savage things were inside me... NOW people understand. I'm having a hysterectomy and I can't wait. I hope you find the answers you need and I'm so glad you've found this syndrome! I understand the relief of having something that makes sense!
You are unique in being a very heart- centered creator on this platform, Cassandra. Thank you for sharing this in an effort to help others. I've had an incredible experience healing various conditions with chinese medicine (acupuncture), ayurveda, and naturopathic medicine. I highly suggest you check out at least naturopathy if you haven't already. I find those experts have greater understanding of how to manage the entire body system and improve a condition, rather than suppress symptoms. Personally, in my case, the western medical approach was quite limited and depressing, and did not help me get better.
my boyfriend recently got diagnosed with marfans syndrome, after an emergency surgery on an abdominal aortic aneurysm which was terrifying to go through. if you suspect you have marfans, it's definitely a good idea to get it looked into further sooner rather than later, so i'm glad you're seeing a specialist asap 💖
We thought my son had Marfans syndrome because he was 6'2 and skinny at 12. After genetic testing we found out he has Ehlers-danlos. The genetic testing was worth it. Good luck and hoping you get the answers you need. Thanks for all your wonderful videos! You have really helped me so much. ❤
Going through a similar period of discovery as I finally get my health concerns diagnosed. It is so comforting to actually have answers, even when they are negative. I wish you all the best in your journey
Hair loss seems to be quite prevalent in this stressful Covid time. Dr Dray also has addressed this issue on RUclips. I know many women who have noticed an increase in 'shedding' and less fullness in their hair . I relate to the painful periods. Too personal for comments but.. I understand.
@@msjonesss I'm plant based as well and you're not wrong. Hair loss and under-eating or not having proper nutrition correlate. When I was a teenager I suffered anorexia and I started losing hair! A lot of vegans make the mistake of not consuming the proper vitamins and nutrients they need
I lost half of my hair at 18 and no Drs believed me. Finally at 19 I got diagnosed with androgenic alopecia. Thankfully I got onto it early and with (very expensive) medication and a very pricey Derm Professor, my hair is doing well now. But there have been a few horrific regressions. Thank you so much for sharing your experience with extreme hair loss. It's so helpful knowing I'm not alone ♥️ (I also have persistent scalp psoriasis which is a winning combo with the alopecia 😑)
My hair loss comes from PCOS, a hormonal imbalance, which is primarily part of an insulin problem. I am working on my diet and taking multivitamin New Chapter for women and it has been helping to at least make my hair thick.
What a history of diseases... and you are still that positive! Thats amazing. I have Hashimoto disease and my hair is falling like leaves in autumn once a year. Hurray.
Advice here: I have suffered several hair lose at the age of 15-18 due to bleaching and stress I am currently 20 and CASTOR OIL has been a mayor help for me. I put it in my hair line overnight and wash the day after. 3 months in and I have seen several baby hairs growing and my hair is recovering super fast. Hope it helps ❤️
Bless you for sharing so much with us. I imagine you've helped so many people feel more comfortable in their skin with skin conditions. I personally struggled with acne & my gosh did it ever destroy my already lacking self esteem. I always thought if my skin was just clear I could be confident like other people. Turned out when I stopped wearing all makeup is when I became confident, it showed me that my people still love me just the same. More confident now than ever was with a full face of makeup. Its incredible how makeup can impact our self image good and bad.
I started spironolactone about 3 months ago due to hair loss- which unfortunately my doctor ignored for years. This video definitely makes me feel not as alone, so thank u for sharing your experiences Cassandra ❤️
Does spironolactone help hair 😯😯😯 I got it prescribed for edema. I’m sorry to read about the doctor.. I’ve been so out of luck too.. ✨ Merry holidays! ✨
To me it seems that most doctors tend to ignore issues with hair loss,acne & female health issues such as PCOS, painful periods, excessive facial hair etc. Literally all the females I know who went to see a professional with the above problems got low key ridiculed and sent away.
@@catpuccino6186 same. There are research studies that reveal how women are, more often than men, dismissed, misdiagnosed, undiagnosed, etc when it comes to medical care. It's very frustrating.
@@rosemary5005 it does help in some folks! The first-line treatment is usually minoxidil (Rogaine), but spirinolactone can help if the Rogaine doesn’t. I actually wanted it for my own hair loss, but can’t take it because my blood pressure is too low; as you know, it’s also a diuretic!
@@catpuccino6186 Exactly. It’s so ridiculous. I’ve had a few gynos tell me I probably have PCOS now (a couple said “99% sure”), but because I’m not vastly overweight and hirsuit, they don’t wanna do a damn thing about it except prescribe birth control. I was on that for ten years; I am so sad to think of how much more control I’d have over my PCOS and hormones if I hadn’t masked the symptoms with birth control, due to neglect to follow through on the part of gynos. Even I, as an RN-BSN, have lost all faith in doctors and other advanced practitioners when it comes to PCOS and other female reproductive issues. It’s an effing joke.
As a person who has had undiagnosed endometrioses for about 19 years i can really relate. Not only how it affected my body but also my hormones and skin. Also relating to the obgyn not taking my problems seriously. I'm 33 years old now and finally understanding my body, hormones and skin and how all is intertwined. Thank you for for honesty and being open about (female) problems that can have a huge impact om your body and life.
I admire the way you explain things so much! Thank you for opening up (I think it is very brave to be vulnerable like that!) and addressing such complicated topics in a way most of us can understand and learn! I find this really interesting (I am a bit of a hypochondriac, but mostly because I love biology) and I wish you all the best! Hope you can find answers and live a healthy and happy life 💚
Cassandra, I watched this clip about two weeks ago and because I had similar symptoms. Therefore, I went to my doctor and had my blood work done. He called me about 10 minutes ago and he told me that I have extremely low vitamin D levels. So thank you thank you thank you. Now I can treat my symptoms. You are a bloody legend. I don't know how to DM you but I really want you to know. Gidday from Western Australia. Love your content!!!!
Omg, I couldn’t ever expect how long and hard your health journey was! I’m really rooting for you and I’m so sorry you have to go through all that pain. You’re a wonderful energetic woman and all the content you create is very educational! Wish you all the luck with getting better.
This is an amazing video Cass, thank you for sharing! Validation is so important when dealing with lengthy mysterious illness. I have recently received answers to a major health issue and I was told multiple times in the past that it was all in my head or that I was just lazy when in reality, I have quite a debilitating illness! The validation is REAL!! Love you guys 💜🖤💜🖤💜🖤
I’d love to hear more about your hair loss journey, what you end up finding that is cruelty free would be lovely. Also loved watching this video, although uterine didelphys isn’t relatable for me I’m sure a few people will appreciate this video so much
Thank you for sharing this! I have hypothyroidism, adult acne, and dermatographia. Two years ago my hair started shedding. It was awful! I tried several things and was just completely disappointed and finally gave up. Over the last year, for separate reasons, I made huge changes in my life. I quit eating gluten and within a month my skin was clearer than it had ever been. I started taking vitamins. I stopped using shampoo. These changes together have completely stopped my hair shedding and my hair has grown back incredibly well. I hope anyone suffering from early hair thinning finds solutions that work for them. Thank you again for sharing your very personal story.
I experienced hair loss twice in my life (due to anorexia nervosa). It was very traumatic for me, and for years later I would get anxious about seeing normal hair loss in the drain or from brushing. The only good thing out of it was that I decided I liked having shorter hair (during both times my hair was long).
Cassandra, I am so so sorry. I know how hard uncontrollable health condtions can be. Especially when it effects your outward body as well. Thank you so much for this channel and always having a smile on your face. It really helped me get through some really bad skin issues last year and you've helped so much. Thank you for sharing your story!
I'm not a doctor but I would go see one if I were you- don't let it keep going on- you can get bloodwork done to help see why that is happening.- You can also take your multivitamin and Viviscal. Rogaine as well.----Read further down on the comments- a doctor replied with some things that can help you.
@@user-mo4wt9gk9y thank you for that! I actually planned on going to the doctor soon to discuss it. You’re right, it really needs to brought up to your doctor so they can determine the cause
I have chronic illnesses and chronic pain that’s very prevalent in both my family and my friends, and sometimes you really have to keep going (if you can) until you find a doctor that actually listens to you. A lot of people end up trying to self-diagnose physical conditions because their doctors don’t listen, or sometimes they have something super rare like this and the doctors don’t even know anything about it. There are some very good doctors out there but unfortunately theres a LOT of people who just don’t get listened to. Good luck with finding a good obgyn
As someone with one kidney who’s mom always tells her whatever is wrong with her is due to a vitamin D deficiency, your explanation was enlightening. According to the latest scan my kidney works perfectly, but it is still something to consider I’d say. Thank you for the information!
You are an excellent storyteller! It is very brave to be so open about your life and medical conditions on the internet. I'm terrified to tell anyone what I had for breakfast for fear that people with pitchforks will head my way. As someone with way too many diagnoses and chronic health problems, it really helps to have a big sister make me feel less alone. Great job in everything you do, and I would love it if you kept us up to date on your health journey!
Low vitamin D is associated with low magnesium. Too much vitamin D also decrease magnesium. I recommend you get your vitamin D from lichens, which is plant based. And please start taking magnesium malate or glycinate. Also watch out for oxalates in leafy greens 🙏🏿
Yes!! Lichen is God send because it has helped my non vegan dad while the ones his doctor prescribed him didn’t do anything. The one we use is by mrm d3 with k2 because studies show d3 gets more absorbed with k2.
Hi. Thank you for making this video. I have a few medical issues and I always feel self conscious, but it's comforting to know that others are also on this journey. PLEASE UPDATE ON THE HAIR LOSS
I feel you.. I also had acne and I've had tellum effluvium ever since I breastfed, also vitamin D deficiency + B12 deficiency. Also seborrhea of some sort Also extra long fingers on both hands and feet and some scoliosis. I've been trying to make sense of these symptoms for the longest time, but still no luck. What makes me mad is the fact that my husband and family think I am a hypochondriac for trying to find the logic behind this. Everything in our body is connected and I do believe it's just trying to tell us in a very complicated way, that something is out of balance in it. Doctors in my country (Bulgaria) have not been understanding so far and do not try to research the problem further, so I educate myself, which had led to some sort of an obsession. I've had hair sawn in to feel better. i hope we find our answers sooner rather than later. Wish you good luck and keep telling us about this stuff. :)
Never feel alone Cassandra.. I know it's very intimidating to be so prone to like literally everything.. you have so many ..so many problems..but you're still smiling..but I can see the stress in you.. God bless you Cassandra.. you're an amazing soul.. you'll heal
I wish you the best. I have hypothyreosis, and because of that my iron levels are not the best. I always had fine hair that had a really slow growth, but recently I also noticed that I'm having a bigger gap up there. I started to use the Ordinary's Multi-Peptide Serum for Hair Density, and I'm seeing great results. Someone said it perfectly that what this serum does is, it helps your hair to grow healthy. Maybe try that until your full diagnosis.
Keep us updated! Stay strong and thank you for sharing your story with us. You've helped so many. You're so wise and thank you for educating us on different topics❤ You are very loved within this community!
Thank you for talking about some really tough personal topics so openly, this needs to be more of a thing in our society. I struggled for years with intense discomfort with my cycles, (7-8 days of heavy cycles) I was just told it's just that way for some people... At 44 I finally demanded that someone take a closer look (ultrasound and then MRI) due to my abdomen enlarging over time, even with good diet and exercise... turns out my uterus is the size of a small watermelon, and there are definitely things going on! If I had not been an advocate for myself no one ever would have bothered to check anything. Thankfully I am scheduled for a hysterectomy, which is definitely okay with me if it improves my life and these symptoms. I went through so many years of being told just diet more, just exercise more, you're slightly enlarged abdomen isn't a crisis, you're getting older... When I knew that I felt that something wasn't right. Anyhow thank you for being open and honest, hopefully this helps other people to advocate for themselves and not get discouraged if the first doctor says they're imagining things! 🦋
Hi I just saw your comment. I don't know what tests you've had done but the description sounds similar to me and I was diagnosed with adenomyosis and endometriosis. Might be worth mentioning to your Dr
Another possible suggestion could be fibroids. I know painful periods are miserable mine were horrific I wasn't diagnosed until I collapsed at work bleeding through to my seat( I had a endometrioma rupture) I suffered for over 16 years until.that happened then they wouldn't give me a hysterectomy I spent 6 years on a chemo drug to give me a chemical menopause then they finally did. You feel like your going crazy I was accused of being an addict a hypochondriac
@@victoriahollis3454 I hope you are feeling better after all of that craziness - it is awful that things have to get extreme for us to be taken seriously.
I appreciate your strength and openness so much! You have gone through a lot of trials and continue to come out on top! I pray it continues to be victory after victory for you Cassandra. You are an AMAZING butterfly! 🦋 🦋 😘
Thank you for sharing your journey thus far, for not self-diagnosing, and for being exactly who you are! I would love updates as you get them. I can't relate to your exact story as it's only yours and no one truly understands what we've gone through but ourselves. I can relate to lot of what you said though.. the self-doubt, the feelings of going crazy... My mom's side of the family has a ton of autoimmune disorders (my mom, grandma, uncle, 2 of my cousins...) and although I've never gone to get diagnosed with anything I've struggled with IBS, symptoms, joint pain, acne, headaches/migraines, a crooked spine, menstrual cramps that would wake me up from a dead sleep, hyper-sensitivity to touch, and worse of all: severe muscles aches/cramps in my legs and back. I was about 11 when everything started and I tried everything to naturally "fix" it through my teen years from yoga to going gluten free and these things only made my ED worse because the only thing that seemed to lower my inflammation and take away my painful periods was eating less and less. As anorexia became orthorexia which became anorexia again... my life felt so overwhelming and eventually the muscle aches in my legs got so bad I could hardly stand to walk. All that said, my mental health is at an all time best, my skin is clear, my digestion is regular, and I'm completely pain free most days. I still have a few bad days here and there but I can now say I now feel like a "normal" person. What I changed: I went fully vegan, I got my anxiety issues addressed, I started managing my sleep schedule more than ever, I greatly limit caffeine, I cut out all the major stressors in my life that I reasonably could, and I 100% surrendered my mind, body, and spirit to Yahweh and received true grace instead of just practicing surface-level religion out of guilt. The more I prayed with faith and the more I let go of my need for control and answers the more I felt the Holy Spirit guiding my intuition to all the things I didn't know were my triggers. Of course what works for one person doesn't work for everyone, but I wanted to share my story to tell whoever is reading this that there is hope and that you're not alone. "Come to me, all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy and my burden is light." Matt. 1:1 "Fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand." -Isaiah 41:10 "Bless the Lord, O my soul, and forget not all his benefits, who forgives all your iniquity, who heals all your diseases, who redeems your life from the pit, who crowns you with steadfast love and mercy, -Psalm 103:2-4 God bless Cassandra! You are dearly loved
My brother is suspected to have Marphan's too... I remember being one of those people who pointed it out but it's because I have it too !! Hair loss started for me at age 23, I'm now 27*. I went to a private derm here in Montreal, he checked my scalp and confirmed it's androgenic alopecia ( you and I have the same balding areas ). I was also low in vitamin D and ferretin and have very horrific periods. I am scared of the pain before it gets me. I vomit, stuck in the toilet etc etc. It is really bad. Anyways derm told me for the hair that increasing the iron and vitamin D can only slow down the alopecia but not stop it. And he told me that Rogain is the only real treatment OR platelet rich plasma ( which I cannot afford )... I did find a shampoo that works for me called Phytocyan. the shampoo slows it down a lot and adds density to the hair. Not cheap but lasts long. Apartently Audrey Hepburn used it ! Lol
Christina I have androgenic alopécia and nizoral has changed my life! Ketoconazole blocks the DHT from clogging up the scalp. There are even published studies that concluded it outperformed rogaine! It took 3-4 weeks for me to see a difference but I am now 2 months in and not shedding ANY hair in the shower anymore 🙂🙂
Bonjour! Je suis aussi de Montréal! Est-ce que tu as aimé le dermatologue que tu as rencontré? Si oui, est-ce que je peux avoir son nom? J'en cherche justement un au privé pour ma perte de cheveux et mon melasma... Merci!!!!
It sucks when it is so hard to be your own advocate for your own health. I'm happy you mentioned that the team of medical professionals in your current situation seem to be playing on your side. That makes me happy. I've fallen through the cracks and felt alone before I found the right people to listen to me. Keep using your voice, love your content! Good luck in your current medical journey I'm wishing for you to find the answers you need❤️❤️❤️❤️
I loved this video. I subscribed a couple years ago while looking for a skincare routine for hormonal cystic acne and scars and have been keeping up from time to time w/ your videos, but this one was amazingly..extra personal for me. I myself have also struggled with proper Physician care for a long time, being diagnosed with Ehlers-Danlos, Graves Disease, early Osteoarthritis among other things that my EDS is connected to, it really feels like the whole body is shutting down..and it's SUPER hard to find doctors to take proper care of you, to notsee you as "faking" it or "drug" seeking..and as an actual human being with multiple system dysfunctionalities. I definitely feel closer to you, thank you so much for sharing your journey. -fellow cyster
As a medical writer, I applaud how you were able to break down the metabolism of vitamin D to be so understandable! I also am very vit D deficient, to the point that I've needed Rx strength supplements because my levels were dangerously low. I have a sun allergy, so SPF is more than my BFF, it's my bodyguard (I usually go for UV blocking fabrics on top of SPF though for extra protection)! So my body can't really produce vitamin D the way normal people can, due to lack of UVB exposure. Now that I'm on a consistent OTC supplement regimen, I'm at a normal or near-normal level and feel a lot better. I was dealing with a lot of these bizarre, tingly stinging pains in my arms and legs, which made it hard to sleep or get anything done. Luckily the doctors caught it, because the treatment was so simple, but made such a big difference!
Thanks for being so raw with all of us. I'm currently going through investigations with my health as something is terribly wrong and they can't find me answers. Like you I need to change doctors 100%. We love you
So much love to you. The amount of times I've been called a hypochondriac as a person with chronic illness is astounding. And later on I was finally diagnosed and my doctors were like "ohh..." yeah I was right. Take care of yourself and fight for you!
God this is so true. Being called a hypochondriac is so disheartening, especially when you know you are not making your symptoms up. Ugh.
CASSANDRA!! I was also born with uterine didelphys!! 2 cervix AND ONE KIDNEY! I am 48 years old and have had 12 surgeries since I was 12 years old... I GET IT 💛 I did end up having to have a hysterectomy at 24 years old. I am also a registered nurse for the last 17 years... I understand your pain and can help if you would like 😘
Off topic but is that you in your profile pic? If so, you do NOT look 48! You look like you're in your twenties/thirties! 😮
May I ask you, you had 12 general anesthesias? Sorry for asking, but I am worried about the general anesthesias if they can actually harm us on long term.
Hey! Hope you are doing well. You are so strong. Sending you love ❤️
Wwooow u look so young ! I hope your doing well..reading ur comment inspired me to stay strong also having health issues..wishing u well ❤
@@smilesallround Yes that is me, I think I took that picture 2 years ago tho.
Such an amazing job of taking a very complicated topic and providing an epic narration! This is exactly why I watch you!!! You can conquer any topic, and most definitely figure out what is going on with your health. 💪🙏❤
I agree 1️⃣0️⃣0️⃣%
@@MyCleverHandle You had no time to listen to her. … Yet you spent a half hour typing to diss on her for being honest about health struggles and finding answers. Ok that made a ton of sense. 🙄
Hope you feel better.
@@MyCleverHandle You need a cookie and a hug. 😄
Well said! She is brave for talking about this. More people should learn from her bravery
As someone struggling from female pattern hair loss at 28, this resonated with me so much. Thank you for posting this Cassandra, you're my favorite as always.
I have been struggling with this one too, and undiagnosed for 5 years. And as a yound person it was really rough for me...
I was diagnosed at 22, but I had it a bit earlier. For me it started in my senior year in HS
I am a doctor and have struggled with hair loss since my early twenties. At one point I thought I would lose my hair and need to use wigs or other ways to camouflage. I am now 40 and it is better than it was then, I can wear it long and does not show. My two cents
- minoxidil helps, even if it is telogen effluvium
- nizoral and exfoliating lactic acid shampoos for the inflammatory part of hair loss (I have some dandruff and seborrheic dermatitis)
- nutrition: vitamin D, iron (look at your ferritin stores and if they are less than 60-70 supplement- take the supplement with something with vitamin C like a tangerine, and away from tea, coffee or dairy)
- make sure your vegan diet includes lots of protein : eat a good portion of pulses every day (chickpeas, beans, lentils) and a good portion of tofu.
- marketed hair supplements and vitamins are usually not very helpful and simple brewers yeast tops them all (with IRON and PROTEIN)
xxxxxx
Iron and protein may be another two things to supplement.
Thank you for commenting this! I have been suffering with hair loss ever since I was 13, yet I’m still struggling to find a solution. I also noticed that every time I wash my hair, my hair gets much thinner near my temples and on the crown of my head. I’m not exactly sure if I’ve been washing my hair wrong or the shampoos that I use are harming my hair. I usually use head and shoulders or Pantene but I feel like they’re making my hair a lot worse. What shampoos would you recommend for sensitive scalp?
Thank you!
@@milan9123 those shampoos are quite harsh. I haven’t used those since I was in my twenties and I feel my scalp going out of balance if I use them. The shampoos that worked for me were klorane quinine for a long time, and since I have been more aware of seborrhoeic dermatitis in my scalp with a few flare ups, I have used alternate days Healpsorin (has lactic acid and it’s anti inflammatory so good if you have dandruff or inflammation) and Nizoral (this has an active principle which is also anti inflammatory and inhibits Dh testosterone which can drive hair loss- it’s a frequent one recommended for hair loss). Nizoral can be very drying on scalp so just use 2-3 times a week then once a week when things stable. Vitamin d supplements and iron are the main nutrients to sort (and it’s so common to be deficient in those, even if you are within “normal limits” often not enough for hair health) and you can supplement with a tablespoon of brewers yeast a day for other micronutrients (it’s bitter, I take it with yoghurt and a bit of sugar and bust). Avoid stress and try to take things easy. See a (good) dermatologist but be aware that many may not necessarily know what they are talking about. Hair loss has 3 components and you may have more than one- nutritional/ stress, inflammatory and androgenetic- which is for you pretty much excluded at that age. Some people have autoimmune causes especially if it falls in localised round patches. If things look bad, don’t be scared of minoxidil once a dermatologist ruled out other causes, but be careful that it doesn’t go down your face by accident. I put it on at night and let it dry under a night cap to avoid this (can cause facial hair growth)- I have used it for 20 years.
Iron levels are measured with ferritin and this should be around 60 or over if you have hair loss. Over half the population is very vitamin D deficient and most people don’t have optimal levels so taking a supplement blind over could we months when there is little sun is pretty safe at the doses given commercially (1000-4000 units). Just don’t forget on it as like Cassandra said, it is bad in excess (but this is very difficult to do)
Best of luck x
My derm said minoxidil is more effective when taken orally. For Shampoo “revita” was recommended to me as well by my derm
@@Ok-cb5lw yes, it may be more effective but then it can really cause side effects as in unwanted body hair growth. For most people it is perfectly effective given topically.
I'm enthralled by all this science in this video. As a medical professional this kind of content keeps my attention and excites me. I appreciate your courage to put so much of your PMI out to the public, and appreciate that it will allow someone with similar issues to hopefully feel not so alone and maybe help them understand better.
Cassandra: you are brave and amazing for sharing these intimate details of your life. You are certainly a medical marvel. I am a former family physician who was often educated by my patients on their conditions. I had a woman who correctly self diagnosed herself as having Ehlers - Danlos syndrome. This was confirmed by a medical geneticist. It was very helpful for working with her in helping to give her appropriate care. Good luck on your continuing journey of self discovery!
Short term obsessive viewer, first time commenter. I found this video really interesting and my partner laughed at me while I watched. He's convinced that my hypermobile Ehlers Danlos Syndrome is contagious since I seem to find hypermobile folks everywhere I go.
In my day job I'm an Occupational Therapist and I specialise in supporting people with complex long term conditions. I work with a LOT of people who have connective tissue disorders.
Watching your video there were a few things I just wanted to mention so you can research and follow up with your Docs.
Theres a trio of conditions that often run together with connective tissue disorders like EDS and Marfan. The first is PoTS (postural orthodontic tachycardia syndrome) which links to dizziness, autonomic dysfunction, digestion, sweating and urination.
The second one is Mast Cell Activation Syndrome (MCAS). Common symptoms of which are histamine responses, oral allergies, food intolerances, urticaria, flushing, skin irritation, dry skin, eczema and other allergic reactions.
These three conditions combined often work together to cause IBS-like symptoms. Partly stretchy gut, partly autonomic wonkiness, partly allergic responses. The downside of these combined issues is poor absorption of some vits and minerals. Often vit D, B and Magnesium.
Not everyone with a hypermobility disorder will have obvious symptoms of all 3 conditions. But elements of each are common. I lean much more heavily towards the autonomic dysfunction than the MCAS but when unwell or stressed in particular I find my skin gets dry or irritated, my food intolerances get worse and my hair falls out more and my scalp gets flaky.
It's really common with a hypermobility disorder to find each condition plays off each other and in times of stress or illness (hello global pandemic stress) flare ups of one of more condition cause a kind of cascade decline in all conditions. Fatigue and "burn out" are a common end result.
I worked most of this out the hard way and spent ages seeking out the right healthcare team. When I qualified as an OT I was determined to let others have the same struggles. So I hope some of that was useful!
I’ve been watching you for around 10 years now and although I knew of some of your health concerns I had no idea the battles you were fighting behind the scenes. You are so strong for sharing your story and helping so many other people in the process. When you kept listing conditions I was almost getting angry - why would such a wonderful person have to fight through so much?? We are here for you and i hope you get the answers you need soon and find a team of doctors who truly respect and listen to you.
Dang, Cassandra! I have PCOS, and doctors have suspected endometriosis since 2019. Hearing someone else say they had to be on super powerful painkillers for pain in that area resonated so hard!! (Even if your issues are different than mine, I appreciate that someone else has spoken up and said they had to be on painkillers stronger than anything over the counter because of suspected/proven reproductive issues.) Thank you for being so willing to be open with us about your own problems.
I can't pretend to know exactly what you're going through, but I do know these words come straight from my heart. We are here for you -- to listen, to help, to care, because you mean so much to us.
Finally, someone is speaking about issues while trying to find a way through and not coming up with a magical remedy for a Problem, they never talked about before. I truly hope, Cassandra finds the answers to all of her questions. Thanks for opening up. I really apreciate your honesty.
Cassandra, I remember figuring out that almost every “unrelated” medical problem I had been experiencing for decades was because of hEDS. I can empathize with where you are now- it was one of the most enlightening and difficult periods of my life. I hope you get the answers you deserve to live the healthiest, happiest life possible!
my ex literally has all these conditions 😳 she was born with two uterus and only one kidney... also she does have long fingers and used to complain about dry patches.. will surely share this with her, there's really a few of you unique people ❤️ and you're definitely not alone in any of this
You sound like a kind person :) I hope you have a wonderful rest of your day ❤️
@@MidwestPsycho I wish you a wonderful day too 💕
The comment about your gynacolologists really resonates with me. I've noticed that some doctors do not listen to you about your own body, obviously doctor's study for a long time and have an incredible amount of knowledge but some tend to undermine our experiences as well as pain, it seems harder as a woman.
This couldn’t have come at a better time. My hair has been falling out in patches and I need to find a doctor that I feel safe with to get to the bottom of it. I love that you have so many informed questions that you can take in with you when you see your specialists. Selfishly, I’d love to hear more about this part of your journey so that I feel like I have a buddy in this. But I understand that you’re just sharing that you’re kind of going thru it right now, and to that I say, HANG IN THERE SIS! YOU’RE NOT ALONE!
My mind is blown from this video. I adore you and your channel and I had no idea you were going through all of this! Thank you for being so vulnerable and willing to share. You’re so much braver than I am! I hope you get to the bottom of your health issues and start feeling better soon. Please keep us updated if you feel so inclined. I know videos like this impact a lot of people, including me. Thank you again 🦋
I really loved this video because it IS interesting and it's also refreshing because people just don't discuss their health - it's personal and private and there are good reasons why we don't (people can be shitty, bad unsolicited advice, - the works) but when you're experiencing something abnormal it can be so, so, so isolating. And finding a diagnosis sometimes isn't better because you almost feel hesitant to address other issues you have bc you feel like you'll be seen as a hypochondriac/won't be taken seriously. You almost start to think you have too much going on for it to all be true - but no, human bodies are incredibly complex. I was diagnosed with lupus last summer and already have a small collection of other issues (PCOS, 1 kidney, insulin resistance - untreated anxiety and I am 97% sure I have ADHD). But it is so nice to not feel alone out here navigating the medical system figuring out what's going on.
I live in the UK, and the government are silently privatising our NHS so we can't access healthcare unless we're literally dying. I told my doctor it was impacting my mental health so badly, and my sense of worth was on the floor. They just said sorry we can't help, take some vitamin D. I went again and the doctor told me they 'can't measure my hormones because they fluctuate'. No one takes female health seriously. There are so many campaigns about seeking help when you have mental health problems, but when you actually try and access that help no one wants to know. Plus every website always says 'speak to your GP', but they are less helpful than google sometimes!
That makes me so mad
so true. I live in UK and I feel your pain :(
Same - it took around 5 doctors trips over the course of a year to get my throat scanned because I couldn't eat without pain and was coughing constantly.. now I have permanent throat damage from my undiagnosed *severe* acid reflux. My own stomach acid and digestive enzymes were literally eating away at my throat and nothing happend for a year. That's just my general health stuff.. anything to do with my abdomen, like the random stabbing pain I would get on the lower right side, was attributed to my period... It took 6 years for me to get an ultrasound for that and they found nothing and dropped it. The first doctor I talked to about my migraines said it was "hormonal and [I'm] just making a fuss about nothing".. I've been on preventative prescription meds for over a decade now and still get migraine even after I started controlling my hormones with the contraceptive pill..
The NHS is shit now because the government don't think we have a right to exist in our very fragile human bodies unless we pay for it..
@@quintecence The thing is that we do pay for it, that’s precisely what our tax and national insurance contributions go towards, but the government are using it on other things that they deem “more important”which doesn’t make sense because surely the health of the people the government is meant to serve is a priority in order to keep the country going; if for nothing else but the fact that we’re willing to do the jobs that they don’t want to, like working in healthcare!
@@annafovargues5542 I think it's a problem when people claim stuff is free when it's not...keeping expectations low & complacent when things are "free"
You are so well informed! I am pre PA with intent to specialize in derm and this was so fun to listen to because you have a knack for explaining complex interactions within the body. Thank you for demonstrating how interconnected our body systems are and being an excellent example of self-advocacy in healthcare ♥️
Omg i have marfans syndrome and i started crying when you started mentioning it. I also have skin disorders and joint pain. I get checked every 6 months about my aorta.
I wish you well girl ❤️💕 I hope you'll find the problem and treat it properly 💚 love from Turkey 💜
I have chronic Hashimoto's and around this time last year, I was found to also be extremely vitamin D deficient; another delightful side effect of the pandemic and having to be mostly indoors because of it. Whenever my TSH is high (and my metabolism is slower as a result) my skin and hair are dry and my hair tends to fall out much easier. With the vitamin D deficiency on top of that, my hair was really falling out and I freaked out a bit. Once the levels went back to normal, though, my hair did too. Skin and hair are good things to keep an eye on when you've got thyroid issues. They'll usually clue you in quite quickly when something's off. At least they do for me. Thanks for opening a conversation around these issues, Cassandra. I feel that thyroid disease in general and Hashimoto's, in particular, are rarely talked about but have such a huge impact on our physical, as well as mental health.
Thank you. I too have Hashimoto’s, hypothyroidism, and have a vitamin D deficiency. Alaska is probably the biggest reading for Vitamin D deficiency. And it’s rarely talked about. I had no idea until I did research myself that vitamin D can affect your Hashimoto’s. I am currently dealing with hair loss and stress. It’s nice to not be alone. And thank you for the advice about the skin and hair changes being clues.
@@melissagregory9882 You're very welcome and yes, it does help to know that Hashimoto's is pretty common. It's also slightly frustrating that, even though it's so common, it's very rarely talked about. I was also surprised to find out that there's a link between Vitamin D and Hashimoto's, especially since I've been getting treated for it for 8 years now and I was only told last year when I switched endocrinologists. I'm so sorry you're struggling with stress. For me, that's one of the biggest triggers. Whenever my stress levels go up for longer periods of time, my thyroid is all over the place. Hang in there, though, it's manageable. Hope you feel better soon!
@@CristinaRomanI have put in to see an Endocrinologist. My dermatologist recommended it.
Hearing you talk about painful period pains was so validating to listen to, I’ve had intense pain since I started my period at 13 but over the years it was just ignored by doctors and i was basically told ‘women have periods so get over it’ anyway when I was 15 I went into retention (couldn’t pee) I had to go into hospital and have a catheter, but there was no clear indication why and I can’t remember all the results from the tests I had because it was 15 years ago, so that was swept under the rug. Over the years after that I was getting recurring uti’s but they started getting bad in my mid 20’s and I was being hospitalised with kidney infections and sepsis due to the infection, so by this point I’m hounding the doctors for some answers and it wasn’t until I moved and changed my doctor that I started getting answers. With all my symptoms he sent me for blood test and scans and I found out that I had fibroids and pcos that’s when my doctor started linking the two and maybe what’s going on in my uterus could be causing my bladder/kidney infections, I am going in for laparoscopy to see if I have endometriosis and to see if any of it has grown onto my bladder. Having this issues and not having them taken seriously is something I’ve dealt with for a decade, and hearing other women like you talk about your experiences makes me feel so much better, I’m also take prescription pain meds (co-codamol) because regular pain meds like ibuprofen don’t even touch the pain, I do get a little iffy talking about the medication because a lot of people think they have the right to give you a lecture on how additive they are (like we don’t already know all this information) and I get extremely defensive since a lot of these people don’t have a clue what I go through, so thank you as well for being honest about the pain medication.
Karen here. Im 70. My Dr. Told me in 1975 they tell women after 6 years on the pill to get off. I later found out they were giving us 20x the dosage Drs. Give women now. Went off because I had a breast tumor removed. For decades I had pain in my Uterus area. After 10 Drs, some of which said it was psychosomatic, I got better insurance, a a Dr. Found a tumor the size of a grapefruit. Had a hysterectomy at 32. Went through menopause, lost hair on my head and body. Grew hair on my face. Many go through this crap. So heartbreaking. It affects relationships.
I've been shedding for the past 3 months and lost more than half of my hair. And I must say that even though I have an ED the hair loss was too much to be only due to my ED, I've literally taken every vitamin and multivitamin. So I went to the dermatologist and apparently I have seborrheic dermatitis and I started treating this, and when i brush my hair now I don't see as much hair as before! Now we're waiting for the blood exams results to do anything else!
Did you have your SD flare up on your scalp to cause your hair loss? I get it in odd areas which seem to migrate around my body, (which did once include my scalp years ago but not currently) but I am loosing hair still. Was just curious if mine could be related too.
@@lauramac6269 I have it on my scalp, face and ears, but I didn't know I had SD on my scalp for at least a year (I thought it was dandruff at first and was trying to get rid of it with only Nizoral and it got better and I'm still not sure what caused my SD to get so out of hand these past few months), and as for my face when I started seeing SD (but note that at that time I didn't know what that even was) I switched my skincare routine to products that contained certain ingredients (and my face it's pretty much 99% curated now) (also those ingredients are now in the products I now use for my scalp so I have big hopes). As for hair loss SD definitely played a role (because it's been two weeks since I started using what the dermatologist told me to use and when I brush my hair there is 80% less hair) but I'm still waiting for my blood results back, me and my dermatologist think it's also due to hormones and vit D deficiency (these ones are due to my ED)
Zinc pyrithione is amazing for seborrheic dermatitis
Hedwig i suggest you to check your vit D level. Vit D defiency tend to be associated with hair at this period winter time as well as SD . I pray this helps.
@@dave9401 yes, I know! The product my dermatologist prescribed me have zinc in it :)
Chronic telogen effluvium & AGA patient here (who is sending hugs & greatly appreciates your bringing awareness to the topic of hair loss). I was previously vitamin D deficient, but had a lot of luck with prescription vitamin D/now a liquid OTC supplement. Also had a great experience with low dose oral minoxidil after using topical for a few years, and added spironolactone and Nutrafol on as well two years ago, also with success and some regrowth. If you can find a derm who specializes in hair loss, I 1000% recommend it. It made all the difference in the world, as I think many derms have been trained to assume most forms of hair loss respond poorly to treatment/are a bit dismissive of wanting to intervene early. I hope that you can stabilize your vitamin D levels/find the answers you're looking for soon!
I have rheumatoid arthritis for several years now as well, and I know how debilitating it can be to discuss it with anyone - I hope that it’s much better in the Americas and Western Europe, but being from Ukraine I had to research it myself and almost prove it to doctors (and change a lot of them), as the general myth here is that RA occurs only with senior people. Now I’m on continuous medication, and recently I have noticed massive hair loss. Thanks to your video I know that I should definitely consult a doctor with it. Thank you so much for sharing this in this clear and confident way. Lots of love and appreciation to you ❤️
Every time another person comes out and says their reproductive system is different-than-expected I feel 2 years younger. I'm not alone!
I am on that part over obgyn and I just wanted to share my own frustration, woman's health is still very neglected. This is sad but we keep hearing "sucks to be a woman", "it's part of being a woman" but NO! STOP, we want doctors to listen to our problems and actually do research. I was barely in time to find my androgenetic alopecia because my doctor didn't want to look into my hormonal unbalance... I still have pain because apparently everything is fine with my cervix but I keep going back and forth with discharge and occasional pain. But doctors almost say "man up!" Woman health is neglected.
You are absolutely right ! I have endometrioses, and I feel like everything related to women's identity or women's pain (period pain, pregnancy, labor) is sort of the blank point of medicine ! We are almost expected to be willing to suffer, and if we look unwilling we are labeled as sissies or drama queens...
Absolutely! I had a gynecologic issue that was causing me extreme discomfort. Went to several doctors who all said nothing was wrong. I did my own research and the only thing I could see that seemed similar was listed as "extremely rare with barely any reported cases". Long story short I ended up at the emergency department unable to sit or walk without being in pain. They finally acknowledged something was wrong but I ended up leaving with no answers, they said if it gets worse go to the emergency room at the women's Hospital so I went there. Had a bunch of student look at my genitals, was "treated" which was so painful I almost passed out. Then they offered me tramadol (despite it being contraindicated with my medication). I said I was driving home so they offered me a lower dose.
But here is my issue... despite the symptoms they wrote down being exactly what I read on Google before going to the hospital, my results won't be reported anyway, they won't go in some journal so that it might help another woman in my position. Because women's genitals or reproduction, they don't want to hear it or deal with it. It killed my sex life, my sex drive, my self esteem, caused borderline debilitating pain but no one gave a shit.
not only women
@@camilatania96 but also women. It’s still a women’s issue. Poor/inequal treatment in healthcare is a huge women’s issue.
Thank you for talking about this, and thank you for making yourself vulnerable. I am sorry you are going through what you are going through. At 26 years old, I have this summer realised that I have suddenly lost a lot of hair in some places on my scalp, including my hair having become suspiciously thin. I don't know if this has been slowly progressing and it has only now gotten to a point where I realise it (because the difference is now dramatic enough), or because something happened.
However, I have been battling with (initially severe, now very moderate) psoriasis and atopic dermatitis since I was 20 years old which has left me itching so badly that I drew blood. It has also really f-ed up my scalp, but I thought not much of it, because I had been battling with (non-itching) dandruff since I was a teenager.
Now, since I do not have uteri, it cannot be related to what you're having, but I'm glad you are talking about this. So, maybe the hair loss is just androgenetic alopecia, maybe it is related to psoriasis, maybe it is stress-related, maybe it is some substance that harms my hair follicles.
I HAVE been talking about it to my friends too, and I have been open about using Minoxidil starting in September, and you are right: it really feels like a load taken off when I open up about it.
Again, thank you, and I hope to see more K-Beauty hair products in the future. :D
I didn’t get to finish the whole vid but would like to share:
I had terrible terrible acne years ago come to find out I was diagnosed with Ulcerative Colitis.
(Which of course no doctor correlated the two)
But once I started to treat the inflammation in my colon, my acne went away. Had changed nothing else.
I think it’s important to look at our bodies as a whole - not my certain systems.
Would you mind sharing how you treated the inflammation? Thank you!
I totally agree! Once I started using probiotics, my severe headaches, as well as frequent vaginal infections, finally stopped after YEARS of suffering!
I worry you might be not absorbing nutrients especially minerals. I also have ibs and gut damage. I cant absorb certain things so i have to supplement. For eczema (which i used to have) i recommend a liquid b complex, liquid zinc, iron, and vitamin d3 to increase immune and wound healing ability. I got blood tested and was very deficient in d3. I guessing since ive been inside a lot during thid pandemic. I got a rash on my cheek, added d3 into my diet, and it healed! Magnesium is also important too. I put cashew powder in my overnight oats! It has zinc/iron/magnesium in high amounts. Please take supplements cassandra! Trust me. Some people just don't absorb it well or need more due to their body types! There are studies for example that show we lose the ability to absorb b12 as we age so we must supplement! Try it out and see how you feel! Im also vegan! I try to get as much of these minerals from my food. I am consistently taking d3 and b12. Iron was a one time thing and it was enough to cure my anemia (i was anemic even on a meat diet). Protien with each meal is also important and omegas. Only eat organic legumes and breads as the pesticides can damage intestinal lining! Anyhoo, i just wanted to help!
I love how open and honest you are. I do watch you all the time. I am now going back to older videos now since I had a lot of medical problems last year due to Covid. I also have low vitamin D and I am on 5000 iu at this time. I find your descriptions of everything informative and very eye opening. I will continue watching all your current and older videos and if you haven’t already, please continue with this information. I am very interested in learning anything and everything! You are awesome and I will love and support and pray for you! Thank you for being you!
I have EDS so I understand the testing, skin issues, heart problems and so many other things. I hope you find your answers soon and I hope your dad’s cancer will be in remission soon!!
Thank you for explaining all this. I can’t imagine having to go through all you’re going through. You seem to be handling it all like a champ, though! I’m actually going through hair loss too. It’s such a frustrating condition! Please keep us updated!
Cassandra, I love your channel, but after you sharing this, I love you even more! You are handling all this with so much grace and strength.
i have EDS and this video off top made me feel something. regardless of what it is, thank you for braving up & sharing your health journey. i’m sure it makes a lot of us feel less alone.
You are so courageous coming here and explaining all this to us. Thank you. My mother had a "disease" in her uterus too, not like yours, but she had a lot of abortions because of babies dying inside her ( I was the blessed one to be born). Everything seemed fine until she started having longer and more painful periods, and she took too long to go to the right doctor and in the end she ended up just doing a surgery to take off the uterus. Now she is free from those. If you don't plan to have children of your own or consider adoption maybe try checking with your doctors if you can do this surgery and be free of those painful periods. You are so strong, congratulations for going through it... You are YOUTIFUL both inside and out
Cassandra you are an amazing , natural teacher. I learned so much from this video, and as someone who just lost my last grandparent who also suffered with dementia, it is very nice and comforting to know I'm not the only one dealing with that, and things of that manner. People don't discuss these sorts of medical subjects a lot and it is so important and vital to open convos to make it more acceptable to talk about medical issues/situations. Thank you seriously from the bottom of my heart this vid helped calm me x
I noticed Cassandra's hairline for sometime now but I was a little worried and concerned about posting any kind of reaction...as always, Cassandra always stays true and open about any subject!!!
Hello Cassandra, I was told I have Telogen Effluvium after a stressful period in my life. It was a struggle for me but I've definitely realised that hair loss in women needs to be discussed more. Even though you haven't been diagnosed I really appreciate you discussing this part of your life. Anyway you look incredible.
Going through a lot of the same health issues. From my experience and what helps me is bone broth, glutamine supplementation, carnivore diet, liver supplementation, and vitamin d3. Wishing only the best for you! 💕💕💕
I just wanted to say that I'm crying. I've been dealing with Juvenial RA for 40 years. I was diagnosed with JRA when I was 3. I started taking all the medications that they suggest, including I'm on Experimental treatments for Auto immune diseases. My skin was in terrible shape after mengetis twice and and cancer twice. I also have polycethemia a permenat blood cancer. It's been a very rough time but when I started watching your videos, I learned so much about skincare and I feel so much better. I don't know what to say except that seeing you get online and talk about what it's like to be sick and for most of your life just made me feel like I wasn't alone. Thank you so much, I might be a cyster but I'm right there with you and now I feel l ike a have a sister in life.
Cassandra, I have always found you absolutely gorgeous & so authentic. While I do not have the same condition youve opened up about, I have struggled with other severe chronic conditions and can sympathize. Finding an expert who coulf actually provide a diagnosis after 30+ months was LIFE CHANGING. Sending tons of thoughts your way & hope you find a physician who can change your life too!
I totally hear you on the pain. Endo Stage 4, doctors didn’t catch it and just said I was crazy Now my cervix is connected to my colon and they can’t fix it. Plus PCS it’s really tough. I took morphine when I had insurance. I’ve had horrible obgyns this world hates vaginas!
Thank you for mentioning Hashimotos disease, I've seen throughout my whole life how my mum has struggled with it, especially getting diagnosed. But since she was officially diagnosed, she hs been doing so much better! But she suffered for decades
👆👆👆Thanks for watching, Hit me up I've got a prize for you....
I’m so relieved you finally feel validated, listened to and relieved about the pain you’ve been through. Sending healing energy to you and a big hug.
I have Hashimoto's and I just want to say it's so common for thyroid testing to not be extensive enough or to be interpreted according to the newer, tighter lab ranges. So many people fall through the cracks. Dr. Will Cole has a good article with the updated lab ranges (the "functional" ranges) and which tests to get.
Ideally, you want TSH, T3, T4, Free T3, Free T4, Thyroid Binding Globulin, TPO antibodies, and TG antibodies (for some reason, antibodies are rarely checked but since Hashimoto's runs in your family, definitely get them checked). I would also check ferritin levels, as that can be a big cause of hair loss in people with hypothyroidism.
I’m glad you wrote this comment. So many people don’t know that basic testing for thyroid is useless for a lot of people. Always get a full panel.
I got the basic TSH a year ago and it was a 3.4 which is in the normal range. But I was having issues. I insisted it be treated and now it’s at a 0.9 and I feel so much better. Ideally the number should be under 2.
Thank you for sharing your story! I totally sympathize/empathize with you. I have suffered from terrible skin issues/overall body pain since I was a child, among other health issues. Like you, I also suffer from a congenital form of scoliosis called Kyphoscoliosis. I went to doctor after doctor only to be met with skeptical looks and no answers. When I moved to Houston I made an appointment with a geneticist at Baylor University and was finally diagnosed with Hypermobile EDS (Ehlers-Danlos Syndrome) which is also a rare genetic connective tissue disorder characterized by overly mobile joints…that can dislocate very easily…due to the lack of a protein in my body which is responsible for the production of collagen. I am so sorry that you have to go through all these health issues, but I can’t tell you how appreciative I am for your strength and courage in sharing your story. It means the world to have an opportunity to converse with someone who can actually understand what it’s like to have to deal with a plethora of chronic health issues!!! God bless you and I pray that your doctors are able to figure out what is going on with your health!!!
I had te and it was so hard on me. I didn't realize how much my hair was a huge part of my self esteem. I got my hair back within a year I was also diagnosed with a blood disorder and other things. Thank you for sharing your medical information because I find it so informative. Also, I had endometriosis and pcos with the worst pain and having a period for so long that I couldn't even remember when my last one ended my doctors would prescribe me with tylenol and send me on my way. Wishing you luck on figuring out what is going on 🙂
Watching this makes me travel down my own health journey for the past couple of years, especially with my dermatomyositis diagnosis. Your story sounds very similar to mine, so hearing this is so comforting to me. It would be amazing to talk to you in person cause it is hard to find people that actually understand. That is why I love the beautiful Butterfly family here. I have looked up to you for a long time now & once again…you show me why you are a hero to me. Thank you for being so open & honest with us while also teaching us more about ourselves every day. I purple you very much & again…from the bottom of my heart, thank you! 💜❤️💜
Wow, girl! You are dealing with a lot of health issues and then some! I hope you find the connection and get the right answers! Good luck and don't give up! After complaining for years about depression, anxiety, hair loss, etc. I have low thyroid too, and am now wondering about other issues that may be related.
Man! I have NO REASON to complain about my little problems. Thanks for making me realize that I've actually got it pretty darn good Cassandra! Thanks for being so open. Know you're not alone!
This should be a whole series. It’s really nice to see how physical issues manifest in to the mental are really connected. I’m currently dealing with impacted ear which I had to find out is more common as you get older. My mom had eczema but she suffers from the other skin common skin condition.
Hugs to you. This is a lot to handle, and it’s amazing you shared with us. I have an autoimmune condition that took some time to diagnose, so I appreciate anyone using their platform to discuss their health.
As someone who has lived with psoriasis for almost 30 yrs, my skin is a hot mess. I love that isntree bifida ampule...my skin loves it. I absolutely applaud you for being so open and transparent with us. ❤ I hope you have an amazing Christmas. 🤗
Just omg, that not what I expected from hair loss video. Started with “‘be been there, done there” on childhood psoriasis and psoriatic arthritis. And dropped a jaw later. Admiring Cassandra with having energy to be that crazy active and productive, as only one diagnosis almost took me down 10 years back. Of course I am not competing or comparing conditions.
But admiring wisdom 🙌🏻
I was diagnosed with rheumatoid arthritis 13 years ago, and I have gone from super oily skin to super dry skin, as well as my normal skin has become more and more sensitive. The more my illness progresses, the more my skin becomes drier and MUCH more sensitive. I also have lost a great deal of hair in this time, and my scalp (and hair) have changed radically as well.
Oh, man. I cried when you spoke about not being believed for your period pain... Relatable! I have Stage 4 Endometriosis and Adenomyosis. I have had to have blood drained because it's clumped up, numerous cysts, been given crazy painkillers that don't work. Have thrown up and passed out from pain sooooo many times. It's insane to me how many people think I am exaggerating and I'm "having a bad period". Once I needed emergency surgery due to a cyst rupturing on my ovary, pictures were taken to show how savage things were inside me... NOW people understand. I'm having a hysterectomy and I can't wait. I hope you find the answers you need and I'm so glad you've found this syndrome! I understand the relief of having something that makes sense!
You are unique in being a very heart- centered creator on this platform, Cassandra. Thank you for sharing this in an effort to help others. I've had an incredible experience healing various conditions with chinese medicine (acupuncture), ayurveda, and naturopathic medicine. I highly suggest you check out at least naturopathy if you haven't already. I find those experts have greater understanding of how to manage the entire body system and improve a condition, rather than suppress symptoms. Personally, in my case, the western medical approach was quite limited and depressing, and did not help me get better.
my boyfriend recently got diagnosed with marfans syndrome, after an emergency surgery on an abdominal aortic aneurysm which was terrifying to go through. if you suspect you have marfans, it's definitely a good idea to get it looked into further sooner rather than later, so i'm glad you're seeing a specialist asap 💖
Has he had "the vaccine" and did it happen after?
@@olgaolga8991 This is an extremely ignorant comment
We thought my son had Marfans syndrome because he was 6'2 and skinny at 12. After genetic testing we found out he has Ehlers-danlos. The genetic testing was worth it. Good luck and hoping you get the answers you need. Thanks for all your wonderful videos! You have really helped me so much. ❤
I agree with you 💯. It's such a great tool. Sometimes that's the only way you'll get concrete answer's.
Marfanoid habitus can be a sign of certain types of Ehlers-Danlos, too, which is interesting
My heart goes out to you and your son. What a mountain of obstacles for such a young age already . 😣😫😢
@@tessapal I never knew this! There is so much to learn!
Going through a similar period of discovery as I finally get my health concerns diagnosed. It is so comforting to actually have answers, even when they are negative. I wish you all the best in your journey
Hair loss seems to be quite prevalent in this stressful Covid time.
Dr Dray also has addressed this issue on RUclips.
I know many women who have noticed an increase in 'shedding' and less fullness in their hair .
I relate to the painful periods.
Too personal for comments but..
I understand.
Me too. Covid, plus i just started college, i noticed my hairline not as "full" as it once was two years ago.
May be a vegan diet. Don’t mean in a cruel way but seems to be a theme.
@@msjonesss as an omnivore, correlation =/= causation
@@msjonesss I'm plant based as well and you're not wrong. Hair loss and under-eating or not having proper nutrition correlate.
When I was a teenager I suffered anorexia and I started losing hair! A lot of vegans make the mistake of not consuming the proper vitamins and nutrients they need
I lost half of my hair at 18 and no Drs believed me. Finally at 19 I got diagnosed with androgenic alopecia. Thankfully I got onto it early and with (very expensive) medication and a very pricey Derm Professor, my hair is doing well now. But there have been a few horrific regressions. Thank you so much for sharing your experience with extreme hair loss. It's so helpful knowing I'm not alone ♥️ (I also have persistent scalp psoriasis which is a winning combo with the alopecia 😑)
Can I ask what medication you used?
@@ammanusman7485 it's a personalised concoction of ingredients including minoxidil and spironolactone.
My hair loss comes from PCOS, a hormonal imbalance, which is primarily part of an insulin problem. I am working on my diet and taking multivitamin New Chapter for women and it has been helping to at least make my hair thick.
What a history of diseases... and you are still that positive! Thats amazing. I have Hashimoto disease and my hair is falling like leaves in autumn once a year. Hurray.
Advice here: I have suffered several hair lose at the age of 15-18 due to bleaching and stress
I am currently 20 and CASTOR OIL has been a mayor help for me. I put it in my hair line overnight and wash the day after. 3 months in and I have seen several baby hairs growing and my hair is recovering super fast. Hope it helps ❤️
Bless you for sharing so much with us. I imagine you've helped so many people feel more comfortable in their skin with skin conditions. I personally struggled with acne & my gosh did it ever destroy my already lacking self esteem. I always thought if my skin was just clear I could be confident like other people. Turned out when I stopped wearing all makeup is when I became confident, it showed me that my people still love me just the same. More confident now than ever was with a full face of makeup. Its incredible how makeup can impact our self image good and bad.
I started spironolactone about 3 months ago due to hair loss- which unfortunately my doctor ignored for years. This video definitely makes me feel not as alone, so thank u for sharing your experiences Cassandra ❤️
Does spironolactone help hair 😯😯😯 I got it prescribed for edema.
I’m sorry to read about the doctor..
I’ve been so out of luck too..
✨ Merry holidays! ✨
To me it seems that most doctors tend to ignore issues with hair loss,acne & female health issues such as PCOS, painful periods, excessive facial hair etc. Literally all the females I know who went to see a professional with the above problems got low key ridiculed and sent away.
@@catpuccino6186 same. There are research studies that reveal how women are, more often than men, dismissed, misdiagnosed, undiagnosed, etc when it comes to medical care. It's very frustrating.
@@rosemary5005 it does help in some folks! The first-line treatment is usually minoxidil (Rogaine), but spirinolactone can help if the Rogaine doesn’t. I actually wanted it for my own hair loss, but can’t take it because my blood pressure is too low; as you know, it’s also a diuretic!
@@catpuccino6186 Exactly. It’s so ridiculous. I’ve had a few gynos tell me I probably have PCOS now (a couple said “99% sure”), but because I’m not vastly overweight and hirsuit, they don’t wanna do a damn thing about it except prescribe birth control. I was on that for ten years; I am so sad to think of how much more control I’d have over my PCOS and hormones if I hadn’t masked the symptoms with birth control, due to neglect to follow through on the part of gynos. Even I, as an RN-BSN, have lost all faith in doctors and other advanced practitioners when it comes to PCOS and other female reproductive issues. It’s an effing joke.
As a person who has had undiagnosed endometrioses for about 19 years i can really relate. Not only how it affected my body but also my hormones and skin. Also relating to the obgyn not taking my problems seriously. I'm 33 years old now and finally understanding my body, hormones and skin and how all is intertwined. Thank you for for honesty and being open about (female) problems that can have a huge impact om your body and life.
I admire the way you explain things so much! Thank you for opening up (I think it is very brave to be vulnerable like that!) and addressing such complicated topics in a way most of us can understand and learn! I find this really interesting (I am a bit of a hypochondriac, but mostly because I love biology) and I wish you all the best! Hope you can find answers and live a healthy and happy life 💚
Cassandra, I watched this clip about two weeks ago and because I had similar symptoms. Therefore, I went to my doctor and had my blood work done. He called me about 10 minutes ago and he told me that I have extremely low vitamin D levels. So thank you thank you thank you. Now I can treat my symptoms. You are a bloody legend. I don't know how to DM you but I really want you to know. Gidday from Western Australia. Love your content!!!!
Omg, I couldn’t ever expect how long and hard your health journey was! I’m really rooting for you and I’m so sorry you have to go through all that pain. You’re a wonderful energetic woman and all the content you create is very educational! Wish you all the luck with getting better.
This is an amazing video Cass, thank you for sharing! Validation is so important when dealing with lengthy mysterious illness. I have recently received answers to a major health issue and I was told multiple times in the past that it was all in my head or that I was just lazy when in reality, I have quite a debilitating illness! The validation is REAL!! Love you guys 💜🖤💜🖤💜🖤
I’d love to hear more about your hair loss journey, what you end up finding that is cruelty free would be lovely. Also loved watching this video, although uterine didelphys isn’t relatable for me I’m sure a few people will appreciate this video so much
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Thank you for sharing this! I have hypothyroidism, adult acne, and dermatographia. Two years ago my hair started shedding. It was awful! I tried several things and was just completely disappointed and finally gave up. Over the last year, for separate reasons, I made huge changes in my life. I quit eating gluten and within a month my skin was clearer than it had ever been. I started taking vitamins. I stopped using shampoo. These changes together have completely stopped my hair shedding and my hair has grown back incredibly well. I hope anyone suffering from early hair thinning finds solutions that work for them. Thank you again for sharing your very personal story.
Oh, I also have ADHD. It is amazing how these conditions cluster. Anyone else in the ADHD club?
@@kristinporter4888 hi, what are you using now instead of shampoo?
@@mel_b2346 just water. It took about a month for my scalp to adjust and not over produce oil.
I am just so sorry for everything you've been going through... 😞 Much love to you Cassandra. 💕🎄☃️💝
Everything in my body started going haywire once I got around 30. I know exactly how you’re feeling.
Wait until you're in your 40s 😐
@@ttephi3667 My genetic condition caught up to me at around 30, and now most 70 year olds are more able bodied than I am.
I experienced hair loss twice in my life (due to anorexia nervosa). It was very traumatic for me, and for years later I would get anxious about seeing normal hair loss in the drain or from brushing. The only good thing out of it was that I decided I liked having shorter hair (during both times my hair was long).
Cassandra, I am so so sorry. I know how hard uncontrollable health condtions can be. Especially when it effects your outward body as well. Thank you so much for this channel and always having a smile on your face. It really helped me get through some really bad skin issues last year and you've helped so much. Thank you for sharing your story!
I started losing hair in the same areas you are a year or so ago. 😞 it’s been so hard and I’m glad you’re talking about it.
I'm not a doctor but I would go see one if I were you- don't let it keep going on- you can get bloodwork done to help see why that is happening.- You can also take your multivitamin and Viviscal. Rogaine as well.----Read further down on the comments- a doctor replied with some things that can help you.
@@user-mo4wt9gk9y thank you for that! I actually planned on going to the doctor soon to discuss it. You’re right, it really needs to brought up to your doctor so they can determine the cause
I have chronic illnesses and chronic pain that’s very prevalent in both my family and my friends, and sometimes you really have to keep going (if you can) until you find a doctor that actually listens to you. A lot of people end up trying to self-diagnose physical conditions because their doctors don’t listen, or sometimes they have something super rare like this and the doctors don’t even know anything about it. There are some very good doctors out there but unfortunately theres a LOT of people who just don’t get listened to. Good luck with finding a good obgyn
As someone with one kidney who’s mom always tells her whatever is wrong with her is due to a vitamin D deficiency, your explanation was enlightening. According to the latest scan my kidney works perfectly, but it is still something to consider I’d say. Thank you for the information!
You are an excellent storyteller! It is very brave to be so open about your life and medical conditions on the internet. I'm terrified to tell anyone what I had for breakfast for fear that people with pitchforks will head my way. As someone with way too many diagnoses and chronic health problems, it really helps to have a big sister make me feel less alone. Great job in everything you do, and I would love it if you kept us up to date on your health journey!
Low vitamin D is associated with low magnesium. Too much vitamin D also decrease magnesium. I recommend you get your vitamin D from lichens, which is plant based. And please start taking magnesium malate or glycinate. Also watch out for oxalates in leafy greens 🙏🏿
Yes!! Lichen is God send because it has helped my non vegan dad while the ones his doctor prescribed him didn’t do anything. The one we use is by mrm d3 with k2 because studies show d3 gets more absorbed with k2.
Very important to take Vit. d with K2. Otherwise it will not absorb properly.
@@pineapple365 where can I buy it please what store ?
@@pineapple365 linchen
@@pineapple365 and what is the exact name to order it ?
Hi. Thank you for making this video. I have a few medical issues and I always feel self conscious, but it's comforting to know that others are also on this journey.
PLEASE UPDATE ON THE HAIR LOSS
I feel you.. I also had acne and I've had tellum effluvium ever since I breastfed, also vitamin D deficiency + B12 deficiency. Also seborrhea of some sort Also extra long fingers on both hands and feet and some scoliosis. I've been trying to make sense of these symptoms for the longest time, but still no luck. What makes me mad is the fact that my husband and family think I am a hypochondriac for trying to find the logic behind this. Everything in our body is connected and I do believe it's just trying to tell us in a very complicated way, that something is out of balance in it. Doctors in my country (Bulgaria) have not been understanding so far and do not try to research the problem further, so I educate myself, which had led to some sort of an obsession. I've had hair sawn in to feel better. i hope we find our answers sooner rather than later. Wish you good luck and keep telling us about this stuff. :)
Never feel alone Cassandra.. I know it's very intimidating to be so prone to like literally everything.. you have so many ..so many problems..but you're still smiling..but I can see the stress in you..
God bless you Cassandra.. you're an amazing soul.. you'll heal
I wish you the best. I have hypothyreosis, and because of that my iron levels are not the best. I always had fine hair that had a really slow growth, but recently I also noticed that I'm having a bigger gap up there. I started to use the Ordinary's Multi-Peptide Serum for Hair Density, and I'm seeing great results. Someone said it perfectly that what this serum does is, it helps your hair to grow healthy. Maybe try that until your full diagnosis.
You're a true hero for having the power to stand two periods a month!
I admire your openess and thank you for sharing your personal story.
Keep us updated! Stay strong and thank you for sharing your story with us. You've helped so many. You're so wise and thank you for educating us on different topics❤
You are very loved within this community!
Thank you for talking about some really tough personal topics so openly, this needs to be more of a thing in our society. I struggled for years with intense discomfort with my cycles, (7-8 days of heavy cycles) I was just told it's just that way for some people... At 44 I finally demanded that someone take a closer look (ultrasound and then MRI) due to my abdomen enlarging over time, even with good diet and exercise... turns out my uterus is the size of a small watermelon, and there are definitely things going on! If I had not been an advocate for myself no one ever would have bothered to check anything. Thankfully I am scheduled for a hysterectomy, which is definitely okay with me if it improves my life and these symptoms. I went through so many years of being told just diet more, just exercise more, you're slightly enlarged abdomen isn't a crisis, you're getting older... When I knew that I felt that something wasn't right.
Anyhow thank you for being open and honest, hopefully this helps other people to advocate for themselves and not get discouraged if the first doctor says they're imagining things! 🦋
Hi I just saw your comment. I don't know what tests you've had done but the description sounds similar to me and I was diagnosed with adenomyosis and endometriosis. Might be worth mentioning to your Dr
@@victoriahollis3454 thank you for the suggestion :) I appreciate all info anyone offers
Another possible suggestion could be fibroids. I know painful periods are miserable mine were horrific I wasn't diagnosed until I collapsed at work bleeding through to my seat( I had a endometrioma rupture) I suffered for over 16 years until.that happened then they wouldn't give me a hysterectomy I spent 6 years on a chemo drug to give me a chemical menopause then they finally did. You feel like your going crazy I was accused of being an addict a hypochondriac
@@victoriahollis3454 I hope you are feeling better after all of that craziness - it is awful that things have to get extreme for us to be taken seriously.
I appreciate your strength and openness so much! You have gone through a lot of trials and continue to come out on top! I pray it continues to be victory after victory for you Cassandra. You are an AMAZING butterfly! 🦋 🦋 😘
Thank you for sharing your journey thus far, for not self-diagnosing, and for being exactly who you are! I would love updates as you get them.
I can't relate to your exact story as it's only yours and no one truly understands what we've gone through but ourselves.
I can relate to lot of what you said though.. the self-doubt, the feelings of going crazy... My mom's side of the family has a ton of autoimmune disorders (my mom, grandma, uncle, 2 of my cousins...) and although I've never gone to get diagnosed with anything I've struggled with IBS, symptoms, joint pain, acne, headaches/migraines, a crooked spine, menstrual cramps that would wake me up from a dead sleep, hyper-sensitivity to touch, and worse of all: severe muscles aches/cramps in my legs and back. I was about 11 when everything started and I tried everything to naturally "fix" it through my teen years from yoga to going gluten free and these things only made my ED worse because the only thing that seemed to lower my inflammation and take away my painful periods was eating less and less. As anorexia became orthorexia which became anorexia again... my life felt so overwhelming and eventually the muscle aches in my legs got so bad I could hardly stand to walk.
All that said, my mental health is at an all time best, my skin is clear, my digestion is regular, and I'm completely pain free most days.
I still have a few bad days here and there but I can now say I now feel like a "normal" person.
What I changed: I went fully vegan, I got my anxiety issues addressed, I started managing my sleep schedule more than ever, I greatly limit caffeine, I cut out all the major stressors in my life that I reasonably could, and I 100% surrendered my mind, body, and spirit to Yahweh and received true grace instead of just practicing surface-level religion out of guilt. The more I prayed with faith and the more I let go of my need for control and answers the more I felt the Holy Spirit guiding my intuition to all the things I didn't know were my triggers.
Of course what works for one person doesn't work for everyone, but I wanted to share my story to tell whoever is reading this that there is hope and that you're not alone.
"Come to me, all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy and my burden is light." Matt. 1:1
"Fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand." -Isaiah 41:10
"Bless the Lord, O my soul, and forget not all his benefits, who forgives all your iniquity, who heals all your diseases, who redeems your life from the pit, who crowns you with steadfast love and mercy, -Psalm 103:2-4
God bless Cassandra! You are dearly loved
My brother is suspected to have Marphan's too... I remember being one of those people who pointed it out but it's because I have it too !! Hair loss started for me at age 23, I'm now 27*. I went to a private derm here in Montreal, he checked my scalp and confirmed it's androgenic alopecia ( you and I have the same balding areas ). I was also low in vitamin D and ferretin and have very horrific periods. I am scared of the pain before it gets me. I vomit, stuck in the toilet etc etc. It is really bad. Anyways derm told me for the hair that increasing the iron and vitamin D can only slow down the alopecia but not stop it. And he told me that Rogain is the only real treatment OR platelet rich plasma ( which I cannot afford )... I did find a shampoo that works for me called Phytocyan. the shampoo slows it down a lot and adds density to the hair. Not cheap but lasts long. Apartently Audrey Hepburn used it ! Lol
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Christina I have androgenic alopécia and nizoral has changed my life! Ketoconazole blocks the DHT from clogging up the scalp. There are even published studies that concluded it outperformed rogaine!
It took 3-4 weeks for me to see a difference but I am now 2 months in and not shedding ANY hair in the shower anymore 🙂🙂
@@Puglover130 ouuuuu that's awesome !! Isn't that the anti-fungus shampoo ?? How many times do you use on a weekly basis ? And which quantity ?
Bonjour! Je suis aussi de Montréal! Est-ce que tu as aimé le dermatologue que tu as rencontré? Si oui, est-ce que je peux avoir son nom? J'en cherche justement un au privé pour ma perte de cheveux et mon melasma... Merci!!!!
It sucks when it is so hard to be your own advocate for your own health. I'm happy you mentioned that the team of medical professionals in your current situation seem to be playing on your side. That makes me happy. I've fallen through the cracks and felt alone before I found the right people to listen to me. Keep using your voice, love your content! Good luck in your current medical journey I'm wishing for you to find the answers you need❤️❤️❤️❤️
In love with how you explain things. Your analogies are so fun! Thank you for all you do!
I loved this video. I subscribed a couple years ago while looking for a skincare routine for hormonal cystic acne and scars and have been keeping up from time to time w/ your videos, but this one was amazingly..extra personal for me. I myself have also struggled with proper Physician care for a long time, being diagnosed with Ehlers-Danlos, Graves Disease, early Osteoarthritis among other things that my EDS is connected to, it really feels like the whole body is shutting down..and it's SUPER hard to find doctors to take proper care of you, to notsee you as "faking" it or "drug" seeking..and as an actual human being with multiple system dysfunctionalities. I definitely feel closer to you, thank you so much for sharing your journey.
-fellow cyster
As a medical writer, I applaud how you were able to break down the metabolism of vitamin D to be so understandable!
I also am very vit D deficient, to the point that I've needed Rx strength supplements because my levels were dangerously low. I have a sun allergy, so SPF is more than my BFF, it's my bodyguard (I usually go for UV blocking fabrics on top of SPF though for extra protection)! So my body can't really produce vitamin D the way normal people can, due to lack of UVB exposure. Now that I'm on a consistent OTC supplement regimen, I'm at a normal or near-normal level and feel a lot better. I was dealing with a lot of these bizarre, tingly stinging pains in my arms and legs, which made it hard to sleep or get anything done. Luckily the doctors caught it, because the treatment was so simple, but made such a big difference!
Thanks for being so raw with all of us. I'm currently going through investigations with my health as something is terribly wrong and they can't find me answers. Like you I need to change doctors 100%. We love you
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