Spinal Muscular Atrophy by Dr. Neelu Desai

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  • Опубликовано: 8 сен 2024
  • Spinal Muscular Atrophy (SMA) is a genetic, progressive and rare disease. It affects an individual’s ability to walk, eat and breathe.
    Due to lack of awareness about SMA, it affects approximately one in 10,000 live births and is a leading genetic cause of death among infants.
    Dr. Neelu Desai, Paediatric Neurologist & Epileptologist, P. D. Hinduja Hospital explains SMA and related treatments available.
    Watch the video to know more.

Комментарии • 37

  • @erosmanohar8519
    @erosmanohar8519 3 года назад +4

    Mam we didn't knew about this and unfortunately we lost our 6 month old baby with same symptoms. Very painful for us now.

    • @jessicasecular4937
      @jessicasecular4937 3 года назад

      I lost my niece of 2 yr old of same sma1

    • @erosmanohar8519
      @erosmanohar8519 3 года назад

      @@jessicasecular4937 unfortunate for a family. On 16th june our baby left us last year.

    • @jessicasecular4937
      @jessicasecular4937 3 года назад

      @@erosmanohar8519 i lost her on 26 may 2021 sma1

    • @erosmanohar8519
      @erosmanohar8519 3 года назад

      @@jessicasecular4937 so sad to hear this. We r helpless and Can't do anything against this. No words can describe this grief.

    • @jessicasecular4937
      @jessicasecular4937 3 года назад

      @@erosmanohar8519 i m much more angry on doctors actually
      Bahut ghoomaya vononey pucho mat
      Ye scan vo test vo therapy ye treatment but nothing worked

  • @syamsundar1099
    @syamsundar1099 3 года назад +1

    More and more life should be saved. But should it be at the cost of 16core for which a middle-class and below middle class is a distant dream.

  • @opgamers6529
    @opgamers6529 3 года назад

    Thanks mam

  • @standleebhandarkar2698
    @standleebhandarkar2698 3 года назад

    Good information but ma'am Zolgensma is expensive medicine...costing around 18cr

  • @anasrahman8937
    @anasrahman8937 2 года назад

    How much does gene therapy cost?

  • @Priyuge
    @Priyuge 2 года назад

    Medam plz tell me about limb gridle muscular dystrophy treatment

  • @vijayak7308
    @vijayak7308 3 года назад

    Does this medicene help for Motor neuron disease in adults?

  • @cncplasmacutting8027
    @cncplasmacutting8027 3 года назад

    Why is it so costly reatment

  • @torque4379
    @torque4379 Год назад

    Is Sma and cp are same

  • @rajpriya1437
    @rajpriya1437 3 года назад

    limb girdle muscular dystrophy treatment available in hospital

  • @kattarhindu107
    @kattarhindu107 3 года назад

    I'm suffering from spino cerebellar ataxia... Is there any permanent treatment available for SCA

  • @waqarahmedkhan3330
    @waqarahmedkhan3330 Год назад

    My mother died due to SMA 😢 can i also have chance of this disorder

  • @shahnawazalam7708
    @shahnawazalam7708 3 года назад +1

    My 6 years old child diganose with Spinal Muscular Arthopy type 2
    He can't walk.
    Any treatment ???

    • @pravirsinghbawa9803
      @pravirsinghbawa9803 3 года назад +2

      Search Dr abhi pandit..u need 18 crs to save his life❤️🙏pray for him

    • @shahnawazalam7708
      @shahnawazalam7708 3 года назад +1

      @@pravirsinghbawa9803 18 cr s middle class family can't afford
      Please pray for him🙏🙏

  • @ajaymeena1559
    @ajaymeena1559 2 года назад

    Can genetic disease pkd be cured by gene therepy 🤔age 26

  • @CraftKiDunia_miniatures
    @CraftKiDunia_miniatures Год назад

    What is the cost of treatment

    • @ranitadhikary338
      @ranitadhikary338 Год назад +1

      Zolgensma cost almost 18cr rupees....she just did not give the most valuable information...that it is this much costly...no normal person in India can afford this treatment.. it's just sad.

  • @RashidAli-vs6sm
    @RashidAli-vs6sm 2 года назад

    Dear dr sahiba mera 4 saal ka beta sma problems me hai kya krna chahiye mujhe pls rply

  • @toponkumer5967
    @toponkumer5967 2 года назад

    namaskar my baby Anuradha spinal muscular sma type 1 place place help 🙏🙏🙏

  • @ambikag4245
    @ambikag4245 Год назад

    Hi Madam my sister is suffering MSA type 3 is there any treatment if it's there kindly help me

  • @kuldeepdhuriya354
    @kuldeepdhuriya354 3 года назад

    😊

  • @princemp6612
    @princemp6612 2 года назад

    Palce