Colon Cancer Survivor Story: Stage 4 and Still Thriving! | Lee's Story | The Patient Story
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- Опубликовано: 5 фев 2021
- Lee Jones' life was flipped upside down when he was diagnosed with stage 4 (metastatic) colon cancer.
In our www.ThePatientStory.com interview with Lee, he breaks down his entire cancer journey, from how he got diagnosed, making it through a recurrence, going through multiple chemotherapies and surgeries, and navigating important quality of life issues.
Check out his full story (with transcript) → www.thepatientstory.com/cance...
Is was just diagnosed with stage 4 colon cancer today and this conversation was excellent! It gives me so much hope!!!! Than you!
I am so sorry to hear about your diagnosis but so glad that this gives you hope! Sending you hugs ❤️ Stephanie
I’m glad it gave you hope.
Hey.. How r u now
Did you make it?
I’m sorry you got this news. I’m sure there’s a lot that’s racing through your mind right now. I will definitely say a prayer for you. You should really look up Chris Beat Cancer he has a LOT of cancer survivors stories!! Unbelievably inspiring and uplifting. Just watched a guy that was diagnosed with stage four colon cancer that spread to his liver. The doctors didn’t give him much time at all. They gave him zero hope. Well the wonderful news is hes still alive and well 21 years later ❤
My husband has stage 3 colon cancer and is severely anemic. This gives me so much hope🙏🏼Please pray with us for his recovery!
May God heal your husband fully in Jesus name amen!
@@lesta_force7725 ❤️Thank you and amen🙌🏻
Prayers 🙏
In the name of Jesus Christ I pray for Tanya's Husband and for Tanya for a powerful miracle and cure !.
Remain in his light and keep your hope !.
Godbless you!!!
❤
Thank you for the journey sharing and the good news for surviving so many years . I am on stage 3b colon cancer at age of 44 , under chemo now. Thanks for sharing and a lot of gratitude
Check into HIPEC
I have Stage 3 T3aN2aM0 colorectal cancer. I have gone through successful sigmoid colon resection surgery, but need 6 months of FOLFOX treatment starting on the 28th. I had the port put in yesterday and I am preparing mentally for this long set of chemo infusions. Thanks for providing this information as it will help me during my battle.
How r u doing
@@prakashsudha1999 I am done with 4 out of 12 treatments and feeling very good. I have had very few side effects except for bad stomach and digestion for the first few days after each treatment. Miralax has helped with that. I had a liquid biopsy where they sent my blood to be scanned to see if any sign of the bad dna could be found, but I am still awaiting on the results. I am hopeful for a zero hit result!
How are you doing today I have my tumor in sigmoid area too so far 2 rounds of chemotherapy no surgery yet
Best patient story yet. Lee is right on top of everything. He's so clear and his thought process is spot on! This video is worth its weight in gold!
I was diagnosed with stage 4 Colon/liver cancer a couple of weeks ago and thank you for this video. Very informative and find myself with the same thinking as Lee. Ready to do this one step at a time no matter what is coming my way.
I am only 43 so I'd suggest people go when for a colonoscopy at 40. Colon cancer does run in my family though. I've been preaching to everyone to stay on top of anything that runs in their family early and often.
Again, thank you for this interview and the hope.
Jerry, you can get though this and have a life.
What is your symptoms?
@@ashiruu1803 My symptoms were some weird feeling in my liver back in 2020 but I thought it was my lung from COVID.
Ignored it and what got me diagnosed was not being able poo or pass gas for the better part of 3 weeks. They kept giving me harder laxatives but it wasn't working so they took a CT scan.
@@margaretmanzer2194
Hi do you feel any upper back pain ?
@@kittyo3198 yes, low in the middle, really painful.
Well made interview Stephanie. I personally am interested to hear an individual’s cancer journey, and your video gives everything. It is very raising awareness and resourceful in the meantime.
Thank you so much for the kind words! -Stephanie
Thank you for posting this. It was helpful as my journey with colon cancer st 4 has just begun.
The best advice I can give you is too FAST and eat an alkaline diet only
Green juice every morning ... kale ginger lime celery parsley cucumber ..cancer cant survive in an alkaline body along w fasting it will die off
No matter what stage. A lady look her up tenaciousbutterfly got told she had weeks left to live went on an alkaline diet ... cancer gone in 90 days
She had stage 4 aggressive cancer. Cut out the sugar and carbs
Eileen, so glad this was helpful. We are thinking of you as you start treatment. -Stephanie
blessings 💕 Michelle
The type of surgery that was performed was not made clear. Details such as this are important to empowering people battling to become knowledgeable.
Thank you for sharing your story Lee, I was diagnosed with stage 4 colon cancer PET found cancer in my colon and multiple lymph nodes they also see modularity’s of the omentum suspicions for carcinomatosis and 1.8cm right adrenal nodules suspicious for metastatic no surgery right now I will have my first chemotherapy treatment this Friday 6/16/2023 I I’m really scare right now if anyone out there go through same diagnosis like me please advise I’m truthfully thank you 🙏
Hey am going trough the same still have not started any treatment but been told chemo and radiotherapy. Also not know which stage is hopefully will find out next week . stay strong have faith in God
How you feel ?
Be brave. You can face this. You are a warrior.
Love this one. Very good! Thank you to you both. Really enjoyed it. Best of health to all!!♥️
I've had LAR surgery about 6 months now after 6 chemo sessions. For about 2months now I feel discomfort in my rectum with poor urine flow and no erection. The discomfort is just too much such that I get temporal relief after visiting the toilet. Urological tests carried out after the LAR points to bladder outlet obstruction narrowed to "nerve damage during surgery" but the surgeons are not admitting to this. Going in for ileostomy reversal in 2 weeks time and I pray everything else gets corrected. What can I do better to relieve this rectum discomfort?
It really helps when you are financially able to get the top of the line treatments.
I didn't get a port; I had the infusion nurses do an IV each time I went in. They really hated to see me.
I'm curious: how many CRC cases present without blood in stool?
Treatment in the US is so good. Social security down in Costa Rica sucks. My dad had his colonoscopy on July 12. It is August 7 and the biopsy results are still not available.
I would like to know the diets and vaccine as status, he discussed a bit of his diet.
Thank you for this!
Hope it was helpful!
Hi, my mom has been diagnosed with stage 4 colon cancer about 3-4 weeks ago. She had pain in her stomach and bloody stool for a year before being diagnosed but choose to ignore it until one day she couldn’t handle the pain. She finally got checked up and did colonoscopy and found a tumor in her colon. We ran more test and found out it was cancerous and had spread to her liver. Surgery is not an option since there was too many and spread to other organs. We have just started chemo therapy and her lungs seem to be getting worse. Her legs are super swollen and there’s a lot of fluid trapped in her lungs. Right now she’s resting at the hospital and doctors are telling us there’s absolutely nothing we can do but wait for chemo to kick in. If it doesn’t kick in on time, it can be fatal.
I need some peace in mind and want to know if anyone has gone through this and tell me if these complication are normal. I’m praying and hoping that it’s just one of those thing where it gets worse before it gets better. I’m searching the web trying to find a solution knowing there probably isn’t any. I don’t want to give up and will continue to search for answers. Please help.. I can’t lose my mom.
Check into HIPEC
@@brentkentrell38 He is telling you that surgery is not an option.
@@truelies2667 I think you sent this to the wrong person
My 50 year old brother has colon cancer also & it’s also in his liver like your Mom. All they can do right now is chemo. Tough, emotional times. So sorry you’re going through this with your Mom.
How is your mother now?
Hi, thank you for the informative video!. I have multiple lesions on my liver (on both lobes). I didn’t always have them. The largest is 6cm. The MRI, CT scan and Ultrasound refer to them as “simple cysts”. I’m now experiencing symptoms of colon cancer and am scheduled for a colonoscopy next week. My CT stated that I have a “moderate to large stool burden”. Is it possible for all of those images to have mischaracterized my cysts? All opinions are appreciated. Thank you in advance!
So did he also took the chemo pills ?? I dont understand..or only IV?
For example, was it a liver transplant or liver resection surgery. He may have had a transplant however, I was told by Dr. that when it’s metastatic cancer one does not qualify for a transplant This is why details and clarity are important to empowerment.
Ana, that's a great note. Thank you for leaving it. Will keep in mind for following interviews. -Stephanie
Sorry, don't understand your point..if a doctor told you that you can't have a transplant with metastatic colon cancer then that's your answer isn't it? I had a liver resection last year due to one tumour spread to the liver...a liver transplant was never mentioned
At 34:30 he said liver tissues were taken out( resected ). He just described his liver surgeon as a transplant surgeon that’s what the confusion is.
I just started on my 3rd day of fasting , which I had seen on RUclips doctors, that fasting got rid of colon cancer on some people. I need to lose 70 pounds anyway and I will be doing a colonoscopy when I see my doctor in a couple of weeks. I will try to fast for 21 days. I hope it will help me to get rid of any tumor, if I have any and that I lose some unwanted pounds.
Fasting does NOT get rid of colon cancer! Fasting will simply make you weak, and kill you. You should sue whatever "doctor," actually a quack, told you that fasting will kill any type of cancer.
Fasting WILL NOT CURE CANCER. Just stop. Get your colonoscopy ASAP. You can lose weight later. Cancer won't wait.
How is the fasting going?
@@mainel7568, I went to my gastro doctor and told him I was fasting. He said that I might injure my kidney so I stopped after a week and a half. I will fast for a few days before my colonoscopy in two weeks to help clean my colon. My weight went back up .
@@wilfredmotosue2615 may I ask why u need to do the colonoscopy?
I am 38 and last year I was diagnosed with stage 3 colorectal cancer and now they found a few lesions in my liver. I can’t believe all that I tolerated horrible neuropathy and it didn’t do anything for me. I’m very scared of liver surgery. It seems people die from complications of it. Can you all share more experiences about liver surgery?
Thank you for sharing your experience. We will take this back to our content team as a focus area! Thinking of you. -Stephanie
Update?
I have rectal cancer and it spread to my liver 3 liasions where found there , I started looking into Alhpa lipoic acid infusions to help my liver out but before that I was doing 1 vitamin C infusion a week 50 grams, but switched to the alpha lipoic acid did 2 infusions a week with that for 6 weeks , then had liver surgery when they went in to take my liver cancer out , all they found was scar tissue left over from the cancer ,I did do 8 sessions of chemo along with my infusions, do your research on Alpha lipoic acid to heal the liver hopefully this helps u alittle
Great video! I have stage 4 colon cancer and would like to become an advocate. How can I help?
Lou, your eagerness to help is so wonderful. In terms of the advocacy we do, we can start but learning more about your story. If you are interested, please fill out our Intro Survey. Thank you! thepatientstory.typeform.com/to/OJfTUC
how can i contact you because my wife suffering from stage 4 colon cancer
Check into HIPEC
How is your wife?
not enough study and talk goes into Stage 0 and Stage 1 Colon cancer. All the science pretty much kicks Stage 0 and Stage 1 to the curb stating surgery as the only option and then the reports move to Stage 2 - 4. It's always an anecdote. Everytime you hear the news. or listen to some ones journey and see their diagnosis it's always 2 and beyond with a heavy leaning on stages 3 and 4.
Kris, thank you for the feedback. We're trying to grow our resources so we can cover many more stories and experiences. -Stephanie
I think its because by the time people have actual symptoms, its because they are already
at stage 2 and beyond. When I found out I had it, it was already stage 3
@@kimglass4851 how did you find out? That you had it and whats your symptoms?
@@ashiruu1803 I started losing weight and my stomach hurt constantly....also had black stools ....Dr. ordered a CT scan for me....was 48 and they said I had the tumor for about 2 yrs already
Benadryl doesn’t work for me.
Hello my mother is suffering from 4th stage colon cancer and she is going with chemotherapy no 12 cycle I just want to know what is the line of treatment I am from India please tell or guide.
Diwakar, I am so sorry to hear about your mom's diagnosis. Lee's full story can be found here (along with other colorectalcancer stories), I hope they can be helpful: www.thepatientstory.com/cancers/colorectal/colon/lee-j/
-Stephanie
Look into HIPEC
@@brentkentrell38 Not everyone can have this kind of surgery
@@truelies2667 yes I know but I was just saying they can check into it. My husband was stage 4 colon cancer and had this surgery, but your right not everyone is a suitable candidate for HIPEC
I am sorry to hear, How is your mother doing now
16:40 avantin?
He mentioned Avastin at that time code.
This was informative, but it could be improved upon. First, this video could have used some heavy editing. Second, Stephanie could learn to be more concise, and less rambling, in her questions.
How d
Yesterday, they found, in my first colonoscopy, (because of a small amount of blood in my stool and changes in bowel movements)a "likely malignant, partially obstructive tumor", and a few other things. BUT, for the colonoscopy PREP...make sure you have adult diapers with you! Other than being a little hungry...it wasn't THAT bad. The colonoscopy was a piece of cake and the best 30 minutes or so of sleep I've ever had! Tried to get them to let me go back to sleep with another warm blanket but,...had to get up to get the bad news. On to CAT scan, blood tests, and who knows what next.
Fran, just glad that you got a colonoscopy and that they were able to catch it. Appreciate your guidance on the prep part, we know that's the part a lot of people get nervous about! Thinking of you as you move on through the tests. ❤️ Stephanie
How are you man? What was the final result?
Update?
May the force be with you! How did the following treatment go? I hope you found the right diagnosis.
❤