Status Epilepticus: A Seizure Emergency
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- Опубликовано: 13 сен 2024
- Do you know what status epilepticus is?
Status epilepticus is said to occur when a seizure lasts too long or when seizures occur close together and the person doesn't recover between seizures.
Do you have a loved one who has been affected?
Watch this video to find out what status epilepticus is and what to expect when a loved one is going thru it. Then visit www.epilepsy.c... to learn more.
Thank you to Sage Therapeutics for their support of this project.
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Been to status epilepticus countless times because of alcoholism....please be safe y’all as you know how sore it makes you,God Bless
I went through status epilepticus last year when I was having an extensive EEG done. I ended up in the ICU for 6 days, 4 of those days I was hooked up to a breathing tube because the seizures refused to stop when I got the anticonvulsant and had to be put in a coma, and I came back to consciousness with 3 IV’s in my arm. I dealt with all of that and remember NONE of it, I had absolutely no memory of the day before my ICU visit and the first couple days of my ICU visit (pre-coma). I “fell asleep” (that’s what I thought I did) on Friday and when I woke up it was Thursday, 6 days later than it was when I “fell asleep”. It was quite a surprise to me waking up in an ICU bed surrounded by IV lines, monitors and a ventilator, opposed to my hospital room bed (being heavily drugged didn’t help either).
How are you now? Did it reoccur?
@@NarenRSKumar All is well, thank you. I had to be on a strong anticonvulsant for a couple months after that as a precaution, but no incidents have happened since that day, and I’ve also only had a few (very small) seizures since then, and those were when I was getting an EEG done at a different hospital. Thankfully the second round of neurologists knew better than to take me off all of my meds like the first round of neurologists did, which was what lead me to my pleasant ICU stay. Mayo Clinic is definitely the way to go when it comes to more extensive procedures, they did a way better job with my EEG than the other hospital did.
@@Wanderlust4Life247 where is located this mayo clinic?
@@mercyfulvickv2810 The Mayo Clinic I went to is in Rochester, Minnesota. They also have major campuses in Scottsdale/Phoenix, Arizona and Jacksonville, Florida.
Mayo Clinic is truly a top notch place; fantastic doctors, surgeons and nurses, over a million domestic patients, thousands of international patients, and the Rochester campus alone has over 100 operating rooms.
@@Wanderlust4Life247 I can imagine the cost is astronomical right?
I came back from the hospital yesterday after 2 days in the ic, good sleep is a must
I just got home yesterday from a 3 hour seizure...i feel like I have been hit by a truck..
I had a 6 minute seizure yesterday, it was my first full-on seizure (the ones before were very minor, usually lasting a few seconds. in this seizure i was dazed, and just incapable of thinking, i was just sitting in the lounger staring at the ceiling while my heart rate ramped up slowly., the only fortunate thing was my friend was there, and attentivley kept his eyes on me. Making sure i didn't injure myself. He is getting 3 boxes of cider for that.
How are you doing now? Did you have that again? 6 min is long
Had 5 seizures, one lasted a little over 5 minutes and I woke up in a hospital room and my mom was at the foot of my bed, the first thing I said was " where am I? " and that's when my mom told me I was in the hospital. I have a vague memory of waking up in the ICU and them telling me I went into status epilepticus and that they had to stop it with medicines. I've never been so confused in my life but apparently I had 5 back to back seizures and had been throwing up all day and despite me puking up my morning meds all my blood work showed that the meds were in my system. Luckily my specialist called while I was having the first seizure and explained to my mom what was going on.
I was in a hospital when I was 15 for 7 months and saw an girl my age come in and out with what I assume now was status epilepticus because she’d be in full grand mal-or what I now know as tonic-clinic seizures for ages even after she was admitted. She also had schizophrenia- I was there severe anorexia- so we bonded over how hard it was to be young people with mental illnesses… I so hope she is ok now somewhere… because of how severe my illness was I was in a hospital 2hrs away from my regional home so I couldn’t keep in touch…
The patient doesn't need to be a child, I went through one a few days ago and I'm 57. I had a brain aneurism and gamma knife and have had six prolonged seizures in the last year and a half. I'm wondering if one of them will be the end of me.
stay with us man
I hope not 😔
@@TheCatnipCinema Still here. I am on the maximum legal dosage of Vimpat and my sleep hours are all over the place, I often can't tell am from pm on my watch. I got an open face watch because the bands on Casio's always break, plus I like to see young people scratch their heads.
@@astrofrk I'm glad you're still around :)
@@TheCatnipCinema Somewhat, my life is one big fog. I'm on the maximum legal dosage of Vimpat plus six other pills. I used to be a Class-A CDL driver but now, I have resorted to an adult tricycle.
My son had a 90 min episode where the hospital thought it was a behavioural problem which delayed the treatment until I saw him via FaceTime because of my sister and the right side of his face was drooped down and I went off saying that a behavioural problem does not cause facial droop and what were they doing, they didn’t even get an eeg on him to find out. After the midazolam his face returned to normal. I’ll also note he doesn’t have a history of epilepsy he has a cardiac arrhythmia called Wolff Parkinson White syndrome and one of the arrhythmias it can’t facilitate is Afib which presents wide which he has had episodes before that we were unsure what they were and causes stroke. It’s taken nearly a year of testing so we can get a prevention plan going and I still don’t have any answers lucky it’s never happened again.
I’ve had a 2 hour one.
Omg
How you feel what were the consequences?
@@meelauramee it was back in 2008. I had surgery the Monday after.
@Sophie Amarant how it went after the surgery?? Did you have seizures ever again?
@@meelauramee I had one a year later. I have been off medication for almost 11 years
I came here to know what killed Arfa Karim a beautiful angel with record holding brain. 😭 may yall get well soon!
You're such a wonderful doctor and you always
make me feel so safe Dr Dagba on youtube Thank you for being the best doctor for me. thank you for curing
my epilepsy keep up the good work doc .
THERE IS NO CURE FOR EPILEPSY, AKA SEIZURES! ONLY GOD'S GRACE CAN RELEASE YOU FROM THOSE DEMONIC SPIRITS! !TRUTH !
Seizures ARE NOT DEMONS! Please stop believing and spreading this very harmful message! This can kill people!
yeah well you could probably treat your schizophrenia with some tiny white pills or by fucking off underneath the wheels of a bus
I developed seizures at the age of 33 when i started meditating. One day i started having seizures at work. I'm almost 45 and it took me 10 plus years to realize that there is a CREATOR. I don't need to believe, I KNOW GOD EXISTS! I CAN FEEL GOD'S PRESENCE! I DON'T TAKE MEDICINE 💊💉 AND GOD TOOK MY SEIZURES AWAY! EPILEPSY IS SOMETHING VERY SPIRITUAL. NEED TO SEEK GOD, AKA JESHUA!
Sometimes Fever? Lets see if you didnt get your fefer avter vaccination!