ALS United North Carolina 2024 Research Update with Dr. Richard Bedlack from Duke ALS Clinic

Dr. Richard Bedlack from the Duke ALS Clinic talks to Dave Shore, CEO of ALS United NC about the research and science that he has been following and the progress he is witnessing. He also talks about his love for the world of fashion. #ALSUnited

[@user-qp5qq6nq1n]

Thank you Dr. Bedlack, for all the dedication and efforts you’re putting to help all the ALS patients; including me; I was diagnosed last year, you ‘rein my prayers and all the scientists who are working so hard to stop this horrible disease. GOD bless you 🙏🙏🙏❤😢

[@karieanne25]

Thank you, Dr Bedlack, for all you are doing. I asked a physician who worked with you at Duke if you are ‘for real’….her reply: ‘He is an excellent doctor…..One of the very best.’ Thank you for all you are doing….Hurry! Hurry!❤

[@sheilawest363]

Thank you so much. My dad past away with ALS. I'm being tested. For symptoms of the same. Thank you again for everything you do!!

[@Youlaughyoulosehahahaha]

How are you being checked? My dad also has also its been a year now….. we don’t know what to do next

[@sullustanmel]

Are you looking into Dr Dayan Goodenowes work with plasmalogen replacement therapy for ALS? They’re seeing tremendous results

[@juliedawn4271]

2014 I was diagnosed just as that Ice bucket challenge started . People still asked me what MND was.

[@philipwebb1617]

I was diagnosed with ALS in Feb. I also have cystic fibrosis and use to attend Duke clinic.
I was instrumental in my cf of the use of 3 different IV drugs all at once to help get better prior to my transplant. I'm wondering if 3 different medications would help with ALS.

[@juliedawn4271]

I have been taking L serine for the last 5 years. My progression is now slow

[@juliedawn4271]

My diet is key . I eat full fat everything. Good animal fats no processed foods and no sugar

[@juliedawn4271]

The gut is our second brain. I grow my own kefir from grains.

[@randibrofsky5231]

Thank you my sister was just Diagnosed with bulbar Als in south Florida and was positive for the sod1 any recommendations for South Florida groups?

[@sammyp1556]

Toferson!

[@aghaagha-et3if]

What a new treatment please tell me als mnd iam young please 😅help me