My challenge days are usually due to heat or as Myrna said, I thew MS out the window in favor of living in the moment. I just got home from 2 weeks in Europe. I pushed myself much harder than normal, walking for miles, eating more treats, drinking adult beverages, not sleeping enough etc. The last few days of the trip I struggled. Do I regret it? Nope! I’ll be spending the next couple of weeks hitting the reset button, getting back into my routine and recovering, but that won’t stop me from living. We already have our next European trip booked.
I appreciate you sharing your experience with MS. Please remember many people are experiencing worse symptoms than you and could not walk at all or could not move at all ir are completely blind.in other words, YOUR bad day is for somebody else with MS is a great day
@@tetyana911 thanks for watching and commenting. You are absolutely right, many have much worse days than I do and I recognize that some are facing bigger challenges than I am.
I was diagnosed with PPMS 10 years ago. Zero strength in my legs, spasticity, memory issues, slurred speach & heightened sensitivity to everything. Mood swings all over the place. Every day is a bad day. Some I think are the last. It's a good day I crave. Eating grapes under a tree, next to a river. Hoping I can make it home.
bad days come sometimes to remember to look inside. I've had MS for 10 years and living in Brazil, the heat sometimes overwhelms my system and I'm in pain, but... like you said, darkness exists to show that light comes later! Congratulations on the video and thanks for the testimonial.
My Mom was Diagnosed in 1960. She suffered with it for 15 years before going into a coma and passing 2 weeks later. She was diagnosed at Cleveland Clinic, luckily we lived in Akron, Ohio. I was only 8 years old and my brother was 10. My Moms first symptoms were dragging her left foot,falling up or down stairs and double vision. I can’t remember what one happened first, she said our Family Doctor was worried she had a brain tumor and that’s why he sent her to Cleveland Clinic. Within 3 yrs she was using a 4 leg cane and by 5 years she was in a wheelchair. This horrible disease took and paralyzed her left side and her speech a little later on. There were no medicines that prolonged the disease or lessened it. The heat bothered her terribly and constipation too. But she never had some of these symptoms you are talking about, so I wonder if your meds have side effects. Our Priest had MS also and he would loose his eyesight for months at a time and then regain it again. I guess that could be referred to as maybe remission. My Mon never had remission because she kept a diary of her days with MS. She belonged to a group that met at homes of other MS people and I remember saying to her not many of them had exactly the same symptoms, except maybe the slurred speech, they all seemed to have that. Also stress were worsen her condition tremendously. So friends from church would visit her once a week for Bible Study, they bought her a large print Bible to make reading easier for her. Well that’s the story of my Mom from 1960 to 1975. I miss her as much today as I did when she passed.Her name was Mary Folk and she was born in 1915 in Serbia. I pray for you that you don’t lose your mobility as quickly as my Mom did. But everyone in that Era seemed to be very crippled by MS. In Christ, Jan
Thanks for watching Jan and your comments and thoughts. I am sorry your mom suffered so. Treatments have come a long way since your mom was diagnosed.i am actually doing pretty well! The bad days are seldom.
Giving you warm hugs and loving care Vicki! I'm sorry about your bad evening sweet girl. You are amazing. Just being you is a gift to us. Thank you. You inspire me and cheer me and comfort me. While I empathize with you, I wish I could minister more TO YOU 🤗☺. Your channel is and has been so valuable to me! May that come back around to you. I have been enjoying Miley Cyrus's newest song "Flowers". I never listen to her music but it has blown up everywhere! It does not pertain to MS but it has been motivating and uplifting! Maybe you would benefit from it a bit too? Better days ahead my sweet grandma would encourage me. Sheila Moser
Thanks so much Shelia! I am feeling much better now. I have been listening to Flowers too! And my Zumba instructor is adding it to the playlist! I am so glad you find value in my videos. Thank you so much for watching.
Challenge (not “bad”)days These are the days that 1. You threw your MS out the window in favor of living in the moment 2. You know your circadian rhythm is off but you go about your day as if you’re well rested 3. You skipped your supplements because you couldn’t be bothered 4. You let your emotions get the best of you and all people annoy you There is a cause for those challenging days It’s being empowered to handle those times with a PLAN so as to not get depressed, angry , or frustrated Attitude is everything. Your body will take on your emotions So smile through the challenge Dance with the challenge even if it has two left feet Go to sleep visualizing a healthier version of You and know You have to advocate for you It’s WORK and CONSISTENCY ❤🙏🏼🕺💪🏼
@@EvenSoItIsWell I can only”see the forest and all it’s trees” and only live in the present.The past isn’t there and the future is unknown That leaves now and having JOY Anything else would cause too much negative vibe When my legs decide to take a vacation without me, leaving me motionless on the floor, I wish them a safe return and to hurry home because I miss them 🙂
I LOVE this- thx for sharing. It's nice to have a break from MS even though you know things may be off. I skied with my 3 boys on Christmas Eve and knew I was going to pay for it, but did it anyway. I won't stop living. I'll stop when I am dead & not a minute before:) Thx for the positivity
@@EvenSoItIsWell different types of radiation and energized particles can adversely affect our CNS under the "right conditions". There is a lot of research about solar storms inducing cardiac events and psychiatric disturbances. Im betting MS patients would fit right up there too.
Hi! Thank you for your videos! ❤ they are super inspiring. May I ask you, Do you sometimes a couple of bad days? I Mean for exapmple one week? I am new diagnosted (4 months ago) and I am still finding a balance. Last week I was with my family few days on a trip, we were enjoying time with my small childrens (bikes, mountains, etc.). But now i am so tired more than 5 days and have a few symptoms (not new). Do you have these experience? Thank you and greetings from Czech Republic 😊❤
Hi! Thanks for watching. I can have a few bad days in a row. They are typically associated with illness, overdoing it (like travel), lack of sleep or stress. Be gentle with yourself and try to take exquisite care of yourself.
Thanks for watching. Unfortunately there is no “normal” with MS as we are affected differently by it. Seventeen hours a day does seem like a lot though. Has she discussed this with her doctor? Making changes to diet and lifestyle can definitely help too. There are multiple studies showing that a more plant based diet can reduce fatigue in people with MS. Check out this video on it ruclips.net/video/s2kEl35Z24o/видео.htmlsi=JmF8LLOaNawkDCUJ
What do you do for self-care on your bad days?
My challenge days are usually due to heat or as Myrna said, I thew MS out the window in favor of living in the moment. I just got home from 2 weeks in Europe. I pushed myself much harder than normal, walking for miles, eating more treats, drinking adult beverages, not sleeping enough etc. The last few days of the trip I struggled. Do I regret it? Nope! I’ll be spending the next couple of weeks hitting the reset button, getting back into my routine and recovering, but that won’t stop me from living. We already have our next European trip booked.
I love this! So glad you enjoyed your trip! And have no regrets!! Good on you!
I appreciate you sharing your experience with MS. Please remember many people are experiencing worse symptoms than you and could not walk at all or could not move at all ir are completely blind.in other words, YOUR bad day is for somebody else with MS is a great day
@@tetyana911 thanks for watching and commenting. You are absolutely right, many have much worse days than I do and I recognize that some are facing bigger challenges than I am.
I was diagnosed with PPMS 10 years ago. Zero strength in my legs, spasticity, memory issues, slurred speach & heightened sensitivity to everything. Mood swings all over the place. Every day is a bad day. Some I think are the last. It's a good day I crave. Eating grapes under a tree, next to a river. Hoping I can make it home.
Sorry you are having such a difficult time
PPMS is no joke. Eating grapes under a tree by the river sounds lovely.
I’m so sorry, prayers and hugs sent your way 🤗🙏🏻❤
bad days come sometimes to remember to look inside. I've had MS for 10 years and living in Brazil, the heat sometimes overwhelms my system and I'm in pain, but... like you said, darkness exists to show that light comes later! Congratulations on the video and thanks for the testimonial.
Yes! Looking inside and reflecting is important to our wellness. Thanks for watching!
I was having a bad day . Until now. Thank you again.
I am glad my video helped. 😉
My Mom was Diagnosed in 1960. She suffered with it for 15 years before going into a coma and passing 2 weeks later. She was diagnosed at Cleveland Clinic, luckily we lived in Akron, Ohio. I was only 8 years old and my brother was 10. My Moms first symptoms were dragging her left foot,falling up or down stairs and double vision. I can’t remember what one happened first, she said our Family Doctor was worried she had a brain tumor and that’s why he sent her to Cleveland Clinic. Within 3 yrs she was using a 4 leg cane and by 5 years she was in a wheelchair. This horrible disease took and paralyzed her left side and her speech a little later on. There were no medicines that prolonged the disease or lessened it. The heat bothered her terribly and constipation too. But she never had some of these symptoms you are talking about, so I wonder if your meds have side effects. Our Priest had MS also and he would loose his eyesight for months at a time and then regain it again. I guess that could be referred to as maybe remission. My Mon never had remission because she kept a diary of her days with MS. She belonged to a group that met at homes of other MS people and I remember saying to her not many of them had exactly the same symptoms, except maybe the slurred speech, they all seemed to have that. Also stress were worsen her condition tremendously. So friends from church would visit her once a week for Bible Study, they bought her a large print Bible to make reading easier for her. Well that’s the story of my Mom from 1960 to 1975. I miss her as much today as I did when she passed.Her name was Mary Folk and she was born in 1915 in Serbia. I pray for you that you don’t lose your mobility as quickly as my Mom did. But everyone in that Era seemed to be very crippled by MS. In Christ, Jan
Thanks for watching Jan and your comments and thoughts.
I am sorry your mom suffered so. Treatments have come a long way since your mom was diagnosed.i am actually doing pretty well! The bad days are seldom.
Giving you warm hugs and loving care Vicki! I'm sorry about your bad evening sweet girl. You are amazing. Just being you is a gift to us. Thank you. You inspire me and cheer me and comfort me. While I empathize with you, I wish I could minister more TO YOU 🤗☺. Your channel is and has been so valuable to me! May that come back around to you.
I have been enjoying Miley Cyrus's newest song "Flowers". I never listen to her music but it has blown up everywhere! It does not pertain to MS but it has been motivating and uplifting! Maybe you would benefit from it a bit too? Better days ahead my sweet grandma would encourage me. Sheila Moser
Thanks so much Shelia! I am feeling much better now. I have been listening to Flowers too! And my Zumba instructor is adding it to the playlist!
I am so glad you find value in my videos. Thank you so much for watching.
Same here... not really of fan of her, however, its a great song & motivating!
Hoping that you are feeling much better now🧡 Thank you for being so candid, and allowing others to see that they are not alone in bad days.
Thanks Dr. Gretchen. I am doing better!
you have the most beautiful gentle nature.
Thank you!
Challenge (not “bad”)days These are the days that
1. You threw your MS out the window in favor of living in the moment
2. You know your circadian rhythm is off but you go about your day as if you’re well rested
3. You skipped your supplements because you couldn’t be bothered
4. You let your emotions get the best of you and all people annoy you
There is a cause for those challenging days It’s being empowered to handle those times with a PLAN so as to not get depressed, angry , or frustrated
Attitude is everything. Your body will take on your emotions So smile through the challenge Dance with the challenge even if it has two left feet Go to sleep visualizing a healthier version of You and know
You have to advocate for you It’s WORK and CONSISTENCY
❤🙏🏼🕺💪🏼
You are such a gift Myrna! Your insight and wisdom are appreciated! You are right, attitude is key!!
@@EvenSoItIsWell I can only”see the forest and all it’s trees” and only live in the present.The past isn’t there and the future is unknown That leaves now and having JOY Anything else would cause too much negative vibe When my legs decide to take a vacation without me, leaving me motionless on the floor, I wish them a safe return and to hurry home because I miss them 🙂
I LOVE this- thx for sharing. It's nice to have a break from MS even though you know things may be off. I skied with my 3 boys on Christmas Eve and knew I was going to pay for it, but did it anyway. I won't stop living. I'll stop when I am dead & not a minute before:) Thx for the positivity
Great video
Thanks for watching!
Thank you so much for this♥️
Thanks for watching. I am glad you found it helpful.
Our sun dictates so much of our well being. I believe that has been a factor recently.
I completely agree! I am trying to help my circadian rhythm by getting natural daylight in the mornings. Thanks for watching!
@@EvenSoItIsWell different types of radiation and energized particles can adversely affect our CNS under the "right conditions". There is a lot of research about solar storms inducing cardiac events and psychiatric disturbances. Im betting MS patients would fit right up there too.
Hi! Thank you for your videos! ❤ they are super inspiring. May I ask you, Do you sometimes a couple of bad days? I Mean for exapmple one week? I am new diagnosted (4 months ago) and I am still finding a balance. Last week I was with my family few days on a trip, we were enjoying time with my small childrens (bikes, mountains, etc.). But now i am so tired more than 5 days and have a few symptoms (not new). Do you have these experience? Thank you and greetings from Czech Republic 😊❤
Hi! Thanks for watching. I can have a few bad days in a row. They are typically associated with illness, overdoing it (like travel), lack of sleep or stress. Be gentle with yourself and try to take exquisite care of yourself.
My wife stays in bed 17 hours a day she’s had MS over 20 years is this normal
Thanks for watching. Unfortunately there is no “normal” with MS as we are affected differently by it. Seventeen hours a day does seem like a lot though. Has she discussed this with her doctor? Making changes to diet and lifestyle can definitely help too. There are multiple studies showing that a more plant based diet can reduce fatigue in people with MS. Check out this video on it ruclips.net/video/s2kEl35Z24o/видео.htmlsi=JmF8LLOaNawkDCUJ
You need a steak
Nah! I haven’t has a steak in over a decade and am doing quite well without it. Thanks for watching!