Spinal Muscular Atrophy by Dr. Neelu Desai
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- Опубликовано: 8 сен 2024
- Spinal Muscular Atrophy (SMA) is a genetic, progressive and rare disease. It affects an individual’s ability to walk, eat and breathe.
Due to lack of awareness about SMA, it affects approximately one in 10,000 live births and is a leading genetic cause of death among infants.
Dr. Neelu Desai, Paediatric Neurologist & Epileptologist, P. D. Hinduja Hospital explains SMA and related treatments available.
Watch the video to know more.
Mam we didn't knew about this and unfortunately we lost our 6 month old baby with same symptoms. Very painful for us now.
I lost my niece of 2 yr old of same sma1
@@jessicasecular4937 unfortunate for a family. On 16th june our baby left us last year.
@@erosmanohar8519 i lost her on 26 may 2021 sma1
@@jessicasecular4937 so sad to hear this. We r helpless and Can't do anything against this. No words can describe this grief.
@@erosmanohar8519 i m much more angry on doctors actually
Bahut ghoomaya vononey pucho mat
Ye scan vo test vo therapy ye treatment but nothing worked
More and more life should be saved. But should it be at the cost of 16core for which a middle-class and below middle class is a distant dream.
Thanks mam
Good information but ma'am Zolgensma is expensive medicine...costing around 18cr
How much does gene therapy cost?
Medam plz tell me about limb gridle muscular dystrophy treatment
Does this medicene help for Motor neuron disease in adults?
Why is it so costly reatment
Is Sma and cp are same
limb girdle muscular dystrophy treatment available in hospital
I'm suffering from spino cerebellar ataxia... Is there any permanent treatment available for SCA
My mother died due to SMA 😢 can i also have chance of this disorder
My 6 years old child diganose with Spinal Muscular Arthopy type 2
He can't walk.
Any treatment ???
Search Dr abhi pandit..u need 18 crs to save his life❤️🙏pray for him
@@pravirsinghbawa9803 18 cr s middle class family can't afford
Please pray for him🙏🙏
Can genetic disease pkd be cured by gene therepy 🤔age 26
What is the cost of treatment
Zolgensma cost almost 18cr rupees....she just did not give the most valuable information...that it is this much costly...no normal person in India can afford this treatment.. it's just sad.
Dear dr sahiba mera 4 saal ka beta sma problems me hai kya krna chahiye mujhe pls rply
namaskar my baby Anuradha spinal muscular sma type 1 place place help 🙏🙏🙏
Hi Madam my sister is suffering MSA type 3 is there any treatment if it's there kindly help me
I am also😢😢😢
😊
Palce