Don't cry, my daughter was diagnosed at 16. She graduated from home school and has a bachelor's degree in computer forensics. She's a volunteer firefighter, bought her own home and works for a great company. She turned 30 this year and just keeps going with God's help.
My daughter has found taking a variety of mushroom supplements, not the mind altering kind, is helping her immensely. She goes the natural route as much as she can since she has bad side affects with the meds. Lion's mane is one, and shitaki is another I think 🤔. I can get a list and post it here.
To those who found this video, there's a chance you might be newly diagnosed. I was diagnosed with MS when I was 19, I'm 38 now. I managed to still go to college, buy a house, and get married. I just wanted to say that life isn't over, the world isn't ending for you. I want to reiterate you can still live a happy and meaningful life. I know it's scary being diagnosed with anything out of the blue, scarier still being diagnosed with a disease that's hard to pronounce. My words of advice is don't let it stop you from reaching for you goals and your dreams. We are all going to the same destination, some people's hills aren't as steep as other's mountains but we still make the same motion, and that's one step at a time. Strive to improve your quality of life in any way possible, YOU are in charge of your life. Be your own advocate and hero.
I just screen shot what you wrote because I needed to read that. I was diagnosed last month and it’s been so hard just letting go and letting God. Your words really meant a lot though, so thank you ❤
Yay for your reply! I’m 66 and still loving life to the fullest. A diagnosis of MS in my 20s, before these effective meds, was terrifying. Hang in there, chances are you will be OK.
your writing is great. 1 Month ago, I was diagnosed with multiple sclerosis when I went to the hospital because I couldn't move my left hand. I am 22 years old and have just finished college. It's really bad to get this news at a young age when you have goals and dreams. Still, life is good. We are strong. Even if we have pains and numbness, we must be positive.
I'm 40 was diagnosed at 21 what I tell people is when you where a child you did not know how life was going to go or end up. You just lived in the moment. Don't worry about how or what others can do. Just live your life how your body will allow you. Who cares what others think. We are not disable we are Differently Capable. We still are capable we just do things our own way. Good luck with your MS life. No one is born knowing how life will be. Enjoy Life because you only get one. Take Care
My mom was diagnosed with MS when she was 29. I know how difficult of a disease it can be because there is such a lack of understanding around it. It was the reason I am currently a scientist and I will always advocate for more MS awareness. I've never commented on a video, but just know there are people in your corner. P.S. my mom is killing it, has never let her disease define her, still goes to the gym daily, and truly is one of the most inspirational people in my life. Never allow your MS to take away your happiness. 💛
I have MS. I was diagnosed at the age of 22 after a bout of Optic neuritis and then a spinal tap to confirm the diagnosis. I promise everything will be okay. It's something we live with and we will have good days and bad days.
I have MS. I was diagnosed at age 31 when I was newly married and trying for kids. At the time, i was SO scared. assumed I'd never have kids and be wheel chair bound. I'm 39 now, have 2 beautiful daughters and am no where close to using a wheel chair or a cane. THERE IS LIFE after this diagnosis! I completely understand everything you said about not wanting to 'bother' or make others you love uncomfortable because of your diagnosis. They love you, and want to be there to help. the sooner you accept that, the easier it is to work on your relationships with them with your new "real". Thank you so much for sharing, you're freaking gorgeous and seem like such an awesome person. Thank you so much for opening up and making this video! When I was diagnosed there was hardly anything out there.
23M, diagnosed with RRMS last March. It's been a crazy couple of months, but I'm hanging in there. The worst part is when symptoms come back, which they occasionally do in my case. My MS was caught fairly late, many lesions were visible on my MRIs, which really SUCKS, I'm still mad at my doc for not telling me to have an MRI in September when I first showed typical MS symptoms. ...that was the venting part. Sorry you had to read that 😂 This might be more fun to read. MS has changed my life for the better so far. I picked up rock climbing pretty much immediately after my diagnosis (exercise has been shown to improve the prognosis). It's an incredibly fun hobby, and thanks to it I have a nice new group of friends I go climbing with 3 times a week. MS is terrifying in that it's so unpredictable. But we're not alone. Wish the best to anyone reading this who's in the same boat...
I was diagnosed with MS over 10 years ago. Found out when I was a school bus driver for 15 years. Lost the sight in my right eye. Lost my job and very tired but on a whole I am doing ok. My scans have been the same since 2013. God allows things for a reason. I’m 58 years old now and still pretty good.Keep the faith in God.
I have MS and it’s been quite a journey after my diagnosis. I’m 33 with 4 children. I’m a freelance model 📸❤️ it’s crazy how much our life changes after getting diagnosed.
I am 69 y.o. male, PPMS, diagnosed when I was 53. I have gone through every symptom and every emotion you describe. I have only these words to share. I hope they help you as they did me. "Life is not about waiting for the storm to pass, it is about learning to dance in the rain." I hope you dance.
I think it’s wonderful that so many people who have MS come to RUclips and tell your experience and share encouragements. My mother was 20 when she was diagnosed in 1947. I know she felt alone, isolated and depressed being unable to get out with like minded people. Come together, share your experiences, it’s important, especially if you have kids, especially if you have flare ups that take you out of your daily routine and especially if you find yourself in a serious depressed state. ♥️
Hi! Juliana here. I was diagnosed with MS in 2021. I can empathize with how your feeling and what your going through. I understand what you mean where you don’t want to burden people. You are not. I originally felt like a sad helpless person when I got it because I couldn’t even shower by myself and it was humiliating as a 28 year old. It took me almost a full year of various therapies to finally be independent with my life. It gets better but to stomach a diagnosis that is lifelong, I feel that ❤ I learned very quickly who I wanted to keep in my circle and who would support me. Keep the supportive people in your circle, and let go of the rest.
If you clicked on this video and you were just diagnosed with MS, I am telling you from lived experience, you are going to be okay and you're going to be able to figure this out. I was diagnosed at 26 and now am 39 years old. Medications for MS are changing the long-term outcomes of this disease. You can get your education, fall in love, have adventures. You might have to get used to being in medical spaces on occasion and you will get SO good at understanding medical insurance, but you will adjust more quickly than you think. You've got this.
I'm a content creator writing to you on my alt. I had just made content again, and it was so disjointed, I was rambling and not making sense. My editing skills had really gone downhill. We had several significant losses in our family, then BAM! I woke up with that familiar feeling again. I'm so sorry about your diagnosis. I'm all too aware of it at this point. For me, if I wake up with vertigo feeling, the neuropathy in my feet and legs goes from bad to, "Oh no I might not be able to walk right now," and worst of all the depression that comes with it. I still have to work, and my husband needs me. Thank you for sharing your story.
I was dx'ed when I was 22, just after graduating with my BA. It was so scary. I'm now 46, and while I have some small issues along the way, the treatments available now are amazing. If you ever need a friend to listen, I'm here.
Dearest Wessli-Ann, I know exactly how you’re feeling. I had the same Optic Neuritis that was one of your first signs of MS but that was 42 years ago when I was 21. Not much was known about it back then and there were no treatments at all. After I saw the Opthalmologist who told me that I had an Optic Neuritis, she then said that for about 75% of people this was the first sign of MS. I had no idea what that was other than if you had it you ended up in a wheelchair. I was in total denial and did zero about it for nearly four years until my next exacerbation when, after a really stressful time in my life, I had a whole left side shutdown and finally went to a neurologist who confirmed that I had MS. At that stage the only treatment was very strong and rough and I opted not to take it. Everything got better on its own. I guess the point that I’m making is that I’ve lived a full and very active life for the past 40 odd years with only a handful of exacerbations which I have handled well, and I’ve found that all my terrifying thoughts and feelings and emotions never came to pass. Yes, it’s scary at the beginning but you learn to live with it, and I can see that you have that warrior attitude which I also have. MS is no longer a life sentence and the majority of those diagnosed live long and very happy lives with just a few inconveniences in between. Treatments have come so far in the years since my diagnosis and I am pleased to say that a cure is possible within the next few years. Medication is wonderful and keeps most of the exacerbations in check. It sounds like you have found a wonderful neurologist which is a huge step forward. I know you talk about being a burden on your family but that’s just not the case. I worried about that as well as I had been married less than a year when I was diagnosed. The reality is that you will be fine with a few inconveniences that you can handle, but the point is they all LOVE YOU, and it is their pleasure to be supporting you. I wish you so much love and happiness honey, you deserve all that and more, and I TRULY believe that this is just a blip on your journey and you will be the best you can be. God does love you and will keep you tucked under his wing. Take care sweetheart. Shelley from the Gold Coast in Australia ❤
I’m so sorry…diagnosed at age 22… 36 now , just be strong it’s a long difficult battle … I hope you have support in the battle and not alone lije many of us 😢
I was diagnosed with MS in November, 1999 (almost 23 years ago). I have had lots of ups and my fair share of downs (falling down that is 😊) but I am strong and have strong family support. There will be times when you feel like giving up the fight, sad, angry and frustrated but that is when you toss your hair over your shoulder, walk away with an attitude and say out loud “I may have MS but MS don’t have me”. Good luck on your journey
I’m so glad you are emotional and possibly grieving the loss of your previous good health. I was diagnosed 9 years ago and I tried to stay strong for everyone around me, didn’t cry, stayed positive and wanted to keep friends and family from worrying. Forge ahead to this past year when I finally figured out I never grieved for myself or what I’ve lost by living with MS. You do you and grieve. Don’t wait like I did.
I feel you sis... when i got diagnosed back on 2020... 2 days before that i also found out that i was pregnant... God is amazing... pregnancy shields me in all MS Symptoms. So... keep your faith! Hugs to you...
My diagnosis motivated me to follow my dream and start my online business. We have so many treatments coming out and HSCT is showing some promising things. I’m on ocrevus and doing much better now after failing a few treatments . Keep fighting warrior 💪🏻🧡
Hi my name is Carrie and I watched your video and it was like I was looking at myself 16 years ago. I was diagnosed at 22 and I was only married for a year and felt exactly how you feel. All I can say to you love 💕 is that MS is a diagnosis that will make you stronger then you will have ever thought you will be. I am now turning 40 and I have 2 kiddos and I am very active in life. Advice that I can give you is to always keep your faith no matter how deflated at times you will feel when your MS decides to change your plans at times and you feel so exhausted you feel like you can’t even think straight. Keep strong, be very proactive with keeping up on new meds and treatment. I have RRMS and I have been on infusion therapy for 3 years and I feel amazing. If there is anything that I can tell you and be as honest as I can. MS is a diagnosis of many moments in life that you will grieve parts and changes in your life of what you were able to do as years go by and not in a mean way please don’t take this as me scaring you.
((Hugs)) I was diagnosed with MS recently. It has been discovered that I have basically have it since 2012 (I had vertigo too) and it is 2022 and have had minimal symptoms I brushed off. I'm 44, about to turn 45. I am a Mom to a 3 year old. And yes there definitely needs to be more videos on MS from our MS Warriors. You will get through this with your faith and support 💗
Can I ask how often you have flares? I was diagnosed last year. My symptoms have been pretty mild except for one time I had vertigo real bad and fell and broke 5 bones. I’m on disease modifying therapy but im scared I could have another “attack” at any time and the not knowing is terrifying
I was diagonised last year with MS... Please u don't have to cry about having MS.. We are super women and warriors...U need some time to accept that... Don't stress about it... u have ur life.. Just go after ur dreams... Don't allow MS to keep you down... Always be positive and just do whatever u wish to do
Yup.. But crying all the time for having MS is not a solution...Mental health and happiness is an important thing...Otherwise it may lead to depression.. So All we can do is to face it bravely... May be we cannot do all the things like others.. But we can do things in our own way... Better to do something than doing nothing..
@@Thasnathas I don’t know , you’re juding someone for crying over a diagnosis , not everyone is the same . It’s her own body she can react whatever she can , stop your judgment and focus on yourself.and depression comes regardless , with tears or without them .
@@SarahCSarah Am not judging.. Am just saying... Because i have been through a situation like this.. Everyone's MS story s different... Do u have MS?. Am not saying depression only come with tears.. MS needs mental health.. Thats what i am saying...
Been diagnosed with MS at 17yrs old 25 yrs old currently! One day at a time girl an MS diagnosis is definitely a process we go through, but you got this!✊ Gonna take more of a look at your RUclips channel ! Thanks for sharing this and it was brave of you to put this out there!🙂
I have benign M.S. diagnosed at 31, now i turn 56 in 2 days. Pray Girl! God has you! I had 25 lesions on my brain and spine. I dont take meds. Positive thoughts, Praying, exercise, i dont eat meat except Seafood. Vitamis, ask God for healing. I took meds for 8 months and God said ive got it! 24 lesions gone off of my spine the xrays said! Doctor said not possible. I said it is with God! Pray!!!! ❤
Ive said a lot of the same things you did when I was first diagnosed with ms back in november of 2022. I went through a break up and a couple hospital trips since my emotions were so high. I promise you there is light in what seems like a never ending darkness. I know im a year late in finding your video, but it must have shown up on my recommended for a reason. Stay strong and theres a lot of support groups on facebook for people with ms and they definitely help when you feel alone.
I was of kinda diagnosed this January. But it took a while to confirm. I was a little too smart considering the seizure and stroke that occurred that January. But then 2 pills missed in July led me to the hospital again. The same tests confirmed the MS. And I'll have to relearn the career I was to take the final test for this February. I'll have to wait 2 or 3 years for it. I have to relearn, or rather remember. But I can return to seeking employment this coming February or March. I have to study for that now. And my weight. That was one of my goals this year, but I can't reach my original goal this November. Maybe next May.
I was just diagnosed with MS. Still going through the testing. Not sure what’s going to happen. I understand that you’re scared so am I but we can get through this together along with everyone else that has MS
I think I will be joining this club with all of you wonderful people! I'm waiting on diagnosis... I'm so scared because I think I have cognitive issues as well as my body being filled with electricity! I already have severe arthritis and I can't hide it anymore...did I wait too long??? And now waiting on doctors while my body's on fire. I just don't know how I'm going to do this. God is in control and he has a purpose for all of us. I just have to keep reminding myself of that ✝️
So hard to see your pain. You are not alone girlfriend, us MSers gotta stick together. Dealing with it gets so much easier, I promise. I just wanted to give you the biggest hug!
Oh hun, you're so young and brave. I know how scary an MS diagnosis can be. I'm 36 and was 5 and half months ago. It's very scary I know, I went through all the emotions when I was first diagnosed. But I was very lucky, I had someone in my life who had MS and recovered. I researched, I learned and am still learning. Be open and you will find the answers to be able to heal yourself and stop the MS from progressing. Change your diet, lifestyle, manage your stress and you can heal my love, without DMT's. I am about to start my own channel for people to see my MS journey so I hope you see it. Sending you much love and healing.
Please - do !!!! Get those videos going .... I am newly involved with " my gal " who has had it for about 30 years . . . . . . I feel the weight being lifted off of her shoulders - just by me being there for her to talk with me ...... ; ) as you might guess ; I'm trying to learn all that I can , so I can help myself to help her !!!
My heart goes out to you. I don’t have MS but 9 years ago I was diagnosed with Lupus which also has no cure. If you ever need to vent I am here. A positive attitude is your greatest asset during things like this. Hugs.
Sending you love xxx I heard the other day a professor of neurology saying that is very frustrationg the fact that there are lots of treatments available for MS but the media do not publicize them. The media is always spreading the worse scenario which is not a reality for most people with MS nowadays. I am a neuropsychologist, | would say stick with the neurologist you trust and live a healthy lifestyle, exercise, social connections- lots of friends/ holidays/- enjoy life the same as before, be gentle to you. MS is a condition and again, people can have good quality of life and MS. Trust me, it is possible. If we think back 20yrs, treatments have changed a lot for much better control. Also, many labs around the world are commited with MS, so keep it! Lots of lovexxxx
Hello, I was diagnosed a few months ago and as many new MSers I did a lot of research and I do feel a sense of comfort in knowing that the field is expending and research is moving forward and we are moving towards a cure and we will beat MS! I did not like my first neurologist and getting a new one made me feel so much better and confident in my diagnosis. He is very involved in the field and research and I am so hopeful about this. It is so important as patient that we listen our gut feeling and voicing our opinion with our team. I am excited about the new treatments. Much love!
You are going to offer so much comfort and peace to so many individuals through your story, Wessli-Ann. Praying for you and your family! Thank you for being so strong and transparent - you are making an impact!
I truly understand your feelings and thank you for the video. I was diagnosed with MS June 2021. My diagnosis was a complete surprise and remember feeling very similar. Shock, denial, depressed etc. What I have discovered is sometimes those feelings creep back in, though not as intense. Good luck to you! I hope you're treatments go well. 🙏
Hi MS sister. I've had MS likely my whole life, but I was diagnosed at age 37 (back in 2016). I had crazy symptoms for so long before that. The great news for you is that you are very young and you are catching it fast enough to start a very good treatment. And, you have many great years ahead of you still. My advice to you is to do everything you enjoy in your life to the fullest until the proverbial wheels fall off. You may not ever have mobility issues, but it's good to not take it for granted.
Alone, that is exactly how I felt, In disbelief that I am saying MS out loud. I have been in your shoes at almost the same time. Diagnosed Oct 2021. You will be ok, you can live your best life with MS. I have been trying to figure out how MS will make me a better person and in some ways it has. All the best to you.
Welcome to the club! You are so beautiful for sharing your story. I was diagnosed in 2015 newly married and was in the process of starting a family. You can still have a wonderful life - I have a progressive form and have 2 beautiful children and an amazing husband who has stood by my side through this life. Please DM if you just need to share or vent. I want to reach out and give you the BIGGEST HUG.
I was just diagnosed with MS this month and I had the WORST month ever. Sounds graphic but I was terrified because I had the “MS Hug” which feels like a blood pressure cuff is squeezing the life out of your ribs but it doesn’t go away in a day of soreness… it lasted me 2 weeks to the point I couldn’t walk up and down my steps at 33 years old with a basketball scholarship behind me and being active my whole life. I’ve never cried so much because I have a 9 year old son as well and I told him if I ever act funny one day just know it’s not me it’s the MS and I’m not thinking clearly and that breaks my heart the most… he doesn’t deserve any of this pain seeing me go through this and I can tell he is nervous by the questions he asks me and it literally breaks my heart .. I just try to be so optimistic around him but then cry when I’m alone. I’ve also had bathroom struggles (tmi) and my fiancé passed away 2 years ago. I feel like my life is just over in a way and my only goal is to stay healthy as long as possible for my son and I had to learn that God only gives these battles to his strongest soldiers that can use them… thought I’d been through enough but apparently not yet! Learning to let go was the absolute hardest… I still struggle with it but it’s the only way I find comfort is knowing that this life is so short compared to eternity with God and he is in control. Like what you said “he knew this was going to happen” and that’s what I tell myself. I felt myself so much in your videos when you first got diagnosed. I couldn’t even get out a full sentence without crying and had that extreme pain for weeks and numbness in my hands, legs, and feet. I still have numb hands and me being a makeup lover it’s like the one joy I had and now I feel like sometimes my face gets numb and I just want to give up…. But our brains are so powerful. I’m just giving it all to God and TRYING to stay positive as much as I can for my son. Prayers for you tonight and now always ❤ my heart breaks for anyone else who has this because it comes out of nowhere and when you get told your brain might not work right one day it’s the scariest thing in the world until you learn to just let it go… sending love and prayers and asking for your healing. ❤
My mother have MS and I was diagnosed in my late twenty. I know how you feel when I was first diagnosed I was shock and after awhile I had a melt I cry. I have my mom beside me and when I see how strong and full of life she is. I know I am not alone I am strong. I keep my faith and I keep on smiling and stay postive I still have pity cries and when I am finish I pick myself up. I am thirty-six years old. I know I am stronger and we are warriors and we are not alone you are not alone. I will keep you in prayer to give you and your family the strength. This will bring families closer together.
So sorry to hear that. My wife was diagnosed with MS. With a healthy diet and exercise she is doing well. A strong support system and you will be ok. Prayers to all the MS warriors
Good luck in your fight against this , my wife was diagnosed aged 16 and now is 54 it was all ok for about 30 years so you have some hope and they are working on a cure 24/7 and have new qauntom computers to do research in days that could take decades . x
Hello everyone , this video made me tear up , I’m currently 26 & was diagnosed in September 2019 … & today June 23,2024 I’m back in the hospital due to my vision.. similar symptoms of what you were talk about it .. I came on RUclips today to try to get some motivation bc I thought I was alone 😢.. & I’m not, I do feel better … it’s going to be okai ❤
Don't worry about it too much. You're now in our club. And we've all felt the same after diagnosis. I bought some medical books on Neurology and Biology to understand it all. It's helps a lot. Cheers from Australia. 👍🇦🇺
Hi, thank you very much for your video. I'm 38 and went through a similar life trial a few weeks ago. I have been diagnosed with CIS which may or may not be MS. I had a lesion on my spinal cord. I now have problems walking and pain in my legs. I love playing golf and now it's impossible. I am praying that it will be fixed and I will be able to play again. I was perfectly healthy and suddenly everything is different. A difficult time for us. But we must not give up. I look for every moment when I don't have to think about it and I can laugh despite the pain. The nurse told me it exist worse diagnoses haha (everybody has own cinema). I wish you luck and strength in your fight against this disease. You are very nice person and I wish you the best on your road and lot of kind people around you.
So so sorry you’re having to deal with this. I stumbled across your video because I also have been struggling with my health however I do not yet know what is wrong so have been researching a lot online and whatnot. Anyway, I have a friend who has MS. She was diagnosed in high school and is now in her 30’s. She struggled with symptoms for many years but about 5 years ago her dr recommended she start this infusion treatment. I’m not sure what it’s called exactly. I just know she goes in once a month to get her infusion of medicine and about 2 years ago she went into remission from her MS. I know she also eats super clean and takes supplements but she said the infusion treatment is what was a real game changer for her. I hope this brings you some hope and I wish you all the best.
Thanks for contributing to the content I'm searching for. I was diagnosed in 2001. Pre you tube, there was so little information then. But i rebelled against the treatment for the past 22 years. I changed my life and went the wellness route. However i am finally willing to try one of the medicines. And i'm scared that taking the meds will have a psychosomatic affect and i will start to live like a sick person. I am in denial and i hardly tell anybody whats going on. Obviously for me its been relapse remitting. But as i get older I'm really concerned that it may be affecting my cognitive abilities. I've raised a son, travelled the world, pursued my dreams. It has not diminished my life, rather it compelled me to cherish it. But now i just keep gettong the message from my doctor that its going to come for me..and i dont want to become a burden on anyone, so I am going to try one of the meds.and see if I tolerate it. MS for me (i can say gratefully) has been tolerable. My symptoms come and go. Thus far. 22 years and surely more before that. You still have your whole life ahead of you. Soinds like you are in good hands... godspeed!
I've had optic neuritis twice over the past 1.5 years (+ I've been experiencing some other symptoms as well) and they're still in the process of diagnosing MS. I'm only 21 and really nervous, tbh I was a nervous wreck the past few weeks since my second ON, but watching the video and reading all the comments made me feel so much better. Thank you for sharing the experience with us, it really helps. Edit: I now have my diagnosis and planning my therapy. It's been tough, but I'll be able to manage, I've already come this far
Blurring of vision.. Not just blurring.. Unable to see central vision clearly.. Its like we are looking from a glass full of dirt. Caused due to the inflammation in optic nerve... Steroid injections are available to cure inflammation... But it takes months or a year to recover the after effects caused due to neuritis...
@@donyekeesee1352 it took me a while to get settled with my medication, I had some issues with the first one I tried and had to change it, so the entire process took longer than expected. But now, 10 months and one more relapse after my first diagnosis, I‘ve settled with my treatment, I‘m injecting myself monthly with 20mg Ofatumumab (Kesimpta). I‘m doing okay now, though struggling with the heat at the moment.
@@SarahCSarah the most common symptoms include: - diminished vision - pain in the eye, especially when you move it - trouble distinguishing colours (especially blue and red) or noticing that colours aren't as vibrant as usual - blurry vision (especially after an increased body temperature like after a hot shower or a workout) - inability to see out of one eye - abnormal reaction of the pupil when exposed to bright light
I started having ALS-like symptoms along with other symptoms so I went to get checked out. After everything I have recently been diagnosed with MS myself. This video brings me hope as at least I am not alone like I feel at times.
Ahi Wessli-Ann, I am sorry to hear you have MS. I am a researcher in MS at Columbia University and what I can tell you is that the research and clinical community made so much progress compared to a decade ago. I hope you since then found a treatment that you tolerate. You are so brave and courageous, no one is under the share of getting or losing anything. Trust me the Disease Modifying Therapies that we have available today are so effective! STAY STRONG and happy to address any scientific question about MS if you need
My Daughter in law was diagnosed with MS not too long after her second son was born. The similarities that you said about the eye Dr visit is almost exactly how she found out. Since being diagnosed she has finished college with a masters degree in social worker.. We are so proud of you Kelsey. Being basically a newly wed and two boys under the age of 4. Would, that's a lot. But she has pushed on ahead with grace and charm and a wonderful, caring husband who's been right beside her all the way. So, you got this girl. Never say never or I can't, you can. Good luck girl...
Iam 32 and was diagnosed 1 years ago next Tuesday (Australia) I'm in tears listening to you. I was misdiagnosed for 12years. Spine in 3 places are just holding on, i have 22 lesions on my brain. Biggest thing iam learning.. its ok to be sad, angry, fruatrated. I cry so much, for what would be the simplest task eg putting my pants JUST BREATHE, DARLING THIS IS JUST A CHAPTER, IT'S NOT YOUR WHOLE STORY! -s.c lourie MS SUCKS!!! Goodluck with your journey! 🧡 BE GENTLE WITH YOURSELF, YOUR DOING THE BEST!!
I have 2 autoimmune disorders diagnosed when I was 19. Your life is not over. Some days will be hard but others will be amazing. The autoimmune diet is very helpful for me. Stay strong!
I feel like this video came up on my feed for a reason...I'm going through some health issues of my own, and it was so very helpful to hear you talk about this and being confident in your plans moving forward for feeling your best. This is what we all have to do I suppose...and what you said about letting it go..you're so right. My mom always says "sometimes at the end of the day..ya just gotta give it to God and let him handle things for awhile." Thank you for being honest and brave...hope you're week is great! xoxo
You are stronger than you think, just by saying this, you are amazing! I can relate, as a ms sufferer, you did great. For me it's been 16 years for me most of those years went great and I am still functioning. I chose to be strong through this, you will too!
God bless you I’m praying for you. I was diagnosed with ms 5 years ago. Don’t worry gods got you. I get ocrevus infusions . There are so many options to stop this disease from progressing. And also to help you feel better.
Thank you for sharing your story, I hope you are doing well.💗 I have been struggling with debilitating fatigue and am getting an MRI next week. You make me feel not alone, especially the part about feeling guilt for burdening my family. And I loved the part about God knowing we are strong enough to get through this and it was always in His plan. Praying for you!
You can do this dear! You are strong, and beautiful. So beautiful if you don’t mind me saying. In fact I involuntarily spit out my coffee when I saw your RUclips post. I’m so sorry you’re going through this. Don’t lose the faith. Miracles can happen. Please keep going. Get your sleep, exercise, Vitimans, infusions, clean eating, meditation, a good support system and the knowledge that you will be okay no matter what. I wish I could give you a big hug!!!! I’m gonna send you good vibes and literally pray for you right now. Enjoy every second. And that goes for everyone in the world. We are all going to the same place in the end( well except evil peopl). But while we’re here let’s be peaceful and good to one another. I truly feel good things are coming to you young lady.
I had my first attack at 19 in college and continued to have attacks that I recovered from but wasn’t diagnosed until I had vision loss 16 years later. I’ve been living with MS for 18 years now and only receiving treatment for about 2 years. I will tell you it definitely gets better with the treatments today. My mother in law and 2 family friends have had MS for over 30 years and all are doing well. I encourage you to find the channels for doctors Aaron Boster and Brandon Beaber if you haven’t already. They’re a wealth of information for living better with MS. Best of luck on your journey.
I was diagnosed at 32 and that was after attending ER 7 times and being turned away. Turns out that my vertigo and vomiting and stroke like symptoms were from a giant brainstem lesion. They also found about 9 old lesions. I am pretty sure I have had it since I was 16. The first 5 years of my official diagnosis were rough. I was dealign with a lot of despression and guilt because I worried thay my daughter would end up with ms because of me.. Now Im 39 turning 40, in tip top shape. I do hot yoga, work out and hike. Name of the game is to avoid stress (100% less stress the better for your disease) and be proactive with your health , keep your physical fitness up and get on a good disease modyfying drug. Don't give up, keep moving.
I have had MS for 13 years, I started my RUclips channel a few months ago and hope to one day share my story, there are not many RUclips resources that show the realities of living with MS and truthfully, some people live almost completely normal lives - you really only see really severe cases and hearing you have MS can sounds so scary and you expect the worst, but this will make you stronger and you will can live a normal, happy, fulfilling life❤️
Diagnosed with MS at 29. Had symptoms before then that doctors thought was related to stress, anxiety, and migraines. It sucks but it's not a death sentence.
The amount of strength you have is undeniable. I am praying for you sweet angel. I can only imagine what you are going through. Sending love and hugs❤️❤️❤️
Hello, it's a good thing you got diagnosed early in life because you can stop m.s from futher progression. I have m.s as well in August 2021 at 41. Years old 🧡
My heart is hurting for you 💔 not a feel sorry for you heart break as I can tell you are strong as an ox and will be okay no matter but I can feel your very real and raw emotions of trying to digest it all and it has touched my heart. I'm in the process of trying to figure out mysterious symptoms hence why I run into stories like yours and I thank you for being raw and vulnerable and sharing with us all. Please don't apologize for your emotions and please take care of yourself! Sending all the positive energy and strength I can to you! 💚💚💚
Thanks for sharing your story. I was diagnosed with Hashimotos in the fall and it was so disheartening at first. I know it’s not the same, but it’s also an autoimmune condition, like MS, and makes me feel like my body isn’t mine. Even though it sucks, I look at it as a gift and it’s just part of my journey. Healing is our life’s purpose so it’s ok to have a Dx. We can still live full, healthy lives. We just have to be mindful of stress and our bodies cues. I think that’s the real gift actually. Anyway, I’ll continue to ramble… I know you’re more positive now as you’ve had time to grieve, and I just want you to know that I have a client with MS who has a full life with 3 kids and almost never has flare ups. One last thing I like to say is “don’t let your condition define you, let it REFINE you!” 😊🙌🏻💜
I’m only about 2 and a half minutes in and can absolutely relate. Went in with possible optic neuritis but then they find lesions on the brain. Going through all of this right now and I thank you for sharing your story.
I've found lots of MS content on RUclips. MS Views & News, National MS Society, MS Association of America, Dr Aaron Boster, Dr Ben Thrower. Avoid stress at all costs, rest as much as you need, exercise, etc. You will find your way and the years will fly by unscathed by MS. God bless you!
I was diagnosed 1.5 years ago; healthy 43 male I thought…..heavily athletic. Noticed changes back then; it hit home on diagnosis day. I understand. Stay strong 💪🏽. You got this 💪🏽
my ex has MS , I sure do miss her , I really messed that up. Hope she's happy tho..keep up the good fight of Faith , Keep helping others cause that always helps with anything I'm going through , Praying for you
I got diagnosed in 2019 🙄 I use a wheelchair for distance and use one at work. For the most part people have been understanding, but seems to be a revolving door of people who question why I need my chair or a mobility car because I "don't look ill" Went through acceptance and commitment therapy and I still have constant paranoia and anxiety over how other people see me
I'm currently in the process of getting a diagnosis at this time, I have been fighting for three years now and thousands of dollars spent, I was finally sent to a Nero surgeon due to my neurologist finding a tethered cord, however the neuro surgeon said I was born with it and it's not causing my problems, he told me to ask my family about ms, and sent me for a mri and a spinal tap, I have had the mri and still waiting on the spinal tap, I am 39 years old and have 4 kids and never had any health issues until covid hit then here I am, I can't stand or sit for long periods of time with out being in so much pain ( burning, feels likes my brain and fingers and toes are being shocked, my spine area burns alot) I have brain fog, my body has been holding fluid, I have put on 40 pounds, it has been a very big struggle the last three years.
You have literally got me crying. I looked up MS diagnosis videos and tours popped up, it’s been 7years for me trying to figure out what is going on with me, still no diagnosis yet, I had a brain MRI and I have a lot of white matter but the doctor said there is nothing wrong with me and dropped me. Again. I am at a loss as to what to do I am so very alone in this, my boyfriend thinks it’s literally a joke I’m a liar and it’s all in my head. It’s a terrible feeling to have no one believe all the pain you have to endure all day everyday 😭 I hope you are doing well my love
I went to my eye doctor and my visual field test came back abnormal, but I’m not experiencing any symptoms of MS or Optic Neuritis. My eye doctor is a bit perplexed. In 6 weeks I will go in for another visual field exam, and if it’s still abnormal he will be ordering an MRI. I’m nervous. I have an aunt with MS, so I know how bad it is. Thank you for your video. I’m a Christian and love hearing about other people’s faith. It’s encouraging.
Thank you for sharing your experience. I'm almost 30 and going through my first major relapse and awaiting the neurologist in a couple of weeks and a mri. I'm pretty certain that I have Ms by the way my symptoms have progressed and it's hard to find videos of Ms stories so I thank you for sharing. Treatment is so much better than it used to be and we can still live life to our full potential
Keep motivated and keep doing crazy things. It is not an easy walk with MS but at the same time it can have its own rewards. Like doing things that when totally able bodied you never thought to do as you could always do it sometime in the future. Take all opportunities offered to you, you can do it! I had dreamt of going to Antarctica for quarter of a century. The thought had scared me but I applied for it soon after getting my Bachelor's in Applied Sciences, enough to get accepted into Postgraduate Certificate in Antarctic Studies despite having MS.
I have MS like. You do their are so medication to use you will be fine you'll have good days and bad days but you will be fine stay strong kid from Diane 😊
I'm sorry I'm seeing this 2 yrs after you posted. But hi, I'm Cory. I'm 35 live in Ohio and live with the lovely thing called MS. Our story's are very similar. I found out when my optic nerve was swallowed and lost vision almost completely. But that was when I was 22. Being on medicine and taking care of your self it's quite manageable. Hope your doing well these days
I was just diagnosed with MS after 21 years of Army service.....I have to say....it still hasn't quite hit me yet. My first attack was in Iraq 2017...my left eye went out and was diagnosed with Optic Neuritis and several lesions on my brain with "suspected MS. 5 years later...my eye goes out again with permanent damage and more lesions and finally diagnosed. I wish you the best.
Oh my gosh, this is so raw and powerful. Amazingly powerful video. All I can say is be strong and keep moving ahead, as there are so many productive paths through this disease.
@@shawnmcanthony5724 For me, the past six years I've been in complete remission just because I'm following a strict anti-inflammatory diet and taking vitamin D. I'm not sure if it works for everyone but it might be worth looking into "The best bet diet" and "overcoming MS" diet or "Wahls protocol." Lots of options and hope!
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Don't cry, my daughter was diagnosed at 16. She graduated from home school and has a bachelor's degree in computer forensics. She's a volunteer firefighter, bought her own home and works for a great company. She turned 30 this year and just keeps going with God's help.
I was diagnosed at 19 It's difficult to live with it at a young age, but we must be patient and optimistic that everything will be okay.
wow , MS or no MS your daughter has achieved huge things. You must be very proud
Proud of her and this story too
God is amazing
My daughter has found taking a variety of mushroom supplements, not the mind altering kind, is helping her immensely. She goes the natural route as much as she can since she has bad side affects with the meds. Lion's mane is one, and shitaki is another I think 🤔. I can get a list and post it here.
To those who found this video, there's a chance you might be newly diagnosed. I was diagnosed with MS when I was 19, I'm 38 now. I managed to still go to college, buy a house, and get married. I just wanted to say that life isn't over, the world isn't ending for you. I want to reiterate you can still live a happy and meaningful life. I know it's scary being diagnosed with anything out of the blue, scarier still being diagnosed with a disease that's hard to pronounce. My words of advice is don't let it stop you from reaching for you goals and your dreams. We are all going to the same destination, some people's hills aren't as steep as other's mountains but we still make the same motion, and that's one step at a time. Strive to improve your quality of life in any way possible, YOU are in charge of your life. Be your own advocate and hero.
I just screen shot what you wrote because I needed to read that. I was diagnosed last month and it’s been so hard just letting go and letting God. Your words really meant a lot though, so thank you ❤
Yay for your reply! I’m 66 and still loving life to the fullest. A diagnosis of MS in my 20s, before these effective meds, was terrifying. Hang in there, chances are you will be OK.
P
your writing is great. 1 Month ago, I was diagnosed with multiple sclerosis when I went to the hospital because I couldn't move my left hand. I am 22 years old and have just finished college. It's really bad to get this news at a young age when you have goals and dreams. Still, life is good. We are strong. Even if we have pains and numbness, we must be positive.
I'm 40 was diagnosed at 21 what I tell people is when you where a child you did not know how life was going to go or end up. You just lived in the moment. Don't worry about how or what others can do. Just live your life how your body will allow you. Who cares what others think. We are not disable we are Differently Capable. We still are capable we just do things our own way. Good luck with your MS life. No one is born knowing how life will be. Enjoy Life because you only get one. Take Care
My mom was diagnosed with MS when she was 29. I know how difficult of a disease it can be because there is such a lack of understanding around it. It was the reason I am currently a scientist and I will always advocate for more MS awareness. I've never commented on a video, but just know there are people in your corner.
P.S. my mom is killing it, has never let her disease define her, still goes to the gym daily, and truly is one of the most inspirational people in my life. Never allow your MS to take away your happiness. 💛
Thank you for sharing your story Natalie! Your mom is in my prayers 💘
@@wessliann Thank you!! I'm praying for you too 💛
All thanks 😊 to Dr Abiola on RUclips for curing me permanently from HIV 🇺🇸💃 #drabiola
@@natalietanke3411 she is on any dmt ???
Is your mother on any treatment?
I have MS. I was diagnosed at the age of 22 after a bout of Optic neuritis and then a spinal tap to confirm the diagnosis.
I promise everything will be okay. It's something we live with and we will have good days and bad days.
All thanks 😊 to Dr Abiola on RUclips for curing me permanently from HIV 🇺🇸💃 #drabiola
❤ to you
What was the early symptoms?
I have MS. I was diagnosed at age 31 when I was newly married and trying for kids. At the time, i was SO scared. assumed I'd never have kids and be wheel chair bound. I'm 39 now, have 2 beautiful daughters and am no where close to using a wheel chair or a cane. THERE IS LIFE after this diagnosis! I completely understand everything you said about not wanting to 'bother' or make others you love uncomfortable because of your diagnosis. They love you, and want to be there to help. the sooner you accept that, the easier it is to work on your relationships with them with your new "real". Thank you so much for sharing, you're freaking gorgeous and seem like such an awesome person. Thank you so much for opening up and making this video! When I was diagnosed there was hardly anything out there.
This is so so kind and encouraging! Thank you 🫶🏼
23M, diagnosed with RRMS last March. It's been a crazy couple of months, but I'm hanging in there. The worst part is when symptoms come back, which they occasionally do in my case.
My MS was caught fairly late, many lesions were visible on my MRIs, which really SUCKS, I'm still mad at my doc for not telling me to have an MRI in September when I first showed typical MS symptoms.
...that was the venting part. Sorry you had to read that 😂
This might be more fun to read. MS has changed my life for the better so far. I picked up rock climbing pretty much immediately after my diagnosis (exercise has been shown to improve the prognosis). It's an incredibly fun hobby, and thanks to it I have a nice new group of friends I go climbing with 3 times a week.
MS is terrifying in that it's so unpredictable. But we're not alone. Wish the best to anyone reading this who's in the same boat...
I was diagnosed with MS over 10 years ago. Found out when I was a school bus driver for 15 years. Lost the sight in my right eye. Lost my job and very tired but on a whole I am doing ok. My scans have been the same since 2013. God allows things for a reason. I’m 58 years old now and still pretty good.Keep the faith in God.
I have MS and it’s been quite a journey after my diagnosis. I’m 33 with 4 children. I’m a freelance model 📸❤️ it’s crazy how much our life changes after getting diagnosed.
I am 69 y.o. male, PPMS, diagnosed when I was 53. I have gone through every symptom and every emotion you describe. I have only these words to share. I hope they help you as they did me. "Life is not about waiting for the storm to pass, it is about learning to dance in the rain." I hope you dance.
I got diagnosed with stage 1, MS, you are not alone. We all are here to support and help each other through this journey.
What the hell is stage one ?
@@Thatsbannanas-d8c relapse remitting MS
@@writerssuave thank you.
I think it’s wonderful that so many people who have MS come to RUclips and tell your experience and share encouragements. My mother was 20 when she was diagnosed in 1947. I know she felt alone, isolated and depressed being unable to get out with like minded people. Come together, share your experiences, it’s important, especially if you have kids, especially if you have flare ups that take you out of your daily routine and especially if you find yourself in a serious depressed state. ♥️
Hi! Juliana here. I was diagnosed with MS in 2021. I can empathize with how your feeling and what your going through. I understand what you mean where you don’t want to burden people. You are not. I originally felt like a sad helpless person when I got it because I couldn’t even shower by myself and it was humiliating as a 28 year old. It took me almost a full year of various therapies to finally be independent with my life. It gets better but to stomach a diagnosis that is lifelong, I feel that ❤ I learned very quickly who I wanted to keep in my circle and who would support me. Keep the supportive people in your circle, and let go of the rest.
If you clicked on this video and you were just diagnosed with MS, I am telling you from lived experience, you are going to be okay and you're going to be able to figure this out. I was diagnosed at 26 and now am 39 years old. Medications for MS are changing the long-term outcomes of this disease. You can get your education, fall in love, have adventures. You might have to get used to being in medical spaces on occasion and you will get SO good at understanding medical insurance, but you will adjust more quickly than you think. You've got this.
Don't cry! I have been dealing with MS since I was 15 and I am now 22. You're strong, don't give up
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I'm a content creator writing to you on my alt. I had just made content again, and it was so disjointed, I was rambling and not making sense. My editing skills had really gone downhill. We had several significant losses in our family, then BAM! I woke up with that familiar feeling again. I'm so sorry about your diagnosis. I'm all too aware of it at this point. For me, if I wake up with vertigo feeling, the neuropathy in my feet and legs goes from bad to, "Oh no I might not be able to walk right now," and worst of all the depression that comes with it. I still have to work, and my husband needs me. Thank you for sharing your story.
I was dx'ed when I was 22, just after graduating with my BA. It was so scary. I'm now 46, and while I have some small issues along the way, the treatments available now are amazing. If you ever need a friend to listen, I'm here.
Dearest Wessli-Ann, I know exactly how you’re feeling. I had the same Optic Neuritis that was one of your first signs of MS but that was 42 years ago when I was 21. Not much was known about it back then and there were no treatments at all. After I saw the Opthalmologist who told me that I had an Optic Neuritis, she then said that for about 75% of people this was the first sign of MS. I had no idea what that was other than if you had it you ended up in a wheelchair. I was in total denial and did zero about it for nearly four years until my next exacerbation when, after a really stressful time in my life, I had a whole left side shutdown and finally went to a neurologist who confirmed that I had MS. At that stage the only treatment was very strong and rough and I opted not to take it. Everything got better on its own. I guess the point that I’m making is that I’ve lived a full and very active life for the past 40 odd years with only a handful of exacerbations which I have handled well, and I’ve found that all my terrifying thoughts and feelings and emotions never came to pass. Yes, it’s scary at the beginning but you learn to live with it, and I can see that you have that warrior attitude which I also have. MS is no longer a life sentence and the majority of those diagnosed live long and very happy lives with just a few inconveniences in between. Treatments have come so far in the years since my diagnosis and I am pleased to say that a cure is possible within the next few years. Medication is wonderful and keeps most of the exacerbations in check. It sounds like you have found a wonderful neurologist which is a huge step forward. I know you talk about being a burden on your family but that’s just not the case. I worried about that as well as I had been married less than a year when I was diagnosed. The reality is that you will be fine with a few inconveniences that you can handle, but the point is they all LOVE YOU, and it is their pleasure to be supporting you. I wish you so much love and happiness honey, you deserve all that and more, and I TRULY believe that this is just a blip on your journey and you will be the best you can be. God does love you and will keep you tucked under his wing. Take care sweetheart. Shelley from the Gold Coast in Australia ❤
I’m so sorry…diagnosed at age 22… 36 now , just be strong it’s a long difficult battle …
I hope you have support in the battle and not alone lije many of us 😢
I was diagnosed with MS in November, 1999 (almost 23 years ago). I have had lots of ups and my fair share of downs (falling down that is 😊) but I am strong and have strong family support. There will be times when you feel like giving up the fight, sad, angry and frustrated but that is when you toss your hair over your shoulder, walk away with an attitude and say out loud “I may have MS but MS don’t have me”. Good luck on your journey
How can I get in contact with you as I am waiting for my mri results
I’m so glad you are emotional and possibly grieving the loss of your previous good health. I was diagnosed 9 years ago and I tried to stay strong for everyone around me, didn’t cry, stayed positive and wanted to keep friends and family from worrying. Forge ahead to this past year when I finally figured out I never grieved for myself or what I’ve lost by living with MS. You do you and grieve. Don’t wait like I did.
❤ to you
I feel you sis... when i got diagnosed back on 2020... 2 days before that i also found out that i was pregnant... God is amazing... pregnancy shields me in all MS Symptoms. So... keep your faith! Hugs to you...
My diagnosis motivated me to follow my dream and start my online business. We have so many treatments coming out and HSCT is showing some promising things. I’m on ocrevus and doing much better now after failing a few treatments . Keep fighting warrior 💪🏻🧡
Hi my name is Carrie and I watched your video and it was like I was looking at myself 16 years ago. I was diagnosed at 22 and I was only married for a year and felt exactly how you feel. All I can say to you love 💕 is that MS is a diagnosis that will make you stronger then you will have ever thought you will be. I am now turning 40 and I have 2 kiddos and I am very active in life. Advice that I can give you is to always keep your faith no matter how deflated at times you will feel when your MS decides to change your plans at times and you feel so exhausted you feel like you can’t even think straight. Keep strong, be very proactive with keeping up on new meds and treatment. I have RRMS and I have been on infusion therapy for 3 years and I feel amazing. If there is anything that I can tell you and be as honest as I can. MS is a diagnosis of many moments in life that you will grieve parts and changes in your life of what you were able to do as years go by and not in a mean way please don’t take this as me scaring you.
I'm in the process of being diagnosed and this was so helpful. It's scary and hard not to feel alone. Thank you for sharing your story.
((Hugs)) I was diagnosed with MS recently. It has been discovered that I have basically have it since 2012 (I had vertigo too) and it is 2022 and have had minimal symptoms I brushed off. I'm 44, about to turn 45. I am a Mom to a 3 year old. And yes there definitely needs to be more videos on MS from our MS Warriors. You will get through this with your faith and support 💗
Are you on any treatment?
Can I ask how often you have flares? I was diagnosed last year. My symptoms have been pretty mild except for one time I had vertigo real bad and fell and broke 5 bones. I’m on disease modifying therapy but im scared I could have another “attack” at any time and the not knowing is terrifying
This has made me cry I am also struggling with MS. Your not alone xxxxx
I was diagonised last year with MS... Please u don't have to cry about having MS.. We are super women and warriors...U need some time to accept that... Don't stress about it... u have ur life.. Just go after ur dreams... Don't allow MS to keep you down... Always be positive and just do whatever u wish to do
Warriors also cry.
Yup.. But crying all the time for having MS is not a solution...Mental health and happiness is an important thing...Otherwise it may lead to depression.. So All we can do is to face it bravely... May be we cannot do all the things like others.. But we can do things in our own way... Better to do something than doing nothing..
@@Thasnathas I don’t know , you’re juding someone for crying over a diagnosis , not everyone is the same .
It’s her own body she can react whatever she can , stop your judgment and focus on yourself.and depression comes regardless , with tears or without them .
@@SarahCSarah Am not judging.. Am just saying... Because i have been through a situation like this.. Everyone's MS story s different... Do u have MS?.
Am not saying depression only come with tears.. MS needs mental health.. Thats what i am saying...
Rules no alcohol don’t smoke
Stay away from stress take your vitamines D 10000 and fishoil
🥺 diagnosed at 23, 34 now . I totally understand the phase you’re in ❤
Been diagnosed with MS at 17yrs old 25 yrs old currently! One day at a time girl an MS diagnosis is definitely a process we go through, but you got this!✊ Gonna take more of a look at your RUclips channel ! Thanks for sharing this and it was brave of you to put this out there!🙂
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ça va bien
I have benign M.S. diagnosed at 31, now i turn 56 in 2 days. Pray Girl! God has you! I had 25 lesions on my brain and spine. I dont take meds. Positive thoughts, Praying, exercise, i dont eat meat except Seafood. Vitamis, ask God for healing. I took meds for 8 months and God said ive got it! 24 lesions gone off of my spine the xrays said! Doctor said not possible. I said it is with God! Pray!!!! ❤
Amen 🙌🏾
@@paulatibbs8799comment allez vous maintenant. Prayer pour ma fille qui a une sclérose en plaques à l'âge de 17
From a MS person to another, stay positive and keep smiling.
My brother has MS. New research is coming out for MS. I’m certain you’ll get through this ❤️🔥
She will bur its a challenge. Unless you have it you would never know
Ive said a lot of the same things you did when I was first diagnosed with ms back in november of 2022. I went through a break up and a couple hospital trips since my emotions were so high. I promise you there is light in what seems like a never ending darkness. I know im a year late in finding your video, but it must have shown up on my recommended for a reason. Stay strong and theres a lot of support groups on facebook for people with ms and they definitely help when you feel alone.
❤ to you
I was of kinda diagnosed this January. But it took a while to confirm. I was a little too smart considering the seizure and stroke that occurred that January. But then 2 pills missed in July led me to the hospital again. The same tests confirmed the MS. And I'll have to relearn the career I was to take the final test for this February. I'll have to wait 2 or 3 years for it. I have to relearn, or rather remember. But I can return to seeking employment this coming February or March. I have to study for that now. And my weight. That was one of my goals this year, but I can't reach my original goal this November. Maybe next May.
I was just diagnosed with MS. Still going through the testing. Not sure what’s going to happen. I understand that you’re scared so am I but we can get through this together along with everyone else that has MS
How r u now
❤ to you
I think I will be joining this club with all of you wonderful people! I'm waiting on diagnosis... I'm so scared because I think I have cognitive issues as well as my body being filled with electricity! I already have severe arthritis and I can't hide it anymore...did I wait too long??? And now waiting on doctors while my body's on fire. I just don't know how I'm going to do this. God is in control and he has a purpose for all of us. I just have to keep reminding myself of that ✝️
I’m praying all of you keep fighting
Same here 😢
So hard to see your pain. You are not alone girlfriend, us MSers gotta stick together. Dealing with it gets so much easier, I promise. I just wanted to give you the biggest hug!
I really feel for you very much. I do understand. My wife had MS for 26 years. I was her carer. One day at a time is plenty.
Oh hun, you're so young and brave. I know how scary an MS diagnosis can be. I'm 36 and was 5 and half months ago. It's very scary I know, I went through all the emotions when I was first diagnosed. But I was very lucky, I had someone in my life who had MS and recovered. I researched, I learned and am still learning. Be open and you will find the answers to be able to heal yourself and stop the MS from progressing. Change your diet, lifestyle, manage your stress and you can heal my love, without DMT's. I am about to start my own channel for people to see my MS journey so I hope you see it. Sending you much love and healing.
Please - do !!!! Get those videos going .... I am newly involved with " my gal " who has had it for about 30 years . . . . . . I feel the weight being lifted off of her shoulders - just by me being there for her to talk with me ...... ; ) as you might guess ; I'm trying to learn all that I can , so I can help myself to help her !!!
@@timparhamsr9598
youtube.com/@JessicaWilliams986
My heart goes out to you. I don’t have MS but 9 years ago I was diagnosed with Lupus which also has no cure. If you ever need to vent I am here. A positive attitude is your greatest asset during things like this. Hugs.
Sending you love xxx
I heard the other day a professor of neurology saying that is very frustrationg the fact that there are lots of treatments available for MS but the media do not publicize them.
The media is always spreading the worse scenario which is not a reality for most people with MS nowadays.
I am a neuropsychologist, | would say stick with the neurologist you trust and live a healthy lifestyle, exercise, social connections- lots of friends/ holidays/- enjoy life the same as before, be gentle to you.
MS is a condition and again, people can have good quality of life and MS.
Trust me, it is possible.
If we think back 20yrs, treatments have changed a lot for much better control.
Also, many labs around the world are commited with MS, so keep it!
Lots of lovexxxx
Hello, I was diagnosed a few months ago and as many new MSers I did a lot of research and I do feel a sense of comfort in knowing that the field is expending and research is moving forward and we are moving towards a cure and we will beat MS! I did not like my first neurologist and getting a new one made me feel so much better and confident in my diagnosis. He is very involved in the field and research and I am so hopeful about this. It is so important as patient that we listen our gut feeling and voicing our opinion with our team. I am excited about the new treatments.
Much love!
your not alone! i’m 16 & i have MS. i’m with you!
Comment tu vas maintenant ?
You are going to offer so much comfort and peace to so many individuals through your story, Wessli-Ann. Praying for you and your family! Thank you for being so strong and transparent - you are making an impact!
I truly understand your feelings and thank you for the video. I was diagnosed with MS June 2021. My diagnosis was a complete surprise and remember feeling very similar. Shock, denial, depressed etc. What I have discovered is sometimes those feelings creep back in, though not as intense. Good luck to you! I hope you're treatments go well. 🙏
I hope your journey is embracing. MS is sooooo unpredictable. Its not a boring condition. Your not alone dear. Stay positive
Hi MS sister. I've had MS likely my whole life, but I was diagnosed at age 37 (back in 2016). I had crazy symptoms for so long before that. The great news for you is that you are very young and you are catching it fast enough to start a very good treatment. And, you have many great years ahead of you still. My advice to you is to do everything you enjoy in your life to the fullest until the proverbial wheels fall off. You may not ever have mobility issues, but it's good to not take it for granted.
Alone, that is exactly how I felt, In disbelief that I am saying MS out loud. I have been in your shoes at almost the same time. Diagnosed Oct 2021. You will be ok, you can live your best life with MS. I have been trying to figure out how MS will make me a better person and in some ways it has. All the best to you.
Welcome to the club! You are so beautiful for sharing your story. I was diagnosed in 2015 newly married and was in the process of starting a family. You can still have a wonderful life - I have a progressive form and have 2 beautiful children and an amazing husband who has stood by my side through this life. Please DM if you just need to share or vent. I want to reach out and give you the BIGGEST HUG.
Hi(
I was just diagnosed with MS this month and I had the WORST month ever. Sounds graphic but I was terrified because I had the “MS Hug” which feels like a blood pressure cuff is squeezing the life out of your ribs but it doesn’t go away in a day of soreness… it lasted me 2 weeks to the point I couldn’t walk up and down my steps at 33 years old with a basketball scholarship behind me and being active my whole life. I’ve never cried so much because I have a 9 year old son as well and I told him if I ever act funny one day just know it’s not me it’s the MS and I’m not thinking clearly and that breaks my heart the most… he doesn’t deserve any of this pain seeing me go through this and I can tell he is nervous by the questions he asks me and it literally breaks my heart .. I just try to be so optimistic around him but then cry when I’m alone. I’ve also had bathroom struggles (tmi) and my fiancé passed away 2 years ago. I feel like my life is just over in a way and my only goal is to stay healthy as long as possible for my son and I had to learn that God only gives these battles to his strongest soldiers that can use them… thought I’d been through enough but apparently not yet! Learning to let go was the absolute hardest… I still struggle with it but it’s the only way I find comfort is knowing that this life is so short compared to eternity with God and he is in control. Like what you said “he knew this was going to happen” and that’s what I tell myself. I felt myself so much in your videos when you first got diagnosed. I couldn’t even get out a full sentence without crying and had that extreme pain for weeks and numbness in my hands, legs, and feet. I still have numb hands and me being a makeup lover it’s like the one joy I had and now I feel like sometimes my face gets numb and I just want to give up…. But our brains are so powerful. I’m just giving it all to God and TRYING to stay positive as much as I can for my son. Prayers for you tonight and now always ❤ my heart breaks for anyone else who has this because it comes out of nowhere and when you get told your brain might not work right one day it’s the scariest thing in the world until you learn to just let it go… sending love and prayers and asking for your healing. ❤
You are so amazing and strong God has a plan for you don't be afraid.
I also Hav ms m new let’s say like this. It u want speak with someone. Write me❤ ur not alone.
My mother have MS and I was diagnosed in my late twenty. I know how you feel when I was first diagnosed I was shock and after awhile I had a melt I cry. I have my mom beside me and when I see how strong and full of life she is. I know I am not alone I am strong. I keep my faith and I keep on smiling and stay postive I still have pity cries and when I am finish I pick myself up. I am thirty-six years old. I know I am stronger and we are warriors and we are not alone you are not alone. I will keep you in prayer to give you and your family the strength. This will bring families closer together.
So sorry to hear that. My wife was diagnosed with MS. With a healthy diet and exercise she is doing well. A strong support system and you will be ok. Prayers to all the MS warriors
Good luck in your fight against this , my wife was diagnosed aged 16 and now is 54 it was all ok for about 30 years so you have some hope and they are working on a cure 24/7 and have new qauntom computers to do research in days that could take decades . x
Hello everyone , this video made me tear up , I’m currently 26 & was diagnosed in September 2019 … & today June 23,2024 I’m back in the hospital due to my vision.. similar symptoms of what you were talk about it .. I came on RUclips today to try to get some motivation bc I thought I was alone 😢.. & I’m not, I do feel better … it’s going to be okai ❤
Don't worry about it too much. You're now in our club. And we've all felt the same after diagnosis. I bought some medical books on Neurology and Biology to understand it all. It's helps a lot. Cheers from Australia. 👍🇦🇺
Hi, thank you very much for your video. I'm 38 and went through a similar life trial a few weeks ago. I have been diagnosed with CIS which may or may not be MS. I had a lesion on my spinal cord. I now have problems walking and pain in my legs. I love playing golf and now it's impossible. I am praying that it will be fixed and I will be able to play again. I was perfectly healthy and suddenly everything is different. A difficult time for us. But we must not give up. I look for every moment when I don't have to think about it and I can laugh despite the pain. The nurse told me it exist worse diagnoses haha (everybody has own cinema). I wish you luck and strength in your fight against this disease. You are very nice person and I wish you the best on your road and lot of kind people around you.
So so sorry you’re having to deal with this. I stumbled across your video because I also have been struggling with my health however I do not yet know what is wrong so have been researching a lot online and whatnot. Anyway, I have a friend who has MS. She was diagnosed in high school and is now in her 30’s. She struggled with symptoms for many years but about 5 years ago her dr recommended she start this infusion treatment. I’m not sure what it’s called exactly. I just know she goes in once a month to get her infusion of medicine and about 2 years ago she went into remission from her MS. I know she also eats super clean and takes supplements but she said the infusion treatment is what was a real game changer for her. I hope this brings you some hope and I wish you all the best.
Progress is possible when you have MS! It is not the end of your life by any means, and the community is so supportive.
Thanks for contributing to the content I'm searching for. I was diagnosed in 2001. Pre you tube, there was so little information then. But i rebelled against the treatment for the past 22 years. I changed my life and went the wellness route. However i am finally willing to try one of the medicines. And i'm scared that taking the meds will have a psychosomatic affect and i will start to live like a sick person. I am in denial and i hardly tell anybody whats going on. Obviously for me its been relapse remitting. But as i get older I'm really concerned that it may be affecting my cognitive abilities. I've raised a son, travelled the world, pursued my dreams. It has not diminished my life, rather it compelled me to cherish it. But now i just keep gettong the message from my doctor that its going to come for me..and i dont want to become a burden on anyone, so I am going to try one of the meds.and see if I tolerate it. MS for me (i can say gratefully) has been tolerable. My symptoms come and go. Thus far. 22 years and surely more before that. You still have your whole life ahead of you. Soinds like you are in good hands... godspeed!
I've had optic neuritis twice over the past 1.5 years (+ I've been experiencing some other symptoms as well) and they're still in the process of diagnosing MS. I'm only 21 and really nervous, tbh I was a nervous wreck the past few weeks since my second ON, but watching the video and reading all the comments made me feel so much better. Thank you for sharing the experience with us, it really helps.
Edit: I now have my diagnosis and planning my therapy. It's been tough, but I'll be able to manage, I've already come this far
What are the symptoms of optic neuritis ? 😐
Blurring of vision.. Not just blurring.. Unable to see central vision clearly.. Its like we are looking from a glass full of dirt. Caused due to the inflammation in optic nerve... Steroid injections are available to cure inflammation... But it takes months or a year to recover the after effects caused due to neuritis...
Update?
@@donyekeesee1352 it took me a while to get settled with my medication, I had some issues with the first one I tried and had to change it, so the entire process took longer than expected. But now, 10 months and one more relapse after my first diagnosis, I‘ve settled with my treatment, I‘m injecting myself monthly with 20mg Ofatumumab (Kesimpta). I‘m doing okay now, though struggling with the heat at the moment.
@@SarahCSarah the most common symptoms include:
- diminished vision
- pain in the eye, especially when you move it
- trouble distinguishing colours (especially blue and red) or noticing that colours aren't as vibrant as usual
- blurry vision (especially after an increased body temperature like after a hot shower or a workout)
- inability to see out of one eye
- abnormal reaction of the pupil when exposed to bright light
I started having ALS-like symptoms along with other symptoms so I went to get checked out. After everything I have recently been diagnosed with MS myself. This video brings me hope as at least I am not alone like I feel at times.
What were your als type symptoms
My daughter got married recently and is 22 and I’m so glad I found this video and can share it with her!
Ahi Wessli-Ann, I am sorry to hear you have MS. I am a researcher in MS at Columbia University and what I can tell you is that the research and clinical community made so much progress compared to a decade ago. I hope you since then found a treatment that you tolerate. You are so brave and courageous, no one is under the share of getting or losing anything. Trust me the Disease Modifying Therapies that we have available today are so effective! STAY STRONG and happy to address any scientific question about MS if you need
My Daughter in law was diagnosed with MS not too long after her second son was born. The similarities that you said about the eye Dr visit is almost exactly how she found out.
Since being diagnosed she has finished college with a masters degree in social worker..
We are so proud of you Kelsey. Being basically a newly wed and two boys under the age of 4. Would, that's a lot. But she has pushed on ahead with grace and charm and a wonderful, caring husband who's been right beside her all the way.
So, you got this girl.
Never say never or I can't, you can.
Good luck girl...
Iam 32 and was diagnosed 1 years ago next Tuesday (Australia) I'm in tears listening to you. I was misdiagnosed for 12years. Spine in 3 places are just holding on, i have 22 lesions on my brain.
Biggest thing iam learning.. its ok to be sad, angry, fruatrated. I cry so much, for what would be the simplest task eg putting my pants
JUST BREATHE, DARLING
THIS IS JUST A CHAPTER,
IT'S NOT YOUR WHOLE
STORY!
-s.c lourie
MS SUCKS!!!
Goodluck with your journey! 🧡
BE GENTLE WITH YOURSELF,
YOUR DOING THE BEST!!
I have 2 autoimmune disorders diagnosed when I was 19. Your life is not over. Some days will be hard but others will be amazing. The autoimmune diet is very helpful for me. Stay strong!
All thanks 😊 to Dr Abiola on RUclips for curing me permanently from HIV 🇺🇸💃 #drabiola
I feel like this video came up on my feed for a reason...I'm going through some health issues of my own, and it was so very helpful to hear you talk about this and being confident in your plans moving forward for feeling your best. This is what we all have to do I suppose...and what you said about letting it go..you're so right. My mom always says "sometimes at the end of the day..ya just gotta give it to God and let him handle things for awhile." Thank you for being honest and brave...hope you're week is great! xoxo
You are stronger than you think, just by saying this, you are amazing!
I can relate, as a ms sufferer, you did great. For me it's been 16 years for me most of those years went great and I am still functioning. I chose to be strong through this, you will too!
God bless you I’m praying for you. I was diagnosed with ms 5 years ago. Don’t worry gods got you. I get ocrevus infusions . There are so many options to stop this disease from progressing. And also to help you feel better.
Thank you for sharing your story, I hope you are doing well.💗 I have been struggling with debilitating fatigue and am getting an MRI next week. You make me feel not alone, especially the part about feeling guilt for burdening my family. And I loved the part about God knowing we are strong enough to get through this and it was always in His plan. Praying for you!
You can do this dear! You are strong, and beautiful. So beautiful if you don’t mind me saying. In fact I involuntarily spit out my coffee when I saw your RUclips post. I’m so sorry you’re going through this. Don’t lose the faith. Miracles can happen. Please keep going. Get your sleep, exercise, Vitimans, infusions, clean eating, meditation, a good support system and the knowledge that you will be okay no matter what. I wish I could give you a big hug!!!! I’m gonna send you good vibes and literally pray for you right now. Enjoy every second. And that goes for everyone in the world. We are all going to the same place in the end( well except evil peopl). But while we’re here let’s be peaceful and good to one another. I truly feel good things are coming to you young lady.
I had my first attack at 19 in college and continued to have attacks that I recovered from but wasn’t diagnosed until I had vision loss 16 years later. I’ve been living with MS for 18 years now and only receiving treatment for about 2 years. I will tell you it definitely gets better with the treatments today. My mother in law and 2 family friends have had MS for over 30 years and all are doing well. I encourage you to find the channels for doctors Aaron Boster and Brandon Beaber if you haven’t already. They’re a wealth of information for living better with MS. Best of luck on your journey.
I was diagnosed at 32 and that was after attending ER 7 times and being turned away. Turns out that my vertigo and vomiting and stroke like symptoms were from a giant brainstem lesion. They also found about 9 old lesions.
I am pretty sure I have had it since I was 16. The first 5 years of my official diagnosis were rough. I was dealign with a lot of despression and guilt because I worried thay my daughter would end up with ms because of me..
Now Im 39 turning 40, in tip top shape. I do hot yoga, work out and hike. Name of the game is to avoid stress (100% less stress the better for your disease) and be proactive with your health , keep your physical fitness up and get on a good disease modyfying drug. Don't give up, keep moving.
I have had MS for 13 years, I started my RUclips channel a few months ago and hope to one day share my story, there are not many RUclips resources that show the realities of living with MS and truthfully, some people live almost completely normal lives - you really only see really severe cases and hearing you have MS can sounds so scary and you expect the worst, but this will make you stronger and you will can live a normal, happy, fulfilling life❤️
Diagnosed with MS at 29. Had symptoms before then that doctors thought was related to stress, anxiety, and migraines. It sucks but it's not a death sentence.
The amount of strength you have is undeniable. I am praying for you sweet angel. I can only imagine what you are going through. Sending love and hugs❤️❤️❤️
I have MS been diagnosed last year. I had double vision and dizziness. I have treatment. Good luck xx
Hello, it's a good thing you got diagnosed early in life because you can stop m.s from futher progression. I have m.s as well in August 2021 at 41. Years old 🧡
My heart is hurting for you 💔 not a feel sorry for you heart break as I can tell you are strong as an ox and will be okay no matter but I can feel your very real and raw emotions of trying to digest it all and it has touched my heart. I'm in the process of trying to figure out mysterious symptoms hence why I run into stories like yours and I thank you for being raw and vulnerable and sharing with us all. Please don't apologize for your emotions and please take care of yourself! Sending all the positive energy and strength I can to you! 💚💚💚
You are a joy and a light to your family and husband. As a wife to someone diagnosed in 2019, know that you are not a burden. Stay courageous
Thanks for sharing your story. I was diagnosed with Hashimotos in the fall and it was so disheartening at first. I know it’s not the same, but it’s also an autoimmune condition, like MS, and makes me feel like my body isn’t mine. Even though it sucks, I look at it as a gift and it’s just part of my journey. Healing is our life’s purpose so it’s ok to have a Dx. We can still live full, healthy lives. We just have to be mindful of stress and our bodies cues. I think that’s the real gift actually. Anyway, I’ll continue to ramble… I know you’re more positive now as you’ve had time to grieve, and I just want you to know that I have a client with MS who has a full life with 3 kids and almost never has flare ups. One last thing I like to say is “don’t let your condition define you, let it REFINE you!” 😊🙌🏻💜
Thank you Rebecca!! Your words are so appreciated! 💘 praying for you and your journey!
I’m only about 2 and a half minutes in and can absolutely relate. Went in with possible optic neuritis but then they find lesions on the brain. Going through all of this right now and I thank you for sharing your story.
I've found lots of MS content on RUclips. MS Views & News, National MS Society, MS Association of America, Dr Aaron Boster, Dr Ben Thrower. Avoid stress at all costs, rest as much as you need, exercise, etc. You will find your way and the years will fly by unscathed by MS. God bless you!
I was diagnosed 1.5 years ago; healthy 43 male I thought…..heavily athletic. Noticed changes back then; it hit home on diagnosis day. I understand.
Stay strong 💪🏽. You got this 💪🏽
my ex has MS , I sure do miss her , I really messed that up. Hope she's happy tho..keep up the good fight of Faith , Keep helping others cause that always helps with anything I'm going through , Praying for you
I got diagnosed in 2019 🙄
I use a wheelchair for distance and use one at work. For the most part people have been understanding, but seems to be a revolving door of people who question why I need my chair or a mobility car because I "don't look ill"
Went through acceptance and commitment therapy and I still have constant paranoia and anxiety over how other people see me
Got MS, diagnosed 2013. Go to Overcoming Multiple Sclerosis. Life changing. I found hope there. Priceless.
I'm currently in the process of getting a diagnosis at this time, I have been fighting for three years now and thousands of dollars spent, I was finally sent to a Nero surgeon due to my neurologist finding a tethered cord, however the neuro surgeon said I was born with it and it's not causing my problems, he told me to ask my family about ms, and sent me for a mri and a spinal tap, I have had the mri and still waiting on the spinal tap, I am 39 years old and have 4 kids and never had any health issues until covid hit then here I am, I can't stand or sit for long periods of time with out being in so much pain ( burning, feels likes my brain and fingers and toes are being shocked, my spine area burns alot) I have brain fog, my body has been holding fluid, I have put on 40 pounds, it has been a very big struggle the last three years.
You have literally got me crying. I looked up MS diagnosis videos and tours popped up, it’s been 7years for me trying to figure out what is going on with me, still no diagnosis yet, I had a brain MRI and I have a lot of white matter but the doctor said there is nothing wrong with me and dropped me. Again. I am at a loss as to what to do I am so very alone in this, my boyfriend thinks it’s literally a joke I’m a liar and it’s all in my head. It’s a terrible feeling to have no one believe all the pain you have to endure all day everyday 😭 I hope you are doing well my love
I went to my eye doctor and my visual field test came back abnormal, but I’m not experiencing any symptoms of MS or Optic Neuritis. My eye doctor is a bit perplexed. In 6 weeks I will go in for another visual field exam, and if it’s still abnormal he will be ordering an MRI.
I’m nervous. I have an aunt with MS, so I know how bad it is. Thank you for your video. I’m a Christian and love hearing about other people’s faith. It’s encouraging.
The most important thing I learned is to keep it together and do not freak out. it will NOT help. Keep positive
We’re all here with you 🙌🏻 🧡
Im.64 now diagnosed in 1995.
I pray for all who have MS.
The unknowns are lucky, but you'll get used to it. Get on good treatment. 🙏 🙏
I have a strong feeling you’re going to be ok, i’ll pray for you🙏🏽
Thank you for sharing your experience. I'm almost 30 and going through my first major relapse and awaiting the neurologist in a couple of weeks and a mri. I'm pretty certain that I have Ms by the way my symptoms have progressed and it's hard to find videos of Ms stories so I thank you for sharing. Treatment is so much better than it used to be and we can still live life to our full potential
I was recently diagnosed, thank you for sharing your journey. God has is hands on you🙏🏾
Keep motivated and keep doing crazy things. It is not an easy walk with MS but at the same time it can have its own rewards. Like doing things that when totally able bodied you never thought to do as you could always do it sometime in the future. Take all opportunities offered to you, you can do it! I had dreamt of going to Antarctica for quarter of a century. The thought had scared me but I applied for it soon after getting my Bachelor's in Applied Sciences, enough to get accepted into Postgraduate Certificate in Antarctic Studies despite having MS.
Was a shocker too, found out on my 50th Birthday! Be glad to know what it is, there are many people that simply don't know.
I have MS like. You do their are so medication to use you will be fine you'll have good days and bad days but you will be fine stay strong kid from Diane 😊
U R BLESSED TO FIND A GOOD CARING DOCTOR. TOOK 14 YRS FOR DRS TO FIGURE ME OUT. BLESS U, KEEP UR CHIN UP.
I'm sorry I'm seeing this 2 yrs after you posted. But hi, I'm Cory. I'm 35 live in Ohio and live with the lovely thing called MS. Our story's are very similar. I found out when my optic nerve was swallowed and lost vision almost completely. But that was when I was 22. Being on medicine and taking care of your self it's quite manageable. Hope your doing well these days
Also ty for making this video. It def hit home.
I was just diagnosed with MS after 21 years of Army service.....I have to say....it still hasn't quite hit me yet. My first attack was in Iraq 2017...my left eye went out and was diagnosed with Optic Neuritis and several lesions on my brain with "suspected MS. 5 years later...my eye goes out again with permanent damage and more lesions and finally diagnosed. I wish you the best.
Oh my gosh, this is so raw and powerful. Amazingly powerful video. All I can say is be strong and keep moving ahead, as there are so many productive paths through this disease.
Productive paths like what?? Can you name few. Thanks in advance
@@shawnmcanthony5724 For me, the past six years I've been in complete remission just because I'm following a strict anti-inflammatory diet and taking vitamin D. I'm not sure if it works for everyone but it might be worth looking into "The best bet diet" and "overcoming MS" diet or "Wahls protocol." Lots of options and hope!
You're never a burden ❤