AAPA Quick Case: Cataplexy and Narcolepsy
HTML-код
- Опубликовано: 24 июл 2018
- See what cataplexy and narcolepsy can look like in this Quick Case, and then turn to AAPA PANCE/PANRE Review powered by Hippo to pass your exam: bit.ly/2A9XBOJ
Source credit to Sarah Elizabeth 
Кино
I'm a little late finding that you covered my video, but thank you for doing so in the manner that you did. I appreciate it.
Sleepy Sarah Elizabeth I feel like they should have asked you first, although it seemed to be sensitively handled like you said.
Hey , how are you?
This video captures exactly what happens to me so many times every day. And fighting to get treatment is so hard. Thank you for sharing this.
i have type ii thank you for posting
I hope you are getting by well
I also live with this daily, I just wish more Neurologists understood it
It is no fun and actually can be very dangerous to have these cataplexy attacks they always come on suddenly and there are no warning signs.. As someone who has this disorder and was diagnosed in 2013 I can personally say that it is extremely disruptive to have your entire life do a 180 because you do not know if you’re going to be awake or asleep. Safety is the number one concern for me. I cannot count how many times this has been a severe danger for me falling downstairs, falling out of the bed, falling in general. It takes an impact on your body.Not only physically but emotionally.It impacts every part of your life. I have fallen down a flight of stairs during an episode And luckily I didn’t break anything. Medication for it only works for me about 30% of the time. It is life impacting on a major scale. I think people do not realize how much we have to think and plan everything we do. Not to mention the inability to safely drive,walk,work,or just go out and go grocery shopping.This video made me cry as she could’ve been seriously injured. I have had people laugh at me,from what I’m told, during my moments of cataplexy and it’s very hurtful to make fun of a disorder you are not educated about. Not only does it make the narcoleptic individual feel disgraced and disempowered but it shows a lack of education of the person making the remarks. I wish there were more support groups in my area. The neurological system is one of the most complicated ones in the entire human body that is still not fully understood. I have also had three CVA’s in the last 2 years,small vessel disease, multiple TIAs that were shown on MRI, as well as early Alzheimer’s, and PBA. I am very curious Since I was diagnosed in 2013 and epilepsy in 2003 how all of this ties in with everything else that I have neurologically or is just independent? That’s a lot of neurological disorders happening and I am only 44 years old. The doctors label me as a complicated patient which I find to be unfair to a patient who has these disorders. After seeing this video it really visually describes what narcolepsy with cataplexy patients go through. It is very scary. I can be sitting up in the bed and have an episode and actually have fallen out of the bed and not know it which is why I cannot live alone. I am so grateful to have a loving teenage daughter who monitors everything I do so that I am safe. Thank you for this video it is very educational and I wish more people would watch it.
It must be awful. I take care of a young child with niemann pick disease who suffers cataplexy when he is too stimulated or happy. It's very sad. I wish you all the best!
I have also been diagnosed in 2017 with seizures, it never sat well with me because I knew something else was going on, now I am getting sleep test done this year to confirm narcolepsy type 1
@@sandiadamson1754 thank you for understanding and taking wonderful care of the young man. Yes cataplexy occurs with strong emotions. It can be happiness, excitement, sadness, crying, havent seen anger yet and not sure I want to. I was very excited about a trip and thats when cataplexy and narcolepsy took over on the stairwell. Now just in case this happens again I have my daughter who is I miss 15 years old who goes with me when I have to go down the stairs. It may only be 16 stairs that I fall down but it's always a consistent top of the staircase this happens and I've fallen at least three times down these stairs in the past month and I can't live downstairs because my disabled father lives down there. So I have to live upstairs but I take precautions and she has saved me many times from falling completely head first down those stairs with my cataplexy and narcolepsy attacks. She has been taught to grab me move me to the ground away from the steps and then pull me back so I'm back up against the bathroom door and then she usually drags me into the bathroom on a towel or rug and leaves me laying on my side just in case I get sick and have to throw up. It's a lot of things you have to learn how to do to care for somebody that has multiple neurological issues going on. My daughter does not seem to mind she would rather do it than have somebody else do it she said because she wants to make sure that I'm being treated right as she is saying a lot of in-home healthcare neglect from friends family members and their caregivers.
@@myahouston20 just wondering how your testing went? I know that the mslt did they do during the day to try to see if you have narcolepsy type 1 or type 2 or idiopathic hypersomnia or if you don't have anything at all is very temperamental. I've had five different ones before they diagnosed me and ever since they diagnosed me they always come back the same. I can fall asleep lights off or on in under 0.8 to 1.8 seconds. Having seizures, they actually saw my seizures on a nighttime sleep test that I had and they had saw them on the sleep deprived EEG that they set me up for as well. It's kind of rare to see seizures happen at night on one of these tests but to actually have them recorded and documented is medicallt helpful and if they see that then there's no denying hard evidence. I had terrible insomnia after I had seizures and once I got stabilized on my seizure medication they tried to get more tests done see whether or not I had something else going on back then but unfortunately it took too many years later to diagnose. I'm the one that actually noticed that something was not right because there would be hours of time missing where I was asleep and I knew I was asleep but I knew that before I was conversing with someone and they didn't know what was wrong with me. They just called the ambulance and the guy inside started laughing and he said she's having a narcoleptic attack and the person I was with said what's that and he said she's asleep but she'll be back up soon. So they just left me and I woke up hours later and my friend was still there and I'm glad for that. She drove me home and I got back in my bed and kept on sleeping. Its rough to have it.
@@melissathompson5536 well I haven’t had it done yet I’m still in the process, also eeg’s shouldn’t be the only thing used to diagnosed epilepsy, their used to catch abnormal brain waves which can be present in anybody and also I didn’t have a seizure I was awake with my eyes closed. Also their is no denying cataplexy if you fall face goes numb and you get back up , that usually means you have narcolepsy as well which I have excessive daytime sleepiness and a plethora of other things that lead to narcolepsy type 1 , but I’m a fighter and will continue to fight.
My 14yr daughter started having episodes of losing muscle tone about 3 months ago. It looks like she passes out. It lasts 30 sec to 1 minute. She may have two or three in a row. She is aware. She can hear, but she cant move. It seems to be getting worse. She used to get recurring strep throat infections from around the ages of 3 to 7. She was diagnosed with tourettes a year ago. She doesnt have a diagnosis for her cataplexy like symptoms yet. Her sleep study is in a few weeks.
Her spirits are high, but its hard on her. Any advice would be welcome.
Here’s the thing with me
It’s off and on
I can sleep 6-12 hours on the weekend
But during the week 3-5 hours
And the moments of loss of muscle control is when I’ve sat myself in a certain position and/or I’ve already fallen asleep
The feeling is a near waking up experience- I have control but it feels sluggish even if I’m grabbing my head to angle it out of the angle which triggered the sensation
It’s almost a dream in a dream - as I can place where I am - though somewhat identical to my current surroundings, 1-5 things stick out which I know them I’m in that state.
Another symptom is audio overload - I hear all the worst possible outcomes (100% it’s what I fear is people walking in and discovering me in my semi-paralyzed state)
But what I hate the most:
I come to after waking myself and feels like a dream like I imagined it…but I know I was awake and I fought like hell to wake up
But these cases are either due to my lack of sleep 3-5 hours sleep and/or my neck/head are angled in a way and it triggers the event….
-
I don’t know what I have but I have been noticing it and it worries me but I don’t know how or who to turn to to find out
Go to medic maybe?
@@Ultra289How are you, love? It's been a year. Have you received a diagnosis?
This type of cataplexy is very rare. Less than 10% type 1 narcolepsy really collapse like this. Most of cataplexy symptoms are quite minor, just small muscle tone loss, such as dropping things, knees buckled (slowly), slurred speech, jaw dropping etc. Medical schools are teaching this kind of stuff that’s why doctors always fail narcolepsy patients.
Thank you for doing that! I have type 1, same a s her. That was the best thing I've ever seen someone do.
I think I have this. It matches my life better than my doctors diagnosis of epilepsy.
Just came back from the hospital. My sister dived headfirst at the concrete. Now I'm looking for an explanation.
I read somewhere, and please correct me if I am wrong, that cataplexy can be treated with SSRI's. Is it possible that has type 2 narcolepsy could be misdiagnosed if they are taking high dose SSRI's for another condition?
I just watched Netflix diagnosis series and I was wondering how does this condition differ from the KCNMA1 gene mutation issue
It differs quite a bit. Cataplexy associated with narcolepsy is often cause by an autoimmune condition that attacks hypocretin cells in the brain. This leads to a disruption of sleep and wake and those with narcolepsy end up having excessive REM sleep. The cataplexy is the kind of like the paralysis we experience during dreaming so we don’t act out our dreams.
The a etiology of narcolepsy has several causes, and is typically a combination of genetic (the HLA 15:01 DBQ halotype gene) and a flu or even a flu vaccination called pandremix or it can even be caused by Anti-MA2 receptor encephalitis secondary to a tumor.
thanks
Poor girl 😥
I don't know if I have narcolepsy or not. I have epilepsy but I have this attack where I suddenly feel like my whole muscle went weak and I feel like dropping to the ground. But I didn't fall. Just a brief loss of muscle tone like milliseconds. After that I'd feel lightheaded for a minute or two.
I didn't lose consciousness but sometimes my consciousness went impaired. I noticed that I'm staring blankly at one spot when it happens.
Today I rear ended a car coz I got the attack while driving.
Cataplexy exists on a spectrum, and you CAN have cataplexy without narcolepsy though very rare. Cataplexy ranges from muscle tone loss in the eyelids and face or hand, to complete body "shutdown" if you will, muscle tone lost in entire legs or your entir3 body
I have almost daily attacks like yours. I fall asleep 20-30 times a Day at work many days. And almost daily,I feel like I'm awake and I'm walking around (briskly, I have a very physically demanding job) and suddenly I realize I almost fell down and it seems like I was asleep or unconscious for a second. My knees buckle and I almost fall but I catch myself before doing so.
Sometimes it seems like I wasn't unconscious but in a dream like state or hypnotic trance if that makes sense. But what is scary is I fall into it in an INSTANT. It isn't gradual at all.
Hello, can you tell me if dizziness is involved with cataplexi and narcolepsy
Just from my personal experience, I do not have dizziness associated with cataplexy. I also don’t have dizziness with sleep attacks. I do however have dizziness if I am have a vasovagal syncope episode in response to certain stimuli (ie blood, needles, discussing certain topics). The two experiences are completely different from one another. With cataplexy i do not lose consciousness and can hear everything around me. With sleep attacks, it feels like I was tranquilized and my body is falling asleep against my will (still not dizzy, but I look like I’m dizzy). Sleep attacks I can still somewhat hear my environment but dreaming can overlap. With fainting I get nauseous, sweaty, dizzy and my blood pressure plummets. They are definitely completely different experiences from each other and are triggered by different events. Hope this helps! 🤍
She could be up a ladder or walking a roos a busy and suffer an attack, it's terrible
i’m kind of confused. isn’t cataplexy supposed to be triggered by a strong emotion such as laughter or anger ?
It can be triggered by any emotion, it varies from person to person. I have cataplexy and when I get mad or especially if I laugh, I will lose muscle control
Dio the Squealer yes i know i have cataplexy but i was confused because it doesn’t really seem like she’s expressing any emotion at all she’s just chillin haha that’s why i was confused
She was Happy dancing with a Smile on her face! Vaccinations made me aware of this word a few days ago. This is beyond Mind Control, this is Body Control; a limit switch set within the Human Experience! I am still in Shock from finding out about this.
Being Now no it’s not. cataplexy is a symptom of narcolepsy. it is only found in narcoleptic people, which is found in people who have and have not had vaccines. no idea where you even got that from hahaha
@@rein5348 I'm not lying and this is not funny!
And then there is me with years of horrible severe insomnia... just the polar opposite. :(
and then there is narcolepsy, which includes both!
That would be me but would rather it than cataplexy. I take some good drugs for sleep now, quetiapine. Works very well for me at the moment.
2 hours sleep is heaven for me.
Not polar opposite though. Most people with narcolepsy have insomnia issues also.
@@christinamitchell9196 Thanks for your valuable information.
Respecting the patients symptoms or manifestation of her cataplexy this video is a de serviced to the narcoleptic population, most don’t manifest like that and is this “ stigma” “ or misinformation that most of us won’t be diagnosed for up to a decade.
The cataplexy doesn’t have to express this way.
Study, review the information out there make sure you get it straight.
Sometimes cataplexy looks very much like someone is faking fainting. Might depend on how much hypocretin is left.
What? They didnt explain anything.
Video was as useful as teets on a boar
this video is a fake demonstration
Wrong, wrong, wrong!A cataplexy attack is NOT a sleep attack. The individual can still hear, can still see, is aware of people and thigs around them, they simply have no muscle tone (either full or partial). A full loss of muscle tone leaves the individual unable to move and (in the majority of cases) respond or communicate BUT they retain awareness.
Yes, no one said otherwise. The person in the video had a sleep attack after their cataplexy attack.
@@oofuwu2666 Doesn't look like a sleep attack to me. That looks exactly what I look like when I'm trying to regain muscle control.