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Everything ALS
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Добавлен 9 апр 2020
This project is inspired by patient advocates as a tribute to our loved ones. Our mission is to support efforts to care for ALS patients and work to find a cure by creating a platform for direct engagement with patients, caregivers, advocates, researchers and technology innovations. Our amazing team is committed to Care to Cure for ALS. We take our convictions and turn them into action. EverythingALS is functioning under Peter Cohen Foundation (PCF), a non-profit 501(3)c organization. EIN 84-3055901
#ExpertTalk: Caring for People with ALS — Addressing Cognitive Difficulties | Dr. Cathy Hoerth
Welcome to another compelling episode of #ExpertTalk by EverythingALS!
In this session, we address one of the most critical yet often overlooked aspects of ALS care - cognitive difficulties. Our esteemed guest speaker, Dr. Cathy Hoerth, Chief of the Neuromuscular Division and Director of the ALS Center at the UCSF Weill Institute for Neurosciences, shares her expert insights and practical guidance.
Dr. Hoerth sheds light on the cognitive and behavioral changes that can accompany ALS, offering evidence-based strategies to support patients, caregivers, and healthcare professionals. This discussion highlights the importance of recognizing and addressing cognitive challenges to improve the ove...
In this session, we address one of the most critical yet often overlooked aspects of ALS care - cognitive difficulties. Our esteemed guest speaker, Dr. Cathy Hoerth, Chief of the Neuromuscular Division and Director of the ALS Center at the UCSF Weill Institute for Neurosciences, shares her expert insights and practical guidance.
Dr. Hoerth sheds light on the cognitive and behavioral changes that can accompany ALS, offering evidence-based strategies to support patients, caregivers, and healthcare professionals. This discussion highlights the importance of recognizing and addressing cognitive challenges to improve the ove...
Просмотров: 187
Видео
#ExpertTalk: CNM-Au8 Long-term Evidence & EAP Program Update | Rob Etherington & Dr. Marjan Sepassi
Просмотров 49323 часа назад
Welcome to another insightful episode of #ExpertTalk by EverythingALS! In this session, we bring you the latest updates on CNM-Au8, a groundbreaking therapeutic candidate from Clene Nanomedicine. Our expert speakers, Rob Etherington (Chief Executive Officer, Clene Nanomedicine) and Dr. Marjan Sepassi (Vice President, Medical Affairs, Clene Nanomedicine), delve into the long-term evidence suppor...
Shifting the PARADIGM:PrimeC, an Oral Candidate for ALS
Просмотров 71914 дней назад
*#ExpertTalk by Everything ALS* Join us for an insightful discussion on *"Shifting the Paradigm: PrimeC, an Oral Candidate for ALS"* featuring Dr. Shiran Zimri, PhD, VP of Research and Development, and Dr. Shiran Zimri, MD, Chief Medical Officer, from NeuroSense Therapeutics. Learn how PrimeC is shaping new possibilities in ALS treatment and advancing research to improve patient outcomes. Don't...
2025: New therapies and approaches in ALS : gene, small molecules, repair, and more
Просмотров 2,4 тыс.Месяц назад
#ExpertTalk with Dr. Merit Cudkowicz, MD. Dr. Merit is the Chair of Neurology Massachusetts General Hospital and the Julieanne Dorn Professor of Neurology Harvard Medical School
What's Old is New Again:Role of the Innate Immunity and its Biomarkers in ALS
Просмотров 7232 месяца назад
#ExpertTalk with Dr. Matthew Davis, MD, RPh - Chief Medical Officer, Neuvivo
The Miami Framework forALS & RelatedNeurodegenerativeDisorders
Просмотров 7402 месяца назад
#ExpertTalk with Dr.Michael Benatar, M.D, PhD - Professor of Neurology and Public Health Sciences | Chief, Neuromuscular Division
EverythingALS Connect for answers, always live
Просмотров 4872 месяца назад
In this #ExpertTalk learn more about Path finders and the EverythingALS app
Remote Respiratory Monitoring for PALS: Implementation in ALS Multidisciplinary Clinic
Просмотров 3323 месяца назад
#ExpertTalk by Dr. Eufrosina Young - Remote Respiratory Monitoring for PALS: Implementation in ALS Multidisciplinary Clinic.
Light the Way: DismantlingALS one gene at a time
Просмотров 8723 месяца назад
#ExpertTalk - Light the Way: Dismantling ALS one gene at a time by Paul Wicks, PhD, Vice President of Neuroscience, Sano Genetics
Dietary and lifestyle approaches to protect your brain
Просмотров 7963 месяца назад
#ExpertTalk on Dietary and lifestyle approaches to protect your brain by Dr.Terry L. Wahls, Clinical Professor of Internal Medicine-General Internal Medicine
Remote Respiratory Monitoring for PALS: Implementation in ALS Multidisciplinary Clinic
Просмотров 3814 месяца назад
Remote Respiratory Monitoring for PALS: Implementation in ALS Multidisciplinary Clinic by Dr. Eufrosina Young.
Behind the scenes with EverythingALS team
Просмотров 2774 месяца назад
Behind the scenes with EverythingALS team
Outcome Measures in ALS Clinical Trials
Просмотров 1 тыс.4 месяца назад
Outcome Measures in ALS Clinical Trials by Angela Genge, MD, FRCP(C)
Implantable BCI Technology - The Road to Access by Precision Neuroscience, Blackrock and Cognixion
Просмотров 8495 месяцев назад
#ALS #ExpertTalk on Implantable BCI Technology, with: - Craig Mermel, President and Chief Product Officer - Precision Neuroscience - Spencer Kellis, Sr. Team Lead Data Sc Clinical Research - Blackrock - Andreas Forsland, Founder, CEO, Chief Prod Officer - Cognixion - Chris Ullrich, Chief Technology Officer - Cognixion - Shelena Lalji, CEO & Founder - ALS Heros & Shell Wellness Center
Pridopodine for treatment of ALS
Просмотров 3,8 тыс.6 месяцев назад
#ALS #ExpertTalk with Dr. Michael R. Hayden, CEO of Prilenia, and Henk Schuring, Chief Regulatory and Commercialization Officer at Prilenia
RAPA Therapeutics - ALS Trials, Expanded Access and Treatments
Просмотров 2,3 тыс.6 месяцев назад
RAPA Therapeutics - ALS Trials, Expanded Access and Treatments
Brain Computer Interface (BCI) Trials in ALS
Просмотров 2 тыс.7 месяцев назад
Brain Computer Interface (BCI) Trials in ALS
BLOWING UP THE PIPELINE:Stories from the frontlines of the ALS Revolution
Просмотров 1,8 тыс.7 месяцев назад
BLOWING UP THE PIPELINE:Stories from the frontlines of the ALS Revolution
ALS: Update in Treatment & Clinical Trials
Просмотров 4,1 тыс.8 месяцев назад
ALS: Update in Treatment & Clinical Trials
Crowdsourcing: Accelerating Genetic Findings through the ALS Compute Project by Dr. John Landers
Просмотров 8538 месяцев назад
Crowdsourcing: Accelerating Genetic Findings through the ALS Compute Project by Dr. John Landers
2024 ALS Outlook by Dr. Merit Cudkowicz
Просмотров 4 тыс.8 месяцев назад
2024 ALS Outlook by Dr. Merit Cudkowicz
Welcome 2024! EverythingALS 2023 Recap 🎉
Просмотров 6959 месяцев назад
Welcome 2024! EverythingALS 2023 Recap 🎉
ALS Genetics: Lessons from familial ALS/FTD and ALS prevention by Dr.Mark Garret M.D
Просмотров 1,6 тыс.9 месяцев назад
ALS Genetics: Lessons from familial ALS/FTD and ALS prevention by Dr.Mark Garret M.D
2024 ALS Reversals Update by Dr. Richard Bedlack M.D., Ph.D
Просмотров 23 тыс.10 месяцев назад
2024 ALS Reversals Update by Dr. Richard Bedlack M.D., Ph.D
EverythingALS Vision 2030 Research AI Hub for Dan Doctroff
Просмотров 44710 месяцев назад
EverythingALS Vision 2030 Research AI Hub for Dan Doctroff
EverythingALS Vision 2030 AI Research for ALS
Просмотров 2 тыс.10 месяцев назад
EverythingALS Vision 2030 AI Research for ALS
Unraveling ALS: Environmental Insights Ahead by Stephen Goutman
Просмотров 1,2 тыс.10 месяцев назад
Unraveling ALS: Environmental Insights Ahead by Stephen Goutman
Harnessing The Power of Citizen Research By Mcfinn Lovere and Dave Shulman
Просмотров 57711 месяцев назад
Harnessing The Power of Citizen Research By Mcfinn Lovere and Dave Shulman
I have ALS my mom died in 1977 and my brother died in 2017 from ALS the doctors don"t believe me, trouble with swallowing and lost a lot of weight . i want my blood markers, marked or flaged
جيش قصص شفاء شيقة 🔥
How can my son participate in this study/trials. He is having Juvenile ALS
Get a homeopath
Please sir help me my name is MOSAROF I'm from Bangladesh I'm 35 year old I'm suffering MND ALS disses one year please can you help me
Please sir help me my name is MOSAROF I'm from Bangladesh I'm 35 year old I'm suffering MND ALS disses one year please can you help me sir
Thank you
My cousin just got diagnosed with ALS in March 2024. Is there a study you are doing now that he may get in that may be able to beat this?
Dr Bedlack have you considered toluene as cause factor of als??.....go check toluene and how to remove it from human body.we need to find the cause in order to find the therapy
channel @dr.sammypryor has a playlist
Greatest Discovery ever known to mankind
i have been using Thc and Hemp gummies every 4 to 6 hours around the clock. SLeep with a Bi pap at night. i am in my 8th year now and started this the day i was diagnosed. I watched Kathy Jordon from florida. She is alive yet 35 years later in a wheel chair. I am still walking eating most things and takeing care of myself.
my AFR score barely goes down. I started in the 40's and now in the 30's steady
How Dr. Ayeez Lalji is doing?
Good video gave me a lot of information
Will you provide it under Right to Try
Curcumin Dose?
I was diagnosed with ALS around June 2022, I am hopeful that a cure is found soon!
😢I have genetic als Burber does it work for that
Hi there DR. Bedlack is a hope for all the patients that are living with ELS. I like the last approach about positivity - I would like to get more information about some new theories that include physiologists and several research on psychoneuroimmunology- , biodecoding- Do you have any scientific research about that? Thanks!
Thank you.
This is fantastic - thank you so much
Here’s my thought. Looking for one cure for what is most likely many different causes doesn’t make sense. I mean even the on set is different. Progression is different Many do have cervical or thoracic spine or TBI A brain barrier breach would allow toxic substances that poison( tangle) and stop the normal nerve conduction Is enough testing done to really rule out heavy metals, mold, Lyme, pesticides, etc ?? Gluten, dairy, sugar free diet… addressing the gut, enhancing detoxification And eliminating environmental toxins in each individual seems more beneficial
I believe that I have several symptoms of ALS, what do I do from here 🤔
Mark, sorry , I don’t have an answer . I’m 84 and within the last month I began to experience severe lower leg pain ( I had total knee replacements 14 years ago , and used to exercise very vigorously - until one month ago when the weakness and pain set in ). I will be looking for a first visit to a neurologist as soon as I can get one . While I don’t have any other ALS symptoms ( that I am aware of , anyway ) I am very distressed - close to panic - at the prospect of having this disease . Keep in touch ; I hope you stay well . George
Make an appointment with a neurologist to get tested (likely an EMG) as a first step.
Dan Diez, he is not forgotten. I work with those with ALS and every person matters!
Could the changes in Gehrig's averages be he changed up his game to compensate for his increasing weakness?
I have Familial ALS and pray you find a way to reverse it. I am taking Riluzole and feeling fine. And I am very positive in attitude.
❤
God has done a great thing in my life by using Doctor Omole on RUclips to cure me from herpes disease...
Sir, can FUS mutation can be reversed? My son is having the same and dr says it is JALS.
This is intresting these two dieses caused so far they found out from alcholism. but is a deffiency from Thiame Wemicke Encephalopathy and Wemicke Korsakof syndrom
Anyone who tried anything here and it worked?
What do yoi think of the Deanna protocol.
How much and how to take curcumin please tell my mother has ALS😢
You don't reverse ALS.
Yet it has been reversed... hmmm..
There are more than 60 documented cases of reversal as of 2024….documented through Duke University
For those of us with a genetic variant that causes ALS (and for those with c9orf72, also FTD), have you seen any reversals?
As I find the major 4 reasons of ALS are neuroinflammation, oxidative state, disruptive autophagy and mitochondrial dysfunction. One stop solution could be fasting. Because fasting helps in all the above 4 conditions in the best possible way, better than any drugs.
Can you say that in laymen’s terms?
@@juliamiller5120 Sure. Please Explore about benfits of fasting. You will get to know in all the 4 cases fasting is helpful, but do research of your own more before you do any fasting. Because probably doctor will not suggest fasting for sure.
@@subhadipsaha1359 no, I mean the 4 major reasons. I understand neuro inflammation, but what are the other 3? What to they mean?
@@juliamiller5120 I am not any expert .. hehe.. My father has ALS, so I just explore these things. Oxidative state is like pollution and damage in your body, autophagy is cellular cleansing, and mitochondrial disfunction simply means when mitochondria doesnt work as expected. It would be best if you research of your own.
MRNA vaccine exposure?!
I think it would be interesting to get with the author of the book cured the science of spontaneous remission. He’s a Harvard professor and has been studying spontaneous remission’s incredible diseases for over 20 years. I recently read this book it’s completely mind-boggling and fascinating and very well done.
What is ALS ?
thanks
This medication kill my husband amylyx
Dr. B, my wife, survived 8 years with not only ALS but also metastasizing cancers. She walked-talked and breathed on her own thanks in part to you and functional MDs ! THANK YOU!!!
I have all symptoms gradually slowly progressing suffering and lost my job ! in 2 years slowly signaling first in left leg , left hip, lift hand ,left neck , throat, muscles losing strength, falls , imbalances, knee jerk, heavy body difficulty walking , using walking aid! How can I contact this amazing Dr to heal me please 🙏 from Melbourne Australia please help me to contact this awesome Dr
Bedlack is doing great work.
thanks
Cause of Als is herpes
thanks
The work on ageing by Dr David Sinclair on Nads and Reservatol claims to halt Als? Has vitamin b3 or b12 been studied? I have seen a guy called macdfinn claim he has totally cured it. Is their a mean age this starts would Indicate ageing as a factor in it. It is you did mention autophagy and misfolding of proteins. Senolytics and the likes apegin fisetin mushrooms 🍄 are but a few used in this route of àutophagy. Anyway great 👍 video. All the best Sir.
Thank you so much for this wonderful information.
Have you ever considered trials with anti-helminthics/anti-parasitics? (The -azole family of medicines: Albendazole, Fenbendazole, Mibendazole, Oxibendazole, etc)
How I can get these? Any healing comes I’m willing to heal from this disease please ❤
@@kokoyumz7820 you can get them prescribed or you can go to your local feed and seed store and get the paste used for horses. I personally trust that more than anything intended for human consumption by big pharma. It's dosed by weight and you can set the dial in the plunger yourself. I always recommend researching it before consuming.
Hi Cali, my name is Sonovia Horace. I was diagnosed with ALS in 2011. Thanks for being an ALS Mascot. We need more Mascots like you to brighten up our spirits!