Everything ALS
Everything ALS
  • Видео 200
  • Просмотров 443 768
Implantable BCI Technology - The Road to Access
#ALS #ExpertTalk on Implantable BCI Technology, with:
- Craig Mermel, President and Chief Product Officer - Precision Neuroscience
- Spencer Kellis, Sr. Team Lead Data Sc Clinical Research - Blackrock
- Andreas Forsland, Founder, CEO, Chief Prod Officer - Cognixion
- Chris Ullrich, Chief Technology Officer - Cognixion
- Shelena Lalji, CEO & Founder - ALS Heros & Shell Wellness Center
Просмотров: 425

Видео

Pridopodine for treatment of ALS
Просмотров 2,3 тыс.Месяц назад
#ALS #ExpertTalk with Dr. Michael R. Hayden, CEO of Prilenia, and Henk Schuring, Chief Regulatory and Commercialization Officer at Prilenia
RAPA Therapeutics - ALS Trials, Expanded Access and Treatments
Просмотров 1,6 тыс.Месяц назад
#ALS #ExpertTalk with Mr. Brian Radecki, Founder & CEO, and Dr. Daniel Fowler, CMO of Rapa Therapeutics ("Rapa"), on ALS Studies, Trials, and Treatments
Brain Computer Interface (BCI) Trials in ALS
Просмотров 9262 месяца назад
Brain Computer Interface (BCI) Trials in ALS by Dr. Hochberg, Leigh R, , MD, PhD.
BLOWING UP THE PIPELINE:Stories from the frontlines of the ALS Revolution
Просмотров 1,6 тыс.2 месяца назад
In this #ExpertTalk series, Dr. Lyle W. Ostrow, MD, PhD, speaks about BLOWING UP THE PIPELINE: Stories from the frontlines of the #ALS Revolution. Dr. Lyle W. Ostrow is the Director at Temple University ALS Postmortem Core. He is also a board member at EverythingALS and the ALS Hope Foundation. TIMESTAMPS 00:00 Introduction 02:05 BLOWING UP THE PIPELINE: Stories from the frontlines of the ALS R...
ALS: Update in Treatment & Clinical Trials
Просмотров 3 тыс.3 месяца назад
ALS Update in Treatment & Clinical Trials by Dr. Jinsy A. Andrews. Dr. Jinsy is the Associate Professor of Neurology, in the Division of Neuromuscular Medicine & the Director of Neuromuscular Clinical Trials, Columbia University Irving Medical Center.
Crowdsourcing: Accelerating Genetic Findings through the ALS Compute Project
Просмотров 7113 месяца назад
In this #ExpertTalk series, Dr. John Landers, Professor of Neurology at UMass Chan Medical School talks about Crowdsourcing: Accelerating Genetic Findings through the #ALS Compute Project.
2024 ALS Outlook
Просмотров 3 тыс.4 месяца назад
In this episode of #ALS #experttalks, Dr. Merit Cudkowicz speaks about 2024 ALS Outlook. Dr. Merit Cudkowicz is the Director, Sean M. Healey & AMG Center for ALS, Chief of Neurology at Massachusetts General Hospital, Director & the Julieanne Dorn Professor of Neurology, at Harvard Medical School.
Welcome 2024! EverythingALS 2023 Recap 🎉
Просмотров 4984 месяца назад
Welcome 2024! In this video we look at 2023, year in review at EverythingALS 🎉
Women at EverythingALS
Просмотров 1424 месяца назад
Breaking barriers to #endALS! Meet the stellar women of EverythingALS 🌟 Happy #womensday from us at EverythingALS! 🫶🏼 #togetherwecan #shorts
ALS Genetics: Lessons from familial ALS/FTD and progress towards ALS prevention
Просмотров 1,3 тыс.4 месяца назад
Join us for an inspiring and informative expert talk on #ALS Genetics by Dr.Mark Garret M.D Dr. Garret earned his medical degree from the University of Pennsylvania, embarking on a specialized journey with a neurology residency and neuromuscular fellowship at Washington University in St. Louis. Throughout his fellowship, Dr. Garret actively engaged in multiple clinical trials focused on targete...
2024 ALS Reversals Update
Просмотров 16 тыс.5 месяцев назад
Join us for an inspiring and informative expert talk on 2024 ALS Reversals Update by Dr. Richard Bedlack M.D., Ph.D, Dr. Bedlack is a Stewart, Hughes and Wendt Distinguished Professor of ALS Duke & Director of the Duke ALS Clinic.
EverythingALS Vision 2030 Research AI Hub for Dan Doctroff
Просмотров 4065 месяцев назад
Together, along with our inaugural partners, MIT, Harvard Medical, and Mass General, we have launched the Vision 2030 Research Consortium. This pioneering endeavor unites a diverse array of stakeholders, including researchers, pharmaceutical and biotech companies, academia, and government health agencies - and harnesses the unprecedented capabilities of a robust AI-driven platform......the Visi...
EverythingALS Vision 2030 AI Research for ALS
Просмотров 1,5 тыс.5 месяцев назад
We are at an inflection point in medical science. Genetic engineering and stem cell research are emerging frontiers with enormous promise. We're able to study diseases in revolutionary ways with cortical and spinal organoids, and, neural engineering is emerging as a new, exciting category of research. Innovative companies are working on brain machine interfaces, and gene-editing technologies li...
How to Slow ALS Progression
Просмотров 7 тыс.5 месяцев назад
Join us for an inspiring and informative expert talk on How to Slow ALS Progression with Dr. Eduardo Locatelli, MD. Dr. Eduardo Locatelli, M.D., serves as the Medical Director of the Nova Southeastern University (NSU) Health Neuroscience Institute. Prior to this role, he played a key leadership role at Holy Cross Hospital (HCH) in Fort Lauderdale, where he spearheaded the establishment and grow...
Unraveling ALS: Environmental Insights Ahead by Stephen Goutman
Просмотров 1 тыс.5 месяцев назад
Unraveling ALS: Environmental Insights Ahead by Stephen Goutman
Harnessing The Power of Citizen Research By Mcfinn Lovere, Dave Shulman Michael Thayer Janie Gobeli
Просмотров 5246 месяцев назад
Harnessing The Power of Citizen Research By Mcfinn Lovere, Dave Shulman Michael Thayer Janie Gobeli
Developing a Robust Diagnostic Test for ALS by Dr. Sandra Banack from Brain Chemistry Labs.
Просмотров 3606 месяцев назад
Developing a Robust Diagnostic Test for ALS by Dr. Sandra Banack from Brain Chemistry Labs.
Major Health Insurers Delay or Deny Home Ventilation for People with ALS. What Can Be Done?
Просмотров 2817 месяцев назад
Major Health Insurers Delay or Deny Home Ventilation for People with ALS. What Can Be Done?
"The Art of Showing Up" 26 Years of Tending to and Caring for PALS and CALS.
Просмотров 3478 месяцев назад
"The Art of Showing Up" 26 Years of Tending to and Caring for PALS and CALS.
Phase 2b Study Readouts - Shifting the PARADIGM
Просмотров 7968 месяцев назад
Phase 2b Study Readouts - Shifting the PARADIGM
Radcliff Participant Portal
Просмотров 1368 месяцев назад
Radcliff Participant Portal
Using Stem Cells to Model and Treat ALS
Просмотров 3,6 тыс.9 месяцев назад
Using Stem Cells to Model and Treat ALS
Non-Invasive Treatment of ALS Using Motor Neuron Hyperexcitability Suppression
Просмотров 3 тыс.9 месяцев назад
Non-Invasive Treatment of ALS Using Motor Neuron Hyperexcitability Suppression
Digital Biomarker to #CuringALS
Просмотров 8909 месяцев назад
Digital Biomarker to #CuringALS
Personalized speech recognition models and other communication tools for pALS
Просмотров 36510 месяцев назад
Personalized speech recognition models and other communication tools for pALS
Radcliff Study with Steve Kowalski
Просмотров 17710 месяцев назад
Radcliff Study with Steve Kowalski
ALS Therapies and Treatment Updates: Updates on PrimeC
Просмотров 2,6 тыс.10 месяцев назад
ALS Therapies and Treatment Updates: Updates on PrimeC
30 years of ALS Genetics: distinguishing Signal from Noise
Просмотров 1,4 тыс.10 месяцев назад
30 years of ALS Genetics: distinguishing Signal from Noise
Gene-environment interactions leading to ALS
Просмотров 1,8 тыс.11 месяцев назад
Gene-environment interactions leading to ALS

Комментарии

  • @Ane127
    @Ane127 2 месяца назад

    Get a homeopath

  • @user-ms8yn6oi7e
    @user-ms8yn6oi7e 3 месяца назад

    Please sir help me my name is MOSAROF I'm from Bangladesh I'm 35 year old I'm suffering MND ALS disses one year please can you help me

  • @user-ms8yn6oi7e
    @user-ms8yn6oi7e 3 месяца назад

    Please sir help me my name is MOSAROF I'm from Bangladesh I'm 35 year old I'm suffering MND ALS disses one year please can you help me sir

  • @margaretstaino6277
    @margaretstaino6277 4 месяца назад

    Thank you

  • @margaretquaceci1369
    @margaretquaceci1369 4 месяца назад

    My cousin just got diagnosed with ALS in March 2024. Is there a study you are doing now that he may get in that may be able to beat this?

  • @christinachalvatzi945
    @christinachalvatzi945 5 месяцев назад

    Dr Bedlack have you considered toluene as cause factor of als??.....go check toluene and how to remove it from human body.we need to find the cause in order to find the therapy

  • @sammyp1556
    @sammyp1556 5 месяцев назад

    channel @dr.sammypryor has a playlist

  • @DEEPAKKUMAR-xq7vb
    @DEEPAKKUMAR-xq7vb 6 месяцев назад

    Greatest Discovery ever known to mankind

  • @lotwm1
    @lotwm1 7 месяцев назад

    i have been using Thc and Hemp gummies every 4 to 6 hours around the clock. SLeep with a Bi pap at night. i am in my 8th year now and started this the day i was diagnosed. I watched Kathy Jordon from florida. She is alive yet 35 years later in a wheel chair. I am still walking eating most things and takeing care of myself.

    • @lotwm1
      @lotwm1 7 месяцев назад

      my AFR score barely goes down. I started in the 40's and now in the 30's steady

  • @ltudose
    @ltudose 7 месяцев назад

    How Dr. Ayeez Lalji is doing?

  • @Peety56
    @Peety56 7 месяцев назад

    Good video gave me a lot of information

  • @DEEPAKKUMAR-xq7vb
    @DEEPAKKUMAR-xq7vb 8 месяцев назад

    Will you provide it under Right to Try

  • @LoveandButter
    @LoveandButter 8 месяцев назад

    Curcumin Dose?

  • @lexxluthor2166
    @lexxluthor2166 8 месяцев назад

    I was diagnosed with ALS around June 2022, I am hopeful that a cure is found soon!

  • @user-zk9xk7sb7r
    @user-zk9xk7sb7r 8 месяцев назад

    😢I have genetic als Burber does it work for that

  • @mariaflorenciaitzaina9075
    @mariaflorenciaitzaina9075 8 месяцев назад

    Hi there DR. Bedlack is a hope for all the patients that are living with ELS. I like the last approach about positivity - I would like to get more information about some new theories that include physiologists and several research on psychoneuroimmunology- , biodecoding- Do you have any scientific research about that? Thanks!

  • @thomasmolina9935
    @thomasmolina9935 8 месяцев назад

    Thank you.

  • @CF-hp2bu
    @CF-hp2bu 9 месяцев назад

    This is fantastic - thank you so much

  • @Libbertyone
    @Libbertyone 9 месяцев назад

    Here’s my thought. Looking for one cure for what is most likely many different causes doesn’t make sense. I mean even the on set is different. Progression is different Many do have cervical or thoracic spine or TBI A brain barrier breach would allow toxic substances that poison( tangle) and stop the normal nerve conduction Is enough testing done to really rule out heavy metals, mold, Lyme, pesticides, etc ?? Gluten, dairy, sugar free diet… addressing the gut, enhancing detoxification And eliminating environmental toxins in each individual seems more beneficial

  • @markheckman3987
    @markheckman3987 9 месяцев назад

    I believe that I have several symptoms of ALS, what do I do from here 🤔

    • @georgelewis1664
      @georgelewis1664 9 месяцев назад

      Mark, sorry , I don’t have an answer . I’m 84 and within the last month I began to experience severe lower leg pain ( I had total knee replacements 14 years ago , and used to exercise very vigorously - until one month ago when the weakness and pain set in ). I will be looking for a first visit to a neurologist as soon as I can get one . While I don’t have any other ALS symptoms ( that I am aware of , anyway ) I am very distressed - close to panic - at the prospect of having this disease . Keep in touch ; I hope you stay well . George

  • @Ath-lk3xg
    @Ath-lk3xg 9 месяцев назад

    Dan Diez, he is not forgotten. I work with those with ALS and every person matters!

  • @GuaranteedEtern
    @GuaranteedEtern 9 месяцев назад

    Could the changes in Gehrig's averages be he changed up his game to compensate for his increasing weakness?

  • @EdwardGraveline
    @EdwardGraveline 9 месяцев назад

    I have Familial ALS and pray you find a way to reverse it. I am taking Riluzole and feeling fine. And I am very positive in attitude.

  • @mosesscotts7196
    @mosesscotts7196 9 месяцев назад

    God has done a great thing in my life by using Doctor Omole on RUclips to cure me from herpes disease...

  • @nitinkapoor3578
    @nitinkapoor3578 10 месяцев назад

    Sir, can FUS mutation can be reversed? My son is having the same and dr says it is JALS.

  • @lotwm1
    @lotwm1 10 месяцев назад

    This is intresting these two dieses caused so far they found out from alcholism. but is a deffiency from Thiame Wemicke Encephalopathy and Wemicke Korsakof syndrom

  • @HoHos19
    @HoHos19 10 месяцев назад

    Anyone who tried anything here and it worked?

  • @jameswaldin9925
    @jameswaldin9925 11 месяцев назад

    What do yoi think of the Deanna protocol.

  • @theironman1903
    @theironman1903 11 месяцев назад

    How much and how to take curcumin please tell my mother has ALS😢

  • @michaelschoel8852
    @michaelschoel8852 11 месяцев назад

    You don't reverse ALS.

    • @PapagenoMF
      @PapagenoMF 8 месяцев назад

      Yet it has been reversed... hmmm..

  • @AlexiHolford
    @AlexiHolford Год назад

    For those of us with a genetic variant that causes ALS (and for those with c9orf72, also FTD), have you seen any reversals?

  • @subhadipsaha1359
    @subhadipsaha1359 Год назад

    As I find the major 4 reasons of ALS are neuroinflammation, oxidative state, disruptive autophagy and mitochondrial dysfunction. One stop solution could be fasting. Because fasting helps in all the above 4 conditions in the best possible way, better than any drugs.

    • @juliamiller5120
      @juliamiller5120 11 месяцев назад

      Can you say that in laymen’s terms?

    • @subhadipsaha1359
      @subhadipsaha1359 11 месяцев назад

      @@juliamiller5120 Sure. Please Explore about benfits of fasting. You will get to know in all the 4 cases fasting is helpful, but do research of your own more before you do any fasting. Because probably doctor will not suggest fasting for sure.

    • @juliamiller5120
      @juliamiller5120 11 месяцев назад

      @@subhadipsaha1359 no, I mean the 4 major reasons. I understand neuro inflammation, but what are the other 3? What to they mean?

    • @subhadipsaha1359
      @subhadipsaha1359 11 месяцев назад

      @@juliamiller5120 I am not any expert .. hehe.. My father has ALS, so I just explore these things. Oxidative state is like pollution and damage in your body, autophagy is cellular cleansing, and mitochondrial disfunction simply means when mitochondria doesnt work as expected. It would be best if you research of your own.

  • @Paratus7
    @Paratus7 Год назад

    MRNA vaccine exposure?!

  • @johnloss4609
    @johnloss4609 Год назад

    I think it would be interesting to get with the author of the book cured the science of spontaneous remission. He’s a Harvard professor and has been studying spontaneous remission’s incredible diseases for over 20 years. I recently read this book it’s completely mind-boggling and fascinating and very well done.

  • @rollling7523
    @rollling7523 Год назад

    What is ALS ?

  • @ventsislavstoyanov9431
    @ventsislavstoyanov9431 Год назад

    thanks

  • @hildamartinez1612
    @hildamartinez1612 Год назад

    This medication kill my husband amylyx

  • @johnhyatt2753
    @johnhyatt2753 Год назад

    Dr. B, my wife, survived 8 years with not only ALS but also metastasizing cancers. She walked-talked and breathed on her own thanks in part to you and functional MDs ! THANK YOU!!!

  • @kokoyumz7820
    @kokoyumz7820 Год назад

    I have all symptoms gradually slowly progressing suffering and lost my job ! in 2 years slowly signaling first in left leg , left hip, lift hand ,left neck , throat, muscles losing strength, falls , imbalances, knee jerk, heavy body difficulty walking , using walking aid! How can I contact this amazing Dr to heal me please 🙏 from Melbourne Australia please help me to contact this awesome Dr

  • @stuarthanna-ih9lt
    @stuarthanna-ih9lt Год назад

    Bedlack is doing great work.

  • @ventsislavstoyanov9431
    @ventsislavstoyanov9431 Год назад

    thanks

  • @Zakariah1971
    @Zakariah1971 Год назад

    Cause of Als is herpes

  • @ventsislavstoyanov9431
    @ventsislavstoyanov9431 Год назад

    thanks

  • @grahamfleming8139
    @grahamfleming8139 Год назад

    The work on ageing by Dr David Sinclair on Nads and Reservatol claims to halt Als? Has vitamin b3 or b12 been studied? I have seen a guy called macdfinn claim he has totally cured it. Is their a mean age this starts would Indicate ageing as a factor in it. It is you did mention autophagy and misfolding of proteins. Senolytics and the likes apegin fisetin mushrooms 🍄 are but a few used in this route of àutophagy. Anyway great 👍 video. All the best Sir.

  • @laurenleo2049
    @laurenleo2049 Год назад

    Dr Ehimare 🌿 herbs medicine cure treatment formula on RUclips channel cured and reverse my uncle from Motor neuron disease Al's permanently ❤️

  • @oksanalutsyshyn5955
    @oksanalutsyshyn5955 Год назад

    Thank you so much for this wonderful information.

  • @PatriotGinj
    @PatriotGinj Год назад

    Have you ever considered trials with anti-helminthics/anti-parasitics? (The -azole family of medicines: Albendazole, Fenbendazole, Mibendazole, Oxibendazole, etc)

    • @kokoyumz7820
      @kokoyumz7820 Год назад

      How I can get these? Any healing comes I’m willing to heal from this disease please ❤

    • @PatriotGinj
      @PatriotGinj Год назад

      @@kokoyumz7820 you can get them prescribed or you can go to your local feed and seed store and get the paste used for horses. I personally trust that more than anything intended for human consumption by big pharma. It's dosed by weight and you can set the dial in the plunger yourself. I always recommend researching it before consuming.

  • @sonoviavhorace2016
    @sonoviavhorace2016 Год назад

    Hi Cali, my name is Sonovia Horace. I was diagnosed with ALS in 2011. Thanks for being an ALS Mascot. We need more Mascots like you to brighten up our spirits!

  • @tomasw6985
    @tomasw6985 Год назад

    Are the bats just extremely delicious or can it make you high? This is another reason to not eat bats besides God telling us not to. (Corona viruses, ebola, and now neurotoxins.) Interesting how red tides are a sign of the cyanobacteria. (Think Moses.) I mean He told His people to wash their hands if they were unclean to prevent disease thousands of years before doctors started doing it. And isnt it curious that the creation of Eve in Genesis sounds like anesthesia, surgery, suturing, and genetic manipulation? An interesting study might be to go through the animal list in Deuteronomy 14 to see why we shouldnt eat them whether it be bacterial, viral, or chemical. As another study, why could honey, olive oil, and the ingredients in ancient bread be medicinal. It is my thought that herbal medicines lead to the tree of life. God gives hints to this test to find Him called life. My son said his teacher said she had what sounded like ALS just a few months ago. I already gave him a note to give to her to watch Dr. Cox's Ted Talk if that is what she has. Awesome work Dr. Cox and those around him! Thanks to those who posted this video!

  • @josealvarez9754
    @josealvarez9754 Год назад

    I am curious about the treatments applied by allied health. With stroke , it seems most of the healing comes through therapy AND motivated patients and caregivers. Docs just prescribe to prevent another stroke. Richard Bedlack's mentioning that the motor neurons learn how to be stronger ( if i got it right ) in reversals made me think of the new synapsis in the brain that one develops after stroke through usually hard work and allied health. I just wonder what happened in the PT / OT /RT / speech therapy of the reversal patients?