Richard Bedlack on ALS Reversals: An Update for 2022
HTML-код
- Опубликовано: 25 ноя 2022
- Dr. Richard Bedlack grew up in a small town in central Connecticut. He went to college at William and Mary in Virginia, then back to Connecticut for an MD and Ph.D. in Neuroscience at UConn. Finally, he came to Duke where he completed his Medicine Internship, Neurology Residency, Neuromuscular Fellowship, and Masters in Clinical Research Science. He is currently a Professor of Neurology at Duke and Director of the Duke ALS Clinic. He has won awards for teaching and patient care, including best Neurology teacher at Duke, Health Care Hero, Strength Hope, and Caring Award, America’s Best Doctor, the American Academy of Neurology Patient Advocate of the Year, and the Rasmussen ALS Patient Advocate of the Year. He has received ALS research grants, participated in ALS clinical trials, published more than 130 ALS articles. He is the leader of the international ALSUntangled program which utilizes social networking to investigate alternative and off-label treatment options for patients with ALS, and leader of the ALS Reversals program which attempts to understand why some people with ALS recover from it, and to make this happen more often. He lives in Durham, North Carolina with his wife Shelly and two mischievous cats.
![Amyotrophic Lateral Sclerosis [ALS] | Mechanism of Neuron Death](http://i.ytimg.com/vi/dLHS8XzGO6g/mqdefault.jpg)
![Eminem - Houdini [Official Music Video]](http://i.ytimg.com/vi/22tVWwmTie8/mqdefault.jpg)
Dr. B, my wife, survived 8 years with not only ALS but also metastasizing cancers. She walked-talked and breathed on her own thanks in part to you and functional MDs ! THANK YOU!!!
I do not have any ties to ALS, but am very familiar with the community. Dr. Bedlack is a gem that is uncommon to the medical profession.
I have Familial ALS and pray you find a way to reverse it. I am taking Riluzole and feeling fine. And I am very positive in attitude.
❤
Bedlack is doing great work.
I think it would be interesting to get with the author of the book cured the science of spontaneous remission. He’s a Harvard professor and has been studying spontaneous remission’s incredible diseases for over 20 years. I recently read this book it’s completely mind-boggling and fascinating and very well done.
Thankyou Dr Bedlack.I have als and am taking Albiroza,.i enjoyed your speech.
Has anyone had experience with or learned about TUDCA in relation to ALS?
Hi there DR. Bedlack is a hope for all the patients that are living with ELS. I like the last approach about positivity - I would like to get more information about some new theories that include physiologists and several research on psychoneuroimmunology- , biodecoding- Do you have any scientific research about that? Thanks!
Thank you so much for this wonderful information.
I have all symptoms gradually slowly progressing suffering and lost my job ! in 2 years slowly signaling first in left leg , left hip, lift hand ,left neck , throat, muscles losing strength, falls , imbalances, knee jerk, heavy body difficulty walking , using walking aid! How can I contact this amazing Dr to heal me please 🙏 from Melbourne Australia please help me to contact this awesome Dr
As I find the major 4 reasons of ALS are neuroinflammation, oxidative state, disruptive autophagy and mitochondrial dysfunction. One stop solution could be fasting. Because fasting helps in all the above 4 conditions in the best possible way, better than any drugs.
Can you say that in laymen’s terms?
@@juliamiller5120 Sure. Please Explore about benfits of fasting. You will get to know in all the 4 cases fasting is helpful, but do research of your own more before you do any fasting. Because probably doctor will not suggest fasting for sure.
@@subhadipsaha1359 no, I mean the 4 major reasons. I understand neuro inflammation, but what are the other 3? What to they mean?
@@juliamiller5120 I am not any expert .. hehe.. My father has ALS, so I just explore these things. Oxidative state is like pollution and damage in your body, autophagy is cellular cleansing, and mitochondrial disfunction simply means when mitochondria doesnt work as expected. It would be best if you research of your own.
I am curious about the treatments applied by allied health. With stroke , it seems most of the healing comes through therapy AND motivated patients and caregivers. Docs just prescribe to prevent another stroke. Richard Bedlack's mentioning that the motor neurons learn how to be stronger ( if i got it right ) in reversals made me think of the new synapsis in the brain that one develops after stroke through usually hard work and allied health. I just wonder what happened in the PT / OT /RT / speech therapy of the reversal patients?
Richard, interested in this scenario: Confirmed SOD1 ALS via gene testing yet progressing VERY slow? My daughter was originally diagnosed with CMT several years ago then the neurologist switched to ALS. Is this protein status either strictly on or off? Or could she have something in between?
While standard hyperbaric treatment involves high pressure oxygen, a group from Israel (Eferati, Hadanny, et al) has pioneered the use of the hyperoxia-hypoxia paradox to trigger stem cell production including the stem cells mentioned in the Doctor's talk. The process is different from standard hyperbaric treatments in that a person is in high pressure chamber (2 to 2 1/2 atmospheres) breathing normal mixed air. Every 20 min or so they breathe pure oxygen through a mask. They take the mask away (and breathe normal mixed but still high pressure air in the chamber) and the super saturated oxygen level starts falling toward normal levels. This triggers or fools the body into the hypoxia reaction (without actually having hypoxia) and triggers stem cell production. There is a private pay facility at the Villages complex in Florida that is offering this to the public. I wonder if it would be useful or if you have any comments?
Alan Everett
Any references pls about hypoxia creating stem cell production?
Hello, please provide details, it would be helpful.
Just curious on the thoughts on the medical community and ALD with Lorenzo's oil. It took two parents fighting the system to find help.
That is such a fantastic movie.
Thank you so much for that publication🙏🏼 I was signed up to join you live but unfortunately it was 2am our European time.
Fresh diagnosis of my dad, 62y.o., we’re sending him to New York in December. Can you recommend any specialist?
Also - so far it’s slow progression. Do you think you could admit him to genieus study?
I used Dr Matsumoto of Columbia University Medical
I am currently in the process of an ALS Reversal. We shall see. I did refinishing furniture when I was younger and used spray paint. I am not sure if I am going to say this right. When they did my genetic testing they did not find the mutated gene either.
Great! What do you attribute your reversal to?
Merhaba senin adiniza sevindim...babam ALS .siz nasil bir tedavi uyguluyorsunuz bize de yardimci olursaniz cok mutlu oluruz..
Please tell me how you do the reversal please? I’m suffering
@@Elifeylul-zs4gc I figured out how to translate. Above your posts I kinda of explain what I am doing. I do go to an oxygen tank once a week as well. This disease is definitely a hard. Especially watching your love go through it. Please know I am not a medical professional.
@@therenoprojectals My father can't talk, I wonder what you are using for this problem. I would be very happy if you could help me..
Sir, can FUS mutation can be reversed? My son is having the same and dr says it is JALS.
My cousin just got diagnosed with ALS in March 2024. Is there a study you are doing now that he may get in that may be able to beat this?
Here’s my thought. Looking for one cure for what is most likely many different causes doesn’t make sense. I mean even the on set is different. Progression is different
Many do have cervical or thoracic spine or TBI
A brain barrier breach would allow toxic substances that poison( tangle) and stop the normal nerve conduction
Is enough testing done to really rule out heavy metals, mold, Lyme, pesticides, etc ??
Gluten, dairy, sugar free diet… addressing the gut, enhancing detoxification
And eliminating environmental toxins in each individual seems more beneficial
Have you ever considered trials with anti-helminthics/anti-parasitics? (The -azole family of medicines: Albendazole, Fenbendazole, Mibendazole, Oxibendazole, etc)
How I can get these? Any healing comes I’m willing to heal from this disease please ❤
@@kokoyumz7820 you can get them prescribed or you can go to your local feed and seed store and get the paste used for horses. I personally trust that more than anything intended for human consumption by big pharma. It's dosed by weight and you can set the dial in the plunger yourself. I always recommend researching it before consuming.
What do yoi think of the Deanna protocol.
I read that if you have Bulbar - ALS, the life expectancy was less than 2 years. I am at 1 year and 8 months. Any thought on this ? I really would appreciate an educated answer. Thank You.
How are you doing Michael?
I was told by my neurologist that I wouldn’t live 6 months. That was 4+ years ago.
I’ve reversed most of my ALS Bulbar. My ALS Protocol will be used in clinical trials, soon, no doubt, as 15 of my first slow-moving ALS clients reported improvements in 90 days or less!! WOOHOO!! Making ALS / Medical History!! Join my group!! All the info on how to do my Protocol is listed in the search, just type in - My story, how I reversed my ALS Bulbar, in the search ( the magnifying glass up top right on your screen ) after you’ve joined my group. 🎉
Can't find ur page
how the frick was lou gehrig able to play elite level baseball even with early stages of ALS ? but i guess he was just that good.
the story of dean kraft and nelda buss is just amazing, especially after having read both of their books. until i heard about nelda buss i thought hands on healing was absolute rubbish.
also too bad about about the theracurmin trial.
Were any of them healed? Did they say if they ever took statin medication (a major cause because medications to lower cholesterol destroy nerve myelin causing nerve degeneration - Dr. Hannah Yoseph books).
Dr. Bedlack, Please, have you ever seen a reversal from statin-induced ALS?
How long do one has to be on statin to develop als?
@@KennyGuyte There is doctor's book that says about 2 years, but it is also probably dose dependant. She says using statins is the worst thing you can do for your health, worse than smoking. There are scientific articles stating this connection also. "Medication" to lower cholesterol destroys the nerves' myelin because it is made of cholesterol, thereby causing nerve degeneration.
@@elainer8288 I was on red yeast rice then rosuvastatin 10mg about 4 months. 11/20/22 experience fasciculations in left calf muscle that spread all over with jerking. Painful knees calfs and Achilles. A dent in my brachial bicep hands painful thumbs. 01/06/23 ALS Clinic Neuromuscular Neurologist performed Physical Exam, EMG, NCS seat me down and explained I do not have ALS. He said he felt good to tell me this news because he had to tell two people they do have it. God bless I pray for all of us🙏🏾❤️🩹💪🏾✊🏾
@@KennyGuyte So make sure to stop the poisoning in time.
@@elainer8288 I stopped months ago. I still have fasciculations and muscles fatigue. However, trusting God that the Neuromuscular Neurologist diagnosis is solid benign fasciculations. On the contrary, Statin low dose has my joints aching even after I’ve stopped.