My little brother was born with epilepsy and a brain tumor. Doctors said he wouldn't live through infancy. He survived yet he was having over 200 seizures a day. At 6 years old he underwent experimental brain surgery as a last try effort to reduce his seizures. He had less than a 50% chance to survive the surgery alone and only a 5% chance it would be a success. He's 36 now and hasn't had a seizure since the operation. Doctors said he'd never walk yet he ran in the special Olympics. Today thousands of kids have had the same surgery that was developed on him saving them from the cruel fate the original doctors passed down. He truly is a miracle.
@@kianiefaith1654 I can try and find out from my parents, I was only 8 at the time. I do know it was a Duke University neurosurgery hospital. He was operated on by a large team of doctors. My Dad said there were several of those giant medical cases full of instruments in the theater.
@@skjrahaman9391 His neurologist was named Dr. Raymond S. Kandt. We are good, thx for asking. My Mom couldn't remember the other surgeon's name but said she would text me it later. If I remember I'll add it here. Edit: Dr. Kandt was his neurologist, Dr. Oakes was his Neurosurgeon.
I’m not sure about anyone else but after I have a Grand mal seizure, I don’t just “return to normal” in 15 minutes. Every muscle in my body hurts and I feel like I ran ten miles and I sleep all day afterward. Not to mention I’m stuck in my own little dream world for a while.
I hope it's not TMI. But I find it very strange that I am very dizzy and I need a minute to realize what has happened and then my body is in pain. I told my family I think I'm experiencing seizures and they didn't believe me because no one has seen it until last night.. but they still think I just fainted.
RinnaRoo See a neurologist. Sounds like a seizure rather then a stroke in my opinion. Fainting during a stroke is not that common I don’t believe. Sounds neurological to me.
@@Detroitraised im currently looking for one in my area. It just doesn't feel like normal fainting much more to it. My body's been hurting all day specially my lower back.
I've known that my dad is epileptic since I was a child. And while watching this video I couldn't help but to cry. Knowing that all of them happened to my dad. And I experienced getting bullied because of it, every time a classmate of mine would passed by she would act like she's having seizure or she's possessed (they said). I never tell my dad that I get bullied for it and that it affects my study (because when he experience major fits seizure, we would not go to school and would stay with him in a hospital for a few days). And I never blamed him for it, I know he's not at fault for having it, and that he is suffering for long enough. Instead it causes me to hate people who doesn't really have this illness but would act like they are having seizure for fun. You really don't know the struggles that the epileptic is going through and you don't know how much it affects the people around them. To dad, I am so proud of you, you were able to finished the course criminology, to get your driver's license and to be able to swim despite the danger it might cause you (the doctor told him he cannot do those things, but isn't driving or swimming anymore, at least he gets to experience it once in his life time). I am so proud of you for having to live a normal life despite the discriminations you received. I love you dad. I am really grateful to have you as my father, and I will never be ashamed of you.
I'm so sorry you and your father have had to go through all that Angel. Just remember there are many of us out here who understand and would never disrespect what people like you and your father have gone through and continue to go through. People who act in horrible ways get their bad karma, always. Life has a way of punishing and humbling. We just have to take care of ourselves and those in our corner. God bless!
Kids can be rude, been made fun of many times during fits on school, not losing consciousness during fits so had the lovely time to hear everyone gossip or even joke
same thing happened to me and everyone was to scared to even talk to me in school so they grew balls when I went under and when I woke up my teacher was surprised to see me stand up asked if I was ok " if you gave a rats ass you would have shut these punks up and called a nurse shut your mouth" then walked over to the guys desk and right hooked him out now he was the unconscious one Man karma is a bitch but I love dealing it out sometimes
I was diagnosed with epilepsy about a year ago and I really questioned how it would effect my everyday life. Watching this video gave me the reassure that there is hope and I can live a more normal life!
RIP Cameron Boyce May 28,1999- July 6,2019. I'm hoping they integrate a foundation in honor of your name geared towards research and possibly solutions on how to "cure" or control this condition in young people (the future of tomorrow) and of all ages. You are missed angel. Fly high ♥️💔💐✍️🌎👑
Well I just had my first seizure ever at the age of 26 today, and I didn't feel normal for about an hour, and even after that, I had trouble remembering simple things, like my phone number, or my cow name. I even forgot what year it was. But now it's been about 14 hours since it happened, and my body is starting to hurt. I did fall on my right side so I have bruising on my head, shoulder and thigh. I can't say it was a scary experience because I don't remember anything at all from it, but it was a very weird feeling being surrounded by everyone telling me I just had a seizure, especially when it's never happened before in my life!
Thanks to Dr. Oziegbe for curing my son who is 11 years, of epilepsy. It is still totally unbelievable that i finally found cure. Contact him at oziegbee2@gmail.com or through whatsaap +1 701-510-4473 and thank me later!
VERY INACCURATE! * First, epilepsy is not a disease, it is a MEDICAL CONDITION! * Response to external stimulation and awareness of surroundings are not the same thing. I can carry on a conversation immediately after the seizure but may not be aware of my surroundings for 45 minutes during my post ictal state i.e.; amnesia - I will not remember said conversation. (I once had a seizure while walking down the street -- the next thing I knew, I was 12 blocks away walking in the opposite direction.) * After the seizure itself comes the POST ICTAL STATE which varies widely from person to person. * The "majority" of seizures are FOCAL seizures which do not involve convulsions. * An "aura" is also a seizure, specifically a simple partial seizure. Don't confuse epilepsy with seizures due to known causes. "Epilepsy" is seizures due to unspecified/unknown causes and is a "catch all diagnosis" which is not to be confused with "seizures due to strokes" or some other diagnosis. "Epilepsy is fully treatable" is an outright false statement. If they had specified "in many cases, epilepsy is fully treatable" then it would be acceptable. e.g.; Many people who have "drop seizures" need to wear "crash helmets" in order to prevent skull fractures. Most people consider "fully treatable" as ATTAINING FULL CONTROL. BTW: Patients here in the USA get EXTREMELY offended when people call seizures "FITS." I AM NOT A DOCTOR, merely a patients sharing knowledge that I have aquired after living with epilepsy for close to 60 years.
howdydave45421 my 14 yr old daughter suffers from generalised tonic clonic seizures and focal epilepsy , she has been suffering from epilepsy for 10 years , I agree with what you have wrote in your comment , my daughter has exactly those symptoms during a seizure and after
I have epilepsy and he said that people are not aware after they have seizures. Not true. I had absence and tonic clonic seizures and after I had them I was aware of what happened
I was recently diagnosed with epilepsy and have found this very informative. I also am trying to read so much on this as it sort of is new to me. Not entirely freaked out over it, but am trying to keep sane and have it controlled. Thank You so much ❤️.
I know a doctor that can also help you get rid of it permanently he also save my life he can also help get rid of other illness......Kindly send me your WhatsApp number or email address so I can forward it to the doctor
Yes is true, my China doctor told me not to watch those advertisements which blinks fast. In 1998, I read news said in London many people suddenly got seizures when reporters took photos with flash lights.
@@Gravity_304 true, this doesnt have quickly repeating flashing images. but if comics do send someone into episode they would already know not to watch comics.
This taught me so much about my condition. Thank you so much!! I know it is not easy having epilepsy but I know that people are trying to find a cure so I can only pray. But again thank you for the video.
You are right, in most people it does, it varies. I think they take it to lightly. They didn't even talk about those who are resistant to therapy and those who aren't suited for surgery.
I was going to say that too, if I had a grand mal it can take me a whole day to recuperate. He sounds like someone who got their information from Wikipedia. Many people can not stop their anti-convulsants after 4 years that is so false. It’s crazy because when you have a grand mal it feels like it’s been hrs when it’s only been like 3 minutes.
Well they are sort of right since most people can recover between 15 to 30 minutes (I have epilepsy and I normally recover around 30 minutes or so) but in some cases it can be longer than that since it’s different for everyone.
Pretty sure my parents didn’t think I was possessed when they saw me have a seizure. Than again we’re not idiots. Seizures aren’t fun, not a fan waking up with a bloody mouth and vomiting but it honestly could be worse. Rather have epilepsy than brain cancer.
For a moment I felt like story of my life is going on.. I got about 4 or 5 seizures. It started when I was 18 mostly at morning. I'm 27 now and studying Mechatronics I'm scared of seizures that it ll occur while working on machines. So thinking of quiting my studies. Many times during seizures my shoulder had dislocated. I had to go through an operation. I wish no one ever face this condition. May God bless us all with good health.
@@shahazam120 yes im on treatment since then in Germany. after knowing the main cause of seizure, which was insomnia in my case. once I got seizure I didn't know what was going on with me or my body. after a while I just felt body pain, headache etc but it wasn't extreme painful. it's been almost 6 years and I'm seizure free. Just trying to stay on meds and having good sleep regularly.
thanks for sharing this! My Dad is really ill, and now he adds epileptic symptoms to his dementia. I will start reading up on this neurological condition today. I am thankful you share this.
This video is very important. My brother has severe refractory epilepsy and there needs to be more awareness for the neurological condition! I myself made a short documentary about my brother's story, and am a strong believer that videos (especially on youtube) are a great way to spread awareness. Good job!
I have mynoclonic epilepsy. When I wake up in the morning, I’ll get a seizure. And this happens once a month. My seizures last 30 secs. Then my body rests and I’m sleeping. After that I sleep the whole day. Now I have full awareness of my seizures. If my body doesn’t feel right and I start to jolt, I go on the ground and wait. Now I’m still taking meds and I have absent seizures. But I do get the spacing out.
Life was grand as a toddler, going on weekend trips with my parents, playing with my friends and listening to grandma as she shared one inspiring story after another about the good old days. What more could a child ask for than the love and comfort of her family? Surprising life quickly took a turn for the worst and that pathway I was destined to journey became rocky as traumatic obstacles crossed my life path and took me on a different journey. A journey, one no child should have to experience. The Beginning At the age of five, I had contracted a sore throat and an ear infection. My mother had brought me to the doctor’s office that evening and the pediatrician had put me on penicillin and told my mother to have me rest in bed. No one thought much of it at the time. I rested in bed and I was on the penicillin for about ten days. On the tenth night when she put me to bed, my lips were more red than usual. The next morning at about 8:00 A.M., my mother woke up because she heard unusual noises coming from my room that sounded like I was choking on my saliva. She walked into my bedroom to find me in my bed turning blue and having a grand mal seizure. This was the first time I ever experienced a seizure. ruclips.net/channel/UCOzqYUgTHdJqF-XuNH2qt5w
My big brother have been suffering from this illness for the last 20 years. He takes medicines regularly but still haven't recovered from this illness. The one thing i noticed that whenever he uses his brain too much he suffers from this illness or sometimes when he's way too angry about something and keep talking about stuffs. Then shortly after he falls. We've taken him to almost a 10-20 doctors but still nothing much have changed :(. He was only 4 years old when he got this illness. Please pray he recovers soon.
he couldn't had have epilepsy because you can only get an epileptic seizure while you are awake and they said he was asleep while he got the seizure so he probably didn't have epilepsy.
@@_ItsBibi_ just googled it, sorry i told the wrong information. I'm epileptic and my mom always told me i cant have a seizure while I'm asleep because my brain is also asleep haha but i hope he didn't have epilepsy because its not an easy thing to handle. rip cam
Our literature teacher started reading about Dostoevsky's epilepsy and describing his auras, deliriums and seizures to every detail, it made me uncomfortable to listen to descriptions of a seizure and I wanted to speak up every time she made a mistake about epilepsy, saying that there's foam coming out of people's mouths and that it's inheritable...
But you know what's worse? When they skip anything to do with the brain because they think you'll get offended! Like, seriously. My old teacher didn't know I have epilepsy so he taught us about epilepsy and other conditions to do with the brain but this year my teacher knew I have it so they didn't say anything about epilepsy [insert facepalm]
I have epilepsy multiple times and this is very helpful. I had it once last year, once in January this year, once in July this year and once in August this year. Thankfully, it's been four months and I'm feeling better
A piece of advice: Never tell people you have epilepsy. It's amazing how people will deep you unfit for EVERYTHING. They will find ways to prevent your working in certain settings and do things that limit your potential.
I agree that there can be limitations if you disclose your condition at the wrong time, but from my personal experience, those who know I'm epileptic have understood me, and respected my accomodations. There is definitely potential for one to live a normal life with epilepsy. If someone along the way denies you an opportunity due to seizures, I say "fuck them" and move on. It's impossible for everyone to understand seizures and epilepsy, but that doesn't always mean you have to sell yourself short of your potential. Don't give up!
I've never told anyone I have epilepsy. Not because it's dormant or because I'm ashamed, but becuase it genuinely never comes to mind to mention. It doesn't typically become a topic.
Very educative .. my girlfriend is suffering from this and I feel like I popped too late in her life to be of any help , she hates taking so much medication and hopes to stop but its been so many years since she started . I feel like her family neglected her
Wow my daughter has seizure how the operation make u feel.does it help u😢 may God help u to get better u and my daughter and everyone else that having seizure problems 🙏
This is a very informative video, and much of what is stated is true. I am grateful that there are videos that help educate the public on this condition. Before I say anything more, understand that just because you have had seizures, does not mean a diagnosis of epilepsy. I have occipital lobe epilepsy (accounts for no more than 5% of diagnoses). I am fortunate to be in the population that can function in everyday life. I was diagnosed at 26, and with medication, I can continue to work full-time as an RN, I am getting married in a couple of months, and I have managed to be seizure free for over a year. 3 years into my battle, they still haven't identified an underlying cause (a hallmark of epilepsy).Everyone is different, what might work for one person, may not for another. It is for the most part treatable, and doesn't have to control your life. Spread the appropriate knowledge, and don't be afraid to look out for yourself, or someone who may be blindsided by seizures. #seizetheday
The beauty of this video is that it didn't just provide us with information but also helped fight stigmatization and discrimination against epileptics ❤ JZK
Thank you for all the information, I really appreciate it. I was diagnosed with epilepsy a few months ago that starts in the parietal lobe and then spreads into the rest of my brain and caused the tonicoclonic seizures, happening every 2 days, always at night and with an aura of intense vertigo, with no apparent cause, so I wanted to learn more about all the terms my neurologist gave me and know what the heck it all meant, so thank you so much 🙏 😊
Same tho and good luck with all this and I hope you get better and I am 12 I'm turning 13 this year so when that happens I'm 3 years away from my driving test but I many never get to drive or be in the military because of this
@@sm0llqueen289 Same for me. It's so unfair. People who surrounds me doesn't want to be in military and don't have epilepsy but I want to be in military bit I have epilepsy.
I used to have epilepsy and it was in the frontal leftal lobe for me. I still get really really paranoid about it since I was never allowed to go to concerts since flashing lights and large amounts of sugar and anger lashing out fits and being left alone triggered them. I still can't be left alone though. My anger management problem was basically born out of my years of it. Mine usually was when I would have one I would just shake around usually fall off. I was able to hear my family calling me but I couldn't move to respond. Looking back it literally scares me a lot. I also stared off in to space a lot but never responded then I'd fall over and have a seizure. I went to the hospital after every time. I was afraid to grow up since I thought epilepsy ruined me forever. But I'm 14 now and no longer deal with it. It's in my history so I still stay under my normal habits of not going out to concerts or eat tons of sugar. My anger is still crazy outtakes control so yeah. But I still hate having to have it in my history and wish it was never there. I also think it's my fault cause I had one during important events such as my sisters birthdays. But I'm all better now.
Do you really need help to cure out your epilepsy, I can recommend you to a very powerful and spiritual man who can help you out with all kind of sickness ...especially epilepsy..
I'm epileptic too, and have autism but highly functional, so my seizures are well controlled and can live life normally 😊 Well good news I don't have seizures activity anymore so my brain can control itself now that it has developed a bit more which is a miracle now I don't have to worry too much about that.
My daughter is autistic and started having absence seizures and than when she turn 18 had her first epileptic seizure at night it was so scary for me called 911. After 3 months it came again twice in one day. My heart hurts so much from seeing her so. But she gets back to normal about 30 minutes after. She can read write and do a lot with her autism. I'm just scary we will lose her one of these day to these seizures.
Please tell me what u take for it my daughter has it and it's very scarey i need some help please and thanks to answer me i need advise and what to do God bless and keep u always pray God is real🙏
one of my friends had epilepsy while walking on road i was shocked and scared while people around gossiping that we took drugs nobody helped us i took him hospital alone
Right, it’s a lot more common than people think, but when usually people think about a seizure, first thing that comes to mind is gran Mal seizures. A lot of people don’t know about the other ones. I have complex partial seizures.
I didn't start having seizures until I was 20 years old. It caught me off guard when I woke up on the floor with my girl crying. I was like what the hell happened to me??? Honestly I grew up drinking and smoking at 16 and doing illicit drugs, so I think that played a major role in it. If I drink there is a 50% chance I'll have a seizure, so I have to stay away from liquor and beer, also no more drugs because it can cause me to be thrown into one as well. I hate having seizures but honestly they saved me from addiction.. kinda weird huh? Usually I can tell if I am going to have one, nosies because very loud, as if I can hear everything around me perfectly, and almost feels like the world is moving in slow motion. Morning time when I wake up I have to give myself about 5 mins before getting up and moving about before work. You can have a normal life, just be careful
Mera baccha ek din uske frnds ke sath swimming krne gaya tha. To achanak swimming krte smy mere bete ko first time mirgi ka ztka aaya. Uske frnds the sath me isliye acha hua. Uske baad use mirgi ke ztke aana chalu ho gaya. Ekdm achanak se mai aur uske papa tension me aagaye the. Kuch smj nahi aa raha tha kya kre. Najane kitne hospital me dikhaya lekin kuch fayda nahi hua. Baad me uske papa ko branocon syrup aur assicon syrup ke bare me pata chala ye Ayurvedic medicine hone ke karan Uske papa ne ye amazone se online mangwaya aur humne use is medicine ke doses dena chalu kr diya. Usko 5 mahine se branocon syrup aur assicon syrup de rahi hu tab se ek bhi baar mirgi ztka nahi aya. Ab maine uski sari medicine bhi bnd kr di hai./;'
Thank you, thank you so much! I am now no longer ashamed that I am temporarily epileptic based on the fact that medication can be stopped if I take the medication consistently for 3 years or so. It gives me hope that I can indeed overcome this illness with faith and discipline.
My best friend has epilepsy, I wasn't exactly sure what it was. I just knew that she had seizures because of something weird going on with and I was afraid to ask her what exactly it was. Thanks for helping me out!
I know a doctor that can also help you get rid of it permanently he also save my life he can also help get rid of other illness......Kindly send me your WhatsApp number or email address so I can forward it to the doctor
I had my first seizure about 5 years ago. Now I’m having them more frequently. I had my last seizure on Tuesday of this week :(. I was just diagnosed as epileptic by my doctor on Tuesday as well. I want to learn more about it.
I was 13 when i had my first seizure and then i had my section one 4 years ago and for me this is important info for people to learn about. my section seizure was very scary and I remember the bigening middle and end, i remember hearing the sirens from the emergency cars. Thank you for making this video, this means so much to me for this video.
same for me, i remember the minor seizures before my first seizure, then waking up barely able to hear anybody as if they were whispering from far away and the absolute confusion when i could barely stand from weakness and strangers showed up and helped me onto a stretcher and hearing the sirens the whole ride to the hospital laying there in total silent chaos trying to retrace my steps, i couldn’t remember what day it was
Whenever I have seizures, it usually takes me 2 days before I feel strong enough to go back to my everyday routine. It's hard for me to walk around afterwards and my legs feel very heavy
I have Epilepsy. I have been beaten and arrested for having a seizure in a Walmart. I have been ostracized by people who claim I'm demonically possessed. My own mother blamed Marilyn Manson, when she was the one that forced the Ritalin down my throat and caused me to develop it before I even hit my teens. It is a nightmare that I would never wish on my worst enemy.
My experience. Stress plays a big roll in my frequency of fits. While running and gym for two years. No fits. I've stopped for 4 months and two fits since then. I'm pushing myself back to fitness
I know a young girl who died in her sleep Wednesday and i'm still in disbelief....its so scary how you can be here today and gone tomorrow. Sigh do not take life for granted. Get saved!
I was really stressed a few years back and had a seizure. My sister questioned if the seizure was a stress seizure due to a bunch of stressful events happening in my family. The ER Dr. told us that night that stress seizures do exist but only in people with epilepsy, which at the time we didn't know I had. A couple months later I had to see a neurologist. She asked me if I had any seizures before and listed off a bunch of different seizures. I said that yes I had deja vu but thought it was normal. She said that deja vu can be but to a certain extent. I explain one of my episodes to her and she said that it was not just normal deja vu and it sounded like temporal lobe epilepsy. They did an EEG scan and found out that my brain is abnormal in the temporal lobe and that I was having seizures all those years. I was born with it and didn't know that those mini deja vu episodes were considered seizures. I was almost 21 when I was diagnosed. And the mini seizures (as I call them) or deja vu tend to happen more when I was stressed out. I've only had one grand moll seizures and hoping that's all I ever have. My medication has kept anymore seizures from happening.
stress is a major trigger which causes seizures for me as well and i can’t seem to control it. if i may, what medication have you been taking to control stress-induced seizures?
I just discovered I have epilepsy and is quite refreshing to see how lovely word it the video was thank you for encouraging me to continue studying and no be a shame of my illness
When I was diagnosed with Epilepsy, I studied it so I could learn more about what was wrong with me. After that, it made an 8 year old girl fall in love with Epidemiology (the study of anything that can fuck up your body). :)
The video is very important for us. I have been with Epilepsy since 1999 up today, I have been to hospital and when through Medication but still on able to recover. The only medice my Doctor as me to use at this moment is Carbamazepine. Life is very difficult for me with it. Low Educational knowledge
Mera baccha ek din uske frnds ke sath swimming krne gaya tha. To achanak swimming krte smy mere bete ko first time mirgi ka ztka aaya. Uske frnds the sath me isliye acha hua. Uske baad use mirgi ke ztke aana chalu ho gaya. Ekdm achanak se mai aur uske papa tension me aagaye the. Kuch smj nahi aa raha tha kya kre. Najane kitne hospital me dikhaya lekin kuch fayda nahi hua. Baad me uske papa ko branocon syrup aur assicon syrup ke bare me pata chala ye Ayurvedic medicine hone ke karan Uske papa ne ye amazone se online mangwaya aur humne use is medicine ke doses dena chalu kr diya. Usko 5 mahine se branocon syrup aur assicon syrup de rahi hu tab se ek bhi baar mirgi ztka nahi aya. Ab maine uski sari medicine bhi bnd kr di hai.//
I only have epileptic seizures at night and when I get up I don't feel my body and bit my tongue. It takes almost a day to recover halfway and the tongue even 2 to 3 days. I had that several times a week, I couldn’t concentrate and forgot things. Now i take medication it helps but i still don’t feel very good in the morning . I dont want to imagine what would happen without them . I have epilepsy. Since im 3 years old. If anyone else made this experience a comment would be nice 👍 Wish you all the best never give up science 🧪 is getting better ❤️🙏
I've had epilepsy since I was 2 and I had it for 10 years and it took doctors 5 months to find out what kind I had and my friend has the same type of epilepsy as me and I hope your epilepsy will be gone
I know a doctor that can also help you get rid of it permanently he also save my life he can also help get rid of other illness......Kindly send me your WhatsApp number or email address so I can forward it to the doctor
I’ve had epilepsy as long as I remember and I’m almost 16, the last time my doctor weened me off my medication I had a seizure a year later and had to stay the night in the hospital, and my doctor said I may have to be on medication for the rest of my life, because all the seizures I’ve had were really serious once’s.
I've had epilepsy since I was born and had the seizures since I was 8 (that's over 20 years now). I may not be able to drive, get a job, or live alone, but it did make an 8 year old girl fall in love with biology. Especially epidemiology (the study of anything that can fuck up your body). :)
Most of this information is incorrect if he was talking about any type of seizure other than a specific type of seizure. Although he is talking about a type of seizure, it is an uncommon type and he should have been much more specific.
Thank you for this video.its my first time to search this kind of topic because my 9years old daughter experienced seizure for once a year since 2023 and now 2024 and the doc said she had epilepsy.😢thank u for the info.❤
I was diagnosed in June 2023 with epilepsy at 56 years old. I found out by ending up in a canal in my land rover after having a seizure, not something I had had before. Life changing.
Epilepsy can hold a negative aspect on one’s future. From a psychological point he or she may not grow with the normalcy of society causing this person to feel inadequate in lifestyle. This person with epilepsy may not grow up normal in mind, but from a holistic sense, physically, socially, and so-forth. This person will have to be treated for other illnesses as well. Epilepsy not only has a negative impact on the the one with the disease, the one with with epilepsy has a negative impact on societal growth.
JodyJohn123 exactly. I also have a physical disability, as if that’s not bad enough, add what would be an invisible disability, until it appears that’s no longer being invisible, epilepsy. Sure other people do have multiple conditions, diseases disorders, and nobody wants to give you a chance to contribute to society because of those issues. And it takes time to find the right people who do take interest and what you can offer to the world. We also have bills to pay.
i have youth epilepsy which means it will probably only hunt my childhood, (i’m almost 15 now) i think it’s wrong to call it a disease, it’s not like covid or the flu, it’s something you are born with or slowly develops, you can’t do anything about it, i have to take medication everyday and the medication makes me tired/mildly tired throughout the whole day, but i still believe i have a future. (quick note for those who bully epileptic people like me, we can’t do shit about it, if you think it’s funny then you should feel how it is to have it yourself.)
I am an epileptic patient suffering from this since last 12 years and I have total 5 fits Allhumdulliha eating medicine on daily basis and this video was very helpful
I know a doctor that can also help you get rid of it permanently he also save my life he can also help get rid of other illness......Kindly send me your WhatsApp number or email address so I can forward it to the doctor
I was born with Petite Mal seizures and was finally diagnosed at 5 years old. My kindergarten teacher had a previous student who had them. Mine last 1-3 seconds. I do notice I've had it once I've come out of it. I've only had one Grand Mal in my life. I'm now 23 and on meds. I'm glad I have it under control.
I love when i have epilepsy. I am very tired on class so sometimes i get the epileptic fit so im kinda sleeping for 2min lol. But i hate the main seizures. They duck...
-, Wow this video really helps I've had epilepsy out of nowhere one day actually on memorial day of 2015, stayed in a coma for 7 days and has had it ever since. I'm 28 now never had epilepsy nor was it in my family gene's until that day, I've just been since then looking for more good information like this video to help me with. Never really got into the 🤔 "Aura" definition until now also since this video because I've felt that happen before out of nowhere feeling like your hallucinating or out of body feel and hearing noises and I've had to stop and lean over to come back to myself great video better than my own doc information!!! Also 😔 it's not fun having epilepsy, makes me just want to be alone sometimes it's scary though and just waking up just feeling so tired even more 😪 or a scar left inside your mouth from biting it for who knows how long threw the night but aye it could be worse rite 😔 but just wait it out and get better and stay strong 💪🏾 😊 just like this video says!!!
I know a doctor that can also help you get rid of it permanently he also save my life he can also help get rid of other illness......Kindly send me your WhatsApp number or email address so I can forward it to the doctor
(I'm 14 yrs old with a disablity ) I've decided to learn this because at my high school a teacher (she doesn't teach me) suffers with epilepsy and also a student in her class (a fresh man) suffers from that as well. The last time she had her attack it was in assembly.. Everyone was just watching and staring in fright some laughing others scared and didn't know what to do... I wanted to help so badly but I didn't know how to... But I quickly looked up how to assist her... And with that I assisted her. A few weeks after that when she was not with her class her student that suffers with epilepsy had her attack and I was able to help her... I felt so glad that I was able to help... We need to break the stigma for people who have epilepsy.
A disease is distinct and measurable. A disorder might indicate that a specific disease is possible, but there is not enough clinical evidence for diagnosis.
I assume he is referring to places such as undeveloped countries where woman may be forced or sold into a marriage. Sadly this still occurs in the world where woman have very limited rights.
@@javablossom you are giving a clean false reality. Yeah they may stay at home all day taking care of kids, but they are also raped and beaten and have no say for it to stop. They can also be sold or thrown away to another person.
I am fortunate enough to have very good meds for me so as long as I take them regularly (once a day) I don't have any issues, even if I play games, etc. Hadn't had a seizure in years.
I like how they say you can have good jobs even if you have epilepsy or get married I got fired from a job for having epilepsy twice and everytime I tell someone that I began to date I have epilepsy they break up with me!
I feel you...my boyfriend thinks i have aids...he said please dont dont do it again...like i want to shake like a crazy one...anyways...no...we cant have a normal life
My little brother was born with epilepsy and a brain tumor. Doctors said he wouldn't live through infancy. He survived yet he was having over 200 seizures a day. At 6 years old he underwent experimental brain surgery as a last try effort to reduce his seizures. He had less than a 50% chance to survive the surgery alone and only a 5% chance it would be a success. He's 36 now and hasn't had a seizure since the operation. Doctors said he'd never walk yet he ran in the special Olympics. Today thousands of kids have had the same surgery that was developed on him saving them from the cruel fate the original doctors passed down. He truly is a miracle.
@@kianiefaith1654 I can try and find out from my parents, I was only 8 at the time. I do know it was a Duke University neurosurgery hospital. He was operated on by a large team of doctors. My Dad said there were several of those giant medical cases full of instruments in the theater.
@@skjrahaman9391 His neurologist was named Dr. Raymond S. Kandt. We are good, thx for asking. My Mom couldn't remember the other surgeon's name but said she would text me it later. If I remember I'll add it here.
Edit: Dr. Kandt was his neurologist, Dr. Oakes was his Neurosurgeon.
She says his surgeon's name was Dr. Jerry Oakes.
@@clarkkent7638 I am very glad to know that now ur brother is ok and fine .well r u studying in university?
Robet, my three months old son is diagnosed with epilepsy, what shall i do next in confused
I've decided to learn everything I can for a friend of mine who's epileptic.
Reeyana Douglas I am doing the exact same
Reeyana Douglas I wish someone would do that for me ... good for y’all
Hey, me too :)
@@thundertoast7745 Have ur friend or uurself keep a Journal and use it for study. So that u both can fully understand what triggers some seizures.
And then theres me, whos just fascinated by things like this. Idk why I’ve just been obsessed with medical things since I was a kid
I’m not sure about anyone else but after I have a Grand mal seizure,
I don’t just
“return to normal” in 15 minutes.
Every muscle in my body hurts and I feel like I ran ten miles and I sleep all day afterward.
Not to mention I’m stuck in my own little dream world for a while.
I recently started experiencing the same thing but was not sure if it is fainting spells.
I hope it's not TMI. But I find it very strange that I am very dizzy and I need a minute to realize what has happened and then my body is in pain.
I told my family I think I'm experiencing seizures and they didn't believe me because no one has seen it until last night.. but they still think I just fainted.
RinnaRoo
See a neurologist. Sounds like a seizure rather then a stroke in my opinion.
Fainting during a stroke is not that common I don’t believe.
Sounds neurological to me.
@@Detroitraised im currently looking for one in my area. It just doesn't feel like normal fainting much more to it. My body's been hurting all day specially my lower back.
I felt exhausted and in pain i had to go to bed right after it happened and all day today.
I've known that my dad is epileptic since I was a child. And while watching this video I couldn't help but to cry. Knowing that all of them happened to my dad. And I experienced getting bullied because of it, every time a classmate of mine would passed by she would act like she's having seizure or she's possessed (they said). I never tell my dad that I get bullied for it and that it affects my study (because when he experience major fits seizure, we would not go to school and would stay with him in a hospital for a few days). And I never blamed him for it, I know he's not at fault for having it, and that he is suffering for long enough. Instead it causes me to hate people who doesn't really have this illness but would act like they are having seizure for fun. You really don't know the struggles that the epileptic is going through and you don't know how much it affects the people around them.
To dad,
I am so proud of you, you were able to finished the course criminology, to get your driver's license and to be able to swim despite the danger it might cause you (the doctor told him he cannot do those things, but isn't driving or swimming anymore, at least he gets to experience it once in his life time). I am so proud of you for having to live a normal life despite the discriminations you received. I love you dad. I am really grateful to have you as my father, and I will never be ashamed of you.
I'm so sorry you and your father have had to go through all that Angel. Just remember there are many of us out here who understand and would never disrespect what people like you and your father have gone through and continue to go through. People who act in horrible ways get their bad karma, always. Life has a way of punishing and humbling. We just have to take care of ourselves and those in our corner.
God bless!
Kids can be rude, been made fun of many times during fits on school, not losing consciousness during fits so had the lovely time to hear everyone gossip or even joke
❤❤
same thing happened to me and everyone was to scared to even talk to me in school so they grew balls when I went under and when I woke up my teacher was surprised to see me stand up asked if I was ok " if you gave a rats ass you would have shut these punks up and called a nurse shut your mouth" then walked over to the guys desk and right hooked him out now he was the unconscious one
Man karma is a bitch but I love dealing it out sometimes
I am epileptic. That taught me more than doctors told me, thank you
Edit thanks for 👍🏻
My mother just passed today from this
Jeannie Oneida 😭
@@bodeigausweibly5693 Sorry for your lost.
😭😭RIP🙏
I KNOW i cant agree more
I was diagnosed with epilepsy about a year ago and I really questioned how it would effect my everyday life. Watching this video gave me the reassure that there is hope and I can live a more normal life!
RIP Cameron Boyce May 28,1999- July 6,2019.
I'm hoping they integrate a foundation in honor of your name geared towards research and possibly solutions on how to "cure" or control this condition in young people (the future of tomorrow) and of all ages. You are missed angel. Fly high ♥️💔💐✍️🌎👑
I'm sorry for your loss.
NV_ Edits / CypherKpop epilepsy isn’t a disease, it’s a condition/disorder.
@@scylvia it is a disease that affect the brain communication system, disease is a general term, so it is a correct term but not specifique
Juice wrld
@@jnbvev6208 Juice didn't have epilepsy, he just had that seizure because he was addicted to drugs and alcohol. E.g., he kinda died of brain damage.
Well I just had my first seizure ever at the age of 26 today, and I didn't feel normal for about an hour, and even after that, I had trouble remembering simple things, like my phone number, or my cow name. I even forgot what year it was. But now it's been about 14 hours since it happened, and my body is starting to hurt. I did fall on my right side so I have bruising on my head, shoulder and thigh. I can't say it was a scary experience because I don't remember anything at all from it, but it was a very weird feeling being surrounded by everyone telling me I just had a seizure, especially when it's never happened before in my life!
Thanks to Dr. Oziegbe for curing my son who is 11 years, of epilepsy. It is still totally unbelievable that i finally found cure. Contact him at oziegbee2@gmail.com or through whatsaap +1 701-510-4473 and thank me later!
I didn't get my diagnosis until I was 27.
I got diagnosed at 14, and I'm turning 24.
@@sandysuchamisfit i was diagnosed at 15 I'm turning 27 now
Did u get another seizure after that?? Are you taking medication now?? Is it stopped...
Cameron Boyce is the reason am here today to find out more about this condition. He died in his slp 😳 4:22...
RIP Luke ❤🌻
caprecey same here
@caprecey here too
@@athenalasagna9600 sleep
SAME HERE
Me too😢
As an epileptic, I'm glad to know that I'm not the only one that falls to the floor and starts doing the zombie worm
me too
Me too
Zombie worm 😂😂😭😭my epileptic wife would appreciate that term 😅😅
1:18 Actually, stress really does trigger seizures. It's done it to me for years.
Same for me :(
same 😞
VERY INACCURATE!
* First, epilepsy is not a disease, it is a MEDICAL CONDITION!
* Response to external stimulation and awareness of surroundings are not the same thing. I can carry on a conversation immediately after the seizure but may not be aware of my surroundings for 45 minutes during my post ictal state i.e.; amnesia - I will not remember said conversation. (I once had a seizure while walking down the street -- the next thing I knew, I was 12 blocks away walking in the opposite direction.)
* After the seizure itself comes the POST ICTAL STATE which varies widely from person to person.
* The "majority" of seizures are FOCAL seizures which do not involve convulsions.
* An "aura" is also a seizure, specifically a simple partial seizure.
Don't confuse epilepsy with seizures due to known causes. "Epilepsy" is seizures due to unspecified/unknown causes and is a "catch all diagnosis" which is not to be confused with "seizures due to strokes" or some other diagnosis.
"Epilepsy is fully treatable" is an outright false statement. If they had specified "in many cases, epilepsy is fully treatable" then it would be acceptable. e.g.; Many people who have "drop seizures" need to wear "crash helmets" in order to prevent skull fractures. Most people consider "fully treatable" as ATTAINING FULL CONTROL.
BTW: Patients here in the USA get EXTREMELY offended when people call seizures "FITS."
I AM NOT A DOCTOR, merely a patients sharing knowledge that I have aquired after living with epilepsy for close to 60 years.
howdydave45421 my 14 yr old daughter suffers from generalised tonic clonic seizures and focal epilepsy , she has been suffering from epilepsy for 10 years , I agree with what you have wrote in your comment , my daughter has exactly those symptoms during a seizure and after
True Dave
@@dynamitedynamite2737 Contact Rubby for a Natural cure and consultation for all disease. She has helped me once. Contact via whatsapp +2349091419996
howdydave45421 thank you so much!
I have epilepsy and he said that people are not aware after they have seizures. Not true. I had absence and tonic clonic seizures and after I had them I was aware of what happened
I was recently diagnosed with epilepsy and have found this very informative.
I also am trying to read so much on this as it sort of is new to me. Not entirely freaked out over it, but am trying to keep sane and have it controlled.
Thank You so much ❤️.
May the Lord Bless and blanket all those who suffer from epilepsy in his hedge of protection. 💕
I know a doctor that can also help you get rid of it permanently he also save my life he can also help get rid of other illness......Kindly send me your WhatsApp number or email address so I can forward it to the doctor
Thank You
God Bless!!
Thank you very much . Hope I can recover in the next 3 to 5 years .
I'm here because of Cameron Boyce (I didn't know what it was)
Esther Mampouya same
Same
Same
Same
I’m wondering, how was he not once triggered by the camera’s flashing light at the red carpets?
Ironically some of the transitions on this video could set up someone who’s sensitive to flashing colours...
oh god.
Glad I saw this almost watched it more could have set me up for a seizure thank you!
dont fucking exaggerate
Yes is true, my China doctor told me not to watch those advertisements which blinks fast. In 1998, I read news said in London many people suddenly got seizures when reporters took photos with flash lights.
@@Gravity_304 true, this doesnt have quickly repeating flashing images. but if comics do send someone into episode they would already know not to watch comics.
This taught me so much about my condition. Thank you so much!! I know it is not easy having epilepsy but I know that people are trying to find a cure so I can only pray. But again thank you for the video.
Obviously the person who made this video never really experienced epilepsy. Pretty inaccurate recovery takes a lot longer than 15 to 30 mins.
You are right, in most people it does, it varies. I think they take it to lightly. They didn't even talk about those who are resistant to therapy and those who aren't suited for surgery.
Ellen Vandyke you're right it could take up to a day or more to fully recover I know from experience because I have epilepsy
I get aheadache that makes me almost scream. Up to 24 hours or more...
I was going to say that too, if I had a grand mal it can take me a whole day to recuperate. He sounds like someone who got their information from Wikipedia. Many people can not stop their anti-convulsants after 4 years that is so false. It’s crazy because when you have a grand mal it feels like it’s been hrs when it’s only been like 3 minutes.
Well they are sort of right since most people can recover between 15 to 30 minutes (I have epilepsy and I normally recover around 30 minutes or so) but in some cases it can be longer than that since it’s different for everyone.
MASSIVE SENSE OF DEJA VU BEFORE A SEIZURE OCCURS IS WHAT I HAVE EXPERIENCED
S same here
Me too
The animations of the seizures made me cry having someone you love living through this everyday hurts physically
):
I was laughing but suddenly got sade when I read your comment
Pretty sure my parents didn’t think I was possessed when they saw me have a seizure. Than again we’re not idiots. Seizures aren’t fun, not a fan waking up with a bloody mouth and vomiting but it honestly could be worse. Rather have epilepsy than brain cancer.
You waking up with a bloody mouth and vomitting?
@@arandompasserby1725 yes with epilepsy you wake up with a mouth full of blood where you’ve bitten it in the seizure and you feel incredibly sick.
@@sarahsmith9430 that sounds painfull. I'm sorry you guys have to exprience that.
@@arandompasserby1725 I’m used to it by now, it’s controlled by medication and mindset. Epilepsy therapy helps too.
@@sarahsmith9430 good to hear that
For a moment I felt like story of my life is going on.. I got about 4 or 5 seizures. It started when I was 18 mostly at morning. I'm 27 now and studying Mechatronics I'm scared of seizures that it ll occur while working on machines. So thinking of quiting my studies. Many times during seizures my shoulder had dislocated. I had to go through an operation. I wish no one ever face this condition. May God bless us all with good health.
I hope you get well soon!!!
I got 6 seizures and yea it s bad avgree
Hi Details plz did you get treated? From where? Seizure is it painful?
@@shahazam120 yes im on treatment since then in Germany. after knowing the main cause of seizure, which was insomnia in my case. once I got seizure I didn't know what was going on with me or my body. after a while I just felt body pain, headache etc but it wasn't extreme painful. it's been almost 6 years and I'm seizure free. Just trying to stay on meds and having good sleep regularly.
Rest in paradise Cameron Boyce💔💔
@Dab yes
@Dab yes sadly, for Cameron Boyce and I believe also Juice World (who is a rapper) both passed away from epileptic seizures :(
thanks for sharing this! My Dad is really ill, and now he adds epileptic symptoms to his dementia. I will start reading up on this neurological condition today. I am thankful you share this.
This video is very important. My brother has severe refractory epilepsy and there needs to be more awareness for the neurological condition! I myself made a short documentary about my brother's story, and am a strong believer that videos (especially on youtube) are a great way to spread awareness. Good job!
Smh r.i.p Cameron 😔💔 this condition is to effective ..
I am an epileptic patient, & have been treated. I now lead a normal life, Thanks for inspiring people by sharing the right info on the subject
My aunt was suffering from this epilepsy before, now she is totally cured,with the help of herbal medicine, prepared by (Dr igwemba).
@@lauradavid521 hey can you share the link pls
How was it treated?
Hi can you share details plz nature of epilepsy and treatment and doctor's name and address. Thanks
@@lauradavid521Hi can you share the details plz
I have mynoclonic epilepsy. When I wake up in the morning, I’ll get a seizure. And this happens once a month. My seizures last 30 secs. Then my body rests and I’m sleeping. After that I sleep the whole day. Now I have full awareness of my seizures. If my body doesn’t feel right and I start to jolt, I go on the ground and wait. Now I’m still taking meds and I have absent seizures. But I do get the spacing out.
"girls can be married off"... uh what year is this
news flash, it still happens in undeveloped countries
this video is made in GB there are ppl who r concerned from india and pakistan. it's an awareness video.
2019, but 1019 in other countries.
I guess he meant that If y want to be married and have children,epilepsy doesn't affect y..
But I'm guessing both men and women would be affected!
Exactly what I was thinking. Not to mention the numerous mentioning of demon/evil spirit possibilities.
Life was grand as a toddler, going on weekend trips with my parents, playing with my friends and listening to grandma as she shared one inspiring story after another about the good old days. What more could a child ask for than the love and comfort of her family?
Surprising life quickly took a turn for the worst and that pathway I was destined to journey became rocky as traumatic obstacles crossed my life path and took me on a different journey. A journey, one no child should have to experience.
The Beginning
At the age of five, I had contracted a sore throat and an ear infection. My mother had brought me to the doctor’s office that evening and the pediatrician had put me on penicillin and told my mother to have me rest in bed. No one thought much of it at the time.
I rested in bed and I was on the penicillin for about ten days. On the tenth night when she put me to bed, my lips were more red than usual. The next morning at about 8:00 A.M., my mother woke up because she heard unusual noises coming from my room that sounded like I was choking on my saliva. She walked into my bedroom to find me in my bed turning blue and having a grand mal seizure. This was the first time I ever experienced a seizure.
ruclips.net/channel/UCOzqYUgTHdJqF-XuNH2qt5w
My big brother have been suffering from this illness for the last 20 years. He takes medicines regularly but still haven't recovered from this illness. The one thing i noticed that whenever he uses his brain too much he suffers from this illness or sometimes when he's way too angry about something and keep talking about stuffs. Then shortly after he falls. We've taken him to almost a 10-20 doctors but still nothing much have changed :(. He was only 4 years old when he got this illness. Please pray he recovers soon.
As en epileptic I can assure you that epilepsy is for life. Drugs just helps to control epilepsy and can't cure.
This is allegedly what Cameron Boyce had😭 R.I.P Cam ❤️
he couldn't had have epilepsy because you can only get an epileptic seizure while you are awake and they said he was asleep while he got the seizure so he probably didn't have epilepsy.
luna Apparently you can have any form of seizure while sleeping and some epilepsy seizures only occur when sleeping
@@_ItsBibi_ just googled it, sorry i told the wrong information. I'm epileptic and my mom always told me i cant have a seizure while I'm asleep because my brain is also asleep haha but i hope he didn't have epilepsy because its not an easy thing to handle. rip cam
luna I’m so sorry that you have epilepsy 😭 I hope you are safe and I wish you all the best in this journey of life ❤️
@@_ItsBibi_ thank you so much, you don't know how much your kind words mean to me. also i wish you the best in life too
When your biology teacher starts talking about epilepsy out of the blue and you are an epileptic never felt so uncomfortable in my life 😬😓
Merra Gohar I didn't have that I just had a doctor put me on a drug for a bit until I was sorted I was walking around school like a bloody zombie
Our literature teacher started reading about Dostoevsky's epilepsy and describing his auras, deliriums and seizures to every detail, it made me uncomfortable to listen to descriptions of a seizure and I wanted to speak up every time she made a mistake about epilepsy, saying that there's foam coming out of people's mouths and that it's inheritable...
But you know what's worse? When they skip anything to do with the brain because they think you'll get offended! Like, seriously. My old teacher didn't know I have epilepsy so he taught us about epilepsy and other conditions to do with the brain but this year my teacher knew I have it so they didn't say anything about epilepsy [insert facepalm]
@@wellhelltherefellwhuman4637 My biology teacher said it's a psychosis!
@@klopici wait what's "a" psychosis??😂
I have epilepsy multiple times and this is very helpful. I had it once last year, once in January this year, once in July this year and once in August this year. Thankfully, it's been four months and I'm feeling better
A piece of advice: Never tell people you have epilepsy. It's amazing how people will deep you unfit for EVERYTHING. They will find ways to prevent your working in certain settings and do things that limit your potential.
I agree that there can be limitations if you disclose your condition at the wrong time, but from my personal experience, those who know I'm epileptic have understood me, and respected my accomodations. There is definitely potential for one to live a normal life with epilepsy. If someone along the way denies you an opportunity due to seizures, I say "fuck them" and move on. It's impossible for everyone to understand seizures and epilepsy, but that doesn't always mean you have to sell yourself short of your potential. Don't give up!
@@benreeve7448 this is great:)
I agree if anyone tries to stop me I will be" fuck it I'll do it anyways" GIVE ME CHALLENGES
I have a type where I freez
I've never told anyone I have epilepsy. Not because it's dormant or because I'm ashamed, but becuase it genuinely never comes to mind to mention. It doesn't typically become a topic.
@@zakle3805 I'm sorry that you feel ashamed. I rarely replied this but I have phonolhobia and globophobia and I always felt ashamed
RIP CAMERON 💔😥🙏
Very educative .. my girlfriend is suffering from this and I feel like I popped too late in her life to be of any help , she hates taking so much medication and hopes to stop but its been so many years since she started . I feel like her family neglected her
I had seizures epilepsy’s and with operation thank God doing better
Wow my daughter has seizure how the operation make u feel.does it help u😢 may God help u to get better u and my daughter and everyone else that having seizure problems 🙏
This is a very informative video, and much of what is stated is true. I am grateful that there are videos that help educate the public on this condition. Before I say anything more, understand that just because you have had seizures, does not mean a diagnosis of epilepsy. I have occipital lobe epilepsy (accounts for no more than 5% of diagnoses). I am fortunate to be in the population that can function in everyday life. I was diagnosed at 26, and with medication, I can continue to work full-time as an RN, I am getting married in a couple of months, and I have managed to be seizure free for over a year. 3 years into my battle, they still haven't identified an underlying cause (a hallmark of epilepsy).Everyone is different, what might work for one person, may not for another. It is for the most part treatable, and doesn't have to control your life. Spread the appropriate knowledge, and don't be afraid to look out for yourself, or someone who may be blindsided by seizures. #seizetheday
Anyone here after Cameron's death😭😭😭😭😭😭😭😭😪😪😪😪😪😪😪😪😪RIP Cameron!😪😪😪😪😪😪😪😭😭😭😭😭😭😭
Me
Me
Me :(
I am
Who is Cameron?
The beauty of this video is that it didn't just provide us with information but also helped fight stigmatization and discrimination against epileptics ❤ JZK
You suffering from epilepsy?
I'm a visual learner, I really enjoy this educational video, thank you.
Thank you for all the information, I really appreciate it. I was diagnosed with epilepsy a few months ago that starts in the parietal lobe and then spreads into the rest of my brain and caused the tonicoclonic seizures, happening every 2 days, always at night and with an aura of intense vertigo, with no apparent cause, so I wanted to learn more about all the terms my neurologist gave me and know what the heck it all meant, so thank you so much 🙏 😊
Im epileptic and this video showed so much more than i knew. Thanks😇
Thanks for positive words and feedback
Same tho and good luck with all this and I hope you get better and I am 12 I'm turning 13 this year so when that happens I'm 3 years away from my driving test but I many never get to drive or be in the military because of this
@@sm0llqueen289
Same for me. It's so unfair. People who surrounds me doesn't want to be in military and don't have epilepsy but I want to be in military bit I have epilepsy.
All the Best to everyone suffering from this
I used to have epilepsy and it was in the frontal leftal lobe for me. I still get really really paranoid about it since I was never allowed to go to concerts since flashing lights and large amounts of sugar and anger lashing out fits and being left alone triggered them. I still can't be left alone though. My anger management problem was basically born out of my years of it. Mine usually was when I would have one I would just shake around usually fall off. I was able to hear my family calling me but I couldn't move to respond. Looking back it literally scares me a lot. I also stared off in to space a lot but never responded then I'd fall over and have a seizure. I went to the hospital after every time.
I was afraid to grow up since I thought epilepsy ruined me forever. But I'm 14 now and no longer deal with it. It's in my history so I still stay under my normal habits of not going out to concerts or eat tons of sugar. My anger is still crazy outtakes control so yeah. But I still hate having to have it in my history and wish it was never there. I also think it's my fault cause I had one during important events such as my sisters birthdays. But I'm all better now.
Do you really need help to cure out your epilepsy, I can recommend you to a very powerful and spiritual man who can help you out with all kind of sickness ...especially epilepsy..
+2348024971239
I am having a presentation next week about epilepsy soo wish me luck!
I'm epileptic too, and have autism but highly functional, so my seizures are well controlled and can live life normally 😊
Well good news I don't have seizures activity anymore so my brain can control itself now that it has developed a bit more which is a miracle now I don't have to worry too much about that.
I am a highly functional autistic, with grand mal seizures. :D though i hate the meds....
My daughter is autistic and started having absence seizures and than when she turn 18 had her first epileptic seizure at night it was so scary for me called 911. After 3 months it came again twice in one day. My heart hurts so much from seeing her so. But she gets back to normal about 30 minutes after. She can read write and do a lot with her autism. I'm just scary we will lose her one of these day to these seizures.
@@charmaineisaac9680 please pray U not going to loose her my daughter has it too they have diet to control it and medications God is in control
Please tell me what u take for it my daughter has it and it's very scarey i need some help please and thanks to answer me i need advise and what to do God bless and keep u always pray God is real🙏
@@tametiabenzbenz9261 well keep praying over her and ask God to cover her brain from having those seizures 🙂🙏🏽
this video gives me hope 🖤
one of my friends had epilepsy while walking on road
i was shocked and scared while people around gossiping that we took drugs
nobody helped us i took him hospital alone
People judges too quickly!
Many people don't even know epilepsy exist
Chaos Knight That’s crazy, considering that it’s more common than we think
Right, it’s a lot more common than people think, but when usually people think about a seizure, first thing that comes to mind is gran Mal seizures. A lot of people don’t know about the other ones. I have complex partial seizures.
That never happend to me but I dont shake I stare so ya but I hope your friend is ok
I'm watching this because Cameron Voyce died of it..Rest in peace😭
Boyce??
I didn't start having seizures until I was 20 years old. It caught me off guard when I woke up on the floor with my girl crying. I was like what the hell happened to me??? Honestly I grew up drinking and smoking at 16 and doing illicit drugs, so I think that played a major role in it. If I drink there is a 50% chance I'll have a seizure, so I have to stay away from liquor and beer, also no more drugs because it can cause me to be thrown into one as well. I hate having seizures but honestly they saved me from addiction.. kinda weird huh?
Usually I can tell if I am going to have one, nosies because very loud, as if I can hear everything around me perfectly, and almost feels like the world is moving in slow motion. Morning time when I wake up I have to give myself about 5 mins before getting up and moving about before work. You can have a normal life, just be careful
Matty Domi thank you. Soo true. I can relate.
R.I.P. Cameron Boyce what a kind young man :(
I know someone personally who has epilepsy and I have trued to learn a lot about it
Mera baccha ek din uske frnds ke sath swimming krne gaya tha. To achanak swimming krte smy mere bete ko first time mirgi ka ztka aaya. Uske frnds the sath me isliye acha hua. Uske baad use mirgi ke ztke aana chalu ho gaya. Ekdm achanak se mai aur uske papa tension me aagaye the. Kuch smj nahi aa raha tha kya kre. Najane kitne hospital me dikhaya lekin kuch fayda nahi hua. Baad me uske papa ko branocon syrup aur assicon syrup ke bare me pata chala ye Ayurvedic medicine hone ke karan Uske papa ne ye amazone se online mangwaya aur humne use is medicine ke doses dena chalu kr diya. Usko 5 mahine se branocon syrup aur assicon syrup de rahi hu tab se ek bhi baar mirgi ztka nahi aya. Ab maine uski sari medicine bhi bnd kr di hai./;'
Thank you, thank you so much! I am now no longer ashamed that I am temporarily epileptic based on the fact that medication can be stopped if I take the medication consistently for 3 years or so. It gives me hope that I can indeed overcome this illness with faith and discipline.
My best friend has epilepsy, I wasn't exactly sure what it was. I just knew that she had seizures because of something weird going on with and I was afraid to ask her what exactly it was. Thanks for helping me out!
I know a doctor that can also help you get rid of it permanently he also save my life he can also help get rid of other illness......Kindly send me your WhatsApp number or email address so I can forward it to the doctor
Thank you 🙂
@@littlestevie7941 don't you want him to get rid of his medical condition?
I had my first seizure about 5 years ago. Now I’m having them more frequently. I had my last seizure on Tuesday of this week :(. I was just diagnosed as epileptic by my doctor on Tuesday as well. I want to learn more about it.
How is it going
I was 13 when i had my first seizure and then i had my section one 4 years ago and for me this is important info for people to learn about. my section seizure was very scary and I remember the bigening middle and end, i remember hearing the sirens from the emergency cars. Thank you for making this video, this means so much to me for this video.
same for me, i remember the minor seizures before my first seizure, then waking up barely able to hear anybody as if they were whispering from far away
and the absolute confusion when i could barely stand from weakness and strangers showed up and helped me onto a stretcher
and hearing the sirens the whole ride to the hospital laying there in total silent chaos trying to retrace my steps, i couldn’t remember what day it was
You just changed my perspective completely, and the last part in the video about serving the humanity will definitely come true.
Whenever I have seizures, it usually takes me 2 days before I feel strong enough to go back to my everyday routine. It's hard for me to walk around afterwards and my legs feel very heavy
I have Epilepsy. I have been beaten and arrested for having a seizure in a Walmart. I have been ostracized by people who claim I'm demonically possessed. My own mother blamed Marilyn Manson, when she was the one that forced the Ritalin down my throat and caused me to develop it before I even hit my teens. It is a nightmare that I would never wish on my worst enemy.
Im Epileptic, and I also experience an Aura every time. Its me having all kinds of deja vu in my head
If you're epileptic your a bitch
Charles Brown says you 🖕
Same tho
n Aura
I also experience an Aura
Honestly these videos help people like me ( 25 who suddenly developed epilepsy ) its nice to know that theirs hope.
My experience. Stress plays a big roll in my frequency of fits. While running and gym for two years. No fits. I've stopped for 4 months and two fits since then. I'm pushing myself back to fitness
Cameron Boyce died because of this. Rest in peace Cameron Boyce 1999-2019😔
I know a young girl who died in her sleep Wednesday and i'm still in disbelief....its so scary how you can be here today and gone tomorrow. Sigh do not take life for granted. Get saved!
As an epileptic I wish for that to happen to me.
@@artursgabrusevs5153 do not wish that on yourself 😟
I was really stressed a few years back and had a seizure. My sister questioned if the seizure was a stress seizure due to a bunch of stressful events happening in my family. The ER Dr. told us that night that stress seizures do exist but only in people with epilepsy, which at the time we didn't know I had. A couple months later I had to see a neurologist. She asked me if I had any seizures before and listed off a bunch of different seizures. I said that yes I had deja vu but thought it was normal. She said that deja vu can be but to a certain extent. I explain one of my episodes to her and she said that it was not just normal deja vu and it sounded like temporal lobe epilepsy. They did an EEG scan and found out that my brain is abnormal in the temporal lobe and that I was having seizures all those years. I was born with it and didn't know that those mini deja vu episodes were considered seizures. I was almost 21 when I was diagnosed. And the mini seizures (as I call them) or deja vu tend to happen more when I was stressed out. I've only had one grand moll seizures and hoping that's all I ever have. My medication has kept anymore seizures from happening.
stress is a major trigger which causes seizures for me as well and i can’t seem to control it. if i may, what medication have you been taking to control stress-induced seizures?
I just discovered I have epilepsy and is quite refreshing to see how lovely word it the video was thank you for encouraging me to continue studying and no be a shame of my illness
When I was diagnosed with Epilepsy, I studied it so I could learn more about what was wrong with me. After that, it made an 8 year old girl fall in love with Epidemiology (the study of anything that can fuck up your body). :)
The video is very important for us. I have been with Epilepsy since 1999 up today, I have been to hospital and when through Medication but still on able to recover. The only medice my Doctor as me to use at this moment is Carbamazepine. Life is very difficult for me with it. Low Educational knowledge
Mera baccha ek din uske frnds ke sath swimming krne gaya tha. To achanak swimming krte smy mere bete ko first time mirgi ka ztka aaya. Uske frnds the sath me isliye acha hua. Uske baad use mirgi ke ztke aana chalu ho gaya. Ekdm achanak se mai aur uske papa tension me aagaye the. Kuch smj nahi aa raha tha kya kre. Najane kitne hospital me dikhaya lekin kuch fayda nahi hua. Baad me uske papa ko branocon syrup aur assicon syrup ke bare me pata chala ye Ayurvedic medicine hone ke karan Uske papa ne ye amazone se online mangwaya aur humne use is medicine ke doses dena chalu kr diya. Usko 5 mahine se branocon syrup aur assicon syrup de rahi hu tab se ek bhi baar mirgi ztka nahi aya. Ab maine uski sari medicine bhi bnd kr di hai.//
I only have epileptic seizures at night and when I get up I don't feel my body and bit my tongue. It takes almost a day to recover halfway and the tongue even 2 to 3 days. I had that several times a week, I couldn’t concentrate and forgot things. Now i take medication it helps but i still don’t feel very good in the morning . I dont want to imagine what would happen without them . I have epilepsy. Since im 3 years old.
If anyone else made this experience a comment would be nice 👍
Wish you all the best never give up science 🧪 is getting better ❤️🙏
I've had epilepsy since I was 2 and I had it for 10 years and it took doctors 5 months to find out what kind I had and my friend has the same type of epilepsy as me and I hope your epilepsy will be gone
Chara the Human thank you very much 🙏 i wish you the best too ❤️
I know a doctor that can also help you get rid of it permanently he also save my life he can also help get rid of other illness......Kindly send me your WhatsApp number or email address so I can forward it to the doctor
I’ve had epilepsy as long as I remember and I’m almost 16, the last time my doctor weened me off my medication I had a seizure a year later and had to stay the night in the hospital, and my doctor said I may have to be on medication for the rest of my life, because all the seizures I’ve had were really serious once’s.
I have it too I’m gonna grow out of it I feel ya x
Hi, my younger brother is suffering from this diseases for more than 16 years. Please help me
@@thangboihaokip6950 Epilepsy isn't a disease. Diseases are contagious and brain disabilities aren't. :)
I've had epilepsy since I was born and had the seizures since I was 8 (that's over 20 years now). I may not be able to drive, get a job, or live alone, but it did make an 8 year old girl fall in love with biology. Especially epidemiology (the study of anything that can fuck up your body). :)
Most of this information is incorrect if he was talking about any type of seizure other than a specific type of seizure. Although he is talking about a type of seizure, it is an uncommon type and he should have been much more specific.
Channels like these should frequently come in my recommendation list...truely a praiseworthy job. Thank you ❤
Thank you for this video.its my first time to search this kind of topic because my 9years old daughter experienced seizure for once a year since 2023 and now 2024 and the doc said she had epilepsy.😢thank u for the info.❤
Given carect information and made me confident
Thanks for positive feedback :)
@@FME thanks
Poor cameron Boyce, he died from epilepsy... We will alwais remember you😢😢
My mother died today from this
@@bodeigausweibly5693 I'm so sorry for your loss 😪
@@bodeigausweibly5693 how ....is that serious
Epilepsy Warning:
Use of vibrant colors in some parts of the video
It’s not vibrant colors it flashing lights
Just to inform sorry
I feel like epilepsy facts should be spread more throughout the world.
I was diagnosed in June 2023 with epilepsy at 56 years old.
I found out by ending up in a canal in my land rover after having a seizure, not something I had had before. Life changing.
2:12 If you want to skip the intro
GOD BLESS YOU CHILD
It's a condition
Epilepsy can hold a negative aspect on one’s future. From a psychological point he or she may not grow with the normalcy of society causing this person to feel inadequate in lifestyle.
This person with epilepsy may not grow up normal in mind, but from a holistic sense, physically, socially, and so-forth. This person will have to be treated for other illnesses as well.
Epilepsy not only has a negative impact on the the one with the disease, the one with with epilepsy has a negative impact on societal growth.
JodyJohn123 exactly. I also have a physical disability, as if that’s not bad enough, add what would be an invisible disability, until it appears that’s no longer being invisible, epilepsy. Sure other people do have multiple conditions, diseases disorders, and nobody wants to give you a chance to contribute to society because of those issues. And it takes time to find the right people who do take interest and what you can offer to the world. We also have bills to pay.
i have youth epilepsy which means it will probably only hunt my childhood, (i’m almost 15 now) i think it’s wrong to call it a disease, it’s not like covid or the flu, it’s something you are born with or slowly develops, you can’t do anything about it, i have to take medication everyday and the medication makes me tired/mildly tired throughout the whole day, but i still believe i have a future.
(quick note for those who bully epileptic people like me, we can’t do shit about it, if you think it’s funny then you should feel how it is to have it yourself.)
I am an epileptic patient suffering from this since last 12 years and I have total 5 fits Allhumdulliha eating medicine on daily basis and this video was very helpful
I know a doctor that can also help you get rid of it permanently he also save my life he can also help get rid of other illness......Kindly send me your WhatsApp number or email address so I can forward it to the doctor
I was born with Petite Mal seizures and was finally diagnosed at 5 years old. My kindergarten teacher had a previous student who had them. Mine last 1-3 seconds. I do notice I've had it once I've come out of it. I've only had one Grand Mal in my life. I'm now 23 and on meds. I'm glad I have it under control.
Am I the only one that's here because of Cameron Boyce😔💔?
No i am... R.I.P Cam! 😢😢
I'm here bc of Cameron and to find out what this illness was.
Why does this have to be a thing
No!
I love when i have epilepsy. I am very tired on class so sometimes i get the epileptic fit so im kinda sleeping for 2min lol. But i hate the main seizures. They duck...
-, Wow this video really helps I've had epilepsy out of nowhere one day actually on memorial day of 2015, stayed in a coma for 7 days and has had it ever since. I'm 28 now never had epilepsy nor was it in my family gene's until that day, I've just been since then looking for more good information like this video to help me with. Never really got into the 🤔 "Aura" definition until now also since this video because I've felt that happen before out of nowhere feeling like your hallucinating or out of body feel and hearing noises and I've had to stop and lean over to come back to myself great video better than my own doc information!!!
Also 😔 it's not fun having epilepsy, makes me just want to be alone sometimes it's scary though and just waking up just feeling so tired even more 😪 or a scar left inside your mouth from biting it for who knows how long threw the night but aye it could be worse rite 😔 but just wait it out and get better and stay strong 💪🏾 😊 just like this video says!!!
My boyfriend has it and I really wanted to learn much as I can so he knows I support him and love him ❤️🌺
I know a doctor that can also help you get rid of it permanently he also save my life he can also help get rid of other illness......Kindly send me your WhatsApp number or email address so I can forward it to the doctor
@@magreetendason4223 As an epileptic I can assure you that epilepsy is for life.
Seen your other comments you're shady.
(I'm 14 yrs old with a disablity ) I've decided to learn this because at my high school a teacher (she doesn't teach me) suffers with epilepsy and also a student in her class (a fresh man) suffers from that as well. The last time she had her attack it was in assembly.. Everyone was just watching and staring in fright some laughing others scared and didn't know what to do... I wanted to help so badly but I didn't know how to... But I quickly looked up how to assist her... And with that I assisted her. A few weeks after that when she was not with her class her student that suffers with epilepsy had her attack and I was able to help her... I felt so glad that I was able to help... We need to break the stigma for people who have epilepsy.
Why i feel like this was animated by Kurzgesagt?
Like if you agree
They're imitating the best
Stock animations?
@Aggressive Tubesock don't be so mean pls
Epilepsy isn't a disease, it's a disorder.
💜🎗️
Non native english speaker here.
What is the difference?
A disease is distinct and measurable.
A disorder might indicate that a specific disease is possible, but there is not enough clinical evidence for diagnosis.
@@rebeccamichael626 Oh, ok, thanks.
I thought disorder was used only in psicological or psychiatric areas, not neurologic.💕
"With epilleptic drugs, girls can be married off" omg. Anyone else hear this?!
I assume he is referring to places such as undeveloped countries where woman may be forced or sold into a marriage. Sadly this still occurs in the world where woman have very limited rights.
gross!
@@javablossom you are giving a clean false reality. Yeah they may stay at home all day taking care of kids, but they are also raped and beaten and have no say for it to stop. They can also be sold or thrown away to another person.
Thank you for this I’ve recently been diagnosed with epilepsy and I’ve been wanting to learn more about this thank you again for this
Welcome to the club
@@chilipepper71 well thanks 😁 it sucks
THIS VIDEO IS 100% ON POINT,MY CO-WORKER IS GOING THROUGH THE SAME THING.THANKS FOR SHARING
just love your videos and respect 💓
who else is here because of cameron ? #ripcameronboyce .
Me :((
I just hope everyone who suffers this don't have epileptic attacks in the worst moment possible.
Thank you im trying not to have one now and trying to go to sleep
I am fortunate enough to have very good meds for me so as long as I take them regularly (once a day) I don't have any issues, even if I play games, etc. Hadn't had a seizure in years.
I like how they say you can have good jobs even if you have epilepsy or get married I got fired from a job for having epilepsy twice and everytime I tell someone that I began to date I have epilepsy they break up with me!
I feel you...my boyfriend thinks i have aids...he said please dont dont do it again...like i want to shake like a crazy one...anyways...no...we cant have a normal life
Ikr, people are way too judgmental and you can’t tell your boss that you’re going to have a seizure at 10:05 tomorrow morning.
I can't get a job because I can't drive.
@1:40 I wonder if that was the reason Cameron didn’t want to tell people he had this condition 🥺 cause he felt that we wouldn’t except him anymore