Diagnosed With a Deadly Brain Tumour: Incurable & Inoperable, Signs? Symptoms? Treatment?
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- Опубликовано: 7 дек 2022
- I had to brush over so much to try and keep this video from being super long, Some of the worst side effects was losing a lot of my memories and the brain fog that came with Chemotherapy.
But this was the shortened version of how I was diagnosed with my Brain Tumour and the prognosis .
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Hi Willy. My sister had the exact same. Just wanted to thank you for your great work. Love from Ireland.
💚from Ireland bro💯
so you know the name of the brain tumor?
@@ibagm.8 Yeah its called brain tumor
@@MiskatonicArkham but there are much different names in special ... brain tumor = you call something a car ... but different names for different brands and names of the car ...
@@ibagm.8 look brother..Im not an Oncologist or medical Doctor, But I think "Inoperable brain tumor" covers it in laymans terms. Best of luck to you.
That’s crazy man, just shows how precious our time really is. Thanks for spending the time to share this with us. Brought a tear to my eye
Yea some days I remember some days I forget. But everyday Grateful. Man it is a precious short time.
You're a good man, Willy, you're heart is in the right place, and you are doing good work. Anyone living with a - some would say a death sentence - you have to take each day as it comes. As we say, 'any day above ground is a good day😜'. I don't mean it in a cheeky smart way, Willy. BUT DON'T SPEED IT UP, AND KEEP UP THE VIDS👍😜
Willy you are a very handsome man - live as you would live forever. Women would love to
love you. Whether a a few years are to grow old with you. You are everything a woman would love in a man.
Very different to usual but this is some of the back story of how this channel started! (a lot skinnier back then haha)
thankyou legends
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first post in my feed of yours ive seen in awhile..was just thinking about u yeserday and poof here u are. god works in mysterious ways. just wanted to say im glad your still here. stay blessed
Selinexor. As of Feb 2022 it was in phase 2 international trials.
Your story is one of the most inspiring and equally tragic of any that I've heard. I had a friend that had the same diagnosis (not sure if it's the same type) and the doctor gave him 2 years. He lived another 10 and had his wits about him right till the end. I came across your channel because I've been following the ukraine conflict and was looking for something that was fully unbiased. I found it. Seriously I have a lot of respect for you and I hope keep up your good mentality, I'll be here supporting you from the other side of the world.
Have you looked at ZAP-X radio surgery that new device is developt specificly for brain tumors
There is a documentary on RUclips from ZAP-X called " first in man " about the first patiënt having radio brain surgery
My brother from Salisbury went through the same fight with his brain cancer as you there in Adelaide also. My quadraplegic friend gave me his outlook he lived by -
"Every day you wake up is a gift, enjoy life as you are one of the lucky ones"
I try to live up to this also as I'm dealing with the consequences of a car crash that I'm truly lucky to be alive. Police and Firies told me I would normaly would have died in the crash from their experience and I died twice on the operating table while the surgons battled to put me back together.
Each day is a gift, stay strong, positive and as you comrad says in your outro be an Aussie ratbag and a c_nt. Enjoy Life. ❤❤❤
Im watching my Mrs go through chemo and immunotherapy for stage 4 cancer, and know how tough treatment can be. We live one day at a time and always try to see the positives even on the most crap days. Keep on keeping on Bro. Sending you positive vibrations.
We love you, Willy! You're a stud and I pray for you every day!
thanks legend, I really appreciate it
@@willyOAM look into taking the mushroom supplement cordyceps sinesis either sold in capsule or the powdered form in bulk. good for overall general health and immune system and considered a superfood. studies found is increases cellular oxygen so it give you more energy and stamina. i believe in japan they are also looking into its anti cancer properties. if ya get the powder form in bulk, if ya want capsules the purica brand has the highest purity at around 78 percent. also look into lions mane which is also a mushroom extract, helps with brain. you cant take too much of cordyceps as you know if you did by getting the runs. if ya have the runs means cut back on the amounts you taking.
Only at age ~33 I started to grasp how little time there is left and I still continue to somewhat waste it. Stories like yours make me take a bit different perspective on things and for that I am grateful. Thank you.
Had a very similar situation with doctors failing to communicate between eachother for treatments and keeping the patient informed with my mother during her cancer battle. I saw how much the uncertainty impacted her health, as her condition was not something that had any known effective treatments and was inoperable. It was quite frustrating to her as much as painful to us to see her down in the dumps mentally during it as the chemo itself is a bloody battle on its own as you know.
You're a tough fella Willy. Stay strong legend, you're an inspiration to us all.
My Dad passed from cancer eariler this year and I've been battling with some health issues myself since 2019 that caused a cardiac arrest in 2020 so gotta take those sweet ass steroids haha and low dose chemo. You're truly inspirational and absolute legend mate, I don't know how you do it. Knowing of you makes me even more proud to be Australian and I thank you sir, for everything you do!
Your are tougher than you know. My Dad passed in 2019 as well. He was 90. He was able to go to his 90th birthday party when He was well and it made His day to see all the family.
all the best from a pommie
I’m very sorry for the loss of your Father.💔
I hope you get well completely real Soon! Take good care of you and hang in there. Everything will work out.
P.S. I know how you feel about steroids. I’m having to take them too. I have found that if you take them at bedtime, it’s not as bad. I’m American and I love Australian People. I hope you have a Merry Christmas! And get well real real Soon!♥️
@@anthonyhowrard526I’m sorry about the loss of your father too. I lost my Mom at 90 years old in June 2021. Losing a parent is a difficult thing to go through. Just take good care of you. Lots of Love and Respect from America!♥️
@@CMoore8539 Thank you so much. All the best to you and yours.
Thank you for your honesty and bravery.
I have stage 4 lung cancer. So I don't have that long. So I fully understand how you are. Also am an ex Cpl. Tanker. Best years of my life and would do it over in an instant. I thrive on my dark humour which my army mates all understand. After three wives I don't bother dating anymore as , as soon as you tell them that you have cancer they just run. I still want to finish my Ph.D. Only so the ex wives have to call me doctor! Love the show.
I'm sorry you're going through that, I can only hope you're still with us and things have since taken a better turn
Uncanny, the wife and I were just watching your vid yesterday and she asked about how you were doing with the cancer. She just went thru a 13cm spinal schwannoma, during which they did a PET and found a papillary thyroid cancer. Both treatable and have been removed, so we are very lucky. We appreciate the work you do on the channel and the info you present is really not readily available in such a format. Thank you for your service, and continued efforts Matt.
All the best to you two
You made the right decision. We chose the surgery for our family member. It was horrible. She lost the ability to move her entire side and speech. She lived 2 yrs longer, but the quality of life was absolutely horrible. We all regret convincing her to make that decision. It affected me deeply and made me decide then and there what decision I would make if it ever comes knocking on my door.
Your story is so familiar to me, I can’t really talk with anyone but one of my children about it. My illness was discovered three years ago by chance. I knew something was deadly wrong, was the time of the sickness and lockdowns. It was common with respect to my age, therapy was held off for a year. When I became very sick, I was given a daily pill, for what ever life I had left, no one new what that would be. My visit last night, was “you will grow immune to therapy”, this new doctor was more direct, and smarter, no dates, but few years is implied. When a person faces death, you look at it, and find what ever peace there is in it, or you loose your mind. I don’t think about it, waiting for the conversation with the grandkids and how to tell them and not tell them, like a cold that makes you feel a little bad, that never goes way. Sticking a port in my chest was never an option, wishing I was dead every day, sick as a dog, we not going to happen. I was lucky with this is form of treatment otherwise I wouldn’t be writing this today. I live with one of my children, I would never admit this to anyone else but, we have dark jokes about my dying and we laugh. It’s like you know an important date is coming, not sad or happy, just there, I’m ok with it, God Bless you Willy. . .
Im so sorry
@@Will-rl7lm thank you
I'm so sorry
@@sanel8756 😊
My father had glioblastoma, he died two months ago after two years of battle. I know how it is mate, especially when you started to talk about illness from chemo. He had the same, he also got allergic to Temodal eventually. Brain tumors are really a terrible disease. You are very brave mate, keep up the spirit.
Willie: Thanks for telling your story. I am much older than you and have suffered through some serious medical issues; not as serious as yours but somewhat similar. My body insists on growing tumors. Mine are on my adrenal glands and have affected my kidneys. I started noticing issues about 40 years ago. I went to the doctor and was misdiagnosed! For many years I was ill with symptoms and given entirely the WRONG medication and medical treatment. I finally saw a doctor who immediately recognized what was causing my symptoms and treatments were immediately stopped. I soon had a surgery to remove a large tumor on my right adrenal gland. I was hoping that would end it. But no. My left adrenal gland started growing a tumor. I was lucky because my tumors were treatable. Unfortunately, my kidneys have been greatly compromised. The doctors have told me that I will need dialysis. That was eight years ago. I refused. For some reason my kidney function has kinda stabilized and is working well enough to keep my alive? God has been good to me. I hope he is good to you and the quality of your life remains and lasts for many more years.
As somebody who has been through the bastard of cancer and Chemo. Although I'll never fully know your battles, I can empathise with your life experience and attitude. I really hope there is a way to find a successful outcome for your condition. All the very best mate.
You are a real trooper. I wish you just the best
You may have had to leave the army but your still a true warrior mate
We're kind of neighbours brother
Im in WA
We appreciate you greatly Willy 🙏 ❤️
Willy although me diagnoses wasn’t cancer I was told expect 10 years 15 at the very most, that was 31 years ago. Best of health to you.
I live with Ehlers-Danlos Syndrome with severe Hypermobility. . . it is hell.
You made me see, we all end up the same.
Thank you for your time!
I don't know how you feel about god but I paused this video in the middle and preyed for you. Been following your videos since Feb 24.
You’re a legend mate, I’ve always held a great deal of respect for you and the content that you make. But also to the fact that you haven’t let this control you’re life. Best of luck for you Willy
Willy, you are an inspiration.
I know it's not the same, but i have family who were diagnosed with HIV/AIDs back in the 1980s. They only barely made it to HAART.
Your story reminds me of theirs. When youve got a prognosis of 'This WILL kill you' its fucking hard news and it breaks many. But for some, they really take it and live by planting seeds for trees they will never sit under.
My Father had a one in a similar place but on the left controlling side, but his doctor never sent him for a scan our local hospital back in late 80s UK didn't have an MRI back then, but my dads did give him symptom's and from time to time he would collapse and it would have a stroke like effect so his doctor put him on stroke medication and he took this for about 9years i think, until while ill again needing an ambulance by chance he was taken to a much bigger hospital, given an MRI and told he had never had any stroke at all and it was a massive tumer causing pressure inside his skull, i was only about 16 while this was happening so my memory of the full details isn't great but somewhere around now they decided to try and remove it, which left him with no use of his left side, my dad used to be an active guy he was an army mechanic until his early 20s and served out in what was then Malaya after that he worked as a motor bike mechanic, he raced bikes had more trophies than the house had space, but he died age 57 having spent the best part of 10years in a wheelchair in an old folks home, so from the point it got so big it was out competing his brain for space he got around 20years half on medication that might have even been making him worse, half stuck in a chair with people 20-30years older than him, so make the most of what you've got,, always live your life to the fullest
Keep strong, love your work 💪🏽
Love you willy. Pray for things to get better❤️
Thanks for sharing Willy, take care man.
We all love you Willy, stay strong. Prayers sent.
Had no idea, just recently started watching. Hope a miracle for you and stay puttin out the dope content!
stay strong brother. love the work and story telling you do.
You are an absolute inspiration for all us Willy. Stay strong bud
At Cern there is a new treatment facility where they can hit inoperable Tumors with high intensity radiation without damaging the surrounding tissue, just for your information. Maybe you can get one of those places there even if its still in development. Also a Keto diet can significantly slow down the growth of tumors, maybe you wanna think about it.
Thank you so much for sharing this... All the best mate...
Hey Willy..extremely sorry to hear what you are going through..stay strong mate..your have great determination and will power...thoughts and prayers are with you !!!!!
Dude, your honesty and openness is inspiring.
Hey did receive my email couple of weeks ago.
Thanks for telling your story Willy
Wish you the best of luck willy. Many years to come ♥️
I am 60 and have fought accoustic nuromas for 30 years! The first surgery was state of the art skull base procedures 19 hours/7 surgeons, who later said I had only a few weeks left and i was losing my vision in days. Same whole headaches, as you, same sudden surgery, no prior warning about being near deaf, loud tinnitus and loads of local pain every since. I was among the top cat sailors and training for the '92 olympics in tornado sailing and studying instrument flying, one day, my Vietnam F-4 phantom instructer said your done take her down. I knew he was right but it still took 9 mos in total to get the correct diagnosis with a mri then cross state flight to mayo clinic and surgery within a day. I was blind for a while in the hospital but my 30 bday was a day i could see some rain on the window..
I even eventually made it back to professional sailing. An Aussie was my lifelong nemesis, Dryland from Sydney and I dueled for three decades. Being a pilot, notsomuch.
You are an inspiration Willy, I wish I had your mental strength.
Great video, love listening to you talk bro. Great quote at the end of the video too!
I admire your courage man. I hope you get to make awesome videos for many many years.
You are handling this with such grace. Thank you for sharing you precious time with us.
Love you Willy! God bless you.
Thank you for this video brother.
Wow mate such an incredible story. Your passion for life and genuine care for people comes across in every video. Much love my brother you are doing incredible work and are making thousands of people smile every single day
Incredible courage and inspiration Willy, stay strong, kia kaha from NZ
You're an inspiration Willy. Have a lovely Christmas mate.
God bless you Willy!! Thank you for providing a great channel!!!
We love you Willy and the podcast. Sending positive energy from Brissy
You are a Legend Willy!
Thanks for sharing your story Willie
So sorry you are going through this.
Really sorry to hear this Willy, I've only just found you on RUclips. I hope you achieve everything you set out to and that you have many years still on this earth.
Wishing you a Merry Christmas and a prosperous New Year and many more.
Sending my love....you are such an incredible man. X
Thank you for sharing your courageous story. 🙏 💪
Willy, thank you for sharing your story. I am two years out from my cancer treatment. Your bravery and strength through all of this issues inspirational.
Love hearing from you brother! Love your content. Keep on Keeping on!
stay tough willy, your work is important and educational, keep fighting man
You sir are an absolute bloody legend and the perfect example of someone to look up too and that's putting it mildly.
Thanks Willy. It's good to get some perspective of what you're coping with. You always seem so upbeat. Hang in there.
your fundraising is amazing and wonderful thankyou
This sucks to hear so much willy, I am glad you are making the best of your time and still hope for some kind of miraculous outcome or at least you can stay with your loved ones a few years longer
Thank you. I was curious where you'd gotten your expertise.
You are on my mind and in my prayers constantly brother. Truly inspiring stuff. God bless you and your family
Wow mate! you left me speechless. You are a very courageous and inspiring man.
Thank you for sharing your story. God bless you Willy
All well said brother and also well received. The more we do good things with no matter what cards we are dealt in life, the better we are as people. You are doing that in spades bro, be cool and keep on ‘shooting the breeze’. I’ll listen.
You're a top fella, keep doing what you do.
Hey man sorry to hear that. I love watching your vids man❤️
Thank you so much for sharing your story. You are definitely one of my favorite channels now, and you always produce such high quality content. Thank you for being a hero!
Damn, that’s a hell of a story. I’m sorry you have to go through this. I hope you prove them all wrong and live a long healthy life despite it. From one vet to another, I’ve really enjoyed the show, may it go on long.
Mate Keep doing what you’re doing smashing out the quality videos! Stay strong brother
Kia Kaha brother. Love your content and stories. Keep up the great work
Mate, you're a warrior, i hope you throughly enjoy the time you have
You’re a good man mate
Thank you for giving the background to your illness.
Keep up the great things you do for others.
God bless you brother.
Listened your story with tears… I was moved by your genuine and shining personality. Thank you so much for sharing your time with us.
This really made me cry…. You are an amazing young man and words can’t say how sorry I am.
I do hope you will have many years ahead of you, stay strong💕💕💕
Glad you're still alive Willy!
Sorry to hear about your life threatening illness. Wish you all the best and full recovery to good health.😊🇩🇪🙏
Love your stuff Willy and yeah your that kinda dude ide click with as for the unit pic you laying on aside like that is the same kinda shit I do clowning around keeping the morale high and light no matter what you do great work brother never stop
Your good man! And I’m glad your not letting this rock in the road stop you from enjoying life and not letting it hold you down! I still keep you in my prayers buddy for hope you go in and they say it’s going away but you got this keep being the man you are!
Thank you for sharing mate. Honestly how are you doing now? You seemed to so open and calm explaining your story. I don’t really believe anyone comes to terms.
Keep living large mate, my heart goes out to you and the family
Thank you for this window of wisdom. Loved the tree quote. 👍👍👍
Mate having the right mindset thanks Wikly your a true leg
I can't imagine how rough this would be for you bro but it makes me very happy to see this hasn't dragged you down & let it ruin you your an inspiration mate !
Best wishes for a life full of vitality for as long as possible... and the strength to deal with whatever life dishes out💪❤
The work you do to keep us all informed with this channel is making an important contribution Willy. Just the fact that you are doing this is also very inspiring, at least to me, but I'm sure many others.
You’re an inspiration brother. Much love and respect from the states
That’s tough willy Ive following your channel and would of never guessed what you are personally dealing with I’ve really enjoyed your channel and the way you’re doing your work certainly giving back and helping people understand thanks
It makes you look at life differently when your hit with a serious ill health with a life threatening condition i know it has to me keep the great work up mate.
I imagine dealing with something like this changes your perspective on a lot of things... I can't imagine how I would react if something like this happened to me. I have a lot of respect for you and hope you can get what you want out of life with the time you have. Much love.
Thanks for the follow up. It is good to not only have the community know but for you to do this... You are an Amazing man and yes those seeds you have planted will give shade in the future.
My best to you and yours
I fully understand exactly what you're saying. You're an amazing individual and I'm glad to have found your channel! Thank you for everything you're doing!
It's one thing seeing the same patient every once in a while, and to wonder how they're doing between appointments.....but to actually follow the life of someone making the best of their time, is magical in a way.
we're here for you, Willy. Don't forget that.
Hope you get well mate and beat this terrible disease
Great guy… you should be proud of what you have done and are doing… will pray for you
My niece is only 15 years old when she was diagnosed with a brain tumor. Prayers are DEFINITELY going up for you sir. Thank you for your service and the wonderful content you provide. You won't hear some of this stuff anywhere else. God bless!!!!
Extraordinary. You came up randomly on my YT feed with your long interview with Justin. For the last several hours I have been completely transfixed. I am rarely lost for words. Today I am. I don’t even know why I feel such thanks for your posts. Humbling.
You are a legend Matt. We never know how long we have so live life to the fullest with those who make a smile come to your lips and build memories for them to look back on when your time comes. ❤❤