Larry.. don't know who you are or where you're from... but I suspect I'll be finding quite a bit of that out in times to come since I subscribed. I think you're a rich man, because you're a self aware man, and you were aware of who and what you are and where you've been and thus where you're going before getting this heartbreaker diagnosis. .. most don't try to know themselves at all, regardless of the circumstances. The man who knows himself has got it all, whether he lives another month or another thirty years. Rejoice about that, bro. That takes a lifetime for most. Rest assured, through this journal you're going to move something in a lot of people, now and into the future, and that's something most hundred year olds don't get to say. You seem like a straightforward and unpretentious dude. Probably done some good and some bad in your years. Like most of us... but you've got tremendous guts and will to stand up and declare your situation like this. Well, you won't be alone. We'll be watching and thinking of you. Peace from NYC.
Dear Larry........I am now at first episode,,,,,I will continue to follow, as it is like sitting with my brothers, Steve and Ron.....my Auntie Fra......I would so hope that I have some encouragement for you and your wife.....there are so many of us out here experiencing same. All your physical symtoms...I am certainly aware, as I experienced same with my brothers...aunt.....and for the past number of years, have been getting spasms in my arms, have the cramping in my legs.....weakness, dizziness at times....but, I have had two EMGs and I was told both times that I do not have ALS....as I am a caregiver for my son, it is very important to remain strong....it has been 22 years....I try and keep healthy, but at times I am not stimulated intellectually....I have advocated for the disabled community for these years, the horrendous expenses in making homes accessible, making sidewalks accessible...which I have done with my daughter and son in metro......we have moved back to rural Nova Scotia, to a 40 acre farm when my son loves each day.....we are home at last. The cost of care is much cheaper, we know everyone as this is where we grew up but the support systems that we had in place are not here. That is where my frustration, as a mom, comes into play. I hope you are getting help from the ALS Society, from disabled groups where you live, that you have medical insurance to cover meds and supplies.....this is my prayer as the cost has been horrendous with four family members, along with my son.........I want you, today, to get at writing......but we want to know about Larry....who he was before....that is so important, as people don't want to see a wheelchair......talk about your life leading up....your dreams and aspirations.....the beautiful things that motivated you as you are still that person......my son told me early in the neuro unit....at 22.....I am no longer a body with a spirit......I am a spirit with a body....the body means nothing.......we have many in the world with bodies who have never achieved, who aren't attached emotionally, spiritually or mentally.......choose drugs and alcohol for their path in life......I have written a 97 page journal.......if you eve want to read....I can forward same to you....just let me know....I will follow you closely.....my love and passion is now with the disabled community.......Hugs, Eileen I am so very, very proud of your courage.....you must push for others coming up behind you as my brothers had done........don't listen to doctors....you know your body......my brothers were on a drug...Riluzole....not sure how to spell...sorry....Rilutec....two names for it......I do apologize...it has been a while....xoxooxox......toxic cleansing.....etc.....it truly helps.......should you want me to stay on this path with you and your wife.....just let me know....I feel I have much to offer in courage, strength and determination.....it could also be my purpose in life....now, get writing that book.......I am waiting....xoxoxo
this is a very big problem with ALS; that it takes so damn long to diagnose it. that is something that needs to get fixed. so many doctors seem to be so bad at finding it, or even suspecting it.
I've had every test known to man in the last 18 months and nothing showed up. My left leg from the knee down is still paralysed and starting to atrophy, twitching every moment I'm awake and I'm down to 55kgs. I'm waiting to hear from the neurologist today for my 1st appointment and I can't wait.
@gypsy4659 True..I hope you will be OK...I have many symptoms as well...Same for me , had all tests but found nothing. Twitching, atrophy, breathing , tremors...just live life my lady..
Very interesting that 10 years ago these symptoms were noticed. I suppose other people had possible ALS symptoms years before but ignore it or forgot about it. I am like you and observe any changes in normal body behavior. I was poisoned by a chemical that effects the nervous system 4 years ago and had many strange symptoms that I first thought may be ALS but most symptoms have gone now except still fall over from weak legs. Arms weak as well and so I wonder when you had leg issues so far back, what that could mean in the future in my case. I feel for you and hope your symptoms progress more slowly. Thank you for your story.
sincerely my dad was diagnosed with ALS early this year march to be precisely, and was so confused because I love my dad and wouldn't want to lose him so soon so I decided to look possible solution to ride of this ALS despite knowing it has no cure advised by the medical doctor. Everyday my dad's health depreciate keep losing weight and strength a friend advised me to try DR OKOLO ALS herbal formula that she use to cure her dad's heart disease and I was reluctant about it until after a second thought I decided to give a try because no harm in trying immediately I contacted him he assure me my dad will be cured within few weeks of medication and he sent me the medicine and I applied it on my dad as advised by DR OKOLO within 6weeks of using the herbal formula my dad was cured and my dad is free from ALS I went to the hospital that said there is no cure to ALS and informed them about my dad's healing and they were surprised you can contact DR OKOLO via email drokolosolutioncenter@gmail.com via WhatsApp+23407031895935 he also cured diseases like HIV/AIDS HERPES CANCER DIABETES etc......
This sounds like a case of PLS rather than ALS. Since you talk about the legs rather than one leg, the thumbs rather than one thumb. In ALS, as i understand it, one side is (in the beginning anyway) more affected than the other, and it tends to come on quite quickly.
running a marathon on ALS, thats pretty hardcore my dude!
Just know that I am thinking of you and wishing you all the best.
Thank-you Bianka. I really do appreciate your thoughts.
This has been really heartening. I'm going through a health scare right now, but your story puts me to shame.
I’m happy to see that you went back to your roots in Ireland again in 2017 and you still looked good!Why not make a RUclips update?
Larry.. don't know who you are or where you're from... but I suspect I'll be finding quite a bit of that out in times to come since I subscribed.
I think you're a rich man, because you're a self aware man, and you were aware of who and what you are and where you've been and thus where you're going before getting this heartbreaker diagnosis. .. most don't try to know themselves at all, regardless of the circumstances. The man who knows himself has got it all, whether he lives another month or another thirty years. Rejoice about that, bro. That takes a lifetime for most.
Rest assured, through this journal you're going to move something in a lot of people, now and into the future, and that's something most hundred year olds don't get to say.
You seem like a straightforward and unpretentious dude. Probably done some good and some bad in your years. Like most of us... but you've got tremendous guts and will to stand up and declare your situation like this.
Well, you won't be alone. We'll be watching and thinking of you. Peace from NYC.
I see you were in the Navy, thank you for your service.
Dear Larry........I am now at first episode,,,,,I will continue to follow, as it is like sitting with my brothers, Steve and Ron.....my Auntie Fra......I would so hope that I have some encouragement for you and your wife.....there are so many of us out here experiencing same. All your physical symtoms...I am certainly aware, as I experienced same with my brothers...aunt.....and for the past number of years, have been getting spasms in my arms, have the cramping in my legs.....weakness, dizziness at times....but, I have had two EMGs and I was told both times that I do not have ALS....as I am a caregiver for my son, it is very important to remain strong....it has been 22 years....I try and keep healthy, but at times I am not stimulated intellectually....I have advocated for the disabled community for these years, the horrendous expenses in making homes accessible, making sidewalks accessible...which I have done with my daughter and son in metro......we have moved back to rural Nova Scotia, to a 40 acre farm when my son loves each day.....we are home at last. The cost of care is much cheaper, we know everyone as this is where we grew up but the support systems that we had in place are not here. That is where my frustration, as a mom, comes into play. I hope you are getting help from the ALS Society, from disabled groups where you live, that you have medical insurance to cover meds and supplies.....this is my prayer as the cost has been horrendous with four family members, along with my son.........I want you, today, to get at writing......but we want to know about Larry....who he was before....that is so important, as people don't want to see a wheelchair......talk about your life leading up....your dreams and aspirations.....the beautiful things that motivated you as you are still that person......my son told me early in the neuro unit....at 22.....I am no longer a body with a spirit......I am a spirit with a body....the body means nothing.......we have many in the world with bodies who have never achieved, who aren't attached emotionally, spiritually or mentally.......choose drugs and alcohol for their path in life......I have written a 97 page journal.......if you eve want to read....I can forward same to you....just let me know....I will follow you closely.....my love and passion is now with the disabled community.......Hugs, Eileen I am so very, very proud of your courage.....you must push for others coming up behind you as my brothers had done........don't listen to doctors....you know your body......my brothers were on a drug...Riluzole....not sure how to spell...sorry....Rilutec....two names for it......I do apologize...it has been a while....xoxooxox......toxic cleansing.....etc.....it truly helps.......should you want me to stay on this path with you and your wife.....just let me know....I feel I have much to offer in courage, strength and determination.....it could also be my purpose in life....now, get writing that book.......I am waiting....xoxoxo
Thank-you for your kind words and thoughts
Please be courageous, will be sending positive thoughts your way. Thinking of you and sending strength
this is a very big problem with ALS; that it takes so damn long to diagnose it. that is something that needs to get fixed. so many doctors seem to be so bad at finding it, or even suspecting it.
Doesn't make a difference anyway in treatment
I've had every test known to man in the last 18 months and nothing showed up. My left leg from the knee down is still paralysed and starting to atrophy, twitching every moment I'm awake and I'm down to 55kgs. I'm waiting to hear from the neurologist today for my 1st appointment and I can't wait.
@@RobdeKlerk-qg6lcyeah but at least you know what you're dealing with. The not knowing is driving me crazy.
@gypsy4659 True..I hope you will be OK...I have many symptoms as well...Same for me , had all tests but found nothing. Twitching, atrophy, breathing , tremors...just live life my lady..
@@gypsy4659 What did they say about your symptoms???
your video moved me , may god bless you and keep you strong
Thank you so much for this video..bless you and your family..you reminded me to appreciate life one moment at a time...you are so brave...
Very interesting that 10 years ago these symptoms were noticed. I suppose other people had possible ALS symptoms years before but ignore it or forgot about it. I am like you and observe any changes in normal body behavior. I was poisoned by a chemical that effects the nervous system 4 years ago and had many strange symptoms that I first thought may be ALS but most symptoms have gone now except still fall over from weak legs. Arms weak as well and so I wonder when you had leg issues so far back, what that could mean in the future in my case. I feel for you and hope your symptoms progress more slowly. Thank you for your story.
Agreed. 10 years of symptoms before diagnosis is a very rare and uncommon presentation.
I really hope you continue to improve with time, best of luck to you.
I love you. You will live long.
I was diagnosed with Parkinson’s disease in May 2021. What’s strange is many of my symptoms are similar to ALS. I’m starting to wonder.
how are you now?
my husband is fighting its hard hell on earth god bless u both xxxx
sincerely my dad was diagnosed with ALS early this year march to be precisely, and was so confused because I love my dad and wouldn't want to lose him so soon so I decided to look possible solution to ride of this ALS despite knowing it has no cure advised by the medical doctor. Everyday my dad's health depreciate keep losing weight and strength a friend advised me to try DR OKOLO ALS herbal formula that she use to cure her dad's heart disease and I was reluctant about it until after a second thought I decided to give a try because no harm in trying immediately I contacted him he assure me my dad will be cured within few weeks of medication and he sent me the medicine and I applied it on my dad as advised by DR OKOLO within 6weeks of using the herbal formula my dad was cured and my dad is free from ALS I went to the hospital that said there is no cure to ALS and informed them about my dad's healing and they were surprised you can contact DR OKOLO via email drokolosolutioncenter@gmail.com via WhatsApp+23407031895935 he also cured diseases like
HIV/AIDS
HERPES
CANCER
DIABETES
etc......
@@barraqaalim7459 👍🏼 bless you!!!
So sorry
Nice guy ,i live in Ireland great people, lovely country
Do you have burning sensation in your head? Does your head feel heavy like a rock?
I'm health sickness and disease dies when it touches me
-Magus of media
Please them find out what causes this terrible condition! The heart just wants to break!
Please sir help me my name is MOSAROF I'm from Bangladesh I'm 35 year old I'm suffering MND ALS disses one year please can you help me
I dont know what i have. I will pray for you...want to talk let me know.
Hi Larry how are you going
♥️♥️♥️
Just reaching out to see how you doing please respond back!
he's on facebook facebook.com/larry.ujhely
Please look into spiders. My friend told me about a spider story that she felt gave her als.
Come on....
This sounds like a case of PLS rather than ALS. Since you talk about the legs rather than one leg, the thumbs rather than one thumb. In ALS, as i understand it, one side is (in the beginning anyway) more affected than the other, and it tends to come on quite quickly.
Yes, I'm afraid not to offend anybody, but I am very familiar with ALS and symptoms he's describing don't sound like ALS. Not typical ALS anyway.
@@InHitchWeTrust but als can start in different ways but end up in the same way, which they did for him.
This disease seems to effects white male who are into exercise a lot ….. why is this?
I thought the same thing. Like they work out and are healthy. That needs to be studied
M